Thank you all for taking the time to watch, support, and share in my journey. Your kindness, prayers, and generosity have been a light during one of the darkest and most uncertain times of my life. Because of your support, I’ve been able to pursue specific treatments for my rare and aggressive appendiceal cancer-treatments that go beyond the limited standard options available to me. The donations to my GoFundMe have made it possible for me to access hyperbaric oxygen therapy, peptide treatments, targeted chemo options based on my RGCC test results, and so much more. These approaches give me a fighting chance and hope for the future. We are over halfway to the fundraiser goal, and I humbly ask for your continued support to help me see this plan through. Every donation, prayer, and act of kindness matters more than I can ever express. If you feel called to help, here’s the link: gofund.me/c3e2410b. Thank you for walking this road with me. I am endlessly grateful for this incredible community. God bless you all. 🙏
@bignoknow has HIPEK been mentioned.Paul from Perth,an Australian guy had what I think started as appendiceal (sp) cancer It is the treatment where warm chemotherapy is washed into the abdomen and destroys the cancerous cells
Has anyone told you about the clinical trial for colon cancer and ivermectin? The paper is on the NIH website you can look it up yourself. If I remember correctly they had a 100% cure rate. ( cure rate may be incorrect wording I’m not from a medical background). You should give it a read.
When my family and I were “shopping” around for an oncologist for my mom, we met with one Dr that was so cold and unfeeling. He basically said she was going to die. We found someone else who was kind and compassionate. She lived another 15 years. Best of luck
Noah, I’ve commented before and wanted you to know that my son with stage 4 colon cancer has been doing the standard chemo for colon cancer for almost two years and has responded so well with it. A lot of cancer lesions are gone and many have reduced in size to nearly being gone. His oncologist says he is a super responder. He is 47 and healthy. Thru all this he has still worked and been very busy. And I think that CT scans are better than pet scans (especially measuring tumor size). Praying for you and remember to let God have all this ! He cannot bless you with victories if you do not trust Him ❤❤
Came here to say this. You have to find a doctor that's willing to listen and help you attack the cancer the way you FEEL comfortable in doing! Find someone that has your back, Noah, not someone emotionless reading from a textbook and that gives the impression that that's the only way.
I fired my first oncologist. He was brilliant, but we did not connect on a personal level. He didn't like me and I didn't like him. I told him that his life was cancer and mine was not. I wasn't hardened to it like him. I was Stage 4 when I got my port. I did well with chemo the first three months. 4, 5, and 6 kicked my butt. You just learn to roll with it. I had a few hiccups along the way, and they were dealt with at the time. I am currently cancer free - 11 years out. I will say your life is different after cancer treatment. A new normal.
So glad you are cancer free. You are right, life is different after cancer. I’ve been fighting leukemia for a year and a half. I’m not the same person I was before being diagnosed. I’ve been on targeted therapy medication since day one, no break in treatment. It takes a severe toll on you physically, mentally and emotionally.
As someone who not only works at Providence but who’s dad went through chemo at that exact clinic for colorectal cancer, RUN. Get away, go find someone and somewhere else. It is the furthest from Providence’s core values of “know me, care for me, ease my way.” Even though it should be the place that is closest to it. Every person we came across had the same flat demeanor. You felt like a statistic. The nurses in the infusion clinic were rude the doctors were not open to alternatives it was their way or the highway. I wasn’t going to say anything but after your experience I felt the need to tell you you’re spot on. Good luck with everything and may God heal your body and rid it of the cancer.
I am so sorry to hear this. My husband had a craniotomy this summer after a fall and we were pretty much on the same page. But in general, no one cared to let us know anything. I don't know when the medical world became so uncaring. That's why it's so important to stay strong mentally as well as physically. Trust God and walk on.
I did not have that experience in the lab at all, mine was the total opposite of yours. A pharmasist even came to me in my chair while I was getting blood and platelets to explain about the pill I would be taking each day. They asked if I needed juice or coffee, or a snack, brought me a warm blanket if I was cold. Sorry you had such a bad experience.
I think when drs deal with thousands of cancer patients unfortunately they become robotic...in their defence if they broke down every single time it would be worst we need them to be empathetic so they can keep on going....❤
I lost my Noah to cancer when he was 2 years old. An infusion room full of babies is the worst place to be. We would have to fake smiles for my son while completely crushed on the inside. I’m praying for you and your family. You will have a great testimony at the end of this journey!
2015 at the age of 46, I was diagnosed with double lung cancer! I had a 2% chance of living 5 yrs! I had 6 1/2 weeks of chemo and radiation followed by double lung cancer surgery. I had upper left lobe removed and wedge resection of right lung. My nerves to the left diaphragm and left vocal cord had to be sacrificed so I have a prosthetic vocal cord to talk! I’m now a 5x double lung, lymph node, rib and brain cancer survivor/ fighter! I’ve had SBRT radiation, Proton Beam radiation and Gamma Knife radiation! I started immunotherapy in 2020 and just completed infusion #88 and scans been stable since 2020! I was only 30% match for immunotherapy but I told them what choice do I have? Worst case scenario it doesn’t work! My faith is what keeps me going and the will to live!! You’re in my 🙏🙏🙏!!
Don t lose your hope ,been watching your videos about anxiety and it had helped me a lot long time ago .My mother had stage 4 ovarian cancer and she fought for 7 years, and she wasnt t young. You are still young and strong you will get over this, and God loves you!
I’ve been treated at Sloan Kettering memorial in New York. What she said in my opinion, is untrue. I’m stage IV deemed terminal, but the thing keeping me alive is immunotherapy and an oral chemo prescribed because of the gene mutation I have. I, too, had a PL that made me “ineligible” for immunotherapy but here I am thriving on it! The oral chemo targets the mutation which keeps the cancer at bay. You need to find out if you have a mutation. It’s a game changer. I was supposed to live max 15-20 months. I’ve hit my 5 year mark, and live a semi decent, normal lifestyle. I’m so sorry for your experience. Run from that place, and onto the next. Never settle. 🙏🏼
The reason the Dr mentioned the kidney stones was important. You can get septic from stones when you are having chemo. It is a very serious situation. Good luck on your journey🌸😊
1st of all God bless you with many healing prayers! I am a nurse, I worked for a top 10 hospital for 40 years. I worked for a neuro oncologist who is now retired, I used to ask other staff why he always had such a flat affect, showing no emotion with his brain tumor patients. His patients loved him, felt secure, just no empathy. Then one day, I found him sobbing in the staff room corner. I was told to just leave him alone with his grief. One of his patients had passed away, and I was amazed at the emotion pouring out of this doctor. I was later told that he holds his emotions close to his heart to be as effective without letting his emotions get into the way of his treatment therapy. Not sure what is best, he was a great well known doctor, one of the best in his field. Look for credentials/treatments, emotions can be deceiving! 🙏🙏❤️❤️✝️✝️
I think a flat affect indicates one is actually very touched emotionally by a situation. It's a way to maintain focus and objectivity without being overcome. However it comes off as detached and aloof. It's tough to be the doctor in dire situations. Hard to balance feelings vs professionalism. Hard on patients too.
I have nothing but respect for people that choose a line of medicine in which they know up front that of every new patient they'll meet a fair amount will not make it. They constantly get people coming in that could have been saved earlier with proper screening. Or, people like this very case, that can not make a difference between their personal political and their own health and get nonsense treatment instead. When I go in for treatment, I get a team of wonderful, kind nurses taking care of me. If I just ask they'll get me my assigned psychologist whom is equally kind. I get all the empathy I want from them. From my oncologist I expect nothing but the cold, hard science. I only need him to know his stuff or know where to find it. Noah's oncologist acted correctly and ethically.
Exactly. My neurosurgeon showed no emotions, even though he and everybody else was sure I was going to die during my surgery. Straight to the point, telling facts, keeping it professional. The emotional support I got professionally from my family and friends. I had the best of both worlds. Who ran out of the hospital to speak with me after a check up with my nurse? My emotional neurosurgeon who wanted to know how my scar was healing and how I was doing. He once sank into the floor sobbing over losing a patient as well, I saw him a few years later sitting on the floor devastated. I don’t like the aggression towards established knowledge and the judgment of a person they don’t know.
Completely agree!! My oncologist is one of the best in the U.S. Not great with bedside manner at first, but I didn't want that, I wanted someone who knows what's up! Years later, great guy, love him dearly. He is retiring, and I was sad when he told me. Everyone is different.
Why is he dragging this along without any chemotherapy or radiation? Most people with cancer don’t. I’m 20 years cancer free, started treatment right away.
@@mandybradley3079 I think he has to wait a little bit like 2 months before he can start the chemo because he had the surgery. But I agree the more aggressive he is towards it now the better.
I’m stage 3B colon cancer survivor….Partial colonectomy and 12 rounds folfox 5….piece of cake the chemo was…Only thing is you will be very tired and maybe neuropathy
Whatever you do please dont wait too long because cancer grows fast. Find another oncologist fast and start some treatment.. Prayers for you and yours ❤
Husband 57/ Stage 3 colon cancer, did both the protocols you mentioned , one after the other. Quality of life sucked, and he said at the end ( exactly 3 years later ) he would not do it again. I pray you get EXACTLY the perfect team for your cancer.
This is the same BS that. Paul in Perth went through HE Found a doctor who saved his life Paul was ready to accept death until he took a chance and traveled across the country to the right doctor. 🙏🙏
Everything you're saying about chemo and the room brings back so many emotions and memories for me. I remember sitting in the waiting room, looking around at the patients and thinking how I didn't want to be a member of that 'club.' On my first day of chemo, as I waited for the nurse to bring my poison, I looked at the other patients. The ones who were bald, sick and their skin was grayish had a red bag. The ones who had hair had a yellow bag. I wasn't sure how far into their treatment they were, but I prayed I'd see her bringing yellow for me. I'm so glad you are researching all options so much. I had nobody to help me. I was lost and scared. And I just blindly did what my doctor advised. I was lucky and survived chemo and cancer. I think so much has changed since I went through it. I'm about to celebrate 30 years cancer free. With your dedication to finding your best options and with your dad's advice and knowledge, I just know you will get through this. I am praying with you and for you. God bless you.
