I succumbed to ME/CFS some 18 years ago, aged 50, following a rather nasty virus that I picked up at the same time that I was diagnosed with Hypothyroidism, It totally wrecked my life for a couple of years. I lost friends and family to this wretched disease, nobody believed I was ill but just depressed and doctors didn't know what to do with me. Strange how all sorts of people I knew were experts on the illness that I was suffering from! I am 68 years old now and now have a diluted version of the disease whilst still lapsing with certain symptoms at any time. I will say that recently I was found to be low in vitamin B12 and following a course of injections the fatigue I have experienced for so many years has definitely improved, interesting ...... Please get to the bottom of this living hell, life-changing disease.
I've had ME/CFS since 1993 and it has wrecked my life. Absolutely soul shattering disease. I caught it after 6 bronchial infections and one brute of a flu.
I call it cellular exhaustion as the mitochondria are not recharging normally. It’s not the fatigue of tired limbs, but a cellular exhaustion that affects whole body systems including organs and a breakdown of the metabolic & immune processes in the body.
This is terribly frustrating. I had stomach biopsy done and sent to Dr Chia’s lab. The results came back positive 2+ for enterovirus. Ive suffered with severe digestive illness for years, but cannot find anyone to take the results seriously and treat me for this. But thank you for this video.
@@raziberry8043 I have not seen Dr Chia. The biopsy was taken and sent to Dr Chia’s lab, EV Med Labs. I have made numerous attempts to contact both the lab and Dr Chia to find out what these results mean. But no one will return my calls.
This is very interesting. I think they may have found the trigger in ME/CFS patients. I got sick as 8 years old after a trip to Greece and surely enough, I was in the water swimming shortly before I got sick. I really hope there will be a cure soon. I really feel his anger- I hope they will listen to him very soon.
Thanks you, as always, for such a wonderful interview, Amy! Was so helpful to hear John's experience as scientifically-minded physician actually taking ME/CFS seriously! Tho' I'm too battle-worn from 22 years of severe ME/CFS (since age 40) following decades-long relapsing/remitting, ever-increasing FMS, IBS, bouts of mono, ET CETERA to have any hope that ME/CFS will be "un-psychologized" sufficiently soon (if ever) to help me, I DO hope it will help those younger than me. How I wish I could have AIDS, or any number of other serious conditions, that are BELIEVED and at least offered help/palliation if not curative treatments and care!
Very good interview. I'm so glad Dr. Chia is continuing his work. I have ME and would like to donate my brain (when I'm done with it) if I can find a registry
I believe persistent enterovirus is responsible for ME/CFS, MS, ALS, Parkinson's, Encephalitis Lethargica, Post Encephalitic Parkinsonism, Type 1 diabetes.
Amy your such a great interviewer. Thanks Very interesting. Appreciate greatly Appreciated your summations that help this Meeper brain listen easily, knowing you will wrap it up efficiently & effectively. Dr Chia is beautiful, committed, empathetic & passionate. What a beam of hope he shines.
I am so glad I met Dr Chia, and that he is helping to treat me. All of this observations and studies are giving me perfect sense, of what has been happening to me for decades. Blessings to Dr Chia 🙏🐺
@The Freedom Fighter see if your doctor can give you a referral to him. Funny about the phone I had a appointment with him and I was having issues too.
This is a great video I started writing a literature view on the topic as a fun project. We really do need a tissue bank set up in countries across the globe. It’s such a shame more researchers are not doing their due diligence of understanding the difficulties and limitations of current approaches to enteroviral testing.
