my social observations of doctors
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- เผยแพร่เมื่อ 29 พ.ย. 2024
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It also seems that “autism can cause mental health problems” is perhaps explained by rephrasing it into “current society causes autistic individuals to develop those mental health problems”
I have a pretty low opinion on doctors and how much they know. Everything major about me I’ve figured out on my own, including my autism and migraines. It’s scary when you think about it. And yes, it’s worse for women, poc’s, queer, and disabled people.
I'm a male autistic person and to me any of those would just make it harder to fit in.
Still strikes me as incredibly naive thet women only recently "could" be autistic. Lol
Precious egos
Omg yes. I’ve encountered a lot of experiences about this especially being dismissed. It’s a waste of money. And they ask why people self diagnose and are afraid of going to doctors
@@charissconsul Couldn't agree more!
Agree!
I am autistic myself but to be fair to doctors they:
1. Only see you for a short “snapshot” of time usually one to one in a highly artificial environment
2. They are not trained to any great extent in autism and what they are taught about autism- is arguably 40 or so years out of date. It would be so much better if they were exposed to more cutting edge research by autistic academics whose focus of study is autism as well as autistic individuals happy to share their lived experience of autism.
My autism was misdiagnosed as a “personality disorder”. As a woman, I’ll let you guess which one. I was labelled a “difficult patient” (yes, that was really written on my notes!), when I tried to challenge my diagnosis. Years later with the correct diagnosis, after years of discrimination, bullying, mislabelling and being shamed by medical “professionals”, it is taking months to heal. I also have celiac disease that was also misdiagnosed because the doctors thought I was being “dramatic”
Borderline 🎉
@@derAtze Bingo!
@@Maria7Maria A friend of mine went through hell and back and back to hell and back again because of that diagnosis. She was literally imprisoned in a ward for years, being only 15. We met there. I got the male stoner version of borderline: drug induced psychosis. She didn't leave until she was 18. She was such a beatiful girl, with the brokenest of hearts. I hope she is fine, if she's still with us.
I actually start to doubt it's even a thing. Everything I've heard about Borderline was anecdotal or p-hacked studies and always sounded like a conglomerate of comorbidities from being NT. I don't know everything about it yet, but everything I do know is a bit fishy and unscientific so far.
@@derAtze I'm so sorry you and your friend went through this. Where I am, you aren't technically supposed to even be able to get diagnosed with BPD until you are 18, so it's awful that she was misdiagnosed so young.
Also I agree- Borderline was so called because in early psychiatry, the condition was considered to be on the "borderline" between narcissism/neurosis, and psychosis. Which of course was applied most often to women who were seen as 'emotional', or occasionally also to autistic men who were actually what we now know as neurodivergent. Most "BPD" symptoms can be accounted for through a) childhood trauma b) c-ptsd misdiagnosis or c) neurodiversity traits
me too :( this is horrible and so wrong. I have decided that I need to protect myself and im taking space from the joke of a system called health care. They havent actually helped me at all, the ones who have helped me, werent doctors/psychiatrists - they have enough power to make that choice to do good or bad and its pretty clear they choose bad. I never had any one listen to me. but ive got some new supports now and i screw those people. Im going to do my thing, because that feels good to me.
Yes! The pain scale 🤯
I went to emergency one night with abdominal pain, I told the nurse I don't normally have any feeling when on my cycle. She asked me to rate my pain, and I said 4 because I assumed anything over a 5 would make me cry... She sent me home. The next morning I got a call because a recent ultrasound showed I was bleeding internally, I was in the operating room by midday...
I never know how to answer a pain scale question...
One thing that helped me with that is I went to find a chart (google it to find which one you like the best) but there’s a pain scale chart that they have and use for kids, I know one has pictures like faces on it and on some there is also a little description but I like to reference that to help me (which you can even save it to show that as you answer to them just to help limit any chance of misunderstandings)
I was diagnosed as bipolar 2 after maybe 8 minutes of a doctor going over a survey with me, I so relate to that. Now diagnosed as ADHD, and suspected autism, it’s so obvious that bipolar 2 doesn’t fit my symptoms at all.
That’s honestly medical neglect. A misdiagnosis can be disabling!! I know it was for me. It is so exhausting.
Thank you for speaking about your observations, I feel validated hearing your experience.
I’m sorry to hear this :( I’m editing a video right now about bipolar vs ASD so hopefully that’ll help when I finally upload it!
I've been misdiagnosed too. I'm trying to get diagnosed for the right thing. But it's been super hard.
I have both a bachelor's and master's degree in Biology and have been studying psychology and therapeutic counselling for the past 3 years, I've also lived in my body for the past 32 years, but according to most doctors I've met I don't know anything about my physical or mental health...
Thank you for all that you give. My heart goes out to you. I also have to “Dumb Down” when I have medical appointments. If one knows too much the Doctor turns on you - as if my health was a competition they must win. What? As you noted - God Complex. We are lucky to have you and your wisdom speaking out on autistic topics. Once again, thank you.
Same, I would carefully say something like someone used to mention this to me, could it be? But I still constantly get dismissed
@@meta5175 Last time, I said (based on truth) "My friend was diagnosed with xy, had ... symptoms and I experience similar ones. I hope I don't have xy too.". I wasn't dismissed. The doc could rule out my suspicion.
@@kalima7446 the health professionals I saw was really quick on ruling out, without thoroughly understanding what’s going on inside… of course if they explain to me why they don’t think so I would’ve agreed more but they were like “you don’t look that, I think you’re having victim mindset”, (while I’m really good at masking) I went home and meltdown for days
@@meta5175 sorry that you went through that. I guess it's best to list behaviour and social abnormalities from early childhood. And in adulthood I think, most of us, before we burnout, look inconspicuously. Armed with this list of good arguments why autism diagnostic could make sense, we could answer to lazy docs "Could you please explain why symptom x does not raise suspicion of autism?". I wish you good luck to find a better doc. I know it's difficult to stay calm, rational, able to speak, when encountered with ignorance/bias. We could use pre-written cards with possible answers to unprofessional comments. Like "You don't look like... I think you... (prejudice)..." is NO plausible explanation. Please give me a plausible/convincing explanation." and do not be dissuaded. (I feel it's best to treat myself like a good mother who fights for her kid's rights 🙂This is my plan for my next appointment)
God bless I’m not the only person who has a generally bad view of doctors- a group of people it feels like we aren’t allowed to criticize and must listen to as all knowing gods
Here in France, when a patient show up in the doctor's office with enough medical detail knowledge to describe their symptoms and a pathology name, were not automatically dismissing patient they will think the patient is hypochondriacal.
same here in england
Oh my gosh, I have a subclinical result of this. This is exactly what came out in my assessment. I’m from the Philippines
I had friends and potential boyfriends stop talking to me when trying to tell them I think I have autism. It's soul crushing to hear from someone you care about tell you," you're making it up, you don't seem like it, you're faking, I don't think you're trying hard enough" especially without even trying to research it or watch vids on autism you sent them via text. It's so irritating
I have almost the same story as you. I diagnosed my own endometriosis at 17. I knew something was seriously wrong at 13, but after a year of seeking help for my debilitating pain (I was also completely disabled and bedridden, vomiting, passing out, seizures, etc) I was sexually assaulted by a doctor at 14 years old. I stopped seeking medical treatment for 3 years. I dropped out of school. I became depressed.
