I’m sorry that was very simplistic with no answers at all. I have CRPS , ( COMPLEX REGIONAL PAIN SYNDROME ) also known as RSD ( Reflex Sympathetic Distrophy ) and I have allodynia very bad. It is rare , I was hoping this was going to lead somewhere but it did not at all. I’m sorry but, hope in Drs. is just not coming and so many of us are left in a world of pain for years waiting for real help.
I have fibromyalgia with allodynia as one of the symptoms. My body perceives cold as pain too. I've tried medication like Gabapentin, Amytriptyline and Duloxetin but all they do is make me gain a lot of weight so I stopped taking them. Right now I take Tramadol for the pain caused by the fibromyalgia but this doesn't work for the allodynia. Even for the fibromyalgia it only takes off the edges of the pain. It often leaves me desperate and depressed that there is apparently nothing that can be done and they just tell you to learn to live with it.
Muchas gracias dra, exelente tema aveces no se porque tanto dolor padezco del túnel carpo y he llegado a tener mucho dolor sobretodo si me golpeo la mano, agradezco mucho su tiempo para ayudarnos a mejorar la salud cuidense mucho saludos desde México 😊😊😊😊😊
Well done. If only every pain specialist offered that level of an examination. I can’t even get them to want to look at my CRPS site, let alone examine it with that much detail.
Thank you for this informative video. I have allodynia On the back right side of my scalp. It Feels like sharp blades running down my scalp. Even a Slight breeze and light perspiration can cause severe pain. I also have a crushing hot pain on my right ear and a pulling pain on my jaw along with allodynia on my neck and jawline. It started about a year and half ago, I had shingles and immediately prior to the shingles I had covid. I don't know if it's will go away, I do get partial relief with 2,400 mg Gabapentin each day...
My skin is very sensitive and the soft tissues as well. Like if I press hard on my arms or feet when I massage them or like if I bump into something. The area hurts for days sometimes weeks. Thankyou doctor for this video!
Thank you so much for doing this video. I have Allodynia and it certainly is a challenge being hypersensitive. From the clothes I can wear to even my hair hurting and irritate me, I try to teach my brain not to perceive these as dangerous sensations.
Light touch of certain types of clothes on the body hurt, but if I wear compression garments under the clothing my body can tolerate the clothes. Also Warm evoked allodynia is what I experience. That is more difficult to find solution for living with. I can wear gloves when washing dishes for examples; but not fully helped by that. Showers hurt ....I start with cold water hitting the skin and gradually turn pressure up and water warmer. Even that doesn't help enough or every time. My heart races and pain can intensify. Any suggestions on how to desensitize the body to warm evoked allodynia would help so very much! Thank you for this video!
Nociceptive Nociplastic Central Sensitization Top down Central Sensitization Bottom up Central Sensitization Myofascial Syndrome Fibromyalgia CRPS Mind Body Syndrome CPS PTSD TBI Not to mention a lot of words for spine problems that show up on an MRI at many levels in my Cervical, Thoracic, and Lumbar spine from injuries in the Army many years ago. And much time with many MD’s with PhD’s including top VA doctors. These are all terms I have become familiar with from 20 years of Chronic High Impact disabling pain. What I have been given for therapy is deep breathing and mindfulness meditation with careful stretching and some weights and walking. Using the continuum of movement model to manage exercising and walking. And the Acceptance Commitment Therapy approach from the BioPsychoSocial model. I still have disabling chronic pain every day with hard restrictions on the one helpful medicine, . . but I know a lot more real big words.😂 At least the PhD’s are beginning to get an overall theory.
Hi Dr Furlan, thank you for your great videos. I have had a chronic super sharp pain in my right side of my neck around C6 for a long time. There is a nerve impingement but neurosurgeons told me that operation will not help me.I can't manage it. My pain management doctor gave me nortriptyline 10 and oxycontyn 10 but they don't help. I keep moving and stretching my neck but I keep getting flare-ups. I am unable to sleep. I tried deep breathing, ice/heat packs, classical piano music but no joy. What else can I do? Thank you.
