Losing Faith in my Medical Team😥! 2/1/2018

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  • เผยแพร่เมื่อ 11 ก.ย. 2024
  • Thank you guys for watching todays vlog, we greatly appreciate it!
    In todays vlog🎥 We had to speak to the attending physician about our concerns that I was going to get worse as soon as I left the hospital but they are staying on top of it and making sure that I will be safe and healthy !!. ! Stay tuned to find out what comes 💚next !
    / therawlife
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ความคิดเห็น • 136

  • @TheRawLife1
    @TheRawLife1  6 ปีที่แล้ว +4

    To everyone.... no I don’t have C.diff (Clostridium difficile infection)

    • @wt0416
      @wt0416 6 ปีที่แล้ว

      The Raw Life yippi for not having inflammation in ur colon. So we could cross that one off the list. Hope u get more answers.

    • @barbarabarrera6148
      @barbarabarrera6148 6 ปีที่แล้ว

      The Raw Life I don't think that it's just people with chronic illnesses that have doctors who don't want to deal with their cases when they are difficult. You will get the answers you need.

  • @carolemouallem2558
    @carolemouallem2558 6 ปีที่แล้ว +5

    This is EXACTLY how I got treated the last time I was seen in the ER. Reading between the lines, they don't fully understand nor have the time to read your full chart so they use ONLY the information off of your latest labs (which would show a change due to the meds they have you on) to come up with their final diagnosis. Had your original doctor been there, this would not be happening. And yes, it sucks that you have to stress more over this. What you can do is find the number for the patient advocate/patient representative for the hospital, they can help advocate that you stay until you get the proper tests and/or medications. Good luck and I hope you feel better soon!

  • @SweetPea112
    @SweetPea112 6 ปีที่แล้ว +11

    Before you leave that hospital, PLEASE make sure that you get tested for C-Dif! Rapid weight loss, unstoppable diarrhea, no nutrition...really could be C-Dif.

    • @buffya8012
      @buffya8012 6 ปีที่แล้ว

      Beth Wade c-diff is usually caused by overuse of antibiotics,which I don't think she has been on and it was probably the first thing they checked for when she was admitted because it is extremely contagious

  • @tomhohn8161
    @tomhohn8161 6 ปีที่แล้ว +6

    Maybe instead of looking for another medical condition you might consider seeking the help of a pharmacologist. There's always a chance that the interaction of your body and all of the medications you have to already take are causing the diarrhea. So many medications list diarrhea as a common side effect I'm just wondering if one is taking several medications with that as a common side effect this could begin to occur at any point in the long journey with these meds. Just a thought.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      Already done it! Hasn’t helped. My meds are on POINT🙌

  • @skythomas7008
    @skythomas7008 6 ปีที่แล้ว +5

    Praying that they don't release you with that medication but keep you and figure out what is going on. Keep swinging and fighting for what you need. It's your right to have the doctors figure out what is going on with your health. I'm praying for you

  • @BeverleyButterfly
    @BeverleyButterfly 6 ปีที่แล้ว +17

    So these doctors are fans of just putting a bandage on a wound that needs stitches! I hope you find a team who can get you some answers sweetheart you cannot go on like this! I love the boys fixing the door lol bless them xx sending love and prayers to you xxx

  • @maryrentz6148
    @maryrentz6148 6 ปีที่แล้ว

    We had the same issues with my daughter and the Dr sent us to Shands in Gainesville. Sounds like you should have the Dr do the same for you. Praying for results for you. My daughter and I have been fighting for 5 years and finally got a gastroparesis diagnosis. Working to get with endocrinologist and immunologist with Shands as well. Good luck sweetie!

  • @rachelg3131
    @rachelg3131 6 ปีที่แล้ว

    I completely understand. I am changing doctors after 3 1/2 years because I got "too old" but really they spent 3 years trying to prove I have IBD (when I show no signs of it), never suggested any other problems & shut me down if I brought it up, and then got mad because I was too difficult for them to handle. Watching both yours and Jaquie's channels for the past few months is actually what made me realize that doctors shouldn't treat you like that, so thank you!!

  • @MsPoprouge
    @MsPoprouge 6 ปีที่แล้ว

    I'm so sorry about the crappy doctor. Been there, I don't even play anymore, I'm very polite but firm when dealing with my medical team. I'd rather a doctor be up front and clearly state they just aren't prepared to deal with a complicated patient, I feel it saves me precious time that can be used to find someone who is.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      I can understand how you feel that it saves time and issues!

