My son is seven and has foot deformities due to amniotic bands he is not embarrassed at all and says it makes him special bless all you youngsters for sharing your stories
I was born with ABS too. I'm missing my left pinky, and most of my fingertips, my right foot is way smaller than my left, and my left was a club foot. I've never met anyone else with ABS, so it's really cool to know you guys exist.
I'm 16, a drummer, and I got ABS; I refer to it as "Stumps for Fingers Disease". My musical endeavors have helped me deal with this bullshit for years.
Today I found out my son has this, he is missing his whole left hand at our ultrasound. I’ve been crying all day. I know that my little one is going to need a lot of love everything will be okay.
Nkha92 Hi! I know how you feel. ❤️ Im 27 weeks pregnant and also found out that our little girl is missing his left forearm. It was really hard at first But I know that with our families and friend they will be love. We need to be strong for them. Good thing in this day and age theres a lot of high technology. Hugs!!
Mrs. Clove's Kitchen omg yes!! I’m only 19 weeks so I guess they caught it pretty early. We’re going to do an amnio and see if there’s any more info we need to know regarding our baby. But it’s been tough & our family knows it’s going to be a life changing journey. Thank you for replying it really warms my heart that I’m not the only one.
Nkha92 And also please always be strong, In the past days I experienced some down time and so many negative thoughts entered my mind and I realized its not healthy to my baby. Always see the bright side. Our babies will be awesome. They may be different but they will be differently capable and they can live on their own.
I saw your comment and instantly wanted to reach out. My name is Kasey, I was born with amniotic band syndrome 28 years ago - and I am missing parts of both hands and feet. I have grown up surrounded by love and optimism / confidence and was taught to do everything the other kids could do. I became a varsity athlete and even competed in college. I started a business at 18 years old, now run a large company with multiple employees, met the love of my life who also works for my company now full-time... all because of my family constantly believing in me and setting me up for success. I had some family members treat me like glass, but with ABS you can still do absolutely anything you put your mind to
I am 29 years old and I too was born with ABS and am glad to know there are others who exist with the same condition. I have my two middle fingers webbed together left hand, my index finger half sized, my left leg almost severed (the docs saved it), my left toes webbed together and my right foot has all of two and a half toes. I am blessed to have only cosmetic attributes as a result of ABS. God bless you all who educate those who dare to ask!
OMG...........My babygirl was born the same way..........she was born at 24 weeks and died shortly after..........they sent me home with no explanation.i figured what it was from the internet.............that was 21 years ago..........God bless you and yours..............
I'm 17 years old and I was born with ABS. My left foot is half the size as the other one. It's nice to finally have it explained and to know that I'm not alone.
I am as well victim to ABS I am 24 years old now. I was born about a month premature . Due date was January 28 and was born on December 25 1988. In my case I have bands wrapped around both of my hands preventing six fingers to develop including a thumb, which later I had a toe thumb transplant, which they took my second two from right leg to right hand. I also had them wrapped around my left leg three bands that is. This resulted to a club foot, and require a prosthesis.
I consider my self lucky I was born with ABS all my fingers on my left hand were webbed together and some were on my right hand I have no thumbs on ether hand . After years of surgery I have all my fingers separated and only have slight deformations. Also I have no does on ether foot. I'm glad to know I'm not alone and wish everyone the best
OMG! Go the same condition on hands&feet. Missing toes causes walking hard. Can you jump and run well? So glad to know there are others like this around the world!! I hope we can connect :D 😊
@Bluefirefoley im 24 and also have ABS and im missing fingers on my right hand and i have to have the bands removed on my left foot and ankle because i cant take the pain anymore. i just wanted u to know that u are not alone friend.....
@WENEEDBACKUPNOW I'm missing fingers on my right hand too. #FingerMissingBuddies.*( Jk, that just sounds awful. )* Two of my toes are webbed together, and the bone in my left hand for my thumb never grew in. I also had a clubbed foot when I was born...