From one stage 3 cancer survivor to another. I was diagnosed 13 years ago. I agree that you need an oncologist who specializes in your type of rare cancer. Search online for a cancer center. Forget alternatives for now. They have helped you be the strong man you are and they can help you later after remission. You have a disease that wants to kill you. You don't have time to be looking for something that MIGHT help. You are going to need an oncologist you trust and then follow their protocol. Your oncologist will be a thinker and a mechanic, not your spiritual advisor. Don't poo-poo the infusion room. You will be amazed by the strength imparted from your fellow survivors. And compassion. It can be very healing. Also your nurses are angels. The "we" in your journey should be you and your wife. I am sending you so much light and love. . .
I LOVE my infusion room! It’s a big bay, and I’m the youngest person in there by 20 yrs! (I’m 54) The nurses are angels. I get some much emotional support there. I’m not going to say I look forward to chemo, but since I have to have it, I’m happy it’s not a terrible experience.
Speaking as someone with a rare heart condition, people in our situation may never find a doctor who "specializes". When you have a rare condition, sometimes the best you can do is find someone who has at least treated it before. Oftentimes, even that won't happen, and the best you can do is to find the smartest, most experienced doctor you can. No one "specializes" in my condition. There are doctors who have treated patients with the same condition, but none "specializes". They are treating me as they would treat anyone with heart failure and hoping it works. That sounds a lot like what's going in Noah's situation. Every condition won't have a doctor who "specializes", or if there is, they may be inaccessible. It's important to look around and research your options, but it's also important to not waste time chasing something that may not exist.
Listen. Im going to give you some tough love as a cancer survivor. Oncologists are not rabbis or priests. They are doctors, and to maintain sanity and save lives, they must remain a little detached. This isn't psychotherapy. It is information and protocol building. Please find a specialist at a comprehensive cancer center. This is a rare cancer, but there is a protocol for it (5FU and HIPEC). A chemo room is intimidating, but at least they showed it to you. Nobody showed me. I just arrived with a PICC line, and a nurse came out with a gigantic syringe of what looked like red juice (known as the red devil chemo) and slowly pushed that giant syringe into my vein. It is a vesicant and can burn right through the vein. If I felt burning, she slowed down. My vein stood up to that FOUR times, and I also took another chemotherapy immediately after that each time. That first chemo made me pee bright red immediately after the infusion. Nobody told me that would happen either. It didn't hurt. It happened once every chemo, and I was surprised only once. If you have to do chemo, and brother, YOU DO, trust G d. Stop thinking of it as poison. It will impact your healthy cells. I know. I lost all my hair. But I visualized it eating my cancer like Pac-Man. That was FOURTEEN years ago. I am sober, too. This is not an F everything and run situation. It's a face everything, and recover one. I am praying for you. Please find a specialist in your cancer. Please reset expectations. It doesn't matter if a doctor has a cold bedside matter or if you feel like a number. The only numbers that matter are the birthdays you celebrate after successful treatment! Godspeed!! Also, no offense, but your dad is influencing your decision. Your minds were made up before you saw this doctor. Your dad literally say YOU'RE NOT DOING THAT. It makes me worry for you. Finally, every cancer TH-camr is transparent in their journey. I don't think you meant to imply you are being MORE transparent, but don't do that. Most of them don't have GoFundMes. Their videos support them and they are also equally transparent.
So did the chemo have any negative long term effects on you, or are you healthy as can be? I heard it can have long lasting damage, but I dont really know anything about it. I understand if people are scared of it though, because it really is like not really the healthiest thing in the world.
Thank you for being blunt in your response to Noah. I have come to really, really appreciate my chemo room. The nurses are completely thorough in their job and also very compassionate. I have faith that chemo for my triple positve breast cancer (I also had a double mastectomy) is the right treatment. I pray that Noah can have peace of mind whatever treatment he decides on. BTW, I don't have a go fund me account nor a you tube channel. And yes, chemo is very expensive. Insurance pays most of it, but it's still very expensive. Diane
Long time cancer patient here and I think you’re being very smart! Check ALL options. Chemotherapy has given me terrible short term memory issues and now in the end stage CIPN caused by the chemo. My life is pure hell because of that. The radiation damage was immense. I’ve been fighting secondary cancers now that were caused by the radiation. I’m have now chose quality of life over quantity of life. This past 14 years have been pure hell. Prepare yourself if you choose to go this route so you don’t end up like myself and many others. I’m praying for you and thank you and your father for helping you share your story. The more followers you get then that more people praying for you and I believe in the power of prayer and I know you do too. Hugs from me…. Beth in Illinois❤
I also have CIPN from chemo. My doctor says that 70% of all patients with CIPN do eventually get better of it after chemo is finished. I pray that I am in that 70%. I am so very sorry that your neuropathy is still there. Diane
@@thecraziestcatladyyouknow I believe in the power of prayer too. At our hospital, some medical students would gather us nurses, staff, and family around the bed to pray. We never made it a big deal, mostly at the families request. I will stop and pray with anyone. I also say a prayer b4 my shift to give the best care possible! 🙏🙏🙏
There is not a more genuine person than you on TH-cam. When you cry, I cry. When you smile, so do I. I just adore you. I have so much faith you’re going to be okay 🩷.
My husband was treated in a similar setting. I sat next to him during each chemo treatment. He did not have a port and after original surgery had to have blood transfusions to build him up a bit. So for the first month or two he did not have the full dose. He had almost a year of chemo. This was for stage 3b colon cancer. He had more than 20 years of quality of life. ❤
i have been following you for many many years. i am in recovery as well and you ALAWYS seem to give hope. you are the most unbelievable speaker and strongest person i have ever heard. i will continue to follow you on this journey. if you can be sober today and go through this unfortunate life you have been given, i truly believe the strength you have can get you though anything. thank you for continuously giving me hope. i pray for you my dear recovery friend.
My mum is 73 has cervical cancer three off my uncles have died from cancer. Can I please ask any woman reading this please please get ur regular tests . Keep fighting bud . Hope you're treatment is going well . Sending love across from the pond
I sat with my beloved husband while he was told by a consultant that he was terminal, nothing could be done and to get his affairs in order, I could not physically breath when I came out to be honest. Luckily my hubby had private healthcare with work and we went to an private oncologist, he was great until two years down the line when it was obvious that the cancer was indeed terminal and treatment had stopped working. He then said goodbye in a corridor and we never saw his again. To be honest my husband never asked how kong he had, he fought like a trooper on oral chemo, knowing that the cancer was inoperable. He felt completely let down and deserted and gown do you tell someone who refuses to believe how ill he is and does not want to know,. We used to sir in the waiting room and it was at the beginning everyone looked so ill, he looked so well, we didn’t belong there. Two years later he was the poorly one. I am still heartbroken without him, I suffer from medical PTSD going through this journey by his side, but I wouldn’t have been anywhere else. He was so loved we had wonderful times xx ❤ Your journey will be good, you are a different person, everyone’s journey is so different.
Your dad is absolutely right. Your soul will know where you’re supposed to be and this was definitely not it. You’ll KNOW in your “knower” when you’re on the right path!! Your spirit will roar!! ❤
Stage IV colon cancer for two years. Have had my own rocky road with my treatment. Very frustrating. Knock on as many doors as you can. It's your life!
I want you know man.For the past few years I’ve been feeling terrible, in a search to find out what was wrong with me about 9 months ago I stumbled across your videos.. I got my bloodwork done for the first time in my life and found out my testosterone levels were unbelievably low at 89. I started testosterone replacement and it has completely changed my life. You were the one that pointed me down this path. I hope you get better man, it’s awful to see.
Your Father is so reassuring and right on so many points, your soul responded to the incorrect path. God has something BIG for you brother. I will continue to pray, you got this.
Sorry to hear this was such a difficult visit. As a doctor at a major research hospital, I would encourage you to get a second or a third opinion at an NCI-designated Comprehensive Cancer Center. Getting evidence based treatment is usually the recommended path, which ultimately often includes chemotherapy for a later stage cancer, but there are many recent developments in cancer treatments that may expand the options and improve outcome. Also, unless you got their specific consent, please be careful not to show other patients at the hospital in your video as that violates their health privacy.
IMHO, if the doctor is the best in the field and with a great track record, I would pick him/her regardless of bedside manner. I am only interested in beating the disease, don’t care if he/she will hurt my feelings. PLEASE get treatment ASAP…the longer you wait, the more time you give to the cancer to grow and spread.
Based on my impression, the oncologist was simply trying to hint that this is not the appropriate place for you to receive suitable treatment. I have a sense that the oncologist wanted you to come to this realization on your own. If I were in your position, I would seek out another hospital that can provide you with an adequate response to your needs.
I agree. Who knows what she is forbidden to say, or if she has a personal opinion that doesn’t line up with her job, which may be the best paying job she can find to pay her bills. Who knows. But if she’s treated cancer for this long, she has got to be aware that bedside manor matters, patient education matters, and that maybe her delivery was intentional. I would never defend willful negligence, but the system doctors belong to have them so brainwashed to be afraid of endorsing other options
I understand your father’s feelings, because I am also caring for my husband who is suffering from stage 4 lung cancer. which doctors say is hopeless, but with God it is possible,. Please never give up hope.!
Exactly, with Jesus everything is possible. And even when people leave us, we will see them again one day. God bless you and your husband, and maybe even a miracle happens 😊❤
What does that mean, "with God it is possible"? If God is all-knowing and all-seeing, then why would he have not only allowed your husband to get cancer but also caused it to happen? Now you are hoping God will change His mind and rid your husband of his cancer. None of that makes any sense. If God gave your husband cancer, it means that He is calling him home, to our eternal home with Him forever in paradise. We need to stop fighting cancer and embrace it as a gift from the Lord. Cancer allows us the time needed to put everything in our human lives in order so that our relatives will be safe and secure. If you believe in Jesus Christ, our Lord and Saviour, then you have nothing to fear from a cancer diagnosis.
