As a double amputee, stories like these really show me that I could have it worse so I need to be thankful. I am so glad she accepted herself. She didn't have to show her tumors because they are in a hidden place. But at the same time I am glad she did. Her story will change someone's life out there. I see my channel inspiring many people out there, and I bet her story will inspire someone out there to accept themselves the way they are. If it cannot be healed or fixed, it should be accepted the way it is to be happy
"It's hard to be a woman in this condition" Really very difficult in this world that pressures women to look a certain way. You are a fighter and a good one.
As a person living with both scoliosis and ankylosing spondylitis, I know how difficult it is to not feel not just defined but limited by our illnesses. It’s easy to fall into the trap of measuring the value of your life by all the things that you can’t do. Unless you make the conscious decision not to, it’s also easy to develop a victim mentality and to feel sorry for yourself. And once that begins, it’s difficult to break the bonds of victimhood. It’s taken me many, many years to realize that we all have limitations, and we all have things we just can’t do, but our lives don’t have to be about all that. I have finally learned that instead of being pissed off at the world for all the stuff in your life that seems so unfair, you gotta take stock of all that and then learn to be thankful for all you CAN do and all you DO have because it’s THOSE things that you can build your life and your success on. I often think of the words of former First Lady Eleanor Roosevelt who explained that no one can make you feel inferior without your consent. So no matter how hard and cold the world can seem, never give in to the negativity and the victimhood game. You’re only truly broken as long as you believe you are. Once you realize that everyone has their limitations, you can begin to concentrate on all the good stuff in your life that’s just waiting to shine!
I admire your stamina and courage in having to deal with all these conditions in which you must adapt daily, I imagine. I think you are accepting yourself and being an inspiration for others. Thanks for sharing. Love that smile!
I just watched this and I just couldn't help but think you are truly beautiful. I'm in the Peoria area and have 2 kids 2 and 4 and would love more mothers like yourself to surround myself with. Your motivation to change spoke right to my heart and more of us women need to lift each other up regardless the reason. God bless you Vanessa and your beautiful family.
I have NF1 also, in my case the tumors are in my body against my spine, when i turned 23 i got paralized from my Neck down for 90 % . Now i am 40 still in my electric wheelchair but i am doing oké. Much love from the netherlands
I have NF as well. I am undergoing my second surgery in January to remove some superficial tumors. I’ve had a cluster of plexiform fibromas removed in June, which I am very thankful was removed early, as the risk of it growing and becoming cancerous was high. Best of luck to you!
Hannah Hetzel I’m so sorry to hear that! I know what dealing with your own body not being trustable since I’m disabled by Crohns rheumatoid arthritis and another unknown genetic issue. Take your time and push doctors for what you need. Be your own advocate and good luck man.
Hannah Hetzel California has a great Dr in California that specializes in NF. Stay strong and keep fighting. I have quite a lot of issues with my health as well. Blessings to you
It’s selfish to have children when you know they’re gonna have your condition. You just said it yourself, it is hard living with your condition. Why would you want that for a child?
As someone who’s covered in scars from my ( unborn) twin who sadly didn’t develop so I took on its nerves I’ve only just become confident with my scars . Through music ive produced I’ve been able to feel good about myself . This girl rocks! X
There are no "perfect people". You are wonderfully made the way you are. I'm glad you made this video, and I hope you continue to share your triumphs with the rest of us. You have a beautiful family and I can see that your a nurturing mom. ROCK ON GURL.!!!!
Yes that disgusting person should be ashamed of herself giving that living nightmare of a disease to an innocent life, her son. she is as cruel as a cold-blooded killer.
Loving u from far away. As a mother who lost a child, I have to say that I’m sure your parents, family, and friends love you so much that no matter what you go through internally you are so loved. Sometimes it’s hard to see that and I never thought I would say that I am actually thankful that the Lord took my baby because she would be in this terrible world if she was here. So there’s reasons for the adversities we go through, we might not know the reason now, but hopefully when we pass on, we will. God put you through this for some reason. I’m not going to say that God doesn’t give us things we can’t handle, because I don’t believe that. I believe that whatever God does is for good reasons that we might not know. Girl, you even have a man… I don’t
Thank you for sharing... her fiancé has a big heart, a beautiful heart. He is a far better man than i am... I hope one day I could grow to have such a heart that can see the beauty within a person. and not get caught up with their outward appearance.
All my problems are on the inside(I have an emotional disorder) but hers are on the outside and she is so brave to show it off to the world STAY STRONG.
My heart breaks to see you experience daily physical pain, your strength, beauty, endurance is so inspiring, your souls shines bigger then you may think possible. Much love, blessings to you and your little family.
I don't think she realises how pretty she is I think she's beautiful and such a strong woman too, She should be so proud of herself all those operations and she's still so positive
I happen to have scoliosis as well,and right after I finished this video I got up and put on my back brace for the first time in months. Thank you for the beautiful story and inspiration
Conditions like the ones she has are truly heartbreaking. You can feel the pain in her voice. She has a sweet voice and a sweet disposition and feels like she would be an amazing person to have in your life. I hope that she can overcome and see that no matter what anyone says she is still an amazing person and a beautiful woman.
