It is very hard to try to explain what it's like. There have been many times I thought I'd just start telling people I had a stroke instead. Seems like that would be easier.
@@manikmultimedia I used to see news reports of people going through long covid and think that's close to what i'm going through. I was jealous when i saw them getting rehabilitation therapy and I couldn't even walk to leave the house at that point. I told my doctor at the time that I needed bodywide physical therapy. She told me she could order it for one body part. I just kinda got used to my doctor not having a clue. I told him what's causing all my issues but I don't think he really believes it. I rarely bring it up now.
@@lisasmith814 Luckily im not dependent on benzos anymore, but i do use them sporadically. Have been using some more these days due to the opioids not working. I can do like 240-320mg oxy in one go no problem. But yes, im going CT, with some help of clonidine etc.
Yes, be careful. They could also try to give you a longer taper with benzodiazepines. Like two weeks-then they will tell you there is no way you can still be having withdrawal symptoms
My Friend is in the same situation as you but there's a 3 month waiting list before he hears anything. The opioid treatment is about 2 weeks but when he asked about the Benzo treatment he got a blank stare. He's worried that they don't know what they're on about with the benzos. Keep us in the loop. And good luck!
You have touched on a huge problem. That there is no diagnosis for the most severe condition a human can endure! Ppl ask how are you today? WOW when the truth is.. I’am still in hell. We have to pretend all the time. I’m feeling worse than I did two years ago !! This is 24/7 HELL. Thank you Dan for all your videos and encouragement. ❤️🩹
It’s so difficult to explain to my people that I don’t feel like a human being. I feel I’m trapped inside and box that’s dull of feelings. My wife normally just tells me I don’t know what normal feels like anymore so I’m fine I just don’t know it. It’s so frustrating
It's a slow process that's for sure. Exercise has been really helpful recently. 1 1/2 off and I know in my gut that I will be stronger than I have ever been in my life. Time takes time keep fighting one day things will open up for you, but you have to believe it.
@@dustygatrell-ru7tg it gets better I couldn't even function over a year ago. I am coming up on 2 years and things are turning around. And you are so right there is nothing normal about the way this makes you feel words can't even describe it.
I no what u mean I also feel trapped I feel like a old wrinkle alien I can't go out any were I feel like everyone's staring at me there's got to be something a doctor can do besides give us more benzos wish u luck 🙏💜
Hi Dan, thank you for posting this. Self advocacy is a difficult situation, because sometimes people will look at me and wonder how a person of my stature, and socially, can be in such a bad state, as I am in describing to them. I can see the disbelief in their eyes. I can see their mind turning and you just need to suck it up apparently. I wish it was so easy. Lately it seems I am faking it till making it. That works but I sure am sick of it. Getting tired of having high anxiety and overstimulation as you mentioned. I was in a party last night for the Super Bowl, there was so much noise so many colors and lights that I had to dip out at halftime. I’m getting pretty sick of being sick. It seems to me that my recovery has so much stalled then I think about where I was even 60 days ago and I realize that I have come a long way from there. When I speak to my wife about what I’m going through she can only take so much. I lose her after a couple of descriptions. Anyway, thank you for putting up this video.
Having a person that understands you is life changing because if not you will drive yourself crazy because nobody understands. Trying to explain it is almost impossible to family members they will believe you for a while and then turn on you usually. It's a tough one and honestly, I put myself in this situation and I have to get myself out or stay on them like most people. I want the pain in a sick way because deep down I know how strong I am becoming. Dan you are awesome and it's a pleasure to have come into contact with you when I did. Like Dan said find that person for you that will help you heal. Bob BOb Bobarino
@@philosophicalfishing Started up an insanity workout every day for the past 2 weeks and I can tell if I make it through the workout my confidence grows, and I can almost feel my neurotransmitters naturally rebuilding. I have a goal to get rid of this benzo belly by end of June on my 2-year benzo free celebration. I have lost 10lbs so far. Building confidence, the natural way earning it. Also doing some fasting to try and heal my gut. Thanks for everything Dan I am not going to give up I want my true self back that was lost a long time ago. Healing for me and for nobody else.
