I had a bus driver once shut the bus door on my leg as I was getting on the bus, I was using my cane but he still shut the door on my leg. I ended up as the door hit my leg falling off the bus onto the pavement behind me.
I'm trying to help my aunt not only cope but help her to embrace her other senses. She is very depressed.. I want to help inspire her to live life differently, and to find enjoyment.
YAY! You finally did it! haha :) I've only watched the first little bit so far but oh my goodness, I didn't know you also have Nystagmus!! #blindgirlproblems #twinning
Thanks for your great video on tags of VI, myself I use two canes, the long cane and the symbol cane, because of my mobility reasons I have decided it was not going to be safe to have a guide dog, although I wish I could, the public transport is absolute nightmare for me, they keep changing times here, so I rely on my friend to take me to and from places I need to be, I do get the occasional "you don't look blind " or the dreaded question what is your sight loss, but they ask my partner who is sighted, I'm deafblind so they ask why has got red stripes on her white stick? Now that's when I say politely I'm deaf and blind, I'm sorry but I'm must press on, because I feel they are trying to pick out everything I say
I really enjoyed this video. I always find it so helpful hearing other peoples stories and it always puts me at ease about dealing with my condition and lnowing im not alone xx
I was just watching Molly's most recent video, and she also said that she is frequently asked if she's training her dog. Thanks for another good video!
Optic nerve dysplasia and nystagmus is part of my condition too (Albinism). That is very interesting hearing about your condition. And I agree every day is a journey. Sometimes I don't know it is a visual obstacle until I experience it. Then I have to figure out a solution. Transportation options are an issue with relying on others. Thanks for sharing your experience!
I just adore your videos! I relate to so much you say. I agree about the public transport thing haha. I eventually need to do this tag. It seems so fun!
I get asked if I'm training my guide dog every single day! And then yes it's the whole 'you don't look blind'! Ah I'm so glad it's not just me! I think it's because I have no outward signs of visual impairment at all.
I know so many people who get the same thing, I think its about the way a person walks and carries themselves if they walk confidently they think 'oh they must be a trainer.'
Fashioneyesta If me and my carer who supports me going out see somebody with a guide dog and hear somebody else go watch out that is a blind dog I go excuse me please can I just explain that dog isn’t a blind dog, sometimes I’m backed up by the guide dogs owner who thanks me then backs me up saying if my guide dog was blind then he or she wouldn’t have made it as a guide dog.
Great video! I am totally blind and use a cane right now, though I hope to have a guide dog in the future. You'd be amazed at how much I get the "you don't look blind" thing. It used to really annoy me, especially coming from classmates, but now I just take it as a commplement, say thank you, and go about my business! 😂
I think transport is an issue for so many of us with disabilities sadly. I'm in a powerchair but I also can't understand speech in noisy environments and can't read lit up signs etc. Hopefully one day they make the whole system more accessible for us all lol
Emily you did great. 😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍 Do you hope for self driving cars in the future? I'm asking because I am Visually Impaired.
Here is a very detailed description of my eyes lol. So you and others can understand wat to expect. iv got optic nerve hypoplasia which is basically a vision impairement that makes my optic nerves a lot smaller. This causes my eyes to get really tired and ache and hurt a lot all the time. I also have photophobia which makes my eyes react to light differently it causes pain in my eyes a lot and with both optic nerve hypoplasia and photphibia can cause my right eye to go blind temporarily. I struggle to read anything from more than 2/3 inches away and It causes headaches and a bunch of other problems. Also the hospital is finding more problems with my eyes. theres a few other problems but they dony bother me as much lol like depth perseption problems
The Dragons demise 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 I couldn't imagine it would be any fun. My name is Jacqueline and I have Juvenile Rheumatoid Arthritis and Uveitis. I was also born with Retinopathy Of Prematurity. Juvenile Rheumatoid Arthritis causes joints and internal organs to become inflamed, sometimes the disease can attack the entire body. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 Retinopathy Of Prematurity is a potentially blinding eye disease that causes the blood vessels to detach away from the eye. In Juvenile Rheumatoid Arthritis the immune system attacks healthy joints, muscles, eyes, internal organs and sometimes blood vessels. The disease is a living nightmare and the disease can be systemic. Systemic means the entire body is effected. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
Very interesting video. Can I ask......is your condition hereditary - do other people in your family have it? I work in a branch of healthcare and congenital disease interests me. If you don't want to answer, that's also cool, obviously.