I had the same experience where I noticed doctors would always display this sort of God complex as you called it. You couldn't be straight with them or they'd literally laugh at you. I know it all too well. I finally got fed up and received diagnostic surgery just before adulthood. Matter of fact I'm 25 and have another surgery scheduled in a few months.
I relate so much to you and your story. I'm sorry to all of us who have had to endure this suffering. I see you, you're not alone. Thank you for being so honest and open. It's a breath of fresh air and very needed. Well wishes.
misdiagnosis especially mental health misdiagnosis are so dangerous i was put on everything from lithium to haldol where i was told that i couldn’t take basic care of myself when an inpatient psychiatrist was quite literally putting me in a vegetative state diagnosed with everything from bipolar to schizophrenic it led to so many meltdowns and was so traumatic even just coming home to see that my family had thrown away everything i needed to cope leaving me only with empty composition notebooks i’m so angry just thinking about it and i’ll never forgive those doctors for not listening for telling me that everything i said was incoherent for belittling me for shutting down tying me to stretched tables and leaving me to piss myself till this day i refuse to talk to doctors or go to hospitals and just seeing scrubs is triggering because those “professionals” have no moral compass
Thank you. I am 54: diagnosed at 51. It is because of women like you who are courageous enough to share your truth. Period. And it is my belief that so many of us will live to a ripe old age because of how we share with each other. I highly doubt that the medical profession and pharma have our best interests in mind. We must be continually speaking up and out in self-advocacy, seeing that most of the money spent on autism is going to the realms of how to either "fix" us or decrease our existence.
Being stuck in the medical system is horrendous. I’ve been in pain for 21 years and have tried to do it all and now have had to start all over again.
I’m in 8/10 pain every day and totally get how much doctors can’t believe our pain could possibly be that high.
I don’t really know what to do but to just wake up every day.
youve perfectly articulated my entire medical experience. please dont ever stop making videos. I dont feel alone anymore.
Absolutely feel your pain Irene! I have complex health issues including cancer, heart failure and osteopeania and am presently trying to get an autism assessment. Dealing with life , my medical doctors and the overall lack of advocacy and support is devastating and exhausting. Interesting that the average age for death in autistic people is 54. I almost died following a heart attack at the age of 33 in 2003 and have been desperately struggling with a number of related issues since then. I’ve always believed I could deal with my health issues as long as my medical care is appropriate and my doctors empathetic & supportive but dealing with narcissistic docs sub standard care is making me desperate & at times suicidal.
Good luck with the jaw specialist. I really relate to everything that you were talking about. I feel like I have to perform correctly to get correct medical care as well. It’s difficult. I just about cried when I saw an eye doctor that actually believed that I was having a serious issue because he was the first doctor that took anything that I had to say seriously. Being stoic about showing pain is something that I also have.
Wow that is so shitty that u have had such a hard time with doctors
Guuurl, don't even get me started with the mainstream medical system🙄🙄🙄, first off I just want to say I can feel the hurt and heartache you convey covering this topic and your experience because I've lived it too 😪😭 actually I think most autistic women have because we are categorized as being hysterical and histrionic and yes the medical gaslighting is very real! 😣 I'm suffering with you and I wish you all the luck and prayers and positive vibes 💜💜🙏🙏 you got this 👑! PS I also watched the Ted Talks with Jac den Houting and in her talk when she was giving the statistics and mentioned the suicide rates.. the emotion she conveyed when she said " we deserve better" when I heard that it brought me to tears but at the same time gives me strength because she's absolutely right about that and I also agree with her statement about being autistic and not being disabled by my autism but by my environment. 💜
Omg. Even though im a nurse (and autistic-your the most similar person to me that ive ever seen) I go through this SAME experience when im a patient when i was trying to tell the doctors about a rare fungal infection causing granulomas, that they said im just mental and its anxiety its just self mutilation. Very similar story.
When im working as a nurse your absolutely correct, the doctors & culture of our health care system we do automatically label self researching advocates as hypochondriacs.
And i see exactly the difference between having to act different with psychologists and medical doctors.
As the late, great comedian George Carlin once said about doctors, "It's all guesswork in a white coat." This is why I try to avoid doctors as much as possible.
Plus, as an autistic someone who recently turned 55, I'm gonna up that average a bit. Condolences to the loved ones of those who didn't make it this far.
We like to think of doctors as these all-knowing beings when really they're just human like the rest of us. Never forget that when trying to get a diagnosis and always get a second opinion.
I understand exactly what you're talking about. I hate going to hospitals and dealing with nurses, some of them are the most cynical and unsympathetic people ever. I got a friend that's going to school to be a nurse, he's also empathetic a lot so I deal with him on rare occasions. I believed he wanted to be a nurse to help people in need, he told me he was doing it for the money.😢
The part about how you explained how you have to talk to psychiatrists or therapists to not outwardly say what you have is how I'm approaching getting evaled for autism. I made a plan to drop tons of hints and specific stories related to autism (without specifically mentioning autism) and see if they pick up what I'm putting down. I risk being diagnosed with other things but I did get rid of bipolar disorder from my diagnosis records so it's possible to argue but difficult. I hate this tactic but being open about it like I did last time gets me COMPLETELY invalidated and they look everywhere else BUT that part. Medical arrogance is real and I really wish docs can set aside their pride and empathize with their patients by listening and asking me questions.
Wish me luck and I wish you all the best getting the treatment you need Irene!
Omg my experience trying to talk about endometriosis with a doctor is exactly the same! I was laughed out of the room. And people said the exact same thing, that a doctor's ego is so fragile they cant handle their patients telling them what's wrong.
