Actually,my mom has trait and NO SHE HAS NEVER BEEN IN THE HOSPITAL NOR DELT WITH ANY PROBLEMS SICKLE CELL BRINGS They ARE 2 DIFFERENT!! THINGS. TO MAKE IT SEEM LIKE ITS THE SAME IS LIKE SAYING DRAG QUEENS HAVE PERIOD CRAMPS.
@@toniphillips4422 Your mom is one person. To compare your moms experience with millions of others is like saying "I don't have periods so no one else does."
@@toniphillips4422 I have the trait and I have been in the hospital several times. I think it is good to be cautious when in extreme hold or cold environment, when working out, when il, when dehydrated. Sickle Cell Trait is very serious and a person could die due to the body’s extreme reaction to the environment. Many MDs are not aware of the seriousness of having the trait.
I have been sick all my life and no doctor ever pinpointed what was wrong. I have a whole long list of health issues. I only recently learned that I have sickle cell trait. So some people can have bad symptoms with sickle cell trait; it is not just about high altitude or participation in extreme physical activities!
Drink 3 liters of water a day and more during stressful times, activities, hot days and preventing permanent damage to all body tissues like bones, joints, organs, skin which is the largest organ of the body. If I don’t drink 3 liters of water a day my skin gets extremely dry. Drink a gallon of WATER a day and you can save your life of misery
Drink 3 liters of water a day and more during stressful times, activities, hot days and preventing permanent damage to all body tissues like bones, joints, organs, skin which is the largest organ of the body. If I don’t drink 3 liters of water a day my skin gets extremely dry.
This is false, I have the trait and I’ve had complications that only those with the disease are supposed to get, I’ve had my spleen removed because it infarcted. Pretty much ceased function, I’m currently in the hospital right now because I just had my first pain crisis at 24. I’m a pretty healthy person i player divison 1 sports for 5 years and the university I played at took my conditionin very seriously even if it was just the trait. And that’s the point I’m trying to make people need to stop dismissing the trait because they have just as severe complications as those with the diseases. Maybe not as many cases but it DOES HAPPEN
I always drink water but I wanted to add me exercising more what else can I do I have the sickle cell trait and I noticed a year or two ago my joints started bothering me what else can I do someone recommended that I use refined sugar
Even if what you say is true it is DEFINITELY as you put it not “just as bad” and you shot yourself in the foot when you said your first crisis was 24 people with the real disease are lucky just to make it from toddler to adolescent I’m 25 and have had WAY more than 1 crisis and honestly shouldn’t have made it in multiple occasions See your doctor and get your pain properly diagnosed and don’t downplay real sicklers
@@israeladeoye I didn’t down play those with the disease, I’m trying to get people to stop dismissing those with the trait. Yes those with the disease battle with it from birth and is a lot more serious. I want more people to be aware that folks with the trait have issues as well. Especially those who play collegiate sports because those programs do not acknowledge sickle trait and often over work them into bad situations. I’m not throwing a pitty party for who has it worse. I want awareness for all
@@israeladeoye all he was trying to say is that they make it seem like nothing happens to the people with the trait and as his experience shows that’s a lie
I have the trait, and I am a specialist in hematology and this video is quite upsetting. You guys really don't consider the voices of patients and think that only specialists know about the trait. I am specialized with sickle cell and carry the trait myself and no, it isn't benign and it has symptoms, and it doesn't need to be exerted to happen in any way. I had many medical emergencies with the trait. Whether it be pain, or complications. I made a video on the trait, and the fact that we actually do have pain too. #SCTAwareness
I have the trait and have joint pain all the time. I have bone spurs in lower lumbar, spondylosis. Chronic headaches, fatigue, I could go on and on, but we'd be here for a while. And today is windy and very cold, so I'm in bed due to joint pain. My uncle died 5 years ago from SCD. He suffered a long time.