*Omg she's so beautiful, from the tip of her toes to the depths of her soul ❤️* *May God bless her with the strength she needs to get through each day 🙏💕*
This story gives me chills (in a good way). Thank you for staying brave and preserving through this all. Stay blessed and strong for your son. He is a handsome little boy. :)
It's hard for me to cry but you've made me cry so hard. When you said you were a teenager, and not developing the same.. those are hard years for just anyone to get through. You are an amazing, beautiful and honest woman. Thank you for sharing your story.
I was feeling really bad for her and was really impressed by her courage and strength until I found out she gave it to her child. There are so many orphaned children in need of good homes, I will never understand these selfish people who have severe disorders and disabilities that are hereditary and still create biological children. It should be illegal. Using donated eggs from a healthy woman is also an option if you really want to carry the baby yourself. If you don't want to adopt or use a stranger's eggs and don't mind someone else carrying the baby, you can find a surrogate willing to use her own eggs, or you might be able to find a friend or family member willing to donate their eggs. There are many options other than forcing an innocent baby to suffer for the rest of their life. Also, if the father-to-be has the bad gene, you can use donated sperm as well.
Thank you! And then that kid has a kid with that condition.. and they have kids... you are spreading the disease... If you want to "find a cure" don't reproduce 😑 because it will continue if you pop them out
I was born with spina bifida, scoliosis and other health conditions too so I have a understanding of the fight of acceptance of self and of others. May this be another step forward in your life. No one knows exactly how another feels but I can assure you that I hope and pray that your physical ailments are somehow healed and that you and your families lives are filled with love, joy and everlasting peace. Shalom to all.👍🙏💗🙋
Thank you Vanessa! I was feeling worn out and just basically THROUGH, all this month. But you have had so much to contend with, more than any five people should have to suffer through that you and your son have snapped me out of it. Thank you for sharing your family and your story.
Yeah it looks like it does hurt the doctor thought I had a tumor in my uterus last year after he asked me twice if I was pregnant and I was like no. I was just fat I guess but it’s a better than a tumor I was kind of relieved nothing was bad wrong I had other problems too
ALL PRAISE TO YAH!! YOU ARE BEAUTIFUL SIS AND YOUR FAMILY!! IM SO PROUD OF YOU YOU ARE PERFECT IN YAH EYES AND THATS ALL THAT MATTER! YOUR HUSBAND AND YOUR SON LOVES YOU VERY MUCH WHAT A BLESSING!! KEEP LOOKING UP SIS!! SHALOM!!
I don't know what you've gone through, nor do I know anyone like you. But I will tell you this much. You're an inspiration to so many. && I wish you && your family the best.
My friends cousin recently passed at 38 from Neurofibromatosis (NF). I came to know about him and the horrendous tumors that made him ill from the inside. Many many surgerys and he was so sweet of a young man with his little white dog. I never met him in person but I was so sad when I heard these tumors took him. I cried. Life is just never fair. I wish for you better Vanessa.
Anne He was my friends cousin not mine. My friend shared the journey and plight of his cousin. I knew a lot about him and the multiple devastating surgerys he endured. He couldn't physically do much anymore as it exhausted him. He was a sweet young man and adored his little white dog. What a comfort that dog was to him too. I don't believe we have to actually know someone to feel deep empathy for them. I tend to be that way. I can somewhat feel their lives and that brings it closer to my heart. That was in part my experience with my firends cousin. I felt I knew him some and the story was so mixed with his joys and his difficulties. A physilogical condition that really never goes away shadows your life daily although he surly had joys too. It's all very sad to think how much we take for granted when others suffer so. Truly.
Love the husband!!! Soo supportive, and sweet! You can def see that his love and positivity has given her so much more confidence and self esteem!!! You go girl! && rock on amazing hubby!
Your soul shines baby girl....too much pain is put into our physical body....The Good Lord made u for his pleasure...shine on u beautiful diamond !!!! Let nothing take away from your shining sweet soul and your beautiful family I wish the world had more people like u!~!
U R BLESSED N THAT PRETTY SMILE.N I ALWAYS THOUGHT I WOULD NOT WALK OR WRITE OR WASH MY SELF AFTER I HAD MY STROKE. BUT HERE I AM GOD IS GOOD.BLESSIN TO YOU N UR FAMILY. HAPPY HOLIDAYS TO U. MY U HAVE A GOOD ONE.PS YOUR NEW FRIEND ME
At 12 years old I found out that my youngest daughter had spinal kyphosis and she had surgery to insert two rods and 49 pins in her back. She was bent over at almost a 40 degree angle and if it wasn't for me being persistent they never would have found out what was wrong with her! She is now 21 and in veterinary school she has already completed her four-year degree and she will be going on to Ohio State next winter. It's great to see that this young lady is continuing on to enjoy her life!
