Dr. Paolo Bolognese presents Chiari I Malformation, EDS, and Craniocervical Instability

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  • เผยแพร่เมื่อ 29 ก.ย. 2024
  • Dr. Paolo A Bolognese is the Surgical Director at the Chiari Neurosurgical Center at NSPC in Lake Success, NY - Learn more at: www.chronicpai...

ความคิดเห็น • 41

  • @fl3693
    @fl3693 3 ปีที่แล้ว +14

    We need our own hospitals with comprehensive holistic and medical care. We are LOST in the "regular" medical system. The systemic issues overwhelm the undereducated and this allows for medical abuse and gaslighting re "conversion/hysteria/psychogenic" bullshit diagnosis. This guy is decades ahead of the normative conclusions

  • @tbbrink2329
    @tbbrink2329 6 ปีที่แล้ว +7

    Excellent. As good an explanation of the current state of the art of understanding complex Chiari/EDS and CCI you could possibly get. It is a scientific pursuit in progress, therefore the choice of the word 'art'. Thank you Dr B.

  • @WildKatatHeart65
    @WildKatatHeart65 6 ปีที่แล้ว +13

    "Eds people are mutants" lol

  • @sandywhat2429
    @sandywhat2429 5 ปีที่แล้ว +7

    I am going to die here in Canada here very soon if I don't get help. God help me.

    • @bonniegallant6256
      @bonniegallant6256 5 ปีที่แล้ว +7

      I feel the same way. Nobody wants to help me. I don't know if I can live this way anymore.

    • @sandywhat2429
      @sandywhat2429 5 ปีที่แล้ว +2

      There aren't even health care advocates here
      Dr Bolognese will look at my case but I can't even find someone to help me fill out all the paperwork he needs I don't have the computer skills
      I'm going to die soon

    • @sandywhat2429
      @sandywhat2429 5 ปีที่แล้ว +1

      @@bonniegallant6256 Neither. Bless you. Bless the both of us.

    • @bonniegallant6256
      @bonniegallant6256 5 ปีที่แล้ว +1

      I can try to help you with the paperwork if you would like me to.

    • @sandywhat2429
      @sandywhat2429 5 ปีที่แล้ว +1

      @@bonniegallant6256 Thank you, I need someone here in person with an updated computer and Word perfect skills etc. But thanks anyways.

  • @maryr7593
    @maryr7593 ปีที่แล้ว +1

    Has anyone researched Thoracic Outlet Syndrome (blood vessel being compressed in thoracic region, by various causes). YT channel, TOS MRI has many educational videos about TOS which has been a controversial diagnosis for last 10 yrs. It has lots of symptoms similar to orthostatic intolerance, headaches, painful use of arms and legs. I just discovered the syndrome which does have treatment. They say after treatment, far less pain and many ppl regain function of their limbs again. Please see if it fits anything with you or anyone you know. There is no research literature linking EDS and TOS...I assume because everyone has a hellish time getting diagnosis of either disease.

  • @amgnico
    @amgnico 2 ปีที่แล้ว

    I'd love to live in the USA with a lot of money because there are such great Tethered Cord and CCI docs!

  • @tiffanyleepa
    @tiffanyleepa ปีที่แล้ว

    What are your thoughts on PRP injections prior to surgery for AAI or CCI?

  • @KimKozak
    @KimKozak 5 ปีที่แล้ว +4

    Noting this for reference. Dr. Bolognese is doing great work.

  • @turnbullbuggs
    @turnbullbuggs 6 ปีที่แล้ว +1

    Brilliant

  • @dancingpianofairy
    @dancingpianofairy ปีที่แล้ว

    27:22 seems to be the start of the CCI section.

  • @sandywhat2429
    @sandywhat2429 3 ปีที่แล้ว +1

    I wonder if any of these Chiari specialist NS's have seen patients who've stopped sleeping? I am dying here in Canada. God help me.

  • @sandywhat2429
    @sandywhat2429 3 ปีที่แล้ว +1

    Dr B has my mri's. I can't get the money to talk to him.
    I'm in Canada with Chiari and EDS
    I no longer sleep
    I'm going to die soon if I don't get help
    God have mercy on me

    • @fl3693
      @fl3693 3 ปีที่แล้ว +1

      hugs. so sorry xx

    • @charleneburgarello3618
      @charleneburgarello3618 3 ปีที่แล้ว +1

      Do you have a gofundme or similar people can contribute to?

    • @sandywhat2429
      @sandywhat2429 3 ปีที่แล้ว

      @@charleneburgarello3618 Thank you so much. ❤️❤️❤️🙏

    • @breezelight3357
      @breezelight3357 3 ปีที่แล้ว

      What do you mean by you no longer can sleep? is it because the pain or do you have sleep apnea caused by the EDS & chiari?

    • @sandywhat2429
      @sandywhat2429 3 ปีที่แล้ว

      @@charleneburgarello3618 no, only my paypal

  • @andreaphillips7595
    @andreaphillips7595 4 ปีที่แล้ว +2

    Run, don’t walk, away from this guy.

    • @TheGlitzandglitter
      @TheGlitzandglitter 4 ปีที่แล้ว +2

      why

    • @andreaphillips7595
      @andreaphillips7595 4 ปีที่แล้ว +3

      Service Angel Luna long history of doing unnecessary surgical procedures... long history of settling medical malpractice suits out of court

    • @dianamorris5726
      @dianamorris5726 4 ปีที่แล้ว +6

      He saved my daughter's life! I will be forever grateful for Dr. Bolognese!

    • @dianamorris5726
      @dianamorris5726 4 ปีที่แล้ว +4

      The problem with Chiari is there is NO CURE!! Dr. Bolognese is saving the life of people that most doctors would not even try to help!! I am grateful for his courage to help and for all his research!!

    • @sandywhat2429
      @sandywhat2429 3 ปีที่แล้ว

      You could say that about any surgeon. But not necessarily true. I'm in Canada, I cannot get surgery, not really even a proper assessment