Who ever did a thumbs down on this should be ashamed of themselves. I have Crohn's disease myself. It is a life struggle for this chronic illness. Everything is different for us. Our diets are way out of balance.
Yeah, Crohns sucks, I have it as well as another auto immune disease, EoE ( Esoinpillic Esophagitis ), I don’t know about you guys but my Crohns makes me not able to absorb foods well enough and my EoE makes it hard to swallow food, I have been to countless procedures and surgeries it’s not even funny, and I am only 14, super under weight and under height, and I also have traces of skin cancer
Oh and another thing I forgot to add is that I got a drug rash from the meds that helped ease and get rid of inflamed areas in my esophagus and small intestine, and a drug rash is basically where you get red itchy dots all over your body, an extremely chapped lip, and the chance of anaphylaxis. So now I’m on an elimination diet and to see if cutting out potential allergens helps. Although I’m only 14, I was fortunate to have found the diseases early on and only having somewhat mild symptoms, like with Crohns it hasn’t affected me much physical pain wise, but my body is 3 inches under average height, and about 40-50 pounds under weight because of Crohns and I found EoE by learning the hard way with my esophagus getting clogged by food for an entire day. I don’t get those terrible intestinal pains as of now but I do have a hand full of small ulcers in my small intestine. Sorry you guys have to deal with the same things.
I totally get it. I was diagnosed at age 20 with Crohn’s, I’m now 50. Over the past 30 years, I’ve had 37 brutal surgeries, nearly died 3 times, they found cancer growing on the outside of my colon aka large bowel, which ruptured when I was 21, killing me for 2 minutes (amazing near death experience). In total?... * 37 surgeries *3 relapses of intestinal cancer *spent over half of the past 30 years hospitalized *have had 5 different ileostomies, a J pouch (aka pelvic pouch) and 2 different K pouches, all of which failed, waiting for my next K pouch surgery *left with less then 5% of my entire GI tract *my weight yoyo’d from 200lbs to 137, to 240lbs, etc...now stabilizing at 150lbs, but for a 6’ tall guy, I’m a walking skeleton and can’t gain weight and loose 4-5 litres of fluid each day (my output is now pure brown water). * developed 11 other chronic diseases that are direct side effects from the treatments for the Crohn’s and cancer *was forced to stop working 4 years ago and go on permanent long term disability. * can’t eat anything, except rice, potatoes, meat, fish, and strangely, it’s dairy (most Crohn’s patients can’t tolerate dairy) * spent months each year surviving on TPN aka, IV nutrition, because I couldn’t eat anything. Those are a few of the issue Crohn’s has caused. It’s turned my life upside down, left me flat broke, and sick for the rest of my life. If you’re healthy, you don’t know how lucky you truly are! I’d give anything to get back all that I’ve lost over the past 30 years. Thanks for posting this, so we can dispel the stereotype that it’s just an upset stomach. I’ve been accused so many times of faking being sick because I looked “normal” (I HATE that!!). It’s an invisible disability, but a disability none the less.
Invisible illnesses are the worst. People try to label you as a baby, or lazy or “you don’t look sick” etc etc. Then they try to give advices on an illness they know nothing about. It’s better to not tell people sometimes. Because, most of them don’t care. I’m sorry that you’re going through this illness for the past 30 years of your life, I don’t know what it’s like. But I understand and hear you. You’re heard! ❤️ Take one day at a time and sending you my warmest thoughts and praying for you.
I wish I could give you a hug ❤ I'm in the process of figuring out if I could possibly have Crohns or another Autoimmune disease. I'm sending my prayers from Ohio, USA ❤🙏
You poor man. God bless you. My daughter has it since 15 now 22 . She had an abscess which led to 3 rental surgeries resulting in them cutting into her sphincter muscle. It’s been hell. She is now on double dose of Humira and it’s not working. I started her on cannabis pills which help her a lot. Please look into that.
I’ve Crohn’s Disease since I was 5 years old and I have a foot of my colon and small intestine removed when I was 13 and missed two years of school. I feel your pain, keep on fighting and stay strong!
Chronos runs in my family and we ate now wondering if my 6 year old daughters has it. Can you tell me what your first symptoms were like as a child? Thank you. I hope you are doing well!
Chronos runs in my family and we now think my 6 year old daughter has it. Thank you for sharing your story. If anyone whom has a child with cgronscsees this can you please tell me what the first symptoms usually are? Thank you. I hope you are all doing well.
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover.....
I would love for you to do a updated video on how things are going now and any new information that you could share, would be so truly helpful to others dealing with this horrible disease.
Thank you for sharing. I have been diagnosed 3 years ago. I walked Around with alot of pain for years Because no one took me serious. It was so bad that the inflammation almost had made holes in my intestines. So in other words i could have been dead if i walked Around with it a little longer. You inspire me to share my story on youtube someday. To make it more easy for people to talk about it. Thank you!
Lynn94 94 I cant imagine how hard it must have been being undiagnosed for years :/ Hoping you can find relief and something that works for you soon! Hang in there!
Lynn94 94 omg same Ive been having symptoms since 2016 and they finally diagnosed me last month August 2018 when I had to get surgery to remove my appendix and a foot of my small intestines because I had a huge whole and a lot of infection. People didn’t take me serious at all and thought I was overreacting and all Drs used to tell me is I have really bad acid reflux. So yeah it’s hard walking around for so long and not do anything about it.
shit. i got it like 10 years ago.. my entire family turned their back on me and told me i was a drug addict. rumors spread. i lost all my friends that i've known since a kid, they all turned their backs on me. out of all my friends and family.. i only have 1 friend who stood by me.. out of all my close friends. my own family pretty much left me to die, and i pretty much almost did while homeless. i ended up being homeless for 2 years. i can't even find a career because interviewers look at me like an addict. my last job fired me because they said i didn't look like i got enough sleep to complete duties at work. and mind you..i fixed their company in 6 weeks, and they had been doing horrible for 5 years. still was fired. i made a company millions and millions and millions of dollars.. and still no one will even give me a chance. i have so much skill and talent, and im going to have to go on disability if nothing changes.. been out of a job for 8 years now... i work for myself because no one will even give me a chance. this woman in the video appears to look very healthy to me.. but maybe its just make up (i've been to the emergency room twice, and they denied me service twice and told me to leave.. which is illegal.)
So sorry you’ve had to go through all this. Chronic nausea is basically the story of my life and it’s extremely isolating. You feel like you’re missing out when you’re not around and a burden when you are for always feeling “sick” and not being able to do things. But a good perspective about what’s important in life goes a long way 🙃 And faith in ☝🏻
Crohns can be very isolating and annoying because you make plans when you feel well and then the day comes and you have to cancel because you're just too sick
My daughter was diagnosed with crohns at age 12. She’s now 20 and thankfully has been doing well and is in remission. I would love it if you could do an update video on how you’re doing.
I'm 14 and I have been going through this as well, I have been hospitalized several times and bleeding is another major symptom for me. It is very difficult to live with but thank you for sharing your story, I hope to one day be in remission and finally start living normally again.
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover.....
My warnest sympathies and empathy, Sister! I'm about 30 years deep since being diagnosisrd. It's a relentless and absolutely brutal condition.. Keep on warrior-ing on and inspiring others.
This is the result of what we go through as individuals with health conditions. Thank you for coming out with your story. I will keep coming with my story and I pray others can come forth with the same situations
6:39 your making me cry too like I also have crohn's disease and yes I do feel really left out when i'm with my friends and that's what hurts the most. it also cause me to be depressed and I got social anxiety cause I felt like an outcast wherever I went like nobody actually knows the struggle...shame on people who disliked the video
Hey fellow Chronie! I'm so sorry you had to go through all that! I'm 22 and I was diagnosed with Crohn's when I was 19. I was actually happy to finally have a diagnosis after not knowing what was wrong with me for so long! My symptoms were mostly a lot of pain in my abdomen, my lower back, my knees, nausea, and (a little TMI. Hehe ) diarrhea, among other things. Pain just kind of became the norm for me. My doctor put me on prednisone, which just about ruined my life with side effects.(depression, no energy, chipmunk cheeks....all that fun stuff. hehe) and then Imuran which destroyed my appetite and I dropped about 20lbs in just a few weeks. So I had to get off of that. Now I take Humira. My grandma is a retired nurse and she insists on giving me my injections.😊 Though it's not in remission yet, I've started to feel better! And as cliche as it sounds, what doesn't kill you makes you stronger! I've learned so many life lessons from my Crohn's! God has helped me see the positives in such a negative situation. I believe there's a purpose to my Crohn's. I've been able to encourage people going through similar struggles and I'm very grateful for that! To anyone going through something like this. Hang in there! It really does get better. The sky is always more beautiful after a storm. Take care!
My doctor thinks I have crohn’s syndrome (he is almost sure) in 5 days we will know! I was shocked, cause I have no idea what it means and it seemed like something that limits everything in your life.. every comment I read is so negative and yours just gave me some courage over this... thank you
Lace & Lashes Turmeric is anti inflammatory and is good for the body overall. So adding half a teaspoon of turmeric in celery juice would greatly benefit the body overall and help with the inflammation.
Amen!! Thank you for the encouragement. Sometimes you feel all alone going through this, that it can be depressing. But GOD. He has and will bring me through. Blessings to you!!
What a beautiful attitude you have. Faith does get you through. You will be rewarded in heaven for all your struggles. My daughter has Crohns and is on a double does of Humira. She is nauseous everyday throws up a lot and gets mouth sores that are so painful she cries when she drinks water.
I know how you feel. I was diagnosed last summer. I have the worst stomach pains. I currently do Remicade infusions every 6 weeks. I countinue to pray for everyone else who struggles❤️
Yeah Crohns really does suck, what are your symptoms? Mine as of now has only stunted my growth because the ulcers in my small intestine don’t allow for easy absorbstion and so I have poor weight gain and growth in height, I’m only 14 so I’m still in the growing phase in puberty, and have you tried the 8 allergen elimination diet? I am on that right now where I can’t eat soy, gluten, reduced sugars, egg, dairy, peanuts, tree nuts, and shellfish l, although that is a more common treatment for my other auto immune disease, EoE (Esoinpillic Esophagitis) which is basically just inflammation in your throat. And I have traces of skin cancer. Wow, it surprises me how many of you guys use medicine to treat it, I tried medicine and earned my self a week long drug rash for two different medicines (omeprazole and lansoprazole) and have yet to try the infusions, I have been to countless surgeries and procedures it’s not even funny - I’m assuming you have too. Sorry all you guys have to deal with the same things i am dealing with, I though the number of people with auto immune would have been way lower.