@@konradvonmarburg7733 I am a born-again Christian, my husband too ,and I know there is life after death, so I am not afraid of death, but I do not believe that illness comes from God I believe sickness come from Satan or a bad lifestyle,so I wait for the healing .
I’m so sorry you left feeling that way. I can definitely relate to your feelings and how doctors are so emotionally detached. I get that they are used to seeing patients on a daily basis with similar conditions but it doesn’t help when you leave an appointment feeling emotionally crushed. It certainly adds to your anxiety and mental health which manifest itself in your wellbeing. Don’t let anyone including your doctors put you down, it’s your body and health. Advocate for yourself!!! ❤❤❤
So sorry that this was the result of your office visit! There really are doctors that are more compassionate. I pray that you find someone that treats you as if you were a family member! Prayers!!!!!!
I have a port and am really thankful to have it. It makes receiving chemo so much easier, as each infustion lasts over three hours. Of course, it does feel surreal in the beginning to walk into a room full of chemo patients and chair after chair! My experience of having 8 rounds of chemo thus far (triple positive breast cancer and double mastectomy) has shown me that the nurses are exceptionally dedicated to making sure that chemo is administered exactly correctly and in a friendly manner. No less than two nurses check the bags to make sure that the correct "cocktail" has been prepared for my infustion. That has been very reassuring. Fortunately, my oncologist has been extremely compassionate and has explained in great detail answers to all my questions. She has explained the side effects. I have blood work every single time prior to the infusions. I am so very sorry that your experience has been less than ideal, to say the least. I completely agree that you should investigate any and every alternative available for your cancer. How can you not? But if chemo is the route you take, I pray that your experience will be every bit as good as might as been. I pray for good results for you. Diane
Retired Critical Care physician from Ontario here…I spent 34 years working in Emergency and ICU…having said that, this is a difficult decision…foregoing mainstream treatment, i.e. chemo, is a literal crap shoot…your Dad is terrific…best wishes!
Noah, there is almost nothing that hasn’t been said on the comment section, at least nothing that would really change where you are now. I also don’t the experience and or the knowledge to give you my opinion as a professional..so I have decided to the following instead. Every time you post a video about your journey..I will watch it to support you that way..but as if your last video, I will always leave you a “God bless you Noah”. Just know that while it may not be the most elaborate and scientific based comment, it does come from the heart, and that I do mean it from my soul when I say..GOD BLESS YOU NOAH!!
I’m so sorry the doctor wasn’t more informative.That doesn’t help you ,sending love and blessings from Ann uk .Your in my preys every night god bless ❤️❤️❤️🇬🇧🇬🇧🇬🇧
I agree with your dad. That’s not your path. Sending you lots of healing thoughts and vibes. You’re path will reveal its shelf and you will recognize it. ❤
You are my thoughts and prayers. It is so comforting to see you walking this out with your father. What a blessing you are with the two of you together. 🥰🙏
I do not have cancer but cared for both of my parents who died of leukemia 25 years apart! My mom died at 95. What I can tell you is keep looking for that doctor you make that 100% connection with! Besides your faith and family that Connection is Everything! I pray for you and your family!❤
I pray for you each night as I take my quiet time to pray. I know you are inundated with messages, and I have not messaged you until seeing your video from today. As a former nurse who is the daughter of a cancer patient I was very distressed that my father’s oncologist did not offer ablation therapy which I had researched extensively for his type of lung cancer. I also asked that he have a PET scan done, but was informed by his doctor that that may come later, but not then. My brother-in-law at that time was a doctor, and my sister was also in the medical field, and they along with his oncologist literally shot down anything I suggested or questioned. My mother just agreed with everything his doctor said. He did not have a PET scan done until after the cancer had spread, and at that point there was extensive involvement. His doctor did not order the scan; I had arranged an appointment for him at Georgetown Hospital in DC where they were surprised one had not been done. They were wonderful and highly respected. They also felt a different type and course of chemo were indicated. So if there is any question of anything on your scans or x- rays please insist on a PET scan, bone scan, CT scan, flat plates of your abdomen…the whole nine yards. Go to another oncologist, and if you still feel your questions are not answered or you are not comfortable with that oncologist go to another one. Don’t give up. There are so many of us out here keeping you and your family close in our prayers. I am so glad you have your Dad with you through these appointments as your support…he seems so kind and there to bridge that gap when your head is probably spinning from all the information. Bless you.
Hi Noah, I occasionally followed you over the years and left some harsh common sometimes as I thought you were an exhibitionist ( sometimes) However having seen how you’ve handled your current situation. I can only bow down in admiration of your courage and candour. I wish you the very best. I’m sure you’ve got what it takes to pull through and in the process I’m sure you are going to help a lot of people
My sister didn't both messing with an onocologist after 2 visits was discovered with non-alcohol Cirrhosis shortly after & decided to face death with dignity at home...I miss her but I supported her decision after asking her what she wanted to try doing & she simply told me she had more relatives in eternity she was missing & wanted to see than things to live for here. It's been 3 years and I miss her. Truly our health care needs reform in America.
Keep the faith Noah! God can redeem ANY situation. We never move forward from a position of fear, but from strength and peace from our God. Prayers for a healing miracle!
I was 46 when I was diagnosed and in very good physical condition. It is hard to reconcile that with having cancer. I never did feel “sick”. I also had a couple experiences with emotionally unintelligent physicians but , they were the exception in an overwhelmingly caring environment. I’m now 18 years out, best wishes on your journey.
Dr. Joseph Coulgan at Mayo Clinic in Rochester, MN!! Head of hematology/oncology. My husband was stage 4 large b cell non-hodgkins lymphoma in 2016. He is fine. Keep in mind, Dr. Coulgan may have retired, but they have an excellent cancer center.
I have also battled cancer. and I had the same feeling (I was not comfortable going to the oncology floor) My heart was breaking for myself and all the people who were there. Also terrified about what I would endure. We are all human no matter the age we are. You are voicing what many of us have been through. God bless you and may he give you strength.
How lucky to have such a caring father. I imagine myself in your shoes in this horrible spot in your life and my father wouldn’t have anyone words or show up or anything. Happy he is there for you during this. Chin up
Noah, sorry to hear this! Some Drs have become immune to their profession, oncology, while no excuse as they see multiple patients, some who live years long and others who die quickly- no excuse. Sometimes they need to be reminded so a change is made, it’s time for a new Dr. I understand, you shouldn’t have to ask him to be kinder, etc but perhaps he’s just going through the motions and forgot that there is a human who is scared and fighting for their life on the other side. Fortunately, my sister’s oncology team and surgeon have all been amazing. I pray you find one who is kind to you. ❤🙏🏼
Oh Noah😢 is there any POSSIBLE way you can go to the Mayo Clinic???? I can’t stress enough how much different this could be for YOU🙏🙏🙏 PLEASE see if you can. You wouldn’t believe how they take care of you- they have TEAMS of doctors, all working for you. It is amazing seriously. All around- I’m a living example.
It’s important to like your doctor, and for your doctor to genuinely like you. They are healers. Healing takes positive energy. Thanks for sharing the experience of a negative, however intelligent healer.
Noah I’m following you because we both have stage 3 cancer. Mine is very rare and aggressive too. Mine is signet ring cells. Googling that is like a death sentence. But everyone responded to treatment differently. I’m already done with my six of 8 rounds of chemo infusion. So far I hardly feel any side effects. I’m no longer in pain from the tumor so my oncologist said that’s a good sign that the tumor is shrinking. I’ve watched Christina Newman here on TH-cam and she’s doing what you’re currently doing and at the end she regrets it. Please it a fight against time. Your cancer, mine and Christina are all very aggressive types. Start with conventional treatments while you search for alternatives, please.
I thank God you think like your Dad. The only intelligent decision is an informed one. Learn everything you can about YOUR cancer, then make a decision for your life. In watching your Dad for years, I fell in love with the camera guy who loved kids like his Dad does.
I am glad you have the GFM, because what you find out on this journey of research and protocols, could very well be the ticket that not only saves your life, but also contributes to saving others. As you have mentioned, your cancer is vastly underfunded in research, so sometimes we have to call upon others to do that research themselves, because it doesn't appear from your current protocol of 'stay the distance, no matter what' that is being advised by your oncologist, that a lot has been learned about treatment options for your cancer. I wish you much luck going forward and please know, that no matter what you are creating a legacy of cancer exploration that may just reveal new protocols that will make a huge difference to all who suffer. Huge shout out to your dad for being so loving and supportive. What a good good man.
I was diagnosed with lung cancer last year and I'm here to tell you that you need to find a oncologist that listens to you. I was lucky enough to work with doctors from UPMC Hillman Cancer Center. They all had great communication skills and really seem to care they are in constant communication with each other with my surgeons and even my family Doctor working together as a team. You keep searching till you find that kind of team effort because that's what makes great outcomes. Don't let one doctor get you down.
