SO important to talk about this, at medical school we are often shown skin manifestations of systemic diseases only in white people. That is not good enough, we need to be able to recognise and treat medical diseases no matter what colour the skin of the patient is.
@@colleenshaw1607 or when people don't believe you can get sunburned as a dark person! People look at me crazy when I slather myself and child in sunscreen...I had a bad burn as a kid and it traumatized me.
Where I live in. 97percent of population are white. And the majority of black population don't even go to hospitals(they're usually poor). So, I really like her advice, but if someone like me who wants to work locally, will not have to know about dark complexions symptoms...
I have suffered lupus for many years and I finally got rid of it with help of herbal remedy from Dr imenHerbal on TH-cam channel . I used his herbs and I was cured completely with his herbs and up till now I'm negative
Mustapher, Thank you for sharing your story. It’s encouraging to hear from someone who felt like I’ve felt: sick, afraid you’ll never be successful, never get a job or a life, saying you’re on the other side, and those things *aren’t* an impossibility. I don’t have lupus, and have never been nearly as ill as you were, but the emotions are similar for any chronic condition. It helps to hear from a real person that it can get better. Thanks.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
I have suffered lupus for many years and I finally got rid of it with help of herbal remedy from Dr imenHerbal on TH-cam channel . I used his herbs and I was cured completely with his herbs and up till now I'm negative
I just want to say thank you SO much for this video. As an African American woman with lupus, i also struggled to figure out my rashes. Even my dermatologist couldn’t figure it out (he thought it was ringworm). I was diagnosed with lupus nephritis last year and it’s been a hell of a ride so far. I would cry also believing my life was over and I’ll never be able to do what i wanted. But after hearing his story, it’s given me hope. ❤️
Hi. I understand how you feel. I've been diagnosed with lupus nephritis and been on remission on medication for 5 years. Hang in there! Hope you'll get better soon!
I am studying lupus this semester too and I checked my book and yup! no picture of people of color, I'm not even sure there are any pictures of dark skin in my DERMATOLOGY book??? I'm a medical student in France btw and these books are supposed to be the reference for the final exam that will make us doctors!!! Does this mean we are only supposed to treat white patients!!!! Thankfully in our many rotations at the hospital we see ppl of all colors/shapes because that is what the real world is!! I hope things change but for it to change we have to keep being vocal about it like you did :) (loved the vid and it made me revise my lupus checklist of symptoms at the same time haha)
Oh wow! I had no idea those little spots on my cheeks could be a sign of an auto immune disorder. My new doctor is awesome and knew to order testing without even taking my mask off. Granted. I've had this back pain now for 15 years with no improvement. But good on her for being willing to try something new and not all hoofs are for horses. Sometimes you have to remember zebras still exist
Like you said, this is a hugely complicated problem that comes up in basically every avenue of healthcare.. I am a phlebotomist and I know many of my colleagues (me as well sometimes) struggle more on darker skin and tattooed skin. Just like with the lack of images of rashes on darker skin, I think exposure is the root of the problem. We learn on white vein blocks, white dummies, and largely white volunteers. That needs to change, so everyone can have a better experience.
I’m a woman of colour currently suffering from a malar rash and going through testing for lupus. I had to fight my doctor to be taken seriously. I should send you a photo of my skin lol!
@@annabellehiggins1502 thank you! I was formally diagnosed this past weekend! I’m so grateful that my dermatologist was proactive and did a skin biopsy and blood tests. But my GP was so dismissive and horrible. I’m so glad I pushed for my diagnosis
@@tianagadsden4843 good luck to you too! My rash presented so strangely - I have the distinct redness on my cheeks and nose now but I have a dark, brown rash along my temples and other areas of my skin ... the malar rash truly does present differently in everyone
I was diagnosed with SLE at 19 after a year of popping in and out of doctor's offices and hospitals. Very similarly I had low red cell counts, inflammation, joint issues, fatigue, fever, all that jazz. It wasn't until I showed up in the emergency room with the malar rash that I was diagnosed and treated for Lupus. It really is a medical mystery and I am so glad there will be more great rheumatologist to join the medical mystery team. :) Thanks to doctors like you, I have been in remission for 15 years.
I am so glad he finally got an accurate diagnosis. And, I hope this story will influence healthcare professionals and patients to advocate for equity in the health care system. It took over 6 years for me to receive my diagnosis of lupus...
Thanks for making the effort to show and to learn about different skin types. I too have lupus SLE, diagnosed in 2010. Been in remission since 2013. Lupus affected my brain, lupus cerebritis. I describe myself as a recovering brain injury. Most people thought I was going to die. I was diagnosed at 40 years old. I am 53yo today. I enjoy watching your TH-cam channel.