@@chasecook6994 I have stomach pains and fatigue. It has stunted my weight so much! I'm 13 and only weigh 82lbs. I'm pretty skinny, as literally every single day I get rude remarks as, "do you even eat?","I could break you in half!" or "stick". So yeah, it does suck.😂
chrons is cured by natural herbs. turmeric + black pepper, olive leaf extract (25 percent oleuroprin is required).. oregano oil, ionic collioidial silver.
I was diagnosed 3 years ago and never thought to look for someone else’s story. I was crying within 5 minutes because I’ve never known someone who understands. It’s also so nice to see another girl with Chrohns, I’ve always been embarrassed by it, but seeing you talk about it openly is so nice. This really helped me. Thank you for sharing.
I'm 16 and developped Crohn's disease at the age of 14! It is in my small intestin too! I'm a french speaker normaly so sorry for my bad english! It took more than a year and a half to find out I have Crohn cause I didn't have the common symptoms ! Our story and symptoms are so the same and I now feel way less lonely since I watched your video a week ago! Thank you❤
Reach out to Dr folonsho, he can help you too, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease, he can help you too.
Some doctors say Crohn Disease is caused by LEAKY GUT and leaky gut is curable, but doctors said you MUST change your diet. Do NOT eat FOOD CHEMICALS ! Please try Visbiome (Medical Food/powder, probiotic) ! 1 packet Visbiome= 450 billion good bacteria I know someone who was diagnosed with Crohn Disease a few years ago. She was in remission for the last two years, but after using IV medicine, she had recurrent infection (side effect) and had to take antibiotics. After using antibiotics 4~5 times in a short period of time, she had inflammation again. Her doctor said Visbiome will not help anything, but she took the medical food anyway (5 packets of Visbiome per day). Within two months, her blood test and fecal exam came out NORMAL (This means she DOESN'T have inflammation anymore). Probiotics die when they come in contact with stomach acid, so you must take it with EMPTY STOMACH (ex) right after you wake up in the morning). I think capsules have some food chemicals in it, so take POWDER PROBIOTIC. Even if there are a lot of good bacteria in the intestines, if there is no food (for good bacteria), they will starve to death. Salmon, garlic, onion, sweet potato, kale, cabbage, broccoli, banana, apple(with peel), plant root (plant root inulin feeds good bacteria All THE WAY TO RECTUM)...etc. I pray for your good health ! Jesus Loves You !
I have Crohn's disease also. I was diagnosed in third grade and went on the FOD Map diet. But that didn't work, so in fourth grade I went on SCD (specific carbohydrate diet) and I have been on it for almost three years now! It helped me a lot and I'm even in remission. It's so nice to hear other people's stories! Definitely lets you know that your not alone!❤️
Good health keeping in remission and finding your answer to relief from Crohns. Definitely great to see the better side of living with Crohn's and how positivity can encourage people in our community.
I'm certainly not in your age bracket I'm 71 and I have had Crohn's disease since I was 14 years old . I have had numerous visits to the hospital and 3 resections over the years . I still suffer but diet is the key. I have always stayed positive and faith plays a big part . Many times I never thought I would see this age and be able to watch all you girls on TH-cam . I love that you keep busy .I still work 2 days a week because it is good to get your mind on other things. I have my own business Electrolysis for 37 years and it has been a life saver. I love the beauty industry . Thank you for sharing your story and to all you young girls who have been diagnosed with this disease. You can still have a life , marriage, and children . My husband is the best . Prayers to you all!
New sub. I have Crohn's. Diagnosed at 18 during my first semester at University. Two years later I had surgery and they removed 8 feet of intestine. Best thing that ever happened, I've been in remission ever since for years. Never been on any of those awful drugs thank God 🙏 I do have fatigue, bathroom issues and nutrition problems because of the surgery. I try and keep my immune system strong and eat anti inflammatory foods. Hope you are well and feeling good!! One day at a time. 💗
I was diagnosed with Chronic Rheumatoid Arthritis when I was 23 and it’s hard, painful and very depressing but I have also learnt to appreciate the moment I have today. I’ve felt angry at life and then felt appreciative at the good moments . I’ve prayed to God and I’ve expressed my anger and pain to Him. And I’ve come to be more understanding of things that I once wasn’t. I’ve become more compassionate to others pain and suffering. I’ve also encountered people that don’t understand and are not compassionate and it’s made me compassionate toward them because they don’t know better. They’re ignorant to anything other than their world. I pray for them and I pray for everyone that has chronic diseases and chronic pain. May God help us heal and ease the pain. And may one day all be okay in his Kingdom.
There is a high possibility that you have inflammation in your gut (IBD) and it's causing inflammation in your joints. I also was diagnosed with RA when I was younger but once I focused on healing my gut by diet it improved my health. I feel much better! I hope this information will help you. Stay strong!
I’ve just been diagnosed. I’m 15. This video really helped me. It’s been rlly hard on me especially trying to keep up with school, while being at home. This gave me a coverage that I needed. Thank you.❤️❤️❤️
Im 20 and I was diagnosed 4 years ago when I was 16! It's so nice to hear a similar story and hear about someone who understands what I'm going through. Therapeutic almost. Thank you! For educating others aswell. I've been on humira for 3 years now and it's been good, but lately I've been having alot of flare ups and infections which is common with immunosuppressents
Aly B I’m on humira right now, i have been for like 3 months now and it’s not working at all. My stomach hurts so much all the time literally right now.
I've been living with Crohn’s for about 12 years now and I've just shared my story on TH-cam. It really does get tough sometimes but it's what makes us so strong at the same time
It's great to see the better side of living with Crohn's and how positivity can encourage people in our community. Good health keeping in remission and finding your answer to relief.
I’m going through all of this right now. It’s so tough, but I wake up happy everyday with a greater appreciation for life. I’ve slowed down and enjoy every moment in nature and time spent with friends and family.
You are truly an inspiration. I was officially diagnosed with Chrons in March of 2017 just 6 months after giving birth to my daughter and I have been battling with acceptance ever since. I just had a horrible flare of symptoms a few weeks ago and was barley able to pick up my daughter and it nearly broke my spirit. Your story has reassured me that no one is alone and that so many others experience similar things and we can get through it if we find our inner strength. Thank you for sharing your journey 💕
Thank you for letting me understand Crohn’s so much better. I’ve trying to date someone with Crohn’s for a few months but he’s rarely available. He’s either in great pain, in the ER, going into surgery or recovering from it.
Reach out to Dr folonsho, he can help your friend too, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease
Hi. Thank you for trying to understand what your date is going through. Please also be careful with people telling you about herbal doctors and acupuncture and other such pseudosciences. Keep an open mind and if those things OBJECTIVELY help a person, and the effects can be objectively measured, then by all means, but don’t start running to herbal doctors and voodoo priestesses and chiropractors in desperate hopes of finding a cure. There is no cure for Crohn’s, regardless of what the traditional Chinese “doctor” claims.
@@Tuxedo_Cake since you don't believe in herbal doctor, don't you think its only right, if you leave the patient to choose his/her faith, why telling them not to seek what will work for them, do you know what a patient of this disease goes through on a daily basis, if he finds help in herbal remedies. Then I suggest you let them be, stop criticism, because you don't know how it feels to have these symptoms
@@harleyadam8787 I also have Crohn’s disease. Also, I didn’t tell them not to seek help from alternatives, I clearly said to keep an open mind and to use those alternatives if it provides an OBJECTIVE benefit.
Hugs to you sweetheart. I don't have Crohn's but do have digestive issues since 2014. I was feeling nauseous and lethargic I had to leave work and go to ER. I had inflammation of the colon. I didn't know what to eat except the BRAT diet for a while. I had a couple colonoscopy's and everything seemed to be normal. You know your body and you know when something is just not right. I am no way having the symptoms you have experienced, but can relate with your pain. I think our diet is probably the most important thing we can do for ourselves whether we have a disease or not. Prayers my heart goes out to you and wish you health and a bright future.
These doctors won’t diagnose you for any reasons. My doctor said it was only acid reflex. He gave me medication and said I’ll be fine when I done with the medication. Yeah right. My chromes started early August but I had no idea it was the worst 2 months of my life. I honestly Could not work or sleep nor eat. Not knowing what it was I was in and out of the hospital these doctors are so full of it. Your story is a long one but also very inspirational ido how you managed it kudos to you
I am going through the same thing I have acid reflux so bad it’s cause inflammation from my esophaguses all the way to the duodenum which is where they stopped looking so who knows how far it actually goes but I was put on a shit ton of meds and told to wait. It’s been over a month with little to no improvement and I’ve lost around 10 pounds because I’m too nauseous to eat
I can’t believe everything you’ve been thru and I’m so happy you finally got some relief and healing and can eat again. Thank you so much for sharing. I’ve been watching your videos for about 6 months and never would have thought you would go thru such a health crisis. I wish you good health in 2022 Carin ❤️. I love watching your videos and look forward to many more.
Thank you for your honesty. I've had Crohn's since I was 11yo. 3 Bowel resections. I realize this is over a year since you made this video, but given your surgery and your comment about fatigue, please consider checking your Ferritin level and your B12 level. The small intestine at the end is responsible for absorption of these nutrients and iron. I have Iron infusions about 3x per year because I don't absorb it through diet. I also get B12 injections at home monthly.
I got diagnosed when I was 15 and I'm now 19, bleeding etc has been a huge problem and I think (through no fault of their own) a lot of people are uneducated about these things. It's so refreshing to hear someone else going through this share their story and so I take my hat off to you! Hang in there x
I have celiac disease... I understand how you feel like a burden to everyone. There was a year I would be passing out on the couch with severe stomach pain after every meal. Throwing up, brain fog, weight loss...But many things can be handled and life gets better. Best wishes to you girl.
I’ve had crohns for 35 yrs , 2 resections , no meds except changes to my diet and medical marijuana ... still working full time , but symptoms are getting worse . early retirement is imminent ...wishing everyone the best !
Wow. Your story and mine are nearly identical, I couldn't help but just nod my head in agreement with everything you were saying. I was diagnosed with crohns after both an appendectomy and bowel resection surgeries, and that all happened at the beginning of this year. So this is still a fairly new battle for me, and it's certainly very difficult, but it's inspiring to hear stories like yours, and it makes me realize that I'm not alone in this. Thank you for sharing!
My husband has Crohn's Disease and diet - watching what you eat - is everything. He doesn't even have to take any medications for it anymore and rarely has any flare ups. I am so glad that you had the surgery when you did. (My mom had that surgery and died from it) I hope you will continue to feel much better and you too can be on a life of remission.