Owh Dan, this video is so good. This is exactly how I feel at 16 weeks off benzo's. My brain is dying to just do darn life but when I go out and DO normal things, my horrible brain damaged symptoms ramp up, often worst than ever 🥺
When I first came back out to society, I told people that I had a brain injury. They would look at me like a brain injury? What do you mean by that? Then I would expand and say that I had been addicted to a drug by a doctor and I was off the drug now, but the withdrawal caused a brain injury to me. Even after explaining my addiction and withdrawal, you could see in their eyes that they had no idea what I was talking about. Dan brought up a great point. You don’t want anybody to know what this is because it is absolute hell.
We're all friends here. We all give you support. :) That's the beauty of the internet. Stay away from the nonsense. Isolation is a bitch and is a reason why people turn to these Pharmaceuticals in the first place...
Thank you for this video.Ive lost my friends, and family members. I am feeling damaged too. Been to so many doctors it’s ridiculous. I find that too much TV , over stimulates my mind, or too many people around me , affects my brain. I find the less l say the better… thanks for really saying the truth , about how others see us.
I have gotten so frustrated not having words for what I am going through. I appreciate people who try to associate with it. But, I honestly never feel like it compares to much. The symptoms def mimic other diagnoses. But, not having the words can be extremely painful. Thank you for shedding light on this. I’m still in the phase of not being able to express this. I continue to journal about this daily. So, I will have a reference for when I’m ready to put myself out into the public & walk with others through this. Keep on going!! You help so many of us!
You are an incredible person. Nobody should endure this and to ask ourselves everyday to fight takes more courage, strength, and perseverance than anything else on earth.
Yeah for one example. Remember when doctors said fibromyalgia was in people’s heads. Now they finally recognize it but don’t understand what causes it.
It's beyond infuriating hearing "it's in your head." Most Drs really do believe that they know your body better than you, and that is absurd. Everyone is different, yet they treat everyone the same. "You're just an addict, or crazy" (because you took their meds as prescribed) There's absolutely no point in trying to reason or argue with a Drs ego.
Im going through this right now this is a total nightmare I wish I never took Xanax I no exactly what your talking about I was wondering why am I so so sick everyday I can't leave my house I look so ugly got wrinkles red itchy eyes everyday my stomach is extended with purple spots also on my legs my vision is so bad blurry and double vision my health took a major toll from taking Xanax over 20years and other meds I'm very worried I'm not gonna return to myself again I'm so sickly I was thinking I have cancer or MS I don't look nothing like I used to my entire body has changed I also have a lot of digestive issues it's a lot to go through my family thinks knows something's wrong with me but they think I'm crazy saying it's from Xanax so I sent this video to my mother hopefully she will understand now i wish I can send u some pic thanks for talking about this your bringing awareness to phys meds thank you
I’m not sure if I have anhedonia, or DPDR, emotional blunting, but I feel as though I’m not me, I have chemical fear, sound lights most everything aggravates me, I’m soo scared I won’t heal i can’t watch tv, or listen to music because I don’t feel the motion of it, I was always a very loving, empathetic, giving person, I can’t feel those emotions anymore. What is it his, Dpdr, or anhedonia, or emotional blunting, and will I heal, I have 2 more meds to go.😢
What you described is very common. Many people report these same symptoms and I had them too. I’m so sorry you’re going through this right now. It will get better. ❤️🩹
Yeah its crazy man. One of the worst parts about all this is that its so unknown. Few people know aboit this. An its weird how some peoppe take benzos for a long time an stop an not have any problems. This guy i was in jail with took klonopin for a long time. An they took him off in jail an he didnt have any issues. He said he withdrawed for a week an was fine.
Have you ever seen that diet , or type of food on a particular day increases the symptoms? I am now 6 months benzo free, but experiencing very strange symptoms some days. Like mental nausea, heavy and floating feeling in mind ( not heavy head). Can a heavy meal cause these types of symptoms?
