Generation 0 - Episode 1 - Familie med muskelsvind

Malia og Alfred er to af Danmarks mest sjældne børn. I dette afsnit af Generation 0 lærer vi vores familier at kende. Hvorfor er børnene så sjældne? Hvilken diagnose har børnene, som gør dem til nogle af Danmark mest sjældne, og hvilken behandling har de fået?
I Generation 0 følger vi to familier med et barn med en sjælden diagnose.
Deres guldklumper Malia og Alfred er et mirakel. For bare syv år siden var der ingen behandling, og de ville ikke have overlevet. Takket være ny banebrydende forskning i spinal muskelatrofi (SMA) er hverdagen nu en anden.
Hvilke sorger, glæder og livsforandrende øjeblikke vil familierne opleve, som den første generation af overlevere. Vi følger Malia, Alfred - og deres familier. Velkommen til Generation 0.
Generation 0 er udgivet i Muskelsvindfonden på siden Pærspektiv.dk.
Hvad synes du, de næste afsnit skal handle om? Skriv det i kommentaren.
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Malia and Alfred are two of Denmark’s rarest children. In this episode of Generation 0, we get to know their families. Why are these children so rare? What diagnosis makes them among Denmark’s rarest, and what treatments have they undergone?
In Generation 0, we follow two families with a child diagnosed with a rare condition.
Their little treasures, Malia and Alfred, are nothing short of a miracle. Just seven years ago, no treatment existed, and they wouldn’t have survived. Thanks to groundbreaking research in Spinal Muscular Atrophy (SMA), their everyday lives look very different today.
What sorrows, joys, and life-changing moments will the families experience as the first generation of survivors? We follow Malia, Alfred, and their families. Welcome to Generation 0.
Generation 0 is published by the Muscular Dystrophy Foundation, "Muskelsvindfonden," on the website Paerspektiv.dk.
What do you think the next episodes should be about? Write it in the comments.