My heart goes out to you. I hope you are doing much better now. I started Stelara in August and it changed my life for the better. I had a botched gallbladder surgery and it created adhesions and then I got Crohn's which created strictures. I'm still not comfortable eating fiber. I keep on cycling 8 weeks of EEN to try to help everything, which really helps a lot.
Thank you so much for sharing your experience concerning this disease. These flare ups are miserable. The information you share here is extremely helpful for us that suffer from this affliction. You’re very brave, beautiful and strong. Thanks again
Thank you for sharing your journey with this terrible disease. You have been through hell multiple times. You are one tough person. I admire your strength.
I have chron disease for 19 years since l was 33 years old, and yes it has been a nightmare many times, l don't have the surgery and hopefully l won't never need it, l'm taking probiotics and seeing like they are helping me, but of course l taking my medication too.
I have Crohns it has changed my life,Ive gone from a confident person to a shell ,I hate myself . It has made my life a misery ,I am in debt because ive lost my job,I feel ill pretty much everyday
You are such a beautiful person inside and out. I know this wasn't easy for you, but this just shows how strong and courageous you are. Thank you for sharing and being a light for others. Love you!
I always wondered why you were so thin! My husband just underwent a right hemicolectomy. He had been misdiagnosed with gluten intolerance when the surgeon said it was crohns. He was always bloated and looked 9 months pregnant. Hopefully this surgery will help him feel better.
Thank you for being so open. My journey has been very similar. It brought back so many memories from that time in my life with no diagnosis and out of control symptoms ( I had the bathroom issue so bad I refused to leave the house except for work). I also had my appendix rupture. I literally cried when you did. It was an awful time. I’ve been really lucky that I’ve be controlled with Asacol (now Lialda) and periodic prednisone for about 15 years. Praying for a healthy future for you! 🙏🏻
I was diagnosed at 11, I’m 19 now and I’ll be 20 in 3 months. It has BEEN A JOURNEY! I’ve been on many pills until in 2016 I was introduced to HUMIRA. It worked wonders until my body built up antibodies against it. I’m on Stelara now, I got the infusion on Wednesday of this week. I’ve only experienced two side effects from it, headaches and extreme tiredness. I know for sure I’ll go into remission with my new diet and a lot of prayer! Thank you for sharing your journey it really does help others living with the illness.
@@LiveLoveLaugh22 hello, at that time it was a low fiber diet consisting of natural foods. I had no sugars or processed food. I felt better and my skin was at its best at that time. Currently though, I am in remission so I’m a bit more relaxed in terms of diet. I limit spicy foods, fiber, various sugars, oils and some hard meat. I’ve been exercising regularly and drinking protein as well.
@@celebiglives9842 Great news to hear you are in remission. Does that mean you are no longer taking meds for Crohn’s? May God continue to watch over you.🙏🏼Thx for the reply.
You are so strong. I was just diagnosed with crohns, but the inflammation is in my colon. It’s been really hard. But thank you for sharing your story, it’s actually really inspiring
Caroline Drum Caroline I’m so sorry to hear you’ve been struggling with it. Please hang in there and hope you can find a solution that works for you soon❤️
I have been fighting severe refractory Crohn’s Disease and a whole bunch of other autoimmune disease. Been fighting this since age 9, I am 46 now. Crohn’s is a systematic degenerative spectrum disease. My CD is genetic because my great grandfather, grandfather, a cousin and my own brother has it. I was stable on 6-MP for over a decade but the disease was always low grade. My body stopped absorbing it so diseases silently damaged scare tissue so bad until it really snapped and now pernament colostomy. I have had 15 surgeries, mediport and permanant disability due to neurological complications related to CD. Hugs to all the Crohnie warriors out there.
I am just so sorry for your battle. A few people in my family have crohn's. I just never realized what they must be going through. I am wishing you much love, happiness and health. You are such a beautiful gal. It just goes to show that you never know what people are dealing with in their lives. So we all need to just be kind to everyone because you don't know their struggles. Thank you for sharing.
I have Crohn’s disease too and was diagnosed as a freshman in high-school! I understand feeling left out because one of my biggest symptoms is being non stop exhausted, so I don’t have the energy to do what a lot of people my age do. I hope you are in remission❤️ I am working on getting in remission myself..it’s been a long road and I’m on my 4th biologic, but I think I’m finally getting there 😊
Wow, I had no idea how debilitating crohns disease could be. I’m sorry you are having to go through this. You truly are a strong determined young lady-I have tons of respect for you. 😊
Great video, I was on prednisone for months (same dosage) it didn't help me at all. Prednisone is the devil's tic tac. Just keep on keeping on you've got this!
Carin, I have followed you for many years but I have just now watched this video of yours! And let me just say how nice it is for all of us to see your personal journey! Everyone of us has our own suffer in life and I'm so sorry that you have this disease! I am so glad that you shared your experience with us! It really allows us to get to know you more behind all that glam influencer fashion content, that you're not just any pretty girls on the street! You are so strong and such a warrior in life!! It makes me want to give you a hug and support you more!!! Please keep making videos and thank you for doing what you do!
I’m so sorry you’ve been through such a terrible ordeal. If it helps...you are not alone. I have 2 autoimmune diseases. Rheumatoid Arthritis at age 6 and Crohns at age 33. This brought back so many memories for me regarding the misdiagnoses and severe abdominal pain with no explanation for over a year. I’ve been through the hospitalizations, prednisone, surgeries, pic lines (so scary) Humira, Enbrel & Immuran. If it’s any comfort to you..I was still able to have 3 healthy beautiful children & an amazingly patient loving husband through all of it and you will too if it’s what you want. Our positive minds and our faith in God are powerful tools to overcome these never ending health issues. 🙏Praying for your continued strength & well-being. Hang in there.
You are such a strong woman and it takes a lot of courage for someone to talk about such personal topic. I watched the entire video and prolly shed some tears in between. You're such an inspiration to those who may be suffering the same kind or any kind of disease. I had stomach issues before and would still experienced them once in awhile. I've only been a subscriber for a couple days and so far loving you so much. 💕 I hope all is well with you. 😘
Hey, I too have Crohn's disease since 2013 and I know the struggles that you mentioned. During 2013 and 2014 I missed out on so many things during that time. Your very brave to say what your going through on camera it's certainly not what I couldn't do. You are showing people that they are not the only ones going through it and showing people ways around the issue. Hope your well thanks for sharing
Carin, I can't even imagine how hard this is for you. Thank you for sharing this so openly. I do not have this disease, but I do struggle with mental health, and being sick in a hospital is the worst thing. Hearing things like this is so inspiring!
This brought tears to my eyes. My daughter was diagnosed at 11. Like you she struggled for many years. She has had success on Entivio. I hope you are feeling better. Best wishes to you
I just recently been diagnosed. The inflammation is not bad. I refuse to take any medication because it’s only going to make it worse. But I’m not eating meat anymore. Plant based diet sometimes seafood. Food is medicine remember that🔑!
Reach out to Dr folonsho, he can help you too, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease, he can help you too.
I have crohns diseases too. Im thirteen and i was diagnosed in February 2018. I had to go on tube feeds for 2 months and that was horrible than i took methotrexate, that didn’t work, and now I’ve been on humira for about 3 months , i get injections every week and it hasn’t done anything in fact i think I’m getting worse. I have stomach pains everyday but weirdly every other Wednesday i have extreme pain and nausea. I really want to be fixed soon i might have to get surgery nothing is working.
dont do the surgery you will be much worse off. look into natural herbs. it works. olive leaf extract (25 percent oleuroprin has to be in it!)..oregano oil, ionic colloidial silver, turmeric.. look into HERBS. they are cheap and affordable and it works. i turned my chrons around with all of these things. no surgery. yes it takes a while for the herbs to really cure you. yes, you will feel really bad for a while, while toxins are dying off in your body.. but that is the healing process beginning. i just went from never being able to eat.. to eating everything i want, every day. its a good feeling. herbs got me there. herbs = affordable, no side effects other than hermeixer's reaction... and you can spread the knowledge to others. apple cider vinegar (with the mother).. eat coconut oil.. drink green tea, drink maca tea. NATURAL STUFF WORKS
I am so sorry for what your struggling with. I know that this disease can be very hard. I read this book called the Maker’s Diet and it is about a man who had Crohns disease and his intense struggle with it. He ended up doing diet changes and that has helped him a lot. I know everyone is different, some things work for others and some don’t, but I just wanted share this with you just incase you haven’t read this book yet :)
Thank you for sharing this. I ove these videos as somebody who's been fighting through Crohn's disease for two years now undiagnosed an untreated until just a month ago. It has completely altered my life and I feel like I'm a prisoner to it. I have ADHD and I do concrete for a living and have a very active lifestyle that it's deeply impacted. And being I was on diagnosed for a couple years and fighting through it like an idiot of a man would my employer and family were unapologetically not understanding of what was going on and whenever I would be having extreme flare ups and was unable to go to work had to cancel events with my family everybody would say " what year was not going to come in because you have a tummy ache are you serious" and as somebody who has always prided myself on being tough and a fighter. Knowing what was going on with my body was irregular and the times I would have to take off where 100% legitimate. Not at this support or compassion and empathy of those around me caused me to go through some crippling depression at times and I've always been a happy-go-lucky very energetic person. I'm being I waited so long to get treated and formally diagnosed it's progressed to a dangerous point where my entire small bowel system is inflamed and infected on top of like large intestines also being inflamed just not as painful as the small intestines for obvious reasons. My doctors have been fighting tooth-and-nail to get me on Humira which is known for getting really good results and they're concerned if I don't get on one of the higher tier meds quickly I'll have to have surgery but insurance of course has resisted the doctor's recommendations and they have me on the budesonide as well as the anti-inflammatory you listed along with anti nausea sublingual straps. But none of it seems to be giving me relief. And I'm concerned I'm not able to find some serious relief quickly to be able to get back to work and some idea of a normal life that I will lose my benefits through my employer since you have to meet a certain amount of hours every quarter. So it's like fighting somebody with a double-edged sword while I'm using my White Knuckles. So to say the least it has been an incredible challenge and it's hard to not feel like a prisoner to it or let it Define me on a daily basis. So I'm really grateful for people like you who post this stuff. Because it gives guys like me strength, hope and courage. To face the future with a smile and trust that everything will fall into place eventually. Just can't tell you how much it means to people like me just to know we're not alone in this war. And their are lots of people who have compassion for the condition. And to not let those naysayers who would say "oh your just faking being sick" get us down. I'm not faking being sick ever but I sure as hell fake being well on a daily basis. You just can't tell cause I cause at the pain while clinching a smile. Thank you for the post sincerely 🙏 Hope your condition has more than improved. God bless
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif. com/ order-online -today
You are an incredibly strong and beautiful young woman! Thank you for sharing this story, your story. My son just diagnosed with Crohns at age 30. Can you recommend what support groups there might be for him. He does not do facebook ir Instagram... He does go on Discord and gaming sites. I just want to say you are not only gorgeous on the outside but inside too . He has always been a healthy active person, and it is breaking my heart that this is happening. You have given me hope!
