Raynaud’s Phenomenon : What You Should Know | Johns Hopkins Medicine

แชร์
ฝัง
  • เผยแพร่เมื่อ 10 ธ.ค. 2024

ความคิดเห็น • 63

  • @erefiam
    @erefiam 5 ปีที่แล้ว +97

    Personally, if I put my fingers under hot water I will be done for quite a few days. Even lukewarm water feels like fire when my fingers are frozen and numb and I may even feel a shock through my spine. Although the whole video sure is informative, I believe this is more than a bit brutal to your poor fingers. People, PLEASE DON'T put your numb and cold fingers under hot water.

  • @rosehudson2039
    @rosehudson2039 4 ปีที่แล้ว +319

    Me crying because I’m happy I’m not the only one with this

    • @beanbag965
      @beanbag965 4 ปีที่แล้ว +15

      All good bro i did this too

    • @tobyaaa7269
      @tobyaaa7269 4 ปีที่แล้ว +6

      Ayyyeee

  • @badass1g
    @badass1g 4 ปีที่แล้ว +118

    Finally finding that this is what my issue has been. It gets worse every year. I’m embarrassed to shake peoples hands because my hands are cold as hell, esp in the winter. My feet are also always way cold to the touch. Gonna go see a specialist soon hopefully get some help or medication.

  • @pumpkinpie7254
    @pumpkinpie7254 5 ปีที่แล้ว +29

    So painful and did I mention EMBARRASSING ??? At the supermarket checking eggs before bringing them home in the dead of summer, ugh ! If the pain wasn't the worst part of having this is THERE'S NO WARNING ... This meaning all of a sudden your fingers start to feel numb, tingle, throb and hurt then as you look they're white ... By this time it's too late as you frantically try to find warm area's ( as your out in public ) to quickly warm them up ... Getting circulation back is never fast enough ... It is said you should rub your hands together ? yeah right the pain is so intense that rubbing hurts and doesn't do anything ... Oh and don't even get me started with running your hands under warm water ( who has running warm water available when this occurs ) ??? This nasty disease effects my fingers and toes ( sometimes my feet as well ) ... I've been suffering with this for 7 yrs and it's terrible ...

  • @sketch__5972
    @sketch__5972 6 ปีที่แล้ว +267

    I've had this literally my entire life tho.

    • @georgianakatambo7894
      @georgianakatambo7894 6 ปีที่แล้ว +1

      Sketch __ its sounds like you solved it. How did you do it?

    • @AngelRosentkillerQueen
      @AngelRosentkillerQueen 4 ปีที่แล้ว +9

      Same here. Alot of people in my family have it

    • @tinawhite5310
      @tinawhite5310 4 ปีที่แล้ว +5

      I’ve had this since I was born

    • @tobyaaa7269
      @tobyaaa7269 4 ปีที่แล้ว +5

      Ive had it my entire life aswell idk y tho

    • @squirrel3443
      @squirrel3443 4 ปีที่แล้ว +1

      Oh really now? How’s it feel then? We’re you diagnosed?

  • @feequestrian
    @feequestrian 5 ปีที่แล้ว +27

    I got raynaud's when I was 7 and I have had it for the rest of my life.

  • @yhwhhelpme7161
    @yhwhhelpme7161 4 ปีที่แล้ว +52

    I have this since I was born it's so annoying, like I could be playing my video game and my fingers get so cold that I can't feel the buttons on the controller.

  • @hollyw5311
    @hollyw5311 4 ปีที่แล้ว +45

    I get this very often on all of my fingers and most of my toes and it’s always when i go outside when it’s not that cold but just a little. i have to come inside put gloves on and sit on them for 10-15 minutes🤷‍♀️

  • @sierracollins1383
    @sierracollins1383 4 ปีที่แล้ว +17

    My grandmother has this and she is almost 70, she has all her fingers and toes. I have this and I am 17.

  • @ldna9352
    @ldna9352 4 ปีที่แล้ว +43

    Bawling my eyes out cuz I don’t wanna lose my fingers and toes 😭

  • @lpalmer90
    @lpalmer90 4 ปีที่แล้ว +11

    Had this all my life. Now in my 40s

  • @livherman2047
    @livherman2047 5 ปีที่แล้ว +25

    It’s really weird - I was born with secondary raynauds which the doctor who diagnosed me (the 14th we went to see)said he’d never seen before

  • @swackyduk
    @swackyduk 4 ปีที่แล้ว +18

    Yeah I basically inherited this from my mam and now I have this

  • @missmedic5720
    @missmedic5720 4 ปีที่แล้ว +17

    Love this channel. Encouraged me to start my own on medical education.

  • @alanoud2439
    @alanoud2439 4 ปีที่แล้ว +12

    I have a small portion of it on my thumb, and it keeps turning white when I’m cold, I heard that this will heal a bit but won’t go away, but it’s so annoying....

  • @mkbluster3899
    @mkbluster3899 6 ปีที่แล้ว +21

    I am 23 and I'm through this.

    • @bp9414
      @bp9414 4 ปีที่แล้ว

      My son is 13

  • @brittanypage1706
    @brittanypage1706 5 ปีที่แล้ว +12

    Does this include the nose and ears as well?

  • @Cabb4ge.
    @Cabb4ge. 3 ปีที่แล้ว +11

    I've had this since I was 14, except my entire hand changes colour. It cuts off at my wrist.

  • @MadHatterDJ-
    @MadHatterDJ- 4 ปีที่แล้ว +12

    I have this happen twice now in a couple of months. Two fingers went white then blue/purple. Completely out of nowhere. I'm 43 and don't know of any heath problems, it's a worry.