Also the thing about expressing pain hit me hard. I never even realized... Do allistic people actually moan and vocalize their pain like that? That's so weird! :D I wonder if it would be helpful to say out loud that you're naturally hiding your pain when at the doctor's office... To tell them, yes I'm in pain, I'm cranky, it's hard for me to speak and think. (That's what happens to me when I'm in high pain.) I guess this is thinking of a script for future use :D
In my experience that hasn't helped either bc they think I'm trying to gumble brag about my pain tolerance and continue on ignoring what I say. Just because I am not bemoaning NY existence every second despite me saying that I am in pain
I got lucky enough to avoid it, but my spawn point ended up joining a quiverfull cult because doctors ignored it in her...
I have really low pain tolerance, and when I am in severe pain I do the grunting, moaning, rolling around in bed when it's really bad. (It's almost like I'm crying for help because if it gets to that point i often cannot do anything other than that) Even bad period cramps get me to the point where I just sit in bed and watch TH-cam all day because the pain is too much to do anything else (even TH-cam is too much sometimes). I've thrown up from it before it isn't fun.
It's a shame that you weren't taken seriously because of this, though :(
Doctors ought to listen to what their patients are saying and try and help them instead of thinking they know exactly what illness or issue someone has just based off stuff like body language or from the first or second meetings.
Thank you for your content too btw, you are very calming to listen to and it has helped me with processing difficult subjects like this one :D
Edit because i thought of more: I have always been scared of / anxious with medical settings and I've been trying to think of exactly why that is. Maybe it's the difference in routine, the sensory experience, a mix of both or something else that I'm not aware of yet. I get overwhelmed and I can't say everything I need to say and forget stuff too. Overall it's a frustrating experience and I'm trying to work out alternate methods of communicating like writing down everything so i know what i need to say, taking pictures, etc but i feel like the doctors are kind of resistant to it so it's harder to communicate with them
I have prior adverse medical experiences that included years of being dismissed or practically ignored by a specialist, even when I was sitting right in front of him. As a result, even though I finally realized what was happening and obtained a referral and accurate diagnosis, I have found that any medical situation is much harder. If I detect any signs of miscommunication, I automatically assume I'm not being taken seriously. This results in me shutting down, becoming very quiet and tense, and generally just nodding or shaking my head in response to questions, because I just want the whole thing to be over. Obviously, this is not helpful in correcting general miscommunications, as I'm fighting to continue communicating at all! It's really hard. 😧😓
We need more autistic educators and health care providers.
Ahh I just came across this video and I totally agree!! I’m a college student that recently learned/realized I was neurodivergent (adhd and autism) and going to psychologists has been so sucky :(. I literally have so many issues with the medical field as a whole so I decided to major in psychology and I’m going to focus on neurodivergence in teens, adults, minorities and how to actually help once I graduate. Especially people who are diagnosed late (as I was) !!
This is heartbreaking, and I relate to everything you said. I don’t have autism, I have a rare sleep disorder that most doctors know nothing about, and some other mystery illnesses. My experience with doctors has been exactly the same as yours, so you’re definitely not alone.🌷
These videos are so important ❤ I never comment but I just wanted to say thank you for being vulnerable and putting yourself on here to help others. I’m struggling with multiple things in the medical world, also trying to get an ASD evaluation and it’s so frustrating. Advocating for myself is the only way I’ll get help, but it’s literally so difficult 🤦🏾♀️
I have not experienced this level of adversity from most doctors I have gone to, but I know I am an extremely logical person who breaks things down into itemized lists before I go to appointments. I also have the luxury of choosing which doctors I go to, which is not an option for everyone. Most people on welfare or universal healthcare (in some countries) are stuck with whichever doctor the government decides they can see. That said, I did not know I had ADHD until I was 36 because I did not fit most of the common "hyperactive" symptoms and I always just thought I was inherently "lazy". I think self advocacy is important, but so is having the right language for the issues we have, and education of the general public is so important for this. I think there is more visibility now than there was 20 years ago when it was assumed that autism only existed in kids, that adults somehow "grew out" of it. I have always been autistic, it doesn't magically go away. The masking and learning to adapt to society can improve over time, but it is still very hard to maintain a career.
It may be because you can chose your doctors I'm sure that helps. However, if you're male that will also be a big factor. Take lupus for example, men and women have exactly the same symptoms. Women are 7 times more likely to have lupus than men. However, even though women are far more likely to have the condition and show exactly the same symptoms as men it takes on average 18 months for a man to get a diagnosis and 10 years for a woman to get a diagnosis (and it doesn't matter whether the doctors are male or female).
I am also very logical and break things down, I have a degree in physics and work as a developer (previously a solution architect) for example, that's just how my brain works. Yet this is not viewed favourably by doctors in my experience as a woman, they just use that as an excuse to dismiss me as overthinking or overanalysing which just gives them a different excuse to dismiss me with 'it's all in your head'. I've found the only way I can reliably get a doctor to listen to me is to tell them a story of how a man (husband/ boss etc) or a different doctor observed it or suggested it to me.
this is so so so sadly relatable. i am so scared and angry at doctors, and other people wouldn't understand my anger and couldn't relate and it would make me feel so alone? and start doubting? ''Figure out a perfect performance'' as you said is so true, i literally have to go with notes and symptoms which is already hard for me to do with adhd, and i literally have to talk by myself to practice the right level of ''pain'' and vocabulary to use to sound just ignorant enough of what i know i have. I have to walk around eggshells and i feel so anxious because i can literally feel their skepticism, and then i get dismissed and just cry at home and meltdown. Ive had to work so hard to get diagnosed with adhd, and now i'm trying to get an autism diagnosis and there's this bittersweet feeling of knowing that it will be painfully long and difficult, but knowing and wanting to advocate for myself because if i dont no one will. It's just absolutely ridiculous and baffling to me, as to why a person would work in the most CARE AND PERSON oriented field, and act the complete opposite and all of this being the norm and ''respected".
Almost everything you talk about resonate with me and I feel quite validated by hearing you talking about it in such an intricate manner.
Going to doctors has always been such a weird one because I have no idea how to "act" correctly to convey my problems so that they will understand me. It's like I have to learn the "correct" and "acceptable" ways to "express" how a "normal" person with (insert illness) would express it and then "mask" in the correct way to get the help you need.
My Mom had endometriosis as well, unfortunately her experiences mirrored yours, it got bad around the same age, she was misdiagnosed over and over and she was forced to learn all the same lessons about doctors...
As a fellow autistic person i dont get the "its only disableing bc of the system we live in" AT ALL. Yes it would be less disableing if we didnt live in this system. But i would still be disabled. I would still have sensory issues that influence every single little thing in my life. I would still take longer to process things and i would still feel things more intensely. My body would still struggle with temperature. I would still struggle with understanding how things are meant. I would still struggle with change. I would still have an auditory processing disorder. I would still have motoric problems that make me superclumsy. I would still suffer from compulsions. Yes this system makes everything worse but people are acting as if these struggles would go away magically and it rly irritates me. I think it's highly invalidating..
