This is so true. I knew from the very start I could manage "if only" I could get my sleep as things were very active here with nightly pee cleanups, rages through the house, etc. I looked into night help eventually following a damaging stay in a rehab where they injured him. $12K a month. If it were the last month of life, that would be do-able. It's just not sustainable. So I pull every trick out of my self-care basket to mitigate in so many other ways including rare naps. But nothing does it like sleep. If carers can afford this, they should by all means.
Very helpful and interesting. Just wondering how your husband reacted when a caregiver started staying with him at nights? Did he feel angry or abandoned? Thx.
That’s a good question. John understood that having a caregiver come into our home meant that he could stay in our home, too. He had stayed in a facility for three months because I got too exhausted. When I brought him back home he understood that the paid caregivers were hugely important to his well-being and mine. So he was OK with that. That does not mean that he liked all of them, and some of them had to be let go, because for some reason he didn’t like them. I just worked with that so that I could keep him at home.
Susan, absolutely. Every LBD patient is different. Learning how to manage medications and daily life as a caregiver can also make a HUGE difference. That is why I made these videos. You can definitely have a more gentle journey by learning and practicing how to approach situations, how to set up your home, how to communicate with key folks in the journey, and so many other management techniques. If you haven't already, consider googling "TH-cam Pat Snyder dementia" That will take you to my channel. Then click on either "videos" or "playlist" at the top of the page. There are over 70 videos there to have you learn about LBD caregiving. This should minimize some of the issues that might arise in your journey. You can also email me at patsnyder137@gmail.com and we can communicate directly when you hit some tough spots. My work is all volunteer and free to any caregiver.
This is so true. I knew from the very start I could manage "if only" I could get my sleep as things were very active here with nightly pee cleanups, rages through the house, etc. I looked into night help eventually following a damaging stay in a rehab where they injured him. $12K a month. If it were the last month of life, that would be do-able. It's just not sustainable. So I pull every trick out of my self-care basket to mitigate in so many other ways including rare naps. But nothing does it like sleep. If carers can afford this, they should by all means.
Very helpful and interesting. Just wondering how your husband reacted when a caregiver started staying with him at nights? Did he feel angry or abandoned? Thx.
That’s a good question. John understood that having a caregiver come into our home meant that he could stay in our home, too. He had stayed in a facility for three months because I got too exhausted. When I brought him back home he understood that the paid caregivers were hugely important to his well-being and mine. So he was OK with that. That does not mean that he liked all of them, and some of them had to be let go, because for some reason he didn’t like them. I just worked with that so that I could keep him at home.
Love your videos they are very helpful and kind.
Thanks for sharing
Thanks for watching!
Does any one get through LBD without all the horrendous issues that are shared on the site online all share these horrendous problems.
Susan, absolutely. Every LBD patient is different. Learning how to manage medications and daily life as a caregiver can also make a HUGE difference. That is why I made these videos. You can definitely have a more gentle journey by learning and practicing how to approach situations, how to set up your home, how to communicate with key folks in the journey, and so many other management techniques. If you haven't already, consider googling "TH-cam Pat Snyder dementia" That will take you to my channel. Then click on either "videos" or "playlist" at the top of the page. There are over 70 videos there to have you learn about LBD caregiving. This should minimize some of the issues that might arise in your journey. You can also email me at patsnyder137@gmail.com and we can communicate directly when you hit some tough spots. My work is all volunteer and free to any caregiver.
@@patsnyder9144 just clicking your name under this video takes you to your channel aswell