I used to be active in sports. I played volleyball, a type of baseball and then i started training to run🏃♀️🏃♀️. I used to pass out in school during PE. But with the running i started finding it very hard to breath. Everything around me went from colour to grey to dark one day. I sat beside the road until i could walk again, went home and never took up another sport. Now im out of shape, unnaturally tired all the fucking time and different parts of my body hurt everday. My yearly check ups show no reason for me to feel this way. Its the worst that people assume i dont eat right or take care of myself enough. So basically i have no one to thank for the way i feel, but myself. And I'm pretty sure my doc thinks im a hypochondriac. Today someone told me to be careful cos i could get worse. In that moment i imagined dying and i felt nothing but calm and peace.
I know someone with the trait that went running & was told they had a sickle cell crisis unknowingly which led to Rhabdomyolysis which the dominos was kidney failure & leg amputation… More trait research needs to be done.
My mom had the sickle cell. Disease so she passed away but me and my twin has the trait nothings been happening lately I’m learning about the trait though to see what may happen in our life we’ve been normal nothing has been happening I’m just wondering what happens If you have it..just to make sure
Not true we have pain as well. I was in the hospital several times for chest pain and I didn't even know I had the trait. I finally asked the doctor to just check me for sickle cell because I happened to research my symptoms and they were similar to those with sickle cell. And sure enough I have the sickle cell trait. I no longer listen to doctors anymore lol, I don't want to hear shit from anyone who does not have the trait. How the hell would you know?
Honestly ngl I think some of y’all who have the trait may have to get retested or go get checked out by a hematologist(I think that’s how it’s spelled).. might have been misdiagnosed especially if anytime before the 90s when this was fairly “new” ..
No, it is the trait, but the name "trait" is just misleading.It needs to be changed to mild Sick Cell Anemia disease. When you are "trait" some of your cells are still sickle, just very few, and stress on your body (namely oxygen related and heat related) cause your cells to change. People are just putting stress on their bodies that they don't know they shouldn't. Me for example, I have always be heavily athletic, but I would always go through big bought of being sick after 2-3 weeks of hard running. I had to learn (still learning how) to take it slower and allow myself more recovery time. Also that losing my breath while training was not the best for my body. I also tried Scuba diving several times in the ocean, each time I got sick life full on flu symptoms. I JUST learned today that people with the trait should try to avoid deep water scuba diving! They are still learning more and more about both the trait and the full-blown disease, but it is hardly a priority in the medical community as it only affects a small demographic.
Same here but I can't pinpoint who she inherited it from. Because my brother found out that he has the trait when he went to the military, but my child's grandfather on the dad side has the sickle cell trait I believe and I had neither one.
Pain in the chest area in general for disease holders is a full on 🆘 and most times can mean death 💀 from a condition named acute chest syndrome I’m an anomaly just being able to speak from experience YES more research and attention needs to be given for sickle cell in general but to all “trait holders” this is still FAR more true for the disease holders than I think you give us credit for
It is 100 parsant wrong sickal call trait not crisses sickal call trait get more painful life fatigue weknes and more coplaction I am sickal call trait patint
The name sickening cell trait is severely misleading. There are soooo many things that are dangerous for us that are not for normal people. Straining exercise, regular anemia, high altitude, low altitude, heat, and even scuba diving cause you to have full-blown sickle cell crisis episodes. You also have inflammation and swelling more often. Also, some of your blood cells ARE sickled. Just not as many. The more strain you put on your body causes complications. You do NOT have to be a college athlete.... just work really hard physically (in other words, losing breath, etc...). I went scuba diving and got VERY sick afterwards.... because I didn't know it caused complications. Also, they are still learning more as this is NOT a disease heavily focused on in the medical community (it only affects a small demographic already least cared about.
I am 2 months pregnant and my sickling test is positive. Sickle trait is found. What are the chances that my baby will not be affected? Please help me. Is there any test by which we can get that my baby didn't got sickling cell from me?
@@naushadali3740 So True, Doctors aren't being honest about sickle cell trait because it can and does effect those like it does with disease. More and more people are experiencing problems with trait so this video needs to be updated.
Video: almost all sickle cell trait carriers live normal lives SCT Carriers In the comments: this is false Video is still up??? It’s weird to me how everyone knows more about SCT than those of us who actually have it and suffer? More research needs to be done and it needs to start with those of us who actually have the “trait.”