  • @AnAspiesPOV
    @AnAspiesPOV 6 ปีที่แล้ว

    When I was in the hospital the other day, i had an amazing thing happen. I had a nephrologist as a part of my team who did not want me as a patient. He was doing testing to try and disqualify my diagnosis (which had been proven multiple times) so that he could discharge me as a patient. The nephrologist in the hospital is the head of the renal care center in my city. He was FANTASTIC! my old doctor didn't want to see me until I got "sicker" meaning it might be too late to help me. this new doctor's focus is on keeping me WELL for as long as possible. As amazing as that was, my hospital experience was not great. The ER discharged me when I had a kidney stone that was causing pain and nausea, an infection, and low kidney function. The next day, I couldn't eat or drink ANYTHING so I ended up back in the ER... where they said they would have to discharge me again because they had no urologist on call... STUPID! so the attending doctor kept running blood tests until he found something that could give cause for me to be admitted. Turns out, my calcium was dangerously low, so they admitted me under nephrology. the stupid thing was that I AM A KIDNEY DISEASE PATIENT WHO WAS EXPERIENCING LOW KIDNEY FUNCTION, A KIDNEY INFECTION, AND A KIDNEY STONE and they didn't think of admitting me under nephrology to begin with!!!!! how dumb! hope you feel better soon, convince them to keep you until they have some answers, and can find a good GI who wants you as a patient!
    You could always refuse to be discharged as well. get the patient advocate to come in and explain everything to him or her. They will go to bat for you! good luck!

  • @ebonymarie7016
    @ebonymarie7016 6 ปีที่แล้ว

    So glad that you have Paul there to advocate for you. He is amazing!!!! You also have all of us that have grown to care about you a lot. I'm done giving advice... lol. You have a great support system with Paul, Jaquie, and your family, and you have us via youtube. You are gonna get through this.

  • @ebonymarie7016
    @ebonymarie7016 6 ปีที่แล้ว +12

    So I have also run into this problem. I have actually had some doctors say because they can't figure it out that it must be in my head. Well, me and you both know that tests don't lie. and if you are still not gaining weight and are not eating normally then that needs to be cared for. You have every right to a second opinion while you are there & your insurance can help you advocate for your case. At least they've helped me when I am running into brick walls. This is the hospital accreditation website and they can assist you further if you feel like the care is mediocre, etc : www.jointcommission.org/ . I have had to deal with them as well before.

    • @hmslovesmonkeys1403
      @hmslovesmonkeys1403 6 ปีที่แล้ว +3

      the one gi doctor i had in the local hospital were i live said to me r u sure it's not in your head i go to him it's not in my head i'm not doing it to myself i'm trying to eat it just come's up then i went to a gi about to hours away and he is like the best one for gi issues and then he put me in the hospital for 3 weeks then he found out what it was so now i have achalasia gerd ibs diverticosis along with my seizures and headaches and motility problems it suck but i'm glad he found out what it was

    • @123dietdrpepper
      @123dietdrpepper 6 ปีที่แล้ว

      I think they always jump to this assumption..you should see a psych and at least they can help u at least deal with this. Ugh

    • @ebonymarie7016
      @ebonymarie7016 6 ปีที่แล้ว +1

      I see one anyways and they confirmed my stomach was not related to my psychiatric issues. Doctors are saying this because they can't figure it out.

    • @ebonymarie7016
      @ebonymarie7016 6 ปีที่แล้ว +1

      Mayo Clinic is another option. I know I am thinking about that.

    • @jessicasevigny1206
      @jessicasevigny1206 6 ปีที่แล้ว

      University of Iowa Hospitals is another awesome option. They have an awesome GI Team and will run tests until they figure out what’s going on.

  • @13meli55a
    @13meli55a 6 ปีที่แล้ว

    Doctors don’t seem to know much about managing chronic and complicated problems. I don’t know what to do except do my own research and advocate harder when I don’t get treatment I need, and that doesn’t always work, since you can’t force a doctor to treat you.
    Hitting rock bottom seems to be the only way to get them to take you seriously, and they don’t seem to be taking you seriously now that you’re “stabilized”.
    I think a lot of us go through this, I know I do.

  • @karmen181
    @karmen181 6 ปีที่แล้ว +2

    Oh girl I feel you.. I've been gi shopping and pcp for a bit.. I have gp and pots and right now I am very much like u.. Its a vicous cycle.. Don't give up.

  • @debbiesanderson9466
    @debbiesanderson9466 6 ปีที่แล้ว

    I am here supporting you with the doctor/ treatment situation. I’m in the uk 🇬🇧 and I was discharged after three weeks in hospital with no review from my surgeon until June. I am fighting but wish I had stood my ground and stayed in hospital until everything had been sorted. 🤞 good luck and stay strong 💪 xx

  • @FunsizedStyle
    @FunsizedStyle 6 ปีที่แล้ว

    I hope your medical team will have some more compassion to help you figure out how to get back to better health! Praying for you girl!!
    Btw..Orion is so precious!

  • @kimharris328
    @kimharris328 6 ปีที่แล้ว +4

    I don’t understand why you are not eating or drinking if your diarrhea is now controlled. You said you don’t like Gatorade. Have you tried coconut water? It contains electrolytes but is not so sickened sweet. Hope you are able to get some answers soon.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว +1

      ..... horrible abdominal pain

    • @buffya8012
      @buffya8012 6 ปีที่แล้ว +1

      Clearly you've never had an abdominal illness,just because the diarrhea has stopped,pain and nausea are still there...would you want to eat if every time you did it gave you horrible pain?

