My PSA dropped from a 2.8 to a .3 on Degarelix after one month. I’m on Lupron now. I have a high Gleason score from my biopsy. Difficulty urinating led me to get treatment and they found the cancer.
My first PSA test was 5000 but after only 4 months of hormone treatment it dropped to 0.4. Seemed confusing to me. Doctor never even talked about Gleason anything. Say it was in my lymph nodes by biopsy. At 75 do I even keep getting the lupron shots as the overall effects are terrible. Cannot even get around and terrible day and night long sweats that bother my heart since on a pacemaker. They say this might increase my life but life on this is not life.
Even after 24 excruciating biopsy samples, the test missed the cancer in my seminal vesicle. No cancer detected in the front Prostate. The resulting infection almost killed me.
@@LeadAudit4490 When the needle passes through the colon and into the prostate, fecal matter is carried, chances of infection increases with the samples taken. Antibiotics are highly recommended.
@@LeadAudit4490 It's better to have an MRI done first, as it is painless, non-invasive, and will reveal crucial information including the size of the prostate, and the size/location of tumors. Based on the result of the MRI, you may not need a biopsy at all, but if you do need a biopsy it will be highly targeted because the techs will know exactly where to put the needle to hit the tumors. Unfortunately, if a DRE or MRI reveals tumors, there is no choice but to go ahead with the biopsy, unpleasant as it can be. That is the only diagnostic tool for determining what type of cancer you have and how aggressive it is, and therefore the type of treatment that is needed. If you do need a biopsy, make sure you are fully "cleansed" - don't take any shortcuts on the procedure. You will likely be given an antibiotic injection as well. If you happen to have an antibiotic on hand in your medicine cabinet, such as doxycycline, it's not a bad idea to take a dose of that before the procedure as an extra measure, but check with your urologist first. If you follow procedures, it's highly unlikely you will have a problem other than discomfort from the procedure itself.
In December 2020 my PSA was 960 my alkaline phosphatase was over 900. Been on lupron and Casodex for the last 6 months . Latest reading was 1.1 PSA alp is 215. 10 days ago started on zytiga. I lift weights 3 days a week and do cardio everyday. Take Pom t capsules twice a day. Eat mostly a plant-based diet with a little bit of fish and some chicken. And my fear is to become hormone resistant within a couple of years. Any thoughts? Or suggestions
There are many helpful Facebook groups...with other means of fighting cancer...Jane McLelland, mycancerstory, chrisbeatcancer, Curt Michael Artemisinin, etc. Off label drugs, supplements, etc.
Very informative video however I thought psa under 4 was more normal. The dr in this video speaks of psa levels less than 20 being in check. I am confused.
it has to do with age, 4 or less in younger or middle age is wanted, after 70 it can higher with no cancer, mine was 7 long ago with no cancer, but by number 17 it was cancer a few years ago, after a biopsy which was is not all that painful, (I had a good doctor) I was awake, my own choice , then later I had radiation and Lupron shots for one year, PSA is now a few years later always under .#1 and no more shots, I was the Dr. felt too old for surgery at age 78, and being able to hold urine after that is risky at that age that is with out a pad, so after age 72 they say an operation "can" leave you in need of a big diaper for the rest of your life, I'm past 80 and fine and had not much beside hot flashes from Lupron, but did notice some small memory loss, could be normal aging, that we do not know, but after mid 70's I'd never let them remove my Prostate, I had success with radiation, it does kill sexual ability though. Chemical castration basically is Lupron, but better then death from often spreading cancer, it killed my uncle at a far younger age than myself, so beware of your PSA going up fast, the key is how fast it rises, also pay more attention to men's health, which is pretty much ignored by the public, giving more attention to the female health problems, and that is partly cause men are more quiet about it, yet men have a shorter life expectancy than women do, nursing homes always seem to have more ladies, I once asked a nurse friend why? She said the men are more often dead by then!
