Hi Paul! I am a registered nurse in the US and have been for the last 30 years. What an education! In the earlier part of my career I did exactly what you did with every chance I could… inspecting, dissecting and really understanding how things work. You took me back to that time! I also wanted to tell you how wonderful it is to see you smile. Cancer sucks!
Thanks Sharon, I will try and smile more for the camera. There's a fair bit of crying in my first 12 updates, so I need to balance it out. I should have some good discussion topics coming up in the next week. I have my initial appointment with my chemo oncologist on Tuesday, plus a friend of mine that works in oncology wants to do an episode on nutrition for cancer patients. She's got some cool insights into it from her work. And then I have my second psychology session on Thursday. So plenty to talk about, and hopefully my smile will make an appearance. Thank you for writing to me. Paul.
If I had a teacher that both explains and then shows things the way you do you would have been my favourite teacher,thank you for taking the time and including us on your journey
Thanks very much. I recall my days teaching computing very fondly. At this stage, I can't let myself dream of doing that again. But making these videos does bring me happiness. Thanks for writing to me. Paul.
Don't stop fighting!Please do not give up!I have stage III Sinovial Sarcoma on my leg.I know how you feel.I do not have the same thing,I know now that I will have a surgery that maybe will save my life.I was so scared that I was thinking to take my oun life.Don't stop I fell your pain!
Hi Paul, OMG you sound like a doctor. Did you only learn all this from being ill. You are such an interesting person, I could listen to you all day. I'm a new follower and that's why I'm a month behind. I started on the video when you were told you only had a short time to live. You certainly now have accepted it and you're making the most of it. Keep the videos going, this is your legacy and like you said this is what you're going to be remembered for. You're amazing. If you were 14 in '84 I was 15 so I can relate aboout depression but mostly the 80s were amazing. well I'm sending you my ❤️ from Bridgend South wales, 🇬🇧. I'm obsèssed now and can't stop watching 😮 xx
I looked to see how long cancer cells can survive outside of the body and was actually surprised: The length of time a human cell can live outside the body depends on the type of cell and the condition in which it is kept. Red blood cells can survive for 120 days if kept in a cool environment without moisture loss. White blood cells survive for four days to four months depending on the type of cell.
Hi Melanie, yeah, most of the articles I found suggested that in non-optimal conditions, cancer cells can last about two hours outside of the human body. So I was fine as that catheter had been out for ten hours. But I promise you, I really, really disinfected EVERY surface that you see in that dissection sequence. FYI that stain on the table cloth is the hand sanitiser. Damn thing squirted all over the place! Anyway, it's hanging on the clothes-line now. A friend of mine did a PhD on in-vitro cancers, and she assured me that I was not in any actual danger. But that assurance was several hours AFTER I shot the video. Thanks for writing. Paul.
Hi Paul, I've just sat and binge watched all your cancer videos. My heart is broken that you need to make such difficult choices. You are so well informed about your diagnosis and teaching us so much. You look so healthy and I'm sending all my love from uk. X
Every time I watch one of your videos I learn so much!! You're a great teacher! I guess I'm watching out of order, but your resilience is quite impressive! Praying for you! Deb in the USA 😊
My husband had ascites because the cancer within his paratonia cavity. He had drain bags for a while, but the drain bag got pulled out once after he come home from the Whipple procedure. And he went in to have the drain put back in. In the tube they used to put it in, was obviously tainted. Because the oncologist said he believes that somehow it was, the tools used to insert the drain hose into the abdomen was not sterile, so when that happens, you got a big mess on your hands! So within about a week after he was home from having that drain or a new drain inserted he started having chills running high fevers that would subside and come back and go and come back 104 105° fevers that would come and go so we called the oncologist and they rushed him into emergency and while he was in emergency to be seen, they took him down to get a CAT scan and then brought him back up and as soon as they brought him up and put him back into his bed, he started shaking and his fever spiked to 107 and they’re all freaking out and the doctors are in and out freaking out so bad I’m just standing here at the foot of the bed watching in shock! Before finally, they told me I had to go you don’t leave the room. He had gotten an infection called sepsis so that landed him in the hospital for a few weeks. He just barely survived it. So be careful whenever you’re having anything inserted into your body. You’re going in and out all these different moving parts. Anything could happen if you start to feel a little weird or you get chills or you may be running a slight fever, mention it right away, so they can check it out! Because it can be life or death.😐 Also, I just wanted to say that the oncologist told my husband that they can’t drain the fluid very often because it just comes back fast and every time you go in to have it drained you’re taking a risk like I mentioned above! So they kinda let your stomach get really big you know it gets painful but they let it get pretty big pretty bloated before they go in and drain 👍
Hospitals, Rehabs, Nursing Homes are germmie, Hospital Acquired Pneumonia, MRSA, Staph= Sceptic Shock! Usually death. The facilities are at fault, noT keeping things sterile!
Thank you Paul. I have an ascites drain in my near future - fluid from Lung Mets. You demystified the process, which I gratefully appreciate. You are an amazing guy, given your diagnosis, you are helping folks like me enormously. Sending healing energy.
