I am diagnosed with Parkinson's Disease in 2019. I am 76. There is currently no cure for PD. I am a patient of a neurologist who is a specialist in movement disorders, and he diagnosed me as having PD.
Nice to see your video i am with you i hv been diagnosed since 4months now for hand tremor n feel the same i am guy 70 years but PD is different for different people i guess…. You are a long way for DBS so enjoy life in the meanwhile n keep up your videos
Hi! I just started as an easy way to post my TikTok’s on Twitter (X) originally. But realized TikTok time limits kind of suck when I want to really talk about stuff in detail. So here I am on TH-cam. This makes sense though as I see there are a lot of Parkies on here. Love your stuff!
@@shakinginmyboots1 I agree, I find Tik Tok very restraining and difficult to gain a solid footing with content more than 1 minute long. TH-cam has a great community and I feel strongly that there are not enough quality channels to fit the demand, so I am glad you are here.
Biggest problem- dosing to level. I take sinemet 75 mg every 2 hrs. Spend half the day up and half the day down. I’m 60 and I’m busy . This dosing regiment sucks. Hoping for DBS
Hi Ester, same here first years after PD diagnosed. I discovered that you have to take each dose of the carvidopa-levidopa at exact intervals. Tremors are under control. Please don't overdose, it has some nasty side effects. I am a member of the Michael J. Fox Foundations Network of Care, it's free. Check it out. Good advice from members in treatment.
B.S. life isnt "exact" If I'm going into an important meeting or a social gathering, there's definitely a difference from being home alone, or at the gym. Everyone s different I take it according to my daily activities.
Sooner actually, didn’t really know how it felt in the beginning. Thought it was something else, but yes I developed what’s know as “wearing off” dyskinesia almost immediately.
So I am a 53-year-old male was just told I have Parkinson’s i’ve got a slight tremor in my left hand they want to start me on the medication but I’m a bit hesitant
@@stevesilia9175 it’s different for everyone. I found this video helpful. I started the medication to reduce my tremor for work. It really depends on so many things. There’s no right or wrong answer
You haven't lost your sense of humor..that's so encouraging...
Your sharing is really valuable. You are a voice for many.
Thanks. Bless , keep up the videos……. The fear of the future is what i have also so thanks for saying that
The worst choose your own adventure! Perfect!
I am diagnosed with Parkinson's Disease in 2019. I am 76. There is currently no cure for PD.
I am a patient of a neurologist who is a specialist in movement disorders, and he diagnosed me as having PD.
We definitely need a cure
Nice to see your video i am with you i hv been diagnosed since 4months now for hand tremor n feel the same i am guy 70 years but PD is different for different people i guess…. You are a long way for DBS so enjoy life in the meanwhile n keep up your videos
Thank you
Hi Esther, I did not realize you had a TH-cam channel. Mostly watched you on Tik Tok. Just watching you and Jeremy chatting. Will share your channel.
Hi! I just started as an easy way to post my TikTok’s on Twitter (X) originally. But realized TikTok time limits kind of suck when I want to really talk about stuff in detail. So here I am on TH-cam. This makes sense though as I see there are a lot of Parkies on here. Love your stuff!
@@shakinginmyboots1 I agree, I find Tik Tok very restraining and difficult to gain a solid footing with content more than 1 minute long. TH-cam has a great community and I feel strongly that there are not enough quality channels to fit the demand, so I am glad you are here.
Biggest problem- dosing to level. I take sinemet 75 mg every 2 hrs. Spend half the day up and half the day down. I’m 60 and I’m busy . This dosing regiment sucks. Hoping for DBS
Brave and real.
Thank you for being real
I have a DBS and I'm so glad I did. My Leva Dopa dose is cut back 50%
Talk to your neurologist about focus ultrasound for your tremor.
Have you thought about mri based ultrasound to treat the tremor?
Just heard your next sentence! lol. I guess you did.
Hi Ester, same here first years after PD diagnosed. I discovered that you have to take each dose of the carvidopa-levidopa at exact intervals. Tremors are under control. Please don't overdose, it has some nasty side effects. I am a member of the Michael J. Fox Foundations Network of Care, it's free. Check it out. Good advice from members in treatment.
B.S. life isnt "exact" If I'm going into an important meeting or a social gathering, there's definitely a difference from being home alone, or at the gym. Everyone s different
I take it according to my daily activities.
Acupressure massages.
You got dyskinesia after six months on the medication ?
Sooner actually, didn’t really know how it felt in the beginning. Thought it was something else, but yes I developed what’s know as “wearing off” dyskinesia almost immediately.
So I am a 53-year-old male was just told I have Parkinson’s i’ve got a slight tremor in my left hand they want to start me on the medication but I’m a bit hesitant
th-cam.com/video/v-LzJb3DcIg/w-d-xo.htmlsi=HCOMzKyQs-5HNS1A
@@stevesilia9175 it’s different for everyone. I found this video helpful. I started the medication to reduce my tremor for work. It really depends on so many things. There’s no right or wrong answer
@@shakinginmyboots1 Thank you so much ; I’ll let you know how it goes .
Foods!