COVID Long Haulers Mast Cells (Mast Cell Activation Syndrome - MCAS) Part - 2
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- เผยแพร่เมื่อ 23 ก.พ. 2021
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. COVID Long Haulers Mast Cells (Mast Cell Activation Syndrome - MCAS) Part - 2
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Prevalence of the MCAS
Pathophysiology of the MCAS
Possible Solutions
Connection of the MCAS with COVID
Low dose Naltraxone therapy for POTS and MCAS
www.ncbi.nlm.nih.gov/pmc/arti...
MCAS diagnosis
www.ncbi.nlm.nih.gov/pmc/arti...
Major and minor criteria for MCAS and Mastocytosis
www.researchgate.net/figure/C...
www.wjgnet.com/2218-6204/full...
Study: Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome
www.ncbi.nlm.nih.gov/pmc/arti...
What are good mast cell stabilizers?
www.bmj.com/content/370/bmj.m...
Study, Mast cells and COVID 19
Potential association of mast cells with coronavirus disease 2019
www.ncbi.nlm.nih.gov/pmc/arti...
COVID-19, Mast Cells, Cytokine Storm, Psychological Stress, and Neuroinflammation
journals.sagepub.com/doi/full...
#drbeen #koolbeens #COVID ...
Disclaimer:
This video is not intended to provide assessment, diagnosis, treatment, or medical advice; it also does not constitute provision of healthcare services. The content provided in this video is for informational and educational purposes only.
Please consult with a physician or healthcare professional regarding any medical or mental health related diagnosis or treatment. No information in this video should ever be considered as a substitute for advice from a healthcare professional. ...
Disclaimer:
This video is not intended to provide assessment, diagnosis, treatment, or medical advice; it also does not constitute provision of healthcare services. The content provided in this video is for informational and educational purposes only.
Please consult with a physician or healthcare professional regarding any medical or mental health related diagnosis or treatment. No information in this video should ever be considered as a substitute for advice from a healthcare professional.
As a covid long hauler of 8 months now, I can tell you that this information is completely accurate. I kept suffering from PEM and could not figure out what the cause was, until I went on a histamine elimination diet. Before the diet, I had constant shortness of breath and sore throat and a feeling like my lungs had been burned with acid. Now that I'm on the diet, the sore throat has disappeared, the shortness of breath has gone away, and my neurological symptoms are improving. When I accidentally eat a food with histamine such as forgetting to peel cucumbers, or accidentally having salad dressing with lemon juice in it, I lose my voice, get a sore throat, and start experiencing shortness of breath again. I also noticed that canned fish like sardines cause massive neurological symptoms, forgetfulness, and clumsiness, due to their extremely high histamine content.
@@Anastasia11101 Are you better?
I lose my voice, too. It can be stress-relatex with MCAS, as well as foods. But mostly, now. Stress.
I'm on about 6 different mitochondrial support Amino Acids Supplements. And a few other high antioxidant powders.
It's expensive, yet it's the only thing that's working. Rapidly.
I also have an elimination diet. Gluten-free. Mostly vegan. Occasional flash-frozen wild caught fish. Eat no leftovers. Drink no caffeine.
My mitochondrial support cocktail is a slurry of distilled water mixed with 2 T. Barley Grass Juice Powder, 2tsp. Wild Blueberry Powder, 1/2 tsp. Spirulina, 1 tsp. Came Camu Powder.
To that, I ADD: Co-enzymated B-Complex dry capsule-- Bluebonnet Brand, 400 mg Mg Taurate, Glycinate, Malate blend/dry capsule, 1000 mg Taurine, 1000 mg L-Lysine, 1000 mg Monolaurin, 1000mg Carnosine, 1200 mg NAC, 1000 mg Reduced Glutathione, 1200 mg ALA, 1800 mg Ubiquinol, 2000 IU D3+ K2/MK7, 300 mg NAD. I empty all powders from the gelatin dry capsules, stirring it well into the juice powder slurry.
2 droppersful of Zinc Sulfate. 8 drops of Nascent Iodine. 3000 mcg Adenosylcobalamin B12 lozenge in the morning.
The idea is that the Monolaurin and the L-Lysine keep any underlying Epstein-Barr Virus, that's been resting in the organs for possibly decades, and has now been exacerbated by the VAXES, keep it from replicating. Walls it off. Lets it die, and encloses and carries away any neurotoxins EBV has left behind. Not sure what this does for the mRNA Covid spike protein, but it's important, nonetheless. So is a preliminary juicing cleanse. I used Celery juice. It works.
The other stuff is mainly for healing the lungs and the affected mitochondria. Especially NAC, REDUCED Glutathione and the NAD+.
NAD+ is key in ATP production and my feeling better. NAD+ is known to be a stem cell generator. 300 mg ea. dose is necessary.