Hi Amy. This is an excellent interview! It seems Dr. Chia is pursing a model of myalgic encephalomyelitis being caused by a chronic enteroviral infection. One thing I wanted to ask is could there be any relation to Dr. Chia’s findings of enteroviral persistence in the stomach and nervous tissue with the RNase L/2'-5'-oligoadenylate synthetase dysfunction found by Robert Suhadolnik and De Meirleir in the late 90s? Losing the 2 '-5 ' A pathway would seriously damage the cell’s ability to remove foreign RNA agents, such as enterovirus. And if the method of viral persistence is dsRNA, as Chia believes, losing the RNAse L pathway would prevent full clearance of the virus from tissues. Couldn’t it be that there is some initiating acute event, whether the enterovirus or some other infection such as flu or EBV or HHV-6, and one crucial step on the road to developing a chronic disease is this event, through a currently unknown mechanism, knocks out the RNase L pathway? This would allow these enteroviruses to spread to the brain and cause severe illness instead of being limited to the gastrointestinal tract. In any case, I hope the scientific community, including those involved in ME research, will take a new look at evidence for enteroviral infection and contact Dr. Chia to help with investigation of this long-neglected area of research. Unfortunately Chia’s work has been neglected in the past, despite his impeccable credentials, partially because as he explains in the video, finding enteroviral RNA or protein is labor-intensive, involving investigation of the tissues, instead of whole blood. -John
This interests me because it was 1984 when I began to get sick. I was sick for a year with some stomach problem for about a year, and no cause was ever found. After that, I've had CFS intermittently since then until the present. I wasn't in Lake Tahoe, but was in SF Bay area. I was in contact with people who did a lot of camping. After all these years, are there traces of the entero viruses in the body?
38:47 Very rare in my experience for a doctor to give a patient‘s own observations and intuitions about his/her own body (and mind) much credence. Especially when trying to distinguish between psychological or physiological root causes. Imho doctors should be better trained to gauge a respective patient’s competence and experience regarding his/her own body and health. And with chronic conditions it seems safe to assume many of the patients will have attained quite high levels of competence in self-observation. In my experience the opposite is more common: doctors faced with a chronic condition favor the assumption that a patient is not capable of reasonable self-observation.
I always have low levels of several Coxsackie viruses of 1:8-1:16. I am on valacyclovir and I believe thats' why i'm not bed ridden anymore but I have a long way to go. Could you please list the Chinese herbs and all of the treatments that you talk about in this video?
I took it religiously and sometimes doubled up for over a year and it was super helpful. Recently I started methylene blue and monolaurin and noticed I didn't have to take the valacyc while on the MB in particular. It's nice because I don't need an Rx for it and it helps with energy too. It turned out I have or had chronic high titers for several viruses.@@ikyathay2998
My virus is in my nose, I blow allday. I never swallow the constaint drip down my throat. My eyebrows burn wirh a headache for 40days. Digging my nukkels into my forehead stops the pain. Zinc mixed with paracetamol on my eyebrows and firehead, draws out the pain.Feels like fire rods thru my eyes. I only open 10% of the curtains in the last 8 months, no breath to do auything. Im from South Africa but walked 500 miles thru the High Serria mountains in California. Rested at Lake Tahoe
![Life with ME/CFS | Professor Warren Tate [Chronic Fatigue | ME]](/img/n.gif)
I succumbed to ME/CFS some 18 years ago, aged 50, following a rather nasty virus that I picked up at the same time that I was diagnosed with Hypothyroidism, It totally wrecked my life for a couple of years. I lost friends and family to this wretched disease, nobody believed I was ill but just depressed and doctors didn't know what to do with me. Strange how all sorts of people I knew were experts on the illness that I was suffering from! I am 68 years old now and now have a diluted version of the disease whilst still lapsing with certain symptoms at any time. I will say that recently I was found to be low in vitamin B12 and following a course of injections the fatigue I have experienced for so many years has definitely improved, interesting ...... Please get to the bottom of this living hell, life-changing disease.
Thank you Dr Chia for all your research and for actually listening and believing your patients when they tell you they are sick.
I've had ME/CFS since 1993 and it has wrecked my life. Absolutely soul shattering disease. I caught it after 6 bronchial infections and one brute of a flu.
Flu can be a certain type of entroviral infection unknown to drs to test for.
Fatigue is a misleading word: muscle failure after minimum exertion seems to me much more accurate.
Much more accurate description.
bingo. painful muscle failure.
In regards to M.E. certainly. Fatigue might not be present at all in M.E.
Exhaustion is a characteristic of ME, fatigue is not.
I call it cellular exhaustion as the mitochondria are not recharging normally. It’s not the fatigue of tired limbs, but a cellular exhaustion that affects whole body systems including organs and a breakdown of the metabolic & immune processes in the body.
This is terribly frustrating. I had stomach biopsy done and sent to Dr Chia’s lab. The results came back positive 2+ for enterovirus. Ive suffered with severe digestive illness for years, but cannot find anyone to take the results seriously and treat me for this. But thank you for this video.
