hi I'm Abbie and I am the Founder Trustee of a UK registered charity called The Invisible Friends supporting young people woth invisible disabilities and raising awareness. So I thought id use my knowledge to explain the difference between tubes. There are so many different types of more permenant tubes. Firstly you can have a Gastrostomy/Jejunostomy tube which is surgically placed and created. Usually these tubes are stiched into either the stomach (Gastrostomy) or Intestine (Jejunosotmy) Then you can have the Precutaneous Endoscopic Gastromosty/Jejunostomy. In basic terms this just deacribes the way in which the tube is locared and placed. In short theyre called a PEG (into the stomach) and a PEJ (into jejunum/intestine). There is also a PEG-J. This is a tube placed into the stomach with another extenstion into the intestine which allows access into both parts of the body. Theres also a DPEJ which is exactly the same as a normal PEG but it is inserted in a different way. so in short, the P and E on all tubes stands for where and how they are placed. Sometimes a paitent can decide which type of tube they would prefer based upon why they need it. i hope some of you find this information useful. 😊
That lady was disgusting. Even if you did have an eating disorder, that is not how you treat someone who is clearly struggling. I'm so sorry that happened to you 💗
Wow I found this channel because of the NG tubes and then I found out you have EDS too, I'm starting to find so many people with EDS on TH-cam and it really takes away a lot of the anxiety I've been feeling since being diagnosed about 2 months ago.
I recently started watching you, and I love your channels. I had no idea anything like this ever existed, it’s interesting to be informed about all of this. Also, I think you’re really brave for putting yourself out there and explaining things you go through when you don’t have to. Hope you have a nice day/night. 😊
Tyler Brenner Thank you for watching :) I'm not the vlogger but it's really good, helpful and heartening when people who don't have our conditions are willing to pay attention and learn. It means awareness spreads! 😃
I just found ur channel by mistake but I am glad I did. You are a very strong women. I couldn't imagine what it be like going through the things you are facing now. You sure do show ppl to be positive even when they are at their worst.
For every type of tube you need a stoma- that's the hole they create for the tube itself, and once that heals in 6-8 they'll generally switch it to a button so you don't have a dangly tube that can easily get clogged (a mic-key or an atm mini... one has a balloon, one doesn't.) A PEG goes straight into the stomach, and once the stoma (hole) heals your switch to a button. A GJ is a tube that again, once the stoma heals is a single tube with two openings- one that leads to your stomach and one that leads to your jejunum. There's also the option of having a separate PEG tube and J tube. It involves two stomas, and sometimes two surgeries, but it's the best option for some people. Also- switching the tube to a button does not require another surgery! The only surgery is the original creation of the stoma and tube insertion.
They both have stomas, that’s just the name of the hole that is created to make the tube go through. A GJ goes through the stomach, it’s two tubes in one, with one end going to the small intestine and one to the stomach, that’s a PEGJ. A j tube goes straight to the small intestine that’s a PEJ.
You’re amazing! I watched this because my elderly dad is going to have a feeding tube post op and seeing how well you cope with it has really improved my positivity about the situation. Thanks a million!
Interesting. I went pretty fast directly onto GJ tubes once the nurses gave me a couple goes at NJ and neither attempt worked (my nose is too small, I kept choking!!). Once you get over the "body horror" aspect of having a permanent open wound in your body and a tube hanging out of your belly... it's not so bad. It's the same basic principle of having any feeding tube, in that you have to flush it and keep it clean. I think in your recent vlogs you've spoken about wanting to move onto GJ tubes, and I definitely can see the advantages of them over NJ. There's far less discomfort, there still is the possibility of infection but it's more controllable, it's more discreet, and relatively easy to take care of. Since you (Amy) have gastroparesis like me, make sure if you do get a surgical tube that you get one with a G port though, for venting!! It helps a lot when you're overproducing stomach acid/bile and don't want to keep vomiting it up.
My daughter has Gastroparesis. She has a gastric stimulator and will be having surgery next week to have the battery replaced. Her surgeon will also be inserting a GJ feeding tube.
this video makes me literally hate the human race... the fact that people still stare or act weird to others because they are different... just baffles my mind. I thank you for doing these videos. hopefully open peoples minds a little bit
Hi Hun hope your doing well. Just wondered if you can actually feel the feed going into your intestines. Also with or without the tube it doesn’t change who you are. Your a very pretty lady ignore those who talk the people you need are in your life already. Your strength amazes me xxx
these videos are sooooo helpful , thank you ! As a medical student i never learned what the patient's point of view in any illness so videos help me so much understnad what the other person is feeling.. not what the text books can teach you
Katherine Gallo I'm glad there are student professionals like you who watch videos like these to aid learning! :) I started in health sciences before I dropped out & declined further in health and wish someone had suggested non-professional videos, blogs etc, especially patient ones because I find it so much easier to learn that way and more effective than trying to decipher journal articles and textbooks!
You are incredibly beautiful. I just stumbled upon your channel by pure chance and of course, my attention was immediately caught by the tube, but after that first second, I kept admiring your hair, eyes, style and so on. I never say this kind of stuff, because I don't like to sound like someone who tries to sugarcoat reality, but what you said about how wearing makeup makes you feel more confident really made me want to tell you this, and I assure you that I'm completely honest. I'm glad I found your channel, and I will surely keep following it. Lots of love 💙
Hiya, I have a peg-j tube (due to my gastroparesis) and was advised to use Cavilon barrier spray (or cream, but I use the spray as it dries faster so I can tape it faster) to prevent my skin reacting to my tape. I also prefer duoderm but sometimes react to it so I use cavilon under it, that a get on prescription. If you keep reacting to it I recommend giving cavilon a go. I also tape my joints as they’re very unstable, and use cavilon under it to try and protect my skin and it works well 😊
A pej Tube goes directly into the intestines, it stands for Percutaneous endoscopic jejunostomy. It’s also known as a straight j Tube, fitted via endoscopy. A gj Tube(gastrostomy with a jejunal extension) is the one with 2 branches. It’s also known as a peg-j when fitted endoscopically and stands for Percutaneous Endoscopic gastrostomy with a jejunal extension. If you are likely to need to vent gas out of your stomach or drain stomach contents then the peg-j is the better option as it has the 2 branches. The peg-j surgery is also a smaller procedure, so recovery is faster. Both the pej and the peg-j are fitted via scope but the pej needs the intestines to be sutured to the abdominal wall. The peg-j doesn’t need this, and it’s often literally just like a big piercing. The hole is made with a trocar (really big needle) and the Tube put in it, then they use the scope to thread it through the intestine to the jejunum. I was awake and alert for it and it wasn’t bad. I don’t respond to local anaesthetic so I felt it too but it wasn’t much more painful than a piercing (although the pain lasts longer as the Tube fitting procedure takes longer than a piercing. When it’s removed it heals by itself and all we have is a small indentation on our skin . I’ve had my Tube almost 3 years now, so if you have any questions feel free to ask. I’ve also got loads of Tube related info in my Tube feed awareness photo folder on Facebook, that’s set to public so anyone can see it. I’m the only Fiona-Jane Kelly on Facebook so I’m easily found- feel free to take a look 😀
i just recently found your channel and i'm so glad i did. i love to learn about new things, which your channels do so well, but you also have a stunning personality and i love watching your vlogs. i hope you're doing well today ♡
It so hard even after being diagnosed. My doctors wouldn't treat me unless i loose weight again. Once i gained weight they took me off all my meds. I am so scared I'm going to die in my sleep. It happens nearly every TIME I fall asleep i inhale or aspirate vomit. It hurts so bad!! Ive gotten lung injections from it and they still think I'm fine!