NAC helped, along with R-Glutathione with nasty cough and heavy lungs.
The rest of it is liver cleanse and MITO support.
It took me nearly two years to get this gar, honing my vitamin regimen before I discovered what worked for me.
Some people need CoQ10, some people need Ubiquinol, some people need Ubiquinone. That helps the mitochondria move certain supplements in and out of the mito cell wall.
Mitochondria has its OWN DNA. So respect that snd heal it.
D3 needs to be monitored through blood tests, keeping levels at 60-80 through an LCMS test.
Every time I catch a virus, now, my connective tissue takes a huge hit. I was in a walker, couldn't use my wrists, shoulders dislocating this past December 2022. Whatever I caught did not test positive for Covid. It was not the Flu, not RSV, not a common cold. My throat was ON FIRE. I had no energy fir weeks. A lingering cough and chest/bronchial tightness for one month or more.
I'm reading up on how to clear spike protein, just like clearing EBVirus.
Good luck, everyone!
All i do is sneeze and get nasal congestion, until i take h1h2 and quercetin. . h2@@Anastasia11101
I read the body is short on DAO and taking $50 beef kidney keeps it at bay however thr dr. Said take h1 h2 antihistamines and quercetin after that I didn't need to buy the beef kidney any more and I could eat pretty much what I wanted coffee, milk etc. No sneezing etc.
Your cat is bringing joy to my life right now. 😂
Another way to look at it is that nervous and immune system don’t go from sympathetic to para sympathetic, so it always inflames and never rests and digests.
Your cat's meow woke up my cat ...who is now searching the room for that cat. I dont want to shut the volume down....but my cat was starting to growl at thst cat's meow.
I have been studying Dr. Afrins work for the last 2 years. When Covid19 came up, I started with your lectures. I had a guess, mastcells have a role in the Covid19 topic. And finally those disciplines finding common ground makes a lot of sense! Great great presentation. 🙏🏻🙏🏻 This is an important coming-together!!
This is a very important coming together. When we finally address the question of how does air pollution affect the activated mast cells, we will make a huge step in understanding how to reduce a lot of unnecessary suffering.
Whole family had covid in July. My 38 year old Son in Law and myself ended up in hospital. I came home after 10 days but my Son in Law didn't. He died on the 2nd of August. I have been searching..trying to understand why a fit man in his prime should die yet I survived, aged 62. Also why the rest of the family sailed through covid, with no complications..
The only difference between us was that George and I always reacted adversely to insect bites. Both of us had secondary reactions with large, inflamed blisters.
Having listened to the first 2 lectures I am convinced that George and I had MCAS. I am of course a long hauler now although improving slowly each month that passes. Chest xray not yet normal and awaiting a CT scan..
I intend to research the low histamine diet and see what difference it makes. (Of course I eat all the foods that are on the 'bad' list - have increased fermented foods to help my gut flora..)
Thankyou for sharing this information and presenting it in such an easy format to understand.
I am so sorry for your loss. I got Covid in oct 2021. Since then I my migraines have increased to the point where I can’t work and my husband and I lost our first baby. I have since done research on this and I am “allergic” to everything that had histamines or a liberator. I have went on the carnivore diet and have been symptom free for a month. I hope this helps some. I was already sensitive to wine and certain foods so I’m convinced I have MCAS. I was in school to be a doctor and have had a huge change of heart about my future do to lack of true practice of medicine.
You and son inlaw might have had undiagnosed connective tissue disorder. Most connective tissue disorders are thought to be rare...but they are rarely diagnosed.
Was he treated with steroids and blood thinners? Do they know the cause of death, besides cv. The med that starts with R has been known to harm. I am so very sorry for you and your family’s loss. I have MCAS, have had my whole life, got much worse after having CV. But came through in 2020 without treatment. I did take supplements to thin my blood just a precaution since that was one thing they were saying was happening.
Quite convincing argument in favour of MACS. I shall like to try in future work up of these clinical issues
Agreed. Thank you!
Dr Chugh and Dr Been, FYI, C19 long haul support groups on social media are reporting a "low histamine diet" (with supplements?) is helping, as are fasting regimens (even more so). Consider Dr Valter Longo's Fasting Mimicking Diet (developed out of UCLA) which can be cheaply customized to the patient with consideration to calorie and protein limitations. On day 3 high level autophagy kicks in, high ketone production, and stem cell activation readied for repair -- this process and signaling strengthens over the next two days. Works to mitigate many serious disorders to include multiple sclerosis, as an example. Large % of immune cells are consumed during the fasting period, a reset.
DR SATISH CHUGH, THANK YOU FOR YOUR EYES AND EARS THAT HAVE SEEN AND HEARD.
