From one professional in this field to another. Thank you. What you are doing is making a huge difference in how some families approach us and their loved ones
How awesome to see you both interact - I’ve enjoyed Dan’s videos for some time now, & just recently came across Krista’s channel here - & you both are excellent resources. I personally experienced the severe decline of my grandparents with extreme dementia, a few years back & it was a harrowing nightmare at times. We didn’t have a clue about what we were really in for. (& Dan’s 100% right, once they take a big fall, usually it’s all over soon thereafter) Krista, thank you so much for efforts - your short videos crack me up because they are SO SPOT ON! I wish I had them years ago, because I had to find out the hard way, what works & what doesn’t. Your advice about how to redirect & going with the flow instead of correcting them, is so helpful! You obviously are well versed & experienced in dealing with dementia. OMG! -the keys, the check book, trying to leave, thinking they had to be somewhere, wanting to go home, the wandering, the hallucinations, the frustration, & the money! Oh! the money is a big one! (at one point we had to photocopy cash for them to have in their ‘wallet’)…not kidding. You portray in you videos so many situations that I actually went through. Thank you for all your efforts. You’re doing a valuable service & a fantastic job. Best regards & warm wishes! ;)
In mid May of this year, 2024 my husband with dementia had a real bad cold. He wouldnt get up for 3 months. There were adult diapers, hallucinations, and abandonmet fears. He wanted me to sit in the bed with him day and night, and slept most of that time. This is the first week I haven't had to sit with him all day.
I cared for my mother with dementia back in 2009. I surely wish that there had been a video program like yours then but at that time youtube was in its infancy. Another aspect of caring for a loved one with dementia that is physically declining was preparing yourself for the coming death and subsequent grief. In 2009, finding a free or donation only grief support group with my struggling with the loss wasn't there. Now there are many online support groups. Thank you for doing Dan's interview. It was really good and I know it's helped many others.
Thank you this all helps with just grounding myself for whatever comes up with my mom. Balancing the needs while trying to keep her content is a challenge. Bless you for offering good information and empathy.
Really enjoyed this. Have been following DR ED since before his 90th birthday ! I watch your work too, and learn so much from all of you! Thank you for doing this combined teaching!!
We lived several states from my mom so my sister who was in the same town became her caregiver. Mom has been gone several years. One night while she still lived alone, we didn't realize how bad she was. My daughter and I were talking to her on the phone ..it was 9:30 at night. My mom mentioned a neighbor lady was over.....what? That late? She had 0 neighbors that were that close. We asked to talk to the lady? Heard a hello....not my mom's voice at all....I asked what she was doing there...and asked to speak to mom...phone went click....we were frantic! Who was with her,? I called my sister. She was in the car..so she went by ..checked the house from top to bottom didn't find anyone. Still don't understand...as she progressed she had "a lot" of people who weren't there. But that was so unexpected. Things like that can be part of it also.
Thank god for you guys I am challenged daily and hearing you both share the extreme vulnerabilities involved with caregiving helps me feel supported. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Dan. Socks can be slippery considering the type floors you have. We found the same kind of socks that are given out in hospitals that have little grippers on the bottom on amazon. They work very well for my mother in law.
Dan, our doctor referred my husband to physical therapy after having several falls. He was taught exercises to do twice a day. It has helped. My husband has dementia caused by years of Epilepsy .
Not only do caregivers have to deal with all that is dementia, but they also have to deal with whatever emotional or psychological issues the loved one had during their life before the onset of dementia because I have found in our case that the anxiety, narcissism characteristics, and other mental health issues held by the loved one can be accentuated when the dementia is clearly present. In our case, we have those behavioral manifestations but on steroids now. I would say if there is a silver lining in Dan's case it is that his dad was seemingly a stable individual before the onset of his dementia. Betting his dad, being a doctor, was a highly empathetic individual before the dementia and he still is. That's not our experience with my mother in law. She has always been very narcissistic and high anxiety and meds at this point would not work because of the side effects, one being dizziness/falling.
At 73 ,I fear memory loss. I live alone (1 dog ,1 cat) my health has been bad and my daughters take me to dr appointments. Is a power of attorney enough? Its medical, financial and real estate.I.use a walker, when needed,shame Ed refuses.
