Powerhouse Podcast Episode #8: LHON - Leber Hereditary Optic Neuropathy

October is Blindness Awareness Month. Join UMDF President and CEO Brian Harman and Science and Alliance Officer Philip Yeske, PhD, as they catch up with Lissa Poincenot, Advocate for LHON (Leber Hereditary Optic Neuropathy).

[@rexcamproductions.2191]

I’m only 12 minutes into this. I also have LHON greetings from Ireland. I was diagnosed in 2005 i’m 31 now and to this day they never found my genetic code 2019 I went to get genetic testing again and apparently they ran out of the solution and to this day I’m still phoning I’m still checking in I have been left on the shelf gathering dust since 2005 the Royal Victorian eye and ear hospital my professors name is Lorraine Cassidy who nowadays gives me zero time of day I got a little bit of my central vision back praise God for that. I really hope something soon can get us our sight
Thanks for this I hope I can reach out to you take care

[@jeffsearcy1]

Great Podcast you guys! Lissa, can't thank you enough for all you do, we are 6 months in on our 22 year old son's diagnosis (LHON 3460). Currently we are climbing out of, as you said so well, "the emotional abiss." Praying for all.

[@susielogan4108]

Absolutely love Lisa, her help and advice has been invaluable to us as a family since our "journey into the LHON world" began two years ago.

[@neilgreene]

Great stuff! What a leader in awareness for our community thru LISSA.

[@stevenjones6508]

So can it be fixed