I’ve been reading the comments, and I wasn’t expecting as much hate as I saw. My heart dropped when I saw some of the things people have said, calling her stupid and selfish. It’s not selfish! With a genetic disorder there isn’t a 100% chance it will follow through to the child, so there’s always a chance the child of the carrier won’t get it. What she did was her choice and her choice only. Some of these people don’t need to try and control her life telling her she can’t have kids. *But* I did see some very wonderful comments toward her and her family, and that’s absolutely amazing. She’s human just like everybody else in this world. There’s no such thing as normal, people! We all have something about us that makes us different, but we’re still humans and we need to learn to respect that. She has her own choices and decisions, and that’s perfectly fine. That woman should be proud of herself for all the stuff she has had to go through. ❤️❤️
Vanessa is strong, positive and very intelligent. She knows about her condition and that helps her be braver for herself and for her son. Daniel and Vanessa are a wonderful couple. May this family have many blessings.
My husband had scoliosis and was concerned while we were dating if his humps bothered me...I told him what mattered was what was inside his heart. We were married 30 years and I miss him everyday
Really puts things into perspective watching these videos.Theres always someone going through worse than you so try not to complain about petty things.Bless the three of them.
I cannot understand how ppl can give a thumbs down on this story. I am sure normal human's who doesn't have any issues are doing that. She was born with it . It wasn't her choice.. God bless ❤
Natalie Killer I wrote the exact comment above. I don’t understand why there aren’t enough people in the comments expressing the same. I know she loves her child and has a deep desire to have a child. But like you said... “why not adopt”? I think this was selfishness on her part. I’m sure someone must have suggested adoption some time in her life.,Now this child will suffer just as she is. Why would any mother make her child ill? Doesn’t she think that every time she looks at him?. There should be laws against this.
@@Orlanzepol123 i agree. I mean i understand a woman's desire to have her own kids, but if she knew it was possible to pass this horrible thing on (she keeps saying "pain, pain, it's a lot of pain"), why would she potentially make another human suffer? And not only does her son have the physical issues that she has, he also had a mental disability....it is so sad. She could foster kids and help them thrive. I just do not get it. Selfish.
Thank god there are still a few reasonable people left on this earth. Makes me restore some faith in humanity. Most comment sections are littered with people who find every disease and especially diseases passed on to children amazing and beautiful out of political correctness, yet they wouldn't want to trade with those people or their poor kids for a million $.I would never want to pass a painful condition on to my child or even take the risk.
@@cooliipie someone's teeth don't necessarily become THAT white after just brushing them "L O L" and it's no secret that white teeth are a beauty standard in the us more than elsewhere thus having bleached teeth is pretty normal there
Oh my God. I admire how strong your ordeal has made you. May Allah grant you full recovery and good health. Your courage inspires me. You are loved ❤ My best wishes to you all the way from Egypt to the States :)
@@debraingram6915 everyone is entitled to believe whatever they want. To me Allah is the only God I believe in. Let's agree to disagree here and pray to any God we believe in for the happiness and well-being of this courageous lady.
I am sorry, and I deeply emphasize with this lady, but I could never ever put this burden upon a child. I don't understand how anybody with genetic conditions plays Russian roulette like that for seemingly selfish reasons.
@@minagligoric8600 I am all for living adventurously. There is, however, a threshold where this becomes an actual gamble between life and death. No need to risk anything over this threshold.
I'm guessing her son was either accidental (nothing wrong with that, so was I) or that she and her fiance couldn't afford adoption or genetic intervention, both of those things are super expensive. I get it from both angles, I have a genetic condition myself, one that causes me quite a lot of pain, I don't think I would risk having a child without genetic counseling but I don't think we should judge her either.
@@lotrgirl275 Having a child is not an adventure. On the other hand, if you don't want a child, that is completely fine too. It is none of your business if someone has a child with a disability though.
I did research on neurofibromatosis! We used mice to help find a cure and better treatment ...This is why animal research is so important so that this young lady can have a life of less pain even though she is definitely striving and beautiful
I know this lady has suffered a lot physically and psychologically so I am sympathetic. However, I don’t think am ok when people have kids of their own knowing there is a chance they can pass on their condition or illness to their child. She knows the pain of living with her condition. Why would she risk her child having to deal with the same grief ? To me it just seems selfishness on her part. I couldn’t live thinking that I’m the reason my child is ill or has my condition. Does anyone else agree? And I am very much aware with the desire for a woman to want to give birth and to that I say that they can adopt a healthy child or a child with special needs. I know that a person can love an adopted child as their own.