More attention needs to be given to sickle cell in general but as a disease holder I’d prefer if they started with the more urgent predicament don’t you?
@@israeladeoye So you'd prefer if they started with you? This video is about carriers. We are told we have zero symptoms, this is what my comment is about. I'd prefer for them to stop saying this. Now if you're in the mood to go toe for toe regarding who has it worse then do that under someone elses comment b/c I said what I said. I feel they need to do more research with SCT b/c we (carriers) all are complaining about having crisis and everyone else who doesn't have it are telling us no. That's an issue.
@@kaycatajen Totally agree with you. I have the trait, I am not an athlete but while doing an exercise routine I developed Rhabdomylosis. I could have died. This is not at all a competition with those that have the disease. We know only too well how much you, the ones with Sickle Cell Disease suffer. But.... it is important to those of us with Sickle Cell Trait - that the medical community recognize we too have issues and we too can die because no one recognizes that our problems started with the trait.
Im confused is it really a bad thing? I see comments saying this video is false information and that it should be taken serious which got me worried because I just found out from my mother that I have it but I haven’t had any problems so far and Im 18 years old
I have the trait and my bones and body been hurting all my life. L-glutamine supplement in water or juice is the only relief to keep these crises at bay. Went to a 7500ft altitude city and got so sick I had to take meds. I'm tired of European doctors saying the trait can live a normal life. Its just not true. 45% of my red blood cells are sickled.😢
THAT IS NOT TRUE I WORK IN THE HOSPITAL AND SEE MORE PEOPLE WITH SICKLE CELL THAN HAVE THE DISEASE ME AND MY SISTER BOTH HAVE THE TRAIT AND IN THE HOSPITAL FOR PAIN MORE THAN PEOPLE WITH THE DISEASE
I m a Medical professional n I will advise to be honest there is nothing to be serious Live normal life do some Regular Exercise ( Not so hard) drink water on regular basis ....keep distance from extreme Cold n Heat ....Eat Everything u love ....Dont Stress It can never be Disease.... little bit pain is Common during Winer n Cloudy Weather... Try to keep yourself in Favourable Conditions always God bless ❤❤❤❤❤❤
They definitely need to do more research because most of us with the trait , still have some of the same symptoms , I definitely get sick out of no where . And they definitely wouldn’t no if they don’t have it .
![BOWKYLION - เจ้านายคะ (work-life imbalance) [Official MV]](http://i.ytimg.com/vi/6bFj8G2pOi4/mqdefault.jpg)
People with the trait still end up in the hospital
Actually,my mom has trait and NO SHE HAS NEVER BEEN IN THE HOSPITAL NOR DELT WITH ANY PROBLEMS SICKLE CELL BRINGS
They ARE 2 DIFFERENT!!
THINGS. TO MAKE IT SEEM LIKE ITS THE SAME IS LIKE SAYING DRAG QUEENS HAVE PERIOD CRAMPS.
@@toniphillips4422 Your mom is one person. To compare your moms experience with millions of others is like saying "I don't have periods so no one else does."
@@toniphillips4422 I have the trait and I have been in the hospital several times. I think it is good to be cautious when in extreme hold or cold environment, when working out, when il, when dehydrated. Sickle Cell Trait is very serious and a person could die due to the body’s extreme reaction to the environment. Many MDs are not aware of the seriousness of having the trait.
If you don’t take care of yourself im 34 by grace of God the trait has not made me go to hospital for the trait
I've got the trait and I've never ended up in hospital
I have been sick all my life and no doctor ever pinpointed what was wrong. I have a whole long list of health issues. I only recently learned that I have sickle cell trait. So some people can have bad symptoms with sickle cell trait; it is not just about high altitude or participation in extreme physical activities!
I'm here to learn and understand more about what you're talking about.
what other symptoms have you had related to having the trait.
Drink 3 liters of water a day and more during stressful times, activities, hot days and preventing permanent damage to all body tissues like bones, joints, organs, skin which is the largest organ of the body. If I don’t drink 3 liters of water a day my skin gets extremely dry.
