My husband is scheduled for brain surgery on September 5th. He has Been suffering since 2000 with this. He has no other options than surgery. 😢 prayers please
I’ve had TN for 15 years. Was in ‘remission’ for a few years. It came back and I saw this video. Called my dentist and he has a Tek-Scan machine and fixes bites all the time. I asked him to try that on me. After the first visit my shocks were almost gone. They were stopping my life. I have another appointment this week and he will work on me a bit more. It is so promising that I will tell the world about this possible solution for TN. It’s worth a try, right? At least try it before major surgery. Prayers for you 🙏🏻
22:30 omg. Ur patient just described my life for the past four years. And yesterday, my best friend, who is an RN discovered a condition called the infamous DROP ATTACK. I’m speechless. I have worked in emergency and trauma rooms for the past 24 years or so and I’ve never heard of this type of neurological condition. I’ve seen almost all specialists to no avail. I’ve had a TON of diagnosis including MAJOR surgeries like the placement of an LP shunt for psuedotumor cerebri. My spine is a TRAIN WRECK with significant injuries such as compression fractures, herniated, and bulging discs, annular tears and severe nerve pain completely, from my cervical spine all the way down. I AM SO SICK OF TAKING PILLS. THANK YOU 🙏❤🙏
I can’t begin to tell you how grateful I am that you made this video! I was diagnosed with TN in 2019 and after some dental surgery it did go away for a while, but it came back with a vengeance and I began getting piggy back attacks that lasted hours. Because of this video I was able to locate a list of DTR specialist and just today made an apt for a consultation. Like Kevin the protocol for TN did not make sense and the outcomes seemed temporary at best and risky with long term side effects in the worst case. The sightseeing in the neck area I feel too and my bite definitely feels off with a particular molar that can also trigger my attacks. Just do you have an idea how grateful I am, I’m my moms full time caregiver and she is paralyzed so my greatest concern is her well being. She was given only a year to live and she is thriving under my care going in 8 years now. This gives me so much hope for my future and hers. Time to start planning trips to the mountains again. God bless you!!! 💖🙏💖
GREAT VIDEO . Was nice to see something new , Unfortunately for me I did a round robin . first went t o the ent , then was referred to a neurologist who sent me away saying it wasn't a brain issue . then to a tmp specialist who I spent 2 grand on a mouthpiece, that just mad my mouth and jaw more sore every week . dentist swore I didn't have TN, but after a brain MRi , there it is a artery wrapped around the root . its been a long 5 months but I hope to get relief soon . but I must say they are both connected the tmp and the TN . my jaw seeems to trigger a lot of my attacks which are siesureish my right eye shuts and my face and lips get cryptic , like Godzilla smashing my head and rebar getting poked out of my face
I’m so sorry. I had this since 17 years ago prob before. Same dental to ent to dental to Tmj etc. diagnosed as classic migraines. I found the right doc Neuro. Just now I have it again 11/2023 to now. I go in to Ohsu may. Neuro surgeon. I had same medication. New mri says I have tn 2. Itp blood disorder, diabetes, one kidney it’s been tough. Radiation will be in too much for my kidney. I’m so sorry you’re having to do and deal with it too. This last couple months I’ve fallen and couldn’t get up. I had bbpv vertigo. You are explaining this so well. Down to a T. It’s finally calming down some. Not much. I also wear no lateral baha implant. Mine is on right side as well I’ve had to remove two dental implants. I hope you get feeling better. ❤❤❤❤. Your wife is a rockstar.
@@suzyashby1978 What was in MRI for tn2 diagnosis because MRI only tell compression on trigeminal never but how they told it is tn1 or tn2 and even normal people have contacts with nerve in there MRI without symptoms like my wife has sca artery touching nerve at 8mm but she don't have any symptoms MRI was done for other issues csf leakage and even at same time other lady has sca nearby nerve even at distal location and she has classic tn pain.So please explain how they told you it's tn2 from your MRI
im scared of surgery, ive been on gabapentin for 5 years now, 900mg a day and thankfully i just deal with "tooth ache" as my attacks...but they are slowly having to up it. because my neuropathy is getting worse throu out my whole body i have 2 different types, diabetic and trigeminal nuropathy.
@@edwynnacurrier7599surgery is not successful always , I will prefer gamma knife as one person got that in Japan and he had same artery nerve issue and he is ok from last 25 years ,I met him on reddit
I have been suffering from Trigeminal neuralgia since 2013. This past Monday, I had microvascular decompression surgery done. The medication and Botox shots were no longer keeping the symptoms and attacks at bay. Even though it is an aggressive surgery, it was the right choice For me due to the complications, they found on my trigeminal bundle. It’s important to do the research and find the right doctor.
