Juli, you are an inspiration! It was emotional and amazing to hear your story and the message you send. I'm sure there are others with CMS and other disabilities who are grateful that you made this video. It is so important for people to understand that not every disability is visible. Your video will inspire others to lead with compassion and kindness. Thank you for sharing your story so openly. I wish you great success at college! (PS Ann Gregory shared this video with the staff at New Paltz Schools where I work).
Wow i can totally relate to each and every phase in this video my mom used to cry when i was in my worst condition i have mg from last 2.5 years now and before i used to cry and was not able to handle myself with myasthenia because every teen around me was having fun hanging out with friends and i was just layin in my bed thinking "why me?".but when I saw people joking on me or throwing weird expressions on how sad my smile is that thing broke me into tears but somehow i recovered and now im here i can walk,talk,sometimes smile,chew,stand/hold my hands up and what not.One thing i learned from this disease is "never give up" whatever happens we should never give up we are fighters/warriors not survivors we have mg but not mg have us.girl you are really strong i can see you are not able to talk and you are too weak now but better thn before you have to fight and make urself mg freee believe in miracles,belive in "YOU".Anyway you are blessed that you have good friends mine are just mean and selfish.wish you all the luck and love to youu❤️🌼hope you defeat mg this year only🌠
Thanks for making this film. I have CMS its horrific I hate it so much. Who is the person who gave it a thumbs down. Seriously. Good luck for the future, its hard to work out what that will be exactly I keep getting scared by things I see.
I understand how you feel. I know every day is a battle but it’s worth it to get up every morning and keep fighting & trying to stay positive, just like Brandon said.
Hi Juliana! This is such a beautiful documentary about your life. I was just talking with my boyfriend about the Webkinz raffle we did with Marissa back in elementary school. I looked your name up to see how you’re doing and my mom and boyfriend and I found this video and watched it and it definitely made us teary eyed. You are so beautiful and incredible and I would love to visit you sometime!! ❤❤
Thank you so much for making this film, my 8 month old was diagnosed at 6 weeks old and I’ve felt lost and scared for his future ever since. This was so educational 🥺❤️
I’m sorry about your sons diagnosis 😔But he is going to be stronger than you ever imaged. Have you joined the Facebook group? I find a lot of comfort and support there xo
Thank you all for your kind words ❤️ I have doing really well and it’s been nice to reread all your comments from last year !
Juliana has been such a great example of the human spirit. She and her family are proof of the goodness in our world!!!!
You're an inspiring warrior Julianna. Keep up the good work. God bless you and your loved ones.
Thank you for sharing this powerful and moving story about such an inspiring young woman. ❤️Juliana! Excellent job on the video!
Beautiful video. Strong young lady! Great job Brandon.
This is such a hearth warming lesson of life, thanks for sharing and giving us a new perspective of living.
All I can say is WOW...she's such an amazing young woman.
Juli, you are an inspiration! It was emotional and amazing to hear your story and the message you send. I'm sure there are others with CMS and other disabilities who are grateful that you made this video. It is so important for people to understand that not every disability is visible. Your video will inspire others to lead with compassion and kindness. Thank you for sharing your story so openly. I wish you great success at college! (PS Ann Gregory shared this video with the staff at New Paltz Schools where I work).
Wow i can totally relate to each and every phase in this video my mom used to cry when i was in my worst condition i have mg from last 2.5 years now and before i used to cry and was not able to handle myself with myasthenia because every teen around me was having fun hanging out with friends and i was just layin in my bed thinking "why me?".but when I saw people joking on me or throwing weird expressions on how sad my smile is that thing broke me into tears but somehow i recovered and now im here i can walk,talk,sometimes smile,chew,stand/hold my hands up and what not.One thing i learned from this disease is "never give up" whatever happens we should never give up we are fighters/warriors not survivors we have mg but not mg have us.girl you are really strong i can see you are not able to talk and you are too weak now but better thn before you have to fight and make urself mg freee believe in miracles,belive in "YOU".Anyway you are blessed that you have good friends mine are just mean and selfish.wish you all the luck and love to youu❤️🌼hope you defeat mg this year only🌠
Thanks for making this film. I have CMS its horrific I hate it so much. Who is the person who gave it a thumbs down. Seriously.
Good luck for the future, its hard to work out what that will be exactly I keep getting scared by things I see.
Never give up. Always keep fighting and stay strong. Stay positive!
I understand how you feel. I know every day is a battle but it’s worth it to get up every morning and keep fighting & trying to stay positive, just like Brandon said.
Awesome!
Amazing girl, such and inspiration
Hi Juliana! This is such a beautiful documentary about your life. I was just talking with my boyfriend about the Webkinz raffle we did with Marissa back in elementary school. I looked your name up to see how you’re doing and my mom and boyfriend and I found this video and watched it and it definitely made us teary eyed. You are so beautiful and incredible and I would love to visit you sometime!! ❤❤
You are so beautiful and truly an inspiration. I have something similar and my friends made everything so much better too! Lots of love to you!
Thank you so much for making this film, my 8 month old was diagnosed at 6 weeks old and I’ve felt lost and scared for his future ever since. This was so educational 🥺❤️
I’m sorry about your sons diagnosis 😔But he is going to be stronger than you ever imaged. Have you joined the Facebook group? I find a lot of comfort and support there xo
@@Juli-drc I have, it’s been a really great and supportive x
❤Juliana keep up the great fight and enjoy life ❤