I've been sick since 1981...got a bug, it never left me, then in 1993 KERBOOM, I didn't think a human could get that sick...I hung on for dear life, pretty sure I was close to death. I went from 180 lbs to 110 lbs. Hate to say it but...if it wasn't for covid long haul, all of us me/cfs folks would continue to be gaslighted
I came down with EBV very bad around 1990,.. since then ive battled with several severe fatigue episodes throughout each year, but its the last 10 years its got me 75% bedbound, too sleepy/fatigued to do my chores, and if i try, then im too physically weak and brain fog, legs hurt bad, however sometimes late at night i start to feel almost normal, the sleepiness wears off and most of my strength returns, but my schedule is nocturnal. I get maybe two half good days each week, in which i am over burdened with neglected chores. Doctors were clueless. Now seeking new medical team.
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I've been sick since 1981...got a bug, it never left me, then in 1993 KERBOOM, I didn't think a human could get that sick...I hung on for dear life, pretty sure I was close to death. I went from 180 lbs to 110 lbs.
Hate to say it but...if it wasn't for covid long haul, all of us me/cfs folks would continue to be gaslighted
Same for us with chemobrain. Also those with EBV!
I came down with EBV very bad around 1990,.. since then ive battled with several severe fatigue episodes throughout each year, but its the last 10 years its got me 75% bedbound, too sleepy/fatigued to do my chores, and if i try, then im too physically weak and brain fog, legs hurt bad, however sometimes late at night i start to feel almost normal, the sleepiness wears off and most of my strength returns, but my schedule is nocturnal. I get maybe two half good days each week, in which i am over burdened with neglected chores. Doctors were clueless. Now seeking new medical team.
Pick me!!! I got mine March 2020, not Covid related.