I had trigeminal neuralgia for about 9 years. It always started in September time when the seasons change. Eventually I went to another dentist who checked my teeth including spraying a cold liquid on all teeth one by one. I jumped when she sprayed my back to left wisdom tooth. She took an xray and showed me that I had a deep filling. She extracted it. Haven't looked back since. No more pain or tegretol. Now I also take kefir regularly as someone told me it could be gut related. Either way something worked.
@@DrBenSutterEugene yes doctor, it was dreadful. I believe it was a chill that made its way up along the filling to the nerve and then turned into an infection. Frosty weather used to drive it crazy. I think it was ether the dentist used to diagnose it. I jumped with the cold. Thank God the pain is gone. Take care
@@DrBenSutterEugenesorry Dr, I must eat my words. I'm currently going through yet another attack of this dreadful TN. Do you know anyone in the UK who can do what you do?
What about the pain and suffering of patients suffering from multiple neurofibromatosis type 1 externally and internally and w ith extra large tumour in the spinal cord along with tiny cyst right now ocpital nerve upto to the tail bone with edima in the hippocampus region Bulge in the hip region and pelvic regions, pain are similar, any remedies and solutions please
@@umadev6077 hate that they DEPRIVE PEOPLE AT THEIR most vulnerable time. OF DIAGNOSIS, TREATMENTS, PAIN relief. They just want you insured for them to set up their charges. People stumble blindly trying to find answers regain normal healthy life FROM A MAIZE OF MANY different physicians
I’m having tn. I’ve had to go thru this once or twice before. Most of my adult life. My Neuro gave me that same med 300 mg twice a day and more and I have to take care of a teenager they offered me Valium in er I said no. I’ve now got tons of dizziness. When I lay down and it’s Random. My Neuro said I had to take This I said no. She would not even send me to ent and or dentists like my mri reference me to do. I hope my light headedness isn’t seizure activity. I have itp blood disorder one kidney diabetic type two. I hope I can get some one to work on me. I too lay on the floor I am way too dizzy to get up. Someone has to literally pull me up
I am going through the same thing here . All my doctor did was just prescribed carbamazepine. It doesn't really work it makes you very dizzy. But you have to wait until the pain goes away.
Lamotrigine I’ve had cluster headaches for more than seven years now been on many medications that do not work But I’ve been using a medication called lamotrigine for few years now and has helped immensely please talk to your doctor to try it.
I can feel an episode about to happen within the next 15 minutes. For the past four days I have had probably 20. I can’t do anything. I’m just waiting for it to hit and watching TH-cam to fill-in time before I get smashed in the head again.
I've had TGN for 13 years, when its at its worse I'd liken it to a taser to the face, doesn't last long, but the attacks are frequent. At the moment, it only occurs during eating talking cleaning my teeth. I'm taking carbamazepine and amitriptyline, which does help, but I do get break throughs. I also have had, during the 13 years, periods of complete remission.
I'm watching this from the UK. What do you call this treatment so I can make enquiries for treatment here. Many thanks, you have given me hope for the future
I’m supposedly moved up to the top priority list for the Glycerol treatment but have been told it’s not available for the last 6 months. We are seriously considering flying to Germany to get it.
My poor dad is in so much pain and it breaks my heart, will honestly do anything to see him relieved from the pain, it all started in 2020 and it has worsened ever since, we live in Nigeria and the medicine here is no where near what is available in the west, will definitely have to travel, but i have a question sir Ben, will going to India be a more cost effective option since you said there are indian doc who specialize in the same thing you do because the USA might be too costly ?
Doctor ben doctor ben do you not believe in the gamma knife probecause that is what they have me scheduled for in a few weeks. I live in Ohio and suffer badly. Do you think I should go through with the gamma knife procedure?
@@berniebennett6009 I cannot comment on whether or not you should undergo any specific treatment as I know nothing about your specific case. I am happy to do a phone consult with you if you want some questions answered before your Gamma Knife. 541-683-7500
Yeah, I was looking so forward. Does Gamma, Knife I had it done July 1, 2023 April 13 I woke up my jaw locked my whole top of my head completely numb and I couldn’t open my mouth for 30 seconds then concert started and then I got the backby my lips behind my ear on top of my ear across my forehead face, all numb after my life suffering all the time now
I was diagnosed yesterday. I had a friend and neighbour who went undiagnosed for 30 years so I knew what to say when I spoke to my Doctor. I told my Doctor that Id been watching lectures on you tube, he diagnosed me right there and then and out me on Tegretol 100mg morning and night. Tell them you know more than them and demand a diagnosis. Hope you’re ok.
I'm going through this right now, my 3rd case of it but I've got it in my legs. Tried to go to work today and got sent home, just waiting for my Amitriptyline to take effect. Worse pain ever!!!
