As a person who was born with congenital hydrocephalus, I appreciate you making this video! My shunt is working fine, so I hope anyone with hydrocephalus lives a long life!
I have Hydrocephalus. I was diagnosed shortly after birth. I never needed a shunt. I am Twin B. I stopped developing at 20wks. The doctors repeatedly asked my parents to abort me since I kept trying to abort myself and I would’ve taken my identical twin with me. My sister and I were born a month early from our DD. My sister was able to go home immediately but I had to stay in the NICU at Oakland Children’s Hospital. I stayed for several months. Shortly after being cleared to go home I was diagnosed with Tuberculosis. I survived that and I also developed mild Cerebral Palsy. After several different therapies and treatments I am living a pretty normal life. It was also discovered in utero that I developed ACC and Hydrocephalus. I learned to ride horses and play the drums. Horses are my obsession lol. Thanks to my parents for never giving up on me.
@annastults8344 Your story is truly inspiring and a testament to resilience and determination! Surviving and thriving despite such challenging circumstances is remarkable, and your passion for horses and drums reflects your vibrant spirit. Kudos to your parents for their unwavering support, and to you for embracing life so fully-it’s clear you’ve turned obstacles into incredible strength! 🐎🥁❤️
My son was diagnosed with this hydrocephalus and shunt kept in 2018 He has not able to sit and stand Please update the next step to treatment.. VIGGARDAN from India
When I moved to a apartment a few months ago, I saw pictures I’ve never seen before,like my stitches from after my brain surgery and what my head looked like compared to my twin brother, obviously it was taken after my surgery cuz before my surgery I couldn’t move without crying, and I found out they found out I needed brain surgery at my checkup cuz it was a 6 month checkup from being home from the Nique cuz I was born 3 months early and I developed it some time after born,my mom said I got the surgery in either February,March,or April, and since they caught it in time,they were able to wait until the next day,how my mom explains it is that she said that hydrocephalus is always an emergency,however,they caught it early enough to were it wasent an emergency that much, it was still an emergency but we could wait until the next day since it was caught before it would cause irreversible brain damage, and from a video I was able to see my bald spot from the IV used in the Nique, I just think how it would suck if I was a guy cuz I would have to look like my uncle Rick cuz I’ve never seen his hair short cuz if I was a guy I would need to keep my hair long just like I do now but the difference is that it’s expected that girls have longer hair anyway and I like my hair longer anyway but when I see my friends with boy like hair I go I could never do that unless I want people to see my bald spot
You're welcome! Hydrocephalus is a condition characterized by an abnormal accumulation of cerebrospinal fluid in the brain's ventricles, which can cause increased pressure and potentially lead to brain damage if not treated. Management often involves surgical intervention, such as the placement of a shunt to drain excess fluid. If you need more information or have specific questions, feel free to ask.
I’m 32 I’ve been having problems with cognition for 17 years my MRI has come back normal other than a 6mm pineal cyst which the UK drs have said is benign and won’t cause issues, could this be the root cause of my Brian function decline ? Thanks James
A 6mm pineal cyst, as described, is often considered a benign and unrelated finding in the context of cognitive decline. Cognitive problems can be caused by various factors, including medical conditions, lifestyle, or psychological factors. It's essential to consult with a healthcare provider who can perform a thorough evaluation to identify the potential root causes of your cognitive issues and provide appropriate guidance and treatment. They can help determine if the pineal cyst is related or if there are other factors contributing to your symptoms.
As a person who was born with congenital hydrocephalus, I appreciate you making this video! My shunt is working fine, so I hope anyone with hydrocephalus lives a long life!
Hi my baby is 10 month old can I talk you about this pls
I had big problems in 2016. I finally got surgery and I am fine now.
Did your balance improve?
@@SumitKumar-me9tdHello, sorry for not answering sooner, I'm open to talk!
@@anjachan that's great to hear!
I have Hydrocephalus. I was diagnosed shortly after birth. I never needed a shunt. I am Twin B. I stopped developing at 20wks. The doctors repeatedly asked my parents to abort me since I kept trying to abort myself and I would’ve taken my identical twin with me. My sister and I were born a month early from our DD. My sister was able to go home immediately but I had to stay in the NICU at Oakland Children’s Hospital. I stayed for several months. Shortly after being cleared to go home I was diagnosed with Tuberculosis. I survived that and I also developed mild Cerebral Palsy. After several different therapies and treatments I am living a pretty normal life. It was also discovered in utero that I developed ACC and Hydrocephalus.
