I had the modified radical mastoidectomy in my left ear because the cholesteatoma had pretty much filled the entire inner ear and was destroying my mastoid bone. Mastoid bone was cut out and replaced with a material that would take the place of the bone. Hearing is surprisingly good for the amount of damage done. I've lost some of the highs and lows, but my middle (speaking range) are ok, generally speaking. The loud ringing makes it hard to hear sometimes more than the loss of hearing. My right side was showing signs of collapsing in, so the surgeon did a preventative surgery to reduce the chance of one occurring. I never got a good explanation of how that surgery worked. He removed a certain portion of the ear drum that would have collapsed had it let to continue. That part is not clear to me. These videos are great as I am always explaining to people, including doctors and nurses why my ear canal is huge. I can use them as reference to help people understand. Thanks for putting them together.
Maybe the surgery in the other ear is to prevent a cholesteatoma from forming. It was to release the passage of air between the ear canal and behind he eardrum.
Nobody told me I have to keep having surgery after the initial surgery...wth? I go in to have my right ear done in 2 weeks! I was understanding I only had to have this done once and that was that! I do have to have both sides done left and right, but not continual surgeries!
So is surgery the only way to fix this? I have one and my first appointment is next week, should i be expecting the dr to set a surgery date? Ive already lose most hearing in that ear and im getting ear infections every couple months
@@hxunted69 i had my surgery a yr ago, and it was the most painful thing i have ever had to go through, now i have check ups every 6 months and its still healing
@@hxunted69 it was the after that was horrible for me, but my dr said mine was one of the worst he’s ever seen, i’ll still have effects from it my whole life unfortunately
Its an appalling condition which my daughter suffers from. Had the first op back in 1999 and is going in for a procedure once more next month. Despairing and never ending. Seems that if you catch it real early, and the right diagnosis is made, then you got a chance of a normal life. If not, then as thousands of sufferers worldwide will attest too, a life of suffering lies ahead. Anyway thanks for posting. The more attention this disease gets the better.
A life of suffering is not inevitable or even likely. I’m 69 years old and had a radical mastoidectomy to cure a cholesteatoma when I was 26. I’ve had few problems as a result of the surgery, although I only have about 30% hearing in that ear. Also, the initial recovery period took quite awhile. Take heart and don’t let your daughter or you be discouraged. Healing takes time.
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I had the modified radical mastoidectomy in my left ear because the cholesteatoma had pretty much filled the entire inner ear and was destroying my mastoid bone. Mastoid bone was cut out and replaced with a material that would take the place of the bone. Hearing is surprisingly good for the amount of damage done. I've lost some of the highs and lows, but my middle (speaking range) are ok, generally speaking. The loud ringing makes it hard to hear sometimes more than the loss of hearing.
My right side was showing signs of collapsing in, so the surgeon did a preventative surgery to reduce the chance of one occurring. I never got a good explanation of how that surgery worked. He removed a certain portion of the ear drum that would have collapsed had it let to continue. That part is not clear to me.
These videos are great as I am always explaining to people, including doctors and nurses why my ear canal is huge. I can use them as reference to help people understand.
Thanks for putting them together.
Maybe the surgery in the other ear is to prevent a cholesteatoma from forming. It was to release the passage of air between the ear canal and behind he eardrum.
How ya doing now?
2:38 I love the explanation of how she decides which therapeutic intervention is best.
Am I able to go to the gym 2 weeks after the surgery?
Nobody told me I have to keep having surgery after the initial surgery...wth? I go in to have my right ear done in 2 weeks! I was understanding I only had to have this done once and that was that! I do have to have both sides done left and right, but not continual surgeries!
So is surgery the only way to fix this? I have one and my first appointment is next week, should i be expecting the dr to set a surgery date? Ive already lose most hearing in that ear and im getting ear infections every couple months
Yes my doctor told me only way is surgery
@@hxunted69 i had my surgery a yr ago, and it was the most painful thing i have ever had to go through, now i have check ups every 6 months and its still healing
@@pitbullmom213mine wasn't that bad I couldn't feel anything bc I was asleep
@@hxunted69 it was the after that was horrible for me, but my dr said mine was one of the worst he’s ever seen, i’ll still have effects from it my whole life unfortunately
@@pitbullmom213 aww it's ok though
How come sometime the ear area is cut open and other times a cholesteatoma is removed through the ear canal with out cutting?
It depends on the case (and the surgeon's training as well)
Can we use earphone after the operation???? If colesteatoma is become because use of earphone??
Its an appalling condition which my daughter suffers from. Had the first op back in 1999 and is going in for a procedure once more next month. Despairing and never ending. Seems that if you catch it real early, and the right diagnosis is made, then you got a chance of a normal life. If not, then as thousands of sufferers worldwide will attest too, a life of suffering lies ahead. Anyway thanks for posting. The more attention this disease gets the better.
A life of suffering is not inevitable or even likely. I’m 69 years old and had a radical mastoidectomy to cure a cholesteatoma when I was 26. I’ve had few problems as a result of the surgery, although I only have about 30% hearing in that ear. Also, the initial recovery period took quite awhile. Take heart and don’t let your daughter or you be discouraged. Healing takes time.
Fuck that!
Can I have your contact please