Sono felice che lei abbia toccato questo argomento è la prima volta che lo sento che lo vedo io soffro di di dolore dove mi toccano qualsiasi posto anche i capelli che mi fanno male che cisa ho❓
Πωςνα σου γραψω χιλια ευχαριστω υποφερω απο υνομιαλγια κ χρονιους πονους κ απο εσενα εχω καταλαβει πραγματα που δε λενε οι γιατροι ειμαι απο ελλαδα νασαι παντα καλα,,,
Great explanation. I have fibromyalgia with cold temperatures . In winter time I always tell my husband les go to hot weather country .Thank u very much for this video .👍🙏🙏🌹💕
I have fibromyalgia too, all year round, but cold is painful to me too. When we had snow one day, a friend put some snow on my bare back and I was literally screaming in pain. She actually thought I was pretending or exaggerating but it was really extremely painful. I also have days that even my clothes hurt on my skin, or just a very light caressing of my skin. I've tried 3 kinds of medication but they all cause me to gain lots of weight so I've stepped taking them. Do you take anything for it?
That is great to hear. Please share this video with your friends. I have lots of videos about chronic pain on my channel th-cam.com/users/DrAndreaFurlan And don't forget to turn on the notifications 🔔 Did you know that I have a website where all of my videos are organized by topics, and you can download all my handouts, worksheets and booklets for FREE. Visit www.doctorandreafurlan.com
Hallo Dok furlan.. Terimkasih untuk videonya.sya dari indonesia.saya menderita CPSP ( central post stroke pain ) atau syndrom nyeri talamic..saya sangat menderita selama hmpir 5 tahun..sangat sangat menyakitkan.sentuhan halus bagaikan di gosok dengan amplas..dri ujung kepala smpai ujung kaki sebelah kiri.. Apakah prosedur Deep Brain simulation bisa membantu Dok..??? Terimkasih
I have been fatigued with skin sensitivity for 8 weeks. The sensitivity is my entire back dermal plane. From the neck down to legs and back of arms. Nothing on the front of my body. Feels almost like a sunburn to the touch with clothing or moving. Constantly there. Blood tests normal. MRI thoracic normal. MRI cervical shows stenosis in C1-T1. Gabapentin does nothing for the pain at 300mg but just makes me more tired. Thought maybe i had Mono and went to my spine and nervous system? What are my next steps no one can give me an answer. Follow up with Neuro on 4/4/24.
Hi! You’ve mentioned Gabapentin and Cymbalta as important medications to recover from chronic sensitisation symptoms such as allodynia. But what if you don’t tolerate the side effects from these medications? I’m currently on Amitriptyline and Mirtazapin.
I have fibromyalgia and one of my symptoms is allodynia. I've tried Gabapentin, Amytriptyline and Duloxetin but these caused me to gain lots of weight in a short period of time. Because I also suffer from backpain, weight gain is particularly bad. After I stopped taking these medicines it took me a long time to lose the weight again. Did you gain weight as well? I'm currently not taking anything for the allodynia, only Tramadol for the pain from the fibromyalgia. I don't have allodynia all the time but when I do have it, it's unbearable. I wonder if there isn't anything for it that doesn't cause weight gain. Does the Mirtazapin help you and does this have the same side effects as Amytriptyline and Gabapentin?
@@DrAndreaFurlan i broke my back when I was 17 , i have lived with chronic pain ever since, but in 2019 my ciatic nerve went nuts and a short time after that Allodynia came... I can't walk without pain, because of ciatic and Allodynia.. if this is the reason, can it be treated? Thank you so much for answering me and please forgive any grammar mistakes, english is not my first language 🙏. Much love to you from Chile 💜💜
@@DrAndreaFurlan of course, I understand, I just wanted to know if there's any treatment out there that could help . Thanks for everything, I have learned a lot with your videos!
hello, how are you..I feel the same as you. I have suffered from CPS central post stroke for more than 5 years..what medicine are you taking now..thank you
I occasionally get allodynia. My clothes will hurt my skin. I don't get allodynia often.. I notice its more likely to come on if I went on a sugar binge for a while.
I’m sorry that was very simplistic with no answers at all. I have CRPS , ( COMPLEX REGIONAL PAIN SYNDROME ) also known as RSD ( Reflex Sympathetic Distrophy ) and I have allodynia very bad. It is rare , I was hoping this was going to lead somewhere but it did not at all. I’m sorry but, hope in Drs. is just not coming and so many of us are left in a world of pain for years waiting for real help.
u r so right! we feel helpless…:( no answers Medical school sucks!!!
I have fibromyalgia with allodynia as one of the symptoms. My body perceives cold as pain too. I've tried medication like Gabapentin, Amytriptyline and Duloxetin but all they do is make me gain a lot of weight so I stopped taking them.