Can’t dr Chia help you
@@raziberry8043 I have not seen Dr Chia. The biopsy was taken and sent to Dr Chia’s lab, EV Med Labs. I have made numerous attempts to contact both the lab and Dr Chia to find out what these results mean. But no one will return my calls.
@@hvspeed6102 he is *slammed*
@@gurpchirp Yes, I have heard more about it since then. Have you seen him?
What drugs/therapies did you take? Do you feel better?
This is very interesting. I think they may have found the trigger in ME/CFS patients. I got sick as 8 years old after a trip to Greece and surely enough, I was in the water swimming shortly before I got sick. I really hope there will be a cure soon. I really feel his anger- I hope they will listen to him very soon.
Thanks you, as always, for such a wonderful interview, Amy! Was so helpful to hear John's experience as scientifically-minded physician actually taking ME/CFS seriously! Tho' I'm too battle-worn from 22 years of severe ME/CFS (since age 40) following decades-long relapsing/remitting, ever-increasing FMS, IBS, bouts of mono, ET CETERA to have any hope that ME/CFS will be "un-psychologized" sufficiently soon (if ever) to help me, I DO hope it will help those younger than me. How I wish I could have AIDS, or any number of other serious conditions, that are BELIEVED and at least offered help/palliation if not curative treatments and care!
You have explained so well.
Very good interview. I'm so glad Dr. Chia is continuing his work. I have ME and would like to donate my brain (when I'm done with it) if I can find a registry
Agree
Man I wish all doctors thought like this good man. A rare breed it seems.
That requires work on doctors part. Remember, not all doctors sat in the front row.
I wish there was a website where we could donate and help fund dr chias work and other enteroviral persistent studies
He does have his own foundation. Dr Amy mentions it when she introduces him at the beginning of this video.
I believe persistent enterovirus is responsible for ME/CFS, MS, ALS, Parkinson's, Encephalitis Lethargica, Post Encephalitic Parkinsonism, Type 1 diabetes.
But why some and not others?
How about ebv and cmv?
Amy your such a great interviewer. Thanks
Very interesting.
Appreciate greatly Appreciated your summations that help this Meeper brain listen easily, knowing you will wrap it up efficiently & effectively.
Dr Chia is beautiful, committed, empathetic & passionate. What a beam of hope he shines.
I am so glad I met Dr Chia, and that he is helping to treat me. All of this observations and studies are giving me perfect sense, of what has been happening to me for decades. Blessings to Dr Chia 🙏🐺
What is dr chia doing to help you? Has he tested for enterovirus? What medication are you getting
@The Freedom Fighter see if your doctor can give you a referral to him. Funny about the phone I had a appointment with him and I was having issues too.
How're u doing now
@@ikyathay2998 fantastic
@@fatherwolfs1can you pls tell me what treatment he used on you. Im in India so no chances of consulting him
Fascinating video. I wish the UK would take note of what Dr Chia says.
This is a great video I started writing a literature view on the topic as a fun project. We really do need a tissue bank set up in countries across the globe. It’s such a shame more researchers are not doing their due diligence of understanding the difficulties and limitations of current approaches to enteroviral testing.
Are you aware of any tissue banks?
Dr Chia is offering hope and a path to heal. Thank you so much for this interview
Hi Amy. This is an excellent interview! It seems Dr. Chia is pursing a model of myalgic encephalomyelitis being caused by a chronic enteroviral infection.
One thing I wanted to ask is could there be any relation to Dr. Chia’s findings of enteroviral persistence in the stomach and nervous tissue with the RNase L/2'-5'-oligoadenylate synthetase dysfunction found by Robert Suhadolnik and De Meirleir in the late 90s? Losing the 2 '-5 ' A pathway would seriously damage the cell’s ability to remove foreign RNA agents, such as enterovirus. And if the method of viral persistence is dsRNA, as Chia believes, losing the RNAse L pathway would prevent full clearance of the virus from tissues.
Couldn’t it be that there is some initiating acute event, whether the enterovirus or some other infection such as flu or EBV or HHV-6, and one crucial step on the road to developing a chronic disease is this event, through a currently unknown mechanism, knocks out the RNase L pathway? This would allow these enteroviruses to spread to the brain and cause severe illness instead of being limited to the gastrointestinal tract.