Iv not been diagnosed fully yet , but Iv been in and out of hospital, dentist, finally I got to maxioffical unit who are referred me to a neurologist, but at this moment in time I haven’t slept properly for 7 days I’m on all the meds , pregablin, tetragol , pain killers and all week everyday all day having 2 minutes attacks , I’m losing hope and im not gonna make it thru this
Hang in there dear heart, I’ve had this for over20 years and feel so bad for you. Just take one day at a time, one hour if need be, it’s overwhelming to focus on .more. This is a frightening time but you will make it. Try to take good care of yourself
Pray this works for this guy but what he describes is classic TN. TN has been known to go dormant, sometimes for years and when it comes back it comes back with a vengeance. Husband has had for 32y he has had lots of procedures, surgeries, treatments, medicines etc it’s been a roller coaster of false hope, it always comes back 😢
I've had the same problems. TN pain always comes back. Had the mvd, glycerol (2x), rhinoblation - lost count. The dr said I shouldn't do it anymore. Radiation is next on my list.
My husband has been going threw this for 15 years .He is at a place in life where he can’t eat. He will soon be 84 n I’m 80 I don’t know what to do.His Dr. has been doctoring him for this from the beginning.
I would start looking here. www.digitalocclusionseminars.com/dtr-providers.html Not sure how many docs treat patients with a diagnosis of TN other than me.
My mother has this pain from last 15 years she is in so much pain everyday and it breaks our heart but couldnt do anything and taking tegritol and other pain killers nothing works she barely eat and go outside with us because she is too much scared of pain she its like someone is torturing you with tip of sharp needle in your eyes she means this pain is unbearable please help if somebody can we are living in Edmonton Alberta
@@DrBenSutterEugene Okay because....I had a TMJ MRI done in the past, and the radiologist stated that one of my condyles was "flattened" down at the top, and that it was probably something congenital. The MRI found no other pathology in my jaw joints. But if the TMJ MRI only shows soft tissue, then how did the radiologist see that?
Hi Doc. Im Patric, also a patient with TN (for over 15 years). I live in Johannesburg (South Africa). When i do a google search i don't see practitioners that offer DTR theraphy this side. Kindly assist if you know of any practitioner or hospital that provides such a treatment nearby.
That's what people say, but here we are with 2 different studies. No one is saying everyone has THIS problem. But it is true that many people have a dental issue that mimics TN and get misdiagnosed. Wishing you a speedy treatment and fast healing! God Bless!
Dr. I suffer from TN. Do you have a dentist or facial pain doctor in the Orlando, FL area that you could recommend? I was seen by a Facial pain dentist and prescribed carbamazipine and a dental guard. Thank you
Have tinnitus vertigo loss of balance pain beneath ear and sometimes face too also feels weight on head too and two days before I got admitted by ent doctor and advised for MRI and diagnosed by following Type 2 AICA LOOP IN RIGHT INTERNAL AUDITARY CANAL MILD ABUTMENT OF RIGHT TRIGRMINAL NERVE BY SUPERIOR CEREBELLAR ARTERY They suggested MVD surgery is there any other option other than drilling a hole in skull
This is common, and people that have had 4 premolar extractions are a challenge because with fewer teeth, it is difficult to balance the bite, but not impossible.
@@DrBenSutterEugene also feeling the same sometimes it is on one side of face and sometimes on the other side and sometimes on both sides.. is it TN or TMJ.. cause i remember i am having this TMJ issue like when i was just a child no pain nothing just the clicking sound... Right now when i am trying to close my jaw and what i am feeling is like one side teeths are matching with each other but on the TMJ side they are not closing properly
The answer is nothing. DTR is a treatment is a TMJ therapy. The point is many people diagnosed with TN really have a presentation of symptoms in their TMJ that looks like TN. check this out. th-cam.com/video/ZX_T0AO-ON0/w-d-xo.html
Good morning Dr. I'm TN patient. Since from 6 years I'm suffering from the pain I gone through all types of medicine like ayurveda, homeopathic, allopathic etc but still I'm suffering from severe pain. I can't eat, sleep can't able to talk whenever the pain starts. I am afraid to do MVD or redio sergoury. Plz guide me what to do. I'm from India. Need your guidance to stop this TN from my face. Thank you.
I had a tooth filled December 2021 (told them something wasn't right) and now diagnosed with trigeminal neuralgia. You know how it goes.. I'm surviving on medication. Please tell me if you have a contact near San Antonio, TX? If no I'd like to know more information. Willing to fly out for treatments. I'm desperate 😪 Erica
I currently have a trigeminal neuralgia patient from San Antonio. Happy to see you if you want, or we can start out with a phone consult... get some of your questions answered, then pick someone else closer if you like. Scott Pinkston is in Houston. (Katy, TX) he would be closer, but not sure how many TN cases he has completed. Hope that helps
That’s not TN! The drugs don’t work. Nothing kills pain like booze, I’m talking about tore up from the floor up hammered - didn’t touch the pain - nada. I was drunk, had a big old pity party but it didn’t even take the edge off of the pain.