I have experienced MCAS and nearly died in 2020 from Histamine intolerance Post Covid. I have displayed POTS symptoms PRE-C-19 as well. I contracted again in 2021 When I stop my Zyrtec-D I get very fearful. 😰 thanks 4 bringing Loofi ♥️
Oh God. What r ur main symptoms?
Do you carry an epipen? This is why I worry about getting properly diagnosed? I even am having a histamine reaction to my steroid inhalor which makes me really short of breath for about an hour until it kicks in.
I am having severe intolerance how did you recover?
Thank you so much for not dumbing this down until it becomes unusable information. Love this doc 💖❤💜💙🖤
Await the chapter on the mRNA vaccines, and their role in Mast Cell activation (and regulation/stabilization)! Thank you for the BEST illustrated talk on this vital topic! Sincerely, RAS/MCAS pt.
Ruth if you look in the MCAS forums - those getting vaxed are not having problems W vaccine
@@Mimi-ni3il I have MCAS, I’m a RN, on front line.. Where could I see some of these forums!
Have not had Covid or Vaccine as yet... Very frightened to get either.. also have other genetic issues..
Would be grateful if U have more info. Jenny from South Africa
I have mcas type symptoms that respond to h1/h2 after Pfizer. No history of covid.
@@jenessem9276 I am having histamine type issues for the first time after moderna vaccine.
@@et7356 I’m finally feeling much better, I suspect b1 supplementation has helped
Love your illustrations
My daughter was diagnosed with Ehlers-Danlos syndrome at age 15. I spent so much time researching as few docs understand EDS. I learned that there is a strong relationship with EDS and MCAS. But, I was too busy just trying to literally keep her together, going through numerous surgeries and helping her with her severe dysautonomia. When she was diagnosed, the top geneticist in the country for EDS, Dr. Brad Tinkle, said she most likely got it from me, but as a middle aged woman, I would not be as flexible as I once was, and would not pass on the Beighton scale for diagnosis. The same was true for both of my boys. They have many of the same symptoms such as POTS. Fast forward...last summer our whole extended family came down with Covid. My 24 yo son, who is very healthy, spent 5 days in the hospital. My oldest son was extremely sick, but thank God, was not hospitalized. I spent 6.5 wks in the hospital including 11 days on a vent. My daughter got it 3 months later and was hospitalized for 5 days with 2 days on high flow in ICU. My son said there has to be a link to something in us that made us get so much worse than others, even ones in our whole family that weren't as healthy as we were going in. Someone on Telegram sent a link to 1 of your videos on MCAS. The light bulb went off. I have been researching again, and your videos are amazing. Thank you for your indepth, yet easy to follow teaching style. Now I just have to find a GI doc who will listen and be open to learning, so I can get some real help for increasingly bothersome IBS-D that has gotten so much worse following Covid.
Try probiotics. My son has Ehlers Danlos and MCAS He is taking ketotifen, asa, famotidine montlukast, vitamin D Ascorbic acid and quercetin
Did you take loofymectin.
the house i live in at the moment had black mould in a few rooms, got cover march last year and still having issues, what was interesting was i was beginning to feel better around december/ january.....went out to the summerhouse to discover the roof had a leak and black mould had began to grow, the space was filled with the scent of it. spent a few hours fixing things up breathing in the air, the next day and subsequent days it was like my progress had regressed by a few months
I’m with you dear friend. Us too. Facebook groups for CIRS , mold, or pathogens for peer help. 🌷
Very interesting and informative ......many thanks !
Covid Long Hauler developed after the vaccine with anaphylactic reactions. MCAS now with flare ups allergies , GI, cardiac, and neurological. Began H 1 and H2 and Medrol better but still flare. Would like to see a treatment to resolve these issues. I was normal before the vaccine no health issues and now 1 year suffering every 2 weeks some severe multiple er and admissions.
See my post in the larger threads, here. Same situation. Didnt catch Covid, but suffere HUGELY after 4 Vaxes.
Have seen some success. Had anaphylaxis event, GI, urinary issues, was in a walker for a short while. MCAS part seems difficult to address. I've been prescribed the chemo pill Imatinib, which kills the Mast Cells. I was not diagnosed with mastocytosis after a bone marrow biopsy & extensive blood tests at Oncology. At least I've been given the diagnosis of MCAS. The treatment approach is sketchy. Better to juice, supplement and change diet.
Best!
Some SSRI drugs have off label mast cell modulation like doxepin. It has helped my stack. We can use some of what we have learned from COVID research to help us MCAS warriors
Long hauler for 14 months, on h1 and h2 blockers, nigella sativa, LDN and some other herbs from the naturopath. Starting sodium cromalyn in a couple of weeks. Also on low histamine diet.
A pretty heavy lecture, but excellent explanation for us folks to understand.
