Dr Patrick Wood: Fahr's disease, brain calcification in SLE

[@deborahbennett1689]

My mother was diagnosed with Lupus 1997. DVT in legs. Has always been a very active lifestyle. Last Christmas she woke up with veritigo. An MRI showed Basal Ganglia Claudification . She was walks with hiking poles to aid in balance. Her mind does have slight memory issues. We have gone gone to 3 doctors for defintive answers and expectation. No one really tells us much. Not sure what her future hold. I pray doctors learn more about this.

[@shacklemanwarts1305]

go to more doctors, not neccessarily the best doctors, any good doctor could do something to make the best out of a bad situation. there's always something you could do to improve the situation.
At any giving point, there still something you could do to improve the life quality, focus on that. Go to a psychologist for advice if you need to.

[@billylucas6754]

I’ve been diagnosed with fahrs. After having a cardiac arrest in 2019 where I was dead for an hour, I had trouble walking backwards.. 3 years later I have trouble with my balance overall. Falling a lot. Neurologist said no way would god give me a cardiac arrest and fahrs. Well as it turns out he would…
Best of luck to anyone out there with a similar condition. Not sure how it’s gonna be for me moving forward.. literally!!😂😂

[@chrisbow1776]

I had 3 MRI scan years ago due to Tinnitus, the 1st was fuzzy so they asked me back, 2nd showed a white spot in the brain so they scanned me again. They never really gave me any info on it but I do remember the SLE term used. Obviously, they were not worried about it and touch wood even today going on 10 years later I have no health issues. Seeing this makes me wish a doctor had sent me a letter explaining exactly what is what.

[@riddhisharma1090]

God bless you 😇

[@xenaa14ray34]

Look up symptoms of too much calcium, magnesium is known to get rid of it

[@chrisbow1776]

@M O Fine thanks. no issues what I know of. I have never checked up on the results I got years ago. The next time I go to the doctors I will make sure I ask him to clear up what the scan actually showed.

[@Wabbelpaddel]

​@@xenaa14ray34The issue is that magnesium is a master regulator of cellular metabolism and electrolyte transport.
If there is a chronic deficiency of it, problems will arise.

[@thereforeayam]

my scan shows obvious calcification but MDs are calling it 'normal'. Plenty of wierd symptoms incl mild seizures & lately a body 'freeze'...I get home from outside then 1/2 hour later my whole body becomes freeeezing cold. Very very sleepy too...compellingly sleepy every day esp when I try to read or study.

[@xenaa14ray34]

Magnesium

[@lynnbroughton4760]

CT scan and MRI shows dense bilateral basal ganglia calcification. Who do you recommend in US that does genetic testing?

[@krykryinfinitive2452]

I have a Fahrs and it’s due to a rare form of genetic defect causing calcium to be disposed in my brain 🙃

[@krykryinfinitive2452]

I was diagnosed at 20 In 2021

[@krykryinfinitive2452]

I have seizures and severe posturing of the muscles in my body but it is tamed by carbamazepine

[@jaslenemelis-baez3731]

Wow I have fahrs too and I am extremely worried!!

[@Ismimical]

@@krykryinfinitive2452 I saw a few calcified spots in my scans but neurologist didn't say anything, I get seizures too. Do you have issues with screens? Like watching TV? I can't watch a minute of tv without a potential seizure and weeks of headaches

[@JennaRosales-vs8yc]

Do you have pseudohypoparathyroidism by chance?

[@miss.butterfly6745]

I went to the hospital for headaches and found out i have calcification in the right side of my brain. My mother passed from meningitis 7 years ago. Im going to see a neurologist next week and im terrified. And constantly crying, the hospital gave me medicine that did nothing to stop the headache and the ER doctor said he cant help me. Its scary not understanding whats going on or if I will get better

[@xenaa14ray34]

Magnesium is known to rid the calcium

[@n1k32h]

@@xenaa14ray34 is this true. My wife has calcification in her brain, she sufferes seizures

[@miss.butterfly6745]

@M O idk I'm going back to the neurologist because now its pressing against my skull, just want it to disappear

[@miss.butterfly6745]

@@n1k32h my mother had a seizure from it she wasnt breathing when we found her in the bed

[@zhaarm]

Hi . I hope you’re doing good . I just found out with my CT scsn result that I have basal ganglia calcification too . I will see a neurologist soon.