I can't believe you are telling him to eat whatever??!! TN patients should not be eating bananas due to the potassium, Caffeine, tangy or spicey food etc....they all exacerbate the symptoms. Please read up on foods to avoid
![PASULOL รามเกียรติ์ ตอนที่ 4 นนทกพบรัก [Ramakien Ep.4: Nonthok in love]](http://i.ytimg.com/vi/tMUQgmZzf_A/mqdefault.jpg)
My husband is scheduled for brain surgery on September 5th. He has Been suffering since 2000 with this. He has no other options than surgery. 😢 prayers please
there are options which is the reason I make the videos. I will be praying for you both!
@@user-cw5yr5ew8o it is normal, he is doing fine
How'd it go?????
I’ve had TN for 15 years. Was in ‘remission’ for a few years. It came back and I saw this video. Called my dentist and he has a Tek-Scan machine and fixes bites all the time. I asked him to try that on me. After the first visit my shocks were almost gone. They were stopping my life. I have another appointment this week and he will work on me a bit more. It is so promising that I will tell the world about this possible solution for TN. It’s worth a try, right? At least try it before major surgery. Prayers for you 🙏🏻
I am so glad for you! Keep us posted!@@OnTheHookCrochetwithJeanne
22:30 omg.
Ur patient just described my life for the past four years. And yesterday, my best friend, who is an RN discovered a condition called the infamous DROP ATTACK. I’m speechless.
I have worked in emergency and trauma rooms for the past 24 years or so and I’ve never heard of this type of neurological condition.
I’ve seen almost all specialists to no avail. I’ve had a TON of diagnosis including MAJOR surgeries like the placement of an LP shunt for psuedotumor cerebri.
My spine is a TRAIN WRECK with significant injuries such as compression fractures, herniated, and bulging discs, annular tears and severe nerve pain completely, from my cervical spine all the way down. I AM SO SICK OF TAKING PILLS.
THANK YOU 🙏❤🙏
you are welcome!
I can’t begin to tell you how grateful I am that you made this video! I was diagnosed with TN in 2019 and after some dental surgery it did go away for a while, but it came back with a vengeance and I began getting piggy back attacks that lasted hours. Because of this video I was able to locate a list of DTR specialist and just today made an apt for a consultation. Like Kevin the protocol for TN did not make sense and the outcomes seemed temporary at best and risky with long term side effects in the worst case. The sightseeing in the neck area I feel too and my bite definitely feels off with a particular molar that can also trigger my attacks. Just do you have an idea how grateful I am, I’m my moms full time caregiver and she is paralyzed so my greatest concern is her well being. She was given only a year to live and she is thriving under my care going in 8 years now. This gives me so much hope for my future and hers. Time to start planning trips to the mountains again. God bless you!!! 💖🙏💖
Thank you! Pray for me to have the wisdom to help as many as I can. Kind Regards
I need help🙏
@@DrBenSutterEugene
How are you doing with TN Maggie?
GREAT VIDEO . Was nice to see something new , Unfortunately for me I did a round robin . first went t o the ent , then was referred to a neurologist who sent me away saying it wasn't a brain issue . then to a tmp specialist who I spent 2 grand on a mouthpiece, that just mad my mouth and jaw more sore every week . dentist swore I didn't have TN, but after a brain MRi , there it is a artery wrapped around the root . its been a long 5 months but I hope to get relief soon . but I must say they are both connected the tmp and the TN . my jaw seeems to trigger a lot of my attacks which are siesureish my right eye shuts and my face and lips get cryptic , like Godzilla smashing my head and rebar getting poked out of my face
But isnt artery and nerve contact is common in many asymptomatic people
I’m so sorry. I had this since 17 years ago prob before. Same dental to ent to dental to Tmj etc. diagnosed as classic migraines. I found the right doc Neuro. Just now I have it again 11/2023 to now. I go in to Ohsu may. Neuro surgeon. I had same medication. New mri says I have tn 2. Itp blood disorder, diabetes, one kidney it’s been tough. Radiation will be in too much for my kidney. I’m so sorry you’re having to do and deal with it too. This last couple months I’ve fallen and couldn’t get up. I had bbpv vertigo. You are explaining this so well. Down to a T. It’s finally calming down some. Not much. I also wear no lateral baha implant. Mine is on right side as well I’ve had to remove two dental implants. I hope you get feeling better. ❤❤❤❤. Your wife is a rockstar.
@@suzyashby1978 What was in MRI for tn2 diagnosis because MRI only tell compression on trigeminal never but how they told it is tn1 or tn2 and even normal people have contacts with nerve in there MRI without symptoms like my wife has sca artery touching nerve at 8mm but she don't have any symptoms MRI was done for other issues csf leakage and even at same time other lady has sca nearby nerve even at distal location and she has classic tn pain.So please explain how they told you it's tn2 from your MRI
I had the surgery and it seriously saved my life. I tried medication with no luck
im scared of surgery, ive been on gabapentin for 5 years now, 900mg a day and thankfully i just deal with "tooth ache" as my attacks...but they are slowly having to up it. because my neuropathy is getting worse throu out my whole body i have 2 different types, diabetic and trigeminal nuropathy.
