Great Podcast you guys! Lissa, can't thank you enough for all you do, we are 6 months in on our 22 year old son's diagnosis (LHON 3460). Currently we are climbing out of, as you said so well, "the emotional abiss." Praying for all.
I’m only 12 minutes into this. I also have LHON greetings from Ireland. I was diagnosed in 2005 i’m 31 now and to this day they never found my genetic code 2019 I went to get genetic testing again and apparently they ran out of the solution and to this day I’m still phoning I’m still checking in I have been left on the shelf gathering dust since 2005 the Royal Victorian eye and ear hospital my professors name is Lorraine Cassidy who nowadays gives me zero time of day I got a little bit of my central vision back praise God for that. I really hope something soon can get us our sight Thanks for this I hope I can reach out to you take care
Great Podcast you guys! Lissa, can't thank you enough for all you do, we are 6 months in on our 22 year old son's diagnosis (LHON 3460). Currently we are climbing out of, as you said so well, "the emotional abiss." Praying for all.
Absolutely love Lisa, her help and advice has been invaluable to us as a family since our "journey into the LHON world" began two years ago.
Great stuff! What a leader in awareness for our community thru LISSA.
I’m only 12 minutes into this. I also have LHON greetings from Ireland. I was diagnosed in 2005 i’m 31 now and to this day they never found my genetic code 2019 I went to get genetic testing again and apparently they ran out of the solution and to this day I’m still phoning I’m still checking in I have been left on the shelf gathering dust since 2005 the Royal Victorian eye and ear hospital my professors name is Lorraine Cassidy who nowadays gives me zero time of day I got a little bit of my central vision back praise God for that. I really hope something soon can get us our sight
Thanks for this I hope I can reach out to you take care
So can it be fixed