The Association for Frontotemporal Degeneration with Esther Kane & Debbie Elkins (AFTD)
ฝัง
- เผยแพร่เมื่อ 27 ก.ย. 2024
- All Home Care Matters and our host, Lance A. Slatton were honored to welcome Esther Kane and Debbie Elkins from The Association for Frontotemporal Degeneration (AFTD).
About AFTD:
Online at theaftd.org, AFTD is the largest national nonprofit devoted to providing resources to help families affected by FTD today, and advancing research to foster accurate diagnosis, treatments, and a cure. Our volunteer founded organization - driven by thousands of volunteers and donors - reflects a community's profound determination to #endFTD. With the FTD Disorders Registry, we are proud to partner with families, researchers, biopharma companies, state and federal policymakers, and health professionals across the country to improve care for people and families facing FTD - efforts that could ultimately be importance to all facing dementia or neurodegenerative disease.
About Esther Kane, MSN, RN-CDP:
Esther Kane, MSN, RN-CDP joined AFTD as its Director of Support and Education in November 2020. Previously, Esther served as Director of Wellness at CareOne Management, a company that provides elder-care services throughout the Northeast U.S. She brings clinical, educational, managerial, and marketing skills along with a passion for quality care for those who are living with neurological conditions. Her work reflects a strong commitment to the importance of education and training throughout the spectrum of diagnosis and delivery of quality care.
At AFTD, Esther ensures that support services and educational programs advance early diagnosis and improve access to quality care and effective support, and that that clinical information provided to healthcare professionals and the AFTD community is current and evidence-based.
Debbie Elkins, RN and AFTD Ambassador for West Virginia:
After her husband’s journey to an FTD diagnosis, Debbie became an AFTD volunteer and hosted her first Food for Thought fundraiser. With a passion to raise awareness in her community and to make connections with others in rural areas of West Virginia and southeast Ohio, Debbie was invited to become an Ambassador in 2023.
Working with AFTD staff, she began provider outreach visits hoping to connect the local medical community and others to AFTD. As a registered nurse, Debbie hopes to use her voice to bring FTD awareness to the public, provide education, and point families to the “gold mine” of resources and support that AFTD offers.
#dementiacare #dementia #frontotemporaldementia
Connect with The Association for Frontotemporal Degeneration (AFTD):
AFTD HelpLine (with translation services available):
Phone:
866.507.7222
Email:
info@theaftd.org
Diagnostic Checklists for those concerned that they or someone they love has FTD:
www.theaftd.or...
Support groups led by AFTD-affiliated volunteers across the country:
www.theaftd.or...
TH-cam:
@TheAFTD
SOUNDSTRIPE:
DCZC3BWSGVJXIHCL
I appreciate AFTD's support of families with FTD.
I appreciate your commitment to enhancing FTD education and care.
Every county in the nation should have a resource that family caregivers can use.
It is very easy to see how much Esther is invested in helping the FTD community
Well done, Every Home Care Counts!
We love watching and listening to All Home Care Matters and the really great resources you have
Thank you for the resources that AFTD has offered.
We adore All Home Care Matters, both on television and radio, and the fantastic information you provide.
Very educational. Appreciate the resources provided by AFTD.
Thank you Lance and All Home Care Matters for everything you're doing to support caregivers!
Absolutely nothing is impossible for God.
We all need to speak out about these problems and find ways to support family caregivers in their educational endeavors.
I sincerely hope that as more and more well-known individuals speak out, awareness will increase.
Esther Kane and Debbie Elkins are truly inspiring.
Powerful stories and insights. Thanks for bringing this to light.
Lance - Great job helping to get these resources and organizations on to share with others!
I appreciate your assistance very much.
Love the dedication to improving FTD care and education. Wonderful video!
Good knowledge for those who provide care! much-needed resources and assistance.
educational video Thank you for your efforts in spreading the word about FTD.
Thanks you to Esther and Debbie - we need more voices like yours to help share hope and tips
I really appreciate how concise and direct each of your tutorials are.