I’m soooo sorry about all that you’ve been through! I just love your channel and never would’ve guessed that you were struggling with all of this! I pray that you and your doctors will be able to figure out what steps are needed to bring about maximum health for you! Thank you for sharing this! I think there are so many misconceptions about the severity of auto-immune diseases. I’m sure this has helped educate and encouraged more compassion for those suffering! Many prayers for you on your path to health!🙏
Oh sweetie so sorry for all you’ve been thru😢 but God has a purpose for everything....by sharing your story you are surely helping others that are going thru something similar. Surely this has made you stronger and now like you say ......you will enjoy life and the things it brings day by day! May God bless you with health and happiness sweet girl!💕😘🙏🏼
I am twelve years old and I have Crohn’s disease as well. I’ve had stomach problems since I was born and would be crying for hours about my stomach. I loved watching this video because I know I’m not alone! I’ve never met somebody with Crohn’s but I would love to! Thanks for sharing this!
I am so sorry for this journey you have been on ! I have. Rare auto immune disease as well and I pray you stay in remission! Better days are ahead for you and you are so beautiful inside and out I know you will meet someone special who will stay by your side! Xoxo
Oh my gosh!! The doctor that did the appendix surgery should be sued! I'm serious!! He left that infection in you!! Maybe even the other doctors too!! Sounds like your doctors used you as a guinea pig!! You poor young woman!! You have unbelievable strength!! God Bless you, Sweetie!
You have been through so much and I’m so sorry. I love your outlook on life! Thank you for the reminder that each day is a special gift and to live in the moment. You will definitely be in my prayers💕
Thank u for doing this video. I always thought I was kinda alone of having Crohn’s disease but now I know so many is going through the same thing I have been going through for 8 or 9 years
God this helped so much I was just diagnosed with Crohn’s disease and rheumatoid arthritis at 22 this month! So thank you this really helped me not feel so alone I’d been sick for 3 1/2 years and I finally have an answer!
I was diagnosed at 12 and my only symptom was diarrhea that I didn’t think much of. My pain didn’t start to later and it can really hurt. Your brave to share your story.
I am 17years old and I have crohn for a year but we didn't know because I didn't have any symptom and at April this year I had an abscess and i wasn't diagnose right so I took the wrong medication and I was in awful pain about 2 weeks and I couldn't sleep or sit literally it was the worst thing ever. So I diagnosed about 2 months ago and I take a medication(cant remember the name) once a month and I don't feel anything changing.Also I don't have any problem with the food I'm eating everything. I hope it stays that way!keep it strong people there is a reason for everything
You are very brave person and an encouragement to me. I have been recently diagnosed with Crohn's so you have helped me opening up and telling your health story. I am so thankful you are feeling better.
Thank you so much for putting this video out. I’m 16 and I was just diagnosed with Crohn’s July 27. As you were listing your symptoms I began to tear up because of how I related. I’ve barely even began my journey but I’m trying to use my knowledge of this illness to educate others. This video allowed me to see that I should really continue to do that. Thank you so much.
Thank you for telling me about your Story. My son got recently Diagnosed last week. He will go to a G.I. Dr this friday and it is new to him. He seemed to have it for awhile. so I am glad that you and others can tell me about what it is
You're very brave for sharing your journey! I can relate so much. I became ill with Crohn's (in my ileum as well) 11 years ago at the age of 9. Through living with a chronic illness, I've definitely learned to be grateful for every good day I have. Thanks for providing me with some comfort through hearing your story!
I had a bowel resection in 2012 and they had to cut me lengthwise on my stomach. Recovery was brutal. I had longer leave after having my kids naturally then I had with this surgery. Thankfully I have not needed another surgery and they have me on Xeljanz which my RA Dr had to prescribe with the prompting from my GI Dr. Any autoimmune disease sucks because you can’t have just 1. I was lucky enough to retire with a pension and because of my severity I was able to get on social security disability. I may “look” healthy to Joe blow but my body is in turmoil. Thank God I’m having more good days then not but it will never go away and that’s the kicker. I hope you’re on your way to feeling good every day 🤗
Thank you so much for sharing your journey! Thank goodness you are okay! Its so heartbreaking to listen to your journey but its also so inspiring because you are so strong and your story could help someone else! You are such an amazing human Carin! Thank you!! Wish you all the best!!
I've always sort of had stomach issues, though it's only now (near my 20th birthday) that my doctor is trying to figure out why. My current doctor is suspecting Chron's Disease, among other things (I also have hEDS). I don't think my symptoms are typical of Chron's, but the consistencies are cramping, bloating, and like two other symptoms that I'm not too keen on sharing (nothing involving blood). I also get constipated (which isn't a thing with Chron's apparently but that's why my doctor wants to rule out, though I don't know what else she has in mind). Nausea is also a big deal for me. Working when my stomach is acting up is becoming harder because the pain seems to be worsening, but I still power through til I can go crash in my bed. My weight is fluctuating - and the list of things I'm able to eat without triggering the pain is narrowing. I'm scared, honestly.
Oh dear God, Carin. I had no idea, I am so sorry you went through this. You almost died there a few times. My mouth just dropped as you were telling your story. It seems so hard to believe because I have really enjoy your videos and love your style and have actually purchased many of the items you have recommended. You look so well right now in May 2020. This old 2018 video just popped up on my screen and I thought I would watch it. But honestly, I am so sorry this happened to you. Hope you are better now and have put many of these issues behind you. Sending you all my love, hugs and prayers. Be well, and take care.
I have been diagnosed with a mild to moderate case of Crohns and have gad this a few years. This began in high school in my sophomore year (11 grand). It is in my small intestine and down to the caecum. my symptoms are fatigue (from all those 24/7 bathroom visits, some so urgent I have sustained some embarrassing accidents, bad intestinal pain and cramps )not to mention that thunderstorm that has raged for these few years. Some gas and bloating, but mostly this never-ending diarrhoea. I am a young male as I found out that the majority of cases are of women. I have enorm laundry bills and have to periodically buy new clothing and bed linen, as have had accidents due to the urgency and not being able to gain access to a loo quick enough. So I know from experience, and it is NO fun! I am taking something like Entylio (spellingè) and so far not had to be sent to surgery. My anus has been sore as if a thousand men had penetrated it (yes, I am also LGBTQ) as this constant never ceasing diarrhoea flow just keep coming out of me! Oops, ironically I can't even type a response as now I have that urge for that white porcelain throne, bye! Gotta go!
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Who ever did a thumbs down on this should be ashamed of themselves. I have Crohn's disease myself. It is a life struggle for this chronic illness. Everything is different for us. Our diets are way out of balance.
So sorry to hear you are battling crohn's as well. Take care...
Lace & Lashes i will
Yeah, Crohns sucks, I have it as well as another auto immune disease, EoE ( Esoinpillic Esophagitis ), I don’t know about you guys but my Crohns makes me not able to absorb foods well enough and my EoE makes it hard to swallow food, I have been to countless procedures and surgeries it’s not even funny, and I am only 14, super under weight and under height, and I also have traces of skin cancer
Oh and another thing I forgot to add is that I got a drug rash from the meds that helped ease and get rid of inflamed areas in my esophagus and small intestine, and a drug rash is basically where you get red itchy dots all over your body, an extremely chapped lip, and the chance of anaphylaxis. So now I’m on an elimination diet and to see if cutting out potential allergens helps. Although I’m only 14, I was fortunate to have found the diseases early on and only having somewhat mild symptoms, like with Crohns it hasn’t affected me much physical pain wise, but my body is 3 inches under average height, and about 40-50 pounds under weight because of Crohns and I found EoE by learning the hard way with my esophagus getting clogged by food for an entire day. I don’t get those terrible intestinal pains as of now but I do have a hand full of small ulcers in my small intestine. Sorry you guys have to deal with the same things.
Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Endocannabonoid system research it. Cannabis oil cures cancers and auto immune Dis-ease
I totally get it. I was diagnosed at age 20 with Crohn’s, I’m now 50. Over the past 30 years, I’ve had 37 brutal surgeries, nearly died 3 times, they found cancer growing on the outside of my colon aka large bowel, which ruptured when I was 21, killing me for 2 minutes (amazing near death experience). In total?...
* 37 surgeries
*3 relapses of intestinal cancer
*spent over half of the past 30 years hospitalized
*have had 5 different ileostomies, a J pouch (aka pelvic pouch) and 2 different K pouches, all of which failed, waiting for my next K pouch surgery
*left with less then 5% of my entire GI tract
*my weight yoyo’d from 200lbs to 137, to 240lbs, etc...now stabilizing at 150lbs, but for a 6’ tall guy, I’m a walking skeleton and can’t gain weight and loose 4-5 litres of fluid each day (my output is now pure brown water).
* developed 11 other chronic diseases that are direct side effects from the treatments for the Crohn’s and cancer
*was forced to stop working 4 years ago and go on permanent long term disability.
* can’t eat anything, except rice, potatoes, meat, fish, and strangely, it’s dairy (most Crohn’s patients can’t tolerate dairy)
* spent months each year surviving on TPN aka, IV nutrition, because I couldn’t eat anything.
Those are a few of the issue Crohn’s has caused. It’s turned my life upside down, left me flat broke, and sick for the rest of my life. If you’re healthy, you don’t know how lucky you truly are! I’d give anything to get back all that I’ve lost over the past 30 years. Thanks for posting this, so we can dispel the stereotype that it’s just an upset stomach. I’ve been accused so many times of faking being sick because I looked “normal” (I HATE that!!). It’s an invisible disability, but a disability none the less.
Invisible illnesses are the worst. People try to label you as a baby, or lazy or “you don’t look sick” etc etc. Then they try to give advices on an illness they know nothing about. It’s better to not tell people sometimes. Because, most of them don’t care. I’m sorry that you’re going through this illness for the past 30 years of your life, I don’t know what it’s like. But I understand and hear you. You’re heard! ❤️ Take one day at a time and sending you my warmest thoughts and praying for you.