I admire you. I have a chronic invisible stomach condition and I constantly get called a faker and have had to show my scar on my stomach just to prove I'm not a liar or that I dont make things up.
This is a weird question. I know you’ve said before how you do still feel hungry sometimes because the feed isn’t going into your stomach, but with the gastroparesis do you get the true stomach rumbling kind of hunger? I’m just trying to imagine whether you walk around feeling like you’re starving or if your hunger is more like just cravings.
That lady is absolutely disgusting.. I struggle with gastroparesis and I've had an NJ and currently have a G button.. There's a LOT more to feeding tubes than eating disorders!! And even if someone has an eating disorder that's NOT the way t treat them!! They are struggling every bit of every single day just as we do.. And for the tubes, I used to have a PEG tube and 2 months after it I got a G button.. both tubes you mentioned need a stoma to be inserted so both will leave a mark when removed. But believe me, it is WAY better than the NJ. This was an extremely informative video, thanks a lot girl, stay strong 💕
In Australia, we pronounce it as a “PEG” tube, like clothesline “peg” - it stands for Percutaneous Endoscopic Gastrostomy. As you explain, it is a small tube that goes directly into the gastrointestinal tract and provides enteral nutrition; externally there is a small tube that rests on the abdominal area. It does require surgery to be placed, as you say a stoma to be formed; but does provide you with freedom from wearing a temporary NG/NJ tube permanently. In saying that, a PEG can easily be removed and the stoma closed. Love your content, I have just subscribed. ❤️
I'm a primary immune deficiency class of patient and I get IV immunoglobulin every 3 weeks in an infusaport directly under the skin in my chest. I completely understand that this is not to extent of having a direct line tube placed in the stomach, but I can understand having to mentally prepare yourself for the idea somehow your body won't look like what you've always known it to be. And whether the tube works or doesn't, there will always be the evidence of that surgery and that treatment being there. I get a new port placed every 3 - 4 years as they are not meant to be used long term (but I'll be on treatments, probably increasing in treatment frequency, for the rest of my life). And with each surgery (I've had two now) the scars left and the feeling of the port and catheter in my chest and running through my neck is just evidence of a disease. It's depressing! It's scary! It's life-changing! I support and admire your hesitance and letting yourself process that as an option. I was unfortunately not told much about having a port or the surgery before I had mine and I know now that letting myself have time to process this aspect of my disease would have left me feeling more comfortable in my diagnosis and my own skin. However, my ports have also made my life and my treatment better so I guess it was worth it anyway. Take your time, it is a big step. Thank you for sharing what so many of us go through everyday. Andrijea - CVID, Hypogammaglobulinemia, Fibro, JRA , CFS and endo warrior (:
Growing up the MIC-KEY button was much easier than the NG tube. I had the NG when I was baby but kept pulling it out so my parents decided on the PEG tube. I switched to a MIC-KEY button later.
I came across yiur channel and have been watching it for the last hour. Then i get to this video and how that lady called you disgusting. I wouldnt have been able to ignore it. I wouldve told her to educate herself. On all subjects of feeding tubes! That everyone has a story. So I comend you. You're absolutely beautiful
A PeGJ is a long tube that’s held in by a little plastic bumper. It has a smaller tube (the j part) threaded through a larger tube (the g part) you can also get a GJ button which is the same concept but it’s just a little button that’s held in by a balloon filled with water, these are more discreet as it isn’t a long tube but the downside is that having the extensions attached for a prolonged period of time makes the valve wear down so it ends up leaking out of the ports where the extension attaches. My daughter went from NG to peg to GJ button and now has both a Gastrostomy and a Jejunostomy so we’ve pretty much had all types of tube 😂😂 If you’d like any more info I’d be happy to help!
First off I don’t mean to scare you and first off my tubes have serious saved me a lot of heartache. I have separate twos. 1 a PegG (no ballon surgical as they call it) and then a Jtube which is also surgical but I was awake for it and it has a ballon I just don’t like it because the balloons pop and need to be changed more often and they stitch it to my body which my body likes to push the stitches out and to me it’s always painful but it works to give myself meds. I have a PegGJ but my vomiting isn’t under control so I vomited up my J tube and it got stuck in my throat. I use my gtube to vent out all the bile. In my upper edg I had 500mls of bile which they had to suck out it just stays doesn’t move. I had my j tube placed on December 28,2016 when I had my larger intestines removed. I don’t do tube feeds at the moment as for cravings I eat some hard candy or popsicles or chew gum which I don’t like gum but it can help also so yes and coffee tolerated. I am on TPN 28 hours a day I get 2,500 calories on top of what ever else my body can tolerate. I love you channel just FYI. I got out in public with tube and my tunnel catheter in my chest for tpn and the thing is with tpn people think I have like cancer or something and with the tubes people use to think I was anorexic or whatever doctors that didn’t even know me honk the same thing and even diagnose me after a 5 minute ER visit but my real GI and Primary care doctor know better with proper testing it’s been cleared I think doctors at times use anorexic as a term for underweight which still looks horrible to insurance when needing feeds of any sort. I find children don’t get that diagnosis as much as teens or adults so it’s really a horrible thing to see on paper when clearly it’s not the issue.
