Hi Russel ..! Just subscribed to your channel , thanks for all the videos ..! I have also been experiencing muscle twitches , wanted to ask you if you started experiencing muscle twitches prior to feeling weakness or after ? Praying for you mate .. 🙏🙏
It was probably 6 months after the twitching started that I noticed that my leg was acting weird. However muscle twitching could mean a lot of things. They could just be benign
Hi Russel, I will be praying for you and your family! They think I may have ALS but because of the corona I can not get any testing. I work in the medical field, I am a respiratory therapist still working. I feel so completely helpless because time is ticking away and I’m getting weaker and more worn out everyday. I’ve even noticed muscle wasting in my left had and right thigh. Best of health to you!! I will be watching your journey!
Russ. Saw where you had a clean EMG the first time? I don’t understand how that is? And why they only did one side of your body? I just had a clean one after several weeks of muscle twitching all over my body. They did both my legs and my back and neck and my entire right arm and hand.
I honestly have no idea. I have had problems with my back. However as long as I lifted weights it was never an issue. Before I started having symptoms though I was lifting the most weight I ever had in my life. I did grow up around farming and crops. I don't know about any pesticide use. I don't ever remember the grasshoppers being dead. There was always so many grasshoppers. When it comes to toxic metals I'm not sure what was in the house I bought but I had just bought a house in 2015. After I was diagnosed we sold the house and I haven't been in a sense. one thing that is kind of strange though is I have always been allergic to metal. I have never been able to wear cheap jewelry cuz it will eat away at my skin.
@@TheDanguruss I'm sorry to hear that I am extremely upset with doctors. It seems like the scientist of the world are more useful than the doctors. Doctors are almost useless in my opinion. They are overpaid and act as if they are God's gift. Anyways I hope things get better for you. Much love!!
At this time I have not had any issues with the weight. My appetite is still really good. My arms and legs are getting smaller because I don't have any muscle anymore. I was very active before. Lifted weights, would run, and calisthenics.
Russell cowger - I started twitching 8 months ago after doing 30 minutes on the elliptical like I had done 1000 times before but this time, After I got off of the elliptical, my calves felt like “bags of worms” my twitching has been raging ever since and it is all over my body. I have no weakness... I’m still exercising. But my creatine phospho kinase -mm Was elevated an indication of muscle waiting ... I’ve gained about 15 pounds in the last 8 months even with all the twitching. I’m waiting on Nuero appointment. How long did it take you to experience your first clinical weakness from the time you first started fasiculations?
@@kimberlyhuffman376 It was about 6 months after the twitching started that I noticed something was wrong with my right leg. I was doing butt kicks and could not lift my right leg to kick my butt. Then about a month later I could not hold a flip flop on my right foot.
I don't have a video specifically about twitching. I do wear a tank top in a lot of my videos so that you can see the twitching. What would you like to know about the twitching I could make a video on it?
@@TheDanguruss hi I've seen the video now with the muscle twitch. was it like that from the beginning or was it very fine. I have muscle twitching since November 2017 it drives me crazy. do you feel it too? I also notice that my body is trembling. it would be great if you could make a video about the muscle twitching. I'm from Germany
Have you tried any homeopathics like maybe drinking bareroot or chewing on some? My heart just breaks for you brother. Keeping you in my prayers daily.
I have not tried bear root specifically. I have tried multiple supplements Mushrooms, I've done Navajo teas. Used to do cold therapy I still do breathing therapies every day.
@@TheDanguruss I've got some I'd like to send you if you're interested in trying it. It's know to heal a lot of illnesses. You can make a tea and drink it with some honey or sweetner that way or you can put a small piece in your cheek and gum.
It's also said to heal your lungs. That's what I'm using it for now during this covid 19. Or in general for my asthma & allergies. It helps me maybe it can help you.
He's dead! He did the assisted suicide, or death with dignity. He could still talk n breathe on his own. He committed suicide in my book, so you know He's not in heaven
Bro you have no fuckin idea wtf it's like to live with Als knowing you will never hold a woman again never wipe your own ass never get up and play with your kids . Sitting and breathing is not suicide . I am facing all of that being newly diagnosed.
Hi Russel ..! Just subscribed to your channel , thanks for all the videos ..! I have also been experiencing muscle twitches , wanted to ask you if you started experiencing muscle twitches prior to feeling weakness or after ? Praying for you mate .. 🙏🙏
It was probably 6 months after the twitching started that I noticed that my leg was acting weird. However muscle twitching could mean a lot of things. They could just be benign
Hi Russel, I will be praying for you and your family! They think I may have ALS but because of the corona I can not get any testing. I work in the medical field, I am a respiratory therapist still working. I feel so completely helpless because time is ticking away and I’m getting weaker and more worn out everyday. I’ve even noticed muscle wasting in my left had and right thigh. Best of health to you!! I will be watching your journey!
I hope you find answers soon.