(This is not a hate comment, i rly like your videos and you seem super cool and you rly help me! Its just something i am rly tired of..)
I'm just going to say, as another autistic person, I get where you're coming from but I don't agree. Autistic people do not need to have sensory issues to be considered autistic (btw I am a person with sensory issues so I get it), and no one is against treatment to help with sensory issues. Although autism almost always affects socialization and the autistic way of socializing is not considered acceptable by society, yet if it was more normalized the lives of autistic people would be significantly better in a lot of ways. Also with consideration to sensory issues we can improve those somewhat by changing the environment, things such as enforcing more quiet areas, or more break time. It's true we cannot fix all issues by making society more accepting, but no one said fixing society fixes all the issues. One last thing though a lot of issues that autistic people have aren't autism but related conditions some of which have treatments.
@xMsiaNyan @armadilloalien854 as an autistic myself, I do understand where both sides are coming from and to be honest, my opinion falls somewhere between the two.
Yes, even if the system wasn’t the way it is, I would still be disabled- but there’s no longer the societal stigma and anxiety that comes from being disabled in said system.
I suppose how I view it is that if the system was more accepting and accessible to everyone with all disabilities (not just neurodivergencies), not only the system would be better for all of us, but it would eliminate the stigma and mental strain that institutional and pervasive ableism ingrained in our society has fostered.
If I say something out of line, please let me know, I didn’t write this with the intention of invalidating either of your viewpoints.
Thank you so much for your content, it is so validating and helps me keep advocating for myself. Last year I was advocating for myself with several doctors and at my (former) workplace and it put me in a year long nervous system burnout and constant shut downs. I was able to get my ADHD diagnosis with chronic migraines and spine issues, but it was expensive and I too faced several offended doctors who weren’t even hiding the fact that they didn’t like me knowing myself more than they did. I had an entire binder of prior assessments (that clearly indicated autistic traits but I wasn’t diagnosed because of super ableist reasons), 28+ years of experiences and other evidence that I’m likely autistic but they referred me to rehab instead (I don’t do drugs or drink). It was traumatic. In addition my stepdad insisted that I was making all of this up for attention. Your content is giving me so much of my hope back that I will find the right doctor. Thank you.
I need treatment for my autistic burnout. I wish they’d develop something
How bad is it? How long has it been going on?
I’m very thankful I found your channel. It’s literally life saving. Your feelings are so valid and I’m so sorry you were dismissed by so many professionals who were supposed to listen and help. I’m so impressed you were able to keep going to different doctors and keep trying!
thankyou for this genuinely ♡. i literally just had a very similar experience to these a few days ago , i cried after the appointment because it's exhausting feeling constantly invalidated . i genuinely hope u get the treatment u need for your jaw ♡
I have had endless issues with doctors refusing to listen to me, I always turned out to be right when I went in for something, but they'd usually refuse to do the testing required to confirm it for (literally) years 🤦 I found it easier to get mental health professionals to order the tests for my physical health problems and then take the results back to the doctors that refused to order the tests and have a word with them about my condition being confirmed and why it's important to have the test I had asked for.then I switched doctors for a different one if they continue the arrogance after that
I've given up on doctors entirely now though,honestly just don't have the energy to fight them after 20years of battling. My worst medical issues don't have a cure currently and the risk of paralysis or death is not high enough for it to be worth fighting
I explain it like this. I’m a pine tree. I’ll never grow into or learn to be an oak tree.
Oak tree can be nice, acorns are interesting, they make a lot of noise when they drop in the fall and I like listening for them when I’m in the forest.
My seeds are many in my pine cones, you can even eat them raw,
I’m a pine tree, I grew faster than an oak tree, and I can grow taller and live longer. But my wood is softer, it bruises more easy.
I’m not broken. I’m different. I’m a pine tree.
I had great support from parents and grandparents and all family. No one knew, and there are many lines in our family.
They taught us to love, believe and trust that a child is being honest about their feelings.
When your child knows that you’re on their side to help them navigate the world? You can figure out a way to help. So. We helped each other figure out the best way to mask! We taught each other how to live with NT.
That is one reason I think nearly ALL of us are ND. I never knew what a lie was until I was in Jr high school.
Imagine that. I knew I was different because of the things that happened in high school.
But I tossed it up that “they were stupid”.
I still think “ they are stupid” because they do things that really don’t make sense.
Everything you say is spot on.
I worked in the medical field. My doctors were co workers. They did not know I’m ASD. I did not know either.
They trusted me to tell them the truth. And they never questioned me. Never.
I moved. New doctors.
You hit the nail on the head.
I feel ya on the not showing pain. Working on a seld diagnosis and possibly dealing with imposter syndrome. But for me to show pain in some way I usually have to feel like I broke something. And have had numerous various minor injuries that I didn't notice till someone told I was bleeding
4:17 -Timestamp: content starts for anyone who struggles with attention. I appreciate your boundaries, Irene. It's sad that kind-hearted content creators like yourself have to spend 4 minutes on disclaimers, asking people to be respectful and having to walk on eggshells due to keyboard warriors & "cancel culture". 😢
You're giving us the most precious gift you can-your time and open-hearted vulnerability by sharing your experiences. Thank you!
I ask myself before making online comments:
1. Would I say this in person to their face or ask this question of them in a public forum Q&A? (obviously if it’s no., I don’t say it! 😂)
Thank you for sharing your lived experience! Listening to you talk about how difficult it was to receive an endometriosis diagnosis, triggered a memory for me. As a young adult, I had nearly the exact same interaction with my gynecologist, as the experience you describe. I am grateful for your channel 🫶🏽
Thank you so much for this video - I am in the process of informally raising an issue at my doctor’s as I was shocked to find numerous factual inaccuracies and erroneous assumptions based on autism misconceptions in my notes which is obviously not acceptable. I am seriously considering to bring this video to the meeting to bring home to them the issues I face as an autistic woman using their service.