I just found you. I think that you are a beautiful person, obviously outside but inside as well. My heart hurts for you, you've been through so much, too much. May you be blessed with good health.
holy moly your personality is amazing!! literally the perfect thing for being a youtuber. alsooo i have questions (probs annoying getting so many but oops 🙈), can you take it out? are there certain things you can't do (like swim?)?, can you/do you feed when you sleep? like i know you said you tend to feed for 15 hours but say you've had a long day and only after 10 or 12 hours awake can you then continue feeding for 15 whilst you have a nap or whatever then turn it off? or in those cases do you turn the feed up to get it into your system in less time? 🤔
Love your vids Amy and this one was another informative one. I do have to say something though. Being quiet helps none so I'm saying it. I'm a long time suffer of having an E.D., and I'm really not triggered by much anymore, but when mentioning some of the ways to keep quiet,if you become sick when you do eat, they are exactly what E.D. people do. Didn't even learn those "tricks" online, lol. The food idea of eating some simple vs the whole food is another. I love your vids and I'm not bashing in any way. I would highly suggest adding a trigger warning to your title though. Not asking you to censor your vids. Just to help others stay on the right path without big triggers like these. I was really surprised I was triggered and I've been dealing with it for a ridiculous amount of time. I'm waiting to see you and Tom's new adventures in Australia soon!
The whole eating disorder angle is awful. Even if someone was purging deliberately, it's still a disease, and anybody in the public with a negative comment is just ignorant. People are so horrible sometimes....
Hi! I’m a new subber and think you are beautiful and amazing. I was wondering how often you need to replace your tube and if you need to flush it between feeding?
Murf And Peebs usually every 2 ish months but then it depends on if anything happens to the tube in between placements and I usually flush my tube around twice a day with 10-20mls, and before and after my feed xx
Hi Amy, I’m also a Zebra with EDS & intestinal dysmotility, Achalasia & Gastroparesis.... I’ve always been given high protein feed from Nutricia, ‘m wondering what the difference is to elemental, is it easier to digest? TIA Sarah...
Stomach acid doesn't dissolve everything. And the companies that make them try to use substances that are least likely to have problems such as that :) I think usually it's polyurethane
Just started watching your videos a few days ago. Is it bad that I find them interesting? Anyway your so inspirational and beautiful. Can’t wait to see your Australia adventure. I’ve set alerts so I’ll know when you post ( also your other channel too ) okay imma stop before I sound anymore stalker-ish 🙃
I am Downs sydrome and I have Acid reflux and I get blowed so when I eat some foods it will come back back up also also I am not being roude at all but I get really really bad Wind like blowing of and baring as well do get it as well I can't even keep serving foods are liquids down as well was that part you had before you ended up with the NJ feeds and the Pumps as well also this is how I feel as well and I am Downs sydrome and my name is Helen cheetham
I'm almost always fine with answering questions (when they're genuine and polite), but I think society has a weird preoccupation with "catching" people out for faking or exaggerating disability. And it makes me very cautious when talking to someone about disability. Wanting to be "educated" is used too often as a cover to interrogate people with a disability. The questioner believes they already know the "real" truth and will *argue back* rather than listening. They see visibly disabled people as walking debates. There's no downside for them cos if you get annoyed by the questioning, then they can use that as "proof" you're faking or pull the whole "wow, so aggressive, I was being polite, gosh, it's obviously your own fault nobody understands if you aren't even willing to answer polite questions". It's called sealioning and it's bullshit. Wanting to know more is great! Please continue to be interested in disability, it is incredibly important. The more info that is shared the better. There are massive resources out there if you want to know about disability (general or specific). Most charity organisations for the benefit of a certain disability have tonnes of information about the disability. Just please don't be upset if somebody seems disproportionally bothered by your question. You might have been asking it from a genuine place of wanting to understand. But you're definitely not the first person to ask them, and they've almost definitely been exhausted by assholes "sealioning". If your question could be googled, then google it. If it's personal then take a *hard* look at wether it's reasonable to ask, and if it *is*, then approach the person alone at an appropriate time (nb: being pulled aside at a party and reminded people are aware of your disability can be a big blow for social anxiety), and ask them *first* if they are ok with you asking questions about their disability, and make a point of assuring them that they can say no and you will not think any less of them. People have plenty of reasons for not wanting to talk about personal stuff. My personal exception to this is kids. Kids don't know any better, and are *aware* that they don't know everything. So when they ask a question, it's because they want to know the answer. Not because they want to "check" the answer you give against some sort of internal list to see if you're lying. So please don't feel you have to drag your kid away from me or punish them for asking a question. If anything dragging little Timmy away by the arm and loudly whispering "SHHH! TIMMY DON'T STARE IT'S RUDE" both increases the stigma we face AND makes us feel 1000x shittier than a curious kid's question would.
I can't eat anything at all plus if I eat I get sickness and maybe throw up I lost a lot of weight too I lost the motivation to eat anything would I get a feeding tube to gain back my weight
Hi Amy! I have a few questions FIRST, I just want to start by saying THANK YOU! Thank you for sharing your life & what you go through daily health wise, the Good, bad & the ugly of your health issues & experience. You are absolutely an amazing young lady. You are courageous, kind & absolutely beautiful! You are in a BIG way my hero, & therapist lol. I am sick with many different health issues myself including a terminal autoimmune disease. I find you so helpful & amazing that (please for give me this isn't meant to be an insult) even on your worse days when you are super pale & look so miserable (i just want to hug you) you still find it in you to video even if it's just 10 mins here & there. Your strength, & eagerness to teach & help others is amazing. I was wondering... 1) Has Tom ever said anything about smelling like when someone is sick with a cold you can smell the drainage? Sorry I know its extremely odd but doctors unless they have one, don't have a clue. 2)Also will YOU able to have a child of you want one? Anyway stay amazing I love your channel & your super sweet loving pwrsonality. Take care of yourself Amy ! 😉 sending gentle hugs your way from the USA love ya ! 😘
AnnMarie Moreno bit confused about the first question but the the second one as of present I was told that it would be too dangerous to conceive a child and that I probably wouldn’t be able to carry it to term but that doesn’t mean never and there’s always other options 💖
I feel like this is a stupid question but can you taste your feed at all? And what does it make you feel like when your feed is going? By the way you’re absolutely stunning ❤️
Phoebe Doenges nope you can’t taste it what so ever as it goes through the tube but somtimes if it’s cold you can feel it moving through the tube, hope that makes sense 💕
Phoebe Doenges Even though my formula is unflavored I can actually taste it slightly, especially when it starts running, it's odd. Mine is an ND- into my duodenum (it actually is your intestines, it's the first part of my small intestine.) I can also feel it if it's cold, and since I can't drink orally and I have POTS I need both water and Pedialyte which goes in with large 60ml syringes, and I can definitely faintly taste the Pedialyte as well. It's an interesting, faint taste in the back of my throat.
