This video is so important. Nothing about weight gain was ever mentioned by my care team, not faulting them for this, but it needs to be addressed. The part about keeping active and increasing protein intake is so extremely important. Thank you Dr. Griggs.
Thanks for this video. I was ER positive and am on tamoxifen, which has caused 10-15 lb gain. I’ve been told time and time again to be grateful that I’m alive. But I’ve tried everything to lose the weight. I’ve come out cancer with someone else’s body. Would love more guidance.
Was overweight for over 20 years before my BC diagnosis, was "keto" with alcohol, lots of animal fat, processed meat and fat dairy for 3 years before the diagnosis too. When diagnosed, immediately started working with an onco-psychologist-nutritionist and researching the subject of BC in various sources. Completely removed alcohol for good, processed food, dairy, introduced intermittent fasting 18:6, which I follow on most days till now because it makes me feel great and enjoy my two meals during my eating window. Significantly reduced animal fat and protein and most of my keto/low carb food is now non-starchy vegetables, whole gluten free seeds (millet and buckwheat), preference to fish and little meat, green tea and water. No snacking as it raises insulin levels and is bad for you. I exercise 4-5 times per week, including running, swimming and weight lifting. I was on tamoxifen for 3 months before my single mastectomy in November 2022, afterwards AI (letrozole), abemaciclib, Enantone for 2 years till December 2024, now just letrozole for another 3 years. From the date of diagnosis in mid August 2022 to the mastectomy in November 2022 I lost 10 kg, then another 15 by summer 2023, then another 3 till now because I need to keep my running weight. In my case, once my health became the top priority and I introduced changes to my nutrition, lifestyle, exercise and daily fasting, the weight just fell off very quickly regardless of the medication and treatment. It also greatly supported my treatment, general well being and quality of life. While I still need to improve a few things about my nutrition, the current status is good for me and now I know how to manage my weight, apart from other things, medication or not. Health is my top priority now.
Thank you so much for sharing your experience. We're hoping others in this comment thread read about ways other people have been successful in taking the absolute best care of themselves.
I've been taking Anastrazole since September and so far, no weight gain. In fact, I lost thirteen pounds just having my mastectomy. I was a DD cup so losing my breasts took thirteen pounds. I'm back to work now so I think that helps a lot. I was told to eat a lot of protein before and after my surgery, which I did. Like I said on another video, I think women need to be told that their worth and value isn't tied to their bodies. Stand strong, sisters!
What a powerful message, thank you for sharing this! It’s true, our worth is so much more than physical appearances. It sounds like you’re focusing on strength and self-worth, which is so inspiring.
Thanks for the important information. I'm on tamoxifen and only gained a few kilos.. I lost a lot of weight 7 years ago and was scared about the weight gain. However, I watch my diet carefully and weight train and do some hitt training. I make sure I get enough protein as well.. 😊
It’s fantastic that you’ve found a way to manage weight gain while on tamoxifen! Watching your diet, weight training, and incorporating HIIT is such a solid approach. Protein is key, and it sounds like you’re on top of it all!
I’m in this very issue right up to my nose. My weight stayed steady all through 18 rounds of chemo and 20 rounds of radiation, but after all that was over and I started on this medication, it’s like an unwelcome visitor showed up on my gut and my clothing doesn’t fit and I can’t stand to look in the mirror. I don’t know how to dress for this, and all the things I have been able to do all my life to drop a few pounds are not working. It’s horrifying. Plus, you’re right, the sleeping is a huge issue and I don’t want to take medication to sleep but at this point I don’t see any way around it. I didn’t go to an event today because I couldn’t figure out what to wear in time, and just gave up. I don’t think of myself as all that weight conscious but I was wrong. I do NOT want to look like this! Could you talk about use of weight loss drugs in this situation?
Same as you. I just started compounded tirzepatide two weeks ago after my oncologist encouraged it. I can’t believe how much different I feel after just two weeks. I’m on tamoxifen and the fatigue has been awful, I already have more energy and feel less anxiety, weird to say but I feel more like myself?? I’ve lost 8 lbs in two weeks, when before I could barely lose 1-2 lbs in two weeks. I would encourage you to talk to your doctor about it. I wish I had done it sooner!!
Thank you for sharing your experience, it’s clear how much this is impacting your daily life, and it’s absolutely valid to feel the way you do. Weight loss drugs may be slightly less effective in people on the aromatase inhibitors. We don't yet have data in people on tamoxifen. That said, it’s worth discussing with your oncologist or an endocrinologist to see if there’s a safe and effective option for you.