This video is relevant far beyond Covid19 and will go long way to help many people with Chronic allergies.
-Himalayan Been.
Thank You Doctor Been.
Glad the talk is valuable. Love your been title though. I am jealous :-)
@@DrBeenMedicalLectures Thank You so much.
The Phoneix idea is more than awesome (for lack of better word).
I could possibly collaborate on this idea too.
@@jimjones8268 Thank You for this info. Appreciate your taking out time to pass this information.
@@jimjones8268 out of all those supplements which is the most potent?
@@jimjones8268 fyi tea and coffee are implicated in blocking DAO
With the first shot of Moderna, I was foggy for 7 days. After the second shot I have been foggy for 71 days and it's not letting up. I got it from the shot not the virus.
Many others are saying the same thing. Please do not take the booster.
See videos from Stew Peters on Rumble. God bless you.
So sorry.. you were trying to do everything right.
@@mweber5459 My doctor told me to not take the booter.
Me too
@@larahudson630 Still have it? I do. 17 months now. However, I have improved a bit.
Hello doctor. Thank you so much for this. My son’s girlfriend died in October 2nd. She had COVID in January. A seemingly minor case. In April and June she had some sort of problem and was rushed to hospital. They treated her for anxiety and 2nd time at discharge prescribed an epi pen. Oct 2nd she died suddenly at a wedding. We are awaiting autopsy. I think it may have been MCAS.
So sorry to hear this. Mind if I ask.. did you find out the cause?
@@krobby85 hi autopsy reported complications from status Asthmaticus. I’m not sure what to believe
@@peggymarchant Did she have asthma and not know it? SO sad.
Thank you Dr. Been. :))
Pleasure. I like the been name :-)
@@DrBeenMedicalLectures I am happy you approved :)
Hi, 3 months of debilitating symptoms: feeling of fever/hotness, headache, muscle pain, sweating. All gone after incorporating rupatadine and cetirizine, I need to take them before sleep because I don't tolerate them well at the day (sleepiness, depression).
It's the thing.
My cat started meowing like loofy. 😁
Love the cartoons!
Missed you live today, dang
Sorry about that. Hope you are well.
I'm rounding the curve I think. This has been a rough few days. My nuerological condition is worse, I have PD eval at St Josephs but not until April. Til then my GP Dr increased my Requip and I'm not sure yet but I think it's helping. Thanks Dr been and Eric dog
OMgosh I love the Cat!!!
Only dexamethasone or other forms of glucocorticosteroids? Long term or as a pulse?
Love the cat!
There is hypothesis from other drs about viral debris left over after infection causing the reaction. Wouldn’t this makes sense in the way that mast cells respond to dead cells? A leading dr on the frontline with covid treatments etc said its not covid making people sick, but this huge inflammatory reaction to it and treating that was key.
Drbeen just gave a live lecture at FLCCC's webinar this past evening on AUTOPHAGY and cell debris. The treatment for this is Intermittent Fasting, Resveratrol and a new drug to me called Spermidine.
@@ruthannscanzillosmusicmusi5389 but would taking these cause further mcas?
@@lauravoss9213 I have no idea!
Loofi clearly thinks Dr Been has lost his marbles, talking away to a box!
🤣
I did not have Covid19 but had a pneumonia during pregnancy. After this pneumonia I developed strange cardiovascular symptoms and pains.. fatigue sometimes. Some kind of „long hauling“ I guess. I got to know Dr. Afrins work and I started his proposed medication. Documented it. 85% symptom reduction within 2 weeks. Relapses when stopping. So I am a real believer 😅
what kind of medicine does he recco?
What medication does he advocate for this? antihistamines?
@@delboy9617 Antihistamines AND Quercetin, Vitamin C, Vitamin D, Cromoglycinacid... and in acute situations prednisone. The book is worth reading.. it affects so many areas of medicine.
@@baylissfxbees2056 whsts cromoglynicad
Histamine block supplements that increase the DAO enzyme can help too if taken before food. I am finally figuring out the food by eating a low histamine diet and I'm finally able to reduce my steroid breathing treatments. Should MCAS patients carry epipens? Ive had some scary breathing situations in the last 6 weeks since COVID diagnosis that I realize now is likely related to mast cells.
This is even interesting. Let me start by saying, my active covid infection was very mild, fever of 101 for like 10-12 hours, fatigue and stuffy nose. Was fine by day 5. My post covid syndrome started improving the day I started taking hydroxyzine(an antihistamine) for “anxiety” I only took that for a couple days . I had heard about zyrtec helping with long covid symptoms. So I started taking Zyrtec every night not expecting much. At first I thought maybe it was just a coincidence that my racing heart, fatigue, palpitations and energy improved while on the Zyrtec. I stopped taking it. Let me tell you, I had the worst relapse the next day. This is when I realized it was related to mast cells overly producing histamine and causing all these long haul symptoms. I do remember taking Allegra while sick with covid to help with the stuffy nose which I was already used to since I suffer from daily environmental allergies and I wonder if that helped prevent Severe covid.