I wish I could give you a hug ❤ I'm in the process of figuring out if I could possibly have Crohns or another Autoimmune disease. I'm sending my prayers from Ohio, USA ❤🙏
You poor man. God bless you. My daughter has it since 15 now 22 . She had an abscess which led to 3 rental surgeries resulting in them cutting into her sphincter muscle. It’s been hell. She is now on double dose of Humira and it’s not working. I started her on cannabis pills which help her a lot. Please look into that.
@@analogkidabc thanks my friend, same to you!
I’ll be praying for your healing 🙏🏼
It sucks. I have had crohns since I was 11. U THINK YOUR A NORMAL KID AND THEN ONE DAY U WAKE UP SICK AND NEVER GET BETTER
I was 3. I don't even remembere the most of it thank god because what my mom tels me what happend to me sounds not fun ☹
I was diagnosed at 17 and I can't even remember what a normal life was like
This comment made me sad lmao I am in the process of getting diagnosed and I'm 17...
How are you today? I hope you are doing better. My child is going through the same thing. May God be by your side🙏🏼
@@LiveLoveLaugh22 How is your child and how old is he/she?
I’ve Crohn’s Disease since I was 5 years old and I have a foot of my colon and small intestine removed when I was 13 and missed two years of school. I feel your pain, keep on fighting and stay strong!
Omg you poor thing. I have had Crohn's since I was 20.
That must of been very difficult to go through. I myself have had 2 surgeries because of strictures due to Crohn's
Chronos runs in my family and we ate now wondering if my 6 year old daughters has it. Can you tell me what your first symptoms were like as a child? Thank you. I hope you are doing well!
Chronos runs in my family and we now think my 6 year old daughter has it. Thank you for sharing your story. If anyone whom has a child with cgronscsees this can you please tell me what the first symptoms usually are? Thank you. I hope you are all doing well.
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover.....
I would love for you to do a updated video on how things are going now and any new information that you could share, would be so truly helpful to others dealing with this horrible disease.
Thank you for sharing. I have been diagnosed 3 years ago. I walked Around with alot of pain for years Because no one took me serious. It was so bad that the inflammation almost had made holes in my intestines. So in other words i could have been dead if i walked Around with it a little longer.
You inspire me to share my story on youtube someday. To make it more easy for people to talk about it.
Thank you!
Lynn94 94 I cant imagine how hard it must have been being undiagnosed for years :/ Hoping you can find relief and something that works for you soon! Hang in there!
Lynn94 94 I was diagnosed when I was nine in 13 now
Lynn94 94 omg same Ive been having symptoms since 2016 and they finally diagnosed me last month August 2018 when I had to get surgery to remove my appendix and a foot of my small intestines because I had a huge whole and a lot of infection. People didn’t take me serious at all and thought I was overreacting and all Drs used to tell me is I have really bad acid reflux. So yeah it’s hard walking around for so long and not do anything about it.
@@stephaniedavis8008 get well!
shit. i got it like 10 years ago.. my entire family turned their back on me and told me i was a drug addict. rumors spread. i lost all my friends that i've known since a kid, they all turned their backs on me. out of all my friends and family.. i only have 1 friend who stood by me.. out of all my close friends. my own family pretty much left me to die, and i pretty much almost did while homeless. i ended up being homeless for 2 years. i can't even find a career because interviewers look at me like an addict. my last job fired me because they said i didn't look like i got enough sleep to complete duties at work. and mind you..i fixed their company in 6 weeks, and they had been doing horrible for 5 years. still was fired. i made a company millions and millions and millions of dollars.. and still no one will even give me a chance. i have so much skill and talent, and im going to have to go on disability if nothing changes.. been out of a job for 8 years now... i work for myself because no one will even give me a chance. this woman in the video appears to look very healthy to me.. but maybe its just make up (i've been to the emergency room twice, and they denied me service twice and told me to leave.. which is illegal.)
So sorry you’ve had to go through all this. Chronic nausea is basically the story of my life and it’s extremely isolating. You feel like you’re missing out when you’re not around and a burden when you are for always feeling “sick” and not being able to do things. But a good perspective about what’s important in life goes a long way 🙃 And faith in ☝🏻
Corie Will sorry to hear about your struggle with nausea as well. I can totally relate. Take care 💗
Crohns can be very isolating and annoying because you make plans when you feel well and then the day comes and you have to cancel because you're just too sick
@@TheGrumblingGutdon’t get me started on keeping a job
My daughter was diagnosed with crohns at age 12. She’s now 20 and thankfully has been doing well and is in remission. I would love it if you could do an update video on how you’re doing.
I'm 14 and I have been going through this as well, I have been hospitalized several times and bleeding is another major symptom for me. It is very difficult to live with but thank you for sharing your story, I hope to one day be in remission and finally start living normally again.
Tate Woolsey I’m so sorry to hear you’re not doing well. Hang in there and hope you can find something that works for you soon.
Tate Woolsey I’m in the same vote as you but I’m 13 and was diagnosed when I was 9
Gary Woolsey please look up “high carb health” on TH-cam !
Please stay away from cold cuts, hot dogs and spicy food.
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover.....
My warnest sympathies and empathy, Sister!
I'm about 30 years deep since being diagnosisrd.
It's a relentless and absolutely brutal condition..
Keep on warrior-ing on and inspiring others.
This is the result of what we go through as individuals with health conditions. Thank you for coming out with your story. I will keep coming with my story and I pray others can come forth with the same situations
6:39 your making me cry too like I also have crohn's disease and yes I do feel really left out when i'm with my friends and that's what hurts the most. it also cause me to be depressed and I got social anxiety cause I felt like an outcast wherever I went like nobody actually knows the struggle...shame on people who disliked the video
Hey fellow Chronie!
I'm so sorry you had to go through all that! I'm 22 and I was diagnosed with Crohn's when I was 19. I was actually happy to finally have a diagnosis after not knowing what was wrong with me for so long! My symptoms were mostly a lot of pain in my abdomen, my lower back, my knees, nausea, and (a little TMI. Hehe ) diarrhea, among other things. Pain just kind of became the norm for me.
My doctor put me on prednisone, which just about ruined my life with side effects.(depression, no energy, chipmunk cheeks....all that fun stuff. hehe) and then Imuran which destroyed my appetite and I dropped about 20lbs in just a few weeks. So I had to get off of that. Now I take Humira. My grandma is a retired nurse and she insists on giving me my injections.😊
Though it's not in remission yet, I've started to feel better!
And as cliche as it sounds, what doesn't kill you makes you stronger! I've learned so many life lessons from my Crohn's! God has helped me see the positives in such a negative situation. I believe there's a purpose to my Crohn's. I've been able to encourage people going through similar struggles and I'm very grateful for that!
To anyone going through something like this. Hang in there! It really does get better. The sky is always more beautiful after a storm.
Take care!
I'm so sorry to hear you're struggling as well. I hope you find a solution to ease your symptoms. Take care!
My doctor thinks I have crohn’s syndrome (he is almost sure) in 5 days we will know! I was shocked, cause I have no idea what it means and it seemed like something that limits everything in your life.. every comment I read is so negative and yours just gave me some courage over this... thank you
Lace & Lashes Turmeric is anti inflammatory and is good for the body overall. So adding half a teaspoon of turmeric in celery juice would greatly benefit the body overall and help with the inflammation.
Amen!! Thank you for the encouragement. Sometimes you feel all alone going through this, that it can be depressing. But GOD. He has and will bring me through. Blessings to you!!
What a beautiful attitude you have. Faith does get you through. You will be rewarded in heaven for all your struggles. My daughter has Crohns and is on a double does of Humira. She is nauseous everyday throws up a lot and gets mouth sores that are so painful she cries when she drinks water.
I know how you feel. I was diagnosed last summer. I have the worst stomach pains. I currently do Remicade infusions every 6 weeks. I countinue to pray for everyone else who struggles❤️
Yeah Crohns really does suck, what are your symptoms? Mine as of now has only stunted my growth because the ulcers in my small intestine don’t allow for easy absorbstion and so I have poor weight gain and growth in height, I’m only 14 so I’m still in the growing phase in puberty, and have you tried the 8 allergen elimination diet? I am on that right now where I can’t eat soy, gluten, reduced sugars, egg, dairy, peanuts, tree nuts, and shellfish l, although that is a more common treatment for my other auto immune disease, EoE (Esoinpillic Esophagitis) which is basically just inflammation in your throat. And I have traces of skin cancer. Wow, it surprises me how many of you guys use medicine to treat it, I tried medicine and earned my self a week long drug rash for two different medicines (omeprazole and lansoprazole) and have yet to try the infusions, I have been to countless surgeries and procedures it’s not even funny - I’m assuming you have too. Sorry all you guys have to deal with the same things i am dealing with, I though the number of people with auto immune would have been way lower.
Thanks
@@chasecook6994 I have stomach pains and fatigue. It has stunted my weight so much! I'm 13 and only weigh 82lbs. I'm pretty skinny, as literally every single day I get rude remarks as, "do you even eat?","I could break you in half!" or "stick". So yeah, it does suck.😂
Eden Rockwell I’m on Remicade, too!
chrons is cured by natural herbs. turmeric + black pepper, olive leaf extract (25 percent oleuroprin is required).. oregano oil, ionic collioidial silver.
I was diagnosed 3 years ago and never thought to look for someone else’s story. I was crying within 5 minutes because I’ve never known someone who understands. It’s also so nice to see another girl with Chrohns, I’ve always been embarrassed by it, but seeing you talk about it openly is so nice. This really helped me. Thank you for sharing.
I'm 16 and developped Crohn's disease at the age of 14! It is in my small intestin too! I'm a french speaker normaly so sorry for my bad english! It took more than a year and a half to find out I have Crohn cause I didn't have the common symptoms ! Our story and symptoms are so the same and I now feel way less lonely since I watched your video a week ago! Thank you❤
Reach out to Dr folonsho, he can help you too, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease, he can help you too.
Drflonsho@gmail.com that's his email, hope this helps you
Some doctors say Crohn Disease is caused by LEAKY GUT and leaky gut is curable, but doctors said you MUST change your diet. Do NOT eat FOOD CHEMICALS !
Please try Visbiome (Medical Food/powder, probiotic) !
1 packet Visbiome= 450 billion good bacteria
I know someone who was diagnosed with Crohn Disease a few years ago. She was in remission for the last two years, but after using IV medicine, she had recurrent infection (side effect) and had to take antibiotics.
