I had the zephyre valves (4) done in my left lung in 2021....it helped very little....the results only lasted about a year. There was no perceived "feeling" of relief. My exercise tolerance did not improve dramatically. I had lung volume reduction surgery in january of this year-the results were leaps and bounds better. My exercise tolerance about tripled, there was a perceived "feeling" change for the better. (Those of us with copd emphasyma know what I mean by "feeling" better) The valve surgery requires a week stay in hospital, to monitor and make sure the valves dont collapse or cause pneumothorax. With the lung volume reduction surgery, my hospital stay was 5 days. I had it done at Duke University-robotically. Pain level was extremely manageable-only 4 small incisions, with one being a drain left in until the day I left. I am diagnosed "very severe" at the gold level standard. I can take the boat in and out at the ramp myself-do 2 miles on the elliptical with no stopping (at pulmonary rehab-previously I struggled to do 1 mile on just a walking treadmill) My experience and advise would be to opt for the lung volume reduction surgery instead. (In speaking with my surgeon after the surgery-we discussed going back and doing the lung volume reduction on the left lung in the future when my exercise tolerance reduces-as it always will, there is no cure) For anyone suffering with COPD-besides quitting smoking-the most important thing you can do is the pulmonary rehab-exercise and stay off being dependent on supplemental O2 as long as possible. When you stop-you decline.
Im on my journey to get the valves at Pittsburgh did the walk test and i quit smoking everything my test were better than last yrs so rehab Mon and waiting to see if Ill get them
DOES THE PART THATS CUT OFF OF OXIGEN COMPLETLY DIE OR IS IT REGENERATED I WISH THIS WAS AVAILABLE AFEW YEARS AGO WHEN MY MOM WAS STILL ALIVE MIS YOU MOM!
Your consultant in your hospital you are under organise it with the transplant team and if your a canadate you will get them , unfortunately my lungs are too bad ,
@@BlackMamba-lt8oehow are you now ? I am from india ,i recently got diagnosed with small airway disease This could be life changing ,if available here
It said at Philadelphia, Penn Medicine with Dr. Kevin Ma. Meaning he is specialized for this type of treatment. First try local if your doctor knows about it. Otherwise search locally that offers that type of treatment and check his reviews, make an appointment don't feel afraid to ask how many surgeries have done under this treatment and if the patient is capable, withstand. Most likely will send you for analysis. If says no. Doesn't end there get a second opinion, if it's the same. Last source is Philadelphia. If he says yes based on his analysis. That means the doctor is capable of treating the patient. Some docs feel they are capable or not capable of this procedure. It is all about their comfortability.
My father is also suffering from this disease for 3 years. Please help me. Please tell me how my father will get better. We are not getting any good treatment for this in Bangladesh. My father is getting sicker day by day.
I have COPD and presently using the Wixela fluticasone. It's a disc with a pre measure dose of a powder that I take by mouth twice per day. It really works, but my breathing is still labored, but not like it was before using this. I'm scheduled to see a pulmonologist on the 12th of this month for a discussion about this procedure to see if I'm a candidate. I believe I am because the thing that get's you turned down is smoking. I haven't smoked in 19 years.
Where are you form.My father is also suffering from this disease for 3 years. Please help me. Please tell me how my father will get better. We are not getting any good treatment for this in Bangladesh. My father is getting sicker day by day.
Sad this comes 10 years after my dad died from emphysema 😢
Prayers 🙏 sorry for your loss 💕
I was thinking the same exact thing. It broke my heart to see him suffer so bad. It broke his spirit😢
My mother suffering from this plz anyone have any suggestion pllxzzzzxx tell me
@@MuhammadAli-jl3smNAC supplement helps and so does serrapeptase and nattokinase
Sorry about that.
I had the zephyre valves (4) done in my left lung in 2021....it helped very little....the results only lasted about a year. There was no perceived "feeling" of relief. My exercise tolerance did not improve dramatically.
I had lung volume reduction surgery in january of this year-the results were leaps and bounds better. My exercise tolerance about tripled, there was a perceived "feeling" change for the better.
(Those of us with copd emphasyma know what I mean by "feeling" better)
The valve surgery requires a week stay in hospital, to monitor and make sure the valves dont collapse or cause pneumothorax.