I would love to caption a video or two for a shout out. Have you turned on community contributions? I have seen a card in some videos offering for people to subtitle. I am in the process of working on my own subtitles myself lol. Please let me know how to submit them. My channel is also a disability related channel. I help people learn how to do things with limited mobility. I am in a wheelchair.
That is very kind of you! Thank you so much for your generous offer, I have indeed enabled community closed captions which you can find on the bottom right hand corner of the screen. I will of course be more than happy to promote your channel in return as this is what I do for anyone who closed captions a video for me. Your channel sounds great, I'll certainly head over and check it out x
You might want to check again about the translations b/c I found where you were talking about under the video on the right side and click "add translations" and every video I have clicked has said it's not turned on for that video. The same process works on my video. It's so weird. I thought I had it turned on a few weeks ago but I didn't. Maybe it's turned on only for certain ones? I can send a screenshot if you need me too. I've done it for other people so this is weird it's not working
Ah ok, yeah I see what you mean, i just double checked and turned it on for all videos. Thanks for that :) If you click the settings button on the left hand side you should now see an option for subtitles and then add subtitles :)
Sharon Metcalfe Hi, I am from the UK and registered blind, but I still have a lot of my sight & thought I wanted and needed a guide dog, but I think I changed my mind as I don't go out much, so I don't think it would be fare on the dog not going out much! I have a week to decide as, I have had people out from thr Guide dogs. What it your comment please? Thanks pet .
Hi Sharon, having a guide dog is a monumental decision and one that you have to discuss with guide dogs and consider carefully. Is this your first visit from guide dogs? or are you on the waiting list? Because if its your first you are under no obligation to go any further, the first visit is a case of them coming over to discuss the options, your mobility and whether a dog will be suitable for you. The important thing is that you are giving your dog a workload even if its a 10 minute walk to the shops. If you feel like a guide dog would help you have more scope to do things definitely go for you. But, ultimately this is going to be your call honey. Hope this helps x
hi Emily David 32 from Brisbane australia, i've been sevearly visuialy impaired from birth due to catteracts i've had 2 seceurity guards tell me i couldn't bring my drumsticks into the casino AKA FOLDED LONG CANE as it wasn't appropriate i had a good laugth to myself over that one or another seceurity guard telling me to unfold my cane to make sure 4e it wasn't a wepon- i mean it would to a lot of dammage in the wrong hands but im not that kind of guy i just find it odd security guards in major hospitality venues don't get training on this stuff. also had the experience of being pulled down the queen s t mallin town because this guy thought that was where i wanted to go; quite anoying and it was rather scary even for me as he came out of noware as my parrifall vision is not good. but i love my cane i was cane trained in senior after my o and m instructor saved me from being hit by a car in a shopping centre car park i hadn't seeen. i feel i am a much safer pedestrian with it than without. loved the video keep them up!
If I had a mono don't assume would be it. Also you mentioned that your Guide dog had difficulty on escalators. Isn't that something the train for? I'm currently pondering the pros and cons of getting a guy dog so I'm curious. Any advice or thoughts on the matter?
Sydney Steuernagel they can train them for escalators but not all dogs are suitable for it. My dog had an accident when we were trying to train her on them and ripped her claw out. So she can't use moving escalators. With regards to getting a guide dog there are pros and cons either way and it depends on how confident you are using your cane. For me, there are many more positives than negatives as she gives me a lot more scope to do things when I want.
Fashioneyesta I am fairly confident in using my cane. But since I am going to be attending college then I think of the extra assistance as well as companionship +50 and security it would provide would be ideal. However, there are many places I go where I do not require the assistance of a cane or dog. Particularly if they are from Milyer places open anytime before or if I am with a trusted friend of you remember who's going to go to. What if any if the protocol believe you going to get home if you go somewhere we do not need it?