Really fascinating to listen to Debbie's story and to see how she's turned it around to help others
Much needed support and resources.
I adore how succinct and direct each of your videos are.
I really hope with more and more notable people speaking out that it will help raise awareness
A better strategy for helping family caregivers and their dementia-affected loved ones must exist.
Great work, All Home Care Matters! Keep up the good work.
It's amazing to hear Debbie's tale and observe how she's changed it for the better.
Debbie’s advocacy is so inspiring. Thank you for your dedication!
I adore how succinct and to the point all of your videos are.
I appreciate your help very much.
Informative video! Appreciate the efforts to raise awareness about FTD.
I appreciate how all of your videos are brief and to the point.
Everyone is genuinely impacted by this problem, thus we must help one another.
I really enjoy watching this show they always have really helpful information and people on thanks!
I wish there was more awareness and attention to this when we went through it with our mom
Extremely well-done. Thank you!
Debbie Elkins and Esther Kane are amazing role models.
I appreciate your thorough explanation of FTD.
When we can say goodbye to dementia I think it will be one of the greatest days in my life
This was incredibly helpful. Thank you for the detailed discussion on FTD.
I'm very grateful.
I'm extremely grateful
Thank you very much for this information
I respect the effort you put forth.
Valuable information for caregivers!
For GOD nothing is Impossible
I appreciate you sharing.
I appreciate you pointing this out.
I appreciate you very much.
Debbie is an amazing advocate.
Outstandingly well-done.
Thanks for sharing and such a beautiful, love it
I believe the day we can bid dementia adieu will be among the best of my life.
I adore this crucial information
thank you so much.
strong narratives and observations.
No task is too difficult for God.
Definitely fantastic, this.
Excellently done.
We are dealing with Lewy-body right now with our mother and wish more people understood it.
It was very helpful!
We wish more people understood Lewy-body, since we are currently dealing with it with our mother.
This information helped me alot
This does sound amazing.
This was quite beneficial.
Keep up the awesome video!
I cared for my dad for over 8 years daily and I felt so alone but I never felt resentment of any kind
Love this important content
Very informative
amazing video, keep it up!
super cool video keep it up!
The doctor didn't have any assistance or provide any at first, which was one of the most difficult things for us.
One of the hardest parts at the beginning for us was the doctor didn't have or offer any help for us
I have had so many in my family diagnosed with dementia that I am just waiting for my turn it's sad
It's unfortunate that I am waiting for my turn to be diagnosed with dementia because so many people in my family have had it.
What do you all recommend for getting our healthcare professionals aware of resources and info?
I would like to know if Esther or Debbie think we could see a cure in the next 10-15 years?
This will all be a memory once a solution is found-that sardonic remark never fails to get under my tongue.
There has to be a better way to support family caregivers and their loved ones with dementia
Esther What led you to work with dementia and AFTD patients?
Esther - what brought you into working with AFTD and dementia?
When there's a cure this will all be a memory - I always think about that ironic statement
It is awful having to watch your loved one deteriorate right before your eyes
Thank you, AFTD, for supporting families dealing with FTD. Great interview!
Witnessing the decline of a loved one in front of you is terrible.
Can you have a small amount of dementia in one or more forms?
Why is dementia (any form) so misunderstood with all the information & resources out there?
Why, in spite of all the available information and resources, is dementia still so misinterpreted?
I sometimes get a little irritated and almost angry that it takes a celebrity to bring attention to this
This is an issue that really will or does affect everyone and we need to support each other
I truly like watching this show since there are always incredibly helpful people and knowledge! Thank you!
Giving voice to these issues and a way to help family caregivers with education is so vital to us all
Does the aftd have online support groups or groups that they recommend?
Thank you, Debbie and Esther for all the work that the two of you are doing to help
There needs to be a resource in every county in the country for family caregivers to turn to
Do Debbie or Esther think a cure will be available in the next ten to fifteen years?
Are there any recommended or online support groups for the aftd?
Can you have a little of each or several forms of dementia?