With the lung volume reduction surgery, my hospital stay was 5 days. I had it done at Duke University-robotically. Pain level was extremely manageable-only 4 small incisions, with one being a drain left in until the day I left.
I am diagnosed "very severe" at the gold level standard.
I can take the boat in and out at the ramp myself-do 2 miles on the elliptical with no stopping (at pulmonary rehab-previously I struggled to do 1 mile on just a walking treadmill)
My experience and advise would be to opt for the lung volume reduction surgery instead.
(In speaking with my surgeon after the surgery-we discussed going back and doing the lung volume reduction on the left lung in the future when my exercise tolerance reduces-as it always will, there is no cure)
For anyone suffering with COPD-besides quitting smoking-the most important thing you can do is the pulmonary rehab-exercise and stay off being dependent on supplemental O2 as long as possible. When you stop-you decline.
Im on my journey to get the valves at Pittsburgh did the walk test and i quit smoking everything my test were better than last yrs so rehab Mon and waiting to see if Ill get them
My prayers are with you. God bless you.
Thank u I got my last test yesterday and sent information now the 21 I see the doc for consult
Where to I go to get this done Please?????????????????????
DOES THE PART THATS CUT OFF OF OXIGEN COMPLETLY DIE OR IS IT REGENERATED I WISH THIS WAS AVAILABLE AFEW YEARS AGO WHEN MY MOM WAS STILL ALIVE MIS YOU MOM!
It does not regenerate...it just stops holding CO2.
Is this available in australia
I had 5 valves they worked for 3 years then they failed. I now have to have a lobectomy these valves are only a short term fix.
😔sad
Wow..please tell me where can I do that am from Germany…
Your consultant in your hospital you are under organise it with the transplant team and if your a canadate you will get them , unfortunately my lungs are too bad ,
@@marykelly9698 u people are from first world, imagine my lungs I am from India
@@marykelly96982:23
@@BlackMamba-lt8oehow are you now ? I am from india ,i recently got diagnosed with small airway disease
This could be life changing ,if available here
How do "professionals" not mention that the valves are called Zephyr Valves.
Wonder if this would help me breath better ,???
I have had them installed in both lungs and they dont work at all
How much you speend each valve
Where is it available please
It said at Philadelphia, Penn Medicine with Dr. Kevin Ma.
Meaning he is specialized for this type of treatment. First try local if your doctor knows about it. Otherwise search locally that offers that type of treatment and check his reviews, make an appointment don't feel afraid to ask how many surgeries have done under this treatment and if the patient is capable, withstand. Most likely will send you for analysis. If says no. Doesn't end there get a second opinion, if it's the same. Last source is Philadelphia. If he says yes based on his analysis. That means the doctor is capable of treating the patient.
Some docs feel they are capable or not capable of this procedure. It is all about their comfortability.
Following
It’s NOt for everyone and please please read the side effects..I have copd and it sounds great!
So my question is. Are they ever removed or they stay in the lungs?
To guess, I'd say that it would stay in, otherwise, the condition would return, immediately.
Have this
You have the valves? How do they work for you?
How much in Philippines can do that
My father is also suffering from this disease for 3 years. Please help me. Please tell me how my father will get better. We are not getting any good treatment for this in Bangladesh. My father is getting sicker day by day.
In india where we get doctor?
Plz inform me
😢 What? Hapened
Wow would find out more
Im from Bangkadesh please tell me how i get it for my father
does it exist in the philippines?
I have COPD and presently using the Wixela fluticasone. It's a disc with a pre measure dose of a powder that I take by mouth twice per day. It really works, but my breathing is still labored, but not like it was before using this. I'm scheduled to see a pulmonologist on the 12th of this month for a discussion about this procedure to see if I'm a candidate. I believe I am because the thing that get's you turned down is smoking. I haven't smoked in 19 years.
Update please 🙏 are you a candidate for this procedure??
Where are you form.My father is also suffering from this disease for 3 years. Please help me. Please tell me how my father will get better. We are not getting any good treatment for this in Bangladesh. My father is getting sicker day by day.
I just put in for the surgery my pulminoligist sent my paper work to the hospital
This is not new
Olive leaf EXTRACT.
Hi I'm trying mullein drops for two days now. Not heard of what you are suggesting. Plz can u give more info. Many thanks.
@@lydiawhitting5406 google it, pills and spray.
Siblings of Michael Murphy