@ I did mention it to my oncologist but my BMI is too low to qualify for weight loss drugs. It’s ok, I really don’t need more side effects to deal with. It’s just frustrating to be experiencing menopause on an extreme level with nothing that can be done.
Great content! I just had week 8 of Chemotherapy. I have focused on nutrient-dense foods (many are lower in calories), supplements and Floradix -- I am down 10 lbs happily, not trying o lose weight, but I was already overweight when I began treatment. I am almost 60 years of age and have found that 1 scoop of pasture raised collagen (20g of protein) in my morning hot beverage (organic coffee or tea) has helped my bloodwork stay above average (per my Oncologist). Acupuncture also has helped with nausea & steroid side effects. The collagen shortcut helps make it easier to consume 85g of protein daily - with another 20g in the form of plant based protein (Orgain)…the remaining 45g I do my best to fit into 2 meals daily. And alllll the organic grass fed butter I want…on organic 5 ingredient whole grain sourdough bread.
Keeping your bloodwork strong with nutrient-dense foods and collagen is a smart strategy. Acupuncture for nausea and steroid side effects is another great tip, thank you for sharing! For other people watching, we can't absorb whole collagen into our bloodstream. The collagen, like any large protein, is broken down into small fragments before absorption. Thank you for your positive feedback and being part of our Yerbba community!
Less movement for me. I can’t seem to get my full energy back even a year after treatment(14 months of immunotherapy and mastectomy). Your advice was very helpful. Than you.
It’s tough when energy feels so out of reach, especially when you’re doing your best. It sounds like you’re on the right track, and even small steps can build up over time. We're glad you found the video helpful. You had a lot of treatment! Wishing you continued recovery.
The ONLY thing that has started to make the numbers go back down on the scale after surgical menopause has been a ketogenic diet! I struggled for two years, changed to keto, and my joints have felt better and my weight is going down
before my cancer diagnosis, I believed the 'Hollywood cancer' stereotype of an anorexic looking patient applied to every cancer patient. but although i lost 10 lbs during chemo, I have gained it all back now and am seeing that the long term meds may actually cause weight gain soyhx for talking about this very important. please talk more about weight and cancer. ty
Thank you for sharing this! That “Hollywood” image can be so misleading. Medications, treatment, and recovery can all play a huge role in weight changes.
It’s definitely a frustrating surprise for many. We're glad this video offered some clarity. It’s a tough challenge to face, but knowing you’re not alone in this can help make it feel a little less isolating. We hope some of the comments shared by others will be helpful! Make sure to subscribe for more insights and support as you navigate this journey, the Yerbba community is here for you.
I had her2 positive breast cancer now I'm on Exemestane and during chemotherapy lost 4 Stone in weight, im careful with what i eat now ,mainly high fibre diet and no Alcohol been over 2 years since I started treatment and thankfully haven't gained any weight so it is possible to lose weight if you have gained
Sticking to a high-fiber diet and cutting alcohol are powerful steps, not just for weight management but for overall health during treatment. Thanks for sharing your experience.
My one comment. After a mastectomy following roughly 7 months of chemotherapy and Radiotherapy therapy, I was beginning to feel a lot better. Then my GP told me that I was suffering from Hypothyroidism and prescribed Levothyroxine.....the dose gradually increasing to now 125 mcg per day. I'm developing a podgy spare tyre around my midriff...but still have almost no appetite. I am very tired all the time. Is there a connection between the breast cancer and the low thyroid activity? I would love to know? 🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧
Levo did not work for me. Switching to Unithroid and Liothyronine together worked better. No generic version of Unithroid should be substituted--at least in my case.
Thanks for sharing your story. The connection between thyroid disease and breast cancer has been studied extensively. It does not appear that there is a causal relationship but rather that both are common conditions and that people with breast cancer are more likely to be diagnosed with thyroid disease because they are seen by doctors more often and have more tests than people without breast cancer. Wishing you the best.
When I was diagnosed in 2016 my oncologist informed me that there is a big chance that I will gain weight. I did at 20 lbs. At first I was given Tamoxifen and now I am on Letrozole.But I continued with my exercise regimen. It was tough losing the weight. I have lost some but I am still overweight. Now I mind what I eat, walk at least 30 min a day for five days and keep a positive outlook in my cancer journey. Crossing my fingers that I will soon lose all of the extra weight.