Hi Kylie, oh yes. When I am full of ascites, the pressure on my internal organs causes me to hurt in several places. In particular my lower left quadrant near where the descending colon becomes the sigmoid colon. Once I'm drained, the pressure is released. However, then I have the acute pain of the incision site. But then there is Buprenorphine....... Thanks for the big hug. Back at ya ok? Paul.
I am a nurse. A kids oncology nurse. We drain ascites from them in same way. The volume still amazes me after 37 years of watching it. Children are naive to the meaning of this stage but explaining the process and the why is age dependent. Cancer is from cradle to grave in its picking . My experience is that anyone who experiences the ravages of this disease is a hero a warrior and a visible reminder to us all. That life is precious and that suffering is real and cancer patients show the community what’s it’s like to live until you die ! However you choose to live those days. I reckon those that die without warning get it easy xxxx another big hug xxx 🤗❤️
@@kyliestark7356 Thanks Kylie, It makes me sad to think of kids going through this. Life is neither easy nor fair. Kids should be learning about swings and bicycles. Not catheters and pain killers. It's funny you talk about having a preference for those that die without warning. My preference is the opposite. I am really glad that I am being given advance notice of my demise. It has allowed me to do things like update my will, mend a few fences with people I had fallen out with, and in one case throw someone out of my life whose true colours came out as being entirely selfish. My father died suddenly, and my mother died after a long decline. I handled the death of my mother MUCH better than the death of my father. I do get what you mean though. There is something nice in the thought of living life well every single day, and then just dropping dead suddenly (at a decent age). So I do understand why your preference is what it is. I just prefer the other one. Mind you, it's not like you get a choice when it actually happens...... Thanks for writing to me. I like messages that make me think. Cheers for doing that. Paul.
Thanks Sylvia, I have a curious mind to begin with. But it goes to another level when your life depends on it. Plus, because I have a one in a million cancer, almost every health professional I deal with has never heard of pseudomyxoma peritonei. So I need to know my stuff. And then you have all the flow on rarities that come with a rare cancer. Like me using up the last 16 French catheter that Fiona Stanley Hospital had in stock. FSH is a major metropolitan hospital. It's not a small hospital by any measure. And yet, because I need such an unusually large catheter, I need to make sure that they restock that item, because it won't be on their must-have list. So, yeah, it is cool to take such a detailed interest in my illness and treatment. But I also feel like I have to. Thanks for writing to me. Paul.
You rock Paul xx When ascites collects in your, belly it's called third spacing. Third-spacing occurs when too much fluid moves from the intravascular space (blood vessels) into the interstitial or “third” space-the nonfunctional area between cells. This can cause potentially serious problems such as edema, reduced cardiac output, and hypotension. Oxygen sats (saturation) How much oxygen is dissolved in your blood.
Hi Jan, that's interesting. My oxygen saturation is never below about 93%, and (as in the video) can get to 98%. So I'm not lacking in that area. Thank you for the introduction to 'third-spacing'. I will look into it more deeply. I need to know it back to front. Cheers for the info. Paul.
Thank you Paul. I found this very informative. I am amazed that you could have all that fluid in your belly. It must cause a great deal of discomfort or pain to you. 😳
My mother had the same chemo as you and said Gabapentin did not touch her neuropathy. She had 8 months of chemo and finished her chemo in Oct. 2023. She said some days are worse than others and that her peripheral neuropathy has improved. She finds exercising via daily swimming is much less painful than her daily walks.
Paul, first let me say I admire your courage. I too, am science based in my thinking about the challenges of life. Having said that, I have become very intrigued with the work of Dr. Bruce Grayson, a psychiatrist who has conducted years of research on near death experiences at the University of Virginia. I would recommend his book “after.“ he also has numerous interviews available on TH-cam. Despite my rigorous science background the evidence that he has accumulated is intriguing. You might find it interesting and somewhat comforting. I apologize if this has been suggested to you already, as I have not had an opportunity to review all the comments. Best wishes to you.
Just before my husband died of inoperable liver cancer and he at one point had 7 litres drained the others were about three litres, I made the mistake of reading up on metastatic ascites and it’s not a good sign in late stage liver/ abdominal cancers, Paul’s started building up with 24 hours, he also had albumin infusions. Thinking about you Paul in Perth xx
How'd I miss this one- behind again!! Hey hey Paul! My wonderful plumber friend got pulled in tonight for a ascites drain ! He's not in a pleasant mood!
Healthcare workers are hands-down the most compassionate people I know. My mother worked in healthcare, and so have more than half of my ex-girlfriends. The scientific side of my personality is from my dad. I've got some more ideas that I will film next week. Stay tuned. Thanks for writing to me. Paul.
