My mother died from PSP complications in 2021 as confirmed by a brain autopsy conducted at Yale Medical. She developed first symptoms approximately 8 years before she passed and was misdiagnosed first with MS, then with Parkinson’s then with CBGD. A doctor at the Hospital for Special Care movement disorder center in Newington, CT correctly diagnosed her two weeks before she passed when he gave her the “clap test” and she exhibited a positive applause sign. By then it was too late as she was in the final phases of this awful disease. My mom and I both hope the donation of her brain to Yale will help others.
Every symptom you have addressed for PSP my husband exhibits. He is in his 4th year, I would guess. Living now in a care facility, needs help with virtually everything. Horrible disease! He welded for years.
Thank you very much Dr. Shprecher. Your analysis of difficult diagnosis is very clear. A very challenging clinical diagnosis. Is is common in Atypical Parkinson's to have a tremor on one side with bradykinesia present on the contralateral side?
Thank you for this amazing video. Really informative. My mum is diagnosed by FTD and PSP at the same time. It makes it really hard to for her. She is unable to speak even a word she can’t walk and zero balance. If there is pain or there is a need like being hungry she is unable to say. We really struggle to find out if she is having pain. Levodopa is not helping much as higher doses than 1/4 makes her really uncomfortable and agitated. Is this common to have PSP and FTD at the same time ? I quit my job a year ago only to ensure she is well taken care of. It is highly appreciated if you could tell of the chances one can heal
So suspected PK without expected response to CL. We tried the myobi and it actually made her worse. She actually responded once to a cueing from a guitar tuner with a beat maker/ vibration one day at which time she had remarkable temporary gait. her > sxs is freezing of gait. Since then I have not been able to reproduce this. Often wonder if the CUE1 avaILavailable in the UK could benefit PSP? or even Dr peter Tass Gloves?.
My mother died from PSP complications in 2021 as confirmed by a brain autopsy conducted at Yale Medical. She developed first symptoms approximately 8 years before she passed and was misdiagnosed first with MS, then with Parkinson’s then with CBGD. A doctor at the Hospital for Special Care movement disorder center in Newington, CT correctly diagnosed her two weeks before she passed when he gave her the “clap test” and she exhibited a positive applause sign. By then it was too late as she was in the final phases of this awful disease. My mom and I both hope the donation of her brain to Yale will help others.
Thank you DrDavid Shprecher you have been so great....
Every symptom you have addressed for PSP my husband exhibits. He is in his 4th year, I would guess. Living now in a care facility, needs help with virtually everything. Horrible disease! He welded for years.
Sorry to hear that. Hope you find proper help for your husband. God bless your family!
What is the evidenced based PSP treatment plan?
Thank you very much Dr. Shprecher. Your analysis of difficult diagnosis is very clear. A very challenging clinical diagnosis. Is is common in Atypical Parkinson's to have a tremor on one side with bradykinesia present on the contralateral side?
Thank you for this amazing video. Really informative. My mum is diagnosed by FTD and PSP at the same time. It makes it really hard to for her. She is unable to speak even a word she can’t walk and zero balance. If there is pain or there is a need like being hungry she is unable to say. We really struggle to find out if she is having pain. Levodopa is not helping much as higher doses than 1/4 makes her really uncomfortable and agitated. Is this common to have PSP and FTD at the same time ? I quit my job a year ago only to ensure she is well taken care of. It is highly appreciated if you could tell of the chances one can heal
So suspected PK without expected response to CL. We tried the myobi and it actually made her worse. She actually responded once to a cueing from a guitar tuner with a beat maker/ vibration one day at which time she had remarkable temporary gait. her > sxs is freezing of gait. Since then I have not been able to reproduce this. Often wonder if the CUE1 avaILavailable in the UK could benefit PSP? or even Dr peter Tass Gloves?.