  • @starkissedlove
    @starkissedlove 6 ปีที่แล้ว +4

    If they do discharge you Maybe they can prescribe banana bag infusions for you at home that way your vitamins and electrolytes will be stable while you figure things out with a new MD. Keeping you in my thoughts and hoping you find a doctor willing to fight the battle of diagnosing you!

  • @erinnbrown9662
    @erinnbrown9662 6 ปีที่แล้ว

    Omg!!! Yes YOU need to find a Dr. That likes a challenge!! When my dad was in the hospital we were on our last straw!!! I didn't know where to turn, I finally ask one of his most careing nurses and she told me of a Dr!!! He turned out to be one of my dad best Dr's!!!! I was so greatful!!! And he had a very careing beside manner!!! He even would call us at home when my dad got discarged!!! Good luck!!! It might be a good idea to ask!!! We love uno also!!!

  • @bettylopez7144
    @bettylopez7144 6 ปีที่แล้ว +1

    That's the same problem I've been having with my hands. My primary is upset that the first hand surgeon basically just labeled me difficult after surgery and refused to run certain tests and just kept blowing me off as nothing every month. I got a new one and he ran tests and is still running more but he's coming up with a giant question mark which is frustrating but I'm trying really hard to be patient like you said and hope they figure it out really soon. It really is difficult to find a good doctor.

  • @sandyschwartzkopf3510
    @sandyschwartzkopf3510 6 ปีที่แล้ว +1

    I've always had more luck finding a specialist outside of the hospital setting and doing tests outpatient. It leads to a diagnosis faster than in the hospital.

  • @copingwithbehcets6947
    @copingwithbehcets6947 6 ปีที่แล้ว

    Ugh, I'm sorry you got stuck with that doctor! My autoimmune disorder is rare (plus I have the even rarer complications it causes), and doctors are either excited to see a case and work on it, or completely unwilling to deal. Even the doctors who start out excited, will fizzle out. Never feel afraid to advocate for yourself. I've been to afraid to push things, and ended up almost dying because of it. Right now I'm fighting to avoid losing the doctor I love, because she's on maternity leave, and her temporary replacement doesn't want to listen to me, or actually review my charts. Woman actually spent time talking to me about why I couldn't do more chemotherapy because she actually confused chemo with IVIG.
    Yes. The woman was trying to explain why I couldn't have more chemo, because I was reminding the clinic they needed to resubmit my IVIG referral to insurance.
    Sometimes you get to a point with some doctors where you want to bake them a cake with a brick in it, and throw it at them.

  • @HannahJoy333
    @HannahJoy333 6 ปีที่แล้ว

    I was crying when you were talking about your doctor frustrations! I have been there many times and you are not alone! I have had doctors be similar to what you’re saying and I actually had a doctor break up with me. He said I was rare and he doesn’t see patients with my illnesses. He was rheumatologist and that is a type of doctor people with EDS need to see so it hurt
    BUT I self advocated and found someone who is willing. I have had to get many second, third, or tenth opinions if need be. It is a very difficult situation for you to handle so I wish you the best! Definitely get a referral to see a geneticist because you need answers now more than ever. Hugs to y’all!

  • @chroniclesofabrokenperson2600
    @chroniclesofabrokenperson2600 6 ปีที่แล้ว

    I totally understand those frustrations. I have fired so many doctors, and others have told me they can't help me (because my body doesn't fit into the little box of knowledge they have). I finally found a neurosurgeon who can help me, and he got my special imaging but is out of the office until 2/12. Meanwhile, my symptoms are getting much worse, and I refuse to go to the ER because they will mess me up and/or just yell at me and send me home. I really don't know what to do if I get worse before he gets back. And his hospital is over 6 hours away in another state.
    So, so everything you can to stay in there, and maybe you can get word to your GI or Nurse Practitioner that the doctor in the hospital wants to make you go home.

  • @denisewhalen8932
    @denisewhalen8932 6 ปีที่แล้ว

    That's what my gp is like. He refuses to educate himself so as to understand and anticipate what the pitfalls are. I can't change doctors because there are none. It's very frustrating so I get it. LOL I love the door and card antics. It's good to see you smile. Fingers crossed for continued improvement. 👍

  • @samiamisme
    @samiamisme 6 ปีที่แล้ว

    So so sorry to hear this. As a complex patient myself, I've heard it too and feel for you. It's just so aggravating. Fingers crossed something will come from this that you can use on the outside. 💕 lol if you don't catch it, it's not cheating😂😂😂 you know you've been in the hospital too long when the family starts taking non-you things into their own hands😂

  • @phoebebrunt5971
    @phoebebrunt5971 6 ปีที่แล้ว

    I hate that you’re having to fight like this :( I had the same with a mental health team, telling me I was ‘too complex’. It’s not as if we have a choice! I’ve recently found a physio who actually believes me about my physical concerns, which has been a revelation. Really hoping you find someone soon ❤️

  • @123dietdrpepper
    @123dietdrpepper 6 ปีที่แล้ว +1

    I am bawling for you as I have been thru your exact situation with my medical and my daughters too. My case is so complicated that drs walk away and refuse to treat me. All I can say is ask for 2nd opinion. Insist until u get answers.

