I’m having HSCT at the moment yes so fast and the GSCF injections made me have excruciating muscle spasms and no painkillers worked. They gave me three injections to boost the blood cells. Worst pain in my life and I’ve broke bones before. Glad you didn’t get that side effect
I'm so sorry to hear you went through that, Jason. It sounds awful. My reaction to the first lot of GSF injections was much more painful than this. But still nowhere near as bad as what you're describing. Compared to a lot of the stories I've head, I think my HSCT experience was relatively trauma free. A lot of rubbish stuff, for sure, but I was still very lucky
HSCT for MS I’ve had my cells harvested now and I go back in after September for the chemotherapy and transplant. I’m not looking forward to the heavy chemotherapy part to be honest but it’s got to be done. I’m glad to have your videos to have a reference to go by and I have also made videos of my HSCT experience too but they are not as well made as yours 🙂 hats 🎩 off buddy. Onto the recovery and stay safe MS warriors 🤜🏻🤛🏻
@@jasonmordecai8212 I'm glad all went ok with the harvest. I think the chemo impacts everyone differently - I was wiped out, but didn't feel that sick. It wasn't as bad as I thought it might be (but I really do appreciate that I was quite lucky). I'm so pleased the videos have been helpful. I remember trying to find something before I went in - but had no luck. It's great to hear you've been filming - have you enjoyed doing it? (It gets quite addictive!) Good luck over the next month. I remember those couple of weeks after...next thing was hair!
HSCT for MS thanks mate and yes “the hair” is falling out already 😄 from my first dose of chemotherapy. It took me by surprise to suddenly wake up with a very sensitive scalp and hair all over my pillow so I have had it cut short to save the worry of huge amounts laying on my pillow. I kind of find the filming addictive being a photographer but non of the nurses and the hospital allow being filmed so I have to be discreet and ask permission. My stuff is only worth doing for a blog if and when I get round to making it. BTW how long does the scalp sensitivity last if you completely shave you head? Anyway keep up posting mate because I am the 8th person in Singapore to have this procedure done so the web is the only place I can get info on this type of information for MS (it’s a godsend)
Haha, yes - nurses never seem to be keen to be on camera! Some of them relaxed a little (not a lot, lol) after they got to know me while I was in isolation. I had a sensitive scalp for a few months. Much longer than I expected. You should definitely make something of what you've shot though - the whole thing is such a blur, it helps to remember. And helps other people looking to do the treatment. I got soooooo much editing done during lockdown!
Hey Chris, I finally got round to watching, I've been so busy (ha ha, in lockdown). I think the thing I'll take away from this is so not piss on my pyjamas. Oh, and bring stuff to entertain myself. I'm taking my lap top and I have a million things to do on there that Iv'e been putting off as I haven't got time ( we have 3 primary aged kids, did I mention not having spare time). Entertaining as usual
Hi Catherine. Not at all, you watched it faster than my mum did! Haha! As a takeaway, not pissing on your pyjamas is a good one. That was a good life lesson for me, generally! Stuff to entertain yourself is vital, or you'll go mad - editing for me was relentless, but gave me something to think about for 12 hours a day! Laptop is a good plan! And yes, spare time with 3 primary age kids - hahahahahahahaahaha! (You won't have to say it, but I'll know the truth...there's something quite nice about isolation! No cooking, dishes, no cleaning...)
Hi Abdul. I'm good, thank you. From January I had my energy back and felt back to normal - wasn't getting ill all the time anymore (hurrah!). Covid has mostly kept me in the house (returned to work for 3 weeks, lol), but I feel 99% back to normal
I’m having HSCT at the moment yes so fast and the GSCF injections made me have excruciating muscle spasms and no painkillers worked. They gave me three injections to boost the blood cells. Worst pain in my life and I’ve broke bones before. Glad you didn’t get that side effect
I'm so sorry to hear you went through that, Jason. It sounds awful.
My reaction to the first lot of GSF injections was much more painful than this. But still nowhere near as bad as what you're describing.
Compared to a lot of the stories I've head, I think my HSCT experience was relatively trauma free. A lot of rubbish stuff, for sure, but I was still very lucky
HSCT for MS I’ve had my cells harvested now and I go back in after September for the chemotherapy and transplant. I’m not looking forward to the heavy chemotherapy part to be honest but it’s got to be done. I’m glad to have your videos to have a reference to go by and I have also made videos of my HSCT experience too but they are not as well made as yours 🙂 hats 🎩 off buddy. Onto the recovery and stay safe MS warriors 🤜🏻🤛🏻
@@jasonmordecai8212 I'm glad all went ok with the harvest. I think the chemo impacts everyone differently - I was wiped out, but didn't feel that sick. It wasn't as bad as I thought it might be (but I really do appreciate that I was quite lucky).
I'm so pleased the videos have been helpful. I remember trying to find something before I went in - but had no luck. It's great to hear you've been filming - have you enjoyed doing it? (It gets quite addictive!)
Good luck over the next month. I remember those couple of weeks after...next thing was hair!
HSCT for MS thanks mate and yes “the hair” is falling out already 😄 from my first dose of chemotherapy. It took me by surprise to suddenly wake up with a very sensitive scalp and hair all over my pillow so I have had it cut short to save the worry of huge amounts laying on my pillow. I kind of find the filming addictive being a photographer but non of the nurses and the hospital allow being filmed so I have to be discreet and ask permission. My stuff is only worth doing for a blog if and when I get round to making it. BTW how long does the scalp sensitivity last if you completely shave you head? Anyway keep up posting mate because I am the 8th person in Singapore to have this procedure done so the web is the only place I can get info on this type of information for MS (it’s a godsend)
Haha, yes - nurses never seem to be keen to be on camera! Some of them relaxed a little (not a lot, lol) after they got to know me while I was in isolation. I had a sensitive scalp for a few months. Much longer than I expected. You should definitely make something of what you've shot though - the whole thing is such a blur, it helps to remember. And helps other people looking to do the treatment. I got soooooo much editing done during lockdown!
Hello from America... I've never heard a nurse say "sharp scratch" to answer your question. 💉
Ahhhh....it is a completely British anomaly then!
I am now conditioned to it though. Somehow it hurts more if they don't say it! Haha!
I'm an American nurse and have never said nor heard that before hahaha 😂
Hey Chris, I finally got round to watching, I've been so busy (ha ha, in lockdown). I think the thing I'll take away from this is so not piss on my pyjamas. Oh, and bring stuff to entertain myself. I'm taking my lap top and I have a million things to do on there that Iv'e been putting off as I haven't got time ( we have 3 primary aged kids, did I mention not having spare time). Entertaining as usual
Hi Catherine. Not at all, you watched it faster than my mum did! Haha!
As a takeaway, not pissing on your pyjamas is a good one. That was a good life lesson for me, generally! Stuff to entertain yourself is vital, or you'll go mad - editing for me was relentless, but gave me something to think about for 12 hours a day! Laptop is a good plan!
And yes, spare time with 3 primary age kids - hahahahahahahaahaha! (You won't have to say it, but I'll know the truth...there's something quite nice about isolation! No cooking, dishes, no cleaning...)
Hey , how are you doing now after all the HSCt? Everything progressing positive but slowly?
Hi Abdul. I'm good, thank you. From January I had my energy back and felt back to normal - wasn't getting ill all the time anymore (hurrah!). Covid has mostly kept me in the house (returned to work for 3 weeks, lol), but I feel 99% back to normal