Losing weight during treatment is tough, and it’s amazing that you’ve stuck with your exercise regimen and mindful eating. Even though it’s a challenge, those 30-minute walks and your positive outlook will keep paying off. The fact that you’re making progress is a testament to your resilience. You’re doing great, and crossing fingers with you for even more success ahead!
I gained w3ight because during a year of treatment i was so much less active than i was before. Now, breastless and resuming regular exercise i am getting back to my regular size. My stomach gets bloated daily for no apparent reason.😢..plus menopause and sleeplessness....i dont know. I just know i have to exercise daily. I wont get slim and lean...but i feel better mentally.
I have had rt breast ER+,PR+ DCIS in 2008. Went through lumpectomy and lymph node clearance, radiation followed by tamoxiphen (5 years) and aromatase inhibitors (also 5 years). In 2022 I was diagnosed with TNBC and followed up with mastectomy of LEFT breast and more lymph node clearance I had to stop chemo paclitaxel, carboplaten, as it was so radical and was literally attacking my immunity and bone marrow. Long story , sorry. I have gained 10 kilograms and along with severe lymphodema I still have the extreme fatigue. My question is two fold. How do I begin to recover? Walking is tiring and I gain no joy from it. Sunshine, even short exposure is painful and I am sick of being sick and tired. The worst is the feeling that this is not the end. The diagnosis of TNBC after 16 years is not a great experience.
First, let’s acknowledge how hard this has been for you-it’s not just a physical battle but an emotional marathon. Starting recovery after such a long and intense treatment process is daunting. Try to set small, achievable goals: a short walk, a few minutes of sunshine, or a gentle stretch. If walking feels like a chore, what about seated yoga or deep breathing exercises? Also, don’t underestimate the power of a support group to help process that “what if” fear. You’ve been through so much, and even small steps count toward reclaiming your energy and joy.
i have been a vegitarian for 30 plus years. I was too tired to eat for most of my chemo. I still gained 18 pounds eating very little. My holistic doctor suggested that i go gluten and dairy free which i did and lost 10 pounds in two years. I have increased my exercise , steam room regularly and soak in the hot tub to relax. Where else can I go?
Thanks for this one! I'm struggling with weight gain and muscle loss. Not giving up bc I know if I don't work at it my mobility will suffer. It's not a question of body image at this point. I'm just trying to get/stay stronger to maintain a good quality of life. I'll be honest.. at 62 I'm feeling like my mom did at 80. Distressing but I just take one day at a time. I try to choose fruit instead of a cookie and I add more vegetables to my cooking. I've added a small amount of whey protein once a day....sometimes every other day. Using resistance bands at my desk so I can lift my granddaughter!! Also stand up and sit down as many times as I can while making a cup of coffee etc. I feel like taking vitamin D3 has helped a little bit with joint pain. I have no medical basis for that. It just seems like when I ran out I hurt more. I think it helps to keep track of what you eat and how you feel to see if certain foods might make you feel bad. For me it seems like too much sugar and salt make my knees hurt. We don't eat out much anymore bc restaurant food makes me feel bad (even though I love it). Good luck to anyone going through this. Don't give up. I'm not!
It’s clear you’re doing everything you can to maintain strength and mobility. Adding small, consistent changes like you’re doing; resistance bands, mindful eating, and even vitamin D, can make a big difference over time. Keeping track of how certain foods make you feel is such a good tip! Every little step counts, and your determination is what matters most. Thanks for sharing your experience and being part of our Yerbba community.
Some people made me feel horrible about the weight gain. I heard they had never seen anyone gain weight that had cancer. 😢 estrogen based cancer and menopausal
Those comments do not define you and are likely from people unhappy with themselves. It's amazing how many people think that it's okay to comment on other people's bodies (especially women). Weight gain during cancer treatment is incredibly common, especially with estrogen-driven cancers and menopause in the mix. It’s not your fault, and anyone who says otherwise doesn’t understand the complexity of what you’re going through. Focus on what makes you feel strong and supported.
Saunas can sometimes cause issues with circulation or swelling after radiation, but it depends on your unique situation. We'd recommend asking your oncologist or radiation oncologist, they can provide guidance based on your recovery and any lingering side effects. Better safe than sorry!