How lucky you are to have someone knowledgeable and supportive to go with you, interpret for you, research for you. Means a lot! Good luck with whichever treatment you decide on. Btw: life long exerciser, always maintained my weight still had uterine cancer grade 2. The diagnosing Dr forgot to tell me the results so I thought it wasn’t cancer…wrong 4 years later…my results were found on my chart. Still stage 1b, surgery and done. My oncologist attributed my consistent exercise for slowing the cancer down. So keep up the good work. 😊
So sorry you’re going through this horrible disease We appreciate you sharing different opinions I need to get my husband to see alternative doctors this is such a scary thing to go through My niece passed away of brain cancer and now seeing my husband I feel like I’m going through it We’re praying for you
I couldn't be more impressed than I am with your level of self-awareness. That will continue to serve you very well moving forward. Based on my own life challenges and lessons learned, I don't feel that anything is more valuable in life than self-awareness in concert with our guiding instincts - they make a formidable team. From my perspective, you are doing everything just right and I have mega confidence in your ability to get where you want to be, your own way. Although already a strong young man, I'm sure we're going to see much more growth on every level of your beingness (cancer excluded) as this journey unfolds. Keep trusting yourself, Noah. 🤗💪☯️ Karen
I went through melanoma (stage 2.5) treatment in 2012, and then had a recurrence in 2015, but I got through it. It was very difficult and I struggled to keep my spirits up, but thank God for family and friends. Thank you so much for having the courage to share your experience, sending love out to you. John
I stopped by your channe this morning just to check up and this was a complete shock. Its been heart breaking to watch the last 10 videos 💔 I can't belive you're going through this. I truly belive you will make it and your testimony will inspire others! Praying for you 🙏 ❤️
Bless you Noah, I think that your Dad said it, she wasn't speaking a language that you resonated with. You will meet professionals that are passionate about what they do, and helping you through this with with details, encouragement, this doctor is one doctor, with one opinion. Go out there, and be guided, and thank you for sharing this day with us, you are one strong human xxx
Sometimes doctors try albeit perhaps clumsily to prepare people for the worst. They struggle to not give false hope but every doctor is after all an individual. I worked with many doctors over a 30 year nursing career. We saw people if they did poorly enough to need a critical care unit. My dad had malignant melanoma when I was a kid. He survived a radical chest resection and no chemo or radiation and he survived to live to 84. That was back in the 1960’s. I wish you the best in your treatment and recovery.
Hi Noah. I’m praying for you to be well. I I have had 24 radiation treatments and still on chemo pills 21 months from the day I was diagnosed with EC cancer. I’m doing well. My pet scan is clear you can do this. I’m much older and you can get healed whatever which way you decide to go God will be with you.
Noah, my dad went to this appt with his Pancan diagnosis with my mom. After the appt and seeing the place he walked out and told my mom that that place felt dark. He said I am never going back there. They told him 5 years with treatment and 9 months without. He said he’d take the 9 months and he had the best time. He lived 17 months. I’m not sure why our healthcare can’t be at least more caring. It’s so so sad and overwhelming for these patients as is but that’s just how it goes. I’m sure there’s better ones out there and will be praying yoj fjnd peace and confidence in whatever decision yoj make. Our bodies are amazing
I’m so sorry that you had this experience with your oncologist. My sister had pancreatic cancer and was treated the same way. I am glad you have your dad who is a doctor with you. Oncologists are very matter of fact with treatment. I would seek out other doctors with different treatments. Keep advocating for yourself. Never stop questioning.
Hi Noah just wanted to send you all my support I myself have stage 4 breast cancer and have had chemo then 2 lots of radiation now ime on immunotherapy. I just want to give you a big hug when I see you upset it is such an emotional journey and it does remind you how precious life is . Oncologists see this sort of thing day in and day out so unfortunately they get decensortised to how hard it effect patients emotionally . I myself got better dealing with things has time went on so I hope things will get a little easier for you .sending love to you and your family.❤xxx
It is difficult for anyone when dealing with cancer. Try to focus on the positive; you are young and otherwise healthy and a supportive dad. May God heal you! You can do it! Have a beautiful day🌻
.. and let me add Noah, that the contribution you have made to the YT community, and beyond through the years has given us so much value. In addition, the information (literally play by play) you are giving all of us in this journey is priceless, and well worth the contribution we make to your go fund me. I just want you to recognize that you earned every dime that has been given (Hopefully this eases any anxieties in this area), You are worthy brother. Praying, and looking forward to the victory friend.
I’m sorry that this was disappointing for you Noah. You are such a kind soul. I can tell you’re trying to stay positive. Keep your chin up. Love from NJ
I'm sorry you got that type of doc. My experience has been that the more initials after their name, the more removed they are from emotionals. I have prob 6 specialists and my nurse practioner knows by body as a whole more than anyone. Follow your gut! Continue prayers for you. Don't lose hope Noah. ❤
Sending hugs, I am on the same journey as yourself with similar diagnosis. I am 6 months on from surgery and have been on chemo for 15 weeks now. I totally relate to your comments and emotions as I went through exactly the same. My breakdown came the first chemo session when they wired me to the machine, reality hit like a train as up to that point think I was in auto pilot , researching, trying to stay positive etc . The doctors I have spoken to have all been professional and pleasant and I have the utmost respect for them but I feel like a number when I speak to them, as you say protocol for colon cancer and they deal with many many cancer patients, no real thought to me as the patient going through this as an individual. I have found the colon nurses are my best source of information and support even just to let of some steam by airing my worries. I am sending positive vibes to you and your family as I know how hard it is for them to process everything that is happening. Special big hug to your dad, watching and hearing his explanations medically has answered some questions I had lurking at the back of my mind. Its not an easy journey but it is manageable I am 57, female and definitely not in as good a physical position as yourself and I am getting through it, 3 more chemo treatments and then we pray for the scan results but feeling hopeful.
When optimally practiced, medicine should be both an art and a science. There are far too many MDs who only practice the science. When you find one who is mature enough in their profession that they also practice the art of medicine, you have a gem indeed.
Try and find a consultant with a team of cancer nurse specialists. They more often have the time to support patients more holistically and are more in tune with not just your medical needs but also emotional, practical, spiritual and financial, building relationships with patients over time. Wishing you all the best on your journey Xxx
Medical "care" neglects the HUMAN in people; we are not our disease;, we are human beings! Don't be discouraged Noah, this is a journey. Please, Noah stick close to people who can support you emotionally, and more importantly, your higher power. You got this! 🙏❤ (expect your feelings to be all over the place)
There is hope because there's bound to be at least a few centers that are doing research into your cancer. You have your Dad, who is an incredible guide. You got this, Noah. Keep searching for the answers. Find your treatment center.
PS: I am sick right now too - I ended up in Ascension emergency. The Male Dr. was a robot cold as ice, offered zero information of what to expect or prepare for, the RN could not wait to get on her personal cellphone, the front desk lady was also like a mean robot. The security guard was the only person that was civil, nice, and seemingly compassionate as I could barely walk into the clinic I was/am so sick and weak. I had trend to send a complaint up when I have the strength. I did get pictures of the board in the room listing the attendants.
Our hospital culture has changed. The last time I had to go to the ER, the treatment I received was *horrible!* I couldn't wait to get out of there. Now I know how they treat people they don't like...the homeless, mentally ill, etc. I prefer now to die at home, in my bed with my dignity intact. The compassion is *gone.*
Thank you all for taking the time to watch, support, and share in my journey. Your kindness, prayers, and generosity have been a light during one of the darkest and most uncertain times of my life.
Because of your support, I’ve been able to pursue specific treatments for my rare and aggressive appendiceal cancer-treatments that go beyond the limited standard options available to me. The donations to my GoFundMe have made it possible for me to access hyperbaric oxygen therapy, peptide treatments, targeted chemo options based on my RGCC test results, and so much more. These approaches give me a fighting chance and hope for the future.
We are over halfway to the fundraiser goal, and I humbly ask for your continued support to help me see this plan through. Every donation, prayer, and act of kindness matters more than I can ever express. If you feel called to help, here’s the link: gofund.me/c3e2410b.
Thank you for walking this road with me. I am endlessly grateful for this incredible community. God bless you all. 🙏
@bignoknow has HIPEK been mentioned.Paul from Perth,an Australian guy had what I think started as appendiceal (sp) cancer It is the treatment where warm chemotherapy is washed into the abdomen and destroys the cancerous cells
He’s just super scare and worried. It’s a pretty natural reaction.
Your body is shredded man. You’ve got this! I just started chemo, it’s not awful. Makes you a little nauseated. I was able to eat find afterward.
Has anyone told you about the clinical trial for colon cancer and ivermectin? The paper is on the NIH website you can look it up yourself. If I remember correctly they had a 100% cure rate. ( cure rate may be incorrect wording I’m not from a medical background). You should give it a read.
If you like to discuss any of this please let me know…i had T3N1AM0
When my family and I were “shopping” around for an oncologist for my mom, we met with one Dr that was so cold and unfeeling. He basically said she was going to die. We found someone else who was kind and compassionate. She lived another 15 years. Best of luck
I found dealing with specialists that their patient list for the day was so long they didn't have time to elaborate .
Noah, I’ve commented before and wanted you to know that my son with stage 4 colon cancer has been doing the standard chemo for colon cancer for almost two years and has responded so well with it. A lot of cancer lesions are gone and many have reduced in size to nearly being gone. His oncologist says he is a super responder. He is 47 and healthy. Thru all this he has still worked and been very busy. And I think that CT scans are better than pet scans (especially measuring tumor size). Praying for you and remember to let God have all this ! He cannot bless you with victories if you do not trust Him ❤❤
You HAVE to find a new oncologist. One that is familiar with YOUR cancer. Do your research and don’t settle. This is your LIFE!
Good point ❤❤❤
Came here to say this. You have to find a doctor that's willing to listen and help you attack the cancer the way you FEEL comfortable in doing! Find someone that has your back, Noah, not someone emotionless reading from a textbook and that gives the impression that that's the only way.
Such fancy packaging on that portal😢 keep searching Noah
@@andir2143 Absolutely you hit the nail on the head.
I was appalled at your honest and nice review of the doctor.
I fired my first oncologist. He was brilliant, but we did not connect on a personal level. He didn't like me and I didn't like him. I told him that his life was cancer and mine was not. I wasn't hardened to it like him. I was Stage 4 when I got my port. I did well with chemo the first three months. 4, 5, and 6 kicked my butt. You just learn to roll with it. I had a few hiccups along the way, and they were dealt with at the time. I am currently cancer free - 11 years out. I will say your life is different after cancer treatment. A new normal.