I have SLE and it took 6 years from the first mention to diagnosis.Since then I have been diagnosed with sjogrens. I also have hypothyroidism and chronic anemia and it seems like everytime I have a symptom the doctors don't want to say its because of any of my conditions which leaves me so confused. Its like i have all these symptom's and have to do my own research to link them to my conditions.
same, I have to coordinate several doctors to treat my lupus, sometimes even having contradicting diagnosis or explanations. I usually follow rheumatologist instructions first and ask them to call each other o write reports that I can take with me to the next consult. Some doctors are really bad at giving out reasons for the treatment and you have to ask , since the patients are the ones who have to explain to the next doctor about that decision
Yes! We have to be our own advocates. I knew after having my son I was no longer myself. I knew something was wrong and it got worse as time went on. 5 years I went with doctors saying im crazy.....im depressed.....until last year I was at my wits end ......and finally got the clear to see a rheumatologist. Diagnosed I was beside myself.....I was for sure he would tell me I was crazy! Like others have before. I almost fell in the floor after all these labs..... then he came in and told me.
I know several people with SLE. They all had problems with their diagnosis. It took years. Not everyone has the butterfly rash either. So sorry because it can cause any symptom. At one time there was no Rheumatologist in our city. My friend had to see the one at the VA. Hard to believe, huh?
Thank you Siobhan, indeed rare conditions do teach us to appreciate life more and not taking for granted. My friend's mum was diagnosed with CJD and lost her in less than a yr. Conditions that we didn't know in early stage frustrates us, yet on the hind side we've learn to be humble and awed at how marvelous our body works!
Hi Siobhan! Love your channel obviously :) im a daycare teacher and today I found a bullseye rash on one of my toddlers legs that turned out to be Lyme disease. The child is white but when I saw it and recognized it, I was reminded of this video and realized I may not have caught the rash if the child had dark skin because I’ve never seen a picture of Lyme disease except on fair skin. I’m so happy you made this video but I also worry for parents and other people caring for children, that they might not be able to notice something alarming like this either. Thanks for this and thanks to the patient and his family for sharing :)
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
As a lupus patient it is GREAT to see more people talking about lupus. I am also an RN in the US and it shocks me every time I have to go to the hospital or see a new dr how little many know about lupus! Thank You for sharing this!!
I think this is such an important topic that you addressed; I often feel less comfortable with recognizing rashes on darker skinned people as well, because of the types of pictures that we study. I remember there was one time when a dark skinned male was intoxicated, but also stated that he was itchy. I had a real hard time differentiating whether he had the redness from the alcohol or a rash from drinking something foreign in his alcoholic drink! It also didn't help that the guy was a little uncooperative with us... anyhow, we still treated him as if he had an allergy because you can never be too safe! The redness on his skin might have not even been noticed if he didn't say that he was itchy... and could have been missed if he went into anaphylactic shock! Such an important lesson for me. Thank you for all the work you put into your videos and helping more people recognize this!
Thank you for talking about it. I just got diagnosed with lupus 2 week ago but had symptoms for around 7 years. It took so long be I had an unusual presentation of it. Plus most of my joint pain was thought to be from playing sports for 15 years. I never more of the classic sign apart from fatigue, lymphopica and joint pain until about year ago. Then my doctor started to have more of the symptoms fit into lupus. I started to developing hair loss, pericarditis, rashes, mouth and nose sores.
This was one of your best videos. I loved the story and the message and it genuinely made me recognize the importance of equity to ensure we are providing appropriate care to all
Loved hearing how Mustapher’s life got so much better, after his early days just after diagnosis! I’m chronically ill myself (Lyme). I always remind myself that it is a marathon, not a sprint, but we sure learn all the meanings of being (a) patient! Fabulous how Mustapher’s sister will be in rheumatology. She will have the experiences of her brother in mind, and will be a better physician for it! - Great to hear about your commitment to show pictures of how illnesses present in nonwhite people too. I see lots of future doctors in the comments. You will make a difference for their future patients!
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
this is so odd to me because in Quebec when i went in complaining of a bit of joint pain in my hands they right away tested me for lupus BECAUSE i was black. i had no skin symptoms. but they not only tested me for lupus and RA, they tested my kidneys. Lupus is more common in Hispanics, Asians and blacks and kidney disease is most common in blacks, so the min i said joint pain they knew exactly what to test for altho like u said im a woman... so maybe thats it.... I am glad he finally got the answers he was looking for, im sad it took so long.
My gosh, there's sth about the way you talk, maybe the background music and the editing, together with these very sensitive topics, that really makes me believe that I'd listen to you even if you talked about nothing for an hour straight. Keep up the good work! This was a very helpful video!
Thank you, thank you. This is so important and I appreciate your vulnerability and openness. Your decision to do a small change makes a big difference and you are appreciated more than you know.