Hi Paul, as an former Nurse in the UK, I found this fascinating so thank you for sharing it with us. I'm so sorry that you have cancer - it sucks. I am a breast cancer survivor and had chemo and radiation. The standard of care that you are getting looks very high. I love that they gave you the catheter to bring home - that speaks volumes about their great attitude...and yours! Take care Paul, love from the Outer Hebrides 🇬🇧
Amazing! I always wondered what the "pig tail" drain looked like. I had over 6 litres drained on my 1st drain. Thanks for the education, Paul you are a super cool dude. Love from South Wales (🇬🇧)... 💙
Yeah, it's funny isn't it. We so often hear all these terms, but then just don't get to know the detail. I've glad I was able to show you what a pig tail drain looks like. Six litres on a first drain is epic! Did that drain you dry? I hope so. Ascites sucks. We're on this journey together. Paul.
That was soooo interesting! This would really help someone needing this procedure who wanted to be better informed as well as people training in medicine. I hope the video is ulitised. You could give them permission to speak over anything you've said in your video that they wanted to clarify. Awesome job and I hope you feel much better now, Paul 😊
Hi Paul, just discovered your channel. I'm really taken by your courage, your insight & curiosity, and your drive to impart the fruits thereof. It's working, and reaching people in ways you probably never thought possible. For those of us along for the ride -- keep going!
Absolutely fascinating videos. I can't stop watching. What a precious gift that you are sharing your journey. Just found your videos on post 11. I thanku sincerely for your bravery, honesty, vulnerability and clear, knowledgeable commentary. You have a wonderful gift for speaking. I send my prayers and healings. Extremely helpful for people as myself watching a loved family member going through a similar journey. Deep appreciation for your valuable time and efforts. Take care.
You have the best smile Paul! My mother had peritoneal cancer. She had been drained twice and was so relieved afterward. Thank you for sharing your walk 💞
Hope you’re feeling more comfortable after your procedure Paul. I think making these videos will prove to be a positive focus for you as you navigate this. I’ll be rooting for you
Your doing great. Look into a guinea hen a garlic weed from Jamaica it's a root. Im the nurse that shared info two days ago you know who I am. Your doing great proud of you💕💕💕
First let me say you are a brilliant man and very intune with your condition & you are always so positive & gracious considering ... I am a retired EMT-IV after 24 yrs of service in the state of Tennessee USA so I can understand most of your terminology & the rest you make, in laymans terms, easy to understand ... Praying for you Paul & wishing you a long journey ... Dody Hurricane Mills, TN
That's great to hear Dody. I wanted it to be relatable and understandable. I particularly liked making this video, because I don't think there is too much content out there that answers the question: what is it like to get an ascites drain? I feel like I have done that, and at the same time shown that it is nothing to be scared of. I'll try and have that long journey that you speak of. I'm on board with the concept. But I only have some of the controls under my command. I'll do my best. I DO want to live..... Paul.
Have you considered having a drain placed that you can continue to drain yourself? Makes a huge relief in being able to drain when you start to feel the build up. Always praying 🙏 and gentle hugs 🫂
Great video Paul, excellent detail and filming the dissection really interesting. Hopefully they get the 20 gauge in. Hope you get some relief after that drainage
This is the first of Paul's videos I've watched. Your explanation of things is so clear and interesting I presumed you're a doctor probably even an oncologist who's now the patient. So curiosity made me look at your older videos and instead of interesting stories of working in medicine I discovered videos related to hints with car care and maintenance. You mentioned having a teaching back ground. Perfect choice as a career. I've subscribed.
Thank you. For the record, my full degree is Bachelor of Business (Information Processing and Technology). I then went on to do a half degree as a Bachelor of Science (Medical Imaging). But I didn't finish that degree, because a friend wanted to open an automotive shop with me, and I said yes. I've never studied medicine or oncology at a university. But I have friends that did, and we have lively discussions. I am an information sponge, so I pick up all kinds of things just talking over dinner. Plus my Latin and Greek are pretty good, and most medical terms are one or the other of those. When I was a teacher, I taught computing, and English as a Second Language. All the best, Paul.
You're welcome Connie. I've got a lot more to learn, and I'll share everything I can. I need to make this easier for the people that come after me. Paul.
Thank you, Paul for sharing this. I hear about ascites, but have never seen the radiological images and actual removal. You explain everything so well. I was a science teacher and I still love learning. So, again, thank you! ❤️ from Florida!
Thanks Georgie Girl. Spotting ascites on ultrasound is extremely easy. See all that black region in the imaging around my liver? Yeah, that's all ascites. The colour black on ultrasound is the density of water. So just look for the black stuff. Little portable ultrasound machines aren't that expensive. My hope is that portable US machines become standard equipment at GPs, and scans for ascites are done as part of a regular check-up. It take maybe two minutes to do an ascites check when the patient is already there. So why not do it? Catch the ascites early and the prognosis is better. That's the future I hope for. And if I was a GP I would buy the portable US and offer a scan to any patient with a bit of an odd belly profile. All the best, Paul.
Hi Paul, "odd belly profile"! Made me laugh. I don't know how it is in Australia but in the United States odd belly profiles are a dime a dozen. Thank you for your videos. I find them to be very educational. I am a long-term survivor of Non-Hodgkins. 40 years ago there was no Google. I bought a large cancer book at a pharmacy and poured over every page, every word and educated myself. Wishing you all the best on your journey.