Drink a gallon of WATER a day and you can save your life of misery
I’m so tired of people saying the pain isn’t the same with the trait…I have been to the hospital so many times for a crisis
There definitely needs to be more studies conducted on sickle cell trait. I have it and have had complications.
I have the trait but experience severe pains when am cold stressed or sick with another diseases and my bones always hurts
Drink 3 liters of water a day and more during stressful times, activities, hot days and preventing permanent damage to all body tissues like bones, joints, organs, skin which is the largest organ of the body. If I don’t drink 3 liters of water a day my skin gets extremely dry.
This is false, I have the trait and I’ve had complications that only those with the disease are supposed to get, I’ve had my spleen removed because it infarcted. Pretty much ceased function, I’m currently in the hospital right now because I just had my first pain crisis at 24. I’m a pretty healthy person i player divison 1 sports for 5 years and the university I played at took my conditionin very seriously even if it was just the trait. And that’s the point I’m trying to make people need to stop dismissing the trait because they have just as severe complications as those with the diseases. Maybe not as many cases but it DOES HAPPEN
I always drink water but I wanted to add me exercising more what else can I do I have the sickle cell trait and I noticed a year or two ago my joints started bothering me what else can I do someone recommended that I use refined sugar
Even if what you say is true it is DEFINITELY as you put it not “just as bad” and you shot yourself in the foot when you said your first crisis was 24 people with the real disease are lucky just to make it from toddler to adolescent I’m 25 and have had WAY more than 1 crisis and honestly shouldn’t have made it in multiple occasions
See your doctor and get your pain properly diagnosed and don’t downplay real sicklers
@@israeladeoye I didn’t down play those with the disease, I’m trying to get people to stop dismissing those with the trait. Yes those with the disease battle with it from birth and is a lot more serious. I want more people to be aware that folks with the trait have issues as well. Especially those who play collegiate sports because those programs do not acknowledge sickle trait and often over work them into bad situations. I’m not throwing a pitty party for who has it worse. I want awareness for all
@@israeladeoye all he was trying to say is that they make it seem like nothing happens to the people with the trait and as his experience shows that’s a lie
So this is gonna happen to me when I get older nooo
They need a relearning
I have the trait, and I am a specialist in hematology and this video is quite upsetting.
You guys really don't consider the voices of patients and think that only specialists know about the trait.
I am specialized with sickle cell and carry the trait myself and no, it isn't benign and it has symptoms, and it doesn't need to be exerted to happen in any way.
I had many medical emergencies with the trait. Whether it be pain, or complications.
I made a video on the trait, and the fact that we actually do have pain too. #SCTAwareness
Yes exactly !
I have the trait and have joint pain all the time. I have bone spurs in lower lumbar, spondylosis. Chronic headaches, fatigue, I could go on and on, but we'd be here for a while. And today is windy and very cold, so I'm in bed due to joint pain. My uncle died 5 years ago from SCD. He suffered a long time.
I used to be active in sports. I played volleyball, a type of baseball and then i started training to run🏃♀️🏃♀️. I used to pass out in school during PE. But with the running i started finding it very hard to breath. Everything around me went from colour to grey to dark one day. I sat beside the road until i could walk again, went home and never took up another sport. Now im out of shape, unnaturally tired all the fucking time and different parts of my body hurt everday. My yearly check ups show no reason for me to feel this way.
Its the worst that people assume i dont eat right or take care of myself enough. So basically i have no one to thank for the way i feel, but myself.
And I'm pretty sure my doc thinks im a hypochondriac.
Today someone told me to be careful cos i could get worse. In that moment i imagined dying and i felt nothing but calm and peace.
Don't worry just don't think about it and just stay happy
Yes people tend to think it is our fault and can be insensitive but don't mind them. Do your best!
So do you have the trait or the disease?
I know someone with the trait that went running & was told they had a sickle cell crisis unknowingly which led to Rhabdomyolysis which the dominos was kidney failure & leg amputation…
More trait research needs to be done.