Great video ! I am also a rheumatologist, I love your energy ! Fatigue + hallucinations + stroke at a young age (!!!antiphospholipid syndrome) + photosensitivity with bullous rash + anemia + proteinuria (not investigated further) ... I hope that not only for rheumatologists ring a bell! Great awareness about the rashes on dark skin. I didn't have the chance to meet with this situation, but I will remember your video for sure ! Thank you ! All the best to you and your friend ! 😊
Thank you so much for posting this video. I went to my family doctor for an annual checkup and feeling extremely exhausted. It started with blood test showing I was severely anemic. A few months later an extremely low WBC count. A year later I decided to get my very first flu shot. A few days later broke out into a rash. I’m a woman of colour and when I showed 3 doctors my rash, none seemed concerned only concerned with my low WBC count and protein in urine. Was sent to a rheumatologist who took note of rash, along with other symptoms and tests, and few days ago was diagnosed with lupus. When I Googled lupus rash on dark skin there weren’t any good pictures. I can see why doctors were thrown off. Had I listened to my family doctor and not the other doctor in the office who followed up, I would probably be hitting kidney failure.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
I love this video!! I'm a second year medical student and we're in the middle of our derm block right now...so this was super timely for me!! Just shared with all my classmates, hopefully they will enjoy and learn from this story as much as I did! :)
Thank you so much for using the influence and privilege you have as a doctor to bring attention to healthcare the staggering inequities that we MUST do better to combat. I am a medical student and whenever the slides from lectures present a rash only on light skin I try to find a picture of it on dark skin and add it to my slides. Unfortunately, as you pointed out, I can't always find one! Just another example of the inequity of medicine in that dark skin is often left out of the literature.
Of course! Whenever they can’t figure out what the problem is that’s the first label they slap us with. Drug seeker! When I was pregnant and developed some pretty serious neurological symptoms and had to go to the ER, the physician I saw was clueless! Immediately he ran some sort of toxicology testing on me checking to see what drugs he was sure I took that had caused me adverse reactions! He found not a damn thing and still acted suspicious of me!
Currently suspicious that I might have lupus 😬 can you do a whole video on common symptoms or how to diagnose? I have the classic butterfly rash but the rest of my symptoms are pretty mild.
@@autumnagrella1425 If your insurance won't cover it, see you doctor anyway. Let them know it won't be covered. And ask for the self-pay rate which in some places cuts the bill they send you in half. If you need to, ask for resources to help pay for the visit and medication if they prescribe anything.
@@autumnagrella1425 why would your insurance not cover it and why hashtag the US? We have the affordable healthcare act and a lot of doctors accept all kinds of insurance. Call your insurance company and they’ll walk you through plan coverage and tell you the doctors in their network. Hope you feel better soon.
#Zebras & #Spoonies unite! As a male with hyper-mobile Ehlers-Danlos Syndrome, there are so many diseases and illnesses that need deeper study. EDS is a painful, life long disease that can come with other diseases that COULD present differently. MCAS, POTS, etc. Thanks for this fascinating information.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.. Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Thank you for taking about this, its extremely important! I too recommend ‘Mind The Gap’ by Malone Mukwende. Its important to study other manifestation that may be misdiagnosed/pardoned such as kawasaki, syphilis, erythema migrans or multiforme.. & the list goes on! Again, thank you for using your platform to shed like on important issues that should prompt changes in curriculums worldwide. Ps. SOAP MD :)
I have suffered lupus for many years and I finally got rid of it with help of herbal remedy from Dr imenHerbal on TH-cam channel . I used his herbs and I was cured completely with his herbs and up till now I'm negative
I'm so happy that you made this video! I have VOLUMES of poor experiences with doctors and trying to get diagnosed with certain things. "Sigh" Great video though! Keep them coming please!
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
I have Undifferentiated Connective Disease (Lupus, RA & Sjogrens) since the age of 15 (now 28) yet to this day still find it difficult to explain it to people 😔 It started when I travelled to Ghana and had a massive dust allergy reaction and since then I have okay days and bad days. Love the fact you did this video - I feel seen lol 😅
I have SLE but it took a very long time to be diagnosed, as I've become older I am hyper sensitive to chemicals, perfumes, dyes and especially synthetic anything, it's just horrible, I have to wear everything 100% cotton, that includes cloth headbands, I don't know if this has anything to do with lupus but if I had young children I'd start them wearing 100% cotton only.
Thank you for sharing this. I live in South Africa so the majority of our population is Black, and this has made me wonder how often skin conditions are overlooked here.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Thanks 4 this Video. It gives hope that a new Generation of Doctors like you are thinking out of the box! 🤞 I‘ve got SLE diagnosed 5 Years ago by „accident“. After 15 Years misdiagnosed, my Kidneys started to stopp working. I got this „bubbles“ (i’m a white colored person) all over my Body. Couldn‘t eat, trink, massiv Migräne, lost 50 Pounds in 2 Weeks,…. And they where still thinking i‘ve got Bulemia… There is a reason why SLE is also called Chamäleon.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.. Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
I am an Aussie aboriginal . I have sle (lupus) . Lupus is hard to diagnose at the best of times . It takes yrs but eventually the flares are less frequent . All of my organs are involved . Including my brain . God bless xoxo
Wow, loved this video!!!! This video demonstrated like you said, only a small part of a much bigger systemic issue. I appreciate how you're going to implement this as part of your work when showing skin presentation. Thank you for sharing!!!! :)
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Very interesting debate - equity in Healthcare. But specific to lupus, if you haven't seen or studied how the malar rash presents on darker skin, then you're not going to recognise it when you do see it. So then, where does the fault lie? With the doctor or with the training the doctor received, or both? Both, in my humble opinion. Lupus is still a condition very much ill understood I think. I'd love if you could do another video on it, and go more in depth on some of the more unusual clinical findings that it presents with sometimes. I'm particularly interested in the neuropsychiatric problems lupus can give rise to. Thank you, in any case, for highlighting both inequity in Healthcare, and the condition, lupus.