@@edwynnacurrier7599surgery is not successful always , I will prefer gamma knife as one person got that in Japan and he had same artery nerve issue and he is ok from last 25 years ,I met him on reddit
I have done my TN surgery. It's now a week. I thank doctor F. Koech of tophill hospital Eldoret Kenya. The pain is over.
I have been suffering from Trigeminal neuralgia since 2013. This past Monday, I had microvascular decompression surgery done. The medication and Botox shots were no longer keeping the symptoms and attacks at bay. Even though it is an aggressive surgery, it was the right choice For me due to the complications, they found on my trigeminal bundle. It’s important to do the research and find the right doctor.
I had trigeminal neuralgia for about 9 years. It always started in September time when the seasons change. Eventually I went to another dentist who checked my teeth including spraying a cold liquid on all teeth one by one. I jumped when she sprayed my back to left wisdom tooth. She took an xray and showed me that I had a deep filling. She extracted it. Haven't looked back since. No more pain or tegretol. Now I also take kefir regularly as someone told me it could be gut related. Either way something worked.
That is a blessing that some found you answer regardless of what you were diagnosed with. Millions go on with no relief at all.
@@DrBenSutterEugene yes doctor, it was dreadful. I believe it was a chill that made its way up along the filling to the nerve and then turned into an infection. Frosty weather used to drive it crazy. I think it was ether the dentist used to diagnose it. I jumped with the cold. Thank God the pain is gone. Take care
@@doey2099 BLessings to you
@@DrBenSutterEugenesorry Dr, I must eat my words. I'm currently going through yet another attack of this dreadful TN. Do you know anyone in the UK who can do what you do?
@@doey2099 no one in the UK is certified unfortunately
I just had my first attack. Same- I thought I needed a root canal. Next day ended up in hospital screaming for 7 hours
there is no pain like this, I am so sorry.
What about the pain and suffering of patients suffering from multiple neurofibromatosis type 1 externally and internally and w ith extra large tumour in the spinal cord along with tiny cyst right now ocpital nerve upto to the tail bone with edima in the hippocampus region Bulge in the hip region and pelvic regions, pain are similar, any remedies and solutions please
@@umadev6077
hate that they DEPRIVE PEOPLE AT THEIR most vulnerable time.
OF DIAGNOSIS, TREATMENTS, PAIN relief. They just want you insured for them to set up their charges.
People stumble blindly trying to find answers regain normal healthy life
FROM A MAIZE OF MANY different physicians
I’m having tn. I’ve had to go thru this once or twice before. Most of my adult life. My Neuro gave me that same med 300 mg twice a day and more and I have to take care of a teenager they offered me Valium in er I said no. I’ve now got tons of dizziness. When I lay down and it’s Random. My Neuro said I had to take This I said no. She would not even send me to ent and or dentists like my mri reference me to do. I hope my light headedness isn’t seizure activity. I have itp blood disorder one kidney diabetic type two. I hope I can get some one to work on me. I too lay on the floor I am way too dizzy to get up. Someone has to literally pull me up
I am going through the same thing here . All my doctor did was just prescribed carbamazepine. It doesn't really work it makes you very dizzy. But you have to wait until the pain goes away.
I'm on carbamazapine and it works.
Lamotrigine
I’ve had cluster headaches for more than seven years now been on many medications that do not work
But I’ve been using a medication called lamotrigine for few years now and has helped immensely please talk to your doctor to try it.
Am going through the same here 😫😭😢
I can feel an episode about to happen within the next 15 minutes. For the past four days I have had probably 20. I can’t do anything. I’m just waiting for it to hit and watching TH-cam to fill-in time before I get smashed in the head again.
I've had TGN for 13 years, when its at its worse I'd liken it to a taser to the face, doesn't last long, but the attacks are frequent. At the moment, it only occurs during eating talking cleaning my teeth. I'm taking carbamazepine and amitriptyline, which does help, but I do get break throughs. I also have had, during the 13 years, periods of complete remission.
I'm watching this from the UK. What do you call this treatment so I can make enquiries for treatment here.
Many thanks, you have given me hope for the future
It's called DTR. Here are a few Dentists Certified. www.digitalocclusionseminars.com/united-kingdom.html
I almost went to the hospital the pain is extreme.
I’m supposedly moved up to the top priority list for the Glycerol treatment but have been told it’s not available for the last 6 months. We are seriously considering flying to Germany to get it.
I I'm going through it right now...I'm in NY and I need help
Look up Dr Steve Roth. www.digitalocclusionseminars.com/dtr-providers.html
Interesting how he equates it to a seizure. I used to just black out from TN attacks but recently been just screaming and hitting the deck.