In the UK there is fortunately Healthwatch who can intervene in such situations who cannot be ignored as they have legal teeth.
thank you. i’m currently going through this. its been my whole life, and as a kid it was frustrating but as an adult to be dismissed.. it’s heartbreaking and when i bring up a specific concern, and what i’ve learned… i’m met with a condescending attitude. after getting an official dx for adhd, i felt relieved, but i struggled so much still, and i’ve been scared shitless to even say the word autism as i can’t take one more dismissive attitude 😞 its why i switched psychiatrists, and face the same thing
What your saying about endometriosis is true Irene. I was diagnosed with it at age 18 but had the pain and bleeding at age 11 when i first got my cycle which I freaked out and couldn't understand why i was bleeding oh i am autistic adult but wasn't diagnosed until last year at age 38 . Long story short after multiple visits to hospital multiple doctors many surgeries having endometriosis fibroids cancer in uterus which the doctor who did the surgery didn't tell me that when giving me a hysterectomy which put me in surgical menopause at my thirties i had a large bowel obstruction almost died because i didn't know i had the obstruction by God's grace im still here. No support except my dear husband bless gis heart and he's autistic also. Having some doctors have the attitude you discussed and long journey but still standing have scars but gained strength and confidence all while knowing i was different then finding out im autistic I'm like Lord thank you for saving my life removing all sickness and giving me nice doctors and removing the negative ones. Irene hang in there im praying for you i understand the chronic pain being bed written frustration wanting to do things and just couldn't i pray you will have dictirs thaywill comfort and understand you and help you so you can be healed and experience life without pain 🙏🏼
I also find that major misinformation, like extremely wrong misinformation, is often found on very extreme parts of the Internet. But that could just be my experience 🤷🏽♀️ I never have a hard time finding information of disorders from medical resources online, and I don't often experience a doctor knowing more than me on something when I've done research on it already 🤷🏽♀️🤷🏽♀️🤷🏽♀️ except for that social worker who clocked my adhd symptoms before me, she is a queen, and very nice to me.
I've been bingeing on your content all day. You verbalize the experience better than any other autistic creator I've watched. My struggles are being a super late diagnosis (37years old )my family doesn't believe me. They want it to be other mental illness and they are so wrong. I am obsessed with knowing myself correctly, I can't do anything about it only live.
My doctor put me on antipsychotics for some mood things and it was so good for my ocd tendencies, like, life-changing, but my Tourette’s. It got a little insistent, a little persistent until I was lying in bed unable to do anything and in so much sin bc the tics would not stop. Worse than three cans of monster.
So I take more bc I’m stupid, thinking it’ll make it stop?????? Stupid.
Which obv doesn’t work and makes it even worse.
So I make an emergency appointment. I have to wait TWO days.
And then, in the car, my sister driving, I’m trying so hard to keep it at bay. And then in the waiting room. For so long.
And then finally into the office.
I tell the nurse I have tiurrretes and the pills fucked me up. And I’ve told my doctor SEVERAL times that I tic. He never really reacted to it, but I’d assumed he’d listened.
By now, I fully let go and was ticking like crazy and my face was also fucked up.
And when this man walks in. What does he do.
He asks me if I took street drugs.
Oh, and because I was so unable to hold myself back, I slipped and said fuck. And this bitch tells me this isn’t the place for that language. And he treated me like some feral fucking animal.
Literally never saw him again. Then made a complaint against him, made it seem really bad bc his word against mine.
But I’m fine now, cos plotting relaxes me and calms me down from intense anger.
But I won’t forget that.
When I was a teen, I went to a mental health hospital. I already knew I was experiencing depression and anxiety for years, I did my own research, I knew about a lot of mental health conditions and neurodivergencies. I watched the doctors give me an ONLINE QUIZ that I could take for free at home to diagnose me with depression. Additionally, one of the psychiatrists saw me organizing pens by color, asked me if I had OCD, and then dismissed it entirely. This was a busy mental health center for teens, so I'm not blaming the psychiatrist because I'm sure he was stressed simply because of the job he was given, he probably has to get through like 40 teens a day in a timely manner. But he really failed me tbh and I didn't trust anyone there outside of the social workers because they did events to help us learn about coping and dealing with stuff, which helped me more that a depression diagnosis.
Now I think I was depressed because of undiagnosed autism and that experience made me lose faith in psychologists and how much they know. I can respect the experience of a therapist, because you might have learned a lot about communicating with people when you do therapy for a long time. But some doctors, especially the ones who are just trying to diagnose you with something when it makes sense to them, make me upset.
And I found out that if I went to the mental hospital again, they would've permanently given my rights to make medical decisions for myself as an adult to my mom🧍🏽♀️I can't believe that to this day.
The psychology field is really failing autistic individuals and it's still giving modern day eugenics to me. The way they treat mental health and neurodivergent people is like "I want to get rid of you and keep you away from people." It's so sad.
People only react to theatrical performances. If you don’t emote people find it disconcerting. Which if i run into someone who doesn’t emote much it rubs me the wrong way because im constantly searching for tells to know how to interact with them. I recently got my wisdom teeth out the doctors assistant goes over the medications in under 10 seconds for a page that takes a couple of minutes to read and understand. And then when i asked to clarify they just repeat the same thing and walk away while i could barely speak. We are just insurance check marks, and get treated more like cattle than people.
A psychologist spent about an hour and a half with me, then typed about four pages about me, giving her opinions, which were so far off about me and my parents. Growing up I was shy and passive. My friends told me I should stand up for myself when anyone bullied me. I was very good at art and music but had a lot of trouble concentrating and doing homework, and at school I was well known by teachers as being a daydreamer, staring off in space for long periods of time. But that psychologist wrote that I was manipulative, aggressive, and thought I was more intelligent than my classmates. She also said my mother was aggressive and my father passive, which was the exact opposite.(my father once hit me and knocked me out). How could that psychologist know me! She kept interrupting me in order to tell me about what she thought I was like. 😢
should get her license revoked, that's unacceptable
Please don’t have surgery with that doctor. If he is that difficult and lacks empathy for you during a simple appointment, I personally would never let that person do surgery on me. Please follow your gut 🤍
Wow, this is shocking! I had no idea!!😮
I find your videos so comforting and educational. Thankyou so much❤
These are the kind of videos that need to get made!!!
Thank you so much for your videos. They have helped change my life.
Let’s also remember that some docs are incentivized or encouraged to push certain meds. I feel this makes docs listen for certain keywords that they can somehow link to the med they need to push & then tend to diagnose you with whatever that med targets. I think that the pressure put on docs to upsell certain meds, causes far too much misdiagnoses. One of the many reasons why healthcare should NOT be a for-profit industry. I can’t tell you how many docs have tried to give me anti-depressants when I’m not depressed & don’t have signs of depression. But it’s happened for years, even last week. It’s lazy & it’s not okay. They DID go to so many years of schooling to be a doc. So maybe they should use all that education to make a better effort.
When I was 12 an adult male doctor asked me if I was “just imagining” my pain and symptoms of what I now know is severe GERD. 8 years ago I was misdiagnosed with eosinophilic esophagitis and only found out this January that it was really GERD, and I just needed omeprazole for it. One of my more recent psychiatrists told me that all of my autistic traits are “just a difference in personality” and that she thinks I have BPD and AvPD instead, despite me listing off for half an HOUR my traits (that line up with studies and the DSM criteria mind you). I get so ready to give up with these pompous, unempathetic “professionals” sometimes.