I'm not a doctor but I have systemic lupus and also Addison's disease. I'm very fair skinned and my malar rash was pretty obvious on my skin tone at the time of my lupus diagnosis and it still comes and goes to date. Addison's disease is also a condition in which diagnosis must be so much more difficult in some patients with darker skin tones. Although it actually never happened to me, often Addison's patients develop a really deep tan prior to diagnosis - it's one of the classical signs, (although not everyone gets it). I imagine this tan is probably far less obvious on people who have darker skin to begin with. I agree it's so important to have diversity in medical materials to show manifestations of conditions on different colours of skin.
I'm not a doctor, and I'll probably never be asked to diagnose anyone. But what you say here can be applied to many areas of everyday life. It's important to be open-minded, and to recognize one's own biases and limitations. Unless we do that, we're seeing the world with blinders on our eyes.
Im was very impressed with this content; truth be told i really enjoy all the videoes you have made here on you tube!! I have no input on this topic but love the presentation just as well! Oh and Happy Valentine’s Day 💖
Wow, what a story. I am so glad you are doing so much better Mustapher. I so hope that our society can get better at recognizing the dame signs in people who look different to them, I can only imagine the number of people who have passed away because a white doctor couldn't comfortably diagnose a patient of colour. It makes me so annoyed and I'm glad something I'd being done about it and I hope to help in this fight in anyway I can ☺️.
I had a patient come in just crying about her pain, she was a woman of color, in intense pain. Turned out to be lupus. Her thighs and joints were hurting so much and she was told it was just her period by other doctors in my area.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
hi, can you please talk about people with chronic illness like fibromyalgia, laxitas generalisata(hypermobility) and maybe if you know anything about pineal gland tumors/cysts? please i really need some advice, help.... i need a hug to be honest
Hoping the correct answers are forthcoming SOON for you, Sara, as do understand how frustrating it is seeking answers for tough illness🤔~in the meantime, sending BIG HUGS and many prayers your way💖🙏!!
I don't think we can make this conclusion across the board. I am a white woman with olive skin and an having a very similar experience. It's been almost.20 years that I am having these symptoms and have been told it is "just stress." My rashes aren't red but brown.
I have takayasus and because it’s so rare and only in my carotid and symptoms started slowly and vague , example fatigue, high hr, arm pain sob, it took yess to diagnose and wasn’t found till I heard my heart beat in my ear
Love your point and discussion. Oddly when you asked for discussion or question first thought was... Light skin & dark skin? I just figure no one on earth has 'white' skin?
As Indian medical student it's tough to recognize a skin disorder in our brown colour people. Not even a single text book shown a image of brown skin people. It's a good initiative doctor.
i’ve had lupus since i was 15! i’m 24 now and i loooovveee ur videos. I swear one day i’m going to move canada where i can have free healthcare and YOU as my doctor... LOL!!!!!!!!
SO important to talk about this, at medical school we are often shown skin manifestations of systemic diseases only in white people. That is not good enough, we need to be able to recognise and treat medical diseases no matter what colour the skin of the patient is.
I couldn't agree more!
@@ViolinMD Oh my god hiii!!!!
I know right! So dumb that pple don't even know what sunburns look like on dark skin
@@colleenshaw1607 or when people don't believe you can get sunburned as a dark person! People look at me crazy when I slather myself and child in sunscreen...I had a bad burn as a kid and it traumatized me.
Where I live in. 97percent of population are white. And the majority of black population don't even go to hospitals(they're usually poor). So, I really like her advice, but if someone like me who wants to work locally, will not have to know about dark complexions symptoms...
It would be so nice if all doctors had the same mindset and kind heart as you.
I have suffered lupus for many years and I finally got rid of it with help of herbal remedy from Dr imenHerbal on TH-cam channel . I used his herbs and I was cured completely with his herbs and up till now I'm negative
Mustapher, Thank you for sharing your story.
It’s encouraging to hear from someone who felt like I’ve felt: sick, afraid you’ll never be successful, never get a job or a life, saying you’re on the other side, and those things *aren’t* an impossibility.
I don’t have lupus, and have never been nearly as ill as you were, but the emotions are similar for any chronic condition. It helps to hear from a real person that it can get better. Thanks.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Rheumatologist are so rare. Interesting to see the other side of this, from someone with multiple autoimmune diseases and chronic illnesses .
I have suffered lupus for many years and I finally got rid of it with help of herbal remedy from Dr imenHerbal on TH-cam channel . I used his herbs and I was cured completely with his herbs and up till now I'm negative
I just want to say thank you SO much for this video. As an African American woman with lupus, i also struggled to figure out my rashes. Even my dermatologist couldn’t figure it out (he thought it was ringworm). I was diagnosed with lupus nephritis last year and it’s been a hell of a ride so far. I would cry also believing my life was over and I’ll never be able to do what i wanted. But after hearing his story, it’s given me hope. ❤️
Hi. I understand how you feel. I've been diagnosed with lupus nephritis and been on remission on medication for 5 years. Hang in there! Hope you'll get better soon!
