But why it happens after covid? From what I can say - I started having POTS for the first time in my life right after my first covid infection. I couldn't stand even for 30 seconds. I was laying down all the time, just occasionally walking to the toilet etc. It lasted a year and nothing improved. Then I forced myself to sit, walk and exercise, started taking iron tablets in amounts that one takes for anemia and after 2 weeks I was walking again and my pulse subsided from 130-140 to 80. I was living a normal life for 6 months. Then I got covid again and POTS came back with the same 130-140 heart rate upon standing. So in this case, it has to do something with the virus. But what?
So sorry you have had to go through that!! I am not a medical expert and can’t offer medical advice. I can say that Dr. Levine says prolonged periods of being sedentary can trigger POTS. But the exact connection to Covid is still unclear. They need more funding for research to better understand it. But you are definitely not alone!
@@thelight1385 Exactly. I developed POTS when I was skinny, fit, active & young. My first symptoms developed around 17. I hiked, played soccer, farmed, loved working out etc. He was very wrong on that comment. But guess what, I do have hEDS & MCAS. I didn't become sedentary until hEDS, POTS and MCAS began debilitating my life as I aged. My POTS symptoms come and go. It hits me hardest during hEDS or MCAS flares, menstrual cycle, extreme temp shifts, or any illness. You had a wonderful point. If POTS happened due to being sedentary then a lot of people would have it and it wouldn't be some new thing being figured out. It was most definitely a slap in the face. I am deconditioned now bc everything has taken its toll. I most definitely wasn't then when POTS symptoms started showing up. I'm not dismissing this element of treatment, but his sedentary comment was total bs.
I was an avid basketball player…I played 4-5 days a week 2-3 hours a day…I NEVER sat around…I got Covid and was over it in a matter of 2-3 days. A week or so after I started playing ball again I was pulling up to practice and I got out of the car and instantly regretted it. My heart rate jumped from (my resting hr) 50bpm to about 120bpm and I was just getting out of the car, I got confused and dizzy and felt my heart pounding…I immediately went to the hospital where they ran every test you can run because me 160lb athlete my whole life with NO medical conditions couldn’t stand up. They ended up giving me fluids and told me I was probably just dehydrated….this lasted for about two months and I got down to about 138 pounds and was admitted to the hospital because I couldn’t eat I couldn’t sleep I couldn’t do anything. I stayed for a week until I was diagnosed with POTS. I looked at them like they were crazy. “POTS is a girl disease”, I’m here to tell you I’m very much a man and I very much have this disease and I’m glad after roughly 3 years it’s starting to get some recognition with all the new cases due to Covid.
@@CartersChambers I am the author of the original comment, just got diagnosed with Tethered Cord Syndrome. Turns out I had this my whole life and covid 'activated' it. You should do lumbar spine MRI lying on your stomach and check if you have a bunch of hair on your back in the lumbar area. This can be one of the symptoms.
Interesting!
But why it happens after covid? From what I can say - I started having POTS for the first time in my life right after my first covid infection. I couldn't stand even for 30 seconds. I was laying down all the time, just occasionally walking to the toilet etc. It lasted a year and nothing improved. Then I forced myself to sit, walk and exercise, started taking iron tablets in amounts that one takes for anemia and after 2 weeks I was walking again and my pulse subsided from 130-140 to 80. I was living a normal life for 6 months. Then I got covid again and POTS came back with the same 130-140 heart rate upon standing. So in this case, it has to do something with the virus. But what?
So sorry you have had to go through that!! I am not a medical expert and can’t offer medical advice. I can say that Dr. Levine says prolonged periods of being sedentary can trigger POTS. But the exact connection to Covid is still unclear. They need more funding for research to better understand it. But you are definitely not alone!
The problem is seems like ACE2 and ANG convertions.
@@thelight1385 Exactly. I developed POTS when I was skinny, fit, active & young. My first symptoms developed around 17. I hiked, played soccer, farmed, loved working out etc. He was very wrong on that comment.
But guess what, I do have hEDS & MCAS. I didn't become sedentary until hEDS, POTS and MCAS began debilitating my life as I aged. My POTS symptoms come and go. It hits me hardest during hEDS or MCAS flares, menstrual cycle, extreme temp shifts, or any illness.
You had a wonderful point. If POTS happened due to being sedentary then a lot of people would have it and it wouldn't be some new thing being figured out. It was most definitely a slap in the face. I am deconditioned now bc everything has taken its toll. I most definitely wasn't then when POTS symptoms started showing up. I'm not dismissing this element of treatment, but his sedentary comment was total bs.
I was an avid basketball player…I played 4-5 days a week 2-3 hours a day…I NEVER sat around…I got Covid and was over it in a matter of 2-3 days. A week or so after I started playing ball again I was pulling up to practice and I got out of the car and instantly regretted it. My heart rate jumped from (my resting hr) 50bpm to about 120bpm and I was just getting out of the car, I got confused and dizzy and felt my heart pounding…I immediately went to the hospital where they ran every test you can run because me 160lb athlete my whole life with NO medical conditions couldn’t stand up. They ended up giving me fluids and told me I was probably just dehydrated….this lasted for about two months and I got down to about 138 pounds and was admitted to the hospital because I couldn’t eat I couldn’t sleep I couldn’t do anything. I stayed for a week until I was diagnosed with POTS. I looked at them like they were crazy. “POTS is a girl disease”, I’m here to tell you I’m very much a man and I very much have this disease and I’m glad after roughly 3 years it’s starting to get some recognition with all the new cases due to Covid.
@@CartersChambers I am the author of the original comment, just got diagnosed with Tethered Cord Syndrome. Turns out I had this my whole life and covid 'activated' it. You should do lumbar spine MRI lying on your stomach and check if you have a bunch of hair on your back in the lumbar area. This can be one of the symptoms.
thank god for an amazing doctor!