During covid my circle had a new friend who was self considered "high functioning who can do whatever he wants but just can't decide" and he wanted to fix his autism using psiloscybin. He hates his brain, the world made him like that. He treated me like I was stupid multiple times while trying to save face. I don't talk to him now because he sided with my doctor ignoring my chronic physical pain concerns for the sake of looking smart debunking chiropractics that were the only thing helping me at the time. He made me feel like SHIT just like the doctor did and I haven't really talked to him since.
Thank you for this!
why is it that the imagination makes us cry?
It always gives me such an icky feeling when I'm reacting to pain or illness and worried about people thinking I'm being dramatic or other times feel like I have to act in order to be believed that something is wrong. That's messed up that you've experienced all that. Medical professionals need to be educated about neurodivergence
I think it is very important that as a patient, not to forget that psychologists/therapists diagnose us by "observing" our behaviors and expressions of emotions, which means these are inevitably filtered by mental health specialists' lenses, perspectives, life experiences and even their own mental illness if they have any. You know, many mental health professionals chose their job because they also suffer from their disorders. Observation is never be objective enough. For example, practitioners who have low tolerance to pain, they can minimize pain of high-pain-tolerance patients because the practitioners cannot see enough expression of pain in the patients. The same pattern can be said to high pain tolerance practitioners who may over diagnose their patients....
I'm a student nurse, and I'm really sorry for you and many experiencing that level of ignorance from medical professionals, we are taught to work with patients/clients to get to their goals of optimal health and lestin to them carefully and treat them with dignity and respect for them, their emotions and thier observations.
People also really love to give their opinion on your body when you start to talk about the accommodations and medical care you need/want. I can’t even count how many people have told me that I “may want kids one day” when I mention my want for a hysterectomy. They then get super quiet when I tell them I can’t have kids and that my uterus causes me terrible pain every single day.
I agree with your observation
And so much of diagnosing values a doctor's observation of your symptoms, and not how you are exactly experiencing the symptoms. I think that devalues a patient and gives a doctor too much power, despite doctors being just as biased as normal people. I don't think doctor's have to learn how to be exactly unbiased when observing a patient, so I don't know why it's so observation based, especially when it's a mental health issue or an issue that a patient is openly stating.
Ah hahahahah…. I’m laughing at how true this can be and the complexes that doctors can have. I’m studying to be a healthcare worker which means I have many doctors/consultants that are my lecturers and I see how many of them, especially certain specialties, forget what it was even like to be the yet untrained student.
Anyway, I’m here to also tell about the doctor’s POV and no, it’s not to excuse their behaviour but hopefully, to elicit some understanding and perhaps it’ll help you some.
Traditionally, doctors are the amongst the best of the best, the smartest, the most competitive, etc, etc which means their capacity for empathy and communication skills may not be as well developed as they should be in such a human-human interaction. Think gifted kids are special needs kids too kind of thing. Thankfully, many medical schools these days know this and are incorporating this training in the school (unfortunately, this training is also being conducted by some of the same “empathy-less for students” doctors).
Doctors have a lot of responsibility which wears even the most empathetic souls (perhaps them even more so) so many have these ‘complexes’ which are really (unhealthy) coping mechanisms. Work hours are one thing but dealing with the healthcare system is a whole other. They have to balance the costs and side effects of every intervention they prescribe and deal with the burden of caring for the sick and dying which means dealing with death, some of which are caused by the doctors themselves because of… reasons. Nowadays, shared-decision making and multi-disciplinary management are the keywords to help mitigate some of these risks and ensure the patients are properly cared for and can make proper informed consent (but it’s not easy to distill all that medical knowledge for the patients most times and it’s difficult to draw a balance).
Doctors have to deal with the fact that so many, many people (and govt systems) do not take care of their health as they should. You cannot imagine the number of times a doctor has met incredibly stubborn patients with diabetes or hypertension or some other lifestyle related disease who do not make the proper adjustments to improve their health. Unfortunately, lots of factors go into this such as “no-time syndrome”, financial status, health education and all the messy stuff that life throws at us so patients can’t always be blamed either but this lose-lose situation can make many doctors feel jaded and cynical when treating patients which results in sub-par care for the patient. I’ve seen doctors give antibiotics for viral URTI because their experience taught them that it is what patients expect from doctors. I’ve seen doctors that will stay late in the crowded clinics because they spent precious minutes going over the same/similar discussion with patients to try to improve their compliance to treatment and every doctor from every specialty that deals with patients directly does this because the truth is, these lifestyle-related diseases are what’s slowly killing the body’s reserves so whatever future medical illness or surgery comes their way, it hits way worse.
Unfortunately, there are bad actors all around spreading pseudoscience and misinformation about health (some of which even doctors end up believing). For the most part, the key is balance. However, all this information and personal beliefs and biases contribute to patients not being compliant to their treatment or seeking alternative treatment that may actually worsening the patient’s condition. Of course, the keyword here is evidence-based medicine but please understand that there is a lot of implicit biases in the medical world due to biases in studies conducted and studies published and all. Nevertheless, imagine meeting patient free patient who is refusing to take their medication because they believe that taking too many pills are unhealthy then choosing alternative “natural” remedies from questionable “health practitioners”. Unfortunately, while some of the may be truly learnt in their practices, others are bad actors out to make a buck without care for the consequences. This makes doctors jaded and question “educated patients” on the conclusions that the patients are saying despite the fact that many senior clinicians tell students that the patients are the best textbooks of their own disease. Hence, why many may feel that they need to guard how well they know their condition when consulting a doctor. The doctor-patient trust is broken both ways.
Doctors are humans too and the numbers for psychiatric illnesses amongst them can also be shocking. They have bad days and they have good days. There are truly heart of gold doctors but also malicious actors amongst them as well. But the expectation that doctors have to be perfect is still there because they deal in the most precious commodity: human lives.
All that said, here are some suggestions that may help you advocate for your own health. Don’t be afraid to shop around for the right doctor for you and if the doctor is the one who is advising you against getting other opinions, take it as a red flag to find another doctor. You may have to shop around your condition but some specialties that are known to be patient-centric (as well as cover most things generally) are family medicine specialists, geriatricians and certain paediatricians but many times, even if your disease is not related to that doctor’s specialty, you can still get them to help advocate for your health by guiding you to the right doctors and writing proper referral letters so it doesn’t matter their specialty. Find any doctor you trust and stick with them.