My baby have a ambiotic band syndrome in 4th month pregnancy we will find and abort but I feel alone without my child my only question is ,is it possible to come back to my 2nd child is there any treatment to avoid this i felt so sad my age is 23 and my husband age is 35 is it any problem
I'm sorry for your loss. It is unlikely to occur in future pregnancies. Most cases occur sporadically. Here you can read more on the subject rarediseases.org/rare-diseases/amniotic-band-syndrome/ Here's another web page: rarediseases.info.nih.gov/diseases/429/amniotic-band-syndrome
sir now im 24 week pregnet In scan found 2 amniotic band Its effect my baby I pregnet after a very long time marrige 17 years pleas tel me sir its really affect on baby
Madam what is the current baby situation pls tell me fast because it affect ur baby am already face this situation u take nt scan and what doctor says ?? What is the situation now
@@keerthanakarthik8547 hai now I'm in 24 weeks pregnet Yasturday did my Anomaly scan Softer said I have Two Amniotic bands And said if baby stuck in this band put hand leg it's will Cut so told me Do agin scan in Coming my 30 weeks and 33 weeks So I'm tens lot Pleas tel me If you have any knowledge about this situation
@@princesanjay7805 sister doctor said any word amiotic band syndrome ?? My baby have a syndrome so oly it affect hand and leg . i find it in my 15 th week so we abort same prob for my baby one leg and one hand had a amiotic band but u r in 24 week doc y dont find before it. Sister baby ku blood circulation erukathu that band place so u please do any action otherwise baby life long problem survive . this is my baby sitiation so i dont know whether it is affect u baby or not .baby have any problem from band doctor said anything to u ?? Am from tamilnadu trichy when u free please reply me or i will give my number
My son is seven and has foot deformities due to amniotic bands he is not embarrassed at all and says it makes him special bless all you youngsters for sharing your stories
I was born with ABS too. I'm missing my left pinky, and most of my fingertips, my right foot is way smaller than my left, and my left was a club foot. I've never met anyone else with ABS, so it's really cool to know you guys exist.
You are not alone 🤗
Where are you from?
Im with abs to
I'm 16, a drummer, and I got ABS; I refer to it as "Stumps for Fingers Disease". My musical endeavors have helped me deal with this bullshit for years.
Today I found out my son has this, he is missing his whole left hand at our ultrasound. I’ve been crying all day. I know that my little one is going to need a lot of love everything will be okay.
Nkha92 Hi! I know how you feel. ❤️ Im 27 weeks pregnant and also found out that our little girl is missing his left forearm. It was really hard at first But I know that with our families and friend they will be love. We need to be strong for them. Good thing in this day and age theres a lot of high technology. Hugs!!
Mrs. Clove's Kitchen omg yes!! I’m only 19 weeks so I guess they caught it pretty early. We’re going to do an amnio and see if there’s any more info we need to know regarding our baby. But it’s been tough & our family knows it’s going to be a life changing journey. Thank you for replying it really warms my heart that I’m not the only one.
Nkha92 I found this group called Lucky fin project in Facebook or instagram. So many inspirational stories. We are not alone 💕💕hugs!!!
Nkha92 And also please always be strong, In the past days I experienced some down time and so many negative thoughts entered my mind and I realized its not healthy to my baby.
Always see the bright side. Our babies will be awesome. They may be different but they will be differently capable and they can live on their own.
I saw your comment and instantly wanted to reach out. My name is Kasey, I was born with amniotic band syndrome 28 years ago - and I am missing parts of both hands and feet. I have grown up surrounded by love and optimism / confidence and was taught to do everything the other kids could do. I became a varsity athlete and even competed in college. I started a business at 18 years old, now run a large company with multiple employees, met the love of my life who also works for my company now full-time... all because of my family constantly believing in me and setting me up for success. I had some family members treat me like glass, but with ABS you can still do absolutely anything you put your mind to
I am 29 years old and I too was born with ABS and am glad to know there are others who exist with the same condition. I have my two middle fingers webbed together left hand, my index finger half sized, my left leg almost severed (the docs saved it), my left toes webbed together and my right foot has all of two and a half toes. I am blessed to have only cosmetic attributes as a result of ABS. God bless you all who educate those who dare to ask!