The way u speak so comfortable about ur story I don't know how you stay so positive but yet u do u have come so far having all these operations living with those tumours the pain u went through and go through everyday cant imagine how that must have felt for u ,can't have been easy for u ur still alive u have a partner and son u r blessed with ur son and a loving partner keep going girl don't give up I know sometimes things get hard but seeing how happy u are with ur son smiling playing with him u look so happy keep smiling
Please don’t give up and be strong for your son and don’t let ppl or the world bring you down. You are a strong lady god will solve your problems keep praying to him he will give you an answer soon
U are really beautiful no matter wat God bless you and ik hw u feel I been dealing wit alot myself since I was a kid and I never wanted to come outside and do kid things I'm still dealing wit wat I'm going through now and it's hard I'ma keep u in my prayers
You’re adorable. :) I never knew this condition existed. I’m sorry you’ve suffered so much physically and emotionally. I can’t imagine the giant leap to accept and love yourself and I’m glad for whatever path it took to set you free. How blessed are all the people that will find strength courage and support through your outreach. God bless you and your little family. ❤️ (I am a “young” grandma of 8.) :)
She’s so beautiful and doesn’t need “the perfect body” she’s already perfect because she herself and she’s positive and a really great person and she has a beautiful family her son is so precious
U R GORGEOUS BOTH INSIDE N OUT GOD BLESS U WIT A HANDSOME SON AND FIANCEE WHO WILL ALWAYS BE THEIR FOR U SO THEREFORE U R TO BLESS TO BE STRESS 😇😇👈👈💙❤💜💑👶
nøc yes and also i know what i’m talking about. I have the exact disease as her, so i know more then all of you. So i wouldn’t question what i say if you know nothing about it
Girrrrrl, you are one of the coolest people out there. I'm looking at your pictures thinking that nothing holds you back. I had to turn up the volume to hear what the story was about. Please don't cry. You don't NEED to become a better person. You are already better than most. I'm truly sorry you're hurting, but what a beautiful life/energy you share.
You go girl! Remember that not having some typical physical female characteristics, such as breasts, doesn't make you any less of a woman!
Hania P. Amen!
This is the most positive comment on this video. Thank you!
Hello? Having no breasts and a small bumm? This qualifies you as a catwalkmodel. There's nothing prettier than an open honest smile.
it does tho
What is "typical female characteristics" ?? Its not typical, its biology.
As a double amputee, stories like these really show me that I could have it worse so I need to be thankful. I am so glad she accepted herself. She didn't have to show her tumors because they are in a hidden place. But at the same time I am glad she did. Her story will change someone's life out there. I see my channel inspiring many people out there, and I bet her story will inspire someone out there to accept themselves the way they are. If it cannot be healed or fixed, it should be accepted the way it is to be happy
I'm sorry for asking, but what is a double amputee?
@@scaredface347 double meaning 2x means they have lost 2 parts of their body. That's the only explanation I have so hope it helps.
@John Syzlack literally just click her name and you'll see she has no legs 🙄😑
Are you going to comment about you "as a double amputee" under every video??
@John Syzlack you are such a bastered
So sad, im glad she is able to stay positive.
I think that to every one
"It's hard to be a woman in this condition" Really very difficult in this world that pressures women to look a certain way. You are a fighter and a good one.
She's stronger than she thinks! This woman is amazing 💜💜
🚹🚺🚹🛐☯️✔️✔️✔️✔️☑️✔️✔️✔️✔️✔️✔️
I’m glad she stayed positive even with the tumors :)
Ikr she's pretty
Yes
Tumours*****
May your life be filled with happiness joy and luxury. May health be with you
Ew
First you should say health
Amen
@@rileybauman1915 shut up!
Amen..
As a person living with both scoliosis and ankylosing spondylitis, I know how difficult it is to not feel not just defined but limited by our illnesses. It’s easy to fall into the trap of measuring the value of your life by all the things that you can’t do. Unless you make the conscious decision not to, it’s also easy to develop a victim mentality and to feel sorry for yourself. And once that begins, it’s difficult to break the bonds of victimhood. It’s taken me many, many years to realize that we all have limitations, and we all have things we just can’t do, but our lives don’t have to be about all that.
I have finally learned that instead of being pissed off at the world for all the stuff in your life that seems so unfair, you gotta take stock of all that and then learn to be thankful for all you CAN do and all you DO have because it’s THOSE things that you can build your life and your success on.
I often think of the words of former First Lady Eleanor Roosevelt who explained that no one can make you feel inferior without your consent.
So no matter how hard and cold the world can seem, never give in to the negativity and the victimhood game.
You’re only truly broken as long as you believe you are. Once you realize that everyone has their limitations, you can begin to concentrate on all the good stuff in your life that’s just waiting to shine!
I admire your stamina and courage in having to deal with all these conditions in which you must adapt daily, I imagine. I think you are accepting yourself and being an inspiration for others. Thanks for sharing. Love that smile!
Girl you are brave and beautiful
Aislinn B don’t like about beauty
Beautiful inside and out...
dont lie
Radio10 what’s your problem
@@therealestdrea nothing see is not beautiful on the outside liying will give false hopes
She beautiful on the outside too just...not...on the stomach........
Her attitude towards life and personality is beautiful... 😊
I hope it won't affect her son as much as it has affected her😢❤️
Her voice is so soothing and beautiful.
I just watched this and I just couldn't help but think you are truly beautiful. I'm in the Peoria area and have 2 kids 2 and 4 and would love more mothers like yourself to surround myself with. Your motivation to change spoke right to my heart and more of us women need to lift each other up regardless the reason. God bless you Vanessa and your beautiful family.