Right now I take Tramadol for the pain caused by the fibromyalgia but this doesn't work for the allodynia. Even for the fibromyalgia it only takes off the edges of the pain.
It often leaves me desperate and depressed that there is apparently nothing that can be done and they just tell you to learn to live with it.
Muchas gracias dra, exelente tema aveces no se porque tanto dolor padezco del túnel carpo y he llegado a tener mucho dolor sobretodo si me golpeo la mano, agradezco mucho su tiempo para ayudarnos a mejorar la salud cuidense mucho saludos desde México 😊😊😊😊😊
Well done. If only every pain specialist offered that level of an examination. I can’t even get them to want to look at my CRPS site, let alone examine it with that much detail.
That right Mam I got problem like what you are introducing on vidio, nice education and useful for me, nice to see you.
Thank you for this informative video. I have allodynia On the back right side of my scalp. It Feels like sharp blades running down my scalp. Even a Slight breeze and light perspiration can cause severe pain. I also have a crushing hot pain on my right ear and a pulling pain on my jaw along with allodynia on my neck and jawline. It started about a year and half ago, I had shingles and immediately prior to the shingles I had covid. I don't know if it's will go away, I do get partial relief with 2,400 mg Gabapentin each day...
My skin is very sensitive and the soft tissues as well. Like if I press hard on my arms or feet when I massage them or like if I bump into something. The area hurts for days sometimes weeks. Thankyou doctor for this video!
Thank you so much for doing this video. I have Allodynia and it certainly is a challenge being hypersensitive. From the clothes I can wear to even my hair hurting and irritate me, I try to teach my brain not to perceive these as dangerous sensations.
Thankyou, appreciate your time explaining,
Thankyou ,
How people can contact too you?
Are you living in Romania 🇷🇴 or Canada 🇨🇦?
Light touch of certain types of clothes on the body hurt, but if I wear compression garments under the clothing my body can tolerate the clothes. Also Warm evoked allodynia is what I experience. That is more difficult to find solution for living with. I can wear gloves when washing dishes for examples; but not fully helped by that. Showers hurt ....I start with cold water hitting the skin and gradually turn pressure up and water warmer. Even that doesn't help enough or every time. My heart races and pain can intensify. Any suggestions on how to desensitize the body to warm evoked allodynia would help so very much! Thank you for this video!
It is a good educational advice for students of medicina.
Thank you Dr. Furlan❤❤
Very interesting. Great explanation
I have fibromyalgia. Mine is with cold temperatures 🌡. Also touch light or pressure on my arms.
Nociceptive
Nociplastic
Central Sensitization
Top down Central Sensitization
Bottom up Central Sensitization
Myofascial Syndrome
Fibromyalgia
CRPS
Mind Body Syndrome
CPS
PTSD
TBI
Not to mention a lot of words for spine problems that show up on an MRI at many levels in my Cervical, Thoracic, and Lumbar spine from injuries in the Army many years ago.
And much time with many MD’s with PhD’s including top VA doctors.
These are all terms I have become familiar with from 20 years of
Chronic High Impact disabling pain.
What I have been given for therapy is deep breathing and mindfulness meditation with careful stretching and some weights and walking. Using the continuum of movement model to manage exercising and walking. And the Acceptance Commitment Therapy approach from the BioPsychoSocial model.
I still have disabling chronic pain every day with hard restrictions on the one helpful medicine,
. . but I know a lot more real big words.😂
At least the PhD’s are beginning to get an overall theory.
Hi Dr Furlan, thank you for your great videos. I have had a chronic super sharp pain in my right side of my neck around C6 for a long time. There is a nerve impingement but neurosurgeons told me that operation will not help me.I can't manage it. My pain management doctor gave me nortriptyline 10 and oxycontyn 10 but they don't help. I keep moving and stretching my neck but I keep getting flare-ups. I am unable to sleep. I tried deep breathing, ice/heat packs, classical piano music but no joy. What else can I do? Thank you.
Excellent
Very very important
Info
Sono felice che lei abbia toccato questo argomento è la prima volta che lo sento che lo vedo io soffro di di dolore dove mi toccano qualsiasi posto anche i capelli che mi fanno male che cisa ho❓
Πωςνα σου γραψω χιλια ευχαριστω υποφερω απο υνομιαλγια κ χρονιους πονους κ απο εσενα εχω καταλαβει πραγματα που δε λενε οι γιατροι ειμαι απο ελλαδα νασαι παντα καλα,,,
Great explanation. I have fibromyalgia with cold temperatures . In winter time I always tell my husband les go to hot weather country .Thank u very much for this video .👍🙏🙏🌹💕
Thanks for sharing!!