Another thing is to be prepared to be wrong no matter how well you prepared your arsenal of information. Like I said, there is a ton of misinformation out there and even if the info is correct, not every human reacts the exact same way to the same treatment so there is always a margin of error. Like wise, the doctor should also be prepared to be wrong at times so if your doctor is as stubborn about not giving you the treatment you want WITHOUT giving an acceptable explanation, find another doctor.
Yes, the road to finding the doctor is hard and long but it is worth it in the end. And… hopefully, it gets better as medical school realises these shortcomings and try to prepare the students as best they can.
I’ve always thought that I have a low pain tolerance. Now I’m wondering if I actually have high pain tolerance because I can be at my job and be in extreme pain, and no one would know. I could jokingly say, “I’m in so much pain. See you at my funeral” and people probably think that I’m joking or just exaggerating. Meanwhile I’m in so much pain I COULD curl up in a ball & cry, but I don’t HAVE to.
Holy sh*t this is insane.
recently started watching your videos and it's been so validating. I've had SUCH similar experiences. I feel seen. Thank you for this
I have a similar story with my endometriosis except I had FAMILY HISTORY and my sister had nearly died from her stage 4 endo and a bad infection from her bowel endo. I also diagnosed my ADHD and I’m certain about the autism but I don’t have the fight in me to fight for a diagnosis.
Wow I can really understand a lot more about my husband's frustration with the doctor and other people in his life. He's gone to so many fruitless appointments. I started to dread bringing him there because of how upset he'd b afterward because it was just useless. It seems like he maybe has some kind of chronic thing going on with him. I was so confused whenever he told me about symptoms and I made him feel like he was crazy but that wasn't what I thought I just wasn't eliminating it as a possibility and I didn't know what any of the other possibilities could b. I feel crappy about how I handled it, I think he felt pretty unsupported by me. He seems like he gave up on trying to get treatment now.
Hi im a GP medical resident myself and i recognize your struggles and unfortunately see a lot of dismissal of autistic people, women and other minorities. I'm going through the diagnostic process for ADHD/autism and I'm gaining more and more awareness. I do think it is getting better as the new generation about listening to patients. I live and work in a country with socialized medicine and sometimes we in public healthcare just don't have the means to help everyone. We as GP can't claim to know everything about every disease and some illnesses like endonetriosis don't have a lot of research about it. Not to justify it, but just to explain some stuff you took up. I'm sorry you went through such bad experiences.
Another relatable topic Irene - thank you for your vulnerability ❤ Those stats are shocking and devastating 😢 especially since I will be turning 54 this year! Eek! 😳
This is all so true. Here’s my story and it’s really awful. For a couple of months I was waking up with stomach pains that increased to the point where I was having to get up and use a heat pack for an hour before work and it got so bad one week that I was somewhat doubled over at my desk at work, holding my stomach.
Finally after work on that Friday I was in so much pain that I started throwing up from the pain. I made it through the weekend, hoping it would get better, but on Monday I wasn’t okay so I went to the ER. I was still experiencing what I would say was probably a 9 or a 10 on the pain scale, and I do have a high pain tolerance as well. It took me hours to be seen in the busy ER but they finally got me in for various scans including a CT of my abdomen.
Literally the next morning (about 18 hours after walking in the ER) a nurse finally got to speak to me. She asked me, “are you in a lot of pain? You really aren’t showing it like the other patients out there but judging from this mass, you must be in a lot of distress.” Um yes. I had a huge ovarian tumor pressing into my organs apparently. I actually denied her offer of narcotic painkillers though, because they make me loopy and I was there by myself, but I did gladly take an injected med for my migraine which was also easily a 10/10 in addition to the abdominal pain. It ended up being ovarian cancer, FYI. 🫠🤷🏼♀️ And I’m only in my early 40s.
I'm a teen who has ADHD/ADD and believes that they have ASD. My family member who works in the medical field, heard about my beliefs and questioning of this, and almost tried to make me think I'm ridiculous or I was making up excuses for the problems I've been having. It's so sad that I wasn't talking to a loving family member, I was talking to a doctor who told me what I was feeling wasn't true or possible. The fact that at a very young age by doctors, I was told that I I had ADD and a learning disability, but because I said what I believe I might have it, he got defensive like the doctors in her experience.
This issue is SO real and SO prevalent! I wouldn't even know where to begin if I were to try to talk about my (and my family's) experiences because we have had so many horrible experiences. I hope you don't have to go back to *that* jaw specialist. He seems to have some kind of personal hang-up that interferes with his professional performance. Maybe there is someone else to try?
I’m so sorry you are going through this too. I have had fibromyalgia since I was a teen and a decade later I haven’t gotten a single thing out of the medical system to genuinely help me. I identify with your experience SO much, especially about having to put on a show to convince doctors and having to walk on egg shells around their egos. As for your recessed chin, I’m sorry, I had that too but my family had me get braces and an appliance and so it got corrected in an easier way. I hope yours gets resolved, people just don’t realize how debilitating these chronic health issues can be.
Great video thanks for sharing
I might have the same situation going on with my jaw. I was also told I couldn't possibly have sleep apnea because I wasn't obese. But then I was diagnosed with obstructive sleep apnea and told if I didn't use a CPAP I could die. I do have that cracking when I move my jaw and had just accepted it. I am doing Invisalign to straighten my teeth. And interesting thing you brought up about posture, I do hold my head forward and it has been brought up over the years by various cello teachers and colleagues. I just always thought it was just a function of having a bad back or weak muscles or something. I am in my 50s. I'll be interested to see if you are able to get this handled by insurance and everything else related to it. I'm also AuDHD.
Thank you so much for making this video. Can you share with us the TED talk you mentioned that had that awesome quote of how the world around us disables us? Thank you in advance, I love to watch your videos. It helps to not feel so alone ❤
How to mask right in front of doctors esp if you're in pain....a lifelong story for me. I hope for all of us that we'll figure this out the right way!😻meow🐾
Man I wonder why would some doctors carry that idea that they know everything better than others. Yeah they know relatively better than average person, but that doesn’t mean they know every aspects of all medical conditions, especially the new comers that the med school never teaches you. And also, people are not totally incompetent to see the patterns in their own body.
They can totally take patients’ opinions in charge, and then do a detailed exclusion diagnosis to prove or disprove the suspicion, instead of judge the patient by assumptions. I understand some times patient could be annoying, but does that interfere what you should do though?
And I do computing science, I just feel my degree is an introduction, I know nothing deep about the computing. Med school takes more years in training, but as I heard from other doctors, it doesn’t prepare you for anything as well, your intern also mostly train you for common situations not all situations as well.
I have sleep apena and I'm not obese.
What an essential channel this is!