I think the severe pain response is different depending on neural circuitry
My poor dad is in so much pain and it breaks my heart, will honestly do anything to see him relieved from the pain, it all started in 2020 and it has worsened ever since, we live in Nigeria and the medicine here is no where near what is available in the west, will definitely have to travel, but i have a question sir Ben, will going to India be a more cost effective option since you said there are indian doc who specialize in the same thing you do because the USA might be too costly ?
here is a list of DTR Certified providers. www.digitalocclusionseminars.com/dtr-providers.html
Pls try acupuncture treatment with single needle very affective
My Neurosurgeon is sending me to another specialist to have a gamma knife procedure. I am looking forward to not being suicidal.
I hope that is the answer!
Doctor ben doctor ben do you not believe in the gamma knife probecause that is what they have me scheduled for in a few weeks. I live in Ohio and suffer badly. Do you think I should go through with the gamma knife procedure?
@@berniebennett6009 I cannot comment on whether or not you should undergo any specific treatment as I know nothing about your specific case. I am happy to do a phone consult with you if you want some questions answered before your Gamma Knife. 541-683-7500
Yeah, I was looking so forward. Does Gamma, Knife I had it done July 1, 2023 April 13 I woke up my jaw locked my whole top of my head completely numb and I couldn’t open my mouth for 30 seconds then concert started and then I got the backby my lips behind my ear on top of my ear across my forehead face, all numb after my life suffering all the time now
Thank you. I'm at beginning stage, not formerly diagnosed yet
I was diagnosed yesterday.
I had a friend and neighbour who went undiagnosed for 30 years so I knew what to say when I spoke to my Doctor. I told my Doctor that Id been watching lectures on you tube, he diagnosed me right there and then and out me on Tegretol 100mg morning and night.
Tell them you know more than them and demand a diagnosis.
Hope you’re ok.
I'm going through this right now, my 3rd case of it but I've got it in my legs. Tried to go to work today and got sent home, just waiting for my Amitriptyline to take effect. Worse pain ever!!!
Iv not been diagnosed fully yet , but Iv been in and out of hospital, dentist, finally I got to maxioffical unit who are referred me to a neurologist, but at this moment in time I haven’t slept properly for 7 days I’m on all the meds , pregablin, tetragol , pain killers and all week everyday all day having 2 minutes attacks , I’m losing hope and im not gonna make it thru this
Hang in there dear heart, I’ve had this for over20 years and feel so bad for you. Just take one day at a time, one hour if need be, it’s overwhelming to focus on .more. This is a frightening time but you will make it. Try to take good care of yourself
@@anbond5054 thank you 😊 helps to not feel alone 🥰
Pray this works for this guy but what he describes is classic TN. TN has been known to go dormant, sometimes for years and when it comes back it comes back with a vengeance. Husband has had for 32y he has had lots of procedures, surgeries, treatments, medicines etc it’s been a roller coaster of false hope, it always comes back 😢
I've had the same problems. TN pain always comes back.
Had the mvd, glycerol (2x), rhinoblation - lost count. The dr said I shouldn't do it anymore. Radiation is next on my list.
@@lisag-b7661did not mvd help you??
My husband has been going threw this for 15 years .He is at a place in life where he can’t eat. He will soon be 84 n I’m 80 I don’t know what to do.His Dr. has been doctoring him for this from the beginning.
Ruby, where are you located?
I am 75 and just had this diagnosis after 29 yrs.
@@bettyb88ga
i am so sorry, most doctors really dont deal with this and it is poorly taught in schools.
Is there a TN specialist anywhere near KY? That has had success. I just want to be normal again. This started right after having a tooth filled.
I would start looking here. www.digitalocclusionseminars.com/dtr-providers.html Not sure how many docs treat patients with a diagnosis of TN other than me.
@@DrBenSutterEugene
Thanks for the link. I'll check for Ohio.
I have this,everything he is saying about the pain is true, I had 2 surgeries an my pain still comes an go, awful to live with
Does anyone get zaps throughout the body from TN??
Where can I go in ny? My dentist thought I was crazy. She said to me she never heard of this pain before.
@@michellecarratu4611 www.digitalocclusionseminars.com/dtr-providers.html
@michellecarratu4611 you are not crazy, she is ignorant.
@@DrBenSutterEugene thank you so much. Does acupuncture help?
@@michellecarratu4611 I bet it could, but any improvement would be short lived until whatever etiology of the symptoms is corrected/
My mother has this pain from last 15 years she is in so much pain everyday and it breaks our heart but couldnt do anything and taking tegritol and other pain killers nothing works she barely eat and go outside with us because she is too much scared of pain she its like someone is torturing you with tip of sharp needle in your eyes she means this pain is unbearable please help if somebody can we are living in Edmonton Alberta
www.digitalocclusionseminars.com/dtr-providers.html Curtis Westersund is in Calgary
Does a CBCT Scan show if there is internal derangement within a person's jaw joints?
only bone seen in in CBCT, also we employ Joint Vibration Analysis.