  • @purpleluma4715
    @purpleluma4715 6 ปีที่แล้ว +3

    If you’re into uno then you’re gonna love this game called, exploding kittens, it’s so much fun! I know the title of the game sounds weird xD but it’s actually one of the best card games my family and I have played. They sell it at amazon and target :) they have three different versions but it doesn’t matter which one you get because they’re all fun.

  • @annetteslife
    @annetteslife 6 ปีที่แล้ว

    Have you seen the second part of the conjuring called Annabelle? If you love the Conjuring you will love Annabelle

  • @annapaul7314
    @annapaul7314 6 ปีที่แล้ว +1

    Hi Janiece. 👋🏼 I also have multiple chronic illnesses(EDS, POTS, Arnold-Chiari, etc) and I had to have my gallbladder out when I was 18 because it was functioning at less than 2%. Sound similar? Lol. 🧐 My health started getting worse and accelerating rapidly like your’s, so my primary care physician suggested that I see a diagnostician specializing in neurology. He immediately thought of EDS and sent me to a geneticist to confirm his diagnosis and he was right. My health still isn’t that great(I’m currently in a sexy fiberglass cast on my foot/ankle because my tendons won’t stop subluxating and I have severe tendinitis😒) but now we know how to treat a lot of my conditions. I don’t know the Orlando area that well(I’m up in northwest Florida around Panama City Beach) but maybe there’s a good diagnostician specializing in gastroenterology that can take a step back and try to link all of your health issues together. Just a thought for you and Paul; I know things like this suck and at times you just think, “Why me?” but you can and will get through this. 😊🙌🏼

  • @annaspicer-girlwithoutguts6890
    @annaspicer-girlwithoutguts6890 6 ปีที่แล้ว

    I wish I would've seen this yesterday, but maybe suggest IV Hydration. I am considered a complicated case, and it does depend on the doctor. You do know you do not have to leave the hospital because the on call dr says so. On calls usually like to send people home so they don't have to see as many patients. They do that on the holidays too. I have fired a dr while in the hospital. Most people do not know their rights, so this dr thought he was going to one get over on me.

  • @Angie-in1tt
    @Angie-in1tt 6 ปีที่แล้ว

    You need to find a Dr/s who think outside the box and is willing to take the extra mile. I hope you can find the right ones. You know you most about you, so stand your ground & be strong. Good luck.

  • @gothic1774
    @gothic1774 6 ปีที่แล้ว

    Good morning Janice, i am sorry that you are still in the hospital, keep your hopes up, and i love your dog Orion so adorable! Prayers and love, get well soon!

  • @robinphillips5208
    @robinphillips5208 6 ปีที่แล้ว +1

    Janice go to Mayo Clinic. I did , I was misdiagnosed and I saw 5 docs and I was dignoised with right disease before I left Mayo clinic

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      I’ve been wasn’t for me sadly

  • @daedae1123
    @daedae1123 5 ปีที่แล้ว

    I know this video is old but. I've been having some issues with my digestive track. I was in the hospital for 3 weeks and I had a new team doctors every week. I had them all look at me and say they dont know what to do with me... I completely understand how you feel. I ended up being discharged with a ng tube and only enough supplies for a month... idk what were gonna do after this months over..

  • @sincerelysarabeth1994
    @sincerelysarabeth1994 6 ปีที่แล้ว

    I have had the same problems with doctors too many times to count. It is hard to find drs that are willing to go that extra mile. Good luck! Dealing with similar problems with not eating or having severe stomach pain and losing weight. It sucks!
    Good luck hope you find some answers soon!

  • @marieked
    @marieked 6 ปีที่แล้ว +4

    Can you leave a message for the other doctor who was willing to treat you? If they discharge you before he comes back?

    • @andie361
      @andie361 6 ปีที่แล้ว +1

      That’s what I would do. Find a way to get a hold of the doc that had been taking care of you and have him speak to the one covering for him. I’m surprised there was nothing in the notes not to discharge you till he returned.

    • @ebonymarie7016
      @ebonymarie7016 6 ปีที่แล้ว +1

      or Janiece you can ask for a different doctor!