Have you ever caught your tube while sleeping or like loving your hair out your face? Does it hurt? That’s all I kept wondering while watching lol I’m super clumsy I’d be forever catching it! X
Blogger immeamy when my tube used to be longer it used to get wrapped round my neck and I do get it caught somtimes which pulls at the nose and can be quite painful x
Hiya Amy 😊 Just out of curiosity, how long has it been, since you’ve had your ng tube? And please excuse my cluelessness in asking this, are you able to have any solid food here and there?
I'm one of the people who prefer surgical tubes...granted, my EDS caused some terrible healing, but the NJ was excruciating for me. I used to have a PEGJ which was awful, a Mic-Key GJ I was very happy with, and now have a G button. I miss having a J tube, but I had to remove that section and now do gastric feeds which suuuucks. My tube glows in the dark though, so that's all right I guess. 😉
With feeding tube attached while eating something do you have any pain in throat ....and what is the name of your type of feeding tube coz some feeding tubes are wider and painful.... Plzzzzz do reply me m also a patient suffering intestinal MDR tb and since last year m having no appetite and frequently vomit out . You can be some help for me
My god. That woman saying that in the restroom. Even if you did have an eating disorder, that’s terrible! I have an eating disorder and I would.. I don’t even know. It makes me sick to think of that. Also many people with eating disorders developed gastrointestinal problems. I have and I have a feeding tube now bc of that even in recovery. So I don’t consider it solely bc of the eating disorder bc I won’t eat. I can’t always eat now.
If you get one, go for a thin one. Size 8fr is good. My first NJ was way bigger and it was horrible. After a few days I was gagging frequently. But I've never had that problem with size 8! There can be gagging when it's inserted and removed but throat numbing spray can help that. It's normal to have a sore throat for the first few days especially when you talk but it should go away. Some people vomit up the tube but that's from their condition causing vomiting rather than the tube usually. Sometimes they displace by themselves back into the stomach. That keeps happening to me so I want to try a weighted tube next time to see if that will stay in place.
that is such a horrible thing to say to someone! I find myself constantly wondering why people do some of the things they do. I've never seen someone who has a feeding tube due to anorexia. is that a thing?
Hi Amy, I think what that Lady said to you in the restaurant was not acceptable, I had many situations similar when I had a tube, and I can see why that wrong judgement especially would hurt your feelings. As someone who has had anorexia for twelve years (and also has chronic health problems very similar to the ones you share on your social media), please consider mentioning to your followers that you will be talking about being sick or dealing with cravings at the start, as 'chew and spit' and other things you talked about like vomiting techniques are widely recognised in the eating disorder community but are an extremely dangerous habit Of course we are only responsible for our own actions but I am sure many young women look up to you, and I myself believe you are a wonderful role model. I think that sufferers with ED's usually feel the same emotions about their tube, but I there is nothing to be ashamed of at having a tube AT ALL no matter the reason you have one. Have a lovely Saturday xx
I would get the surgical tube removed or maybe keep it depending on how much I improved, but I would most likely keep it incase I was to flare again and needed a feeding tube. With that said if i was to improve and stay fairly oral with my food then i would most likely just use an ng or another nj for flares and get the permanent one removed xx
It makes me so upset that people want to call eating disorders disgusting. I know that's not your situation but like.. it's a condition that the person is dealing with and probably feel self conscious about anyways..calling it disgusting just makes it worse in my opinion
Danny Panetta people with anorexia need some way to get nutrients so they get them that way. Sometimes people also develop a phobia of eating so it bypasses that part.
Danny Panetta some people with anorexia stop eating for a long enough amount of time that they are extremely malnourished so they need nutrition, and they wont give it to themselves.
I've been there developing a fear of eating due emetaphobia...causing a not so traditional form of anorexia. This formed after I had major digestive issues including gallbladder removal and hiatal sliding hernia with bile reflux and esophageal spasms. I definitely fear eating and have a couple safe foods, and then battle the fear of vomiting it up.
hi I'm Abbie and I am the Founder Trustee of a UK registered charity called The Invisible Friends supporting young people woth invisible disabilities and raising awareness. So I thought id use my knowledge to explain the difference between tubes.
There are so many different types of more permenant tubes. Firstly you can have a Gastrostomy/Jejunostomy tube which is surgically placed and created. Usually these tubes are stiched into either the stomach (Gastrostomy) or Intestine (Jejunosotmy)
Then you can have the Precutaneous Endoscopic Gastromosty/Jejunostomy. In basic terms this just deacribes the way in which the tube is locared and placed. In short theyre called a PEG (into the stomach) and a PEJ (into jejunum/intestine). There is also a PEG-J. This is a tube placed into the stomach with another extenstion into the intestine which allows access into both parts of the body.
Theres also a DPEJ which is exactly the same as a normal PEG but it is inserted in a different way. so in short, the P and E on all tubes stands for where and how they are placed.
Sometimes a paitent can decide which type of tube they would prefer based upon why they need it.
i hope some of you find this information useful. 😊
That lady was disgusting. Even if you did have an eating disorder, that is not how you treat someone who is clearly struggling. I'm so sorry that happened to you 💗
Georgina's Journey That was exactly what I thought! The audacity of some people is just astounding 🙄
Sleepy Santosha No kidding!!!
Wow I found this channel because of the NG tubes and then I found out you have EDS too, I'm starting to find so many people with EDS on TH-cam and it really takes away a lot of the anxiety I've been feeling since being diagnosed about 2 months ago.
I recently started watching you, and I love your channels. I had no idea anything like this ever existed, it’s interesting to be informed about all of this. Also, I think you’re really brave for putting yourself out there and explaining things you go through when you don’t have to. Hope you have a nice day/night. 😊
Tyler Brenner Thank you for watching :) I'm not the vlogger but it's really good, helpful and heartening when people who don't have our conditions are willing to pay attention and learn. It means awareness spreads! 😃
I just found ur channel by mistake but I am glad I did. You are a very strong women. I couldn't imagine what it be like going through the things you are facing now. You sure do show ppl to be positive even when they are at their worst.