@@karenvannorman1538 🙏🙏🙏🙏
So glad you are cancer free. You are right, life is different after cancer. I’ve been fighting leukemia for a year and a half. I’m not the same person I was before being diagnosed. I’ve been on targeted therapy medication since day one, no break in treatment. It takes a severe toll on you physically, mentally and emotionally.
@@karenvannorman1538 you fired him huh? You didn't do shit besides find another DR. Fired him 😂😂
As someone who not only works at Providence but who’s dad went through chemo at that exact clinic for colorectal cancer, RUN. Get away, go find someone and somewhere else. It is the furthest from Providence’s core values of “know me, care for me, ease my way.” Even though it should be the place that is closest to it. Every person we came across had the same flat demeanor. You felt like a statistic. The nurses in the infusion clinic were rude the doctors were not open to alternatives it was their way or the highway. I wasn’t going to say anything but after your experience I felt the need to tell you you’re spot on. Good luck with everything and may God heal your body and rid it of the cancer.
I am so sorry to hear this. My husband had a craniotomy this summer after a fall and we were pretty much on the same page. But in general, no one cared to let us know anything. I don't know when the medical world became so uncaring.
That's why it's so important to stay strong mentally as well as physically. Trust God and walk on.
I did not have that experience in the lab at all, mine was the total opposite of yours. A pharmasist even came to me in my chair while I was getting blood and platelets to explain about the pill I would be taking each day. They asked if I needed juice or coffee, or a snack, brought me a warm blanket if I was cold. Sorry you had such a bad experience.
I thought they were in LA
I’m so glad you’ve had your dad there with you. He’s an amazing father and support for you. Doctors can be so cold and unfeeling and narrow-minded.
I think when drs deal with thousands of cancer patients unfortunately they become robotic...in their defence if they broke down every single time it would be worst we need them to be empathetic so they can keep on going....❤
I lost my Noah to cancer when he was 2 years old. An infusion room full of babies is the worst place to be. We would have to fake smiles for my son while completely crushed on the inside. I’m praying for you and your family. You will have a great testimony at the end of this journey!
I’m so sorry for your loss.
so sorry for your loss x
@@AlexandriaEscobar-r7x 🙏🙏✝️✝️❤️❤️
My condolences to you and family dear
@@AlexandriaEscobar-r7x I'm so deeply sorry
2015 at the age of 46, I was diagnosed with double lung cancer! I had a 2% chance of living 5 yrs! I had 6 1/2 weeks of chemo and radiation followed by double lung cancer surgery. I had upper left lobe removed and wedge resection of right lung. My nerves to the left diaphragm and left vocal cord had to be sacrificed so I have a prosthetic vocal cord to talk! I’m now a 5x double lung, lymph node, rib and brain cancer survivor/ fighter! I’ve had SBRT radiation, Proton Beam radiation and Gamma Knife radiation! I started immunotherapy in 2020 and just completed infusion #88 and scans been stable since 2020! I was only 30% match for immunotherapy but I told them what choice do I have? Worst case scenario it doesn’t work! My faith is what keeps me going and the will to live!! You’re in my 🙏🙏🙏!!
I have a 30% match for PD-L1. I just started on pembrolizumab. I'll take your comment as having made my day.
@ that’s what I’m on aka Keytruda! Infusions every 3 weeks!
@ heck yeah! I've got carboplatin and pemetrexed as well cause I'm stage IV but dude, your story makes me smile.
That is very inspirational Thank you for sharing😊
Wow…you are a BEAST…a true WARRIOR! Blessings to you for your health & mind! May all be strengthened & healthy!
Move on from this appointment with optimism for a meeting with a doctor familiar with appendiceal cancer! You got this!
Don t lose your hope ,been watching your videos about anxiety and it had helped me a lot long time ago .My mother had stage 4 ovarian cancer and she fought for 7 years, and she wasnt t young. You are still young and strong you will get over this, and God loves you!
@@MrParazitii51 prayers and positivity.
My mother was fortunate to have a wonderful oncologist. He was such a kind man. All I can say is trust your gut when it comes to your life!
“Even though I walk through the darkest valley, I will fear no evil, for you are with me; your rod and your staff, they comfort me.”
- Psalm 23:4
Who made the darkest valley?
The valley of the shadow of death…
I’ve been treated at Sloan Kettering memorial in New York. What she said in my opinion, is untrue. I’m stage IV deemed terminal, but the thing keeping me alive is immunotherapy and an oral chemo prescribed because of the gene mutation I have. I, too, had a PL that made me “ineligible” for immunotherapy but here I am thriving on it! The oral chemo targets the mutation which keeps the cancer at bay. You need to find out if you have a mutation. It’s a game changer. I was supposed to live max 15-20 months. I’ve hit my 5 year mark, and live a semi decent, normal lifestyle. I’m so sorry for your experience. Run from that place, and onto the next. Never settle. 🙏🏼
Pembro?
So happy you’ve found a treatment that is working right now. Just be hard 😊
The reason the Dr mentioned the kidney stones was important. You can get septic from stones when you are having chemo. It is a very serious situation.
Good luck on your journey🌸😊
Yes I no someone who's in that boat, she is very ill with septis
You have an amazing father. What a true blessing. ❤
1st of all God bless you with many healing prayers! I am a nurse, I worked for a top 10 hospital for 40 years. I worked for a neuro oncologist who is now retired, I used to ask other staff why he always had such a flat affect, showing no emotion with his brain tumor patients. His patients loved him, felt secure, just no empathy. Then one day, I found him sobbing in the staff room corner. I was told to just leave him alone with his grief. One of his patients had passed away, and I was amazed at the emotion pouring out of this doctor. I was later told that he holds his emotions close to his heart to be as effective without letting his emotions get into the way of his treatment therapy. Not sure what is best, he was a great well known doctor, one of the best in his field. Look for credentials/treatments, emotions can be deceiving! 🙏🙏❤️❤️✝️✝️
I think a flat affect indicates one is actually very touched emotionally by a situation. It's a way to maintain focus and objectivity without being overcome. However it comes off as detached and aloof. It's tough to be the doctor in dire situations. Hard to balance feelings vs professionalism.
Hard on patients too.
I have nothing but respect for people that choose a line of medicine in which they know up front that of every new patient they'll meet a fair amount will not make it. They constantly get people coming in that could have been saved earlier with proper screening. Or, people like this very case, that can not make a difference between their personal political and their own health and get nonsense treatment instead.
When I go in for treatment, I get a team of wonderful, kind nurses taking care of me. If I just ask they'll get me my assigned psychologist whom is equally kind. I get all the empathy I want from them.
From my oncologist I expect nothing but the cold, hard science. I only need him to know his stuff or know where to find it. Noah's oncologist acted correctly and ethically.
Exactly. My neurosurgeon showed no emotions, even though he and everybody else was sure I was going to die during my surgery. Straight to the point, telling facts, keeping it professional. The emotional support I got professionally from my family and friends. I had the best of both worlds. Who ran out of the hospital to speak with me after a check up with my nurse? My emotional neurosurgeon who wanted to know how my scar was healing and how I was doing. He once sank into the floor sobbing over losing a patient as well, I saw him a few years later sitting on the floor devastated. I don’t like the aggression towards established knowledge and the judgment of a person they don’t know.
Completely agree!! My oncologist is one of the best in the U.S. Not great with bedside manner at first, but I didn't want that, I wanted someone who knows what's up! Years later, great guy, love him dearly. He is retiring, and I was sad when he told me. Everyone is different.
@@denese2822 watching my oncologist retire is that weird kind of flex I hope I get to do one day.
Johns Hopkins is a leader in appendix cancer treatment, seeing 100 to 200 patients a year
This
Why is he dragging this along without any chemotherapy or radiation? Most people with cancer don’t. I’m 20 years cancer free, started treatment right away.
@@mandybradley3079 I think he has to wait a little bit like 2 months before he can start the chemo because he had the surgery. But I agree the more aggressive he is towards it now the better.
@@mandybradley3079he seems very scared of it understandably so
I’m stage 3B colon cancer survivor….Partial colonectomy and 12 rounds folfox 5….piece of cake the chemo was…Only thing is you will be very tired and maybe neuropathy
Whatever you do please dont wait too long because cancer grows fast. Find another oncologist fast and start some treatment.. Prayers for you and yours ❤
Husband 57/ Stage 3 colon cancer, did both the protocols you mentioned , one after the other. Quality of life sucked, and he said at the end ( exactly 3 years later ) he would not do it again.
I pray you get EXACTLY the perfect team for your cancer.
Did you pray for your husband?
@granddaddyofthemall6320 of course.
@ Is he still alive?
I know people who have. Survived Stage 4 colon cancer. I don’t know how different appendix cancer is but I do know you are not stage 4
@granddaddyofthemall6320 no. He is resting in peace to rise in glory.
This is the same BS that. Paul in Perth went through HE Found a doctor who saved his life
Paul was ready to accept death until he took a chance and traveled across the country to the right doctor. 🙏🙏
I’ve mentioned Paul too
@@catlady6463YES me too.
Paul went from dying to living because he found the right doctor.
Exactly what he should do as well
Not what cancer patients need , they need a warm approach not robotic protocol , bless you , you will get through this ❤
A PET scan is absolutely standard treatment after a cancer diagnosis. Insist on getting one. ❤
Everything you're saying about chemo and the room brings back so many emotions and memories for me. I remember sitting in the waiting room, looking around at the patients and thinking how I didn't want to be a member of that 'club.' On my first day of chemo, as I waited for the nurse to bring my poison, I looked at the other patients. The ones who were bald, sick and their skin was grayish had a red bag. The ones who had hair had a yellow bag. I wasn't sure how far into their treatment they were, but I prayed I'd see her bringing yellow for me. I'm so glad you are researching all options so much. I had nobody to help me. I was lost and scared. And I just blindly did what my doctor advised. I was lucky and survived chemo and cancer. I think so much has changed since I went through it. I'm about to celebrate 30 years cancer free. With your dedication to finding your best options and with your dad's advice and knowledge, I just know you will get through this. I am praying with you and for you. God bless you.