"She's like a rainbow" , sweetest comment ever
I have NF1 also, in my case the tumors are in my body against my spine, when i turned 23 i got paralized from my Neck down for 90 % . Now i am 40 still in my electric wheelchair but i am doing oké. Much love from the netherlands
Omg beste wensen voor jou :(
Dank je
I have NF as well. I am undergoing my second surgery in January to remove some superficial tumors. I’ve had a cluster of plexiform fibromas removed in June, which I am very thankful was removed early, as the risk of it growing and becoming cancerous was high. Best of luck to you!
Hannah Hetzel I’m so sorry to hear that! I know what dealing with your own body not being trustable since I’m disabled by Crohns rheumatoid arthritis and another unknown genetic issue.
Take your time and push doctors for what you need. Be your own advocate and good luck man.
Hannah Hetzel California has a great Dr in California that specializes in NF. Stay strong and keep fighting. I have quite a lot of issues with my health as well. Blessings to you
I’m seen at CHOP and Penn Medicine, my team is so great! They always have my best interest in mind :)
Hannah Hetzel aww I’m so sorry :(
Hannah Hetzel, I hope you also get better. You can also be a brave fighter just like Vanessa. 💓💓
Despite your condition,your a very strong woman.God is merciful.Your an inspiration.Your beautiful in and out😍
It’s selfish to have children when you know they’re gonna have your condition. You just said it yourself, it is hard living with your condition. Why would you want that for a child?
I'm so happy she isn't afraid of showing her body because it just proves how strong she is. You're amazing girl, much love💕
At least she's having a good life now
As someone who’s covered in scars from my ( unborn) twin who sadly didn’t develop so I took on its nerves I’ve only just become confident with my scars . Through music ive produced I’ve been able to feel good about myself . This girl rocks! X
There are no "perfect people". You are wonderfully made the way you are. I'm glad you made this video, and I hope you continue to share your triumphs with the rest of us. You have a beautiful family and I can see that your a nurturing mom. ROCK ON GURL.!!!!
She’s so strong, and inspiring! Makes you appreciate the simple things! I’m glad she is happy and found love
God bless you sweetie. Do not be ashamed of YOU!!!
@John Syzlack I write poetry. Any more questions!!??????
@John Syzlack Yes, you should put YOUR thoughts in a book!!!
Yes that disgusting person should be ashamed of herself giving that living nightmare of a disease to an innocent life, her son. she is as cruel as a cold-blooded killer.
It's just great to see her happy and spreading information and joy to others who are going through the same thing. You go girl!!!
Loving u from far away. As a mother who lost a child, I have to say that I’m sure your parents, family, and friends love you so much that no matter what you go through internally you are so loved. Sometimes it’s hard to see that and I never thought I would say that I am actually thankful that the Lord took my baby because she would be in this terrible world if she was here. So there’s reasons for the adversities we go through, we might not know the reason now, but hopefully when we pass on, we will. God put you through this for some reason. I’m not going to say that God doesn’t give us things we can’t handle, because I don’t believe that. I believe that whatever God does is for good reasons that we might not know. Girl, you even have a man… I don’t
Thank you for sharing... her fiancé has a big heart, a beautiful heart. He is a far better man than i am... I hope one day I could grow to have such a heart that can see the beauty within a person. and not get caught up with their outward appearance.
All my problems are on the inside(I have an emotional disorder) but hers are on the outside and she is so brave to show it off to the world
STAY STRONG.
@Heidi Willard I understand that, but it's like everyone could see hers on the outside.
@@raforsomething do you have BPD? If so i do too!
Agreed some of us hurts inside so baaaad. I admire her courage.
My heart breaks to see you experience daily physical pain, your strength, beauty, endurance is so inspiring, your souls shines bigger then you may think possible. Much love, blessings to you and your little family.
Awww, that little boy is too adorable! God and Family are everything 😇
I don't think she realises how pretty she is I think she's beautiful and such a strong woman too, She should be so proud of herself all those operations and she's still so positive
I happen to have scoliosis as well,and right after I finished this video I got up and put on my back brace for the first time in months. Thank you for the beautiful story and inspiration
Conditions like the ones she has are truly heartbreaking. You can feel the pain in her voice. She has a sweet voice and a sweet disposition and feels like she would be an amazing person to have in your life. I hope that she can overcome and see that no matter what anyone says she is still an amazing person and a beautiful woman.
*Omg she's so beautiful, from the tip of her toes to the depths of her soul ❤️*
*May God bless her with the strength she needs to get through each day 🙏💕*
Iam tara she’s not tho
She is not beautiful but she may be a good person
Some of us say that they are ugly. Atleast appreciate that you're born with all 5 senses.
Be yourself.
This story gives me chills (in a good way). Thank you for staying brave and preserving through this all. Stay blessed and strong for your son. He is a handsome little boy. :)
It's hard for me to cry but you've made me cry so hard. When you said you were a teenager, and not developing the same.. those are hard years for just anyone to get through. You are an amazing, beautiful and honest woman. Thank you for sharing your story.