Antibiotics for me, my brain has been fried for 3 months and don’t know if I’ll ever pull out of this. Dp/DR, confusion, I feel high/drunk. Lights bother me, feel like my out of my body. Stinging/zap on my head. Had panic attacks and crazy emotional. Very scared. Feels like I’m in hell. I know this is a benzo channel but I don’t find anyone like this coming out of antibiotics but I can relate with the benzo community.
@@Waves353 I just can’t believe this is happening. I never would’ve thought Antibiotic’s can cause so much damage. I’m going on 4 months and still have all these symptoms. I’m losing all hope.
Hi, I am experiencing very strange and intense symptoms from the last 3 days, that I never heard about from anyone. I am feeling episodes of not recognising or knowing well my place, my family members, my wise mind is in total confusion. Today I felt like I have no brain ( my rational mind) at all. I am 6 months off xanax. It's very scary, like I am no where, no brain, total confusion, faded glimpses of place, people around. Why do I feel this way?
Were your pupils different and weird during withdrawal? I think pupils are very telling of this (temporary) brain injury. I'm 7 and half months off short term use; my pupils tell me my healing isn't finished even on my good days.
This might have something to do with something you’re speaking of. When I was going through withdrawal, secondary withdrawal, my eyes were flashing so to speak. I would have my eyes closed and it was if there was a strobe light going on and off right in front of my face. It was actually just a sunlight, and my eyes were doing this on their own. It’s gone now, however That took about five months to start after my acute withdrawal and ended six months after withdrawal started. I hope you’re doing OK.
What I’m trying to stress is that it does go away. Everything has a beginning and everything has an end. We are never stuck in a phase for a very long. Right now I’m going through a phase where I am suffering from intense exhaustion, and an overall sick feeling. I’m just waiting for it to end. I know it will just like all the rest of the phases.
@@jimferrill1790 I have eye flashes too, sometimes, not at all intense and very random. I related it to wd as soon as it started happening. However, my pupils are constantly weird and simply not my usual. Thank you for the kind words, your attitude is sound and grounded in reality. I'm doing very good compared to my acute; I can feel my self slowly sneaking back in where it belongs. I wish you short healing journey and safe returning home. ❤️
@@mirjanabilic108 I am just curious, are you looking in the mirror at your pupils? Because I wouldn’t know if mine are different. I am a man, and they generally don’t look in the mirror at their eyes. However, I could see if you were female and applying make up, you would see the difference in your pupils every day. I did find them I believe my peoples dilated because my eyes were extremely sensitive to light. I have my days now where they are as well, but not nearly as it was.
I don’t believe the drugs cause sleep apnea. It’s usually from an obstruction. I have had sleep apnea since i was a child and it is from the anatomy of my body
I don't even try. There's no way to explain. Maybe, say you've been "malpracticed upon." That might give people some idea. Even that probably falls short. That's why I try to pretend I'm ok. I know people know there's something wrong, though. Criminal..
One thing I forgot to mention in my comments was the fact it is extremely laborious to try to explain to someone who’s never been through this what it’s like. You’re at a loss for words because it just is that deep. You wouldn’t want anybody to know what you were talking about in essence. Another point I wanted to make was the fact that when I’m trying to describe how I’m feeling and what I went through, I can feel myself and hear myself complaining and whining. I’m a very good whiner. My caregiver once said, you are either an asshole or a crybaby. She was right.
Hi Dan. We spoke several weeks ago and I came away feeling that you are the most empathetic and sympathetic of the benzo coaches. When I watch your videos I can literally see the pain in your eyes from your own benzo journey to hell and back! How long did it take you to recover and resume a “mostly” functional life? I will be 48 month post taper from a one year use of Valium next month, and still have waves. I plan on reaching out to you in the next couple of weeks as your voice is calm and caring and I find I can dig down a little deeper to keep moving forward after listening to you.
It’s like standing on the edge of a cliff. Constant adrenaline dumps and feeling terrified for days and days with POTS. It feels like I went through a war…just shell-shocked, wide-eyed and unable to hold any conversation. So when will you be speaking on Capitol Hill? I would feel better if I saw someone publicly speak out. The problem is trying to do that with brain damage. I doubt BiG Pharma would allow that to happen.
It is very hard to try to explain what it's like. There have been many times I thought I'd just start telling people I had a stroke instead. Seems like that would be easier.