My mom is 78 we have started with cognitive impairment and her hearing aids aren't working great unfortunately my brother passed in 2018 so I have no siblings my Father really is dealing with his own medical issues with prostate cancer I feel very much alone and overwhelmed.
My almost 97 yr old mother in law has lived with my wife and me now since 2020 when covid started. We closed up her apt and at this time and at the same time we realized she was starting to show signs of demenita. She fell a couple years ago and had to be hospitalized. After home physical therapy we now have her do a walk around the inside of our home in a circle around 5 to 10 times at a time (we have an open concept home so that makes this path easy to do) with a wheelie she uses. We also have her do a floor peddler session (she sits in a chair and peddles). All of this is to keep their leg and back muscles strong to try and minimize falls. Folks with dementia are prone (at least she is) to want to lay in bed all the time and watch tv or fiddle with her jewelry and stuff in bed. So when she has her meals we include the exercises at that time since she is up to eat anyway. Having dementia she will forget to use her walker (she literally will step around it and go about walking without it) and we have to redirect her back to it and try and emphasize the importance of using it vs falling. This comes with limited results tbh but we try. She can still go to her bathroom off her bedroom by herself for now. We feel strongly that the excercises are paramount to keeping her mobile and able to remain in our home for as long as possible. Ultimately, the risk of falling is always there but when she exercises regularly and uses her wheelie she is less likely to fall. The concern of falling is real but we are doing the best we can for her and she is comfortable and well cared for. Ultimately that is all anyone can be expected to do. Hope this helps you in some way. Take care of yourself too!.
Another unexpected is that there is no family training for brain injury from various causes of dementia. Heart patients/family and diabetic patients/family have post diagnoses training.
Our Father had the dreaded disease He called the police and had said he had he's billfold stolen Explaining to the police the situation they understood its hard very hard
Years ago, my father with dementia called 911 and told them that he committed a crime.Good thing that he called on a landline and he had extension phones in the house,I talked to the 911 people, they ended up sending the police to his house.The police came and thank God they understood.Dementia is a cruel disease,He passed in 2016, first now I am able to chuckle at his odd behaviors, For all caregivers hang in there,you are all doing a great job and will be rewarded in the afterlife.
I'm getting ready to move my mom in with me after she wreck her last car trying to get to her job. She works in sales .the company she works for is working with me by cutting her hours back.
I’m glad you talked about what to watch on TV. I’ve had to block Fox because my husband (with dementia) gets so upset when it’s on but not with CNN or MSNBC. Weird…
I caregive dementia patients for 15 years and I had a Forensic psychologist say 5mg of melatonin at bed can assist and does not interfere with most meds. Check with Dr.
As a caregiver of many years. Majority of dementia patients have Zero money for home care And their children resent taking anycare for them. Im 70 and live with a dementia patient for 13 years and do it for Free! Why? Well he has no money to pay me after We pay rent, utilities and food. He is loved and cared for as I did for his sister who passed at 94 we all lived together so I knew He would get dementia. No one thinks they are going to get this disease and my experience has shown from the first early signs to their passing could be 7-10 plus years. Who has money for that?
Here's 2 FREE dementia cheatsheets for acitivies and what to do w/ challenging behaviors, download @ dementiasuccesspath.com/yt-cs
From one professional in this field to another. Thank you. What you are doing is making a huge difference in how some families approach us and their loved ones
I really like the Sallingers they are really nice people and I wish them the very best. Bless them ❤
How awesome to see you both interact - I’ve enjoyed Dan’s videos for some time now, & just recently came across Krista’s channel here - & you both are excellent resources.
I personally experienced the severe decline of my grandparents with extreme dementia, a few years back & it was a harrowing nightmare at times. We didn’t have a clue about what we were really in for. (& Dan’s 100% right, once they take a big fall, usually it’s all over soon thereafter)
Krista, thank you so much for efforts - your short videos crack me up because they are SO SPOT ON! I wish I had them years ago, because I had to find out the hard way, what works & what doesn’t. Your advice about how to redirect & going with the flow instead of correcting them, is so helpful! You obviously are well versed & experienced in dealing with dementia.