I was feeling really bad for her and was really impressed by her courage and strength until I found out she gave it to her child. There are so many orphaned children in need of good homes, I will never understand these selfish people who have severe disorders and disabilities that are hereditary and still create biological children. It should be illegal. Using donated eggs from a healthy woman is also an option if you really want to carry the baby yourself. If you don't want to adopt or use a stranger's eggs and don't mind someone else carrying the baby, you can find a surrogate willing to use her own eggs, or you might be able to find a friend or family member willing to donate their eggs. There are many options other than forcing an innocent baby to suffer for the rest of their life. Also, if the father-to-be has the bad gene, you can use donated sperm as well.
LOL
You might like to read up on eugenics. Yeesh.
Also, all of those things cost thousands of dollars. Not everyone has piles of money sitting around to do those things.
Thank you! And then that kid has a kid with that condition.. and they have kids... you are spreading the disease... If you want to "find a cure" don't reproduce 😑 because it will continue if you pop them out
@@GLGC688 .... isnt her having to take care of a child with severe issues cost just as much? Lol
I was born with spina bifida, scoliosis and other health conditions too so I have a understanding of the fight of acceptance of self and of others. May this be another step forward in your life. No one knows exactly how another feels but I can assure you that I hope and pray that your physical ailments are somehow healed and that you and your families lives are filled with love, joy and everlasting peace. Shalom to all.👍🙏💗🙋
I'm so happy you found your happy ending! I hope only good things come your way in the future!
@
Thank you Vanessa!
I was feeling worn out and just basically THROUGH, all this month.
But you have had so much to contend with, more than any five people should have to suffer through that you and your son have snapped me out of it.
Thank you for sharing your family and your story.
Ouch.
Must hurt to have those.
The pains must be annoying to deal with.
But at least she is living her life to the fullest.
Yeah it looks like it does hurt the doctor thought I had a tumor in my uterus last year after he asked me twice if I was pregnant and I was like no. I was just fat I guess but it’s a better than a tumor I was kind of relieved nothing was bad wrong I had other problems too
ALL PRAISE TO YAH!! YOU ARE BEAUTIFUL SIS AND YOUR FAMILY!! IM SO PROUD OF YOU YOU ARE PERFECT IN YAH EYES AND THATS ALL THAT MATTER! YOUR HUSBAND AND YOUR SON LOVES YOU VERY MUCH WHAT A BLESSING!! KEEP LOOKING UP SIS!! SHALOM!!
It's hard to find people who can still stay strong just like her :') it's just so touching 😢❤️
We need more positive people like her. Her positivity helped me a little with what I was born with.
You are so strong!!! I am hugging you through the screen all the way from Serbia!
I don't know what you've gone through, nor do I know anyone like you. But I will tell you this much. You're an inspiration to so many. && I wish you && your family the best.
My friends cousin recently passed at 38 from Neurofibromatosis (NF). I came to know about him and the horrendous tumors that made him ill from the inside. Many many surgerys and he was so sweet of a young man with his little white dog. I never met him in person but I was so sad when I heard these tumors took him. I cried. Life is just never fair.
I wish for you better Vanessa.
RenegadeTimes I’m very sorry for your loss. My you find peace during this trying time in your life. God bless.
Anne He was my friends cousin not mine. My friend shared the journey and plight of his cousin. I knew a lot about him and the multiple devastating surgerys he endured. He couldn't physically do much anymore as it exhausted him. He was a sweet young man and adored his little white dog. What a comfort that dog was to him too. I don't believe we have to actually know someone to feel deep empathy for them. I tend to be that way. I can somewhat feel their lives and that brings it closer to my heart. That was in part my experience with my firends cousin. I felt I knew him some and the story was so mixed with his joys and his difficulties. A physilogical condition that really never goes away shadows your life daily although he surly had joys too.
It's all very sad to think how much we take for granted when others suffer so. Truly.
Love the husband!!! Soo supportive, and sweet! You can def see that his love and positivity has given her so much more confidence and self esteem!!! You go girl! && rock on amazing hubby!
Girl, continue to live ur life, ur self love is amazing and inspiring. I could learn alot from u.
Your soul shines baby girl....too much pain is put into our physical body....The Good Lord made u for his pleasure...shine on u beautiful diamond !!!! Let nothing take away from your shining sweet soul and your beautiful family I wish the world had more people like u!~!
U R BLESSED N THAT PRETTY SMILE.N I ALWAYS THOUGHT I WOULD NOT WALK OR WRITE OR WASH MY SELF AFTER I HAD MY STROKE. BUT HERE I AM GOD IS GOOD.BLESSIN TO YOU N UR FAMILY. HAPPY HOLIDAYS TO U. MY U HAVE A GOOD ONE.PS YOUR NEW FRIEND ME
At 12 years old I found out that my youngest daughter had spinal kyphosis and she had surgery to insert two rods and 49 pins in her back. She was bent over at almost a 40 degree angle and if it wasn't for me being persistent they never would have found out what was wrong with her! She is now 21 and in veterinary school she has already completed her four-year degree and she will be going on to Ohio State next winter. It's great to see that this young lady is continuing on to enjoy her life!
