Noticed that first sip of tea your head tilted and tensed completely up. That's how mine started out thats when I knew something wasn't right, That's when I knew I was going to have a long road ahead of me and I knew no one else would be able to understand what I was going through.
Hey Karl, I am fighting the battle with dystonia as well. Mine is very similar to yours. First diagnosed as essential tremor, then cervical dystonia. Primarily head tremors. Just wondering if you take any meds or botox for your condition ? I have been on propranolol and klonopin, then botox. Botox was a miracle at 1st, but slowly, not working as well. On a personal note, I don`t think alcohol is good for us, as it may cause inflammation of the brain. I know I have tried to hide my condition with alcohol, but the next day, the shakes are twice as bad. Take care Mate, and thanks for all that you are doing !!
Hey Paul, nice to meet you. I was offered Botox, but by this point I had been pretty much functioning for more than six years without any meds, so I said no. My girls were pretty much babies and I was afraid of side effects of medication. I still don't take anything, but changed up my diet and lifestyle. I exercise daily and cut caffeine. The beers tend to be a once a week, but nothing excessive to be honest. Like you said, the next day is not just a hangover and I also have more shakes than usual. Take care and best wishes to you mate.
@@warriorsofdystonia Hey Karl, Amazing, Looks like you are doing great without meds or botox. I am finally stopping coffee, and making a huge improvement. I am very upset that through the last 15+ years, I have never had one doctor advise me to stop coffee ? Exercise is awesome !! I wish you all the best !!
Noticed that first sip of tea your head tilted and tensed completely up. That's how mine started out thats when I knew something wasn't right, That's when I knew I was going to have a long road ahead of me and I knew no one else would be able to understand what I was going through.
Hey Karl, I am fighting the battle with dystonia as well. Mine is very similar to yours. First diagnosed as essential tremor, then cervical dystonia. Primarily head tremors.
Just wondering if you take any meds or botox for your condition ? I have been on propranolol and klonopin, then botox. Botox was a miracle at 1st, but slowly, not working as well.
On a personal note, I don`t think alcohol is good for us, as it may cause inflammation of the brain. I know I have tried to hide my condition with alcohol, but the next day, the shakes are twice as bad.
Take care Mate, and thanks for all that you are doing !!
Hey Paul, nice to meet you. I was offered Botox, but by this point I had been pretty much functioning for more than six years without any meds, so I said no. My girls were pretty much babies and I was afraid of side effects of medication. I still don't take anything, but changed up my diet and lifestyle. I exercise daily and cut caffeine.
The beers tend to be a once a week, but nothing excessive to be honest. Like you said, the next day is not just a hangover and I also have more shakes than usual.
Take care and best wishes to you mate.
@@warriorsofdystonia Hey Karl,
Amazing, Looks like you are doing great without meds or botox. I am finally stopping coffee, and making a huge improvement. I am very upset that through the last 15+ years, I have never had one doctor advise me to stop coffee ? Exercise is awesome !! I wish you all the best !!