Hey sweetie! I just subbed and am currently binge watching! Your strength is such an inspiration. x
the7thwreck thank you Hun 💖
I am addicted to watched Amy Lee Fisher videos on TH-cam videos on my phone each day and night
For every type of tube you need a stoma- that's the hole they create for the tube itself, and once that heals in 6-8 they'll generally switch it to a button so you don't have a dangly tube that can easily get clogged (a mic-key or an atm mini... one has a balloon, one doesn't.) A PEG goes straight into the stomach, and once the stoma (hole) heals your switch to a button. A GJ is a tube that again, once the stoma heals is a single tube with two openings- one that leads to your stomach and one that leads to your jejunum. There's also the option of having a separate PEG tube and J tube. It involves two stomas, and sometimes two surgeries, but it's the best option for some people. Also- switching the tube to a button does not require another surgery! The only surgery is the original creation of the stoma and tube insertion.
They both have stomas, that’s just the name of the hole that is created to make the tube go through. A GJ goes through the stomach, it’s two tubes in one, with one end going to the small intestine and one to the stomach, that’s a PEGJ. A j tube goes straight to the small intestine that’s a PEJ.
You’re amazing! I watched this because my elderly dad is going to have a feeding tube post op and seeing how well you cope with it has really improved my positivity about the situation. Thanks a million!
Interesting. I went pretty fast directly onto GJ tubes once the nurses gave me a couple goes at NJ and neither attempt worked (my nose is too small, I kept choking!!). Once you get over the "body horror" aspect of having a permanent open wound in your body and a tube hanging out of your belly... it's not so bad. It's the same basic principle of having any feeding tube, in that you have to flush it and keep it clean. I think in your recent vlogs you've spoken about wanting to move onto GJ tubes, and I definitely can see the advantages of them over NJ. There's far less discomfort, there still is the possibility of infection but it's more controllable, it's more discreet, and relatively easy to take care of. Since you (Amy) have gastroparesis like me, make sure if you do get a surgical tube that you get one with a G port though, for venting!! It helps a lot when you're overproducing stomach acid/bile and don't want to keep vomiting it up.
My daughter has Gastroparesis. She has a gastric stimulator and will be having surgery next week to have the battery replaced. Her surgeon will also be inserting a GJ feeding tube.
this video makes me literally hate the human race... the fact that people still stare or act weird to others because they are different... just baffles my mind. I thank you for doing these videos. hopefully open peoples minds a little bit
Hi Hun hope your doing well. Just wondered if you can actually feel the feed going into your intestines. Also with or without the tube it doesn’t change who you are. Your a very pretty lady ignore those who talk the people you need are in your life already. Your strength amazes me xxx
these videos are sooooo helpful , thank you ! As a medical student i never learned what the patient's point of view in any illness so videos help me so much understnad what the other person is feeling.. not what the text books can teach you
Katherine Gallo I'm glad there are student professionals like you who watch videos like these to aid learning! :)
I started in health sciences before I dropped out & declined further in health and wish someone had suggested non-professional videos, blogs etc, especially patient ones because I find it so much easier to learn that way and more effective than trying to decipher journal articles and textbooks!
You are incredibly beautiful. I just stumbled upon your channel by pure chance and of course, my attention was immediately caught by the tube, but after that first second, I kept admiring your hair, eyes, style and so on. I never say this kind of stuff, because I don't like to sound like someone who tries to sugarcoat reality, but what you said about how wearing makeup makes you feel more confident really made me want to tell you this, and I assure you that I'm completely honest. I'm glad I found your channel, and I will surely keep following it. Lots of love 💙
Hiya, I have a peg-j tube (due to my gastroparesis) and was advised to use Cavilon barrier spray (or cream, but I use the spray as it dries faster so I can tape it faster) to prevent my skin reacting to my tape. I also prefer duoderm but sometimes react to it so I use cavilon under it, that a get on prescription. If you keep reacting to it I recommend giving cavilon a go. I also tape my joints as they’re very unstable, and use cavilon under it to try and protect my skin and it works well 😊
A pej Tube goes directly into the intestines, it stands for Percutaneous endoscopic jejunostomy. It’s also known as a straight j Tube, fitted via endoscopy. A gj Tube(gastrostomy with a jejunal extension) is the one with 2 branches. It’s also known as a peg-j when fitted endoscopically and stands for Percutaneous Endoscopic gastrostomy with a jejunal extension. If you are likely to need to vent gas out of your stomach or drain stomach contents then the peg-j is the better option as it has the 2 branches. The peg-j surgery is also a smaller procedure, so recovery is faster. Both the pej and the peg-j are fitted via scope but the pej needs the intestines to be sutured to the abdominal wall. The peg-j doesn’t need this, and it’s often literally just like a big piercing. The hole is made with a trocar (really big needle) and the Tube put in it, then they use the scope to thread it through the intestine to the jejunum. I was awake and alert for it and it wasn’t bad. I don’t respond to local anaesthetic so I felt it too but it wasn’t much more painful than a piercing (although the pain lasts longer as the Tube fitting procedure takes longer than a piercing. When it’s removed it heals by itself and all we have is a small indentation on our skin .
I’ve had my Tube almost 3 years now, so if you have any questions feel free to ask. I’ve also got loads of Tube related info in my Tube feed awareness photo folder on Facebook, that’s set to public so anyone can see it. I’m the only Fiona-Jane Kelly on Facebook so I’m easily found- feel free to take a look 😀
i just recently found your channel and i'm so glad i did. i love to learn about new things, which your channels do so well, but you also have a stunning personality and i love watching your vlogs. i hope you're doing well today ♡
It so hard even after being diagnosed. My doctors wouldn't treat me unless i loose weight again. Once i gained weight they took me off all my meds. I am so scared I'm going to die in my sleep. It happens nearly every TIME I fall asleep i inhale or aspirate vomit. It hurts so bad!! Ive gotten lung injections from it and they still think I'm fine!
I admire you. I have a chronic invisible stomach condition and I constantly get called a faker and have had to show my scar on my stomach just to prove I'm not a liar or that I dont make things up.
This is a weird question. I know you’ve said before how you do still feel hungry sometimes because the feed isn’t going into your stomach, but with the gastroparesis do you get the true stomach rumbling kind of hunger? I’m just trying to imagine whether you walk around feeling like you’re starving or if your hunger is more like just cravings.