@@DrBenSutterEugene
How about a TMJ MRI....Does that show only soft tissue and not bone, then?
@@rainbow20112011 YES, CBCT, boney structures, MRI Soft tissue
@@DrBenSutterEugene
Okay because....I had a TMJ MRI done in the past, and the radiologist stated that one of my condyles was "flattened" down at the top, and that it was probably something congenital. The MRI found no other pathology in my jaw joints.
But if the TMJ MRI only shows soft tissue, then how did the radiologist see that?
Help me please, I’m in so much pain. How do I get in touch with this Doctor?
Just call the office. 541 683 7500
Please tell me what is DTR?
Hi Doc. Im Patric, also a patient with TN (for over 15 years). I live in Johannesburg (South Africa). When i do a google search i don't see practitioners that offer DTR theraphy this side. Kindly assist if you know of any practitioner or hospital that provides such a treatment nearby.
Unfortunately no one in Africa is Trained.
Where are you located? I’ve lost several teeth from my TN and I can’t find any help. I’ve had a lot of different drs, meds, shots. No relief 😢
I am in Eugene OR
Any doctor in Pennsylvania or near ,thx
@@brahimbelkadi6414 Dr Alex George www.digitalocclusionseminars.com/dtr-providers.html Tell her I said hello
Sounds encouraging but does it trully go away for good?
There are a few multi year post op videos on here following the therapy.
FYI this isn't a dental issue.
That's what people say, but here we are with 2 different studies. No one is saying everyone has THIS problem. But it is true that many people have a dental issue that mimics TN and get misdiagnosed. Wishing you a speedy treatment and fast healing! God Bless!
Does Kevin have a history of a a head injury and does he have a styloid on his right side?
im in Delaware you have any in the tristate area
nvm i found dr yu
thank you sooo much
www.digitalocclusionseminars.com/dtr-providers.html@@HavikkGamez
You were quicker than me
Dr. I suffer from TN. Do you have a dentist or facial pain doctor in the Orlando, FL area that you could recommend? I was seen by a Facial pain dentist and prescribed carbamazipine and a dental guard. Thank you
No one in FL at the moment is certified.
@DrBenSutterEugene
Do you know of any Dr. In Ohio, that is certified?
NO, I am in FL and do not know one here.
I dont understand a thing about the procedure. Is it with a dentist? I have this condition for 13 years already. Can someone explain please?
Hello, How long is the treatment and how many times Needed to be done in order to get a better result? Thanks
generally 4-6 visits, each visit 1 month apart. But that can vary widely from person to person
@@DrBenSutterEugeneDr. What’s your contact information?
@@1974tcj the office is 541-683-7500
Any recommendation for doctors in Houston?
Scott Pinkston or Colin Lathrop
I am in Houston also. Did you ever find anyone you’d recommend?
Could you please send me the adresse in Germany? I cant find it. Thank you ❤
DR. LENNARD BERTRAM
DTR Certified
Ostersteg 52, 26789 Leer (Ostfriesland), Germany
Office: +49 491 63388
Appointments: zahnarztpraxis-bertram.com
@@DrBenSutterEugene thank you 👍🏻❤️ its only 100 Kilometer far away
Can you refer to a doctor in CA? I really need the help.
here is the list of providers. www.digitalocclusionseminars.com/dtr-providers.html
Hi, can you recommend someone in Sweden, Stockholm?
Unfortunately no but here is a list in nearby countries. www.digitalocclusionseminars.com/dtr-providers.html
Hello. Do you know of any dentists/doctors offering DTR in the UK please?
No one in UK is certified. Closest is Denmark or Germany
@@DrBenSutterEugene Thank you so much for your help.
@@sarahwooffitt4360 I hope you find your answer!
Have tinnitus vertigo loss of balance pain beneath ear and sometimes face too also feels weight on head too and two days before I got admitted by ent doctor and advised for MRI and diagnosed by following
Type 2 AICA LOOP IN RIGHT INTERNAL AUDITARY CANAL
MILD ABUTMENT OF RIGHT TRIGRMINAL NERVE BY SUPERIOR CEREBELLAR ARTERY
They suggested MVD surgery is there any other option other than drilling a hole in skull
That is what these videos are all about.
Wer macht sowas in Deutschland? Ich freue mich über eine Antwort! Danke
Ostersteg 52, 26789 Leer (Ostfriesland), Germany
Office: +49 491 63388. DR. LENNARD BERTRAM
Gern geschehen
Is there anyone in Canada doing this procedure?
@juliamccrea7887 where you at in Canada 🇨🇦?