Mustapher is a real charmer with such a wonderful personality. I'm so glad to see how his life is improved and that he's feeling so much better. 💖
I am studying lupus this semester too and I checked my book and yup! no picture of people of color, I'm not even sure there are any pictures of dark skin in my DERMATOLOGY book??? I'm a medical student in France btw and these books are supposed to be the reference for the final exam that will make us doctors!!! Does this mean we are only supposed to treat white patients!!!! Thankfully in our many rotations at the hospital we see ppl of all colors/shapes because that is what the real world is!! I hope things change but for it to change we have to keep being vocal about it like you did :) (loved the vid and it made me revise my lupus checklist of symptoms at the same time haha)
Oh wow! I had no idea those little spots on my cheeks could be a sign of an auto immune disorder. My new doctor is awesome and knew to order testing without even taking my mask off. Granted. I've had this back pain now for 15 years with no improvement. But good on her for being willing to try something new and not all hoofs are for horses. Sometimes you have to remember zebras still exist
Like you said, this is a hugely complicated problem that comes up in basically every avenue of healthcare.. I am a phlebotomist and I know many of my colleagues (me as well sometimes) struggle more on darker skin and tattooed skin. Just like with the lack of images of rashes on darker skin, I think exposure is the root of the problem. We learn on white vein blocks, white dummies, and largely white volunteers. That needs to change, so everyone can have a better experience.
I’m a woman of colour currently suffering from a malar rash and going through testing for lupus. I had to fight my doctor to be taken seriously. I should send you a photo of my skin lol!
That’s awful. Wishing you well ❤️ your life and health should always be taken serious.
Same here. God Bless!
Do it or let your MD know to document for future patients.
@@annabellehiggins1502 thank you! I was formally diagnosed this past weekend! I’m so grateful that my dermatologist was proactive and did a skin biopsy and blood tests. But my GP was so dismissive and horrible. I’m so glad I pushed for my diagnosis
@@tianagadsden4843 good luck to you too! My rash presented so strangely - I have the distinct redness on my cheeks and nose now but I have a dark, brown rash along my temples and other areas of my skin ... the malar rash truly does present differently in everyone
I was diagnosed with SLE at 19 after a year of popping in and out of doctor's offices and hospitals. Very similarly I had low red cell counts, inflammation, joint issues, fatigue, fever, all that jazz. It wasn't until I showed up in the emergency room with the malar rash that I was diagnosed and treated for Lupus. It really is a medical mystery and I am so glad there will be more great rheumatologist to join the medical mystery team. :) Thanks to doctors like you, I have been in remission for 15 years.
I am so glad he finally got an accurate diagnosis. And, I hope this story will influence healthcare professionals and patients to advocate for equity in the health care system. It took over 6 years for me to receive my diagnosis of lupus...
Thanks for making the effort to show and to learn about different skin types. I too have lupus SLE, diagnosed in 2010. Been in remission since 2013. Lupus affected my brain, lupus cerebritis. I describe myself as a recovering brain injury. Most people thought I was going to die. I was diagnosed at 40 years old. I am 53yo today. I enjoy watching your TH-cam channel.
I have SLE and it took 6 years from the first mention to diagnosis.Since then I have been diagnosed with sjogrens. I also have hypothyroidism and chronic anemia and it seems like everytime I have a symptom the doctors don't want to say its because of any of my conditions which leaves me so confused. Its like i have all these symptom's and have to do my own research to link them to my conditions.
same, I have to coordinate several doctors to treat my lupus, sometimes even having contradicting diagnosis or explanations. I usually follow rheumatologist instructions first and ask them to call each other o write reports that I can take with me to the next consult. Some doctors are really bad at giving out reasons for the treatment and you have to ask , since the patients are the ones who have to explain to the next doctor about that decision
Yes! We have to be our own advocates. I knew after having my son I was no longer myself. I knew something was wrong and it got worse as time went on. 5 years I went with doctors saying im crazy.....im depressed.....until last year I was at my wits end ......and finally got the clear to see a rheumatologist. Diagnosed I was beside myself.....I was for sure he would tell me I was crazy! Like others have before. I almost fell in the floor after all these labs..... then he came in and told me.
I know several people with SLE. They all had problems with their diagnosis. It took years. Not everyone has the butterfly rash either. So sorry because it can cause any symptom. At one time there was no Rheumatologist in our city. My friend had to see the one at the VA. Hard to believe, huh?
Thank you Siobhan, indeed rare conditions do teach us to appreciate life more and not taking for granted. My friend's mum was diagnosed with CJD and lost her in less than a yr. Conditions that we didn't know in early stage frustrates us, yet on the hind side we've learn to be humble and awed at how marvelous our body works!
I saw Lupus. I am of colour and have Lupus. Can't wait to see this video.
Hi Siobhan! Love your channel obviously :) im a daycare teacher and today I found a bullseye rash on one of my toddlers legs that turned out to be Lyme disease. The child is white but when I saw it and recognized it, I was reminded of this video and realized I may not have caught the rash if the child had dark skin because I’ve never seen a picture of Lyme disease except on fair skin. I’m so happy you made this video but I also worry for parents and other people caring for children, that they might not be able to notice something alarming like this either. Thanks for this and thanks to the patient and his family for sharing :)
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
As a lupus patient it is GREAT to see more people talking about lupus. I am also an RN in the US and it shocks me every time I have to go to the hospital or see a new dr how little many know about lupus! Thank You for sharing this!!