I’ve just started saying I have a brain injury.
You’re right. I’ve heard people say similar things because people understand physical disease much easier.
I often tell people I have a neurological injury combined with Long Covid. Never been diagnosed but COVID really messed me up.
@@manikmultimedia I used to see news reports of people going through long covid and think that's close to what i'm going through. I was jealous when i saw them getting rehabilitation therapy and I couldn't even walk to leave the house at that point. I told my doctor at the time that I needed bodywide physical therapy. She told me she could order it for one body part. I just kinda got used to my doctor not having a clue. I told him what's causing all my issues but I don't think he really believes it. I rarely bring it up now.
It's like going through hell. I am going to detox in 8 days from mainly opioids, but benzos and other drugs are also part of it. Wish me luck
Crikey good luck !!! Don't let them CT you off benzo's !!!
@@lisasmith814 Luckily im not dependent on benzos anymore, but i do use them sporadically. Have been using some more these days due to the opioids not working. I can do like 240-320mg oxy in one go no problem. But yes, im going CT, with some help of clonidine etc.
Yes, be careful. They could also try to give you a longer taper with benzodiazepines. Like two weeks-then they will tell you there is no way you can still be having withdrawal symptoms
Please feel free to keep us updated. We’re rooting for you. ✊🏻
My Friend is in the same situation as you but there's a 3 month waiting list before he hears anything. The opioid treatment is about 2 weeks but when he asked about the Benzo treatment he got a blank stare. He's worried that they don't know what they're on about with the benzos.
Keep us in the loop.
And good luck!
So true. There are no words to describe how I feel and I'm normally quite eloquent.
Right! I lost my capacity for word recall. Still have trouble with that from time to time.
You have touched on a huge problem. That there is no diagnosis for the most severe condition a human can endure! Ppl ask how are you today? WOW when the truth is.. I’am still in hell. We have to pretend all the time. I’m feeling worse than I did two years ago !! This is 24/7 HELL. Thank you Dan for all your videos and encouragement. ❤️🩹
🙏🏻🙏🏻
If this is what hell is like I don’t ever want to go there
It’s so difficult to explain to my people that I don’t feel like a human being. I feel I’m trapped inside and box that’s dull of feelings. My wife normally just tells me I don’t know what normal feels like anymore so I’m fine I just don’t know it. It’s so frustrating
It's a slow process that's for sure. Exercise has been really helpful recently. 1 1/2 off and I know in my gut that I will be stronger than I have ever been in my life. Time takes time keep fighting one day things will open up for you, but you have to believe it.
Aimt nothing Normal about the way this makes you feel.
@@dustygatrell-ru7tg it gets better I couldn't even function over a year ago. I am coming up on 2 years and things are turning around.
And you are so right there is nothing normal about the way this makes you feel words can't even describe it.
I no what u mean I also feel trapped I feel like a old wrinkle alien I can't go out any were I feel like everyone's staring at me there's got to be something a doctor can do besides give us more benzos wish u luck 🙏💜
I can so relate! I tapered, I’m 5 months off and am so thankful for my husband. He is my person 😊. Thank you for another great video Dan!!!
Love that he’s your support!
Yes to all of this. I want to send this to family but I can tell they're already tired of hearing about this 😢
I’m sorry- I know how that feels.
Hi Dan, thank you for posting this. Self advocacy is a difficult situation, because sometimes people will look at me and wonder how a person of my stature, and socially, can be in such a bad state, as I am in describing to them.
I can see the disbelief in their eyes. I can see their mind turning and you just need to suck it up apparently. I wish it was so easy. Lately it seems I am faking it till making it. That works but I sure am sick of it. Getting tired of having high anxiety and overstimulation as you mentioned. I was in a party last night for the Super Bowl, there was so much noise so many colors and lights that I had to dip out at halftime.
I’m getting pretty sick of being sick. It seems to me that my recovery has so much stalled then I think about where I was even 60 days ago and I realize that I have come a long way from there.
When I speak to my wife about what I’m going through she can only take so much. I lose her after a couple of descriptions.