That lady is absolutely disgusting.. I struggle with gastroparesis and I've had an NJ and currently have a G button.. There's a LOT more to feeding tubes than eating disorders!! And even if someone has an eating disorder that's NOT the way t treat them!! They are struggling every bit of every single day just as we do.. And for the tubes, I used to have a PEG tube and 2 months after it I got a G button.. both tubes you mentioned need a stoma to be inserted so both will leave a mark when removed. But believe me, it is WAY better than the NJ. This was an extremely informative video, thanks a lot girl, stay strong 💕
Hope 1994 that's right surges her right the lady
In Australia, we pronounce it as a “PEG” tube, like clothesline “peg” - it stands for Percutaneous Endoscopic Gastrostomy.
As you explain, it is a small tube that goes directly into the gastrointestinal tract and provides enteral nutrition; externally there is a small tube that rests on the abdominal area.
It does require surgery to be placed, as you say a stoma to be formed; but does provide you with freedom from wearing a temporary NG/NJ tube permanently. In saying that, a PEG can easily be removed and the stoma closed.
Love your content, I have just subscribed. ❤️
Taylor Made
She says PEJ which is different from a PEG or PEG-J. It's inserted directly into the jejunum, not via the stomach. :)
I'm a primary immune deficiency class of patient and I get IV immunoglobulin every 3 weeks in an infusaport directly under the skin in my chest. I completely understand that this is not to extent of having a direct line tube placed in the stomach, but I can understand having to mentally prepare yourself for the idea somehow your body won't look like what you've always known it to be. And whether the tube works or doesn't, there will always be the evidence of that surgery and that treatment being there. I get a new port placed every 3 - 4 years as they are not meant to be used long term (but I'll be on treatments, probably increasing in treatment frequency, for the rest of my life). And with each surgery (I've had two now) the scars left and the feeling of the port and catheter in my chest and running through my neck is just evidence of a disease. It's depressing! It's scary! It's life-changing! I support and admire your hesitance and letting yourself process that as an option. I was unfortunately not told much about having a port or the surgery before I had mine and I know now that letting myself have time to process this aspect of my disease would have left me feeling more comfortable in my diagnosis and my own skin. However, my ports have also made my life and my treatment better so I guess it was worth it anyway.
Take your time, it is a big step. Thank you for sharing what so many of us go through everyday.
Andrijea - CVID, Hypogammaglobulinemia, Fibro, JRA , CFS and endo warrior (:
When you feel up to it could you do a video showing where you keep your medical supplies/ how you organise it?? Love your channel congrats on 5K 💗💗
Becca DoesMusic for sure! This is a video I plan on filming once I settle in Australia and set up my ‘medical area’ 😂
Growing up the MIC-KEY button was much easier than the NG tube. I had the NG when I was baby but kept pulling it out so my parents decided on the PEG tube. I switched to a MIC-KEY button later.
I came across yiur channel and have been watching it for the last hour. Then i get to this video and how that lady called you disgusting. I wouldnt have been able to ignore it. I wouldve told her to educate herself. On all subjects of feeding tubes! That everyone has a story. So I comend you. You're absolutely beautiful
A PeGJ is a long tube that’s held in by a little plastic bumper. It has a smaller tube (the j part) threaded through a larger tube (the g part) you can also get a GJ button which is the same concept but it’s just a little button that’s held in by a balloon filled with water, these are more discreet as it isn’t a long tube but the downside is that having the extensions attached for a prolonged period of time makes the valve wear down so it ends up leaking out of the ports where the extension attaches. My daughter went from NG to peg to GJ button and now has both a Gastrostomy and a Jejunostomy so we’ve pretty much had all types of tube 😂😂 If you’d like any more info I’d be happy to help!
WoW! Finally, someone who knows what I go thru. Here in the USA we call it PPC. I am subbing!
You are so right, people assuming things about us hurt us so much.
First off I don’t mean to scare you and first off my tubes have serious saved me a lot of heartache. I have separate twos. 1 a PegG (no ballon surgical as they call it) and then a Jtube which is also surgical but I was awake for it and it has a ballon I just don’t like it because the balloons pop and need to be changed more often and they stitch it to my body which my body likes to push the stitches out and to me it’s always painful but it works to give myself meds. I have a PegGJ but my vomiting isn’t under control so I vomited up my J tube and it got stuck in my throat. I use my gtube to vent out all the bile. In my upper edg I had 500mls of bile which they had to suck out it just stays doesn’t move. I had my j tube placed on December 28,2016 when I had my larger intestines removed.
I don’t do tube feeds at the moment as for cravings I eat some hard candy or popsicles or chew gum which I don’t like gum but it can help also so yes and coffee tolerated. I am on TPN 28 hours a day I get 2,500 calories on top of what ever else my body can tolerate.
I love you channel just FYI.
I got out in public with tube and my tunnel catheter in my chest for tpn and the thing is with tpn people think I have like cancer or something and with the tubes people use to think I was anorexic or whatever doctors that didn’t even know me honk the same thing and even diagnose me after a 5 minute ER visit but my real GI and Primary care doctor know better with proper testing it’s been cleared I think doctors at times use anorexic as a term for underweight which still looks horrible to insurance when needing feeds of any sort. I find children don’t get that diagnosis as much as teens or adults so it’s really a horrible thing to see on paper when clearly it’s not the issue.
I just found you. I think that you are a beautiful person, obviously outside but inside as well. My heart hurts for you, you've been through so much, too much. May you be blessed with good health.
Tips for having a feeding tube at work? And also not getting depressed whilst on only oral/enteral liquid feeds?
You are so strong and smart and lovely! Sending you love from the states.
You look healthy and you are beautiful no matter whatever people say.
PLEASE DO A VIDEO ON YOU AND YOUR BOYFRIEND AND HOW YOU MET AND DATING WITH AN ILLNESS PLEASE?
holy moly your personality is amazing!! literally the perfect thing for being a youtuber. alsooo i have questions (probs annoying getting so many but oops 🙈), can you take it out? are there certain things you can't do (like swim?)?, can you/do you feed when you sleep? like i know you said you tend to feed for 15 hours but say you've had a long day and only after 10 or 12 hours awake can you then continue feeding for 15 whilst you have a nap or whatever then turn it off? or in those cases do you turn the feed up to get it into your system in less time? 🤔
Love your vids Amy and this one was another informative one. I do have to say something though. Being quiet helps none so I'm saying it. I'm a long time suffer of having an E.D., and I'm really not triggered by much anymore, but when mentioning some of the ways to keep quiet,if you become sick when you do eat, they are exactly what E.D. people do. Didn't even learn those "tricks" online, lol. The food idea of eating some simple vs the whole food is another. I love your vids and I'm not bashing in any way. I would highly suggest adding a trigger warning to your title though. Not asking you to censor your vids. Just to help others stay on the right path without big triggers like these. I was really surprised I was triggered and I've been dealing with it for a ridiculous amount of time. I'm waiting to see you and Tom's new adventures in Australia soon!