In any case, I hope the scientific community, including those involved in ME research, will take a new look at evidence for enteroviral infection and contact Dr. Chia to help with investigation of this long-neglected area of research.
Unfortunately Chia’s work has been neglected in the past, despite his impeccable credentials, partially because as he explains in the video, finding enteroviral RNA or protein is labor-intensive, involving investigation of the tissues, instead of whole blood.
-John
RNase-L fragmentation is indeed a marker for ME.
Lots of food for thought! Thank you both
Great job interviewing! Thx
Thank you for this video!
Thanks 4 all you do..God bless you.
Covid 19 variants show up in water first. And now Italian published papers saying variants develop in the stomach.
Don't forget about the Mold aspect of this and the great things that the mold avoidance community including Erik Johnson and Lisa petrison have done
Curious if they would talk to Bruce Patterson’s team using moraviroc for long haulers.
I would really like to see research into ozone therapy (MAH, "ten-pass") as possible treatment modality with these kinds of infections!
This interests me because it was 1984 when I began to get sick. I was sick for a year with some stomach problem for about a year, and no cause was ever found. After that, I've had CFS intermittently since then until the present. I wasn't in Lake Tahoe, but was in SF Bay area. I was in contact with people who did a lot of camping. After all these years, are there traces of the entero viruses in the body?
Did you pursue this any further? I was working in the bay area during that time period too.
38:47 Very rare in my experience for a doctor to give a patient‘s own observations and intuitions about his/her own body (and mind) much credence. Especially when trying to distinguish between psychological or physiological root causes.
Imho doctors should be better trained to gauge a respective patient’s competence and experience regarding his/her own body and health. And with chronic conditions it seems safe to assume many of the patients will have attained quite high levels of competence in self-observation.
In my experience the opposite is more common: doctors faced with a chronic condition favor the assumption that a patient is not capable of reasonable self-observation.
This is a very astute point.
But Erik says that a lot of Lake Tahoe CFS patients went to try Dr Chia's treatments for enterovirus and they did not get cured so they left.
Any experiences with Ivermectin?
Any indications that these kinds of viruses might hang around in jaw cavitations (NICO)?
I always have low levels of several Coxsackie viruses of 1:8-1:16. I am on valacyclovir and I believe thats' why i'm not bed ridden anymore but I have a long way to go. Could you please list the Chinese herbs and all of the treatments that you talk about in this video?
How're you doing now. I want to start valacyclovir too
I took it religiously and sometimes doubled up for over a year and it was super helpful. Recently I started methylene blue and monolaurin and noticed I didn't have to take the valacyc while on the MB in particular. It's nice because I don't need an Rx for it and it helps with energy too. It turned out I have or had chronic high titers for several viruses.@@ikyathay2998
make sure to hydrate well on valcyc...to avoid kidney stones@@ikyathay2998
Dihydroquercetin
How can I leave my brain to a doctor like this one for research?
Love to see research into fasting as treatment option. I tend to get respite of an acute phase by doing a few days long water fast...
Thank you Amy!!!
My virus is in my nose, I blow allday. I never swallow the constaint drip down my throat. My eyebrows burn wirh a headache for 40days. Digging my nukkels into my forehead stops the pain. Zinc mixed with paracetamol on my eyebrows and firehead, draws out the pain.Feels like fire rods thru my eyes. I only open 10% of the curtains in the last 8 months, no breath to do auything. Im from South Africa but walked 500 miles thru the High Serria mountains in California. Rested at Lake Tahoe
Any pointers as to the dosage for dihydroquercitin?
Fascinating
Do people with chronic enterovirus have some symptoms resolve with fasting?
Im so glad for ppl like Dr Chia and so tired of being sick. I feel he is the real thing! Science here in Sweden are going slow. Too slow!
I agree!
36:27 naive question: why can‘t this be done???
Interesting
👏👌💐♥️🇸🇰 Thanks 👏
49:58 help? What is this supplement called?
diydroqercetin
he has more long covid patients than just one. i know this for a fact.
What about fish ? If you eat fish 🐟 bioaccumulation
6:25
20:35