My mom had the sickle cell. Disease so she passed away but me and my twin has the trait nothings been happening lately I’m learning about the trait though to see what may happen in our life we’ve been normal nothing has been happening I’m just wondering what happens If you have it..just to make sure
Not true we have pain as well. I was in the hospital several times for chest pain and I didn't even know I had the trait. I finally asked the doctor to just check me for sickle cell because I happened to research my symptoms and they were similar to those with sickle cell. And sure enough I have the sickle cell trait. I no longer listen to doctors anymore lol, I don't want to hear shit from anyone who does not have the trait. How the hell would you know?
Yesss exactly!
Honestly ngl I think some of y’all who have the trait may have to get retested or go get checked out by a hematologist(I think that’s how it’s spelled).. might have been misdiagnosed especially if anytime before the 90s when this was fairly “new” ..
No, it is the trait, but the name "trait" is just misleading.It needs to be changed to mild Sick Cell Anemia disease. When you are "trait" some of your cells are still sickle, just very few, and stress on your body (namely oxygen related and heat related) cause your cells to change. People are just putting stress on their bodies that they don't know they shouldn't. Me for example, I have always be heavily athletic, but I would always go through big bought of being sick after 2-3 weeks of hard running. I had to learn (still learning how) to take it slower and allow myself more recovery time. Also that losing my breath while training was not the best for my body. I also tried Scuba diving several times in the ocean, each time I got sick life full on flu symptoms. I JUST learned today that people with the trait should try to avoid deep water scuba diving! They are still learning more and more about both the trait and the full-blown disease, but it is hardly a priority in the medical community as it only affects a small demographic.
@@boparks3204exactly
I haven't been admitted in a hospital since I was 2 years old even though I am a carrier AS.
I am also a carrier
Same here 🙋🏿♂️
I got sickle trait and anemia ... I got iron tablets from my doctor.....am always tired n got heavy periods......
I do not have this, but my baby was born with it and he inherited that from his dad. I want to learn more about this for my one month old baby’s sake.
Same here but I can't pinpoint who she inherited it from. Because my brother found out that he has the trait when he went to the military, but my child's grandfather on the dad side has the sickle cell trait I believe and I had neither one.
not true, i get stabbing pains in my chest from the trait
Don't worry it's not harmful
Me too
@@Atharva5087 any type of pain to the body is harmful
Pain in the chest area in general for disease holders is a full on 🆘 and most times can mean death 💀 from a condition named acute chest syndrome I’m an anomaly just being able to speak from experience YES more research and attention needs to be given for sickle cell in general but to all “trait holders” this is still FAR more true for the disease holders than I think you give us credit for
Yeah me too
It is 100 parsant wrong sickal call trait not crisses sickal call trait get more painful life fatigue weknes and more coplaction I am sickal call trait patint
I agree
I have the trait and I get crisis
I have the trait and have went into crisis too!! This video does not have all the facts straight.
Same
Rachel neale that is possible if the prevalence in your family is high okay
I just found out by a hematologist that having sickle cell trait can potentially cause kidney problems. He advised me to get my kidneys checked.
Can u explain what crisis you experience?im trying to find info for my daughter
The name sickening cell trait is severely misleading. There are soooo many things that are dangerous for us that are not for normal people. Straining exercise, regular anemia, high altitude, low altitude, heat, and even scuba diving cause you to have full-blown sickle cell crisis episodes. You also have inflammation and swelling more often. Also, some of your blood cells ARE sickled. Just not as many. The more strain you put on your body causes complications. You do NOT have to be a college athlete.... just work really hard physically (in other words, losing breath, etc...). I went scuba diving and got VERY sick afterwards.... because I didn't know it caused complications. Also, they are still learning more as this is NOT a disease heavily focused on in the medical community (it only affects a small demographic already least cared about.
I have the trait
I am 2 months pregnant and my sickling test is positive. Sickle trait is found. What are the chances that my baby will not be affected? Please help me. Is there any test by which we can get that my baby didn't got sickling cell from me?
Sickle Cell Trait is dangerous. There is a test, but i’m pretty sure it’s kinda expensive.
You probably know by now, but if her dad is also a carrier, your girl will have the disease. If its just you, she can be a carrier as well.