I, too, developed racing heart (called Emergycare twice about this!) flushing, after eating high histamine foods that I could ALWAYS tolerate otherwise. Zyrtec worked. I took it daily for about ten days. Then, I read where low Vitamin C can cause mast cell membranes to weaken, and I realized I hadn't been taken nearly enough of C with my regimen AND the one I WAS taking was citrus based/histamines, again! So, I bought an ascorbic/rose hip formula, and as soon as I started taking 2000 units per day, all the mast cell symptoms ceased!
@@ruthannscanzillosmusicmusi5389 yup. I take vitamin C daily now and helps with the day to day seasonal allergies 👌🏽
@@ruthannscanzillosmusicmusi5389 what are your symptoms?
@@jhonybraavo Interestingly, once I began the daily Vitamin C rose hip formula, all the racing heart after eating high histamine foods ceased. So did the hypotension. BUT: I have been dealing this year and much of last year with symptoms of parathyroid disease! Kidney stones; massive constipation; and, osteoporosis.
In answer to your question regarding the effects of taking these pills with long covid....
Diagnosed as having Long Covid in June 2020 due to persistent chronic fatigue, breathlessness and ‘brain fog’ following suspected Covid infection in early April (PCR testing unavailable at that time). Symptoms fluctuate in waves of severity, I take a home PCR test in late August but was unable to register the test (a requirement in order to post it back to the testing centre) due to over capacity in the UK at that time. Further fluctuating symptoms for two months and finally I drive to a PCR testing centre in early November, a terrifying experience given my physically and mentally impaired state. This test comes back as Covid Positive. I suspect viral persistence because I’ve been house bound (mostly bed bound) since April 9th but my GP says that’s not possible and I must have picked up the virus a second time. I read the paper by Dr. Afrin on COVID-19 hyper inflammation and MCAS in late November and started self medicating antihistamines, niacin, co-enzyme Q10, Quercetin, N-acetyl-cysteine, 75mg aspirin and a bunch of vitamins including D thereafter. The fluctuations in my symptoms have become less severe over the last few months, my thinking a little more clear but short term memory loss still a big problem, chronic fatigue has lessened although still an issue, but at least I’m able to take short walks outside by late January 2021 and I find breathing is easier. I still cannot take any proper exercise as this causes a complete physical ‘crash’ putting me back in bed for 4 or 5 days, before Covid I was playing competitive tennis and coaching. I had about ten days over Christmas where I was without most of these pills having forgotten that postal deliveries would be disrupted at this time of year and found the chronic fatigue and breathlessness significantly worse. Therefore I suspect that these pills have had some positive effect on my symptoms. My GP has looked at my list of pills and doesn’t recommend I take aspirin since I’ve no history of any heart condition but is okay with the rest. As to whether Long Covid is an autoimmune disease or viral persistence, I suspect it’s probably a bit of both.
Thank you Dr. Been. This gives me hope. Guess Many of us who have lyme should focus on finding the best Immunologist physician.
Hmmm that is interesting. I have heard that many who have lyme and take ivermectin suddenly feel better than they have in years . Now I will definitely take ivermectin. After which the lyme should be less severe.
Did you take it?
Whats your dosage of Ivermectin??
First thank you so much for making the videos and bringing awareness that long haulers are experiencing symptoms and it's not just in our heads.
I started experiencing symptoms 4 days after receiving the J and J vaccine. It has been 14 months and I finally was told that it may be mcas. I have been working with my doc and started the cocktail of meds/supplements.
My question is and I understand if there is no answer right now is how long must I be on meds? And does this condition sort itself out? Again thank you for all your doing.
My daughter’s doctor has worked with Dr Afrin, and told her that leaky gut is the cause of her MCAS. Chromolin worked at first but not anymore. She takes Claritin and salt tablets/Nuum for hydration. She still feels terrible. Trying to heal the leaky gut.
Interesting. Hope she recovers soon.
So sorry. Hope for her complete recovery.
I know this is an old post but Zyrtec works much better than Claritin for most of us.
A gluten and casein free diet can help with that. My oldest son has been on it for over 16 yrs. Not easy, but worth it.
Could you link/pin part 1 of this or put in info section? Thanks!
Love pictures.
How are your patients doing?
Isnt ascorbic acid the same as vitamin C?
How much aspirin should one take? Low dose?
Is there a role for antihistamines such as cetirizine in addition to ranitidine in the management of MCAS?