    • @badass1g
      @badass1g 4 ปีที่แล้ว +1

      I had the same thing happen a few times now. Good times!!

  • @estercrlns
    @estercrlns 5 ปีที่แล้ว +6

    I am 19 and i have this right now on my finger foot. What should i do

  • @bhumphries1360
    @bhumphries1360 4 ปีที่แล้ว +9

    Wow this video was very informative. Thank you.

  • @annyandthebaers
    @annyandthebaers 6 ปีที่แล้ว +31

    I've had this for years and my doctor's keep telling me it's probably primary and not secondary. It's just really scary though no being a hundred percent sure. Coz what if you're like really sick? I guess you never know unless you're getting checked out completely.

    • @pumpkinpie7254
      @pumpkinpie7254 5 ปีที่แล้ว +6

      Trust me you'll know if it's secondary ... Secondary is related to your bodies response to handling cold items from the fridge or freezer etc ... Your body WILL also respond to an air conditioner that is set too high.

    • @missyh1991
      @missyh1991 5 ปีที่แล้ว +2

      Anna Stangl are you anemic? I have celiac disease and I was very malnourished so I think mine is from that.

    • @sarahharrington7549
      @sarahharrington7549 4 ปีที่แล้ว +2

      I actually don't know what I have. My doctor said it was primary but I showed no symptoms at all until after I took a prescribed medicine to get rid of a rash...

  • @laurynembree6430
    @laurynembree6430 4 ปีที่แล้ว +9

    I have secondary reynaud and I get horrible blisters and ulcers I have is fairly young l am only 14 but I have been diagnosed but there haven't been many answers the one bad thing us when I warn up even a little bit it burns and fees like fire so that is great

    • @gabutterfly2855
      @gabutterfly2855 4 ปีที่แล้ว +3

      I go thru this same issue. So painful when the fingets warm back up. Hope you feel much better.

  • @JordyJayHomer
    @JordyJayHomer 2 ปีที่แล้ว +11

    I suspect I had primary Raynaud's. After 4 or 5 winters of experiencing it (I cycle a lot on cool evenings), mine went away when I stopped taking echinacea and started taking 3000 to 4000 iu of vitamin D daily. It might be a coincidence or a placebo effect, but, oh well......

  • @joaopedroanjos2769
    @joaopedroanjos2769 5 ปีที่แล้ว +19

    My sister has this, I’m trying to understand it a bit better 😔

    • @oompaloompa1840
      @oompaloompa1840 4 ปีที่แล้ว +3

      Jowopydro my siblings make fun of me bc i have it-

    • @Timetraveler1111MN
      @Timetraveler1111MN 4 ปีที่แล้ว +1

      Jowopydro I’m on a great support group on Facebook really been helpful

  • @godwinmoshi1485
    @godwinmoshi1485 6 ปีที่แล้ว +13

    thank you so much. this is so helpful
    more contents please

    • @shraddhapandey840
      @shraddhapandey840 6 ปีที่แล้ว +1

      I hv secondary raynoud ..is it recoverable?

    • @EnbyAsher
      @EnbyAsher 4 ปีที่แล้ว

      @@shraddhapandey840 It's a chronic illness, so no, it doesn't go away

  • @gretegrunmann3881
    @gretegrunmann3881 5 ปีที่แล้ว +16

    Finally found it..

  • @Akbar2022-
    @Akbar2022- 4 ปีที่แล้ว +8

    Is this disease for life long.

    • @swackyduk
      @swackyduk 4 ปีที่แล้ว +2

      akbar pasha yes I have it, it could get better but yes it is life long

  • @حيدرشهيدخليل
    @حيدرشهيدخليل 4 ปีที่แล้ว +2

    fantastic explain

  • @remouys5362
    @remouys5362 5 ปีที่แล้ว +5

    Anyone else who loose their nails after the winter because of Raynaud's...

  • @dcantwell119
    @dcantwell119 5 ปีที่แล้ว +4

    I have it in hands and toes

  • @19AGJ86
    @19AGJ86 3 ปีที่แล้ว +7

    Anybody here because of David Goggins?

  • @Neeko_Z
    @Neeko_Z 2 ปีที่แล้ว +4

    I heard a wim hof podcast. I believe it was this… cold water immersion of the hands can make it go away if I remember correctly

  • @theresamurphy6554
    @theresamurphy6554 5 ปีที่แล้ว +7

    Channel blocker what I use also been hospitalized this disease is no joke gotta know ya Temp so u WONT go under an attack

  • @mariabonilla5732
    @mariabonilla5732 5 ปีที่แล้ว +5

    I have lupus and my Raynauds make my hands inches

  • @NTac_Tic
    @NTac_Tic 4 ปีที่แล้ว +2

    Is it only the fingers tho? got it in both hands and feet. my hole hand changes color in squares...

    • @kenaliane708
      @kenaliane708 4 ปีที่แล้ว +5

      mines on my feet! it can also be on your nose, ears, and lips!:)

  • @jigarsolanki2499
    @jigarsolanki2499 4 ปีที่แล้ว +1

    Thanks

  • @edwardbennett959
    @edwardbennett959 6 ปีที่แล้ว +4

    I have it and I'm a dude and 29

  • @immadisarojini2775
    @immadisarojini2775 3 ปีที่แล้ว +5

    Lose fingers on secondary raynaud 😱

  • @Sufis.kitchen
    @Sufis.kitchen 5 ปีที่แล้ว

    I..have systemic sclerosis since...20008......I have this problem......😭

  • @Sun.Shine-
    @Sun.Shine- 4 ปีที่แล้ว +4

    I have mild version of this!