I think this is such an important topic that you addressed; I often feel less comfortable with recognizing rashes on darker skinned people as well, because of the types of pictures that we study. I remember there was one time when a dark skinned male was intoxicated, but also stated that he was itchy. I had a real hard time differentiating whether he had the redness from the alcohol or a rash from drinking something foreign in his alcoholic drink! It also didn't help that the guy was a little uncooperative with us... anyhow, we still treated him as if he had an allergy because you can never be too safe! The redness on his skin might have not even been noticed if he didn't say that he was itchy... and could have been missed if he went into anaphylactic shock! Such an important lesson for me. Thank you for all the work you put into your videos and helping more people recognize this!
I love watching your videos, I learn so much. my aunt passed away from lupus about two years ago, her doctors also missed the symptoms ☹️
So excited! I've been diagnosed with SLE and lupus anticoagulant for over a year now it's such a confusing disease
Thank you for talking about it. I just got diagnosed with lupus 2 week ago but had symptoms for around 7 years. It took so long be I had an unusual presentation of it. Plus most of my joint pain was thought to be from playing sports for 15 years. I never more of the classic sign apart from fatigue, lymphopica and joint pain until about year ago. Then my doctor started to have more of the symptoms fit into lupus. I started to developing hair loss, pericarditis, rashes, mouth and nose sores.
This was one of your best videos. I loved the story and the message and it genuinely made me recognize the importance of equity to ensure we are providing appropriate care to all
Loved hearing how Mustapher’s life got so much better, after his early days just after diagnosis! I’m chronically ill myself (Lyme). I always remind myself that it is a marathon, not a sprint, but we sure learn all the meanings of being (a) patient! Fabulous how Mustapher’s sister will be in rheumatology. She will have the experiences of her brother in mind, and will be a better physician for it! - Great to hear about your commitment to show pictures of how illnesses present in nonwhite people too. I see lots of future doctors in the comments. You will make a difference for their future patients!
omg Mustapher has the same wonderful energy as you! love your inspiration to act on your example....super timely and necessary messaging❤️
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Would love to see more stories like this! Especially with rare conditions with multiple symptoms
Kudos to you for this topic ...Because most time Doctors of the different tone become irritate when you try to explain symptoms
this is so odd to me because in Quebec when i went in complaining of a bit of joint pain in my hands they right away tested me for lupus BECAUSE i was black. i had no skin symptoms. but they not only tested me for lupus and RA, they tested my kidneys. Lupus is more common in Hispanics, Asians and blacks and kidney disease is most common in blacks, so the min i said joint pain they knew exactly what to test for altho like u said im a woman... so maybe thats it.... I am glad he finally got the answers he was looking for, im sad it took so long.
I have so much love and respect for you. Never change we need more people like you!
Outstanding video. So thankful Mustafer is healthy and happy now.
My gosh, there's sth about the way you talk, maybe the background music and the editing, together with these very sensitive topics, that really makes me believe that I'd listen to you even if you talked about nothing for an hour straight.
Keep up the good work! This was a very helpful video!
I love that you are taking steps to make practical changes! I love that you will show rashes in different skin colors - thank you!
Thank you, thank you. This is so important and I appreciate your vulnerability and openness. Your decision to do a small change makes a big difference and you are appreciated more than you know.
Thank you for this.. it took Doctors 3 years to finally tell this.. kept saying it was Eczema then my bald patches in my head was Alopecia 🤦🏽♀️
I am not in medical field but I learn something new so thanks for sharing your story and doing this video 😊👍🏾
Great video ! I am also a rheumatologist, I love your energy !
Fatigue + hallucinations + stroke at a young age (!!!antiphospholipid syndrome) + photosensitivity with bullous rash + anemia + proteinuria (not investigated further) ... I hope that not only for rheumatologists ring a bell!
Great awareness about the rashes on dark skin. I didn't have the chance to meet with this situation, but I will remember your video for sure ! Thank you ! All the best to you and your friend ! 😊
OMG! Thanks for this video!
I been diagnosed with lupus for over 17 years now. I been struggling with this illness since I was 11 years old.
Thank you so much for posting this video. I went to my family doctor for an annual checkup and feeling extremely exhausted. It started with blood test showing I was severely anemic. A few months later an extremely low WBC count. A year later I decided to get my very first flu shot. A few days later broke out into a rash. I’m a woman of colour and when I showed 3 doctors my rash, none seemed concerned only concerned with my low WBC count and protein in urine. Was sent to a rheumatologist who took note of rash, along with other symptoms and tests, and few days ago was diagnosed with lupus. When I Googled lupus rash on dark skin there weren’t any good pictures. I can see why doctors were thrown off. Had I listened to my family doctor and not the other doctor in the office who followed up, I would probably be hitting kidney failure.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
I love this video!! I'm a second year medical student and we're in the middle of our derm block right now...so this was super timely for me!! Just shared with all my classmates, hopefully they will enjoy and learn from this story as much as I did! :)
Thank you so much for using the influence and privilege you have as a doctor to bring attention to healthcare the staggering inequities that we MUST do better to combat. I am a medical student and whenever the slides from lectures present a rash only on light skin I try to find a picture of it on dark skin and add it to my slides. Unfortunately, as you pointed out, I can't always find one! Just another example of the inequity of medicine in that dark skin is often left out of the literature.