There is another doc explaining the mast cell issue and they recommend antihistamines. I am afraid of those as benadryl does bad things too.
@John just letting you know, check with your doctor on the ranitidine; it was recalled because it was found to be carcinogenic, I believe. I just took some because it was all I have for emergencies, but I'm looking into something different at my appt next week. Allergic to benadryl. 🙃
@@whisperingsage there are different types of antihistamines. I prefer claritin or zyrtec to benadryl, as benadryl gives me an intense allergic reaction. 🙃 Talk to your doc about it because antihistamines are not your only treatment option, and you can alter your diet as well.
I am an M.E. sufferer after a severe virus that temporarily made me go partly blind. For years I was in a rough state, then one doctor suggested Mast Cell and put me on prescription antihistamines (loratadine.) My fatigue/brainfog is much improved and my skin rashes vanished.
@@sonofherne m.e here too
Doctor B , hello. I lost sense of taste and smell for 2 years now, March 2020. I had symptoms like a cold for 3 days lost sense of taste and smell then. It comes an goes, it is not the same. It's sad.
Is there any connection with MCAS and neuropathy and/or Tinnitus? I still have numbness in my hands and ringing in my ears about a year after getting covid. They both started about 2-3 weeks after initial infection.
What are taking to reduce tinnitus me too have the same issue as u have tinnitus due to covid
@@fighterspirit7358 I'm not taking anything. I haven't found anything that has helped.
@@splathub I recommend asking for a blood panel to locate some deficiencies left behind. Ask for them to check for inflammation markers like CRP or histamine markers as well. Look at your vitamin D levels. B12. Electrolytes like potassium and *magnesium*. I highly recommend taking a large dose of D-3 with K2. I take about 10,000iu daily when my health is in the tank, and go for about 7,000iu on any normal day, but it's the K-2 that's going to make a huge difference. If they prescribe you D-2, don't take it, just get a good quality D-3/K2 supplement along with a good multivitamin. D-3 will keep your levels sustained for longer, and K-2 will assist with ensuring the hormone gets where it needs to. Both are great for lowering inflammation and aiding in cardiovascular health. Additionally, looking into a good EPA/DHA and doing high amounts there (1-2g each) would also be very helpful, just beware of quality. I truly wish you well, it will get better, just keep changing things up, keep your nutrition a priority and focus on reducing inflammation so your body can heal. Exercise. Get some sun exposure if you haven't been. 10-15 minutes in the late morning with majority of your body exposed (ex. a tank top and shorts or swimsuit) is adequate for daily intake. The deeper your skintone, the more time you need for absorption, no more than 20 minutes. The fairer your skintone, try to keep it to 10 minutes max. No need to wear sunscreen during those few minutes if you're only out for that long.
@@splathub unfortunately, we don't know the long term effects of many viruses, not just this one. I was already dealing with this pre-covid, to where I'm not sure I would notice a huge difference if I got it. But the biggest thing I have seen coming up while researching is the inflammation factor, in prevention and recovery. Do some research, talk to your doctor, don't rest at no answers or shrugged shoulders. I believe in you and believe you'll get some relief. ❤
Tinnitus, yes. Mast cell activated for sure
Doctor sahib i am facing debelitationg symtoms of pots ..light headness .palpitations ..balance issues..may i take montilokast sodium..11 month has been passed since i have recovered from covid..
I am debetic for 15 years ànd my age is 47..
Ppz help me , POTS have made my life difficult..also anxiety and panic is another issue..previously i thought its dysautonomia..
Kindly suggest smthing for me..ap ka bahot ehsan hoga..beshak aik line ka jawab de dein
Very good video,i got mcas after a het b vaccination.Doubting very much i should take covid vaccination....i don’t want to Upset my mastcells. Any ideas on this?
Quercetin time? Many use it for mast cell syndrome
I have MCAS POTS and EDS so this is a scary time for me
Sorry about that. Hopefully your meds are protective against COVID severe cases.
@@DrBeenMedicalLectures I'm currently taking xolair and cromolyn sodium for the mcas. so I'm better off than most, but still high risk. the recent texas storm has pretty much ruined my chances of getting the vaccine for a few more months
@@spongeaus did you start on xolair for covid or prior? I took xolair for a year and it helped a lot.
@@Katie-vy5rd i have been on it for a little over 4 years it has given me so many foods back that i couldnt eat due to mast cell issues
that and corn allergy isnt fun so food is expensive
@@spongeaus Even if you're now able to resume eating some previously problematic foods w/o symptoms, it could be the medication is masking immune dysfunction at the level of the gut. Seems very likely, imho. Consider researching the work of the Paleomedicina group of physicians out of Hungary for a perspective on how they closely test and monitor for this problem in their many patients with immune dysfunction. (They correct it with an ancestral diet approach.) This speaks to long term health, avoiding risk of escalation, etc.