Anyway, thank you for putting up this video.
Having a person that understands you is life changing because if not you will drive yourself crazy because nobody understands. Trying to explain it is almost impossible to family members they will believe you for a while and then turn on you usually. It's a tough one and honestly, I put myself in this situation and I have to get myself out or stay on them like most people. I want the pain in a sick way because deep down I know how strong I am becoming. Dan you are awesome and it's a pleasure to have come into contact with you when I did. Like Dan said find that person for you that will help you heal.
Bob BOb Bobarino
🙏🏻🙏🏻 yes. We’re not alone.
@@philosophicalfishing Started up an insanity workout every day for the past 2 weeks and I can tell if I make it through the workout my confidence grows, and I can almost feel my neurotransmitters naturally rebuilding. I have a goal to get rid of this benzo belly by end of June on my 2-year benzo free celebration. I have lost 10lbs so far. Building confidence, the natural way earning it. Also doing some fasting to try and heal my gut. Thanks for everything Dan I am not going to give up I want my true self back that was lost a long time ago. Healing for me and for nobody else.
@@bobbobarino6213 I love it! Keep going, one day at a time.
@@philosophicalfishing Consistently getting better is a huge goal or routines and not 0 to 100 then burnout. I want to get there and maintain myself.
Owh Dan, this video is so good. This is exactly how I feel at 16 weeks off benzo's. My brain is dying to just do darn life but when I go out and DO normal things, my horrible brain damaged symptoms ramp up, often worst than ever 🥺
You’re going to feel so good when this is all over, I know it! ❤️🩹
@@philosophicalfishing thanks Dan. I just can't wait for this to be over. You've done an amazing job ♥️
When I first came back out to society, I told people that I had a brain injury. They would look at me like a brain injury? What do you mean by that? Then I would expand and say that I had been addicted to a drug by a doctor and I was off the drug now, but the withdrawal caused a brain injury to me.
Even after explaining my addiction and withdrawal, you could see in their eyes that they had no idea what I was talking about. Dan brought up a great point. You don’t want anybody to know what this is because it is absolute hell.
I’ve tried to explain it the same as you described and people look at you as if you’re lying or you make no sense.
We're all friends here. We all give you support. :) That's the beauty of the internet. Stay away from the nonsense. Isolation is a bitch and is a reason why people turn to these Pharmaceuticals in the first place...
Thank you for this video.Ive lost my friends, and family members. I am feeling damaged too.
Been to so many doctors it’s ridiculous. I find that too much TV , over stimulates my mind, or too many people around me , affects my brain. I find the less l say the better… thanks for really saying the truth , about how others see us.
I feel you. And I’m sorry you’re dealing with this. I had many days where I just sat in almost near silence because everything felt too overwhelming.
I have gotten so frustrated not having words for what I am going through. I appreciate people who try to associate with it. But, I honestly never feel like it compares to much. The symptoms def mimic other diagnoses. But, not having the words can be extremely painful. Thank you for shedding light on this. I’m still in the phase of not being able to express this. I continue to journal about this daily. So, I will have a reference for when I’m ready to put myself out into the public & walk with others through this. Keep on going!! You help so many of us!
You are an incredible person. Nobody should endure this and to ask ourselves everyday to fight takes more courage, strength, and perseverance than anything else on earth.
100% spot on
🙏🏻✌🏻
Yeah for one example. Remember when doctors said fibromyalgia was in people’s heads. Now they finally recognize it but don’t understand what causes it.
Good point!
Parasites
Very well said Dan, great 👍 video. 😊
Thank you so much 😀
Thanks
Thank you!🙏🏻
Happy Superbowl day, stay strong everyone ❤
It's beyond infuriating hearing "it's in your head." Most Drs really do believe that they know your body better than you, and that is absurd. Everyone is different, yet they treat everyone the same. "You're just an addict, or crazy" (because you took their meds as prescribed) There's absolutely no point in trying to reason or argue with a Drs ego.