I’ve been dx with sle and I’ve had that rash once in 10 years.. I was labeled as a drug seeker because drs didn’t want to put the pieces together lol
Of course! Whenever they can’t figure out what the problem is that’s the first label they slap us with. Drug seeker!
When I was pregnant and developed some pretty serious neurological symptoms and had to go to the ER, the physician I saw was clueless! Immediately he ran some sort of toxicology testing on me checking to see what drugs he was sure I took that had caused me adverse reactions! He found not a damn thing and still acted suspicious of me!
Thank you so much for shining the light. This is so important. As a forensic pathologist I definitely see this as an issue.
4th year? Man time flies. I remember when you were a first year medical resident. Love ya!
Currently suspicious that I might have lupus 😬 can you do a whole video on common symptoms or how to diagnose? I have the classic butterfly rash but the rest of my symptoms are pretty mild.
Great suggestion, thanks Autumn. Hope you are feeling alright!
@@ViolinMD honestly I’m not...but I should be seeing a doctor next month hopefully if my insurance can cover it. #iliveintheunitedstates
@@autumnagrella1425 oh no!! The U.S.?? Hope you're doing ok and your insurance pays it all
@@autumnagrella1425 If your insurance won't cover it, see you doctor anyway. Let them know it won't be covered. And ask for the self-pay rate which in some places cuts the bill they send you in half. If you need to, ask for resources to help pay for the visit and medication if they prescribe anything.
@@autumnagrella1425 why would your insurance not cover it and why hashtag the US? We have the affordable healthcare act and a lot of doctors accept all kinds of insurance. Call your insurance company and they’ll walk you through plan coverage and tell you the doctors in their network.
Hope you feel better soon.
what a beautiful pair of siblings!!
Like I almost cried watching this because our experience is so similar
#Zebras & #Spoonies unite!
As a male with hyper-mobile Ehlers-Danlos Syndrome, there are so many diseases and illnesses that need deeper study.
EDS is a painful, life long disease that can come with other diseases that COULD present differently. MCAS, POTS, etc.
Thanks for this fascinating information.
thank you for using your platform to talk about this
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.. Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Happy-ish ending!!
Thank you for taking about this, its extremely important! I too recommend ‘Mind The Gap’ by Malone Mukwende. Its important to study other manifestation that may be misdiagnosed/pardoned such as kawasaki, syphilis, erythema migrans or multiforme.. & the list goes on!
Again, thank you for using your platform to shed like on important issues that should prompt changes in curriculums worldwide.
Ps. SOAP MD :)
I have suffered lupus for many years and I finally got rid of it with help of herbal remedy from Dr imenHerbal on TH-cam channel . I used his herbs and I was cured completely with his herbs and up till now I'm negative
I'm so happy that you made this video! I have VOLUMES of poor experiences with doctors and trying to get diagnosed with certain things. "Sigh" Great video though! Keep them coming please!
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
this tought me so much i am going to be a docter when i grow up so this helps me with some of my learning and other this that i have already knowen
I have Undifferentiated Connective Disease (Lupus, RA & Sjogrens) since the age of 15 (now 28) yet to this day still find it difficult to explain it to people 😔 It started when I travelled to Ghana and had a massive dust allergy reaction and since then I have okay days and bad days. Love the fact you did this video - I feel seen lol 😅
Look at what you are doing!!! I am so excited to think of how this will affect our knowledge!!!
Thank you!! You’re amazing, keep up the good work!❤
I’m excited to watch this !! Your videos are always so amazing
I have SLE but it took a very long time to be diagnosed, as I've become older I am hyper sensitive to chemicals, perfumes, dyes and especially synthetic anything, it's just horrible, I have to wear everything 100% cotton, that includes cloth headbands, I don't know if this has anything to do with lupus but if I had young children I'd start them wearing 100% cotton only.
Honestly, the best content 🙌🏾 Your videos truly make a difference!
Thank you for sharing this. I live in South Africa so the majority of our population is Black, and this has made me wonder how often skin conditions are overlooked here.
Thank you for making video about this very crucial topic ...Thank you !
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Yes! Im going to advocate for health equity in all my classes!
Wow...Case studies now...hurray
I LOVE your case reports Chevon, please keep going ✨
Thanks 4 this Video. It gives hope that a new Generation of Doctors like you are thinking out of the box! 🤞
I‘ve got SLE diagnosed 5 Years ago by „accident“. After 15 Years misdiagnosed, my Kidneys started to stopp working. I got this „bubbles“ (i’m a white colored person) all over my Body. Couldn‘t eat, trink, massiv Migräne, lost 50 Pounds in 2 Weeks,…. And they where still thinking i‘ve got Bulemia…
There is a reason why SLE is also called Chamäleon.