After using antibiotics 4~5 times in a short period of time, she had inflammation again. Her doctor said Visbiome will not help anything, but she took the medical food anyway (5 packets of Visbiome per day).
Within two months, her blood test and fecal exam came out NORMAL (This means she DOESN'T have inflammation anymore).
Probiotics die when they come in contact with stomach acid, so you must take it with EMPTY STOMACH (ex) right after you wake up in the morning). I think capsules have some food chemicals in it, so take POWDER PROBIOTIC.
Even if there are a lot of good bacteria in the intestines, if there is no food (for good bacteria), they will starve to death. Salmon, garlic, onion, sweet potato, kale, cabbage, broccoli, banana, apple(with peel), plant root (plant root inulin feeds good bacteria All THE WAY TO RECTUM)...etc.
I pray for your good health ! Jesus Loves You !
I have Crohn's disease also. I was diagnosed in third grade and went on the FOD Map diet. But that didn't work, so in fourth grade I went on SCD (specific carbohydrate diet) and I have been on it for almost three years now! It helped me a lot and I'm even in remission. It's so nice to hear other people's stories! Definitely lets you know that your not alone!❤️
Good health keeping in remission and finding your answer to relief from Crohns. Definitely great to see the better side of living with Crohn's and how positivity can encourage people in our community.
I'm certainly not in your age bracket I'm 71 and I have had Crohn's disease since I was 14 years old . I have had numerous visits to the hospital and 3 resections over the years . I still suffer but diet is the key. I have always stayed positive and faith plays a big part . Many times I never thought I would see this age and be able to watch all you girls on TH-cam . I love that you keep busy .I still work 2 days a week because it is good to get your mind on other things. I have my own business Electrolysis for 37 years and it has been a life saver. I love the beauty industry . Thank you for sharing your story and to all you young girls who have been diagnosed with this disease. You can still have a life , marriage, and children . My husband is the best . Prayers to you all!
New sub. I have Crohn's. Diagnosed at 18 during my first semester at University. Two years later I had surgery and they removed 8 feet of intestine. Best thing that ever happened, I've been in remission ever since for years. Never been on any of those awful drugs thank God 🙏 I do have fatigue, bathroom issues and nutrition problems because of the surgery. I try and keep my immune system strong and eat anti inflammatory foods.
Hope you are well and feeling good!! One day at a time. 💗
till now you are in remission
I was diagnosed with Chronic Rheumatoid Arthritis when I was 23 and it’s hard, painful and very depressing but I have also learnt to appreciate the moment I have today. I’ve felt angry at life and then felt appreciative at the good moments . I’ve prayed to God and I’ve expressed my anger and pain to Him. And I’ve come to be more understanding of things that I once wasn’t. I’ve become more compassionate to others pain and suffering. I’ve also encountered people that don’t understand and are not compassionate and it’s made me compassionate toward them because they don’t know better. They’re ignorant to anything other than their world. I pray for them and I pray for everyone that has chronic diseases and chronic pain. May God help us heal and ease the pain. And may one day all be okay in his Kingdom.
What are you symptoms from RA? Do you have any other autoimmune diseases?
There is a high possibility that you have inflammation in your gut (IBD) and it's causing inflammation in your joints. I also was diagnosed with RA when I was younger but once I focused on healing my gut by diet it improved my health. I feel much better! I hope this information will help you. Stay strong!
I’ve just been diagnosed. I’m 15. This video really helped me. It’s been rlly hard on me especially trying to keep up with school, while being at home. This gave me a coverage that I needed. Thank you.❤️❤️❤️
Im 20 and I was diagnosed 4 years ago when I was 16! It's so nice to hear a similar story and hear about someone who understands what I'm going through. Therapeutic almost. Thank you! For educating others aswell. I've been on humira for 3 years now and it's been good, but lately I've been having alot of flare ups and infections which is common with immunosuppressents
Aly B so sorry to hear you’re going through it as well😥 Hoping you can find answers for your pain!
I was diagnosed last month and they want me to start Humira 😞 I’m so scared
Aly B I’m on humira right now, i have been for like 3 months now and it’s not working at all. My stomach hurts so much all the time literally right now.
@@marareimer6335 Do you have any silver fillings in your teeth?
Stephanie Davis you'll be okay (: I was scared too at first
I'm proud of you for sharing your story you'll help a lot of people
farnaz fer thank you! Definitely was not easy but if it can help then it’s definitely worth it💗
The more people that share their story the better. I've just shared mine on my channel
I've been living with Crohn’s for about 12 years now and I've just shared my story on TH-cam. It really does get tough sometimes but it's what makes us so strong at the same time
It's great to see the better side of living with Crohn's and how positivity can encourage people in our community.
Good health keeping in remission and finding your answer to relief.
I’m going through all of this right now. It’s so tough, but I wake up happy everyday with a greater appreciation for life. I’ve slowed down and enjoy every moment in nature and time spent with friends and family.
How are you now 😭 please reply me
Well done on sharing your story. I have Crohn’s disease and it’s absolute torture. I commend you for raising awareness. Keep fighting.
This is one lonely disease. Thank you for sharing your story as I deal with this disease myself. Stay strong
You are truly an inspiration. I was officially diagnosed with Chrons in March of 2017 just 6 months after giving birth to my daughter and I have been battling with acceptance ever since. I just had a horrible flare of symptoms a few weeks ago and was barley able to pick up my daughter and it nearly broke my spirit. Your story has reassured me that no one is alone and that so many others experience similar things and we can get through it if we find our inner strength. Thank you for sharing your journey 💕
Shawna H I cannot imagine how hard it is to go through what you are going through. Prayers you can find something that works for you. 💗
Do you have any silver fillings in your teeth?
It was so refreshing to see (funny) that side of you Dr. Thank you for sharing your wisdom with all of us.
Thank you for letting me understand Crohn’s so much better. I’ve trying to date someone with Crohn’s for a few months but he’s rarely available. He’s either in great pain, in the ER, going into surgery or recovering from it.
Reach out to Dr folonsho, he can help your friend too, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease
Drflonsho@gmail.com that's his email, hope this helps you
Hi. Thank you for trying to understand what your date is going through. Please also be careful with people telling you about herbal doctors and acupuncture and other such pseudosciences. Keep an open mind and if those things OBJECTIVELY help a person, and the effects can be objectively measured, then by all means, but don’t start running to herbal doctors and voodoo priestesses and chiropractors in desperate hopes of finding a cure. There is no cure for Crohn’s, regardless of what the traditional Chinese “doctor” claims.
@@Tuxedo_Cake since you don't believe in herbal doctor, don't you think its only right, if you leave the patient to choose his/her faith, why telling them not to seek what will work for them, do you know what a patient of this disease goes through on a daily basis, if he finds help in herbal remedies. Then I suggest you let them be, stop criticism, because you don't know how it feels to have these symptoms
@@harleyadam8787 I also have Crohn’s disease. Also, I didn’t tell them not to seek help from alternatives, I clearly said to keep an open mind and to use those alternatives if it provides an OBJECTIVE benefit.
Hugs to you sweetheart. I don't have Crohn's but do have digestive issues since 2014. I was feeling nauseous and lethargic I had to leave work and go to ER. I had inflammation of the colon. I didn't know what to eat except the BRAT diet for a while. I had a couple colonoscopy's and everything seemed to be normal. You know your body and you know when something is just not right. I am no way having the symptoms you have experienced, but can relate with your pain. I think our diet is probably the most important thing we can do for ourselves whether we have a disease or not. Prayers my heart goes out to you and wish you health and a bright future.
These doctors won’t diagnose you for any reasons. My doctor said it was only acid reflex. He gave me medication and said I’ll be fine when I done with the medication. Yeah right. My chromes started early August but I had no idea it was the worst 2 months of my life. I honestly Could not work or sleep nor eat. Not knowing what it was I was in and out of the hospital these doctors are so full of it. Your story is a long one but also very inspirational ido how you managed it kudos to you
Do you have any silver fillings in your teeth?
Yeah, I know how you feel, my old doctor told me it was just constipation, and so I had enima,after enima, after enima, not fun.
I am going through the same thing I have acid reflux so bad it’s cause inflammation from my esophaguses all the way to the duodenum which is where they stopped looking so who knows how far it actually goes but I was put on a shit ton of meds and told to wait. It’s been over a month with little to no improvement and I’ve lost around 10 pounds because I’m too nauseous to eat
I can’t believe everything you’ve been thru and I’m so happy you finally got some relief and healing and can eat again. Thank you so much for sharing. I’ve been watching your videos for about 6 months and never would have thought you would go thru such a health crisis. I wish you good health in 2022 Carin ❤️. I love watching your videos and look forward to many more.
Thank you for your honesty. I've had Crohn's since I was 11yo. 3 Bowel resections. I realize this is over a year since you made this video, but given your surgery and your comment about fatigue, please consider checking your Ferritin level and your B12 level. The small intestine at the end is responsible for absorption of these nutrients and iron. I have Iron infusions about 3x per year because I don't absorb it through diet. I also get B12 injections at home monthly.
I got diagnosed when I was 15 and I'm now 19, bleeding etc has been a huge problem and I think (through no fault of their own) a lot of people are uneducated about these things. It's so refreshing to hear someone else going through this share their story and so I take my hat off to you! Hang in there x
Thank you so much and same to you...
Hi Jack just need to ask how is Crohn's detected
I have celiac disease... I understand how you feel like a burden to everyone. There was a year I would be passing out on the couch with severe stomach pain after every meal. Throwing up, brain fog, weight loss...But many things can be handled and life gets better. Best wishes to you girl.
Audery C thank you and so sorry to hear you have celiac disease. I cannot imagine how hard that must be. Hang in there ❤️
I’ve had crohns for 35 yrs , 2 resections , no meds except changes to my diet and medical marijuana ... still working full time , but symptoms are getting worse . early retirement is imminent ...wishing everyone the best !
Wow. Your story and mine are nearly identical, I couldn't help but just nod my head in agreement with everything you were saying. I was diagnosed with crohns after both an appendectomy and bowel resection surgeries, and that all happened at the beginning of this year. So this is still a fairly new battle for me, and it's certainly very difficult, but it's inspiring to hear stories like yours, and it makes me realize that I'm not alone in this. Thank you for sharing!
Daniel Pullen glad to share if it can help someone! Sorry to hear you are battling it as well and hoping you can find relief soon. Hang in there
My husband has Crohn's Disease and diet - watching what you eat - is everything. He doesn't even have to take any medications for it anymore and rarely has any flare ups. I am so glad that you had the surgery when you did. (My mom had that surgery and died from it) I hope you will continue to feel much better and you too can be on a life of remission.
