22 months post HSCT | Darker times...

แชร์
ฝัง
  • เผยแพร่เมื่อ 2 ส.ค. 2024

ความคิดเห็น • 6

  • @atypocrat1779
    @atypocrat1779 5 ปีที่แล้ว

    I think I remember you saying you lived way up north. The latitudes in US don’t go up that far north but it still gets very cold where I am at too. I handle the cold pretty well. Heat too. Going south isn’t an option for me due to family and work. Wish I could stay somewhere warm and sunny as well. Almost 5 months post. Some improvements. Cognitive is definitely improving. Waiting for some of my soft touch feelings in my hands to improve more. Hang in there young lady.

    • @AnnavsMS
      @AnnavsMS  5 ปีที่แล้ว

      Thank you Andre for you great support! Weather surely does play an important role affecting our symptoms and psychology :/ I am pleased to hear from your improvements and trust that there will more improvements to come as you continue with the recovery :)

  • @stumpymcfee5695
    @stumpymcfee5695 5 ปีที่แล้ว

    I'm sorry you are going through a rough time. It's very hard to fight depression when you feel cruddy physically. I had a SCT earlier this year and know this can be a struggle. It's great that you've exercising and staying active. Hoping it turns around soon on both fronts.

    • @AnnavsMS
      @AnnavsMS  5 ปีที่แล้ว

      It really warms my heart to read your words of kind support from someone who understands and knows just about how I am feeling! Thank you

    • @stumpymcfee5695
      @stumpymcfee5695 5 ปีที่แล้ว

      @@AnnavsMS I have a bit of GVHD which is causing nausea and vomiting. But it's not constant and fairly well controlled with Zolfran. I'd love more energy but I'm sure that will come in time. The isolation has been difficult. I'd love to just pop out to the mall and do all my Christmas shopping, watch kids with Santa, and be part of society again. It's funny because typically I HATE the mall! Too many humans. Now I want to go to all the gathering spots in town. :-)

    • @AnnavsMS
      @AnnavsMS  5 ปีที่แล้ว

      @@stumpymcfee5695 I am sorry to hear you have had hard time dealing with GVHD but luckily with time and the right medication the condition is managed and will disappear eventually! Isolation is definitely frustrating time but it is so worth to be rather safe than sorry for some time post transplant. But after some time the isolation becomes too restricting and us humans are not naturally meant for staying isolated from the society for long periods of time without going crazy. I am still avoiding crowds though because I don't want to catch anything that would flare my ms... I hope you find ways to enjoy the Christmas and find the holiday spirit eg. with friends and family :) At least it is guaranteed that you got yourself the best present for Christmas, a new chance to happy healthy life!