You do realize that some people have 2 or 3 copies of the tryptase gene right? People need to look at their genes too. I have EDS and symptoms of Pots and I sure have symptoms of MCAS for many years. But I don't catch colds or flu. Almost carnivore and I do intermittent fasting daily. I train my HRV to try & fix my vagus nerve. Due to the fact I react to airborne fumes like perfume on other people, laundry detergent, food fumes, etc I avoid people. I spend lots of time outside walking. Haven't had any cold symptoms at all during this pandemic. What seems to help in my case with the mcas is avoiding any & all foods I react to! And food reactions show up on my HRV too. I also do cold therapy and do saunas too. Corn & grains are my #1 enemies.
Should lyme people have concerns about having Mcas. Is that possibly a part of chronic lyme or misdiagnosis of lyme. Like a person who has seasonal allergies to trees and foods.
Yup exactly
is cromolyn a prescrition?
Hello! I was a severe long covid patient for 10 months. I tried NAD IV therapy and it broke the cycle for me. Do you have any idea's on why this helped? Thank you so much for your work!
hello. did you totally improved after that NAD therapy?
It seems like viral persistence is causing MCAS.
Hi would that mean one will become permanately with mcas once virus persistance is over
@@javedaslam2208 According to the statistics most people recover within a year.
I’m guessing someone with MCAS that is barely controlled at this point would have a difficult time with COVID and a dangerous time with it.
Looking back, I realize I've had low level MCAS my entire life. It was undiagnosed, and I still ended up in the hospital twice with covid, and have had long covid for 8 months now. I shudder to think how dangerous and serious this would be for someone with a more active and serious case of MCAS!
@@michaelday5605 what do you do/use for your mcas treatment/management?
Can you explain how mcas is triggered with menstrual cycles
Estrogen dominance has something to do with it. Progesterone is anti-inflammatory and levels are low when the cycle starts.
How long Long Covid last? or Mast Cell Activation Syndrome? Does it ever go way for good?
Then why asthmatics are less likely to get severe COVID?
Can People with Asthma or Hives (Asthma and Hives being kind of Allergy), prone to Long Or Severe Covid ?
I have asthma and had mild covid, didn’t even feel that bad and thought it was just another one of my bronchitis infections and allergies, that was back in January 2020 before we were freaking out over covid, it’s been here for longer than they claimed.
Dr Chetty adds promethazine on the 8th day with steroids. I take h1h2 blockers and have less allergic reaction like sneezing and watery eyes 🤷♀️trying to figure it out.
is DR AFRIN IN NYC?
If the mutated mast cells continue on in production , why then does long haulers slowly fade away ? It shouldn't it be more permanent ?
How can I send you a private message with a question?
Just started listening today. Dont know what a long hauler is. Could you explain
Louetta, long haulers are patients that have lingering symptoms of COVID-19 that don't resolve in the typical way most patients that get COVID-19 do.
A long hauler is someone who had covid, is tested clear of virus but still suffering malaise such as headaches, brain fog, lethargy etc. There has been tests made where the viral fragment has been detected in the mast cells that is thought to be what is causing the continued autoimmune reaction in the covid-negative ex-covid patients. Check the other session on long hauler with Dr Patterson : th-cam.com/video/9HSKceCt8tQ/w-d-xo.html
@@nieiniei your answer is enlightening. Do you know if Brain Fog would be explained as memory loss during conversation like forgetting names or words.
aspirin can be a problem for asthmatics
And for gout
Lol, my boy does the exact same thing. Every live or when he realizes I am doing a voiceover. 🤣
Cats have valuable opinions, and feel that it's their civic duty to share them.😄
Aren't they adorable?
Pats to your good boy.
How does Aspirin help with long covid?
It can help w/blood clotting among other issues
@@joyfisher8008 Is blood clotting an issue with LC?
@@samjarea I have mcas, not from covid but with mcas , generally aspirin helps. The autonomic system is faulty because of mcas and it causes blood flow issues and chronic inflammation. Aspirin helps take down the inflammation and thin the blood so helps blood flow.
@@staylor8935 Gotcha, thank you for letting me know.
I am long hauler and I am allergic. Tried antihistamines yesterday and felt better. No antihistamines today and I feel worse. Maybe that is the case why. I also feel better on anticoagulants.
Olga Lvlyeva, what antihistamine did you take? I'd like to feel better too. I'm a long-hauler too.
Basic one. Citrine
Im trying zrytec (h1 blocker) and pepcid extra strength (h2 blocker).
@@cstraleyare you finding both work better together... than just taking one or the other? 😲
@@zoezzzarko1117 Yes I did.
Can you get the vaccine while also taking ivermectin and colchicine?
