I started Automated PD Dialysis two weeks ago after training at a dialysis center. It is fairly easy. There have been a few issues in the beginning. The catheter bled for about three weeks. I still have pain at the end of each drain cycle. I also have bad leg and foot cramps during the night. Little by little, issues are resolving to a degree.
Does the pain that occurs in automated PD dialysis at the end of the drains, ever resolve. I cycle 4 times per night and each drain wakes me up due to pain when the last 200 ml is draining each time.
I agree with Alex. Life with kids is so busy! With someone that works full-time and has kids, scheduling time is rough. I’m about to do dialysis and am leaning toward home hemodialysis.
Is your fluid restriction the same as if you were doing in center dialysis? I was hoping that if I started home dialysis I would be able to drink a little bit more.
@@jennifervaldez883 It all depends on how much fluid you have to pull. With home hemo, my clinic doesn’t want us trying to pull more than 2 liters in a treatment. Your restrictions depend more on how much fluid you are comfortable pulling. I produce urine, but not enough, so, some of my fluids are excreted naturally.
I am 80 years old and trying to decide whether to go on dialysis or not. As it stands my Dr. is preparing to send me for a fistula to be put into place. My GFR is currently @ 19.
DOES ANYONE HAPPEN TO KNOW IF THE FLUID RESTRICTION IS THE SAME ON HEMO HOME DIALYSIS? MY MAIN ISSUE IS THE FLUID RESTRICTION. BEFORE DIALYSIS, I WAS A CONSTANT FLUID DRINKER AND I CAN'T DRINK FREELY ANYMORE WHICH IS VERY ANNOYING TO ME. I REALLY MISS DRINKING LOTS OF WATER. DON'T WANT A TRANSPLANT BECAUSE OF THE SIDE EFFECTS OF PREDISONE. IF I AM ABLE TO DRINK A LITTLE BIT MORE FLUID ON HEMO HOME DIALYSIS I WOULD BE SO HAPPY.
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I am here because I think you give great information. Thank you.
Nice to see docs CARING more and getting patients involved. We as patients talk a lot about our doctors!!
I started Automated PD Dialysis two weeks ago after training at a dialysis center. It is fairly easy. There have been a few issues in the beginning. The catheter bled for about three weeks. I still have pain at the end of each drain cycle. I also have bad leg and foot cramps during the night. Little by little, issues are resolving to a degree.
Thanks for having Alex on!!
Well done y’all. Lots of fear to address in the CKD community. Empowering patients while providers trust patient agency more is required!!
I’m learning, doc
Does the pain that occurs in automated PD dialysis at the end of the drains, ever resolve. I cycle 4 times per night and each drain wakes me up due to pain when the last 200 ml is draining each time.
I'm a patient CKD end-stage GF 15
Fascinating discussion. Thank you Gentlemen..
We can have more “Alex” like patients when we invite integrated experienced patients onto TEAMS. True participatory CARE.
Dr. Butt - I am a CKD patient, diagnosed six months ago. I am missing you on DadviceTV, as I am sure many others are also. Please come back to us!
I agree with Alex. Life with kids is so busy! With someone that works full-time and has kids, scheduling time is rough. I’m about to do dialysis and am leaning toward home hemodialysis.
If supplies are delivered every two weeks, they do not take up inordinate amounts of space.
This is good I need too know how to get started how much do
It cost
I’m a home hemodialysis solo patient. It was a game changer for me. I wouldn’t have a caregiver even if I had that option. I am my caregiver.
Is your fluid restriction the same as if you were doing in center dialysis? I was hoping that if I started home dialysis I would be able to drink a little bit more.
@@jennifervaldez883 It all depends on how much fluid you have to pull. With home hemo, my clinic doesn’t want us trying to pull more than 2 liters in a treatment. Your restrictions depend more on how much fluid you are comfortable pulling. I produce urine, but not enough, so, some of my fluids are excreted naturally.
I am 80 years old and trying to decide whether to go on dialysis or not. As it stands my Dr. is preparing to send me for a fistula to be put into place. My GFR is currently @ 19.
DOES ANYONE HAPPEN TO KNOW IF THE FLUID RESTRICTION IS THE SAME ON HEMO HOME DIALYSIS? MY MAIN ISSUE IS THE FLUID RESTRICTION. BEFORE DIALYSIS, I WAS A CONSTANT FLUID DRINKER AND I CAN'T DRINK FREELY ANYMORE WHICH IS VERY ANNOYING TO ME. I REALLY MISS DRINKING LOTS OF WATER. DON'T WANT A TRANSPLANT BECAUSE OF THE SIDE EFFECTS OF PREDISONE. IF I AM ABLE TO DRINK A LITTLE BIT MORE FLUID ON HEMO HOME DIALYSIS I WOULD BE SO HAPPY.
IAM PATIENTS I LIKE U INFORMATION
Haha. Not a nurse, not a doc! Lord!