From one stage 3 cancer survivor to another. I was diagnosed 13 years ago. I agree that you need an oncologist who specializes in your type of rare cancer. Search online for a cancer center. Forget alternatives for now. They have helped you be the strong man you are and they can help you later after remission. You have a disease that wants to kill you. You don't have time to be looking for something that MIGHT help. You are going to need an oncologist you trust and then follow their protocol. Your oncologist will be a thinker and a mechanic, not your spiritual advisor. Don't poo-poo the infusion room. You will be amazed by the strength imparted from your fellow survivors. And compassion. It can be very healing. Also your nurses are angels. The "we" in your journey should be you and your wife. I am sending you so much light and love. . .
I LOVE my infusion room! It’s a big bay, and I’m the youngest person in there by 20 yrs! (I’m 54) The nurses are angels. I get some much emotional support there. I’m not going to say I look forward to chemo, but since I have to have it, I’m happy it’s not a terrible experience.
yup, he will lose his window of opportunity to knock this cancer down. Cancer does not sleep. You are fighting a war and you need to be prepared.
Speaking as someone with a rare heart condition, people in our situation may never find a doctor who "specializes". When you have a rare condition, sometimes the best you can do is find someone who has at least treated it before. Oftentimes, even that won't happen, and the best you can do is to find the smartest, most experienced doctor you can. No one "specializes" in my condition. There are doctors who have treated patients with the same condition, but none "specializes". They are treating me as they would treat anyone with heart failure and hoping it works. That sounds a lot like what's going in Noah's situation. Every condition won't have a doctor who "specializes", or if there is, they may be inaccessible. It's important to look around and research your options, but it's also important to not waste time chasing something that may not exist.
Listen. Im going to give you some tough love as a cancer survivor. Oncologists are not rabbis or priests. They are doctors, and to maintain sanity and save lives, they must remain a little detached. This isn't psychotherapy. It is information and protocol building. Please find a specialist at a comprehensive cancer center. This is a rare cancer, but there is a protocol for it (5FU and HIPEC). A chemo room is intimidating, but at least they showed it to you. Nobody showed me. I just arrived with a PICC line, and a nurse came out with a gigantic syringe of what looked like red juice (known as the red devil chemo) and slowly pushed that giant syringe into my vein. It is a vesicant and can burn right through the vein. If I felt burning, she slowed down. My vein stood up to that FOUR times, and I also took another chemotherapy immediately after that each time. That first chemo made me pee bright red immediately after the infusion. Nobody told me that would happen either. It didn't hurt. It happened once every chemo, and I was surprised only once. If you have to do chemo, and brother, YOU DO, trust G d. Stop thinking of it as poison. It will impact your healthy cells. I know. I lost all my hair. But I visualized it eating my cancer like Pac-Man. That was FOURTEEN years ago. I am sober, too. This is not an F everything and run situation. It's a face everything, and recover one. I am praying for you. Please find a specialist in your cancer. Please reset expectations. It doesn't matter if a doctor has a cold bedside matter or if you feel like a number. The only numbers that matter are the birthdays you celebrate after successful treatment! Godspeed!! Also, no offense, but your dad is influencing your decision. Your minds were made up before you saw this doctor. Your dad literally say YOU'RE NOT DOING THAT. It makes me worry for you. Finally, every cancer TH-camr is transparent in their journey. I don't think you meant to imply you are being MORE transparent, but don't do that. Most of them don't have GoFundMes. Their videos support them and they are also equally transparent.
So did the chemo have any negative long term effects on you, or are you healthy as can be? I heard it can have long lasting damage, but I dont really know anything about it. I understand if people are scared of it though, because it really is like not really the healthiest thing in the world.
Don't become a doctor if you aren't going to sympathize with your patients.
@OoLiiMiiT3D It had zero long-term effects on me! I had short-term side effects, but once I finished I was great. And I'm still great.
Agree 💯
Thank you for being blunt in your response to Noah. I have come to really, really appreciate my chemo room. The nurses are completely thorough in their job and also very compassionate. I have faith that chemo for my triple positve breast cancer (I also had a double mastectomy) is the right treatment. I pray that Noah can have peace of mind whatever treatment he decides on. BTW, I don't have a go fund me account nor a you tube channel. And yes, chemo is very expensive. Insurance pays most of it, but it's still very expensive. Diane
Long time cancer patient here and I think you’re being very smart! Check ALL options. Chemotherapy has given me terrible short term memory issues and now in the end stage CIPN caused by the chemo. My life is pure hell because of that. The radiation damage was immense. I’ve been fighting secondary cancers now that were caused by the radiation. I’m have now chose quality of life over quantity of life. This past 14 years have been pure hell. Prepare yourself if you choose to go this route so you don’t end up like myself and many others. I’m praying for you and thank you and your father for helping you share your story. The more followers you get then that more people praying for you and I believe in the power of prayer and I know you do too. Hugs from me…. Beth in Illinois❤
I also have CIPN from chemo. My doctor says that 70% of all patients with CIPN do eventually get better of it after chemo is finished. I pray that I am in that 70%. I am so very sorry that your neuropathy is still there. Diane
@@thecraziestcatladyyouknow I believe in the power of prayer too. At our hospital, some medical students would gather us nurses, staff, and family around the bed to pray. We never made it a big deal, mostly at the families request. I will stop and pray with anyone. I also say a prayer b4 my shift to give the best care possible! 🙏🙏🙏
There is not a more genuine person than you on TH-cam. When you cry, I cry. When you smile, so do I. I just adore you. I have so much faith you’re going to be okay 🩷.
Omg me too! Bawling right now
Amen.
Agreed
My husband was treated in a similar setting. I sat next to him during each chemo treatment. He did not have a port and after original surgery had to have blood transfusions to build him up a bit. So for the first month or two he did not have the full dose. He had almost a year of chemo. This was for stage 3b colon cancer. He had more than 20 years of quality of life. ❤
i have been following you for many many years. i am in recovery as well and you ALAWYS seem to give hope. you are the most unbelievable speaker and strongest person i have ever heard. i will continue to follow you on this journey. if you can be sober today and go through this unfortunate life you have been given, i truly believe the strength you have can get you though anything. thank you for continuously giving me hope. i pray for you my dear recovery friend.
My mum is 73 has cervical cancer three off my uncles have died from cancer. Can I please ask any woman reading this please please get ur regular tests . Keep fighting bud . Hope you're treatment is going well . Sending love across from the pond
I sat with my beloved husband while he was told by a consultant that he was terminal, nothing could be done and to get his affairs in order,
I could not physically breath when I came out to be honest. Luckily my hubby had private healthcare with work and we went to an private oncologist, he was great until two years down the line when it was obvious that the cancer was indeed terminal and treatment had stopped working. He then said goodbye in a corridor and we never saw his again. To be honest my husband never asked how kong he had, he fought like a trooper on oral chemo, knowing that the cancer was inoperable. He felt completely let down and deserted and gown do you tell someone who refuses to believe how ill he is and does not want to know,.
We used to sir in the waiting room and it was at the beginning everyone looked so ill, he looked so well, we didn’t belong there.
Two years later he was the poorly one.
I am still heartbroken without him, I suffer from medical PTSD going through this journey by his side, but I wouldn’t have been anywhere else.
He was so loved we had wonderful times xx ❤
Your journey will be good, you are a different person, everyone’s journey is so different.
This touched me. Big hugs. ❤
Your dad is absolutely right. Your soul will know where you’re supposed to be and this was definitely not it. You’ll KNOW in your “knower” when you’re on the right path!! Your spirit will roar!! ❤
The support of parents is SO AMAZING! I know people who have no or very little family support. YOU ARE SOOO BLESSED! Wishing you complete healing!❤
Stage IV colon cancer for two years. Have had my own rocky road with my treatment. Very frustrating. Knock on as many doors as you can. It's your life!
I want you know man.For the past few years I’ve been feeling terrible, in a search to find out what was wrong with me about 9 months ago I stumbled across your videos.. I got my bloodwork done for the first time in my life and found out my testosterone levels were unbelievably low at 89.
I started testosterone replacement and it has completely changed my life. You were the one that pointed me down this path.
I hope you get better man, it’s awful to see.
Your Father is so reassuring and right on so many points, your soul responded to the incorrect path. God has something BIG for you brother. I will continue to pray, you got this.
Agree! Listen to your intuition
But God made cancer so why pray to God?
@@granddaddyofthemall6320Why do you find it necessary to be negative?❤
@ It's not negative.
Sorry to hear this was such a difficult visit. As a doctor at a major research hospital, I would encourage you to get a second or a third opinion at an NCI-designated Comprehensive Cancer Center. Getting evidence based treatment is usually the recommended path, which ultimately often includes chemotherapy for a later stage cancer, but there are many recent developments in cancer treatments that may expand the options and improve outcome. Also, unless you got their specific consent, please be careful not to show other patients at the hospital in your video as that violates their health privacy.
I agree with you on this, I also would recommend on getting another opinion for sure.
IMHO, if the doctor is the best in the field and with a great track record, I would pick him/her regardless of bedside manner. I am only interested in beating the disease, don’t care if he/she will hurt my feelings. PLEASE get treatment ASAP…the longer you wait, the more time you give to the cancer to grow and spread.
Based on my impression, the oncologist was simply trying to hint that this is not the appropriate place for you to receive suitable treatment. I have a sense that the oncologist wanted you to come to this realization on your own. If I were in your position, I would seek out another hospital that can provide you with an adequate response to your needs.
This
This
This!
Very smart of you. How did you come to that conclusion? Do you think he was uncomfortable with saying the blunt truth about this type of cancer?