Erin Austin so sorry!! Obviously because I don’t suffer with an ED myself didn’t even realise that I was being triggering, apologies again 💖
The whole eating disorder angle is awful. Even if someone was purging deliberately, it's still a disease, and anybody in the public with a negative comment is just ignorant. People are so horrible sometimes....
Hi! I’m a new subber and think you are beautiful and amazing. I was wondering how often you need to replace your tube and if you need to flush it between feeding?
Murf And Peebs usually every 2 ish months but then it depends on if anything happens to the tube in between placements and I usually flush my tube around twice a day with 10-20mls, and before and after my feed xx
Thank you for this video! Can you drink? Do you have to change your tube often?
You are SO pretty. I find your videos inspiring I just had to subscribe. You are SO amazing xx
Hi Amy, I’m also a Zebra with EDS & intestinal dysmotility, Achalasia & Gastroparesis.... I’ve always been given high protein feed from Nutricia, ‘m wondering what the difference is to elemental, is it easier to digest? TIA Sarah...
How comes with feeding tubes, your stomach acid doesn’t dissolve it?
Jackie Bell it does eventually break it down but takes a long time, that’s why you have to get it changed out for a new one.
Jackie Bell eventually it will you have to get them changed every couple of months x
Stomach acid doesn't dissolve everything. And the companies that make them try to use substances that are least likely to have problems such as that :) I think usually it's polyurethane
Just started watching your videos a few days ago. Is it bad that I find them interesting? Anyway your so inspirational and beautiful. Can’t wait to see your Australia adventure. I’ve set alerts so I’ll know when you post ( also your other channel too ) okay imma stop before I sound anymore stalker-ish 🙃
I'm curious about what you said to that rude woman after? Like did you explain to her why you have it or did you try to ignore her?
I am Downs sydrome and I have Acid reflux and I get blowed so when I eat some foods it will come back back up also also I am not being roude at all but I get really really bad Wind like blowing of and baring as well do get it as well I can't even keep serving foods are liquids down as well was that part you had before you ended up with the NJ feeds and the Pumps as well also this is how I feel as well and I am Downs sydrome and my name is Helen cheetham
You inspire me ♡
Hello Amy, hope you're doing ok.My question is ... Will you need to be tube fed for the rest of your life?
I'm almost always fine with answering questions (when they're genuine and polite), but I think society has a weird preoccupation with "catching" people out for faking or exaggerating disability. And it makes me very cautious when talking to someone about disability.
Wanting to be "educated" is used too often as a cover to interrogate people with a disability. The questioner believes they already know the "real" truth and will *argue back* rather than listening. They see visibly disabled people as walking debates. There's no downside for them cos if you get annoyed by the questioning, then they can use that as "proof" you're faking or pull the whole "wow, so aggressive, I was being polite, gosh, it's obviously your own fault nobody understands if you aren't even willing to answer polite questions". It's called sealioning and it's bullshit.
Wanting to know more is great! Please continue to be interested in disability, it is incredibly important. The more info that is shared the better. There are massive resources out there if you want to know about disability (general or specific). Most charity organisations for the benefit of a certain disability have tonnes of information about the disability.
Just please don't be upset if somebody seems disproportionally bothered by your question. You might have been asking it from a genuine place of wanting to understand. But you're definitely not the first person to ask them, and they've almost definitely been exhausted by assholes "sealioning".
If your question could be googled, then google it. If it's personal then take a *hard* look at wether it's reasonable to ask, and if it *is*, then approach the person alone at an appropriate time (nb: being pulled aside at a party and reminded people are aware of your disability can be a big blow for social anxiety), and ask them *first* if they are ok with you asking questions about their disability, and make a point of assuring them that they can say no and you will not think any less of them. People have plenty of reasons for not wanting to talk about personal stuff.
My personal exception to this is kids. Kids don't know any better, and are *aware* that they don't know everything. So when they ask a question, it's because they want to know the answer. Not because they want to "check" the answer you give against some sort of internal list to see if you're lying. So please don't feel you have to drag your kid away from me or punish them for asking a question. If anything dragging little Timmy away by the arm and loudly whispering "SHHH! TIMMY DON'T STARE IT'S RUDE" both increases the stigma we face AND makes us feel 1000x shittier than a curious kid's question would.
Hello,
Thank you for all of this great information. How long after you were diagnosed did the recommend the tube?
I can't eat anything at all plus if I eat I get sickness and maybe throw up I lost a lot of weight too I lost the motivation to eat anything would I get a feeding tube to gain back my weight
Hi Amy! I have a few questions FIRST, I just want to start by saying THANK YOU! Thank you for sharing your life & what you go through daily health wise, the Good, bad & the ugly of your health issues & experience. You are absolutely an amazing young lady. You are courageous, kind & absolutely beautiful! You are in a BIG way my hero, & therapist lol. I am sick with many different health issues myself including a terminal autoimmune disease. I find you so helpful & amazing that (please for give me this isn't meant to be an insult) even on your worse days when you are super pale & look so miserable (i just want to hug you) you still find it in you to video even if it's just 10 mins here & there. Your strength, & eagerness to teach & help others is amazing. I was wondering...
1) Has Tom ever said anything about smelling like when someone is sick with a cold you can smell the drainage? Sorry I know its extremely odd but doctors unless they have one, don't have a clue.
2)Also will YOU able to have a child of you want one? Anyway stay amazing I love your channel & your super sweet loving pwrsonality. Take care of yourself Amy ! 😉 sending gentle hugs your way from the USA love ya ! 😘
AnnMarie Moreno bit confused about the first question but the the second one as of present I was told that it would be too dangerous to conceive a child and that I probably wouldn’t be able to carry it to term but that doesn’t mean never and there’s always other options 💖
I love you and your videos so much❤❤❤😍😍😙😙😙
I feel like this is a stupid question but can you taste your feed at all? And what does it make you feel like when your feed is going? By the way you’re absolutely stunning ❤️
Phoebe Doenges nope you can’t taste it what so ever as it goes through the tube but somtimes if it’s cold you can feel it moving through the tube, hope that makes sense 💕
Phoebe Doenges Even though my formula is unflavored I can actually taste it slightly, especially when it starts running, it's odd. Mine is an ND- into my duodenum (it actually is your intestines, it's the first part of my small intestine.) I can also feel it if it's cold, and since I can't drink orally and I have POTS I need both water and Pedialyte which goes in with large 60ml syringes, and I can definitely faintly taste the Pedialyte as well. It's an interesting, faint taste in the back of my throat.