@@christinahahni6144 Thank you Christina. The blessing of the Internet is that I can journal my cancer journey for those that follow me, knowing that TH-cam will persist even after my passing. It keeps me motivated to keep journaling. Well done on surviving NHL. Live well for those that cannot. All the best, Paul.
@PaulinPerth Addenndum: 40 years ago, NHL was as uncureable as pancreatic cancer today. I had a stem cell transplant that had been added to the cancer arsenal the year before. My liver failed, and my family was told I had 3 days. I was in vrry bad shape and failed to get the 3 day notice, so I kept living. My bilirubin numbers kept climbing, but 17 days later, my doctor stood at the foot of my bed and told me my bilirubin count had dropped by 1 point. Shevwas astonished. 3 weeks later, they wheeled me out of the hospital. 9 years later, I relapsed, but they had just added Retuxan, monoclonal antibody medication to the arsenal. Since then, my cancer has been non-detectable. Still lurking in the shadows, but my immune system recognizes NHL cells now and keeps them at bay. I was in a support group before the transplant. My platoon. Their memory has accompanied me on all my adventures and mundane days since . I found that learning everything I could about my cancer and treatments helped me immensely in controlling my fear. I also became a pro at meditation, which was tremendously helpful. Today, I am practicing tapping. I like the physicality of the tapping. It helps me to stay focused. You have a wonderfully strong spirit and a thirst for knowledge. Your journey is unique to you. You have gathered quite an army of followers. Know that we are all rooting for you and leaning so much along the way. Hope for the best, prepare for the worst, and live each day as if it were your last. Hug!
This was very interesting. I would think it would be very painful. My Son had liver disease and was drained several times and felt relief after being drained. He had. Liver transplant and then he had sepsis and passed away. I am praying for you Paul.🙏🙏🙏🙏
I can listen to you all day. Thank you for this very educational video. You are very good at explaining things. It’s easy to understand what’s going on. I am so, so sorry you have to have your ascites drained so often. Take care Paul. Love, Rita
I am enjoying these more medically/scientific videos. I went looking for Australian cancer vlogs and found yours. I am in Victoria so am appreciating your accent and very clear way of talking :)
Thanks Hillary. I've always liked science and explaining things. The accent is just the one I ended up with, but I am glad you like it. By the way, my mother was born in Colac and lived in Apollo Bay before meeting my dad. I'm eventually going to be interred at the Apollo Bay Cemetery right next to her and dad. But hopefully I can make you a heap more videos before I end up in Apollo Bay. Thanks for watching. There are more to come. Paul.
I am shocked that process takes literally all day. Did not realize how difficult it is - thanks for showing the process. You are clearly a teacher at heart!
Very very interesting. You seem knowledgeable about the medical issues. Didn't know the stomach could hold that much liquid without bursting sorry!! Came across your channel by chance will be following your progress.
Hi Beryl, ascites isn't held in the stomach. It's held in the abdominal cavity. You can read about it here: www.hopkinsmedicine.org/health/conditions-and-diseases/ascites All the best, Paul.
Omg this was fascinating.. my oldest daughters father was an alcoholic and had ascites, he was in the worst pain so my heart goes out to you. This was very interesting to see how this was done, so. Thank you for sharing ❤
It was my pleasure. I studied Medical Imaging for 2.5 years, so I knew that the images I captured were interesting in 1. the clear existence of the ascites. 2. the mucin in the ascites swirling around. 3. watching the tail of the liver swimming. I was also blessed in that the interventional radiologist let me film it. However, I believe that he too knew how unusual the images were. Thanks for writing. Paul.
Hi Paul - I am also from Perth. I studied 5 degrees, 4 are scientific and 1 is dentistry. I’m very impressed at how articulate you have been in your videos - every concept is explained so well. I wish you the best in this journey
Well, now you know about ascites. It's super easy to see on the ultrasound. That whole black area that my liver is swimming in is the ascites. Thanks for writing to me. Paul.
Wow. That was amazing to see. I’ve never seen that kind of imagery. Thank you. Also good to see the protocol. Those guys are looking after you well. Bloody hell, that’s a lot of fluid to be carrying around. I can imagine the relief when it’s gone. Shame that the catheter got blocked but 4.2 litres is still a lot of fluid. Thanks very much. Take care. Toodles.
Wow the fluid! It's a shame you can't sell it. You would be making some bucks you'd be a walking money maker. Lol. You are the coolest looking man your glasses are cool and your crooked smile is super cool. Even though I hate to see you go through hell I enjoy connecting with you. I love you fellow star.
Thanks May-bee! Yeah, I do love these glasses. I don't think you can buy this style anymore. I'd better take care of this set. I sat on the last set and broke the frame. 😕 Loving you too. Paul.
Hiya, Paul. I love how you are a scientist through and through. You geek out on science with such passion. As a lover of all the hard sciences I really appreciate all that you are doing to educate on your channel. Did you ever teach? Sending love and positive vibes from Kansas, USA.
Wow Paul, you’re incredibly brave. Thank u for taking the time to share your journey with us. I’m not sure what u do for a living, but I hope you’re a teacher or professor. Your teaching/education skills are outstanding!