I agree. Who knows what she is forbidden to say, or if she has a personal opinion that doesn’t line up with her job, which may be the best paying job she can find to pay her bills. Who knows. But if she’s treated cancer for this long, she has got to be aware that bedside manor matters, patient education matters, and that maybe her delivery was intentional. I would never defend willful negligence, but the system doctors belong to have them so brainwashed to be afraid of endorsing other options
I understand your father’s feelings, because I am also caring for my husband who is suffering from stage 4 lung cancer. which doctors say is hopeless, but with God it is possible,. Please never give up hope.!
Exactly, with Jesus everything is possible. And even when people leave us, we will see them again one day. God bless you and your husband, and maybe even a miracle happens 😊❤
@@OoLiiMiiT3DAmen🙏
What does that mean, "with God it is possible"? If God is all-knowing and all-seeing, then why would he have not only allowed your husband to get cancer but also caused it to happen? Now you are hoping God will change His mind and rid your husband of his cancer. None of that makes any sense. If God gave your husband cancer, it means that He is calling him home, to our eternal home with Him forever in paradise. We need to stop fighting cancer and embrace it as a gift from the Lord. Cancer allows us the time needed to put everything in our human lives in order so that our relatives will be safe and secure. If you believe in Jesus Christ, our Lord and Saviour, then you have nothing to fear from a cancer diagnosis.
@@konradvonmarburg7733 I am a born-again Christian, my husband too ,and I know there is life after death, so I am not afraid of death, but I do not believe that illness comes from God I believe sickness come from Satan or a bad lifestyle,so I wait for the healing .
I’m so sorry you left feeling that way. I can definitely relate to your feelings and how doctors are so emotionally detached. I get that they are used to seeing patients on a daily basis with similar conditions but it doesn’t help when you leave an appointment feeling emotionally crushed. It certainly adds to your anxiety and mental health which manifest itself in your wellbeing. Don’t let anyone including your doctors put you down, it’s your body and health. Advocate for yourself!!! ❤❤❤
So sorry that this was the result of your office visit! There really are doctors that are more compassionate. I pray that you find someone that treats you as if you were a family member! Prayers!!!!!!
I have a port and am really thankful to have it. It makes receiving chemo so much easier, as each infustion lasts over three hours. Of course, it does feel surreal in the beginning to walk into a room full of chemo patients and chair after chair! My experience of having 8 rounds of chemo thus far (triple positive breast cancer and double mastectomy) has shown me that the nurses are exceptionally dedicated to making sure that chemo is administered exactly correctly and in a friendly manner. No less than two nurses check the bags to make sure that the correct "cocktail" has been prepared for my infustion. That has been very reassuring. Fortunately, my oncologist has been extremely compassionate and has explained in great detail answers to all my questions. She has explained the side effects. I have blood work every single time prior to the infusions. I am so very sorry that your experience has been less than ideal, to say the least. I completely agree that you should investigate any and every alternative available for your cancer. How can you not? But if chemo is the route you take, I pray that your experience will be every bit as good as might as been. I pray for good results for you. Diane
Retired Critical Care physician from Ontario here…I spent 34 years working in Emergency and ICU…having said that, this is a difficult decision…foregoing mainstream treatment, i.e. chemo, is a literal crap shoot…your Dad is terrific…best wishes!
Thank you for your work in our hospitals! enjoy your retirement!
Noah, there is almost nothing that hasn’t been said on the comment section, at least nothing that would really change where you are now. I also don’t the experience and or the knowledge to give you my opinion as a professional..so I have decided to the following instead. Every time you post a video about your journey..I will watch it to support you that way..but as if your last video, I will always leave you a “God bless you Noah”. Just know that while it may not be the most elaborate and scientific based comment, it does come from the heart, and that I do mean it from my soul when I say..GOD BLESS YOU NOAH!!
Thank you for sharing your pain and painful experiences. It's overwhelming. Praying for lightness of being in a comfortable body for you my man.
I’m so sorry the doctor wasn’t more informative.That doesn’t help you ,sending love and blessings from Ann uk .Your in my preys every night god bless ❤️❤️❤️🇬🇧🇬🇧🇬🇧
I agree with your dad. That’s not your path. Sending you lots of healing thoughts and vibes. You’re path will reveal its shelf and you will recognize it. ❤
You are my thoughts and prayers. It is so comforting to see you walking this out with your father. What a blessing you are with the two of you together. 🥰🙏
I do not have cancer but cared for both of my parents who died of leukemia 25 years apart! My mom died at 95. What I can tell you is keep looking for that doctor you make that 100% connection with! Besides your faith and family that Connection is Everything! I pray for you and your family!❤
I pray for you each night as I take my quiet time to pray. I know you are inundated with messages, and I have not messaged you until seeing your video from today. As a former nurse who is the daughter of a cancer patient I was very distressed that my father’s oncologist did not offer ablation therapy which I had researched extensively for his type of lung cancer. I also asked that he have a PET scan done, but was informed by his doctor that that may come later, but not then. My brother-in-law at that time was a doctor, and my sister was also in the medical field, and they along with his oncologist literally shot down anything I suggested or questioned. My mother just agreed with everything his doctor said. He did not have a PET scan done until after the cancer had spread, and at that point there was extensive involvement. His doctor did not order the scan; I had arranged an appointment for him at Georgetown Hospital in DC where they were surprised one had not been done. They were wonderful and highly respected. They also felt a different type and course of chemo were indicated. So if there is any question of anything on your scans or x- rays please insist on a PET scan, bone scan, CT scan, flat plates of your abdomen…the whole nine yards. Go to another oncologist, and if you still feel your questions are not answered or you are not comfortable with that oncologist go to another one. Don’t give up. There are so many of us out here keeping you and your family close in our prayers. I am so glad you have your Dad with you through these appointments as your support…he seems so kind and there to bridge that gap when your head is probably spinning from all the information. Bless you.
Hi Noah, I occasionally followed you over the years and left some harsh common sometimes as I thought you were an exhibitionist ( sometimes) However having seen how you’ve handled your current situation. I can only bow down in admiration of your courage and candour. I wish you the very best. I’m sure you’ve got what it takes to pull through and in the process I’m sure you are going to help a lot of people
My sister didn't both messing with an onocologist after 2 visits was discovered with non-alcohol Cirrhosis shortly after & decided to face death with dignity at home...I miss her but I supported her decision after asking her what she wanted to try doing & she simply told me she had more relatives in eternity she was missing & wanted to see than things to live for here. It's been 3 years and I miss her. Truly our health care needs reform in America.
I'm so sorry for your loss
Alpha one anti trypsin?
I'm sure you made her time sincere and special. Honoring her wishes was hard, but necessary. Truly sorry for your loss!
Why would someone with Cirrhosis be sent to see an Oncologist?
@@konradvonmarburg7733 it was discovered after her onocology visit
Keep the faith Noah! God can redeem ANY situation. We never move forward from a position of fear, but from strength and peace from our God. Prayers for a healing miracle!
I was 46 when I was diagnosed and in very good physical condition. It is hard to reconcile that with having cancer. I never did feel “sick”. I also had a couple experiences with emotionally unintelligent physicians but , they were the exception in an overwhelmingly caring environment. I’m now 18 years out, best wishes on your journey.
I tell you man, your father is something else, no wonder you’re an amazing human being.
Noah, go for a second opinion. I am sure you are frightened, but God will show you the way.❤
Dr. Joseph Coulgan at Mayo Clinic in Rochester, MN!! Head of hematology/oncology. My husband was stage 4 large b cell non-hodgkins lymphoma in 2016. He is fine. Keep in mind, Dr. Coulgan may have retired, but they have an excellent cancer center.
Best doctors in the whole world.
I have also battled cancer. and I had the same feeling (I was not comfortable going to the oncology floor) My heart was breaking for myself and all the people who were there. Also terrified about what I would endure. We are all human no matter the age we are. You are voicing what many of us have been through. God bless you and may he give you strength.
How lucky to have such a caring father. I imagine myself in your shoes in this horrible spot in your life and my father wouldn’t have anyone words or show up or anything. Happy he is there for you during this. Chin up
Noah, sorry to hear this! Some Drs have become immune to their profession, oncology, while no excuse as they see multiple patients, some who live years long and others who die quickly- no excuse. Sometimes they need to be reminded so a change is made, it’s time for a new Dr. I understand, you shouldn’t have to ask him to be kinder, etc but perhaps he’s just going through the motions and forgot that there is a human who is scared and fighting for their life on the other side. Fortunately, my sister’s oncology team and surgeon have all been amazing. I pray you find one who is kind to you. ❤🙏🏼
NOAH THOMAS YOU CAN BEAT THIS CANCER STAY STROMG MY FRIEND
Yeah, these comments are a lot. Stay strong. You guys will figure it out. You're gunna do what you're gunna do at the end of the day, so embrace it.
Oh Noah😢 is there any POSSIBLE way you can go to the Mayo Clinic???? I can’t stress enough how much different this could be for YOU🙏🙏🙏 PLEASE see if you can. You wouldn’t believe how they take care of you- they have TEAMS of doctors, all working for you. It is amazing seriously. All around- I’m a living example.
It’s important to like your doctor, and for your doctor to genuinely like you. They are healers. Healing takes positive energy. Thanks for sharing the experience of a negative, however intelligent healer.
Noah I’m following you because we both have stage 3 cancer. Mine is very rare and aggressive too. Mine is signet ring cells. Googling that is like a death sentence. But everyone responded to treatment differently. I’m already done with my six of 8 rounds of chemo infusion. So far I hardly feel any side effects. I’m no longer in pain from the tumor so my oncologist said that’s a good sign that the tumor is shrinking. I’ve watched Christina Newman here on TH-cam and she’s doing what you’re currently doing and at the end she regrets it. Please it a fight against time. Your cancer, mine and Christina are all very aggressive types. Start with conventional treatments while you search for alternatives, please.