  • @brendal.3388
    @brendal.3388 6 ปีที่แล้ว

    The doctors who won't try to treat you because you're too complicated with all your chronic illnesses...that's unacceptable. I hope you find someone who will treat you like you deserve to be.
    As for cheating at games...it's not just Panamanian or Spanish...I used to have this friend...we are both Polish...and when we played games, if we didn't like a rule we changed it. :)

  • @sailboatrn7372
    @sailboatrn7372 6 ปีที่แล้ว +1

    Maybe you mean electrolytes not vitamins or are you receiving both? Just a question. One more, I noticed you have had your IV in almost the same place for a while. Have they changed the site. Guidelines recommend they be changed every 48-72 hours for an adult. Your low potassium could have also given you your hand issues. From a nurse.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      Nope I mean both, and I received both. And I had my IV in the same place. And they said all my low vitamins levels were causing it.

  • @kimsouders
    @kimsouders 6 ปีที่แล้ว +2

    So...what’s happening with the chrones test?

  • @Ellecram
    @Ellecram 6 ปีที่แล้ว

    Not sure why your hospital is sending you such large meals. Isn't restricting food part of the testing process or at the very least the treatment? I was a bit shocked to see that super size lunch they presented you with!
    What are they thinking!

  • @emilydorow5448
    @emilydorow5448 6 ปีที่แล้ว

    When I was 15 we found a tumor in my brain, 97% of the time this particular tumor in that location of the brain does not cause symptoms. Lucky me I was part of the 3% that had symptoms, sadly no doctor was willing to listen to that. They seemed to think that since it’s “so rare” I can’t possibly have it, but they also couldn’t tell me what was wrong if it wasn’t the tumor. Took almost a year before I found a neurosurgeon that treats the 3% and will treat a minor. Some doctors just don’t want to go beyond what their textbooks told them. 🙄

  • @susanlewis8999
    @susanlewis8999 6 ปีที่แล้ว

    Watching this from Panama, right now. God bless you. Hope you feel better soon and get a good medical team to figure things out.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      🇵🇦🇵🇦🇵🇦🇵🇦🇵🇦🇵🇦🇵🇦🇵🇦🇵🇦

  • @SoloDov3
    @SoloDov3 6 ปีที่แล้ว

    My Dad had the same issues as you, they kept sending him home with no real information on what was going on. He suffered with diarrhea, stomach pains, dehydration, low possaium and magnesium, sounding familiar yet? He had had opperations on his intestines and colon and 6 months later it all started. We sent him to ER 4 times until they discovered what was wrong, we forced the hospital to keep him until they fixed the issue because the strain on his heart and body was killing him. They discovered he had Bile Acid Malabsorbtion and now lives much happier life although the medication tastes and looks like wallpaper paste. I really hope you get your issues resolved quicker because having cared for someone going though same issues as you I know its hard, much love your way!!

  • @Hyukfied
    @Hyukfied 6 ปีที่แล้ว

    This title speaks so much to me, before i was diagnosed with my rare genetic disorder, Loeys-Dietz Syndrome. I was told to just wait and die by my own pediatric cardiologist because my heart was unable to be operated on due to the oversized shape of it and the aorta was prone to tears or bursts. I was in high school during this time. Eventually I switched to Adult cardiology and finally received my diagnosis and fix my heart and many other issues I had to deal with since birth. Although I'm still on meds for the rest of my life, still have chronic issues - at least I can walk again and feel "normal" thanks to a doctor that knows her stuff. So maybe your diagnosis is a new or rare medical diagnosis? Its hard to figure out every medical issue in this world, a doctor may know what to do but when there's a really new medical problem in town, its probably hard to diagnose because well... its new and probably rare. At this point, I guess you can only just wait and be patient. Or find a geneticist ..or something. >< Have strength!

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      Omg that is so intense I’m so happy you got the help you needed

  • @thekingschannel9687
    @thekingschannel9687 6 ปีที่แล้ว

    My heart hurts for you guys....to me people aren't really listening to you....I so hope you find someone will finally listen and be willing to look outside the box or have experience with someone experiencing your symptoms. I worry about your pulmonary too I am not sold on how they are taking care of that either...love you guys...you are amazing...xoxoxoxo

  • @supportforaly
    @supportforaly 6 ปีที่แล้ว

    OMG you just explained being a multiple illness Spoonie so well!!! Especially with doctors I just hate when doctor's aren't vocal. Well.... It's just as frustrating when they are and are really rude about it but at least those tend to not waste your time
    I hope you're able to do some fun things while you're out of the hospital with your brother!
    My current medical headache is waiting to getting ahold of the right people of my insurance company to see what's going on with my renewal I've been trying to get ahold of them since NOVEMBER! I finally got word that the main contact lady retired and training is being done for her spot to be taken..... I should have gotten a call by now according to the people I talked to. So I called today and left another voicemail.... Getting super close to doing what you have to do and reschedule Dr appointments due to this ugh! But yeah no hospital or doctors since Nov 22 for me... Thank God for cheap meds and 90 day supplies!
    Praying for good doctors to be shown your way I wish I knew people in Florida to ask!