Question for hopefully a future video: I could swear I heard you say in another video I can’t find that obesity is a factor for breast cancer in n the population, but not in the individual, or something like that. If that’s roughly true (I probably messed up the description), can you explain that in a video? I am obese and was before I got cancer. One person in my family was stern with me after diagnosis about how obesity kills. I have been so upset for months and months that I caused my cancer with obesity and feel self conscious that all my family and friends believe that. I should note I have other risk factors - I had my first period before age 12, developed breasts at age 9 and never was pregnant. Can you talk about the guilt some women have over being fat and getting cancer and if there’s another way to frame our bodies and our cancer? If it helps, I have Er Pr +, HER- IBC.
I am 5 ft tall and 110 lbs. I clearly did not get breast cancer because I was obese. I also eat less sugar than many people. Obesity may contribute to cancer, but there is more going on than that. There are many obese people walking around who don't have cancer. I also have two relatives who had fantastic diets and were not over weight, and they were diagnosed with cancer. One was a Seventh Day Adventist who ate mostly vegetarian, lightly-processed food! We don't know the link between cancer and obesity. You could have been fairly slender and still gotten cancer. I can testify to that.
You did not mess up. What we meant is that we cannot say to a given person that "x" (whatever it is) caused their breast cancer. Remember that half of the people with breast cancer have absolutely no risk factors. The shame that society places on people who are fat or overweight is not helpful and in fact makes people more isolated. Fat shaming is a violation of dignity and needs to stop.
I have gained weight with age, and was wondering about the advisability of a GLP-1 RX with HR2+ stage 4 breast cancer. I'm not able to lose weight despite calorie deficits and exercise.
Great question! GLP-1 medications can be helpful for weight management, but it’s crucial to talk with your oncologist to ensure it’s safe for your specific diagnosis. There’s ongoing research about these medications and their effects in cancer patients.
I lost weight as I never felt hungry gojng through chemo. It was during the height of covid and during the winter months…so I basically stayed in the house for about 6 months, wasn’t using any energy therefore a struggle to eat dinners as I just wasn’t hungry.
That sounds like such a challenging time, especially paired with the isolation of COVID. It’s good that you’re reflecting on what happened, and hopefully, your appetite and energy are slowly improving.
Yes, I gained 27 pounds, it took 10 years to lose it. I tried everything exercise, diet, no diet, fasting. Etc. But when I retired from a stressful job, the weight just fell off within a few months, without trying. The steroids were awful.
Stress really can impact weight so much, and it’s amazing that things shifted once you retired. Steroids are tough, and you’ve clearly been through a lot. It’s inspiring to hear that you found balance after such a long journey. Thanks for sharing, it’s a reminder that relief can come in unexpected ways.
Weight gain during treatment is so common, it’s tough when your body feels out of sync. With anastrozole, staying active (even small movements) and focusing on balanced meals can help over time. As you can see from the other comments on this video, weight gain is not 100% likely to occur. A cancer informed nutritionist may be a great resource too.
I am on anastrozole and I gained weigh.I just cannot lose it.Its challenging for me. I have a bad back so exercises is minimal as far using your tummy and back to exercise.
Weight gain can feel like an uphill battle, especially with limited mobility. Don’t be hard on yourself, it’s the medication and the passage of time, not a lack of trying. Focus on what feels manageable. Walking, chair exercises, gentle yoga, or even light stretching can make a difference. Nutrition-wise, think about swapping out sugary snacks for protein-rich options to support your metabolism. It’s all about finding what works for you. There is also no evidence that we can "spot reduce" areas of fat by doing certain exercises, rather that we build up muscle under the fat.
Weight gain on anastrozole can be such a frustrating side effect, and it’s more than just about food or exercise. Remember, your metabolism and hormones are working differently now. Consider tracking small wins like adding an extra 10 minutes to your daily walk or swapping processed snacks for protein-rich options. And if it feels overwhelming, your care team can help with practical strategies that fit your situation. Take a look at the suggestions by others in this comment thread too!
Water retention is a common frustration, and it’s one of those things that can feel so out of our control during treatment. Stay hydrated (counterintuitive, we know!) and ask your care team if anything can help manage it. You’re not alone in this, it’s one of those sneaky side effects. Thank you for watching.
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This video is so important. Nothing about weight gain was ever mentioned by my care team, not faulting them for this, but it needs to be addressed. The part about keeping active and increasing protein intake is so extremely important. Thank you Dr. Griggs.
Thanks for this video. I was ER positive and am on tamoxifen, which has caused 10-15 lb gain. I’ve been told time and time again to be grateful that I’m alive. But I’ve tried everything to lose the weight. I’ve come out cancer with someone else’s body. Would love more guidance.
We’re glad this video resonated with you, and your insight is spot on, it’s not about blame but about finding solutions that work.