Me too. I perceive cold as pain.
I have fibromyalgia too, all year round, but cold is painful to me too. When we had snow one day, a friend put some snow on my bare back and I was literally screaming in pain. She actually thought I was pretending or exaggerating but it was really extremely painful. I also have days that even my clothes hurt on my skin, or just a very light caressing of my skin. I've tried 3 kinds of medication but they all cause me to gain lots of weight so I've stepped taking them. Do you take anything for it?
Very very informative
That is great to hear. Please share this video with your friends. I have lots of videos about chronic pain on my channel th-cam.com/users/DrAndreaFurlan And don't forget to turn on the notifications 🔔
Did you know that I have a website where all of my videos are organized by topics, and you can download all my handouts, worksheets and booklets for FREE.
Visit www.doctorandreafurlan.com
ty for this
Hallo Dok furlan..
Terimkasih untuk videonya.sya dari indonesia.saya menderita CPSP ( central post stroke pain ) atau syndrom nyeri talamic..saya sangat menderita selama hmpir 5 tahun..sangat sangat menyakitkan.sentuhan halus bagaikan di gosok dengan amplas..dri ujung kepala smpai ujung kaki sebelah kiri..
Apakah prosedur Deep Brain simulation bisa membantu Dok..???
Terimkasih
I have been fatigued with skin sensitivity for 8 weeks. The sensitivity is my entire back dermal plane. From the neck down to legs and back of arms. Nothing on the front of my body. Feels almost like a sunburn to the touch with clothing or moving. Constantly there. Blood tests normal. MRI thoracic normal. MRI cervical shows stenosis in C1-T1. Gabapentin does nothing for the pain at 300mg but just makes me more tired. Thought maybe i had Mono and went to my spine and nervous system? What are my next steps no one can give me an answer. Follow up with Neuro on 4/4/24.
Hi! You’ve mentioned Gabapentin and Cymbalta as important medications to recover from chronic sensitisation symptoms such as allodynia. But what if you don’t tolerate the side effects from these medications? I’m currently on Amitriptyline and Mirtazapin.
I have fibromyalgia and one of my symptoms is allodynia. I've tried Gabapentin, Amytriptyline and Duloxetin but these caused me to gain lots of weight in a short period of time. Because I also suffer from backpain, weight gain is particularly bad. After I stopped taking these medicines it took me a long time to lose the weight again.
Did you gain weight as well?
I'm currently not taking anything for the allodynia, only Tramadol for the pain from the fibromyalgia. I don't have allodynia all the time but when I do have it, it's unbearable. I wonder if there isn't anything for it that doesn't cause weight gain. Does the Mirtazapin help you and does this have the same side effects as Amytriptyline and Gabapentin?
I feel the pain in my hands. Of the light touch..
Woke up today with my skin hurting from any touch. So weird feeling. Even passing my fingers over it feels painful.
I'm sorry to hear that. I hope it gets better.
Same on my right leg feels like someone is stabbing me when i touch it
Suggest any good chronicc pain doctor from india
Hi ! Can Allodynia be cured? I have it since 2019... i'm so tired...
Yes, but it depends on the cause of allodynia.
@@DrAndreaFurlan i broke my back when I was 17 , i have lived with chronic pain ever since, but in 2019 my ciatic nerve went nuts and a short time after that Allodynia came... I can't walk without pain, because of ciatic and Allodynia.. if this is the reason, can it be treated? Thank you so much for answering me and please forgive any grammar mistakes, english is not my first language 🙏. Much love to you from Chile 💜💜
I don’t give individual medical advice on social media. My videos are just for educational purposes
@@DrAndreaFurlan of course, I understand, I just wanted to know if there's any treatment out there that could help . Thanks for everything, I have learned a lot with your videos!
I wish you would address Central Post Stroke Pain Syndrome.
hello, how are you..I feel the same as you. I have suffered from CPS central post stroke for more than 5 years..what medicine are you taking now..thank you
I occasionally get allodynia. My clothes will hurt my skin. I don't get allodynia often.. I notice its more likely to come on if I went on a sugar binge for a while.
Is the pain always in the same place? I have pain like she described with the tissue but it moves around my body.
@@Critical.Thinker did you get to the bottom of these pains? I have similar to yours
Hugs hurt. So does being near a refrigerator door that's just been opened. Ridiculous.
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