Phoebe Doenges people who can faintly taste it are likely doing so because smell is so closely linked to taste.
Have you ever caught your tube while sleeping or like loving your hair out your face? Does it hurt? That’s all I kept wondering while watching lol I’m super clumsy I’d be forever catching it! X
Blogger immeamy when my tube used to be longer it used to get wrapped round my neck and I do get it caught somtimes which pulls at the nose and can be quite painful x
I have a question can you like still eat food without it making you sick
Hiya Amy 😊 Just out of curiosity, how long has it been, since you’ve had your ng tube? And please excuse my cluelessness in asking this, are you able to have any solid food here and there?
I'm one of the people who prefer surgical tubes...granted, my EDS caused some terrible healing, but the NJ was excruciating for me. I used to have a PEGJ which was awful, a Mic-Key GJ I was very happy with, and now have a G button. I miss having a J tube, but I had to remove that section and now do gastric feeds which suuuucks. My tube glows in the dark though, so that's all right I guess. 😉
Yes I get it
With feeding tube attached while eating something do you have any pain in throat ....and what is the name of your type of feeding tube coz some feeding tubes are wider and painful.... Plzzzzz do reply me m also a patient suffering intestinal MDR tb and since last year m having no appetite and frequently vomit out . You can be some help for me
Hi, the tube is permanent or one day you be able to eat normally ?
Amy Lee Fisher’s condition is permanent and chronic
My god. That woman saying that in the restroom. Even if you did have an eating disorder, that’s terrible! I have an eating disorder and I would.. I don’t even know. It makes me sick to think of that. Also many people with eating disorders developed gastrointestinal problems. I have and I have a feeding tube now bc of that even in recovery. So I don’t consider it solely bc of the eating disorder bc I won’t eat. I can’t always eat now.
Check out Chronically Jacquie, she does very well with a GJ Button
your awesome!
can and do you Poop? I have Crohn's and have explosive diarrhea 8 to 25 times a day?
Hi
I have a few other conditions that may result in an NJ tube and I was curious does it make you vomit at all? And gag in any form?
Sara Oktober vomit no but when you get it first placed it can make you gag a little but you will get used to it really quickly! xx
Amy Lee Fisher ahhh I hate gagging haha. Thank you! I'll at least go in prepared when it happens!
If you get one, go for a thin one. Size 8fr is good. My first NJ was way bigger and it was horrible. After a few days I was gagging frequently. But I've never had that problem with size 8! There can be gagging when it's inserted and removed but throat numbing spray can help that. It's normal to have a sore throat for the first few days especially when you talk but it should go away.
Some people vomit up the tube but that's from their condition causing vomiting rather than the tube usually.
Sometimes they displace by themselves back into the stomach. That keeps happening to me so I want to try a weighted tube next time to see if that will stay in place.
I LOVE YOU SO SO SO SO SO SO MUCH
Do U use the bathroom #✌? and do u get gas pains??
Deanna Bell yes you still go to the bathroom just like anyone else even though it’s liquid food. Your body still has to go through all the motions.
Marieke D yes I do in fact I actually struggle with constipation and have to take tables to help me go, but yes I still have bowel movements x
that is such a horrible thing to say to someone! I find myself constantly wondering why people do some of the things they do. I've never seen someone who has a feeding tube due to anorexia. is that a thing?
And now you have a surgical tube ♥️
Hi Amy, I think what that Lady said to you in the restaurant was not acceptable, I had many situations similar when I had a tube, and I can see why that wrong judgement especially would hurt your feelings. As someone who has had anorexia for twelve years (and also has chronic health problems very similar to the ones you share on your social media), please consider mentioning to your followers that you will be talking about being sick or dealing with cravings at the start, as 'chew and spit' and other things you talked about like vomiting techniques are widely recognised in the eating disorder community but are an extremely dangerous habit Of course we are only responsible for our own actions but I am sure many young women look up to you, and I myself believe you are a wonderful role model. I think that sufferers with ED's usually feel the same emotions about their tube, but I there is nothing to be ashamed of at having a tube AT ALL no matter the reason you have one. Have a lovely Saturday xx
What would happen if you got a permanent tube and then your gastroparesis improved
? Xxx
I would get the surgical tube removed or maybe keep it depending on how much I improved, but I would most likely keep it incase I was to flare again and needed a feeding tube. With that said if i was to improve and stay fairly oral with my food then i would most likely just use an ng or another nj for flares and get the permanent one removed xx
I have
How do u sleep with that
angelgirls02 just like normal it doesn’t really effect sleep except somtimes it can wrap around your neck 😬 xx
I came here from the Life with Stripes channel
We love you
Have you tried Kate Farms feed. It's completely organic and helps many who can't tolerate other feeds. Check out vlogger Chronically Jacqui
It makes me so upset that people want to call eating disorders disgusting. I know that's not your situation but like.. it's a condition that the person is dealing with and probably feel self conscious about anyways..calling it disgusting just makes it worse in my opinion
why do u tape the tube to urself go get a tiara or something like that i dont know how its called and atleast tape it to that
I want have my own feeding tube for only nights each night.
Even if you HAD an eating disorder what a terrible woman 😡
what dose a tube have to do with being anorexic?
Danny Panetta people with anorexia need some way to get nutrients so they get them that way. Sometimes people also develop a phobia of eating so it bypasses that part.
Official-Mashed-Potatoes I do not believe that for one second. But OK.
Danny Panetta some people with anorexia stop eating for a long enough amount of time that they are extremely malnourished so they need nutrition, and they wont give it to themselves.
I've been there developing a fear of eating due emetaphobia...causing a not so traditional form of anorexia. This formed after I had major digestive issues including gallbladder removal and hiatal sliding hernia with bile reflux and esophageal spasms. I definitely fear eating and have a couple safe foods, and then battle the fear of vomiting it up.
Danny Panetta
What exactly is that you do not believe?
what a pitty
I'm a follower of yours on live.me