Yes, you’re absolutely right
Im going through this right now this is a total nightmare I wish I never took Xanax I no exactly what your talking about I was wondering why am I so so sick everyday I can't leave my house I look so ugly got wrinkles red itchy eyes everyday my stomach is extended with purple spots also on my legs my vision is so bad blurry and double vision my health took a major toll from taking Xanax over 20years and other meds I'm very worried I'm not gonna return to myself again I'm so sickly I was thinking I have cancer or MS I don't look nothing like I used to my entire body has changed I also have a lot of digestive issues it's a lot to go through my family thinks knows something's wrong with me but they think I'm crazy saying it's from Xanax so I sent this video to my mother hopefully she will understand now i wish I can send u some pic thanks for talking about this your bringing awareness to phys meds thank you
For me it became how do I tell people about something I had never felt before. We need new words for some of this hell.
I agree with you. Maybe another language
I’m not sure if I have anhedonia, or DPDR, emotional blunting, but I feel as though I’m not me, I have chemical fear, sound lights most everything aggravates me, I’m soo scared I won’t heal i can’t watch tv, or listen to music because I don’t feel the motion of it, I was always a very loving, empathetic, giving person, I can’t feel those emotions anymore. What is it his, Dpdr, or anhedonia, or emotional blunting, and will I heal, I have 2 more meds to go.😢
What you described is very common. Many people report these same symptoms and I had them too. I’m so sorry you’re going through this right now. It will get better. ❤️🩹
This dpdr never goes my head is numb its horrible its 34 months off k qnd i came off effexor too. Will it get better im numb
There is a malfunction in the "Comments." I can't see most of them.
Yeah its crazy man. One of the worst parts about all this is that its so unknown. Few people know aboit this. An its weird how some peoppe take benzos for a long time an stop an not have any problems. This guy i was in jail with took klonopin for a long time. An they took him off in jail an he didnt have any issues. He said he withdrawed for a week an was fine.
Crazy, you’re right. Just goes to show how different we all I I suppose.
Have you ever seen that diet , or type of food on a particular day increases the symptoms?
I am now 6 months benzo free, but experiencing very strange symptoms some days. Like mental nausea, heavy and floating feeling in mind ( not heavy head).
Can a heavy meal cause these types of symptoms?
Yes, a heavy meal would definitely do that to me early on.
@@philosophicalfishing thanks 🙏, it's really helpful!
Antibiotics for me, my brain has been fried for 3 months and don’t know if I’ll ever pull out of this. Dp/DR, confusion, I feel high/drunk. Lights bother me, feel like my out of my body. Stinging/zap on my head. Had panic attacks and crazy emotional. Very scared. Feels like I’m in hell. I know this is a benzo channel but I don’t find anyone like this coming out of antibiotics but I can relate with the benzo community.
Antibiotics or any other drug, for that matter, can absolutely do the same things to people. Particularly, fluroquinolones.
Injury is injury. I know of a woman harmed from flagyl
@@Waves353 I just can’t believe this is happening. I never would’ve thought Antibiotic’s can cause so much damage. I’m going on 4 months and still have all these symptoms. I’m losing all hope.
@@111585sandmanI understand I really do. Please never lose hope
I have said to imagine the worst hangover you’ve ever had. Every day for years!
Damn! I’ve never heard that before. Really good way to describe it.
My biggest problem is trying to get off Benzos because I have severe anxiety and panic attacks
I don't know how to explain it
Hi, I am experiencing very strange and intense symptoms from the last 3 days, that I never heard about from anyone. I am feeling episodes of not recognising or knowing well my place, my family members, my wise mind is in total confusion.
Today I felt like I have no brain ( my rational mind) at all.
I am 6 months off xanax. It's very scary, like I am no where, no brain, total confusion, faded glimpses of place, people around. Why do I feel this way?
Were your pupils different and weird during withdrawal? I think pupils are very telling of this (temporary) brain injury.
I'm 7 and half months off short term use; my pupils tell me my healing isn't finished even on my good days.
Yes, I had pupil issues and eye problems. I agree it’s indicative of neurological injury.
This might have something to do with something you’re speaking of. When I was going through withdrawal, secondary withdrawal, my eyes were flashing so to speak. I would have my eyes closed and it was if there was a strobe light going on and off right in front of my face. It was actually just a sunlight, and my eyes were doing this on their own. It’s gone now, however That took about five months to start after my acute withdrawal and ended six months after withdrawal started. I hope you’re doing OK.