I learned to ride horses and play the drums. Horses are my obsession lol. Thanks to my parents for never giving up on me.
@annastults8344 Your story is truly inspiring and a testament to resilience and determination! Surviving and thriving despite such challenging circumstances is remarkable, and your passion for horses and drums reflects your vibrant spirit. Kudos to your parents for their unwavering support, and to you for embracing life so fully-it’s clear you’ve turned obstacles into incredible strength! 🐎🥁❤️
You are surely a brave girl...hats off...God bless you with a healthy and prosperous life....
I have a school report about hydrocephalus and this video is really a great help. Thank you very much!
Glad it was helpful!
i got hydrocephalus at the age 12 but thankfully my shunt is working fine till now at 18
hi pls can I talk you about this..,..
Where are you from @hell_cat I need your help
Great video
My son was diagnosed with this hydrocephalus and shunt kept in 2018
He has not able to sit and stand
Please update the next step to treatment..
VIGGARDAN from India
Let him start physical therapy
When I moved to a apartment a few months ago, I saw pictures I’ve never seen before,like my stitches from after my brain surgery and what my head looked like compared to my twin brother, obviously it was taken after my surgery cuz before my surgery I couldn’t move without crying, and I found out they found out I needed brain surgery at my checkup cuz it was a 6 month checkup from being home from the Nique cuz I was born 3 months early and I developed it some time after born,my mom said I got the surgery in either February,March,or April, and since they caught it in time,they were able to wait until the next day,how my mom explains it is that she said that hydrocephalus is always an emergency,however,they caught it early enough to were it wasent an emergency that much, it was still an emergency but we could wait until the next day since it was caught before it would cause irreversible brain damage, and from a video I was able to see my bald spot from the IV used in the Nique, I just think how it would suck if I was a guy cuz I would have to look like my uncle Rick cuz I’ve never seen his hair short cuz if I was a guy I would need to keep my hair long just like I do now but the difference is that it’s expected that girls have longer hair anyway and I like my hair longer anyway but when I see my friends with boy like hair I go I could never do that unless I want people to see my bald spot
Thanks for your information about the deases
You're welcome! Hydrocephalus is a condition characterized by an abnormal accumulation of cerebrospinal fluid in the brain's ventricles, which can cause increased pressure and potentially lead to brain damage if not treated. Management often involves surgical intervention, such as the placement of a shunt to drain excess fluid. If you need more information or have specific questions, feel free to ask.
I have hydrocephalus and spina bifida and a shunt
Nice
I’m 32 I’ve been having problems with cognition for 17 years my MRI has come back normal other than a 6mm pineal cyst which the UK drs have said is benign and won’t cause issues, could this be the root cause of my Brian function decline ?
Thanks James
A 6mm pineal cyst, as described, is often considered a benign and unrelated finding in the context of cognitive decline. Cognitive problems can be caused by various factors, including medical conditions, lifestyle, or psychological factors. It's essential to consult with a healthcare provider who can perform a thorough evaluation to identify the potential root causes of your cognitive issues and provide appropriate guidance and treatment. They can help determine if the pineal cyst is related or if there are other factors contributing to your symptoms.
Sir Mery bro Ku vomiting ni stop ho rhi 2nd time uska operation huwa VP shunt Dali ha again please vomiting Q hoti or USka treatment BTa den
Pressure on brain
Good video
Thank you!
congenital hydrocephalus ... I got spina bifida too.
Can hydrocephalus cause paleness in face?
Im pale. So maybe yes 🤷♀
the look on that surgical techs face is so scary
Please i need some help my kid doesn't sit , stand,talk, now four years please help
It's crucial to seek medical evaluation promptly for developmental delays like these. 🩺❤️
I think in California and maybe Virginia you can still have an abortion!!! It's not too late... Also Minnesota....
Try physical therapy
Meri beby ko v yahi problem hai
mere baby ko bhi....can i talk you
@@SumitKumar-me9td yes
abhi kaisa hai apka baby
@@SumitKumar-me9td thik hai
@@SumitKumar-me9td meri baby ko sunt lga huaa hai abhi 6year ki hai rab ki kripa se ekdam thik hai
Neat
My son die with this problem with the age of 6 and he conduct 5 operation
Can i talk to you?
@@জেসমিন-জ৮ন yes you can
Mere 8 mahie ka bacha nhi rha 6 operation .......hydrocephelus😭😭😭
@@T-jyoti2202 Allah ap ko sbar day only thing is tht is sbar or wo bachy janti hain
may Allah gives you patience
Ppoo