I started in medical school. I left, not because I couldn't cope with the subject, that was easy. I left because I realised there was no way on this earth I was spending the rest of my life working with these people. I would say 7 out of 10 were there because they wanted to be worshiped as doctors. They didn't care at all about patients beyond what the patients could do for their ego. Of the three people I knew who weren't like that, 2 of us left the subject and moved on to other subjects (I chose physics - same age students very different). Perhaps it's not the same everywhere in the world or even today, this was in the late 90s in the UK. I had hoped, they were just young and would grow out of it, but my experience with doctors has not improved.
It's also not just rare conditions. I had an ovarian cyst. I was ignored by my GP for 7 yrs, I went to a sexual health clinic out of desperation who decided it was psychological and sent me to a sexual health counsellor. Six months later my intermate life was better than it had been in years as he helped me work around the symptoms but the symptoms hadn't change. He referred me to a gynaecologist. The gynaecologist identified a minor problem, which he did surgery on which helped a little but not much, so he decided it was psychological and referred me back to the counsellor, who asked me one question. Has anything changed, I answered no and he referred me straight back to another gynaecologist. The new gynaecologist asked me, what did you ultrasound show, to which I asked 'what ultrasound?'. Apparently before he did the surgery he did, he should have done an ultrasound, he didn't because he was sure, bar this one minor thing it was all in my head. Finally about 10yrs later a decent doctor listened to what I said and ordered an ultrasound and found the problem, which then required me to have a second surgery which would have been unnecessary had the first bothered to listen as they could have been done together.
I also have have multiple rare conditions, although they are known to be comorbid so having been diagnosed with one the chances of me having the other is massively higher. In every case I had to figure out what was going on and then find a doctor that would listen to me , not easy. Now if a doctor tells me it's psychological or all in my head (and I don't agree) I instantly assume I'm dealing with an incompetent and/or lazy doctor and go around them. Still takes years but fewer than 10.
The TED talk mentioned: th-cam.com/video/A1AUdaH-EPM/w-d-xo.html
I remember one of my colleagues said Is not calling a disability because It sounds disappoint me he said call it possibly If I make sense
They left me for 3 years with (suicide) cluster headache , before acknowledging my symtoms and giving me working medication... they where contemplating migraine's...I didn't show the typical signs .... walking around , screaming and banging your head against the wall. Like what good is that going to do... make it make sense 😅
It's because they think they're the smartest and their arrogance is supreme. This is such an important topic and I've had the same situation happen to me. I was misdiagnosed with bipolar disorder because I was trying to break out of the mask I had created for myself based on society's expectations. It made me hate the medical field honestly.
Can you share that article or link with all the statistics? That's super helpful info and it explains why us Asian women in particular struggle so much with self-understanding and getting diagnosed. Neurodivergence seems to have become a very privileged trait and only rich, white, males have access to psychological or mental health services related to this. It is a social justice issue and I think this is the root of white, male, misogynistic societal abuse. Nobody's talking about this except you and maybe a handful of others, but we need to. I'm so angry and passionate about this topic as well...I want to join you!
I don't agree. Its a disability. In my opinion. Even when everything were perfect. We still would have problems neurotypical will never have. It always seem to me that "disability" is the worst thing you could be. But there are so many forms of disabilities. Many you don't see with a first look.
I was diagnosed with hESD, its a condition that has a 50% rate with adhd and autism combo, i have seen how you write, are tou hyper flexible? I am in chronic pain like you said, no one believes me. Slowly slowly
Regarding gender & whether or not doctors believe you-I'm a cis / het male, 41 years old, and I don't know the experience of others. Doctors have rarely had a chance to disbelieve me, because until the past year I just didn't tell them anything. Although I don't know how true it is, this is a stereotype about men, at least in the US-that we don't seek medical help and don't talk about either physical or emotional problems that we're experiencing. That's certainly what I had learned I was "supposed" to do, and it's often made me incapable of expressing that I need help, and incapable of receiving help. Now I'm trying to unlearn it. Since I've started being more communicative I've felt that, at least some of the time, doctors don't believe me.
Not being believed sucks. Censoring yourself also sucks.
A couple of other, unrelated thoughts:
I learned recently that the average number of patients seeing a particular primary care physician in the US is around 2000. That seems to explain a lot of the inadequacy of care. I'm not sure anyone can understand the medical needs of 2000 people.
I also suspect that doctors have learned to disbelieve self-diagnosis because it usually is wrong. I'm betting they see hundreds of people who googled their symptoms and decided they have [x] by scanning the results for half an hour. And they see a handful of people who've put in a lot of time and know what they're talking about.
For instance, I had a home sleep study recently. On getting the report back my immediate response was to ask for the raw data and spend about a dozen hours learning how to interpret sleep study data. Most people don't do that.
Or, the recent example where I was irritated by not feeling believed: I had a displaced fracture four years ago, didn't seek medical care at the time, and never mentioned it to a doctor until a couple months ago. It's causing recurrent tendonitis because things don't line up right, so I eventually decided to see if there's anything to do about it. I know where the fracture line is, how much and in what direction bone was displaced, where and why this is causing tendon inflammation, etc. I don't think the orthopedist believed there was anything more than a minor issue that'll resolve on its own-he told me "come back if it becomes excruciating". Although I still think the guy's a jerk, I understand where he's coming from. The whole situation probably is objectively weird and improbable.
I've also had the same thoughts re. expressing pain. I don't really know how to do it.
That concept of disability is called social disability model. Where society doesn't include disability in the design of society.
I swear hearing you speak in 90 percent of your videos its like we are twin brains!! Everything you say ive experienced in my own personal way. Its mind blowing. Unfortunately i am that odd one that was misdiagnosed with schzoid personality disorder which i know its autism. Im on my search for a second assessment. She said i live in a fantasy type world because im wiccan. My feedback was so insulting and im traumatized 😢
Hello, I just discovered your channel, Im also ND too! Glad to be here, decided to sub!
Hope you get the help you need with your yaw.!!❤
i also have endometriosis, adhd and maybe autism? (not diagnosed) but wow i feel like you are speaking directly from my brain
Does a worsening of health/addictions make the autism symptoms worse? / As one walks into a Doctor's office, where does the professional liability for the doctor begin?
My PTDS , depression, gender identity disorder , anemia ( i refuse to call it gender dysphoria) , my moms hypothyroid all healed without medical specialist recommendation. And now learning about auADHD from others . There is a saying « Ask the *try-er* and don’t ask the doctor . I read papers myself and search things myself and try to figure out connections, use the psychological basis that i found in Quran . Modern psychology describes the problem and islamic psychology and sociology have the basis of the human psycho/sociology. That’s whats worked for 3 years versus 20 years of listening to trash pseudoscience