Sydney Steuernagel in that case I think a guide dog may be a good option :) that's why I got mine when I started uni. if your going to a new place your advised to have a route worked out so your able to give the dog instructions. Like having the route on a GPS app :)
The only thing stopping me from getting one is the knowledge that there are places I can go I don't require either a cane or a dog. Failure places I've got a lot or play for the friend of the family address to the good guys. So what is the protocol for leaving a guy dog at home and situations when you do not require the exit?
Sydney Steuernagel for those situations I would suggest too leave them with a friend or family member or someone you know. Make sure they know about how to maintain their behaviour and how to correct them if they misbehave. There are situations where I have left my guide dog home like when me and my friends are going to a firework display. Instead they will guide me and I will leave her with my mum and dad. These are things you would discuss with a guide dog representative If you decide to look into it and apply. Hope this helps :)
I myself didn't loose my eyesight, I was born with the vision I have so for me my experience is a little different. But I would say its about networking with others, getting as much information as you can and talking with others. I think talking to people with similar experiences is one of the best ways to move forward and to get used to adjusting to life with limited sight. I hope this helps x
![เจ็บที่ยังฮัก - ม่อน วรวิทย์ [ Official Mv ] จอนนี่มิวสิค](http://i.ytimg.com/vi/KALIGSRSjFs/mqdefault.jpg)
I really liked your advice on asking for help :)
Claudia Stocks thank you :)
yet another wonderful videos thank you and as always you look fabulous xx
Thank you x
I had a bus driver once shut the bus door on my leg as I was getting on the bus, I was using my cane but he still shut the door on my leg. I ended up as the door hit my leg falling off the bus onto the pavement behind me.
I'm trying to help my aunt not only cope but help her to embrace her other senses. She is very depressed.. I want to help inspire her to live life differently, and to find enjoyment.
She'll get there, especially as she has people like you in the family supporting her ❤️
Thanks for doing the tag! I really enjoyed hearing your answers to the questions. I can relate to so much of what you said.
It was a pleasure x
YAY! You finally did it! haha :)
I've only watched the first little bit so far but oh my goodness, I didn't know you also have Nystagmus!! #blindgirlproblems #twinning
I know right, it only took me a century! :D
I know right? xx
Omg i have the same condition as her
Thanks for your great video on tags of VI, myself I use two canes, the long cane and the symbol cane, because of my mobility reasons I have decided it was not going to be safe to have a guide dog, although I wish I could, the public transport is absolute nightmare for me, they keep changing times here, so I rely on my friend to take me to and from places I need to be, I do get the occasional "you don't look blind " or the dreaded question what is your sight loss, but they ask my partner who is sighted, I'm deafblind so they ask why has got red stripes on her white stick? Now that's when I say politely I'm deaf and blind, I'm sorry but I'm must press on, because I feel they are trying to pick out everything I say
I really enjoyed this video. I always find it so helpful hearing other peoples stories and it always puts me at ease about dealing with my condition and lnowing im not alone xx
I'm glad to hear my video has helped and I agree its always nice to hear other peoples stories x
I was just watching Molly's most recent video, and she also said that she is frequently asked if she's training her dog. Thanks for another good video!
Thank you so much x
Optic nerve dysplasia and nystagmus is part of my condition too (Albinism). That is very interesting hearing about your condition. And I agree every day is a journey. Sometimes I don't know it is a visual obstacle until I experience it. Then I have to figure out a solution. Transportation options are an issue with relying on others. Thanks for sharing your experience!
I'm glad you could relate the the things I said and thank you too for sharing yours with me :)
I just adore your videos! I relate to so much you say. I agree about the public transport thing haha. I eventually need to do this tag. It seems so fun!
Aww thank you so much x
Great video as always Emily, and thank you for the tag and shoutout! I'll get on to that. :)
Thanks Glen! and I'm excited to see it x
Well, as a thank you for your generous shoutout, I've just captioned this video as well now. :)
Aww thanks Glen :)
I get asked if I'm training my guide dog every single day! And then yes it's the whole 'you don't look blind'! Ah I'm so glad it's not just me! I think it's because I have no outward signs of visual impairment at all.
Lydia Hulme I think people assume you have to always have eyes shut or have no eyes at all. Very annoying
I know so many people who get the same thing, I think its about the way a person walks and carries themselves if they walk confidently they think 'oh they must be a trainer.'