  • @hannahmariellewellynllewel7128
    @hannahmariellewellynllewel7128 6 ปีที่แล้ว

    Glad your getting new doctor for your needs just keep moving forward

  • @shelburz
    @shelburz 6 ปีที่แล้ว

    that doctor's treatment is so ugly!! ive also yet to find a team of doctors, just one rheumatology nurse practitioner who has helped to diagnose me w some autoimmune issues. ive also found that sometimes doctors dismiss me for being "too difficult" and i also think they get intimidated by people who come in knowing as much as we do about our illnesses. because they cant just give us naproxen and gabapentin for chronic pain n shove us out the door. im prayin 4 u n sendin good thoughts to you!! 💗💗

  • @SaltyJojo
    @SaltyJojo 6 ปีที่แล้ว

    Phase 10 is a great game to play

  • @ebonymarie7016
    @ebonymarie7016 6 ปีที่แล้ว

    I trust that you know what is best for yourself Janiece.

  • @nat-815
    @nat-815 6 ปีที่แล้ว

    Ive been in that situation where they say 'there is nothing we can do for you' and it sucks, it can be so hard to advocate for yourself when you feel like you've got to start from the start again and hint down someone who is willing and able to help you.
    Uno is great to play when you cheat :P hope you find a doctor who can handle you :)

  • @Kikiviewsvids
    @Kikiviewsvids 6 ปีที่แล้ว +1

    Omg I'm huge scary movie fan as well. U need to see the new Insidious and there's this movie called Truth or Dare That's coming out and it looks really good! Also remember that movie The Strangers? There's a new 1 coming out!

  • @raising.my.miraclesandrea5578
    @raising.my.miraclesandrea5578 6 ปีที่แล้ว

    Have they looked into mals. I mean it does fit your symptoms pretty well. Im sorry if im proving you with information you already know just hoping to helpful. Once you are home and feeling better i will write you from australia. I am a nurse btw. Sending my love and prayers.
    Patients with MALS reportedly experience abdominal pain, particularly in the epigastrium, which may be associated with eating and which may result in anorexia and weight loss.The pain can be in the left or right side, but usually where the ribs meet. [1] Other signs are persistent nausea, lassitude (especially after a heavy meal) and exercise intolerance. Diarrhea is a common symptom, some experience constipation. While some experience vomiting, not everyone does.

  • @barbarasummo1170
    @barbarasummo1170 6 ปีที่แล้ว

    My feeling is that ALL training MD'S need to be well versed in patients with complicated issues! Been in your shoes! There is NO EXCUSE! Too many times Complicated Patients fall through the cracks! Nothing WORSE or SCARY than an MD covering your case and the MD says " I Don't Know!

  • @shaunnasparklesclarke
    @shaunnasparklesclarke 6 ปีที่แล้ว

    Ask to speak to a social worker and find out about getting a second opinion from another doctor if your not happy with the one that’s looking after you

  • @irfanchon
    @irfanchon 6 ปีที่แล้ว

    Just FYI...I had to bowel prep with the same stuff you did last September and it tasted like I had to drink a whole bottle of Nyquil....yuck. You are a trooper for getting through that!

  • @abbyiswatching2046
    @abbyiswatching2046 6 ปีที่แล้ว

    Have they tested for CDIF? Symptoms fit, it's hard to catch and most importantly, the wrong antibiotics make it dangerously worse.

  • @sicknote4557
    @sicknote4557 6 ปีที่แล้ว

    I’m sorry ur drs being a pain in the butt. This is very similar to the situation that im in at the moment. As I said before There isn’t any dr who is prepared to take on my care cos of the sheer complexity of my case. Ive been like this(diarrhoea and vomiting after eating anything) for ages now. It SUCKS!! Wen drs take over ur care and they just aren’t prepared to actually take the time to consider what they can do. Instead they just play the “complex” card and palm me off somewhere else or just work on the theory of “ignore it it will go away” I hope you’re drs actually listen to you. It’s a great thing you have Paul there to fight ur corner and be ur advocate. You will be in my prayers. Sending you loads of love from me and my furbabies 💜🙏🏻🐶🐾🇬🇧

  • @amandagingerich4881
    @amandagingerich4881 6 ปีที่แล้ว

    Sorry your medical team is messed up. Hopefully you can get the doctors name that if fighting to find answers and see him outside the hospital.

  • @wendypearson4832
    @wendypearson4832 6 ปีที่แล้ว +1

    EXACTLY. It's the same here with the doctors. I've had my problem for OVER 30 years and I see one consultant after another they usually say "your normal" then to the next one😧. I finally got one doc Neurologist that wouldn't stop looking for answers.💪
    I like Uno 🃏too.

  • @debismith2802
    @debismith2802 6 ปีที่แล้ว

    Have you been checked for C-Diff? Stool sample? I haven't asked yet because I would imagine that would have been one of the first things they checked for?

