Wow! Bless your heart darlin..I also have CMT ,I have type 1A..I was diagnosed at age 3..My Parents kinda knew I had it because I wasn't able to stand on my own at age 2 and my Father has CMT also so they immediately had me seen by a Doctor who then diagnosed me...I wore these awful bulky leg braces when I was younger probably around age 13 I stopped wearing them...I have walked fairly well my entire life and I'm 39 years old...I've actually met others with CMT who couldn't believe that I even had anything wrong until I showed them my feet..I am getting a lot weaker now that I'm getting older and I'm noticing my feet getting more deformed slightly,like my toes are curling and my feet are starting to turn in..my calve muscles are pretty non existent..I feel like my CMT is starting to rob me of my quality of life..it's putting a damper on my relationship because I don't take care of myself like I should..I really allow myself to suffer and I don't know why I do this to myself..I wear pants all summer long because I'm embarrassed of my legs and feet so I won't wear shorts...My 18 year old daughter always says Mom you're beautiful just live life and I really should listen to her :) I'd love to chat with you sometime Stephanie so if you read this please give me your email..ok Also contacting Dynamic bracing and getting myself seen so I can live my life to the fullest...I have CMT BUT CMT DOES NOT HAVE ME..God gave me this disease cause he knew I was strong enough to handle it so I need to put on my brave face and just live ..xxoo
![30 ชั่วโมงคนเดียว บนรถไฟชั้น 3 โซเวียต [Around The World Ep. 2]](http://i.ytimg.com/vi/MlE9boAVqDA/mqdefault.jpg)
Wow! Bless your heart darlin..I also have CMT ,I have type 1A..I was diagnosed at age 3..My Parents kinda knew I had it because I wasn't able to stand on my own at age 2 and my Father has CMT also so they immediately had me seen by a Doctor who then diagnosed me...I wore these awful bulky leg braces when I was younger probably around age 13 I stopped wearing them...I have walked fairly well my entire life and I'm 39 years old...I've actually met others with CMT who couldn't believe that I even had anything wrong until I showed them my feet..I am getting a lot weaker now that I'm getting older and I'm noticing my feet getting more deformed slightly,like my toes are curling and my feet are starting to turn in..my calve muscles are pretty non existent..I feel like my CMT is starting to rob me of my quality of life..it's putting a damper on my relationship because I don't take care of myself like I should..I really allow myself to suffer and I don't know why I do this to myself..I wear pants all summer long because I'm embarrassed of my legs and feet so I won't wear shorts...My 18 year old daughter always says Mom you're beautiful just live life and I really should listen to her :) I'd love to chat with you sometime Stephanie so if you read this please give me your email..ok Also contacting Dynamic bracing and getting myself seen so I can live my life to the fullest...I have CMT BUT CMT DOES NOT HAVE ME..God gave me this disease cause he knew I was strong enough to handle it so I need to put on my brave face and just live ..xxoo
I am Vu Cong Thang. Year of birth 1988.
I am in Vietnam
I'm also getting CMT2 like you guys.
Do you know where this disease is cured? Thanks!
There is no cure for CMT. The right braces can help. For more information check out our website:
www.dynamicbracingsolutions.net/
did you ever have children?
She said she does