What does your husband eat? What exactly was your Mom's situation? Sorry you lost her ♡
My heart goes out to you. I hope you are doing much better now. I started Stelara in August and it changed my life for the better. I had a botched gallbladder surgery and it created adhesions and then I got Crohn's which created strictures. I'm still not comfortable eating fiber. I keep on cycling 8 weeks of EEN to try to help everything, which really helps a lot.
I have a best friend who has chorns
Thank you so much for sharing your experience concerning this disease. These flare ups are miserable. The information you share here is extremely helpful for us that suffer from this affliction. You’re very brave, beautiful and strong. Thanks again
Thank you for sharing your journey with this terrible disease. You have been through hell multiple times. You are one tough person. I admire your strength.
I have chron disease for 19 years since l was 33 years old, and yes it has been a nightmare many times, l don't have the surgery and hopefully l won't never need it, l'm taking probiotics and seeing like they are helping me, but of course l taking my medication too.
I have Crohns it has changed my life,Ive gone from a confident person to a shell ,I hate myself . It has made my life a misery ,I am in debt because ive lost my job,I feel ill pretty much everyday
You are such a beautiful person inside and out. I know this wasn't easy for you, but this just shows how strong and courageous you are. Thank you for sharing and being a light for others. Love you!
Kathy Roman thank you so much! Love you too! 💗
First time seeing you.
Nobody would know what you've been through by looking at you.
Beautiful girl. Stay strong!
I always wondered why you were so thin! My husband just underwent a right hemicolectomy. He had been misdiagnosed with gluten intolerance when the surgeon said it was crohns. He was always bloated and looked 9 months pregnant. Hopefully this surgery will help him feel better.
Thank you for being so open. My journey has been very similar. It brought back so many memories from that time in my life with no diagnosis and out of control symptoms ( I had the bathroom issue so bad I refused to leave the house except for work). I also had my appendix rupture.
I literally cried when you did. It was an awful time. I’ve been really lucky that I’ve be controlled with Asacol (now Lialda) and periodic prednisone for about 15 years. Praying for a healthy future for you! 🙏🏻
I am so sorry to hear about everything you have been through 💗 you are so strong! Thank you and pray you feel better too!
I was diagnosed at 11, I’m 19 now and I’ll be 20 in 3 months. It has BEEN A JOURNEY! I’ve been on many pills until in 2016 I was introduced to HUMIRA. It worked wonders until my body built up antibodies against it. I’m on Stelara now, I got the infusion on Wednesday of this week. I’ve only experienced two side effects from it, headaches and extreme tiredness. I know for sure I’ll go into remission with my new diet and a lot of prayer!
Thank you for sharing your journey it really does help others living with the illness.
Blessings, I hope you are doing better today. What diet are you following🙏🏼 Thank you.
@@LiveLoveLaugh22 hello, at that time it was a low fiber diet consisting of natural foods. I had no sugars or processed food. I felt better and my skin was at its best at that time.
Currently though, I am in remission so I’m a bit more relaxed in terms of diet. I limit spicy foods, fiber, various sugars, oils and some hard meat. I’ve been exercising regularly and drinking protein as well.
@@celebiglives9842 Great news to hear you are in remission. Does that mean you are no longer taking meds for Crohn’s? May God continue to watch over you.🙏🏼Thx for the reply.
Wow hun you’ve been through a crazy time. You are so strong. Sending you all my love.
Ashley Em thank you Ashley💗💗
You are so strong. I was just diagnosed with crohns, but the inflammation is in my colon. It’s been really hard. But thank you for sharing your story, it’s actually really inspiring
Caroline Drum Caroline I’m so sorry to hear you’ve been struggling with it. Please hang in there and hope you can find a solution that works for you soon❤️
I have been fighting severe refractory Crohn’s Disease and a whole bunch of other autoimmune disease. Been fighting this since age 9, I am 46 now. Crohn’s is a systematic degenerative spectrum disease. My CD is genetic because my great grandfather, grandfather, a cousin and my own brother has it. I was stable on 6-MP for over a decade but the disease was always low grade. My body stopped absorbing it so diseases silently damaged scare tissue so bad until it really snapped and now pernament colostomy. I have had 15 surgeries, mediport and permanant disability due to neurological complications related to CD. Hugs to all the Crohnie warriors out there.
Crohn's has caused you neurological complications ? Can Crohn's inflame the brain too ?
I am just so sorry for your battle. A few people in my family have crohn's. I just never realized what they must be going through. I am wishing you much love, happiness and health. You are such a beautiful gal. It just goes to show that you never know what people are dealing with in their lives. So we all need to just be kind to everyone because you don't know their struggles. Thank you for sharing.
I have Crohn’s disease too and was diagnosed as a freshman in high-school! I understand feeling left out because one of my biggest symptoms is being non stop exhausted, so I don’t have the energy to do what a lot of people my age do. I hope you are in remission❤️ I am working on getting in remission myself..it’s been a long road and I’m on my 4th biologic, but I think I’m finally getting there 😊
Wow, I had no idea how debilitating crohns disease could be. I’m sorry you are having to go through this. You truly are a strong determined young lady-I have tons of respect for you. 😊
Great video, I was on prednisone for months (same dosage) it didn't help me at all. Prednisone is the devil's tic tac. Just keep on keeping on you've got this!
Adriano Tsiganes thank you ❤️
I hate prednisone.
I feel like the devil's tic tac is like the best, most true explanation of it.
Carin, I have followed you for many years but I have just now watched this video of yours! And let me just say how nice it is for all of us to see your personal journey! Everyone of us has our own suffer in life and I'm so sorry that you have this disease! I am so glad that you shared your experience with us! It really allows us to get to know you more behind all that glam influencer fashion content, that you're not just any pretty girls on the street! You are so strong and such a warrior in life!! It makes me want to give you a hug and support you more!!! Please keep making videos and thank you for doing what you do!
I’m so sorry you’ve been through such a terrible ordeal. If it helps...you are not alone. I have 2 autoimmune diseases. Rheumatoid Arthritis at age 6 and Crohns at age 33. This brought back so many memories for me regarding the misdiagnoses and severe abdominal pain with no explanation for over a year. I’ve been through the hospitalizations, prednisone, surgeries, pic lines (so scary) Humira, Enbrel & Immuran. If it’s any comfort to you..I was still able to have 3 healthy beautiful children & an amazingly patient loving husband through all of it and you will too if it’s what you want. Our positive minds and our faith in God are powerful tools to overcome these never ending health issues. 🙏Praying for your continued strength & well-being. Hang in there.
You are such a strong woman and it takes a lot of courage for someone to talk about such personal topic. I watched the entire video and prolly shed some tears in between. You're such an inspiration to those who may be suffering the same kind or any kind of disease. I had stomach issues before and would still experienced them once in awhile. I've only been a subscriber for a couple days and so far loving you so much. 💕
I hope all is well with you. 😘
Mariel Keskool thank you so much💗 Glad to make it if it can help someone. I hope you find answers to ease your pain! Hang in there💕
Hey, I too have Crohn's disease since 2013 and I know the struggles that you mentioned. During 2013 and 2014 I missed out on so many things during that time.
Your very brave to say what your going through on camera it's certainly not what I couldn't do. You are showing people that they are not the only ones going through it and showing people ways around the issue.
Hope your well thanks for sharing
I am so sorry for all of you that suffer these cruel chronic diseases ,you are brave and you are warriors ,wish you all the strength in the world:)
Carin, I can't even imagine how hard this is for you. Thank you for sharing this so openly. I do not have this disease, but I do struggle with mental health, and being sick in a hospital is the worst thing. Hearing things like this is so inspiring!
Recently I was diagnosed with a Crohn's Disease. I can relate to your journey so many levels. I wish you all the best!
Ju Hong thank you and same to you!
Hi how old are you .
This brought tears to my eyes. My daughter was diagnosed at 11. Like you she struggled for many years. She has had success on Entivio. I hope you are feeling better. Best wishes to you
I just recently been diagnosed. The inflammation is not bad. I refuse to take any medication because it’s only going to make it worse. But I’m not eating meat anymore. Plant based diet sometimes seafood. Food is medicine remember that🔑!
Reach out to Dr folonsho, he can help you too, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease, he can help you too.
Drflonsho@gmail.com that's his email, hope this helps you
I have crohns diseases too. Im thirteen and i was diagnosed in February 2018. I had to go on tube feeds for 2 months and that was horrible than i took methotrexate, that didn’t work, and now I’ve been on humira for about 3 months , i get injections every week and it hasn’t done anything in fact i think I’m getting worse. I have stomach pains everyday but weirdly every other Wednesday i have extreme pain and nausea. I really want to be fixed soon i might have to get surgery nothing is working.
dont do the surgery you will be much worse off. look into natural herbs. it works. olive leaf extract (25 percent oleuroprin has to be in it!)..oregano oil, ionic colloidial silver, turmeric.. look into HERBS. they are cheap and affordable and it works. i turned my chrons around with all of these things. no surgery. yes it takes a while for the herbs to really cure you. yes, you will feel really bad for a while, while toxins are dying off in your body.. but that is the healing process beginning. i just went from never being able to eat.. to eating everything i want, every day. its a good feeling. herbs got me there. herbs = affordable, no side effects other than hermeixer's reaction... and you can spread the knowledge to others. apple cider vinegar (with the mother).. eat coconut oil.. drink green tea, drink maca tea. NATURAL STUFF WORKS
My mom has severe crohns and it has been really hard for her. Why would anyone give this a thumbs down? She has also had 25 surgeries
I am so sorry for what your struggling with. I know that this disease can be very hard. I read this book called the Maker’s Diet and it is about a man who had Crohns disease and his intense struggle with it. He ended up doing diet changes and that has helped him a lot. I know everyone is different, some things work for others and some don’t, but I just wanted share this with you just incase you haven’t read this book yet :)
Thank you for sharing this. I ove these videos as somebody who's been fighting through Crohn's disease for two years now undiagnosed an untreated until just a month ago. It has completely altered my life and I feel like I'm a prisoner to it. I have ADHD and I do concrete for a living and have a very active lifestyle that it's deeply impacted. And being I was on diagnosed for a couple years and fighting through it like an idiot of a man would my employer and family were unapologetically not understanding of what was going on and whenever I would be having extreme flare ups and was unable to go to work had to cancel events with my family everybody would say " what year was not going to come in because you have a tummy ache are you serious" and as somebody who has always prided myself on being tough and a fighter. Knowing what was going on with my body was irregular and the times I would have to take off where 100% legitimate. Not at this support or compassion and empathy of those around me caused me to go through some crippling depression at times and I've always been a happy-go-lucky very energetic person. I'm being I waited so long to get treated and formally diagnosed it's progressed to a dangerous point where my entire small bowel system is inflamed and infected on top of like large intestines also being inflamed just not as painful as the small intestines for obvious reasons. My doctors have been fighting tooth-and-nail to get me on Humira which is known for getting really good results and they're concerned if I don't get on one of the higher tier meds quickly I'll have to have surgery but insurance of course has resisted the doctor's recommendations and they have me on the budesonide as well as the anti-inflammatory you listed along with anti nausea sublingual straps. But none of it seems to be giving me relief. And I'm concerned I'm not able to find some serious relief quickly to be able to get back to work and some idea of a normal life that I will lose my benefits through my employer since you have to meet a certain amount of hours every quarter. So it's like fighting somebody with a double-edged sword while I'm using my White Knuckles. So to say the least it has been an incredible challenge and it's hard to not feel like a prisoner to it or let it Define me on a daily basis. So I'm really grateful for people like you who post this stuff. Because it gives guys like me strength, hope and courage. To face the future with a smile and trust that everything will fall into place eventually. Just can't tell you how much it means to people like me just to know we're not alone in this war. And their are lots of people who have compassion for the condition. And to not let those naysayers who would say "oh your just faking being sick" get us down. I'm not faking being sick ever but I sure as hell fake being well on a daily basis. You just can't tell cause I cause at the pain while clinching a smile.