I’ve been reading the comments, and I wasn’t expecting as much hate as I saw. My heart dropped when I saw some of the things people have said, calling her stupid and selfish. It’s not selfish! With a genetic disorder there isn’t a 100% chance it will follow through to the child, so there’s always a chance the child of the carrier won’t get it. What she did was her choice and her choice only. Some of these people don’t need to try and control her life telling her she can’t have kids.
*But* I did see some very wonderful comments toward her and her family, and that’s absolutely amazing. She’s human just like everybody else in this world. There’s no such thing as normal, people! We all have something about us that makes us different, but we’re still humans and we need to learn to respect that. She has her own choices and decisions, and that’s perfectly fine. That woman should be proud of herself for all the stuff she has had to go through. ❤️❤️
Preach 😚
Its unfair to the child. Now he will live a life of pain
@@tarynjackson1665 That's a very narrowminded opinion mate.
M
@@alicekrieger6517 That's called facts son get over it
I was trying to hold back the tears but when she started to cry I lost it. Omg. She’s such a beautiful girl. If I ever complain , lord forgive me.
Stay positive girlie! Thanks for sharing your story.
Vanessa is strong, positive and very intelligent. She knows about her condition and that helps her be braver for herself and for her son. Daniel and Vanessa are a wonderful couple. May this family have many blessings.
GOD BLESS, SHINE LIKE A STAR, THANK GOD FOR YOU AND EVERYTHING ELSE
I cant imagine what she has been through, but the strength and positive attitude makes her the person she is today.
So sad but as much as I want kids, i'd would rather adopt so i wont have to put my kids through that. 👎👎
Finally a sensible comment..
My husband had scoliosis and was concerned while we were dating if his humps bothered me...I told him what mattered was what was inside his heart. We were married 30 years and I miss him everyday
Very motivational! Such a fighter!
Really puts things into perspective watching these videos.Theres always someone going through worse than you so try not to complain about petty things.Bless the three of them.
This Made me cry your are unique and very strong💗💗❤️❤️
You go girl
I have no right to complain about anything in my life. She is so strong.
Not sure about having a child when she knew that child might have to suffer the way she has.
Same
And her father has it
Ya I would get a surrogate, or adopt
Cherry Barb Not everyone suffers the same way
That’s the same things I was thinking 🤔
I cannot understand how ppl can give a thumbs down on this story. I am sure normal human's who doesn't have any issues are doing that. She was born with it . It wasn't her choice..
God bless ❤
Why wouldn't you just adopt? I respect the right to have your own, but damn....this boy is suffering. I will pray for u all on your journey
Natalie Killer I wrote the exact comment above. I don’t understand why there aren’t enough people in the comments expressing the same. I know she loves her child and has a deep desire to have a child. But like you said... “why not adopt”? I think this was selfishness on her part. I’m sure someone must have suggested adoption some time in her life.,Now this child will suffer just as she is. Why would any mother make her child ill? Doesn’t she think that every time she looks at him?. There should be laws against this.
@@Orlanzepol123 i agree. I mean i understand a woman's desire to have her own kids, but if she knew it was possible to pass this horrible thing on (she keeps saying "pain, pain, it's a lot of pain"), why would she potentially make another human suffer? And not only does her son have the physical issues that she has, he also had a mental disability....it is so sad. She could foster kids and help them thrive. I just do not get it. Selfish.
@Verix L i know you're trolling but i lmao
Ikr. I personally wouldn't have kids
Thank god there are still a few reasonable people left on this earth. Makes me restore some faith in humanity. Most comment sections are littered with people who find every disease and especially diseases passed on to children amazing and beautiful out of political correctness, yet they wouldn't want to trade with those people or their poor kids for a million $.I would never want to pass a painful condition on to my child or even take the risk.
She's so beautiful tho, the way she talks gives off this beautiful energy. I can tell that she's definitely very humble and loving person.
Her teeth are so straight and white 🤧i want to know what toothpaste she uses ❤️❤️❤️❤️🙂🙂
it’s because they got it from google ...
americans always bleach their teeth
It's called a filter
@@ji24722
No they don't. We just brush our teeth LOL
@@cooliipie someone's teeth don't necessarily become THAT white after just brushing them "L O L" and it's no secret that white teeth are a beauty standard in the us more than elsewhere thus having bleached teeth is pretty normal there
Thanks for having the courage to open up publicly. Blessings upon you and your family
So inspiring & beautiful inside & out
Girl you are winning trust me a man that loves you and gave birth to a beautiful child you winning
Oh my God. I admire how strong your ordeal has made you. May Allah grant you full recovery and good health. Your courage inspires me. You are loved ❤ My best wishes to you all the way from Egypt to the States :)
Allah is not God!!!! Jesus Christ is God!!! Salvation is only found in Jesus not Allah!!!!
@@debraingram6915 everyone is entitled to believe whatever they want. To me Allah is the only God I believe in. Let's agree to disagree here and pray to any God we believe in for the happiness and well-being of this courageous lady.