Was overweight for over 20 years before my BC diagnosis, was "keto" with alcohol, lots of animal fat, processed meat and fat dairy for 3 years before the diagnosis too. When diagnosed, immediately started working with an onco-psychologist-nutritionist and researching the subject of BC in various sources. Completely removed alcohol for good, processed food, dairy, introduced intermittent fasting 18:6, which I follow on most days till now because it makes me feel great and enjoy my two meals during my eating window. Significantly reduced animal fat and protein and most of my keto/low carb food is now non-starchy vegetables, whole gluten free seeds (millet and buckwheat), preference to fish and little meat, green tea and water. No snacking as it raises insulin levels and is bad for you. I exercise 4-5 times per week, including running, swimming and weight lifting.
I was on tamoxifen for 3 months before my single mastectomy in November 2022, afterwards AI (letrozole), abemaciclib, Enantone for 2 years till December 2024, now just letrozole for another 3 years.
From the date of diagnosis in mid August 2022 to the mastectomy in November 2022 I lost 10 kg, then another 15 by summer 2023, then another 3 till now because I need to keep my running weight.
In my case, once my health became the top priority and I introduced changes to my nutrition, lifestyle, exercise and daily fasting, the weight just fell off very quickly regardless of the medication and treatment. It also greatly supported my treatment, general well being and quality of life. While I still need to improve a few things about my nutrition, the current status is good for me and now I know how to manage my weight, apart from other things, medication or not. Health is my top priority now.
Thank you so much for sharing your experience. We're hoping others in this comment thread read about ways other people have been successful in taking the absolute best care of themselves.
It's a struggle... thank you so much 💓
This is such a shared difficult experience. Know that you’re not alone.
I've been taking Anastrazole since September and so far, no weight gain. In fact, I lost thirteen pounds just having my mastectomy. I was a DD cup so losing my breasts took thirteen pounds. I'm back to work now so I think that helps a lot. I was told to eat a lot of protein before and after my surgery, which I did. Like I said on another video, I think women need to be told that their worth and value isn't tied to their bodies. Stand strong, sisters!
What a powerful message, thank you for sharing this! It’s true, our worth is so much more than physical appearances. It sounds like you’re focusing on strength and self-worth, which is so inspiring.
Thanks for the important information. I'm on tamoxifen and only gained a few kilos..
I lost a lot of weight 7 years ago and was
scared about the weight gain.
However, I watch my diet carefully and weight train and do some hitt training.
I make sure I get enough protein as well..
😊
It’s fantastic that you’ve found a way to manage weight gain while on tamoxifen! Watching your diet, weight training, and incorporating HIIT is such a solid approach. Protein is key, and it sounds like you’re on top of it all!
Thank you, Dr. Griggs, for this very informative webinar.
Thanks for watching this video.
I’m in this very issue right up to my nose. My weight stayed steady all through 18 rounds of chemo and 20 rounds of radiation, but after all that was over and I started on this medication, it’s like an unwelcome visitor showed up on my gut and my clothing doesn’t fit and I can’t stand to look in the mirror. I don’t know how to dress for this, and all the things I have been able to do all my life to drop a few pounds are not working. It’s horrifying. Plus, you’re right, the sleeping is a huge issue and I don’t want to take medication to sleep but at this point I don’t see any way around it. I didn’t go to an event today because I couldn’t figure out what to wear in time, and just gave up. I don’t think of myself as all that weight conscious but I was wrong. I do NOT want to look like this! Could you talk about use of weight loss drugs in this situation?
Same as you. I just started compounded tirzepatide two weeks ago after my oncologist encouraged it. I can’t believe how much different I feel after just two weeks. I’m on tamoxifen and the fatigue has been awful, I already have more energy and feel less anxiety, weird to say but I feel more like myself?? I’ve lost 8 lbs in two weeks, when before I could barely lose 1-2 lbs in two weeks. I would encourage you to talk to your doctor about it. I wish I had done it sooner!!
@@NicoleS-l4bI’m going to keep this in mind, gaining weight would just be the final blow on this journey
Thank you for sharing your experience, it’s clear how much this is impacting your daily life, and it’s absolutely valid to feel the way you do. Weight loss drugs may be slightly less effective in people on the aromatase inhibitors. We don't yet have data in people on tamoxifen. That said, it’s worth discussing with your oncologist or an endocrinologist to see if there’s a safe and effective option for you.