It can get quite annoying but I guess its an opportunity to educate people so thats good!
It really can be, but as you say its about taking it as a chance to educate someone which is only a positive thing :)
Fashioneyesta If me and my carer who supports me going out see somebody with a guide dog and hear somebody else go watch out that is a blind dog I go excuse me please can I just explain that dog isn’t a blind dog, sometimes I’m backed up by the guide dogs owner who thanks me then backs me up saying if my guide dog was blind then he or she wouldn’t have made it as a guide dog.
Great video! I am totally blind and use a cane right now, though I hope to have a guide dog in the future. You'd be amazed at how much I get the "you don't look blind" thing. It used to really annoy me, especially coming from classmates, but now I just take it as a commplement, say thank you, and go about my business! 😂
Thank you :) the 'you don't look blind' comment used to really annoy me too but I've heard it so much now I just find myself laughing about it.
First I want to say I like your video and I watched a few others :-) I will definitely be doing this tag, I also have a TH-cam channel :-)
Awesome video Emily as always
Thank you :)
I think transport is an issue for so many of us with disabilities sadly. I'm in a powerchair but I also can't understand speech in noisy environments and can't read lit up signs etc. Hopefully one day they make the whole system more accessible for us all lol
Another issue I have with transport is they all prefer phone calls to book assistance or book a wheelchair taxi. Super annoying with a text phone lol
I do hope so x
I agree, booking assistance is always really stressful x
You look great Emily loved the video xx
Thank you Alex x
Emily you did great.
😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍
Do you hope for self driving cars in the future?
I'm asking because I am Visually Impaired.
I don't know how to tag. Sounds cool.
You essentially answer the questions in any tag and then nominate people you would like to do the tag :)
Here is a very detailed description of my eyes lol. So you and others can understand wat to expect. iv got optic nerve hypoplasia which is basically a vision impairement that makes my optic nerves a lot smaller. This causes my eyes to get really tired and ache and hurt a lot all the time. I also have photophobia which makes my eyes react to light differently it causes pain in my eyes a lot and with both optic nerve hypoplasia and photphibia can cause my right eye to go blind temporarily. I struggle to read anything from more than 2/3 inches away and It causes headaches and a bunch of other problems. Also the hospital is finding more problems with my eyes.
theres a few other problems but they dony bother me as much lol like depth perseption problems
The Dragons demise
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
I couldn't imagine it would be any fun. My name is Jacqueline and I have Juvenile Rheumatoid Arthritis and Uveitis. I was also born with Retinopathy Of Prematurity.
Juvenile Rheumatoid Arthritis causes joints and internal organs to become inflamed, sometimes the disease can attack the entire body.
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
Retinopathy Of Prematurity is a potentially blinding eye disease that causes the blood vessels to detach away from the eye.
In Juvenile Rheumatoid Arthritis the immune system attacks healthy joints, muscles, eyes, internal organs and sometimes blood vessels. The disease is a living nightmare and the disease can be systemic. Systemic means the entire body is effected.
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Very interesting video.
Can I ask......is your condition hereditary - do other people in your family have it? I work in a branch of healthcare and congenital disease interests me. If you don't want to answer, that's also cool, obviously.
Thank you and to answer your question my condition isn't hereditary. Its a congenital condition, no one in my family has had it :)
I would love to caption a video or two for a shout out. Have you turned on community contributions? I have seen a card in some videos offering for people to subtitle. I am in the process of working on my own subtitles myself lol. Please let me know how to submit them. My channel is also a disability related channel. I help people learn how to do things with limited mobility. I am in a wheelchair.
That is very kind of you! Thank you so much for your generous offer, I have indeed enabled community closed captions which you can find on the bottom right hand corner of the screen. I will of course be more than happy to promote your channel in return as this is what I do for anyone who closed captions a video for me. Your channel sounds great, I'll certainly head over and check it out x
You might want to check again about the translations b/c I found where you were talking about under the video on the right side and click "add translations" and every video I have clicked has said it's not turned on for that video. The same process works on my video. It's so weird. I thought I had it turned on a few weeks ago but I didn't. Maybe it's turned on only for certain ones? I can send a screenshot if you need me too. I've done it for other people so this is weird it's not working
Ah ok, yeah I see what you mean, i just double checked and turned it on for all videos. Thanks for that :) If you click the settings button on the left hand side you should now see an option for subtitles and then add subtitles :)
Sharon Metcalfe
Hi, I am from the UK and registered blind, but I still have a lot of my sight & thought I wanted and needed a guide dog, but I think I changed my mind as I don't go out much, so I don't think it would be fare on the dog not going out much! I have a week to decide as, I have had people out from thr Guide dogs. What it your comment please? Thanks pet .