Thank you for the post sincerely 🙏
Hope your condition has more than improved. God bless
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif. com/ order-online -today
I DONT KNOW WHAT TO SAY, ONLY THAT I WANT YOU TO BE WELL FOREVER AFTER, I AM SICK TOO, CANT EAT, DIGESTIVE PROBLEM, YOU WERE A BIG HELP!
You are an incredibly strong and beautiful young woman! Thank you for sharing this story, your story. My son just diagnosed with Crohns at age 30. Can you recommend what support groups there might be for him. He does not do facebook ir Instagram... He does go on Discord and gaming sites. I just want to say you are not only gorgeous on the outside but inside too . He has always been a healthy active person, and it is breaking my heart that this is happening. You have given me hope!
I’m soooo sorry about all that you’ve been through! I just love your channel and never would’ve guessed that you were struggling with all of this! I pray that you and your doctors will be able to figure out what steps are needed to bring about maximum health for you! Thank you for sharing this! I think there are so many misconceptions about the severity of auto-immune diseases. I’m sure this has helped educate and encouraged more compassion for those suffering! Many prayers for you on your path to health!🙏
Oh sweetie so sorry for all you’ve been thru😢 but God has a purpose for everything....by sharing your story you are surely helping others that are going thru something similar. Surely this has made you stronger and now like you say ......you will enjoy life and the things it brings day by day!
May God bless you with health and happiness sweet girl!💕😘🙏🏼
Elizabeth Vázquez thank you so much for your sweet comment 💗💗
I am twelve years old and I have Crohn’s disease as well. I’ve had stomach problems since I was born and would be crying for hours about my stomach. I loved watching this video because I know I’m not alone! I’ve never met somebody with Crohn’s but I would love to! Thanks for sharing this!
I am so sorry for this journey you have been on ! I have. Rare auto immune disease as well and I pray you stay in remission! Better days are ahead for you and you are so beautiful inside and out I know you will meet someone special who will stay by your side! Xoxo
Oh my gosh!! The doctor that did the appendix surgery should be sued! I'm serious!! He left that infection in you!! Maybe even the other doctors too!! Sounds like your doctors used you as a guinea pig!! You poor young woman!! You have unbelievable strength!! God Bless you, Sweetie!
Would love to hear an update on how your health is now.
You have been through so much and I’m so sorry. I love your outlook on life! Thank you for the reminder that each day is a special gift and to live in the moment. You will definitely be in my prayers💕
Thank u for doing this video. I always thought I was kinda alone of having Crohn’s disease but now I know so many is going through the same thing I have been going through for 8 or 9 years
God this helped so much I was just diagnosed with Crohn’s disease and rheumatoid arthritis at 22 this month! So thank you this really helped me not feel so alone I’d been sick for 3 1/2 years and I finally have an answer!
Hi Kaylen, I'm so sorry to hear you're going through all of this. I cannot even imagine. Please take care and be well💛
Have you tried a low residue diet ? Or looked into it ?
Im nine and i have crhon disease and im on this diet know and its very hard for me and i miss my old life😭😭😭😭😭
I'm sorry i've got it too it sucks hope you're doing well though. You're not alone in the fight
Stay strong. I wish you the best in your new mission and journey in life. You're not alone
Oh my gosh. I didn’t know- I have ulcerative colitis! Praying for you and your journey, girl!
I was diagnosed at 12 and my only symptom was diarrhea that I didn’t think much of. My pain didn’t start to later and it can really hurt. Your brave to share your story.
I am 17years old and I have crohn for a year but we didn't know because I didn't have any symptom and at April this year I had an abscess and i wasn't diagnose right so I took the wrong medication and I was in awful pain about 2 weeks and I couldn't sleep or sit literally it was the worst thing ever. So I diagnosed about 2 months ago and I take a medication(cant remember the name) once a month and I don't feel anything changing.Also I don't have any problem with the food I'm eating everything. I hope it stays that way!keep it strong people there is a reason for everything
Good luck keeping in remission from Crohns and finding the answer to stay that way.
I had a bowel re-section in March 2016. I have not had any other issues with my bowel since.
You are very brave person and an encouragement to me. I have been recently diagnosed with Crohn's so you have helped me opening up and telling your health story. I am so thankful you are feeling better.
Try a low residue diet. It's helped me so much. Any high residue foods will inflame your Crohn's !
I can feel what you have gone through, glad you are better now ❤ much love your way
I can only eat 6 foods. I don't even care about feeling left out. I'm just tired of eating the same foods and not getting enough nutrients
What you can eat?
Thank you so much for putting this video out. I’m 16 and I was just diagnosed with Crohn’s July 27. As you were listing your symptoms I began to tear up because of how I related. I’ve barely even began my journey but I’m trying to use my knowledge of this illness to educate others. This video allowed me to see that I should really continue to do that. Thank you so much.
Hi love, I'm so sorry to hear you're battling crohn's as well. Take care and I hope you can find a solution for your symptoms soon!
You made me cry; I’m going through this with my child😞Thank you for sharing your story with us. May god be by your side.
My dad also has Crohn’s disease , it’s been very difficult for him and he had his large intestine removed about 6 years ago . Praying for you 💛
Janine Rayas thank you and prayers to your dad that he can find relief soon. 🙏🏼
Does your dad have any silver fillings in his teeth?
Thank you for telling me about your Story. My son got recently Diagnosed last week. He will go to a G.I. Dr this friday and it is new to him. He seemed to have it for awhile. so I am glad that you and others can tell me about what it is
You're very brave for sharing your journey! I can relate so much. I became ill with Crohn's (in my ileum as well) 11 years ago at the age of 9. Through living with a chronic illness, I've definitely learned to be grateful for every good day I have. Thanks for providing me with some comfort through hearing your story!
Thank you so much for sharing, hang in there. Be well💛
Thank you!
I had a bowel resection in 2012 and they had to cut me lengthwise on my stomach. Recovery was brutal. I had longer leave after having my kids naturally then I had with this surgery. Thankfully I have not needed another surgery and they have me on Xeljanz which my RA Dr had to prescribe with the prompting from my GI Dr. Any autoimmune disease sucks because you can’t have just 1. I was lucky enough to retire with a pension and because of my severity I was able to get on social security disability. I may “look” healthy to Joe blow but my body is in turmoil. Thank God I’m having more good days then not but it will never go away and that’s the kicker. I hope you’re on your way to feeling good every day 🤗
You are such an inspiration for so many people, especially me!! You are incredible for fighting through this and I love how humble you are!
Haley Harrington so sweet! Thank you so much Haley!❤️
Thank you so much for sharing your journey! Thank goodness you are okay! Its so heartbreaking to listen to your journey but its also so inspiring because you are so strong and your story could help someone else! You are such an amazing human Carin! Thank you!! Wish you all the best!!
I've always sort of had stomach issues, though it's only now (near my 20th birthday) that my doctor is trying to figure out why.
My current doctor is suspecting Chron's Disease, among other things (I also have hEDS).
I don't think my symptoms are typical of Chron's, but the consistencies are cramping, bloating, and like two other symptoms that I'm not too keen on sharing (nothing involving blood). I also get constipated (which isn't a thing with Chron's apparently but that's why my doctor wants to rule out, though I don't know what else she has in mind). Nausea is also a big deal for me.
Working when my stomach is acting up is becoming harder because the pain seems to be worsening, but I still power through til I can go crash in my bed.
My weight is fluctuating - and the list of things I'm able to eat without triggering the pain is narrowing. I'm scared, honestly.
I'm so sorry you've been through this. I'm dealing with serious health issues myself for a few years now so I can relate. Wishing you all the best
Anastasia A. Thank you 💕 Be well and wish you all the best as well 💗
Oh dear God, Carin. I had no idea, I am so sorry you went through this. You almost died there a few times. My mouth just dropped as you were telling your story. It seems so hard to believe because I have really enjoy your videos and love your style and have actually purchased many of the items you have recommended. You look so well right now in May 2020. This old 2018 video just popped up on my screen and I thought I would watch it. But honestly, I am so sorry this happened to you. Hope you are better now and have put many of these issues behind you. Sending you all my love, hugs and prayers. Be well, and take care.
I have been diagnosed with a mild to moderate case of Crohns and have gad this a few years. This began in high school in my sophomore year (11 grand). It is in my small intestine and down to the caecum. my symptoms are fatigue (from all those 24/7 bathroom visits, some so urgent I have sustained some embarrassing accidents, bad intestinal pain and cramps )not to mention that thunderstorm that has raged for these few years. Some gas and bloating, but mostly this never-ending diarrhoea. I am a young male as I found out that the majority of cases are of women. I have enorm laundry bills and have to periodically buy new clothing and bed linen, as have had accidents due to the urgency and not being able to gain access to a loo quick enough. So I know from experience, and it is NO fun! I am taking something like Entylio (spellingè) and so far not had to be sent to surgery. My anus has been sore as if a thousand men had penetrated it (yes, I am also LGBTQ) as this constant never ceasing diarrhoea flow just keep coming out of me! Oops, ironically I can't even type a response as now I have that urge for that white porcelain throne, bye! Gotta go!