@ I did mention it to my oncologist but my BMI is too low to qualify for weight loss drugs. It’s ok, I really don’t need more side effects to deal with. It’s just frustrating to be experiencing menopause on an extreme level with nothing that can be done.
Great content! I just had week 8 of Chemotherapy. I have focused on nutrient-dense foods (many are lower in calories), supplements and Floradix -- I am down 10 lbs happily, not trying o lose weight, but I was already overweight when I began treatment. I am almost 60 years of age and have found that 1 scoop of pasture raised collagen (20g of protein) in my morning hot beverage (organic coffee or tea) has helped my bloodwork stay above average (per my Oncologist). Acupuncture also has helped with nausea & steroid side effects. The collagen shortcut helps make it easier to consume 85g of protein daily - with another 20g in the form of plant based protein (Orgain)…the remaining 45g I do my best to fit into 2 meals daily. And alllll the organic grass fed butter I want…on organic 5 ingredient whole grain sourdough bread.
Keeping your bloodwork strong with nutrient-dense foods and collagen is a smart strategy. Acupuncture for nausea and steroid side effects is another great tip, thank you for sharing! For other people watching, we can't absorb whole collagen into our bloodstream. The collagen, like any large protein, is broken down into small fragments before absorption. Thank you for your positive feedback and being part of our Yerbba community!
Less movement for me. I can’t seem to get my full energy back even a year after treatment(14 months of immunotherapy and mastectomy). Your advice was very helpful. Than you.
It’s tough when energy feels so out of reach, especially when you’re doing your best. It sounds like you’re on the right track, and even small steps can build up over time. We're glad you found the video helpful. You had a lot of treatment! Wishing you continued recovery.
The ONLY thing that has started to make the numbers go back down on the scale after surgical menopause has been a ketogenic diet! I struggled for two years, changed to keto, and my joints have felt better and my weight is going down
Thanks for sharing your story. We don't recommend a ketogenic diet in people on chemotherapy, but afterwards, some people find it helpful.
before my cancer diagnosis, I believed the 'Hollywood cancer' stereotype of an anorexic looking patient applied to every cancer patient. but although i lost 10 lbs during chemo, I have gained it all back now and am seeing that the long term meds may actually cause weight gain soyhx for talking about this very important. please talk more about weight and cancer. ty
Thank you for sharing this! That “Hollywood” image can be so misleading. Medications, treatment, and recovery can all play a huge role in weight changes.
Sadly, I was also surprised that I gained weight. This was helpful.
It’s definitely a frustrating surprise for many. We're glad this video offered some clarity. It’s a tough challenge to face, but knowing you’re not alone in this can help make it feel a little less isolating. We hope some of the comments shared by others will be helpful! Make sure to subscribe for more insights and support as you navigate this journey, the Yerbba community is here for you.
Would you do a video on closterol levels ? My numbers are weird.
I had her2 positive breast cancer now I'm on Exemestane and during chemotherapy lost 4 Stone in weight, im careful with what i eat now ,mainly high fibre diet and no Alcohol been over 2 years since I started treatment and thankfully haven't gained any weight so it is possible to lose weight if you have gained
Sticking to a high-fiber diet and cutting alcohol are powerful steps, not just for weight management but for overall health during treatment. Thanks for sharing your experience.
My one comment. After a mastectomy following roughly 7 months of chemotherapy and Radiotherapy therapy, I was beginning to feel a lot better. Then my GP told me that I was suffering from Hypothyroidism and prescribed Levothyroxine.....the dose gradually increasing to now 125 mcg per day. I'm developing a podgy spare tyre around my midriff...but still have almost no appetite. I am very tired all the time. Is there a connection between the breast cancer and the low thyroid activity? I would love to know? 🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧
Levo did not work for me. Switching to Unithroid and Liothyronine together worked better. No generic version of Unithroid should be substituted--at least in my case.
Thanks for sharing your story. The connection between thyroid disease and breast cancer has been studied extensively. It does not appear that there is a causal relationship but rather that both are common conditions and that people with breast cancer are more likely to be diagnosed with thyroid disease because they are seen by doctors more often and have more tests than people without breast cancer. Wishing you the best.
When I was diagnosed in 2016 my oncologist informed me that there is a big chance that I will gain weight. I did at 20 lbs. At first I was given Tamoxifen and now I am on Letrozole.But I continued with my exercise regimen. It was tough losing the weight. I have lost some but I am still overweight. Now I mind what I eat, walk at least 30 min a day for five days and keep a positive outlook in my cancer journey. Crossing my fingers that I will soon lose all of the extra weight.