How often does trigeminal neuralgia comes back after surgery
There are no good studies on this, but it is a known thing that it can com back as bad or worse than original pain.
Do you need all your teeth for the dtr treatment to work , for 19:42 example had premolar extractions for orthodomic, wisdom tooth removed.?
This is common, and people that have had 4 premolar extractions are a challenge because with fewer teeth, it is difficult to balance the bite, but not impossible.
Is OK to be treated for muscular tmj by a certified dtr with premolars extracted. @@DrBenSutterEugene
@@DrBenSutterEugene is it OK to be treated by dtr certified dentist, for muscular tmj with 4 premolar teeth extracted. As I live in uk
@@Smile-rd5fn yes, I have treated many with 4 premolar extractions
How do you treat trigiminal neuralgia? Which procedure?
it is in the title, DTR!
@@DrBenSutterEugenewhat does DTR stand for?
Never mind found it.
@@virginiagonzales3653 Disclusion Time Reduction
@@virginiagonzales3653 Disclusion Time Reduction
@forbeautifulsmiles Can bite issues create TN like issues on both sides of the face ? Thank you
yes it can
@@DrBenSutterEugene also feeling the same sometimes it is on one side of face and sometimes on the other side and sometimes on both sides.. is it TN or TMJ.. cause i remember i am having this TMJ issue like when i was just a child no pain nothing just the clicking sound... Right now when i am trying to close my jaw and what i am feeling is like one side teeths are matching with each other but on the TMJ side they are not closing properly
What's DTR?
Any in New York? What’s dta stand for?
DTR stands for Disclusion Time Reduction. Steven Roth in Manhattan.
How about in Indonesia 😢
No one there certified.
Any doctors in chicago land area??
Yes, 3 docs in south bend indiana
I still don't know What is DTR to do with TN. Can any one tell me, please?
The answer is nothing. DTR is a treatment is a TMJ therapy. The point is many people diagnosed with TN really have a presentation of symptoms in their TMJ that looks like TN. check this out. th-cam.com/video/ZX_T0AO-ON0/w-d-xo.html
What is DTR? Can anyone tell me, please?
Ting, DTR=Disclusion Time Reduction. th-cam.com/video/cT758gAHHxA/w-d-xo.html This might be a great place to start.
can you do one on one calls?
Yes I do, many of them. But they have to be scheduled. Just call the office and one of the team members will hook you up. 541-683-7500
Iam diagnosed with Hemicrania Continua, it has similiar symptoms, would this help for that? Maybe Im misdiagnosed with HC
Could be! The best thing to do is to come in for a consult, and lets take a look.
Are you aware of any DTR dentists in Sydney Australia
Dr David Lee. www.digitalocclusionseminars.com/dtr-providers.html
Good morning Dr. I'm TN patient. Since from 6 years I'm suffering from the pain I gone through all types of medicine like ayurveda, homeopathic, allopathic etc but still I'm suffering from severe pain. I can't eat, sleep can't able to talk whenever the pain starts. I am afraid to do MVD or redio sergoury. Plz guide me what to do. I'm from India. Need your guidance to stop this TN from my face. Thank you.
you have DTR Providers in India. search for DTR Certified providers, then choose one. Best of luck!
Hello i am also from india.. apki problem thik ho gye kya and india main konse doctor ko dikhaya apne?
Update??
I have a tiny vessel in close proximity to the cisternal right trigegminal nerve root entry zone what mm should I be worried 😊
@@Stayhumblestayfocusedstaybless what is in MRI exact wording ??
I had a tooth filled December 2021 (told them something wasn't right) and now diagnosed with trigeminal neuralgia. You know how it goes.. I'm surviving on medication. Please tell me if you have a contact near San Antonio, TX? If no I'd like to know more information. Willing to fly out for treatments. I'm desperate 😪
Erica
I currently have a trigeminal neuralgia patient from San Antonio. Happy to see you if you want, or we can start out with a phone consult... get some of your questions answered, then pick someone else closer if you like. Scott Pinkston is in Houston. (Katy, TX) he would be closer, but not sure how many TN cases he has completed. Hope that helps
@@DrBenSutterEugene yes extremely interested
@@loopcheckphones 541 484 1955 ask for deb, call tomorrow morning
How much is treatment?
That’s not TN! The drugs don’t work. Nothing kills pain like booze, I’m talking about tore up from the floor up hammered - didn’t touch the pain - nada. I was drunk, had a big old pity party but it didn’t even take the edge off of the pain.
I can't believe you are telling him to eat whatever??!! TN patients should not be eating bananas due to the potassium, Caffeine, tangy or spicey food etc....they all exacerbate the symptoms. Please read up on foods to avoid
Thank you so much for the feedback! God Bless.
Good day do you have a number i can call please i am having this thing so bad😊
541-683-7500 but the office is closed for a remodel after flooding. We open again Aug 7th
Thanks I will do