I thank God you think like your Dad. The only intelligent decision is an informed one. Learn everything you can about YOUR cancer, then make a decision for your life. In watching your Dad for years, I fell in love with the camera guy who loved kids like his Dad does.
I am glad you have the GFM, because what you find out on this journey of research and protocols, could very well be the ticket that not only saves your life, but also contributes to saving others. As you have mentioned, your cancer is vastly underfunded in research, so sometimes we have to call upon others to do that research themselves, because it doesn't appear from your current protocol of 'stay the distance, no matter what' that is being advised by your oncologist, that a lot has been learned about treatment options for your cancer. I wish you much luck going forward and please know, that no matter what you are creating a legacy of cancer exploration that may just reveal new protocols that will make a huge difference to all who suffer.
Huge shout out to your dad for being so loving and supportive. What a good good man.
I was diagnosed with lung cancer last year and I'm here to tell you that you need to find a oncologist that listens to you. I was lucky enough to work with doctors from UPMC Hillman Cancer Center. They all had great communication skills and really seem to care they are in constant communication with each other with my surgeons and even my family Doctor working together as a team. You keep searching till you find that kind of team effort because that's what makes great outcomes. Don't let one doctor get you down.
Thank you for sharing your journey with us, Noah. You are a brave soul. You will get through this 🙏
How lucky you are to have someone knowledgeable and supportive to go with you, interpret for you, research for you. Means a lot! Good luck with whichever treatment you decide on. Btw: life long exerciser, always maintained my weight still had uterine cancer grade 2. The diagnosing Dr forgot to tell me the results so I thought it wasn’t cancer…wrong 4 years later…my results were found on my chart. Still stage 1b, surgery and done. My oncologist attributed my consistent exercise for slowing the cancer down. So keep up the good work. 😊
So sorry you’re going through this horrible disease
We appreciate you sharing different opinions I need to get my husband to see alternative doctors this is such a scary thing to go through
My niece passed away of brain cancer and now seeing my husband I feel like I’m going through it
We’re praying for you
Having the right oncologist is key to your successful treatment. I wish you the best in finding a new one that could see to all of your needs
I couldn't be more impressed than I am with your level of self-awareness. That will continue to serve you very well moving forward. Based on my own life challenges and lessons learned, I don't feel that anything is more valuable in life than self-awareness in concert with our guiding instincts - they make a formidable team. From my perspective, you are doing everything just right and I have mega confidence in your ability to get where you want to be, your own way. Although already a strong young man, I'm sure we're going to see much more growth on every level of your beingness (cancer excluded) as this journey unfolds. Keep trusting yourself, Noah. 🤗💪☯️
Karen
I went through melanoma (stage 2.5) treatment in 2012, and then had a recurrence in 2015, but I got through it. It was very difficult and I struggled to keep my spirits up, but thank God for family and friends. Thank you so much for having the courage to share your experience, sending love out to you. John
I stopped by your channe this morning just to check up and this was a complete shock. Its been heart breaking to watch the last 10 videos 💔 I can't belive you're going through this. I truly belive you will make it and your testimony will inspire others! Praying for you 🙏 ❤️
Bless you Noah, I think that your Dad said it, she wasn't speaking a language that you resonated with. You will meet professionals that are passionate about what they do, and helping you through this with with details, encouragement, this doctor is one doctor, with one opinion. Go out there, and be guided, and thank you for sharing this day with us, you are one strong human xxx
Sometimes doctors try albeit perhaps clumsily to prepare people for the worst. They struggle to not give false hope but every doctor is after all an individual. I worked with many doctors over a 30 year nursing career. We saw people if they did poorly enough to need a critical care unit. My dad had malignant melanoma when I was a kid. He survived a radical chest resection and no chemo or radiation and he survived to live to 84. That was back in the 1960’s. I wish you the best in your treatment and recovery.
Hi Noah. I’m praying for you to be well. I I have had 24 radiation treatments and still on chemo pills 21 months from the day I was diagnosed with EC cancer. I’m doing well. My pet scan is clear you can do this. I’m much older and you can get healed whatever which way you decide to go God will be with you.
Noah, my dad went to this appt with his Pancan diagnosis with my mom. After the appt and seeing the place he walked out and told my mom that that place felt dark. He said I am never going back there. They told him 5 years with treatment and 9 months without. He said he’d take the 9 months and he had the best time. He lived 17 months. I’m not sure why our healthcare can’t be at least more caring. It’s so so sad and overwhelming for these patients as is but that’s just how it goes. I’m sure there’s better ones out there and will be praying yoj fjnd peace and confidence in whatever decision yoj make. Our bodies are amazing
I hope you find the best doctor to treat you, we're all here with you Noah , keep praying for you, blessings from Argentina
I’m so sorry that you had this experience with your oncologist. My sister had pancreatic cancer and was treated the same way. I am glad you have your dad who is a doctor with you. Oncologists are very matter of fact with treatment. I would seek out other doctors with different treatments. Keep advocating for yourself. Never stop questioning.
Hi Noah just wanted to send you all my support I myself have stage 4 breast cancer and have had chemo then 2 lots of radiation now ime on immunotherapy. I just want to give you a big hug when I see you upset it is such an emotional journey and it does remind you how precious life is . Oncologists see this sort of thing day in and day out so unfortunately they get decensortised to how hard it effect patients emotionally . I myself got better dealing with things has time went on so I hope things will get a little easier for you .sending love to you and your family.❤xxx
It is difficult for anyone when dealing with cancer. Try to focus on the positive; you are young and otherwise healthy and a supportive dad. May God heal you! You can do it! Have a beautiful day🌻
Stay strong, brother! God bless you! For some reason, I can't shake the feeling that you will come out of this okay.
It’s hard when a dr seems like they’re not at least a little emotionally connected or at the very least have empathy.
.. and let me add Noah, that the contribution you have made to the YT community, and beyond through the years has given us so much value. In addition, the information (literally play by play) you are giving all of us in this journey is priceless, and well worth the contribution we make to your go fund me. I just want you to recognize that you earned every dime that has been given (Hopefully this eases any anxieties in this area), You are worthy brother. Praying, and looking forward to the victory friend.
I don’t have cancer however I have had 27 surgeries on my shoulders back and knees, and I know what it is to suffer. My prayers are with you.
I’m sorry that this was disappointing for you Noah. You are such a kind soul. I can tell you’re trying to stay positive. Keep your chin up. Love from NJ
I'm sorry you got that type of doc. My experience has been that the more initials after their name, the more removed they are from emotionals. I have prob 6 specialists and my nurse practioner knows by body as a whole more than anyone. Follow your gut! Continue prayers for you. Don't lose hope Noah. ❤
They are not there to make you feel good. They are there to tell you the truth. I’m sorry but you need to seek help elsewhere.
Your dad is so great. My dad cant speak so openly and emotionally.
Sending hugs, I am on the same journey as yourself with similar diagnosis. I am 6 months on from surgery and have been on chemo for 15 weeks now. I totally relate to your comments and emotions as I went through exactly the same. My breakdown came the first chemo session when they wired me to the machine, reality hit like a train as up to that point think I was in auto pilot , researching, trying to stay positive etc . The doctors I have spoken to have all been professional and pleasant and I have the utmost respect for them but I feel like a number when I speak to them, as you say protocol for colon cancer and they deal with many many cancer patients, no real thought to me as the patient going through this as an individual. I have found the colon nurses are my best source of information and support even just to let of some steam by airing my worries. I am sending positive vibes to you and your family as I know how hard it is for them to process everything that is happening. Special big hug to your dad, watching and hearing his explanations medically has answered some questions I had lurking at the back of my mind. Its not an easy journey but it is manageable I am 57, female and definitely not in as good a physical position as yourself and I am getting through it, 3 more chemo treatments and then we pray for the scan results but feeling hopeful.
When optimally practiced, medicine should be both an art and a science. There are far too many MDs who only practice the science. When you find one who is mature enough in their profession that they also practice the art of medicine, you have a gem indeed.
What is the art?
@@granddaddyofthemall6320There you are again, my friend. I am thinking of you. ❤
Try and find a consultant with a team of cancer nurse specialists. They more often have the time to support patients more holistically and are more in tune with not just your medical needs but also emotional, practical, spiritual and financial, building relationships with patients over time. Wishing you all the best on your journey Xxx
Medical "care" neglects the HUMAN in people; we are not our disease;, we are human beings! Don't be discouraged Noah, this is a journey. Please, Noah stick close to people who can support you emotionally, and more importantly, your higher power. You got this! 🙏❤ (expect your feelings to be all over the place)
There is hope because there's bound to be at least a few centers that are doing research into your cancer. You have your Dad, who is an incredible guide. You got this, Noah. Keep searching for the answers. Find your treatment center.
Hi noah i just wanted to say keep fighting im praying for you and you family God hand is over you giving you peace🙏
Honestly I could hug you brother I’m flowing you for the past 4-6 years if im not mistaken. And same time I was watching dug also 🙏🏽
We're with you, Noah. Every single step. ❤❤💖💖
Your appointment is like mine , everything you said is 100 percent true , welcome to my husband's world
Continued prayers for you my friend.🙏🙏 God's got this!!
And your Dad is an awesome Dad!!
PS: I am sick right now too - I ended up in Ascension emergency. The Male Dr. was a robot cold as ice, offered zero information of what to expect or prepare for, the RN could not wait to get on her personal cellphone, the front desk lady was also like a mean robot. The security guard was the only person that was civil, nice, and seemingly compassionate as I could barely walk into the clinic I was/am so sick and weak. I had trend to send a complaint up when I have the strength. I did get pictures of the board in the room listing the attendants.
I work for Ascension in Kansas. I'm sorry you had that experience.
Our hospital culture has changed. The last time I had to go to the ER, the treatment I received was *horrible!* I couldn't wait to get out of there. Now I know how they treat people they don't like...the homeless, mentally ill, etc. I prefer now to die at home, in my bed with my dignity intact. The compassion is *gone.*
Thinking of you. ❤