Paul! I am a retired RN from the US! Do you have a medical background? You are so knowledgeable about all that is going on! Your videos are so interesting and I appreciate u sharing your journey with us! Cancer is horrible and I wish u didn’t have it! 😊
Sir, I couldn't even begin to imagine what you're going through. I'm here in California complaining about the heat, all the while, you're going through this rigorous procedure (s). Your video was recommended and I just so happen to click on and I've been watching you ever since. Ongoing sentiments of peace, love and light hun 💜
Thank you so much Nicole. Yeah, I'm having a tough time. But I'm sure someone else had an even tougher time than me. Life is neither easy nor fair. All the best, Paul.
I can’t begin to thank you for making those educational videos . They’re so very helpful , you look great already, plus it’s so good to see a smile in your face 🥰🥰🙏🏾🙏🏾🙏🏾.
Thank you so much. You will have noticed that I have cried a lot lately, so to have some opportunities to smile has felt great. I'll try and smile as much as I can and video it for you. Thanks for writing to me. Paul.
You seem in good spirits, all things considered. What a very informative and educational video. And what an extraordinary amount of fluid. It’s really mind blowing. I was just wondering if you have a P.O Box we can send care packages to? Cheers, from Country Victoria. Sending you so much love, strength and peace. Xx
Hi Joanne, tell me when you are online, and I will quickly put up the URL to my Facebook account. I don't have a PO box. We can discuss other ways to get stuff to me on there. Thank you for caring for me to this level. I do appreciate it. Paul.
Wow! What an incredible video, Paul. I'm so glad it all went well. I have a warped sense of humour and the contents of that bag reminds me of those pee bags I've had, when I've needed a catheter in hospital on several occasions. 😂
That must feel amazing to get all the fluid out. So much lighter. You should be proud of yourself. You fight and work hard to keep going. I dont have this cancer but i have 3 rare autoimmune diseases that wont ever be better or cured. Its hard to fight and keeo going when in severe pain. Sucks so badly. I wishthey had better help for quality of life. I have diffuse scleroderma neuromyelitis optica and sarcoidosis and other notmal autoimmune diseases like lupus, sjrogrens, small fiber neuropathy raynaud's and more lol. Fricken a lot. Buy i feel like most of my life ive been fighting to live. No one comes out of anything alive. Im 37 and wont make it to 40. I hust wish quality of life was better. Stay strong and know we
I'm so sad to hear your plight Heather. Life is not fair or easy. I hope that you can find a way to have a tolerable quality of life for whatever time you have left. Stay strong with me. Paul.
Very interesting indeed ! I hope you have felt some relief in your tummy x PS just checked out your singing - takes me back ! Going to have that song going round in my head all day now :) Best wishes 🌸
Well, with a name lie Snuffling Hedgehog, I feel like Fleagle, Bingo, Drooper and Snorky might be your friends. It takes me back too. Childhood songs are great like that. Thanks for writing to me. Paul.
Thank you for such a detailed explanation of what an ascites drainage entails. That fluid must get terribly painful in your belly! I hope you’re having as good a weekend as possible, Paul ❤
I know you will feel better for awhile. I so wish you weren't even going through this cancer journey. Prayers for you and thank you for educating us all.
Your journey is very important not only for yourself but for others who will have to go through the same thing.. keep your head up always and God bless you ❤ and the shirt is something else 😂kind of have to laugh at even the worst of times ❤❤
I had a dear friend experience this process. We'd take her out and about of hospital with her drains to get some sunshine (at Charlie's, Nedlands). I have some hilarious photos of her mucking around with them, bless! Ascites is so weird really. Thanks for the update 🙂
Really enjoyed that dissection since we have pigtails at work in theatre and I don't get to play with them! And yes we handle bodily fluids and masses all day, u kind of get used to it but you respect it and the person it originated from x
When I accepted that my calling was to be a nurse, I had to do what you are doing. Look at everything with a scientific mindset. Here I was, an 18 year old young lady who was, literally, terrified of needles to the point I would hyperventilate every time I walked into a hospital. My mom actually laughed when I told her what my career choice was going to be. It was a very kind and patient corpman who taught me how to separate myself from the procedure I was experiencing and look at things with a scientific mindset. Made all the difference in the world. Keep educating through your experience. Like you said, knowledge is a legacy. Hoping you continue to find reasons to live your best possible life. Your viewers would miss the all of the knowledge you give freely and the wonderful message of love and humanity you demonstrate.❤
Thank you for explaining in great detail everything, I found this very interesting, my daughter is a Registered Nurse, it really amazes me how these medical workers dedicate their lives to this stuff. In regards to the clean up..., I would think you would be carrying the sanitizer on your belt and spraying everything in site!! Thank you again Paul for the awesome video and honestly am looking forward to your next and maybe even hearing you sing the banana spit song.
Firstly, i have to say you are looking well,the tour around the park was lovely. You are so good at explaining things and making it sound interesting,so thank you for that😊 How has everything else been ?