OMG! -the keys, the check book, trying to leave, thinking they had to be somewhere, wanting to go home, the wandering, the hallucinations, the frustration, & the money! Oh! the money is a big one! (at one point we had to photocopy cash for them to have in their ‘wallet’)…not kidding. You portray in you videos so many situations that I actually went through.
Thank you for all your efforts. You’re doing a valuable service & a fantastic job.
Best regards & warm wishes!
;)
In mid May of this year, 2024 my husband with dementia had a real bad
cold. He wouldnt get up for 3 months. There were adult diapers, hallucinations, and abandonmet fears. He wanted me to sit in the bed with him day and night, and slept most of that time. This is the first week I haven't had to sit with him all day.
You and your husband are in my thoughts and I hope things are going better for y'all .Does hubby still have a cold? 🫂❤️
Great interview! WTG Dan, you blew this interview out of the park🎉
I cared for my mother with dementia back in 2009. I surely wish that there had been a video program like yours then but at that time youtube was in its infancy. Another aspect of caring for a loved one with dementia that is physically declining was preparing yourself for the coming death and subsequent grief. In 2009, finding a free or donation only grief support group with my struggling with the loss wasn't there. Now there are many online support groups. Thank you for doing Dan's interview. It was really good and I know it's helped many others.
Thank you this all helps with just grounding myself for whatever comes up with my mom. Balancing the needs while trying to keep her content is a challenge. Bless you for offering good information and empathy.
Really enjoyed this. Have been following DR ED since before his 90th birthday ! I watch your work too, and learn so much from all of you! Thank you for doing this combined teaching!!
We lived several states from my mom so my sister who was in the same town became her caregiver. Mom has been gone several years. One night while she still lived alone, we didn't realize how bad she was. My daughter and I were talking to her on the phone ..it was 9:30 at night. My mom mentioned a neighbor lady was over.....what? That late? She had 0 neighbors that were that close. We asked to talk to the lady? Heard a hello....not my mom's voice at all....I asked what she was doing there...and asked to speak to mom...phone went click....we were frantic! Who was with her,? I called my sister. She was in the car..so she went by ..checked the house from top to bottom didn't find anyone. Still don't understand...as she progressed she had "a lot" of people who weren't there. But that was so unexpected. Things like that can be part of it also.
You are teaching me lots of ways to deal with my mom. Thank you
thank you so much for your videos!! im a nurse and this has helped me so much!!!
Thank you this has really helped me with not just my patients and my family
Thank god for you guys
I am challenged daily and hearing you both share the extreme vulnerabilities involved with caregiving helps me feel supported.
🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Dan. Socks can be slippery considering the type floors you have. We found the same kind of socks that are given out in hospitals that have little grippers on the bottom on amazon. They work very well for my mother in law.
I follow both of you and learn so much. Thank you for all the tips and strategies I learned from the two of you ❤❤❤
Dan, our doctor referred my husband to physical therapy after having several falls. He was taught exercises to do twice a day. It has helped. My husband has dementia caused by years of Epilepsy .
. . . We Love him God bless you Ed
Not only do caregivers have to deal with all that is dementia, but they also have to deal with whatever emotional or psychological issues the loved one had during their life before the onset of dementia because I have found in our case that the anxiety, narcissism characteristics, and other mental health issues held by the loved one can be accentuated when the dementia is clearly present. In our case, we have those behavioral manifestations but on steroids now. I would say if there is a silver lining in Dan's case it is that his dad was seemingly a stable individual before the onset of his dementia. Betting his dad, being a doctor, was a highly empathetic individual before the dementia and he still is. That's not our experience with my mother in law. She has always been very narcissistic and high anxiety and meds at this point would not work because of the side effects, one being dizziness/falling.
Great channel and useful info. ❤
Happy to see you Dan.....from India 🇮🇳 ❤
Nice to see you dan
And give Danielle credit for the care she gives Ed too
Falls, climbing out of bed repeatedly
Thank you for the video
This is the most honest conversation I've seen.
Care home seems the best solution.
How do they deal with the dementia there?
At 73 ,I fear memory loss. I live alone (1 dog ,1 cat) my health has been bad and my daughters take me to dr appointments. Is a power of attorney enough? Its medical, financial and real estate.I.use a walker, when needed,shame Ed refuses.
Just love Dr. Ed and Dan.....true wings of love between a father and his son!!!!!
