I was diagnosed at 36, I am 48 now and had DBS seven years ago. I fall pretty regularly and I attribute it to freezing of gait. I usually freeze and then fall; and I usually drop to my knees but sometimes go backwards. I was taking a Rock Steady class and we did a couple days of how to fall. It was helpful.
I fell in Nov' 23 while doing animal chores. My arm is still hurt & catches alot. Never went to dr for it. Everytime i stand up i have to make sure i can. Im definitely more wobbly. Dizzy, off balance, grabbing walls. Its exhausting& scary to shower, so cut that down to 3 times week. My eyesight definitely is going. But it might be diabetes taking them. It helps to watch these videos. I dont feel so alone.
This guest is a refreshing and intelligent aide, educator and advocate with a sprinkling of good intense sarcasm. Love to know more about her work in Parkinson’s world. 🎆🌈 BTW I have recently been diagnosed with prostrate cancer and juggling drs. and meds and what you can or cannot do is a further extension of my new life partner s ( P D ) overriding control of making personal or family decisions. it SUCKS But fighting back on many levels of our lives is MORE important.
hello to all. great topic, thanks for sharing. My wife has had PD for almost 10 years now, she is 69 years old. She is constantly falling - 3 to 4 times a day. her body is covered in black and blue marks and scrapes. During the last year and a half she lost about 55 pounds which makes her a lot lighter and helps her from breaking bones. i have done some research on the topic of falling and PD but have not found too much information on the subject. Her medication list during this time has gone from the nupro patch, to ropinerole, to increasing doses of carbidopa levodopa (Sinemet) to her current medication of a combination of Rytary in 2 different strengths. She has gone through the tremors on the left side, night terrors, hallucinations, the muscle stiffness and rigidity, pain and currently has wild dyskinesia beginning in the mid-afternoons that lasts until nighttime when she falls asleep, then if by magic, all the symptoms disappear, and her body can rest. She has gone to rock steady boxing until covid hit and has had physical therapy off and on for several years also. Her hearing is good and her eyesight is good with glasses. she has had a cane, a walker with wheels, a transporter with the seat and hand breaks, a wheelchair and a mobility scooter for outings and vacations. She refuses to use the walkers in the house because she can't carry or move things around the house freely. Most of the time I am at a loss on what to do or say, by the end of the day i am very frustrated by her falling and getting hurt. I look forward to your video's and also the Parkinson's Wiggles Project for open and candid discussion about PD to help me get a better understanding of how she feels and what she is going through. Any suggestions or recommendations to help a concerned caregiver make my bride's life easier are very welcome. Thanks to you all on your channel.
As of late, I have been losing my balance quite frequently and have been "falling" into walls and door jambs. I try to describe to my wife that I feel "wobbly" and don't feel that I can move fluidly. I am to the point that I believe I need to begin occupational therapy.
Unfortunately, one of my my most debilitating PD symptoms is Freezing of gait (FOG). Not a lot is known about this condition and it really is taking a toll on me and my mental state. I really thought I had bad blood circulation that was causing it. I had an ultrasound done and was advised it appears to be the PD which is causing it. And I think a lot of people mistake restless leg syndrome (RLS) with FOG. I've experienced RLS an recall the unbearable urge to move my legs which I could. With FOG there is no movement and I just freeze and end up falling. There are techniques out there to assist. (i.e., counting, listening and singing music, moving arms) Also this is referred to as freezing & festinating gait.
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I was diagnosed at 36, I am 48 now and had DBS seven years ago. I fall pretty regularly and I attribute it to freezing of gait. I usually freeze and then fall; and I usually drop to my knees but sometimes go backwards. I was taking a Rock Steady class and we did a couple days of how to fall. It was helpful.
I fell in Nov' 23 while doing animal chores. My arm is still hurt & catches alot. Never went to dr for it. Everytime i stand up i have to make sure i can. Im definitely more wobbly. Dizzy, off balance, grabbing walls. Its exhausting& scary to shower, so cut that down to 3 times week. My eyesight definitely is going. But it might be diabetes taking them. It helps to watch these videos. I dont feel so alone.
This guest is a refreshing and intelligent aide, educator and advocate with a sprinkling of good intense sarcasm. Love to know more about her work in Parkinson’s world. 🎆🌈 BTW I have recently been diagnosed with prostrate cancer and juggling drs. and meds and what you can or cannot do is a further extension of my new life partner s ( P D ) overriding control of making personal or family decisions. it SUCKS But fighting back on many levels of our lives is MORE important.
😮
hello to all. great topic, thanks for sharing. My wife has had PD for almost 10 years now, she is 69 years old. She is constantly falling - 3 to 4 times a day. her body is covered in black and blue marks and scrapes. During the last year and a half she lost about 55 pounds which makes her a lot lighter and helps her from breaking bones. i have done some research on the topic of falling and PD but have not found too much information on the subject. Her medication list during this time has gone from the nupro patch, to ropinerole, to increasing doses of carbidopa levodopa (Sinemet) to her current medication of a combination of Rytary in 2 different strengths. She has gone through the tremors on the left side, night terrors, hallucinations, the muscle stiffness and rigidity, pain and currently has wild dyskinesia beginning in the mid-afternoons that lasts until nighttime when she falls asleep, then if by magic, all the symptoms disappear, and her body can rest. She has gone to rock steady boxing until covid hit and has had physical therapy off and on for several years also. Her hearing is good and her eyesight is good with glasses. she has had a cane, a walker with wheels, a transporter with the seat and hand breaks, a wheelchair and a mobility scooter for outings and vacations. She refuses to use the walkers in the house because she can't carry or move things around the house freely. Most of the time I am at a loss on what to do or say, by the end of the day i am very frustrated by her falling and getting hurt. I look forward to your video's and also the Parkinson's Wiggles Project for open and candid discussion about PD to help me get a better understanding of how she feels and what she is going through. Any suggestions or recommendations to help a concerned caregiver make my bride's life easier are very welcome. Thanks to you all on your channel.
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As of late, I have been losing my balance quite frequently and have been "falling" into walls and door jambs. I try to describe to my wife that I feel "wobbly" and don't feel that I can move fluidly. I am to the point that I believe I need to begin occupational therapy.
I get out of my pickup and often fall back against it. The worst part of falling is embarrassment.
I can understand that. Just be sure you put both feet on the ground then stand up (I'm channeling my inner Melissa on what I think she would say).
Unfortunately, one of my my most debilitating PD symptoms is Freezing of gait (FOG). Not a lot is known about this condition and it really is taking a toll on me and my mental state. I really thought I had bad blood circulation that was causing it. I had an ultrasound done and was advised it appears to be the PD which is causing it. And I think a lot of people mistake restless leg syndrome (RLS) with FOG. I've experienced RLS an recall the unbearable urge to move my legs which I could. With FOG there is no movement and I just freeze and end up falling. There are techniques out there to assist. (i.e., counting, listening and singing music, moving arms) Also this is referred to as freezing & festinating gait.
Can you “challenge of tap or wake up” your sense of balance by pivoting every 15 steps while walking? So far I don’t fall but I was just diagnosed!
Most people don't wear their hearing aids to bed. trazadone may also cause it. nighttime is a bearcat.
Ears can have a lot to do with your equilibrium, I think?
I’ll just be standing , nxt thing u know, I’m stepping away like having “ sea legs”….