GFPD | Dr. Mousumi Bose EL-PFDD Video

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  • เผยแพร่เมื่อ 11 ธ.ค. 2024
  • As we wrap up 2023, we look ahead to the 2024 GFPD Family and Scientific Conference. The centerpiece of our conference this year is the Externally Led-Patient Focused Drug Development (EL-PFDD) meeting on May 28th. Watch as Dr. Mousumi Bose shares information about this meeting, the FDA's involvement, and the importance of your participation. Research initiatives like the EL-PFDD meeting are funded by our Be Part of the Cure campaign. Please consider helping us continue our research efforts by donating at / 897183424669479
    #GFPD #PBDZSD #RareDiseaseAwareness #RareDisease #FindACure
    #GFPDisFamily #GFPDisResearch #GFPDisHope #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids
    #DBPD #AMACRD #ACOX

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