Losing weight during treatment is tough, and it’s amazing that you’ve stuck with your exercise regimen and mindful eating. Even though it’s a challenge, those 30-minute walks and your positive outlook will keep paying off. The fact that you’re making progress is a testament to your resilience. You’re doing great, and crossing fingers with you for even more success ahead!
I gained w3ight because during a year of treatment i was so much less active than i was before. Now, breastless and resuming regular exercise i am getting back to my regular size. My stomach gets bloated daily for no apparent reason.😢..plus menopause and sleeplessness....i dont know. I just know i have to exercise daily. I wont get slim and lean...but i feel better mentally.
I have had rt breast ER+,PR+ DCIS in 2008. Went through lumpectomy and lymph node clearance, radiation followed by tamoxiphen (5 years) and aromatase inhibitors (also 5 years).
In 2022 I was diagnosed with TNBC and followed up with mastectomy of LEFT breast and more lymph node clearance
I had to stop chemo paclitaxel, carboplaten, as it was so radical and was literally attacking my immunity and bone marrow.
Long story , sorry.
I have gained 10 kilograms and along with severe lymphodema I still have the extreme fatigue.
My question is two fold. How do I begin to recover?
Walking is tiring and I gain no joy from it.
Sunshine, even short exposure is painful and I am sick of being sick and tired. The worst is the feeling that this is not the end. The diagnosis of TNBC after 16 years is not a great experience.
First, let’s acknowledge how hard this has been for you-it’s not just a physical battle but an emotional marathon. Starting recovery after such a long and intense treatment process is daunting. Try to set small, achievable goals: a short walk, a few minutes of sunshine, or a gentle stretch. If walking feels like a chore, what about seated yoga or deep breathing exercises? Also, don’t underestimate the power of a support group to help process that “what if” fear. You’ve been through so much, and even small steps count toward reclaiming your energy and joy.
i have been a vegitarian for 30 plus years. I was too tired to eat for most of my chemo. I still gained 18 pounds eating very little. My holistic doctor suggested that i go gluten and dairy free which i did and lost 10 pounds in two years. I have increased my exercise , steam room regularly and soak in the hot tub to relax. Where else can I go?
Thanks for this one! I'm struggling with weight gain and muscle loss. Not giving up bc I know if I don't work at it my mobility will suffer. It's not a question of body image at this point. I'm just trying to get/stay stronger to maintain a good quality of life. I'll be honest.. at 62 I'm feeling like my mom did at 80. Distressing but I just take one day at a time. I try to choose fruit instead of a cookie and I add more vegetables to my cooking. I've added a small amount of whey protein once a day....sometimes every other day. Using resistance bands at my desk so I can lift my granddaughter!! Also stand up and sit down as many times as I can while making a cup of coffee etc. I feel like taking vitamin D3 has helped a little bit with joint pain. I have no medical basis for that. It just seems like when I ran out I hurt more. I think it helps to keep track of what you eat and how you feel to see if certain foods might make you feel bad. For me it seems like too much sugar and salt make my knees hurt. We don't eat out much anymore bc restaurant food makes me feel bad (even though I love it). Good luck to anyone going through this. Don't give up. I'm not!
It’s clear you’re doing everything you can to maintain strength and mobility. Adding small, consistent changes like you’re doing; resistance bands, mindful eating, and even vitamin D, can make a big difference over time. Keeping track of how certain foods make you feel is such a good tip! Every little step counts, and your determination is what matters most. Thanks for sharing your experience and being part of our Yerbba community.
Some people made me feel horrible about the weight gain. I heard they had never seen anyone gain weight that had cancer. 😢 estrogen based cancer and menopausal
Those comments do not define you and are likely from people unhappy with themselves. It's amazing how many people think that it's okay to comment on other people's bodies (especially women). Weight gain during cancer treatment is incredibly common, especially with estrogen-driven cancers and menopause in the mix. It’s not your fault, and anyone who says otherwise doesn’t understand the complexity of what you’re going through. Focus on what makes you feel strong and supported.
Hello, is sauna harmful one year after removing an in-situ tumour stage 1 and radiation? Thank you.
Saunas can sometimes cause issues with circulation or swelling after radiation, but it depends on your unique situation. We'd recommend asking your oncologist or radiation oncologist, they can provide guidance based on your recovery and any lingering side effects. Better safe than sorry!