He has answered the Ivermectin in previous videos. Yes you can. Not sure about colchicine.
@@were_all_fact6026 Thank you!
what is famotidine? pepsid?
Yes, it's the same as pepcid. It's an antihistamine. 👍
@@victoriarobertson266 so im having after covid--symptoms-so pepsid would help that
@@susanhorton9492 to an extent, it's not the one thing that will solve it. I would recommend talking to your primary about having a blood panel done, just to check for deficiencies. They might refer you to a specialist if it's been some time. A big thing is inflammation post-covid, and getting that under control is very important. In helping your body recover.
I have had mcas idiopathic for about 5 years. Just got my JJ vaccine last 12 days ago. I have had 3 flare ups since the vaccine. Not necessarily related. Had no other issues with vaccine thus far. Btw. Mcas really sucks.
It IS RELSTED !!
That extra mutated mast cell has a lot of farts.
Highly allergic to indoor allergies, since i had covid it feels like I'm always on the brink of a cold
is dr afrin in nyc?
He's in NY state, not city
I am a long hauler on month 12, previously diagnosed with IBS. Had hay fever and allergies to animal hair as a kid.
Taken some of the supplements and they made a positive difference.
I'd like to take anti histamenes but they spike me tinnitus and hyperacusis I got from covid
I'm a 42-year-old long hauler for 8 months now also diagnosed with IBS and allergies at 17 years old. I basically went on a vegan diet, and then an even more restrictive histamine diet. The tinnitus I was experiencing post-covid pretty much went away and I can tolerate antihistamines like claritin. I'm going to try some of the other ones now.
@@michaelday5605 what diet u follow?
I think your cat wants to be your co host
I think Loofi just wants some more low histamine cat snacks
Dr Mobeen, I have never had covid and no vaccines, But I have extreme reaction to heart medication meds which looks like mast cell activation.
Having mastocytosis taking COVID-19 Vaccine be dangerous?
Please be very careful about taking aspirin. This can cause reactions in some MCAS patients. It should be done carefully and slowly. Start by halfing a baby aspirin and do this for a week if tolerated, then increase the dose. There's not a lot of evidence for this, but dexamethasone has been shown to make mast cells a bit angry. Use caution when prescribing. Steroids in some patients make things significantly worse. It is also important that a MCAS patient starts a new supplement or medication slowly. Do not start taking a medicine at full strength. Depending on sensitivity, you may need to start as slowly as placing the medication/supplement on your lip once a day for a week. Then place in mouth and immediately spit out. Then take a sprinkle of the substance. Etc.
Where are the comments?
Here!
@@DrBeenMedicalLectures 😂😂😂🤣😁😎
Rhoow!
If you react to sulfa drugs like me, you may need to detox and clear your suffer pathway.
Why do you say this? Do you think a sulfa allergy can be impacted by COVID?
Wondering, I had Covid in early May 2021. I am 70 and have trouble with remembering words and names in conversation. Before Covid I was an average 70 yr old. Is there a direction you can steer me in to help me.
I'm only 42 and have noticed extreme forgetfulness of words that I would usually never have trouble with after getting the covid long haul. One thing that has helped immensely is a low histamine diet which is basically a more restricted version of a vegan diet. I stopped eating meat, eggs, fish, and dairy, and have experienced a dramatic reduction in my symptoms.
Long haulers are vaccine injured.Antibody Dependant Enhancement.
I keep having bouts of diarrhoea which coincide with extreme fatigue and shortness of breath. I’ve started taking zinc, Quercetin, niacin, selenium, vitamin c&d and an anti histamine (cetirizine) for a few days now but it doesn’t seem to be working. Can anyone suggest what supplements they’ve used/diet changes that’s helped them ease symptoms?
Did it get better?
@@SubhadeepGayen no it hasn’t worked. I still get bouts of of diarrhoea and shortness of breath. I’ve tried taking 2 probiotics with Inulin a day and the mentioned supplements above as well as a low-histamine diet. Nothing seems to improve it.
@@MikeyysVlogs How are you now?
Luffy is having none of it.
My husband takes Low Dose Naltrexone for ME/CFS.
How much does he take? Is it helping? Any side effects?
Mine is 2 years and 3 months uggggg
#koolbeanz
Can someone explain to me in layman's terms the p value and why it matters?
P value is a measure of statistical significance used when making inferences from a data set. In very general terms it is the probability that you will be incorrect if you use statistical evidence to say that a factor influences an outcome. Most often a threshold value is selected and anything with a p value higher than the threshold is thrown out. Threshold values of 0.1, 0.05, and 0.01 are fairly common with lower values being used when you want to be very conservative. A p value of 0.001 would indicate very strong significance.
@@tpontificator4183 Thank you!
@@tpontificator4183 you are an awesome person thank you
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