OMG...........My babygirl was born the same way..........she was born at 24 weeks and died shortly after..........they sent me home with no explanation.i figured what it was from the internet.............that was 21 years ago..........God bless you and yours..............
I'm 17 years old and I was born with ABS. My left foot is half the size as the other one. It's nice to finally have it explained and to know that I'm not alone.
11 years ago!
How beautiful the doctor is 🥺💞💞
im 16, and my mom was told when i was born this is what happened to me, but ive never really had it explained to me, this helped :)
I am as well victim to ABS I am 24 years old now. I was born about a month premature . Due date was January 28 and was born on December 25 1988. In my case I have bands wrapped around both of my hands preventing six fingers to develop including a thumb, which later I had a toe thumb transplant, which they took my second two from right leg to right hand. I also had them wrapped around my left leg three bands that is. This resulted to a club foot, and require a prosthesis.
I consider my self lucky I was born with ABS all my fingers on my left hand were webbed together and some were on my right hand I have no thumbs on ether hand . After years of surgery I have all my fingers separated and only have slight deformations. Also I have no does on ether foot. I'm glad to know I'm not alone and wish everyone the best
OMG! Go the same condition on hands&feet. Missing toes causes walking hard. Can you jump and run well? So glad to know there are others like this around the world!! I hope we can connect :D 😊
I’m wondering did you get surgeries? 😁
Yes I am a freak, and I love it. Thank you for your compliment. From you, it means the world.
thank you for that you are amazing
Learning about this thanks to Shaquem Griffin
@Bluefirefoley im 24 and also have ABS and im missing fingers on my right hand and i have to have the bands removed on my left foot and ankle because i cant take the pain anymore. i just wanted u to know that u are not alone friend.....
So the band becomes part of your body but like a scar i spose...?
Watching October 2022
Me too ! Well not exactly the same but kind of .
My daughter was born with amniotic band syndrome she has no left feet
@WENEEDBACKUPNOW I'm missing fingers on my right hand too. #FingerMissingBuddies.*( Jk, that just sounds awful. )* Two of my toes are webbed together, and the bone in my left hand for my thumb never grew in. I also had a clubbed foot when I was born...
I’m 28 & have ABS
Same condition here! Did you get surgeries for it? How's it now.😀😊
My baby have a ambiotic band syndrome in 4th month pregnancy we will find and abort but I feel alone without my child my only question is ,is it possible to come back to my 2nd child is there any treatment to avoid this i felt so sad my age is 23 and my husband age is 35 is it any problem
I'm sorry for your loss. It is unlikely to occur in future pregnancies. Most cases occur sporadically. Here you can read more on the subject rarediseases.org/rare-diseases/amniotic-band-syndrome/
Here's another web page: rarediseases.info.nih.gov/diseases/429/amniotic-band-syndrome
sir now im 24 week pregnet In scan found 2 amniotic band Its effect my baby I pregnet after a very long time marrige 17 years pleas tel me sir its really affect on baby
Madam what is the current baby situation pls tell me fast because it affect ur baby am already face this situation u take nt scan and what doctor says ?? What is the situation now
@@keerthanakarthik8547 hai now I'm in 24 weeks pregnet Yasturday did my Anomaly scan Softer said I have Two Amniotic bands And said if baby stuck in this band put hand leg it's will Cut so told me Do agin scan in Coming my 30 weeks and 33 weeks So I'm tens lot Pleas tel me If you have any knowledge about this situation
@@princesanjay7805 sister doctor said any word amiotic band syndrome ?? My baby have a syndrome so oly it affect hand and leg . i find it in my 15 th week so we abort same prob for my baby one leg and one hand had a amiotic band but u r in 24 week doc y dont find before it. Sister baby ku blood circulation erukathu that band place so u please do any action otherwise baby life long problem survive . this is my baby sitiation so i dont know whether it is affect u baby or not .baby have any problem from band doctor said anything to u ?? Am from tamilnadu trichy when u free please reply me or i will give my number
So this shouldn't be hereditary?
I heard people got it from her grandmother. Do you have ABS too?
Pls reply me any body
Lol