My Cholestasis Diagnosis | ICP Pregnancy
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- เผยแพร่เมื่อ 12 ก.ย. 2024
- Hi friends, I wanted to share my journey with Intrahepatic Cholestasis of Pregnancy, or ICP, because I didn't know anyone who had it and was super scared when I was diagnosed. If this video provides you with some new info or helps in anyway, I'd love to hear from you in the comments :) Thanks for watching!
Links mentioned:
www.icpcare.org
Facebook groups to join for support:
ICP Care / Itchy Moms: / icpcare
ICP Support / Beyond Birth (private group, need to request to join)
Obstetric Cholestasis Sufferers (private group, need to request to join)
I’m amazed at how we women Can know sometimes more than doctors.. I’ve have encountered some pretty bad ones that they do this check up on automatic and may miss so many important details- thank God you didn’t just “trust” but did your own research and care to share it with us . I’m awake at 3 am (haven’t been able to sleep at all and 50% is because of the intense itching - I’m calling my OBGYN in a few hours. Im 36 weeks we’ll see what she says.
May the Lord guide her and let my baby be born safe.
Thank you, Renee. I'm sorry to hear about your itching. It's such a scary time. Praying for you and your baby too. Hope all goes well with your doctor and they make smart decisions. ❤
I'm surprised how OBGYNs don't inform their patients of this as a potential threat... there is so much that isn't disclosed when it should be!
Me too! I can't believe it's not flagged as something to watch for.
Thank you for sharing your experience and raising awareness of ICP. Your video is such a good empowering reminder to be our own advocates - thank you!!
Thanks for watching and for your support ❤🙏😘
I was just diagnosed with ICP. I saw something online about itchy and I brought it up to my doctor. She did labs right away for me. I am only 21weeks at this time and I have been told I will be induced at 37weeks and start with weekly ultrasounds by 28weeks. I am also being put on medicine as well for it. (My Labs were only 20 so not very high but I guess still concerning).
Glad your doctor is getting you the monitoring you need!! Wishing you a smooth pregnancy and birth 🥰
Im 37 weeks and I’ve been itching for two days everywhere I’m up right now at 2am bc I am itchy on my feet and hands mainly it’s unbearable thank you ill be calling my OB in the morning to schedule for testing!
Oh man, the itching! Good for you for calling the OB. I hope you get some answers ASAP. Sending you good vibes for a happy and healthy baby and birth 🙏❤❤❤
37 weeks seems almost too late.. they induce you at 36-37w +0days if you have it...
This has been the scariest experience of my life. I am getting an ultrasound on my liver because my ALT levels are in the 500 range and AST is in the 200s. Bile acids are 52 which isn’t great but not terrible. My high risk OB told me that anything over 100 gets risky but she’s treating another lady whos bile acids are in the 250 range!
It really is so scary! I hope they're treating you well and quickly! How far along are you?
@@Mahsajoyce I am 29 weeks. Hopefully my results come back today on my liver ultrasound and it’s all good news. My ALT levels just recently dropped to the 500 range last week it was 714
@@kaitlynhutcheison6215 I'm glad your levels are dropping! Hang in there. It's scary but you're almost there mama
@@kaitlynhutcheison6215 Hey how you now? Hope everything went well with you
@@pla9046 no issues whatsoever after birth 💗
Wow never knew about this. Thanks for making this video.
Aww thank you for watching 🙏❤
I had cholestasis during my pregnancy and my doctor didn't help and acted like I was having psychotic breakdown. The itching started at 30 weeks and I went into preterm labor at 34 weeks. 😭
Oh my goodness. I'm sorry to hear! I hope you and baby are doing well... ❤️
Thank you for sharing your story - I am currently 38 weeks pregnant and have been itching for about 3 weeks. My AST and bile acid (they didn't test my ALT) came back normal, but they had me to test when I was about 12 hours fasted. Were your tests fasted or nonfasted? I'm seeing conflicting studies on whether the ICP testing should be done fasted or not.
Mine were non-fasted. You're 38 weeks, almost there mama!!
I have hade ICP drink my pregnancy with my son over 7 years ago.I live in Sweden and heard from my midwife it is normal,but it wasn't because I've hade it at 6 weeks.No one I knew had it so I was reading a lot about this on google.It tourned out that in my case when I stop eating a lot of khale and spinach the symptoms diminshed.Here in Sweden I didn't got any tests at all,and I can tell that it was hell, not just itching but it was more burning sensation and the one thing that helped me was lukewarm or cold shower and that was for a short time.Sorry for my English I rarely write in this lengauge.😅😅
Hi Justyna, thank you for sharing your experience. There is still so much we don't know and are learning about ICP. I'm glad your son is here and youre both healthy!
Thanks a lot
Thank you
❤❤❤🙏🙏🙏
i have been really itchy for the last month in a half and ive mentioned it twice 2 my ob and she just keeps giving me anti itch cream and doesnt test me for cholestasis. im currently 27 weeks pregnant and im terrified of having it. how can i push my ob 2 test me ?
Just tell her you think it's cholestasis and want to do Bloodwork! If she doesn't send you for blood work go to your family doctor. Definitely get tested asap! Keep pushing.
I'm in the same situation. I'm 35 weeks now. I have seen 2 different dermatologists. my entire body is itchy, my scalp is itchy. Also my npc and midwife. They gave me itching scream that's all. They also tested my thyroid it was fine. The problem is still here. Last week I asked my doc to test my bile acid and love function. He said yes. Just say you want the test done to be sure.
Hi i just get it tested by sgpt is 53 U/L sgot 31 U/L , current 23 weeks 1 day , any suggestions ? I dont have any intense itching , however sometimes 2 days in a week i feel itching plam for arror 10 to 15 seconds
Hi Cherry, I'd check with your doctor. Unfortunately I have no idea. Sending you love!
@@Mahsajoyce thank you dear
Only cure is doing c section as early as possible right?
Not necessarily. Depending on your levels, size of baby, etc. Definitely speak to your doc about it
I have done liver functional test during 24th week of pregnancy and results are
Bilirubin : 0.35
Bilirubin conjugated: 0.19
Bilirubin direct: 0.16
Sgpt:181
Sgot:95
Alkaline phosphatase: 171
Protein:6
Albumin: 3
Globulin: 3
A/g ratio:1
Pls tell me that my report is normal or abnormal and bile acids level : 9
Have you talked to you doctor about this? I wouldn't want to give you the wrong information and would really recommend that you discuss this with your doctor. Sending you lots of love and hope you have a healthy and happy baby ❤
Nobody can really tell you but your doctor . Follow up with them it’s important to ask!!
@@Mahsajoyce Doctor, prescribed ursocol 300 tab now bile acid level is 65