I’m so glad you did this video. I can relate to all of this. It has been hard to get my schedule down, I have gotten better at not guilting myself when my body doesn’t cooperate. Thank you for saying all of this and being so open. Virtual hug.
Thanks Barrett, didn’t see this comment until now, but I really have enjoyed the response to this video, and it’s so easy to get mad at yourself when it’s your health letting you down, but you gotta step back a little and realise that it’s just how it goes and all of that. You will get there, you will get it done, it’ll take as long as it takes, but you will get there!
Recognising what you're facing in life and what's realistic is important. Comparison is the thief of joy here. It's all down to the individual. Living day by day is valid. Keeping going will get you there eventually. Another great video Joey.
Chronic fatigue is my big writing hurdle. I often can’t bear to open my computer or a notebook. But when I have good days, I try to make the most of them and let other tasks fall to the wayside. Prioritization is key with so little energy to do things
Yup, that’s a big truth there. Sometimes you have to put things above the other to get them done, and that’s completely okay! It’s part of that chronic life juggling between the things you wanna do and the things you gotta do!
Yes I think organizing is really hard. I can plan all I want but then if I have a seizure or BP drop it all gets shut down. I've learned organizing with a basic list the best. Or just working when I'm able to, on what I feel like working on. For TH-cam and podcast I just know I have to have the next release on Tuesdays, so in the calendar I just check off the Tuesday when it's ready to go
Yeah, that makes complete sense. Despite being super organised, there are times when I just can’t stick to my plan. They don’t happen all that much these days now that health is more stable in some ways and I’ve adapted in others, but everyone has a different way of working and they’re all valid. It’s good to have some kind of idea of what you need to do, but being chronically ill and/or disabled means that sometimes health and other factors come into play.
I'm not disabled but I never post dates publically anywhere unless I'm 100% certain I'm ready to go in case something happens. I'm in favor of giving yourself that space!
Yeah, I don’t like to think I’m letting people down if I can’t do something, but when it comes to the writing life and the chronic life, it’s hard sometimes to plan ahead and know for sure that you’re gonna be able to get there. Giving yourself that space is completely okay, whether disabled, chronically ill or none.
Was the authoring of books a dream job before the illness / recovering precipitated some changes, or is the writing a passion you discovered while in the time of transition?
The answer to that is it’s complicated, LOL! I started writing when I was like 13 and loved it, but I always wanted to be a doctor, got the grades went on to college at 16 with the plan to go to uni and then medical school, lasted about four months at college because health impacted that so went on to working, and then did that until I picked up new conditions that made that impossible, and then that’s when writing came back as something I could do with my time!
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I’m so glad you did this video.
I can relate to all of this. It has been hard to get my schedule down, I have gotten better at not guilting myself when my body doesn’t cooperate.
Thank you for saying all of this and being so open.
Virtual hug.
Thanks Barrett, didn’t see this comment until now, but I really have enjoyed the response to this video, and it’s so easy to get mad at yourself when it’s your health letting you down, but you gotta step back a little and realise that it’s just how it goes and all of that. You will get there, you will get it done, it’ll take as long as it takes, but you will get there!
Recognising what you're facing in life and what's realistic is important. Comparison is the thief of joy here. It's all down to the individual. Living day by day is valid. Keeping going will get you there eventually. Another great video Joey.
Thanks Adara! I actually scripted another in this series for May so loving how well received its been!
Chronic fatigue is my big writing hurdle. I often can’t bear to open my computer or a notebook. But when I have good days, I try to make the most of them and let other tasks fall to the wayside. Prioritization is key with so little energy to do things
Yup, that’s a big truth there. Sometimes you have to put things above the other to get them done, and that’s completely okay! It’s part of that chronic life juggling between the things you wanna do and the things you gotta do!
Yes I think organizing is really hard. I can plan all I want but then if I have a seizure or BP drop it all gets shut down. I've learned organizing with a basic list the best. Or just working when I'm able to, on what I feel like working on. For TH-cam and podcast I just know I have to have the next release on Tuesdays, so in the calendar I just check off the Tuesday when it's ready to go
Yeah, that makes complete sense. Despite being super organised, there are times when I just can’t stick to my plan. They don’t happen all that much these days now that health is more stable in some ways and I’ve adapted in others, but everyone has a different way of working and they’re all valid. It’s good to have some kind of idea of what you need to do, but being chronically ill and/or disabled means that sometimes health and other factors come into play.
I'm not disabled but I never post dates publically anywhere unless I'm 100% certain I'm ready to go in case something happens. I'm in favor of giving yourself that space!
Yeah, I don’t like to think I’m letting people down if I can’t do something, but when it comes to the writing life and the chronic life, it’s hard sometimes to plan ahead and know for sure that you’re gonna be able to get there. Giving yourself that space is completely okay, whether disabled, chronically ill or none.
Was the authoring of books a dream job before the illness / recovering precipitated some changes, or is the writing a passion you discovered while in the time of transition?
The answer to that is it’s complicated, LOL! I started writing when I was like 13 and loved it, but I always wanted to be a doctor, got the grades went on to college at 16 with the plan to go to uni and then medical school, lasted about four months at college because health impacted that so went on to working, and then did that until I picked up new conditions that made that impossible, and then that’s when writing came back as something I could do with my time!