Question for hopefully a future video: I could swear I heard you say in another video I can’t find that obesity is a factor for breast cancer in n the population, but not in the individual, or something like that. If that’s roughly true (I probably messed up the description), can you explain that in a video? I am obese and was before I got cancer. One person in my family was stern with me after diagnosis about how obesity kills. I have been so upset for months and months that I caused my cancer with obesity and feel self conscious that all my family and friends believe that. I should note I have other risk factors - I had my first period before age 12, developed breasts at age 9 and never was pregnant. Can you talk about the guilt some women have over being fat and getting cancer and if there’s another way to frame our bodies and our cancer? If it helps, I have Er Pr +, HER- IBC.
I am 5 ft tall and 110 lbs. I clearly did not get breast cancer because I was obese. I also eat less sugar than many people.
Obesity may contribute to cancer, but there is more going on than that. There are many obese people walking around who don't have cancer.
I also have two relatives who had fantastic diets and were not over weight, and they were diagnosed with cancer. One was a Seventh Day Adventist who ate mostly vegetarian, lightly-processed food!
We don't know the link between cancer and obesity. You could have been fairly slender and still gotten cancer.
I can testify to that.
You did not mess up. What we meant is that we cannot say to a given person that "x" (whatever it is) caused their breast cancer. Remember that half of the people with breast cancer have absolutely no risk factors. The shame that society places on people who are fat or overweight is not helpful and in fact makes people more isolated. Fat shaming is a violation of dignity and needs to stop.
I have gained weight with age, and was wondering about the advisability of a GLP-1 RX with HR2+ stage 4 breast cancer. I'm not able to lose weight despite calorie deficits and exercise.
Great question! GLP-1 medications can be helpful for weight management, but it’s crucial to talk with your oncologist to ensure it’s safe for your specific diagnosis. There’s ongoing research about these medications and their effects in cancer patients.
I lost weight as I never felt hungry gojng through chemo. It was during the height of covid and during the winter months…so I basically stayed in the house for about 6 months, wasn’t using any energy therefore a struggle to eat dinners as I just wasn’t hungry.
That sounds like such a challenging time, especially paired with the isolation of COVID. It’s good that you’re reflecting on what happened, and hopefully, your appetite and energy are slowly improving.
@ thank you yes much better now xxx
Yes, I gained 27 pounds, it took 10 years to lose it. I tried everything exercise, diet, no diet, fasting. Etc. But when I retired from a stressful job, the weight just fell off within a few months, without trying. The steroids were awful.
Stress really can impact weight so much, and it’s amazing that things shifted once you retired. Steroids are tough, and you’ve clearly been through a lot. It’s inspiring to hear that you found balance after such a long journey. Thanks for sharing, it’s a reminder that relief can come in unexpected ways.
I am a stage3 drest cancer patient and i gain a lot of wight during treatment wat can i do i am using anasdrezole
Weight gain during treatment is so common, it’s tough when your body feels out of sync. With anastrozole, staying active (even small movements) and focusing on balanced meals can help over time. As you can see from the other comments on this video, weight gain is not 100% likely to occur. A cancer informed nutritionist may be a great resource too.
I am on anastrozole and I gained weigh.I just cannot lose it.Its challenging for me. I have a bad back so exercises is minimal as far using your tummy and back to exercise.
Weight gain can feel like an uphill battle, especially with limited mobility. Don’t be hard on yourself, it’s the medication and the passage of time, not a lack of trying. Focus on what feels manageable. Walking, chair exercises, gentle yoga, or even light stretching can make a difference. Nutrition-wise, think about swapping out sugary snacks for protein-rich options to support your metabolism. It’s all about finding what works for you. There is also no evidence that we can "spot reduce" areas of fat by doing certain exercises, rather that we build up muscle under the fat.
Gained weight on Anastrazole
Weight gain on anastrozole can be such a frustrating side effect, and it’s more than just about food or exercise. Remember, your metabolism and hormones are working differently now. Consider tracking small wins like adding an extra 10 minutes to your daily walk or swapping processed snacks for protein-rich options. And if it feels overwhelming, your care team can help with practical strategies that fit your situation. Take a look at the suggestions by others in this comment thread too!
Actually lost weight during treatment, but I have gained weight on Letrosol
Thanks for sharing your experience.
Me i gained water weight
Water retention is a common frustration, and it’s one of those things that can feel so out of our control during treatment. Stay hydrated (counterintuitive, we know!) and ask your care team if anything can help manage it. You’re not alone in this, it’s one of those sneaky side effects. Thank you for watching.