[@denisewhitlow7493]

I have SO many of the symptoms of Lupus, and I have bilateral basal ganglia calcification in my brain, along with lots of other health issues, but my ANA keeps coming back negative. I’ve suspected Lupus or MS for years but doctors haven’t diagnosed either. I also have lesions in my brain and advanced brain atrophy. The radiologist suggested the atrophy might be due to underlying demyelinating disease, but again, the neurologist simple my said the lesions were in the wrong spot in my brain.
How do I find a team to work together to give me real answers???😢

[@johntokarski7487]

Any Update on this problem?
What is the solution?
Will infrared biomodulation on brain help?
What about PEMF on brain?
I need a solution!

[@PastorBrentNazarene]

I'm looking for answers also! mine has gotten a little worse in the last month! I know stress is a huge factor, but you have stress in life! I'm dealing with tremors which is keeping me from sleeping!! you can email me at [e-mail] if you find out anything!

[@mdam393]

Hi , I m 20 years old and I have calcification in basal ganglion . MY symptoms are Migraine , Mood swings, low concentration, laziness , I always feel sleepy .. I suffer from pain in my backbone, spinal chord and obviously backside of my head , I m suffering from last 2 years . My doctor gave me medicines for migraine , blood pressure and one more - but those medicines didn’t workout . Now I just wanted to be fit like others - Just tell me what steps should I take .

[@chemar151617]

Muskan meena hi just wondering if you take vitamin D3?

[@xenaa14ray34]

Magnesium will rid of the excess calcium in your body

[@tarik6040]

Have a look on Dr berg here on youtube,
I think what you need is vitamine D3 and vitamine K not sure which K

[@aadityabhardwaj1596]

Hey , I am also of same age and i am too diagnosed with same today.

[@joyoflifemyway5677]

I am also suffering with this disease. 😭😭..

[@madhusudansharma2888]

My wife is also having this problem of calcification in brain nerves. What could be the cure of it.

[@janetralte3861]

Unfortunately there's no cure for it but you can still get her a symptomatic treatment to slow down any progression of the disease, including physiotherapy.

[@heikenagel7221]

Janet Ralte What kind of symptomatic treatment? I was also recently diagnosed with Fahr.

[@gavkinn]

My daughter has been diagnosed with calcified granuloma and they have said she has lupus and are giving her chemo. She has violent headaches that are constantly there.
What is the correct treatment?

[@thereforeayam]

I noticed he paused for a verb. Do all doctors pause for verbs? Because Fahr's forgets nouns.

[@tms12346]

Does anyone know a doctor that is treating this disorder? Or how to contact Dr. Wood?

[@ganeshperumal1489]

Fahr best taplet

[@soyabin77]

Sir my mom is 50 years old and she got pineal gland calcification. She has headache and bad vision. She is already taking medicines but still she has those problems. Is there any treatment that can reduce her pain ?

[@munnamichael778]

Sir can i cure my falx cerebri calcification.. Im from india pls tell

[@xenaa14ray34]

Magnesium

[@munnamichael778]

@@xenaa14ray34 what ...???

[@srijankataria4440]

Yes my sister today found fahr's disease what can I do now??

[@imacagas4546]

just this year i had my angiogram and the result stated that i should consider fahr disease.
but the technician told me it could be calcium deposits in my left upper part of my head.

[@ohmeowzer1]

Cool 😎

[@jestonibasong817]

Please help what is the best medicine in fahrs disease doc my sister have fahrs disease pls help this is my facebook account jestoni A.Basong pls help my sister .

[@xenaa14ray34]

Magnesium

[@bright-alchannel9161]

@@xenaa14ray34 what kind of magnesium? Magnesium glycinate or magnesium citrate?

[@ganeshperumal1489]

fahr disese taplet name what

[@dcdstlouis]

I jist got diagnosed with fahrs im terrified

[@blkak8396]

David Dunn. hiiii i wanna ask u something

[@PastorBrentNazarene]

Yes, anything like this is scary, I found out I have it back in 1997 and it affects me off and on...usually with tremors, but now I'm learning about my memory lapses, speech sluing occasionally, i've lived with it...don't want to start taking medication, just read where vitamin C can help...but stress is a major factor...trying walking to relieve the stress!

[@BrittanyRichardson1]

Victoria A spoiled child of the King! Hi Victoria, my sister was just diagnosed with Fahr’s disease yesterday and she is terrified. She’s 34, she’s under a lot of stress as she is a nurse, has 2 autistic children ages 13 and 4, overweight and a smoker of about 12-15 years. Since you’ve lived with this disease for about 23 years now, can you provide me with any medications, holistic medicine or remedies that you’ve used to live the best life you have been with this rare condition? If you see this, please respond or you can even email me at [e-mail]. I have been reading about this all night as I am scared for her. She’s my only sibling and I want to be there for her the best way I can!

[@ganeshperumal1489]

U number

[@xenaa14ray34]

Take magnesium