Still waiting for more testing. But hay how about your
Trial!! Nice I have been following you, it sounds pretty good if you got the real stuff!
Blessings and prayers to you and your wife!! I’m all about the Lord and knowing no matter the outcome we can all see our loved ones in heaven!
@@Elizamcculloe I don't believe that I got the real stuff in the trial. I am still progressing at about the same rate.
Russ. Saw where you had a clean EMG the first time? I don’t understand how that is? And why they only did one side of your body? I just had a clean one after several weeks of muscle twitching all over my body. They did both my legs and my back and neck and my entire right arm and hand.
Have you looked into diet? Wheat,soy,dairy products can be bad for your gut if you have underlying allergies or gut problems.removing those may help
Used to eat really well before I got sick. Now trying to eat more fruits
@@TheDanguruss I hear ya bro, just a thought, my prayers are with you
I take diazepam for my stiff person syndrome. Have you tried that added to the baclofen?
Sorry for late response. I have not heard anything about that until now.
do you have any idea what could cause you this? any nerve injury? exposure to pesticides for a long time? toxic metals? etc...
I honestly have no idea. I have had problems with my back. However as long as I lifted weights it was never an issue. Before I started having symptoms though I was lifting the most weight I ever had in my life.
I did grow up around farming and crops. I don't know about any pesticide use. I don't ever remember the grasshoppers being dead. There was always so many grasshoppers.
When it comes to toxic metals I'm not sure what was in the house I bought but I had just bought a house in 2015. After I was diagnosed we sold the house and I haven't been in a sense. one thing that is kind of strange though is I have always been allergic to metal. I have never been able to wear cheap jewelry cuz it will eat away at my skin.
Was your first symptoms twitching or muscle weakness? Which one came first?
Twitching
@@TheDanguruss did the twitching come and go or did it just progressively get worse? And do you still twitch?
@@TheDanguruss and how long did the twitching go on before you noticed any other symptoms?
Twitching continued to get worse and 6 months later leg weakness. I still twitch and never stopped.
@@TheDanguruss I'm sorry to hear that I am extremely upset with doctors. It seems like the scientist of the world are more useful than the doctors. Doctors are almost useless in my opinion. They are overpaid and act as if they are God's gift. Anyways I hope things get better for you. Much love!!
Have you had a problem maintaining your weight? Are you losing lots of weight?
At this time I have not had any issues with the weight. My appetite is still really good. My arms and legs are getting smaller because I don't have any muscle anymore. I was very active before. Lifted weights, would run, and calisthenics.
Russell cowger - I started twitching 8 months ago after doing 30 minutes on the elliptical like I had done 1000 times before but this time, After I got off of the elliptical, my calves felt like “bags of worms” my twitching has been raging ever since and it is all over my body. I have no weakness... I’m still exercising. But my creatine phospho kinase -mm Was elevated an indication of muscle waiting ... I’ve gained about 15 pounds in the last 8 months even with all the twitching. I’m waiting on Nuero appointment. How long did it take you to experience your first clinical weakness from the time you first started fasiculations?
@@kimberlyhuffman376 It was about 6 months after the twitching started that I noticed something was wrong with my right leg. I was doing butt kicks and could not lift my right leg to kick my butt. Then about a month later I could not hold a flip flop on my right foot.
Russell cowger ok, I hate that you have ALS... and I pray you are able to halt your progression.
Have you a Video about your twitching
I don't have a video specifically about twitching. I do wear a tank top in a lot of my videos so that you can see the twitching. What would you like to know about the twitching I could make a video on it?
@@TheDanguruss hi I've seen the video now with the muscle twitch. was it like that from the beginning or was it very fine. I have muscle twitching since November 2017 it drives me crazy. do you feel it too? I also notice that my body is trembling. it would be great if you could make a video about the muscle twitching. I'm from Germany
Sorry for my bad english
How long have you the diagonas
@@sabrinam.3576 One year since diagnosis.
Have you tried any homeopathics like maybe drinking bareroot or chewing on some? My heart just breaks for you brother. Keeping you in my prayers daily.
I have not tried bear root specifically. I have tried multiple supplements Mushrooms, I've done Navajo teas. Used to do cold therapy I still do breathing therapies every day.
@@TheDanguruss I've got some I'd like to send you if you're interested in trying it. It's know to heal a lot of illnesses. You can make a tea and drink it with some honey or sweetner that way or you can put a small piece in your cheek and gum.
It's also said to heal your lungs. That's what I'm using it for now during this covid 19. Or in general for my asthma & allergies. It helps me maybe it can help you.
@@elizabethmirabal4695 I would be willing to try it.
He's dead! He did the assisted suicide, or death with dignity. He could still talk n breathe on his own. He committed suicide in my book, so you know He's not in heaven
Why even bother commenting.
Bro you have no fuckin idea wtf it's like to live with Als knowing you will never hold a woman again never wipe your own ass never get up and play with your kids . Sitting and breathing is not suicide . I am facing all of that being newly diagnosed.