The statement was indeed poorly presented in my opinion. If I had a PSA of, say, 15, I'd be freaking out and not dismissing it. However, in the context of the video I think what he was saying is: if you're older (say 75+), have blood in the urine, and your PSA test came in at 15, that's more likely some kind of nasty infection rather than cancer. I think that's what he was saying, otherwise out of context it seems like a strange and unwise statement to be making. Regarding the other comment that says "it has to do with age", that's not exactly true. It actually has to do with prostate size. Age is used as a proxy for prostate size because normally we don't know our prostate size but we do know our age. Unfortunately, age is not a reliable proxy. When the statement is made that an acceptable PSA range for a 60 year old man is between 2.0 and 4.0, this range has the built-in assumption that the man has an enlarged prostate, as is indeed true for the majority of men. This is a dangerous assumption to be making if you happen to not be in the majority. Using your age as a proxy for your prostate size is a good way to get yourself killed. A young man might typically have a prostate size of 20cc. A 40 year old might have one at 25cc. An 80 year old might have one at 60cc. The highest your PSA should be before being considered abnormal is about 10% of your prostate size, so in the above examples - the young man: 2.0, the 40 year old: 2.5, and the 80 year old: 6.0. In my late 50's my PSA was between about 2.5 and 4.0 and I made the stupid mistake of following the lousy official advice that this was normal. I only found out later, after a tumor was detected by DRE, that my prostate size is a petite 25cc, so anything above 2.5 PSA would be abnormal for me, . The only way to determine your prostate size is to have an imaging scan done, such as MRI. The MRI will also reveal the size and location of tumors which will make a subsequent biopsy highly targeted and accurate rather than blind and random. ***Updated Info*** Here are the stats about the percentage of men who do NOT have an enlarged prostate. Date from YaleMedicine.org. 50% of men aged 51-60 do NOT have an enlarged prostate. 30% of men aged 61-69 do NOT have an enlarged prostate. 20% of men aged over 70 do NOT have an enlarged prostate. This means millions of men do NOT have an enlarged prostate and therefore the usual 4.0 upper range for "normal" PSA is actually abnormal! How many men end up with a more serious condition than necessary, even metastasis, because doctors routinely assume the prostate is enlarged and so ignore PSA numbers outright or are dismissive of patient concerns? This extreme under-reaction is at least as bad as the extreme over-reaction of doing biopsies at the slightest blip. This medical behavior is the result of the US Preventative Task Force's 2013 recommendation to not bother with PSA screening at all, and only slightly less extreme 2017 updated recommendations, which say doctors should not do PSA screening unless a patient specifically asks. A personal note: Over the course of several years, I had four consecutive doctors ignore my persistently high and increasing PSA numbers because they were below 4.0 at the time, only later to find out they were abnormal for the size of my prostate. The last of those four doctors actually refused to even order a PSA test as part of my routine annual bloodwork, with the statement that it was "not medically indicated". I had to do my own PSA test paid out of pocket in order to learn that my PSA had by then risen to 7.6 with what turned out to be 4+3 second stage / borderline 3rd stage tumors emerging from the gland. These doctors didn't give me the disease, but they ignored signs when it would have been easier to treat. I unnecessarily had to endure hormone therapy in addition to IMRT, and my prognosis for cure is 70% instead of 98%, all because this series of GPs were lazy or ignorant. I'm not sure why prostate cancer is given such second-class status by many in the medical community.
How long does Lupron Last I’m now on 11 months since I had a Single Lupron infection just before my 5 radiation treatments I’m still having hot flashes my cold ones seem to have gone. Is there any thing I can take? Thank you 🙏
My husband was recently diagnosed with metastatic prostate cancer with a PSA of only 7:2 and is startling Lupron and chemo in a few days. We were watching his PSA numbers and they were in the normal range 6 months ago. Where did we go wrong??
Hello Lynda, we are so sorry to hear about your situation and would love to help. Please feel free to contact our helpline and someone from our team will be able to speak with you and help you with your journey. Our contact information is here: pcri.org/helpline
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My PSA dropped from a 2.8 to a .3 on Degarelix after one month. I’m on Lupron now. I have a high Gleason score from my biopsy. Difficulty urinating led me to get treatment and they found the cancer.
You guys are great! Thanks so much!
You folks are great. So informative!!!
Thank you for this.
Stay strong and fight on!!! 🙏🏻❤️🙏🏻
yes.