  • @analysiaa
    @analysiaa 6 ปีที่แล้ว

    Hey y’all! That’s frustrating that dr was ready to just send you on your way

  • @gingerrogers5062
    @gingerrogers5062 6 ปีที่แล้ว

    Please help! Did they get the results for the Crohn’s Disease diagnostic test? If not, how can they release you? And are you officially asthmatic? Have I missed something? Get well wishes to you❣️

  • @CSpaniel14
    @CSpaniel14 6 ปีที่แล้ว

    Praying still, that you get answers

  • @_Char_M
    @_Char_M 6 ปีที่แล้ว

    this whole hospital is pissing me off.. :( I hope you can get someone helpful

  • @utoobcandy
    @utoobcandy 6 ปีที่แล้ว +1

    I think it must be a guy thing to fix squeaky doors...as soon as my hubby notices a sight squeak he is all over fixing it. Maybe it makes them feel helpful? lol

  • @danabays1498
    @danabays1498 6 ปีที่แล้ว

    So has the hospital received the test that you were taking about in your last blog?

  • @diatoforever
    @diatoforever 6 ปีที่แล้ว +8

    There is nothing worse than being at the mercy of an a..hole doctor!😖 Stir up some sh..! It’s better than going home without answers...I am so sorry 😐

  • @princessaz79
    @princessaz79 6 ปีที่แล้ว

    They only treat the symptoms but if they stumble on a diagnosis then great. I've lost all faith in the medical field. I've had drs who dropped me because I'm a very difficult case.

    • @wwestbrook3698
      @wwestbrook3698 6 ปีที่แล้ว

      princessaz79 my pain dr actually told me it wasn't their job to diagnose but only to manage the pain...

  • @tangalalynnbuchholz5479
    @tangalalynnbuchholz5479 6 ปีที่แล้ว

    Janiece don't give up. Make them listen. 25 yes of dealing with doctor's BS. HUGS. I love scary movie.😷😠😨🙏🙏🙏💪💪💚💚💚💚💚💚❤💜💜💚💚💗

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      You know I got this💪💪💪

  • @petspluseds
    @petspluseds 6 ปีที่แล้ว

    That’s ridiculous!!! Unacceptable!!!

  • @anunez3450
    @anunez3450 6 ปีที่แล้ว

    Lol a happy family

  • @Uniquelyyours1
    @Uniquelyyours1 6 ปีที่แล้ว

    You should watch the Orphanage. Hugs, Janiece:)

  • @danielleagajanian4182
    @danielleagajanian4182 6 ปีที่แล้ว +6

    JANIECE I WOULDN'T LEAVE TILL YOU GET A DIAGNOSIS YOU ARE NOT HEALTHY ENOUGH I'M NOT BEING NEGATIVE REALLY JUST TRULY HONEST OR GO HOME & IF NEED BE GO BACK TO THE HOSPITAL SO SORRY THIS IS HAPPENING TO YOU GOD BLESS YOU TAKE CARE

    • @ebonymarie7016
      @ebonymarie7016 6 ปีที่แล้ว

      i agree totally !!!

    • @supportforaly
      @supportforaly 6 ปีที่แล้ว +1

      Sometimes it's not your choice if a doctor discharge you they discharge you. Depending on where you're at and hospital you might be able to request another doctor and if one is willing to take your case or start back at square one in the ER but most places if you're discharged you can't really kick and scream besides complain to the hospital board and/or report the doctor

  • @prescotlove1009
    @prescotlove1009 6 ปีที่แล้ว

    Maybe find a progressive research hospital such as Mayo Clinic or Cleveland Clinic.....you deserve the best.

  • @mariaslife790
    @mariaslife790 6 ปีที่แล้ว

    I love scary movies which one is your favorite?

  • @buffya8012
    @buffya8012 6 ปีที่แล้ว

    Ugh I hate doctors that are like "you have too many things too complicated I don't want to deal with it" excuse me? Are you not a freaking doctor???! If I can't turn to a doctor how the hell am I supposed to get treatment,let alone a diagnosis?! You can definitely tell the ones who became a doctor for the money from the ones who did because they wanted to actually help people..and the ones who need to remember the Hippocratic oath they took,do no harm remember? Not treating someone or ignoring symptoms or patients concerns is not okay! Sorry for the rant,but I know exactly what you're going through ,it sucks,big time...I hope they get something figured out so they don't discharge you and you end up back in the hospital in a week.Sending love and good thoughts your way...and it's always fun to beat your brother at UNO and rub it in his face lol

  • @victoriawatkins770
    @victoriawatkins770 6 ปีที่แล้ว

    😍😍😅 he knows he's handsome.

  • @wt0416
    @wt0416 6 ปีที่แล้ว

    I think u need to transfer to jaquies hospital. I'm sure u will have an answer there. I just don't like the answer ur complicated. That is just rediculious. The tech person didn't appollogize when she dropped the moniter!! Janiece, I love ur attitude while playing uno!! Go janiece!!!