#solutionhealinghome on TH-cam’s Natural herbal supplement really helped my son recover completely from SC anemia with no side effects.
Thank you for this video! I needed to know about this because my mom said I had it when she was on the phone.
Sickal call trait is very very big problam all doctor lier it not a disease this is rong it is diseas
@@naushadali3740
So True, Doctors aren't being honest about sickle cell trait because it can and does effect those like it does with disease. More and more people are experiencing problems with trait so this video needs to be updated.
This is not a very good informative video. You will find more accurate information in the comments.
Video: almost all sickle cell trait carriers live normal lives
SCT Carriers In the comments: this is false
Video is still up??? It’s weird to me how everyone knows more about SCT than those of us who actually have it and suffer? More research needs to be done and it needs to start with those of us who actually have the “trait.”
If you are sickle cell trait u live a normal life span 😊
More attention needs to be given to sickle cell in general but as a disease holder I’d prefer if they started with the more urgent predicament don’t you?
@@israeladeoye So you'd prefer if they started with you? This video is about carriers. We are told we have zero symptoms, this is what my comment is about. I'd prefer for them to stop saying this. Now if you're in the mood to go toe for toe regarding who has it worse then do that under someone elses comment b/c I said what I said. I feel they need to do more research with SCT b/c we (carriers) all are complaining about having crisis and everyone else who doesn't have it are telling us no. That's an issue.
@@Atharva5087 Unless you're an athlete. 😊
@@kaycatajen Totally agree with you. I have the trait, I am not an athlete but while doing an exercise routine I developed Rhabdomylosis. I could have died. This is not at all a competition with those that have the disease. We know only too well how much you, the ones with Sickle Cell Disease suffer. But.... it is important to those of us with Sickle Cell Trait - that the medical community recognize we too have issues and we too can die because no one recognizes that our problems started with the trait.
Tq
My daughter has the trait 😔
Don't be sad. She's gonna be okay. I do to and I've lived a healthy life for 27 years now
@@missmaria6423 Everyone is different. Im 28 but i dont remember the last time i felt healthy. Or even okay.
@@malikapollard3618 my mother has but she is 42 now she is okay and will i am also sickle cell trait
Im confused is it really a bad thing? I see comments saying this video is false information and that it should be taken serious which got me worried because I just found out from my mother that I have it but I haven’t had any problems so far and Im 18 years old
Mine too. 😔
I have SCD, I dont want any of my kids to feel the pain I grew up in & still. I'll live single
Wow..sorry..that's so hard to hear. Blessings to you.
@@LashondaGuichardBenjamin
Thanks
I just watched a woman who had SCD. She had a baby and the child was a marrow match. She no longer has SCD. Doctors also try for siblings.
You are courageous.
A cure was recently created. No need to stop your life.
I have sickle cell trait
I have the trait and my bones and body been hurting all my life. L-glutamine supplement in water or juice is the only relief to keep these crises at bay. Went to a 7500ft altitude city and got so sick I had to take meds. I'm tired of European doctors saying the trait can live a normal life. Its just not true. 45% of my red blood cells are sickled.😢
THAT IS NOT TRUE I WORK IN THE HOSPITAL AND SEE MORE PEOPLE WITH SICKLE CELL THAN HAVE THE DISEASE ME AND MY SISTER BOTH HAVE THE TRAIT AND IN THE HOSPITAL FOR PAIN MORE THAN PEOPLE WITH THE DISEASE
Man I got the fucking disease this some bs I was thinking bout going pro 🏈
I m a Medical professional n I will advise to be honest there is nothing to be serious Live normal life do some Regular Exercise ( Not so hard) drink water on regular basis ....keep distance from extreme Cold n Heat ....Eat Everything u love ....Dont Stress It can never be Disease.... little bit pain is Common during Winer n Cloudy Weather... Try to keep yourself in Favourable Conditions always God bless ❤❤❤❤❤❤
They definitely need to do more research because most of us with the trait , still have some of the same symptoms , I definitely get sick out of no where . And they definitely wouldn’t no if they don’t have it .
I have the disease
Don't worry you will live longer
Thanks Hitler!