Its so interesting how the body can produce so much fluid. I'm glad you were able to get a good bit out and I really hope they can order bigger needles to help you out further. I think I would've been cleaning a lot too although I think you're safe. Hope you can get some sun and relaxation this weekend. 🧡
Your videos came up in my recommendations, as I watch a couple of other TH-cam channels that are also dealing with cancer (Jenny Apple & Pog Family). Don't really have much to say, but I hope you are doing well. That was certainly a fair bit of fluid they managed to get out. My thoughts are with you from all the way across the country in the great state of Vic 🇦🇺
Hi Paul! I am a registered nurse in the US and have been for the last 30 years. What an education! In the earlier part of my career I did exactly what you did with every chance I could… inspecting, dissecting and really understanding how things work. You took me back to that time! I also wanted to tell you how wonderful it is to see you smile. Cancer sucks!
Thanks Sharon,
I will try and smile more for the camera. There's a fair bit of crying in my first 12 updates, so I need to balance it out.
I should have some good discussion topics coming up in the next week. I have my initial appointment with my chemo oncologist on Tuesday, plus a friend of mine that works in oncology wants to do an episode on nutrition for cancer patients. She's got some cool insights into it from her work.
And then I have my second psychology session on Thursday.
So plenty to talk about, and hopefully my smile will make an appearance.
Thank you for writing to me.
Paul.
If I had a teacher that both explains and then shows things the way you do you would have been my favourite teacher,thank you for taking the time and including us on your journey
Thanks very much. I recall my days teaching computing very fondly. At this stage, I can't let myself dream of doing that again. But making these videos does bring me happiness.
Thanks for writing to me.
Paul.
I’m loving your energy and honesty z😘
Don't stop fighting!Please do not give up!I have stage III Sinovial Sarcoma on my leg.I know how you feel.I do not have the same thing,I know now that I will have a surgery that maybe will save my life.I was so scared that I was thinking to take my oun life.Don't stop I fell your pain!
I also had excellent treatment at Fiona Stanley, for breast cancer. How lucky are we, to have such wonderful care!
Yep. Hats off to all the staff there. They were wonderful.
Paul.
Sir you are in my prayers from Georgia in America. I hope you get cured. This is very sad.
Hi Paul, OMG you sound like a doctor. Did you only learn all this from being ill. You are such an interesting person, I could listen to you all day. I'm a new follower and that's why I'm a month behind. I started on the video when you were told you only had a short time to live. You certainly now have accepted it and you're making the most of it. Keep the videos going, this is your legacy and like you said this is what you're going to be remembered for. You're amazing. If you were 14 in '84 I was 15 so I can relate aboout depression but mostly the 80s were amazing. well I'm sending you my ❤️ from Bridgend South wales, 🇬🇧. I'm obsèssed now and can't stop watching 😮 xx
Fascinating. You look brighter today. Xxx
I looked to see how long cancer cells can survive outside of the body and was actually surprised: The length of time a human cell can live outside the body depends on the type of cell and the condition in which it is kept. Red blood cells can survive for 120 days if kept in a cool environment without moisture loss. White blood cells survive for four days to four months depending on the type of cell.
Hi Melanie,
yeah, most of the articles I found suggested that in non-optimal conditions, cancer cells can last about two hours outside of the human body. So I was fine as that catheter had been out for ten hours. But I promise you, I really, really disinfected EVERY surface that you see in that dissection sequence.
FYI that stain on the table cloth is the hand sanitiser. Damn thing squirted all over the place! Anyway, it's hanging on the clothes-line now.
A friend of mine did a PhD on in-vitro cancers, and she assured me that I was not in any actual danger. But that assurance was several hours AFTER I shot the video.
Thanks for writing.
Paul.
Hi Paul, I've just sat and binge watched all your cancer videos. My heart is broken that you need to make such difficult choices. You are so well informed about your diagnosis and teaching us so much. You look so healthy and I'm sending all my love from uk. X
I look healthy right up until you see my abdomen on a contrast CT. Trust me.
Paul.
Every time I watch one of your videos I learn so much!! You're a great teacher! I guess I'm watching out of order, but your resilience is quite impressive! Praying for you! Deb in the USA 😊
My husband had ascites because the cancer within his paratonia cavity. He had drain bags for a while, but the drain bag got pulled out once after he come home from the Whipple procedure. And he went in to have the drain put back in. In the tube they used to put it in, was obviously tainted. Because the oncologist said he believes that somehow it was, the tools used to insert the drain hose into the abdomen was not sterile, so when that happens, you got a big mess on your hands! So within about a week after he was home from having that drain or a new drain inserted he started having chills running high fevers that would subside and come back and go and come back 104 105° fevers that would come and go so we called the oncologist and they rushed him into emergency and while he was in emergency to be seen, they took him down to get a CAT scan and then brought him back up and as soon as they brought him up and put him back into his bed, he started shaking and his fever spiked to 107 and they’re all freaking out and the doctors are in and out freaking out so bad I’m just standing here at the foot of the bed watching in shock! Before finally, they told me I had to go you don’t leave the room. He had gotten an infection called sepsis so that landed him in the hospital for a few weeks. He just barely survived it. So be careful whenever you’re having anything inserted into your body. You’re going in and out all these different moving parts. Anything could happen if you start to feel a little weird or you get chills or you may be running a slight fever, mention it right away, so they can check it out! Because it can be life or death.😐
Also, I just wanted to say that the oncologist told my husband that they can’t drain the fluid very often because it just comes back fast and every time you go in to have it drained you’re taking a risk like I mentioned above! So they kinda let your stomach get really big you know it gets painful but they let it get pretty big pretty bloated before they go in and drain 👍
Hospitals,
Rehabs, Nursing Homes are germmie, Hospital
Acquired Pneumonia, MRSA, Staph= Sceptic Shock! Usually death. The facilities are at fault, noT keeping things sterile!