What I’m trying to stress is that it does go away. Everything has a beginning and everything has an end. We are never stuck in a phase for a very long. Right now I’m going through a phase where I am suffering from intense exhaustion, and an overall sick feeling. I’m just waiting for it to end. I know it will just like all the rest of the phases.
@@jimferrill1790 I have eye flashes too, sometimes, not at all intense and very random. I related it to wd as soon as it started happening. However, my pupils are constantly weird and simply not my usual.
Thank you for the kind words, your attitude is sound and grounded in reality.
I'm doing very good compared to my acute; I can feel my self slowly sneaking back in where it belongs.
I wish you short healing journey and safe returning home. ❤️
@@mirjanabilic108 I am just curious, are you looking in the mirror at your pupils? Because I wouldn’t know if mine are different. I am a man, and they generally don’t look in the mirror at their eyes. However, I could see if you were female and applying make up, you would see the difference in your pupils every day.
I did find them I believe my peoples dilated because my eyes were extremely sensitive to light. I have my days now where they are as well, but not nearly as it was.
Dan did you have sleep apnea too?? I just got diagnosed and I was wondering if the tranquilizers made us have an apnea.
I’ve never done a sleep study but maybe should? My dad had it and it’s possible that these drugs would do this to us, I suspect.
@@philosophicalfishing that's what I was thinking.
I don’t believe the drugs cause sleep apnea. It’s usually from an obstruction. I have had sleep apnea since i was a child and it is from the anatomy of my body
I don't even try. There's no way to explain. Maybe, say you've been "malpracticed upon." That might give people some idea. Even that probably falls short. That's why I try to pretend I'm ok. I know people know there's something wrong, though. Criminal..
Dan would you have horrible irritability, like you just can’t tolerate any stress. I feel so bad sometimes that I can’t handle anything.
Yeah, I absolutely did. I had a very short fuse for quite a long time. It’s as if all the natural calming chemicals were gone.
@@philosophicalfishing thanks Dan ❤️
One thing I forgot to mention in my comments was the fact it is extremely laborious to try to explain to someone who’s never been through this what it’s like. You’re at a loss for words because it just is that deep. You wouldn’t want anybody to know what you were talking about in essence. Another point I wanted to make was the fact that when I’m trying to describe how I’m feeling and what I went through, I can feel myself and hear myself complaining and whining. I’m a very good whiner. My caregiver once said, you are either an asshole or a crybaby. She was right.
No, you're Not! Ignore that person! Fire her!
@@incognito595 Thank you.
Did you mention you had anhedonia. Excruciating.
I have talked about that in previous videos. Yes, it’s horrid. I didn’t have it as badly as others I’ve spoken with but I know what it feels like.
keep degenerating. totally bedridden and hallucinating non stop 24/7, eyes keep shutting. cant move and just waiting to die. why it kepy worsenint
Tell the truth about the parasitic infections.
What about them?
Hi Dan. We spoke several weeks ago and I came away feeling that you are the most empathetic and sympathetic of the benzo coaches. When I watch your videos I can literally see the pain in your eyes from your own benzo journey to hell and back! How long did it take you to recover and resume a “mostly” functional life? I will be 48 month post taper from a one year use of Valium next month, and still have waves. I plan on reaching out to you in the next couple of weeks as your voice is calm and caring and I find I can dig down a little deeper to keep moving forward after listening to you.
Hi Bonnie! Great to hear from you and thank you for the kind words. I regained almost all my functioning by year 5 with lots of healing along the way.
It’s like standing on the edge of a cliff. Constant adrenaline dumps and feeling terrified for days and days with POTS. It feels like I went through a war…just shell-shocked, wide-eyed and unable to hold any conversation. So when will you be speaking on Capitol Hill? I would feel better if I saw someone publicly speak out. The problem is trying to do that with brain damage. I doubt BiG Pharma would allow that to happen.
You described it as well as anyone I’ve heard described it.
Thanks