Why on earth do the EMTs not do that finger-on-nose test right away? I was misdiagnosed with vertigo for 2 days because I didn’t have “typical” stroke symptoms. As soon as the neurologist did the finger test, my left finger was waving all over the place. Cerebellar stroke! I could have had the clot-busting medicine!!
Hey guys, I'm a recent stroke survivor, I had a cerebellum damage 4 months ago, it was quite shocking, still digesting, somehow luckily I feel ok, despite of some of things Andy mentioned regarding stamina, but far from the symptoms described by you. Just got back a work this week, I'm growing on it every week, people ask me about how I feel, usually I say "it's getting better" and it does, but as you say, it goes 0.01% a day, hard to put on words but I can feel it. I would like to thank you @bill and @andy for sharing your stories, the work you put sharing with us is tremendous for our hope, determination and focus on rehabilitation. God bless you all.
Hey Andy, I heard you say about the big bang going off in your head. I had a big bang in my head, like an explosion, but I had no stroke. But I got a balance problem, and the Doctor sent me for an MRI of my Cerebellum, which showed it is extremely atrophied and that the covering had completely disappeared. On the MRI, it looked like the bush after a bush fire, just little black twigs sticking up like a porcupine. The Neurologist said it was serious, so I spent time in the Neurology Clinic at the hospital where they did a lumbar puncture, but in five visits they never found what caused it. I am 79, and I lose my balance and fall over quite often. What does your Cerebellum look like on the MRI after your surgery? Thank you very much for your very interesting talk.
Incredible Story Andy, very similar to my experience with cerebellum stroke about a year and a half ago. It was very helpful to listen to your story especially about the time management stuff. I'm still guilty of pushing myself too much then paying for it later on.
Thought this was great, only thing is I would love to have known what the causes of Andy’s stroke were said to be, if any at all was found. Thanks though, brilliant stuff 👍👍
@@BrainAttackMusic thanks Andy, I also had a cerebellum stroke of undetermined origin 8 months ago. You’re description of the episode itself was very familiar in a lot of places. Did they look for a PFO with yourself? Guessing they did and didn’t find one? Also did you happen to have high blood pressure with the stress that you now receive treatment for? I’m guessing you’re now on blood thinners for life? Sorry, lot of questions there haha !
My cerebellar stroke was caused by an AVM (arteriovenous malformation). That's a congenital abnormality where veins and arteries can start growing abnormally in a certain area, in this case, on my cerebellum. The veins and arteries can connect (which is a bad thing) and the walls of the vessels can be very weak and start bleeding. I had mass effects from the size of it, and this was months before the event.
Thank you so very much.😢😊❤
You are so welcome
Why on earth do the EMTs not do that finger-on-nose test right away? I was misdiagnosed with vertigo for 2 days because I didn’t have “typical” stroke symptoms. As soon as the neurologist did the finger test, my left finger was waving all over the place. Cerebellar stroke! I could have had the clot-busting medicine!!
That's a fair question. The only thing I would say is they have so much to do in a short amount of time they can't get it right always.
Hey guys, I'm a recent stroke survivor, I had a cerebellum damage 4 months ago, it was quite shocking, still digesting, somehow luckily I feel ok, despite of some of things Andy mentioned regarding stamina, but far from the symptoms described by you. Just got back a work this week, I'm growing on it every week, people ask me about how I feel, usually I say "it's getting better" and it does, but as you say, it goes 0.01% a day, hard to put on words but I can feel it. I would like to thank you @bill and @andy for sharing your stories, the work you put sharing with us is tremendous for our hope, determination and focus on rehabilitation. God bless you all.
Thanks for your lovely words. I wish you well with your ongoing recovery. Glad the interviews are useful.
Thanks for having me on, Bill. It was great talking with you. Take care, mate. Cheers for now, Andy.
Any time Andy. I enjoyed our chat.
Hey Andy, I heard you say about the big bang going off in your head. I had a big bang in my head, like an explosion, but I had no stroke. But I got a balance problem, and the Doctor sent me for an MRI of my Cerebellum, which showed it is extremely atrophied and that the covering had completely disappeared. On the MRI, it looked like the bush after a bush fire, just little black twigs sticking up like a porcupine. The Neurologist said it was serious, so I spent time in the Neurology Clinic at the hospital where they did a lumbar puncture, but in five visits they never found what caused it. I am 79, and I lose my balance and fall over quite often. What does your Cerebellum look like on the MRI after your surgery? Thank you very much for your very interesting talk.
aAndy does not monitor these comments you can find his contact details here. recoveryafterstroke.com/cerebellum-stroke-recovery-andy-dovey/
It was interesting and enjoyable as usual to this stroke serviver.
Thanks John
Incredible Story Andy, very similar to my experience with cerebellum stroke about a year and a half ago. It was very helpful to listen to your story especially about the time management stuff. I'm still guilty of pushing myself too much then paying for it later on.
Thanks Chris. Glad you got something beneficial from the interview.
@@BillGasiamis 221000001 ❤❤❤❤❤
Excellent and very relatable.
Thanks Lynette
Thought this was great, only thing is I would love to have known what the causes of Andy’s stroke were said to be, if any at all was found. Thanks though, brilliant stuff 👍👍
Hi. Andy here. Other than the clot, no other causes were found. I believe that stress had a lot to do with it
@@BrainAttackMusic thanks Andy, I also had a cerebellum stroke of undetermined origin 8 months ago. You’re description of the episode itself was very familiar in a lot of places. Did they look for a PFO with yourself? Guessing they did and didn’t find one? Also did you happen to have high blood pressure with the stress that you now receive treatment for? I’m guessing you’re now on blood thinners for life? Sorry, lot of questions there haha !
.
My cerebellar stroke was caused by an AVM (arteriovenous malformation). That's a congenital abnormality where veins and arteries can start growing abnormally in a certain area, in this case, on my cerebellum. The veins and arteries can connect (which is a bad thing) and the walls of the vessels can be very weak and start bleeding. I had mass effects from the size of it, and this was months before the event.
How is the recovery coming along?@@MultiStats