Thank you Paul. I have an ascites drain in my near future - fluid from Lung Mets. You demystified the process, which I gratefully appreciate. You are an amazing guy, given your diagnosis,
you are helping folks like me enormously. Sending healing energy.
That was fascinating! But, I'm so sorry that cancer is in you.
WOW, that is fascinating! Thank you for sharing.
Are you in less pain after the drain ? You brave soldier xxx who is educating all of us. Big hug xxx❤
Hi Kylie,
oh yes. When I am full of ascites, the pressure on my internal organs causes me to hurt in several places. In particular my lower left quadrant near where the descending colon becomes the sigmoid colon.
Once I'm drained, the pressure is released. However, then I have the acute pain of the incision site.
But then there is Buprenorphine.......
Thanks for the big hug. Back at ya ok?
Paul.
I am a nurse. A kids oncology nurse. We drain ascites from them in same way. The volume still amazes me after 37 years of watching it. Children are naive to the meaning of this stage but explaining the process and the why is age dependent. Cancer is from cradle to grave in its picking . My experience is that anyone who experiences the ravages of this disease is a hero a warrior and a visible reminder to us all. That life is precious and that suffering is real and cancer patients show the community what’s it’s like to live until you die ! However you choose to live those days. I reckon those that die without warning get it easy xxxx another big hug xxx 🤗❤️
@@kyliestark7356 Thanks Kylie,
It makes me sad to think of kids going through this. Life is neither easy nor fair.
Kids should be learning about swings and bicycles. Not catheters and pain killers.
It's funny you talk about having a preference for those that die without warning. My preference is the opposite.
I am really glad that I am being given advance notice of my demise. It has allowed me to do things like update my will, mend a few fences with people I had fallen out with, and in one case throw someone out of my life whose true colours came out as being entirely selfish.
My father died suddenly, and my mother died after a long decline. I handled the death of my mother MUCH better than the death of my father.
I do get what you mean though. There is something nice in the thought of living life well every single day, and then just dropping dead suddenly (at a decent age).
So I do understand why your preference is what it is. I just prefer the other one.
Mind you, it's not like you get a choice when it actually happens......
Thanks for writing to me. I like messages that make me think. Cheers for doing that.
Paul.
Paul Paul Paul you never fail to fascinate ❤
It is so heart wrenching at the same time as it is interesting.
Glad it went well!
That's so cool that you take a detailed interest in your illness and treatment.
Thanks Sylvia,
I have a curious mind to begin with. But it goes to another level when your life depends on it. Plus, because I have a one in a million cancer, almost every health professional I deal with has never heard of pseudomyxoma peritonei. So I need to know my stuff.
And then you have all the flow on rarities that come with a rare cancer. Like me using up the last 16 French catheter that Fiona Stanley Hospital had in stock. FSH is a major metropolitan hospital. It's not a small hospital by any measure.
And yet, because I need such an unusually large catheter, I need to make sure that they restock that item, because it won't be on their must-have list.
So, yeah, it is cool to take such a detailed interest in my illness and treatment. But I also feel like I have to.
Thanks for writing to me.
Paul.
@@PaulinPerth Undeniably will be of invaluable use to someone with your diagnosis.
Good to see you smile, video was really interesting, thank you for sharing
You rock Paul xx When ascites collects in your, belly it's called third spacing. Third-spacing occurs when too much fluid moves from the intravascular space (blood vessels) into the interstitial or “third” space-the nonfunctional area between cells. This can cause potentially serious problems such as edema, reduced cardiac output, and hypotension. Oxygen sats (saturation) How much oxygen is dissolved in your blood.
Hi Jan,
that's interesting. My oxygen saturation is never below about 93%, and (as in the video) can get to 98%. So I'm not lacking in that area.
Thank you for the introduction to 'third-spacing'. I will look into it more deeply. I need to know it back to front.
Cheers for the info.
Paul.
Thank you Paul. I found this very informative. I am amazed that you could have all that fluid in your belly. It must cause a great deal of discomfort or pain to you. 😳
Everybody should know you, because you are such a sweet person and of course cause you’re a you tuber 😂🤗😘
I’m so sorry you’re sick, but I do enjoy listening to you explain things. Sending positive vibes/thoughts your way!!!!
My mother had the same chemo as you and said Gabapentin did not touch her neuropathy. She had 8 months of chemo and finished her chemo in Oct. 2023. She said some days are worse than others and that her peripheral neuropathy has improved. She finds exercising via daily swimming is much less painful than her daily walks.