I agree with her fiancé. She is a rainbow and also a ray of sunshine.
I am sorry, and I deeply emphasize with this lady, but I could never ever put this burden upon a child. I don't understand how anybody with genetic conditions plays Russian roulette like that for seemingly selfish reasons.
Exactly smh.
You cannot live in fear.
@@minagligoric8600 I am all for living adventurously. There is, however, a threshold where this becomes an actual gamble between life and death. No need to risk anything over this threshold.
I'm guessing her son was either accidental (nothing wrong with that, so was I) or that she and her fiance couldn't afford adoption or genetic intervention, both of those things are super expensive. I get it from both angles, I have a genetic condition myself, one that causes me quite a lot of pain, I don't think I would risk having a child without genetic counseling but I don't think we should judge her either.
@@lotrgirl275 Having a child is not an adventure. On the other hand, if you don't want a child, that is completely fine too. It is none of your business if someone has a child with a disability though.
I did research on neurofibromatosis! We used mice to help find a cure and better treatment ...This is why animal research is so important so that this young lady can have a life of less pain even though she is definitely striving and beautiful
I cannot imagine. What an incredibly strong woman.
Wow. Had me in tears at some point. Very strong woman. Beautiful family..God bless you guys
I know this lady has suffered a lot physically and psychologically so I am sympathetic. However, I don’t think am ok when people have kids of their own knowing there is a chance they can pass on their condition or illness to their child. She knows the pain of living with her condition. Why would she risk her child having to deal with the same grief ? To me it just seems selfishness on her part. I couldn’t live thinking that I’m the reason my child is ill or has my condition. Does anyone else agree? And I am very much aware with the desire for a woman to want to give birth and to that I say that they can adopt a healthy child or a child with special needs. I know that a person can love an adopted child as their own.
Yeah she is extremely selfish and that is not ok. It looks awful too and she knowingly went ahead anyways to subject her kids to this.
Omg! Wow! Bully much!
The way u speak so comfortable about ur story I don't know how you stay so positive but yet u do u have come so far having all these operations living with those tumours the pain u went through and go through everyday cant imagine how that must have felt for u ,can't have been easy for u ur still alive u have a partner and son u r blessed with ur son and a loving partner keep going girl don't give up I know sometimes things get hard but seeing how happy u are with ur son smiling playing with him u look so happy keep smiling
LOVE YOU AND EVERYTHING WILL GET BETTER WITH GOD, STAY BRIGHT
Please don’t give up and be strong for your son and don’t let ppl or the world bring you down. You are a strong lady god will solve your problems keep praying to him he will give you an answer soon
Your still beautiful to me keep your head up things will get better
Sweetie. Trust me there are no perfect women. Perfection does not exist. You are a very brave woman.
U are really beautiful no matter wat God bless you and ik hw u feel I been dealing wit alot myself since I was a kid and I never wanted to come outside and do kid things I'm still dealing wit wat I'm going through now and it's hard I'ma keep u in my prayers
Lovely.
She is such an amazing strong person- to handle all that she does with positivity and strength. I don’t think I could.
Hello from upper Darby pa I'm Bernadette I also have nf1
She’s such a strong woman and a loving mom.
Her fashion is cute ❤️👩👦😝😋😘😎
You’re adorable. :) I never knew this condition existed. I’m sorry you’ve suffered so much physically and emotionally. I can’t imagine the giant leap to accept and love yourself and I’m glad for whatever path it took to set you free. How blessed are all the people that will find strength courage and support through your outreach. God bless you and your little family. ❤️ (I am a “young” grandma of 8.) :)
You are beautiful❤
She’s so beautiful and doesn’t need “the perfect body” she’s already perfect because she herself and she’s positive and a really great person and she has a beautiful family her son is so precious
You are so strong and you are so sweet you can. Do it
What a beautiful woman. She has beautiful soul. May she and her family be blessed with health and love. Love FROM Mesa AZ
U R GORGEOUS BOTH INSIDE N OUT GOD BLESS U WIT A HANDSOME SON AND FIANCEE WHO WILL ALWAYS BE THEIR FOR U SO THEREFORE U R TO BLESS TO BE STRESS 😇😇👈👈💙❤💜💑👶
A lovely lady with a good heart. Bless her soul.
So selfish to have a kid knowing the condition would pass down. Poor kid.
Peter Griffin incorrect there’s a 50% chance your child will get it and there’s 50% chance they won’t
nøc yes and also i know what i’m talking about. I have the exact disease as her, so i know more then all of you. So i wouldn’t question what i say if you know nothing about it
@@izzymichele4494 what if you are lying? we dont know you also 50% is still a large percentage
sormly500 why would i lie about having a disease
@@izzymichele4494 i dont know its a crazy world we live in there are people who would lie about that but im sorry if i upset you
Girrrrrl, you are one of the coolest people out there. I'm looking at your pictures thinking that nothing holds you back. I had to turn up the volume to hear what the story was about. Please don't cry. You don't NEED to become a better person. You are already better than most. I'm truly sorry you're hurting, but what a beautiful life/energy you share.