My first PSA test was 5000 but after only 4 months of hormone treatment it dropped to 0.4. Seemed confusing to me. Doctor never even talked about Gleason anything. Say it was in my lymph nodes by biopsy. At 75 do I even keep getting the lupron shots as the overall effects are terrible. Cannot even get around and terrible day and night long sweats that bother my heart since on a pacemaker. They say this might increase my life but life on this is not life.
Even after 24 excruciating biopsy samples, the test missed the cancer in my seminal vesicle. No cancer detected in the front Prostate. The resulting infection almost killed me.
hi
does that mean it is not recommended to do the biopsy.
thanks
@@LeadAudit4490 When the needle passes through the colon and into the prostate, fecal matter is carried, chances of infection increases with the samples taken. Antibiotics are highly recommended.
@@stanknowlton7043
Thanks
@@LeadAudit4490 It's better to have an MRI done first, as it is painless, non-invasive, and will reveal crucial information including the size of the prostate, and the size/location of tumors. Based on the result of the MRI, you may not need a biopsy at all, but if you do need a biopsy it will be highly targeted because the techs will know exactly where to put the needle to hit the tumors.
Unfortunately, if a DRE or MRI reveals tumors, there is no choice but to go ahead with the biopsy, unpleasant as it can be. That is the only diagnostic tool for determining what type of cancer you have and how aggressive it is, and therefore the type of treatment that is needed.
If you do need a biopsy, make sure you are fully "cleansed" - don't take any shortcuts on the procedure. You will likely be given an antibiotic injection as well. If you happen to have an antibiotic on hand in your medicine cabinet, such as doxycycline, it's not a bad idea to take a dose of that before the procedure as an extra measure, but check with your urologist first. If you follow procedures, it's highly unlikely you will have a problem other than discomfort from the procedure itself.
Why would the MRI miss cancer?
Thank you.
In December 2020 my PSA was 960 my alkaline phosphatase was over 900. Been on lupron and Casodex for the last 6 months . Latest reading was 1.1 PSA alp is 215. 10 days ago started on zytiga. I lift weights 3 days a week and do cardio everyday. Take Pom t capsules twice a day. Eat mostly a plant-based diet with a little bit of fish and some chicken. And my fear is to become hormone resistant within a couple of years. Any thoughts? Or suggestions
There are many helpful Facebook groups...with other means of fighting cancer...Jane McLelland, mycancerstory, chrisbeatcancer, Curt Michael Artemisinin, etc. Off label drugs, supplements, etc.
Very informative video however I thought psa under 4 was more normal. The dr in this video speaks of psa levels less than 20 being in check. I am confused.
it has to do with age, 4 or less in younger or middle age is wanted, after 70 it can higher with no cancer, mine was 7 long ago with no cancer, but by number 17 it was cancer a few years ago, after a biopsy which was is not all that painful, (I had a good doctor) I was awake, my own choice , then later I had radiation and Lupron shots for one year, PSA is now a few years later always under .#1 and no more shots, I was the Dr. felt too old for surgery at age 78, and being able to hold urine after that is risky at that age that is with out a pad, so after age 72 they say an operation "can" leave you in need of a big diaper for the rest of your life, I'm past 80 and fine and had not much beside hot flashes from Lupron, but did notice some small memory loss, could be normal aging, that we do not know, but after mid 70's I'd never let them remove my Prostate, I had success with radiation, it does kill sexual ability though. Chemical castration basically is Lupron, but better then death from often spreading cancer, it killed my uncle at a far younger age than myself, so beware of your PSA going up fast, the key is how fast it rises, also pay more attention to men's health, which is pretty much ignored by the public, giving more attention to the female health problems, and that is partly cause men are more quiet about it, yet men have a shorter life expectancy than women do, nursing homes always seem to have more ladies, I once asked a nurse friend why? She said the men are more often dead by then!
The statement was indeed poorly presented in my opinion. If I had a PSA of, say, 15, I'd be freaking out and not dismissing it. However, in the context of the video I think what he was saying is: if you're older (say 75+), have blood in the urine, and your PSA test came in at 15, that's more likely some kind of nasty infection rather than cancer. I think that's what he was saying, otherwise out of context it seems like a strange and unwise statement to be making.