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.. Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
I am an Aussie aboriginal . I have sle (lupus) . Lupus is hard to diagnose at the best of times . It takes yrs but eventually the flares are less frequent . All of my organs are involved . Including my brain . God bless xoxo
I have lupus SLE. Thanks for making this video and spreading awareness!
Wow, loved this video!!!! This video demonstrated like you said, only a small part of a much bigger systemic issue. I appreciate how you're going to implement this as part of your work when showing skin presentation. Thank you for sharing!!!! :)
I agree completely with what you said (women have a similar problem), but if his sister didn't see it...
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
Very interesting debate - equity in Healthcare. But specific to lupus, if you haven't seen or studied how the malar rash presents on darker skin, then you're not going to recognise it when you do see it. So then, where does the fault lie? With the doctor or with the training the doctor received, or both? Both, in my humble opinion. Lupus is still a condition very much ill understood I think. I'd love if you could do another video on it, and go more in depth on some of the more unusual clinical findings that it presents with sometimes. I'm particularly interested in the neuropsychiatric problems lupus can give rise to. Thank you, in any case, for highlighting both inequity in Healthcare, and the condition, lupus.
I'm not a doctor but I have systemic lupus and also Addison's disease. I'm very fair skinned and my malar rash was pretty obvious on my skin tone at the time of my lupus diagnosis and it still comes and goes to date.
Addison's disease is also a condition in which diagnosis must be so much more difficult in some patients with darker skin tones. Although it actually never happened to me, often Addison's patients develop a really deep tan prior to diagnosis - it's one of the classical signs, (although not everyone gets it). I imagine this tan is probably far less obvious on people who have darker skin to begin with. I agree it's so important to have diversity in medical materials to show manifestations of conditions on different colours of skin.
Thanks for pushing us more towards medical equity :)))
I'm not a doctor, and I'll probably never be asked to diagnose anyone. But what you say here can be applied to many areas of everyday life. It's important to be open-minded, and to recognize one's own biases and limitations. Unless we do that, we're seeing the world with blinders on our eyes.
cant wait!!! i love your videos!!!!!
Im was very impressed with this content; truth be told i really enjoy all the videoes you have made here on you tube!! I have no input on this topic but love the presentation just as well!
Oh and Happy Valentine’s Day 💖
Wow, what a story. I am so glad you are doing so much better Mustapher. I so hope that our society can get better at recognizing the dame signs in people who look different to them, I can only imagine the number of people who have passed away because a white doctor couldn't comfortably diagnose a patient of colour. It makes me so annoyed and I'm glad something I'd being done about it and I hope to help in this fight in anyway I can ☺️.
Great video, thank you for helping to raise Lupus awareness!
It would be interesting to learn what is going on in Lupus in Austin, TX USA.
I had a patient come in just crying about her pain, she was a woman of color, in intense pain. Turned out to be lupus. Her thighs and joints were hurting so much and she was told it was just her period by other doctors in my area.
Absolutely brilliant video. Thank you for making this video.
Ps how bout a video on Ehlers Danlos in the future? X
This is too important, thank you ♥️
great work, keep up the good work
We all believe in medical medication but by now, if herbal medication can cure me from lupus, I now believe herbal medication works Best. I can't say all but herbal medication's is 100% the real and natural cure to all illness I bet you, in my case, herbal medications give me reason to believe in it after wasting money on medical medication.... Just follow him by clicking on his Facebook page link facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/
this was BEAUTIFUL
hi, can you please talk about people with chronic illness like fibromyalgia, laxitas generalisata(hypermobility) and maybe if you know anything about pineal gland tumors/cysts?
please
i really need some advice, help.... i need a hug to be honest
Hoping the correct answers are forthcoming SOON for you, Sara, as do understand how frustrating it is seeking answers for tough illness🤔~in the meantime, sending BIG HUGS and many prayers your way💖🙏!!
@@hollyfisher8811 thank you ❤❤❤
I don't think we can make this conclusion across the board. I am a white woman with olive skin and an having a very similar experience. It's been almost.20 years that I am having these symptoms and have been told it is "just stress." My rashes aren't red but brown.
I have takayasus and because it’s so rare and only in my carotid and symptoms started slowly and vague , example fatigue, high hr, arm pain sob, it took yess to diagnose and wasn’t found till I heard my heart beat in my ear
Love your point and discussion. Oddly when you asked for discussion or question first thought was... Light skin & dark skin? I just figure no one on earth has 'white' skin?
As Indian medical student it's tough to recognize a skin disorder in our brown colour people. Not even a single text book shown a image of brown skin people. It's a good initiative doctor.
this is so important!!! im so glad Mustapher is doing much better
Thank you so much for talking about this 🙏
My best friend is suffering from lupus from 4 years
This was such an amazing video. The story was great, touching, and heartwarming, while the information and points were spot on. It's so good.
Seal's got the butterfly rash
Amazing video!
Very interesting!!!
i’ve had lupus since i was 15! i’m 24 now and i loooovveee ur videos. I swear one day i’m going to move canada where i can have free healthcare and YOU as my doctor... LOL!!!!!!!!
Great video however not everyone with lupus has the telltale malar rash
thank you. this is so important!!
Also written in the textbooks that it is hard to diagnose lupus in dark skinned individuals.
I could like a million times