Hi Sharon, having a guide dog is a monumental decision and one that you have to discuss with guide dogs and consider carefully. Is this your first visit from guide dogs? or are you on the waiting list? Because if its your first you are under no obligation to go any further, the first visit is a case of them coming over to discuss the options, your mobility and whether a dog will be suitable for you. The important thing is that you are giving your dog a workload even if its a 10 minute walk to the shops. If you feel like a guide dog would help you have more scope to do things definitely go for you. But, ultimately this is going to be your call honey. Hope this helps x
You are so beautiful! 😊🌸♡
Aww thank you xx
hi Emily David 32 from Brisbane australia, i've been sevearly visuialy impaired from birth due to catteracts i've had 2 seceurity guards tell me i couldn't bring my drumsticks into the casino AKA FOLDED LONG CANE as it wasn't appropriate i had a good laugth to myself over that one or another seceurity guard telling me to unfold my cane to make sure 4e it wasn't a wepon- i mean it would to a lot of dammage in the wrong hands but im not that kind of guy i just find it odd security guards in major hospitality venues don't get training on this stuff. also had the experience of being pulled down the queen s t mallin town because this guy thought that was where i wanted to go; quite anoying and it was rather scary even for me as he came out of noware as my parrifall vision is not good. but i love my cane i was cane trained in senior after my o and m instructor saved me from being hit by a car in a shopping centre car park i hadn't seeen. i feel i am a much safer pedestrian with it than without. loved the video keep them up!
If I had a mono don't assume would be it. Also you mentioned that your Guide dog had difficulty on escalators. Isn't that something the train for? I'm currently pondering the pros and cons of getting a guy dog so I'm curious. Any advice or thoughts on the matter?
Sydney Steuernagel they can train them for escalators but not all dogs are suitable for it. My dog had an accident when we were trying to train her on them and ripped her claw out. So she can't use moving escalators. With regards to getting a guide dog there are pros and cons either way and it depends on how confident you are using your cane. For me, there are many more positives than negatives as she gives me a lot more scope to do things when I want.
Fashioneyesta I am fairly confident in using my cane. But since I am going to be attending college then I think of the extra assistance as well as companionship +50 and security it would provide would be ideal. However, there are many places I go where I do not require the assistance of a cane or dog. Particularly if they are from Milyer places open anytime before or if I am with a trusted friend of you remember who's going to go to. What if any if the protocol believe you going to get home if you go somewhere we do not need it?
Sydney Steuernagel in that case I think a guide dog may be a good option :) that's why I got mine when I started uni. if your going to a new place your advised to have a route worked out so your able to give the dog instructions. Like having the route on a GPS app :)
The only thing stopping me from getting one is the knowledge that there are places I can go I don't require either a cane or a dog. Failure places I've got a lot or play for the friend of the family address to the good guys. So what is the protocol for leaving a guy dog at home and situations when you do not require the exit?
Sydney Steuernagel for those situations I would suggest too leave them with a friend or family member or someone you know. Make sure they know about how to maintain their behaviour and how to correct them if they misbehave. There are situations where I have left my guide dog home like when me and my friends are going to a firework display. Instead they will guide me and I will leave her with my mum and dad. These are things you would discuss with a guide dog representative If you decide to look into it and apply. Hope this helps :)
What is some tips that you can give someone that has just losing your eyesight
I myself didn't loose my eyesight, I was born with the vision I have so for me my experience is a little different. But I would say its about networking with others, getting as much information as you can and talking with others. I think talking to people with similar experiences is one of the best ways to move forward and to get used to adjusting to life with limited sight. I hope this helps x
Oh and the 'why dont you wear glasses?' Ha!