Regarding the other comment that says "it has to do with age", that's not exactly true. It actually has to do with prostate size. Age is used as a proxy for prostate size because normally we don't know our prostate size but we do know our age. Unfortunately, age is not a reliable proxy. When the statement is made that an acceptable PSA range for a 60 year old man is between 2.0 and 4.0, this range has the built-in assumption that the man has an enlarged prostate, as is indeed true for the majority of men. This is a dangerous assumption to be making if you happen to not be in the majority. Using your age as a proxy for your prostate size is a good way to get yourself killed.
A young man might typically have a prostate size of 20cc. A 40 year old might have one at 25cc. An 80 year old might have one at 60cc. The highest your PSA should be before being considered abnormal is about 10% of your prostate size, so in the above examples - the young man: 2.0, the 40 year old: 2.5, and the 80 year old: 6.0.
In my late 50's my PSA was between about 2.5 and 4.0 and I made the stupid mistake of following the lousy official advice that this was normal. I only found out later, after a tumor was detected by DRE, that my prostate size is a petite 25cc, so anything above 2.5 PSA would be abnormal for me, . The only way to determine your prostate size is to have an imaging scan done, such as MRI. The MRI will also reveal the size and location of tumors which will make a subsequent biopsy highly targeted and accurate rather than blind and random.
***Updated Info***
Here are the stats about the percentage of men who do NOT have an enlarged prostate. Date from YaleMedicine.org.
50% of men aged 51-60 do NOT have an enlarged prostate.
30% of men aged 61-69 do NOT have an enlarged prostate.
20% of men aged over 70 do NOT have an enlarged prostate.
This means millions of men do NOT have an enlarged prostate and therefore the usual 4.0 upper range for "normal" PSA is actually abnormal! How many men end up with a more serious condition than necessary, even metastasis, because doctors routinely assume the prostate is enlarged and so ignore PSA numbers outright or are dismissive of patient concerns?
This extreme under-reaction is at least as bad as the extreme over-reaction of doing biopsies at the slightest blip. This medical behavior is the result of the US Preventative Task Force's 2013 recommendation to not bother with PSA screening at all, and only slightly less extreme 2017 updated recommendations, which say doctors should not do PSA screening unless a patient specifically asks.
A personal note: Over the course of several years, I had four consecutive doctors ignore my persistently high and increasing PSA numbers because they were below 4.0 at the time, only later to find out they were abnormal for the size of my prostate. The last of those four doctors actually refused to even order a PSA test as part of my routine annual bloodwork, with the statement that it was "not medically indicated". I had to do my own PSA test paid out of pocket in order to learn that my PSA had by then risen to 7.6 with what turned out to be 4+3 second stage / borderline 3rd stage tumors emerging from the gland. These doctors didn't give me the disease, but they ignored signs when it would have been easier to treat. I unnecessarily had to endure hormone therapy in addition to IMRT, and my prognosis for cure is 70% instead of 98%, all because this series of GPs were lazy or ignorant. I'm not sure why prostate cancer is given such second-class status by many in the medical community.
How long does Lupron Last I’m now on 11 months since I had a Single Lupron infection just before my 5 radiation treatments I’m still having hot flashes my cold ones seem to have gone. Is there any thing I can take?
Thank you 🙏
My husband was recently diagnosed with metastatic prostate cancer with a PSA of only 7:2 and is startling Lupron and chemo in a few days. We were watching his PSA numbers and they were in the normal range 6 months ago. Where did we go wrong??
It’s the nature of cancer to grow and attack. Can’t just sit and watch it, unfortunately.
@@peacefulruler1 His PSA was in the normal range 6 months ago. His family doctor and urologist saw no red flags.
@@lyndagrace3044 biopsy? Pet scans? Get second opinions before doing any of that stuff.
Hello Lynda, we are so sorry to hear about your situation and would love to help. Please feel free to contact our helpline and someone from our team will be able to speak with you and help you with your journey. Our contact information is here: pcri.org/helpline
@@peacefulruler1 Of Course. Pet Scan, Biopsy and second opinion have all been done!