This is the crossover I needed! ❤
😊😊😊❤❤ really good interview dan
My mom is 78 we have started with cognitive impairment and her hearing aids aren't working great unfortunately my brother passed in 2018 so I have no siblings my Father really is dealing with his own medical issues with prostate cancer I feel very much alone and overwhelmed.
How do you deal with the fear of them falling?
My almost 97 yr old mother in law has lived with my wife and me now since 2020 when covid started. We closed up her apt and at this time and at the same time we realized she was starting to show signs of demenita. She fell a couple years ago and had to be hospitalized. After home physical therapy we now have her do a walk around the inside of our home in a circle around 5 to 10 times at a time (we have an open concept home so that makes this path easy to do) with a wheelie she uses. We also have her do a floor peddler session (she sits in a chair and peddles). All of this is to keep their leg and back muscles strong to try and minimize falls. Folks with dementia are prone (at least she is) to want to lay in bed all the time and watch tv or fiddle with her jewelry and stuff in bed. So when she has her meals we include the exercises at that time since she is up to eat anyway. Having dementia she will forget to use her walker (she literally will step around it and go about walking without it) and we have to redirect her back to it and try and emphasize the importance of using it vs falling. This comes with limited results tbh but we try. She can still go to her bathroom off her bedroom by herself for now. We feel strongly that the excercises are paramount to keeping her mobile and able to remain in our home for as long as possible. Ultimately, the risk of falling is always there but when she exercises regularly and uses her wheelie she is less likely to fall. The concern of falling is real but we are doing the best we can for her and she is comfortable and well cared for. Ultimately that is all anyone can be expected to do. Hope this helps you in some way. Take care of yourself too!.
Its important to have a poa and poa for helthcare. Also a living will is good 👍
Another unexpected is that there is no family training for brain injury from various causes of dementia. Heart patients/family and diabetic patients/family have post diagnoses training.
Our Father had the dreaded disease He called the police and had said he had he's billfold stolen Explaining to the police the situation they understood its hard very hard
Years ago, my father with dementia called 911 and told them that he committed a crime.Good thing that he called on a landline and he had extension phones in the house,I talked to the 911 people, they ended up sending the police to his house.The police came and thank God they understood.Dementia is a cruel disease,He passed in 2016, first now I am able to chuckle at his odd behaviors, For all caregivers hang in there,you are all doing a great job and will be rewarded in the afterlife.
What dietary restrictions do you suggest for dementia sufferers?
I'm getting ready to move my mom in with me after she wreck her last car trying to get to her job. She works in sales .the company she works for is working with me by cutting her hours back.
I’m glad you talked about what to watch on TV. I’ve had to block Fox because my husband (with dementia) gets so upset when it’s on but not with CNN or MSNBC. Weird…
Dan is really the gold standard of dementia care.
Danielle, the only adult in this family, is the major caregiver. Not "babydan".
@@lindadavy6641
Lmfaooooo! 😂
@@lindadavy6641
For once…I actually agree with you Davy. 😂❤
My question is : does he still GO BACKWARD BTW HIM AND HIS BROTHER?
No
They wouldn't give my mom anything to help her sleep because they said it would make her Alzheimer's worse.
I caregive dementia patients for 15 years and I had a Forensic psychologist say 5mg of melatonin at bed can assist and does not interfere with most meds. Check with Dr.
❤
👍🏻👍🏻👍🏻👍🏻👍🏻👍🏻
What is the tictok name
Mrandmrsdsalnorcal
As a caregiver of many years. Majority of dementia patients have Zero money for home care And their children resent taking anycare for them.
Im 70 and live with a dementia patient for 13 years and do it for Free! Why? Well he has no money to pay me after We pay rent, utilities and food.
He is loved and cared for as I did for his sister who passed at 94 we all lived together so I knew He would get dementia.
No one thinks they are going to get this disease and my experience has shown from the first early signs to their passing could be 7-10 plus years. Who has money for that?
Remember that any books or any advice to help your elders may not b for your elder...nothing is tailor to your unique elder..
Falls & falls & falls
He. Said Ed’s 91 other videos he is 92 how is Ed today? We don’t get anything new
Your Dad does NOT HAVE AGRESSIVE DEMENTIA...LUCKY YOU