  • @kristalculler3928
    @kristalculler3928 6 ปีที่แล้ว

    I happy you getting better!

  • @tylerbennett4908
    @tylerbennett4908 6 ปีที่แล้ว

    If you like Uno, you’ll love Monopoly Deal!
    Also, my last hospital was as frustrating as yours sounds, I’m so sorry :(

  • @meganlovesdisneyandcrafts4780
    @meganlovesdisneyandcrafts4780 6 ปีที่แล้ว +14

    That doctor needs to be reported! They take the Hippocratic oath (do no harm) YOU'RE IN THE HOSPITAL! They are doing harm! how is your little brother dealing with you being in the hospital? You know boys, they need to have to prove manliness HAHA!

  • @wwestbrook3698
    @wwestbrook3698 6 ปีที่แล้ว

    they "practice " medicine. so sorry you are the guinea pig.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      At least say I’m the Tasmanian devil 😂

  • @becka7465
    @becka7465 6 ปีที่แล้ว

    Colitis? I wouldn't bother with that hospital anymore. Get to a better med center, i.e. John Hopkins.../specialist., for best care possible. Don't waste time and short change your health or have irreparable damage!

  • @robinharris0562
    @robinharris0562 6 ปีที่แล้ว

    Lol how can you cheat in UNO. The Conjuring is good. Have you watched Sinister?

  • @SummersPlace
    @SummersPlace 6 ปีที่แล้ว

    Janiece is going to win!! 🙂💚💚

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      🙌🙌🙌🙌🙌

  • @allysonkoehnke8747
    @allysonkoehnke8747 6 ปีที่แล้ว

    How do you cheat in uno?

  • @annaroseannadanna1
    @annaroseannadanna1 6 ปีที่แล้ว

    Didn't know u were part Panomanian. Thats cool. I recently had my DNA done. Found out Mom was PG when she married dad. My father apparently isn't his father. Am excited to see what my heritage really is.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      Panama 🇵🇦🇵🇦 🇵🇦 !!!

  • @vitasolano3272
    @vitasolano3272 6 ปีที่แล้ว

    That's really disappointing 😢😢😢😢😢😢😢😢😢😢

  • @alyssawssinging4039
    @alyssawssinging4039 6 ปีที่แล้ว

    Heyyyyyyyyyyy

  • @vitasolano3272
    @vitasolano3272 6 ปีที่แล้ว

    You can't help your illness is not difficult.... But I'm afraid this is Drs!, 😳😳😳😳😳😔😔😔. If you are too complex for him , then he should refer you to a new dr!!!!!!!!!!!!!

  • @kimharris328
    @kimharris328 6 ปีที่แล้ว

    Have they discussed with you about an NG tube?

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      I don’t think I’m that bad yet

  • @michelle10261
    @michelle10261 6 ปีที่แล้ว +2

    ☺💙 i don,t trustdoctors any more.

    • @sunglassesgirl
      @sunglassesgirl 6 ปีที่แล้ว +1

      Same here. I never ever go looking for a new doctor when I'm not doing very well. Only my trusted doctors can see me when I'm actually sick.
      If a new doctor doesn't pass my 'new doctor test' when I'm actually doing well, there's no way they're going to be able to help me when I'm actually sick. New doctors almost never pass my 'new doctor test' if they argue with me about anything... and when I'm sick, I simply don't have the energy to argue with anyone about anything.

    • @michelle10261
      @michelle10261 6 ปีที่แล้ว

      Sunglasses Girl 💖thank you for great comment, they all think i,m a hypocondrate

    • @meganlovesdisneyandcrafts4780
      @meganlovesdisneyandcrafts4780 6 ปีที่แล้ว

      You go girl! Unfortunately i'm unable to make those judgement calls. Before ( as has been the case since I was born) my parents always research the doctors and mom has worked in hospitals so sometimes she knows them. I only really fully trust my neurosurgeon, But anyway yeah if my parents don't think something's right we don't go back.

    • @FollowingTheDream455
      @FollowingTheDream455 6 ปีที่แล้ว

      homesteader downunder Australia. Amen

  • @sophieleanna9391
    @sophieleanna9391 6 ปีที่แล้ว

    Try finding a holistic doctor. Most of them are willing to take on multiple illnesses.

    • @TheRawLife1
      @TheRawLife1  6 ปีที่แล้ว

      Sadly Paul did it for his Crohn’s and it didn’t do anything for him. So I don’t have much faith in them

    • @frankiekohl1593
      @frankiekohl1593 4 ปีที่แล้ว

      Yeah all that holistic stuff is crap. My money's on conventional medicine every time. I have a chronic illness and got diagnosed in 2004. I have watched a lot of people get really sick and some passed due to trying to do things naturally.

  • @megatech1966
    @megatech1966 6 ปีที่แล้ว

    That tech should be reported

  • @wwestbrook3698
    @wwestbrook3698 6 ปีที่แล้ว +2

    my daughter punched a nurse once. she deserved it too.