Paul, first let me say I admire your courage. I too, am science based in my thinking about the challenges of life. Having said that, I have become very intrigued with the work of Dr. Bruce Grayson, a psychiatrist who has conducted years of research on near death experiences at the University of Virginia. I would recommend his book “after.“ he also has numerous interviews available on TH-cam. Despite my rigorous science background the evidence that he has accumulated is intriguing. You might find it interesting and somewhat comforting. I apologize if this has been suggested to you already, as I have not had an opportunity to review all the comments. Best wishes to you.
I really admire your strength and the fact that you are taking a serious interest in every aspect of your treatment. Wishing you a miracle Paul! 🙏
Just before my husband died of inoperable liver cancer and he at one point had 7 litres drained the others were about three litres, I made the mistake of reading up on metastatic ascites and it’s not a good sign in late stage liver/ abdominal cancers, Paul’s started building up with 24 hours, he also had albumin infusions.
Thinking about you Paul in Perth xx
You are such an interesting person. I'm fascinated with all this.
So educational, thank you and blessyou for taking us on your journey
How'd I miss this one- behind again!! Hey hey Paul! My wonderful plumber friend got pulled in tonight for a ascites drain ! He's not in a pleasant mood!
Sending good vibes from Texas. 💗💪🏾 really enjoy ur videos!
You are a wonderful soul. I wish I get to know you under different circumstances. Best wishes!
It's great that you are getting such kind, compassionate care. I really enjoy your scientific explanations!
Healthcare workers are hands-down the most compassionate people I know. My mother worked in healthcare, and so have more than half of my ex-girlfriends.
The scientific side of my personality is from my dad.
I've got some more ideas that I will film next week. Stay tuned.
Thanks for writing to me.
Paul.
Lots of love to you Paul, I am so sorry you are going through this. Thank you for providing this insight into your treatment, take care.
🇨🇦Hi Paul. Watching from Canada.
Most informative 🙏🤗
Hi Paul, as an former Nurse in the UK, I found this fascinating so thank you for sharing it with us. I'm so sorry that you have cancer - it sucks. I am a breast cancer survivor and had chemo and radiation. The standard of care that you are getting looks very high. I love that they gave you the catheter to bring home - that speaks volumes about their great attitude...and yours! Take care Paul, love from the Outer Hebrides 🇬🇧
Amazing! I always wondered what the "pig tail" drain looked like. I had over 6 litres drained on my 1st drain. Thanks for the education, Paul you are a super cool dude. Love from South Wales (🇬🇧)... 💙
Yeah, it's funny isn't it. We so often hear all these terms, but then just don't get to know the detail.
I've glad I was able to show you what a pig tail drain looks like.
Six litres on a first drain is epic! Did that drain you dry? I hope so. Ascites sucks. We're on this journey together.
Paul.
Cancer is such a horrible disease. I think you seem like such a nice man. Sorry that you have this horror story going on , love from Scotland xxx
Wow Paul you are SO brave ! Well done chap xx
I am glad you have gotten some relief with the draining.
That was soooo interesting! This would really help someone needing this procedure who wanted to be better informed as well as people training in medicine. I hope the video is ulitised. You could give them permission to speak over anything you've said in your video that they wanted to clarify. Awesome job and I hope you feel much better now, Paul 😊
Very good point.
Hi Paul, just discovered your channel. I'm really taken by your courage, your insight & curiosity, and your drive to impart the fruits thereof. It's working, and reaching people in ways you probably never thought possible. For those of us along for the ride -- keep going!
Hang in there brother, you don’t know how many people you are helping…
Absolutely fascinating videos. I can't stop watching. What a precious gift that you are sharing your journey. Just found your videos on post 11. I thanku sincerely for your bravery, honesty, vulnerability and clear, knowledgeable commentary. You have a wonderful gift for speaking. I send my prayers and healings. Extremely helpful for people as myself watching a loved family member going through a similar journey. Deep appreciation for your valuable time and efforts. Take care.
Thanks Sarah,
Please send on my best wishes to your loved one. It's a heck of a journey, and it needs support from loved ones.
Paul.
You have the best smile Paul! My mother had peritoneal cancer. She had been drained twice and was so relieved afterward. Thank you for sharing your walk 💞
Hope you’re feeling more comfortable after your procedure Paul. I think making these videos will prove to be a positive focus for you as you navigate this. I’ll be rooting for you
Your doing great. Look into a guinea hen a garlic weed from Jamaica it's a root. Im the nurse that shared info two days ago you know who I am. Your doing great proud of you💕💕💕
First let me say you are a brilliant man and very intune with your condition & you are always so positive & gracious considering ... I am a retired EMT-IV after 24 yrs of service in the state of Tennessee USA so I can understand most of your terminology & the rest you make, in laymans terms, easy to understand ... Praying for you Paul & wishing you a long journey ...
Dody
Hurricane Mills, TN
That's great to hear Dody. I wanted it to be relatable and understandable. I particularly liked making this video, because I don't think there is too much content out there that answers the question: what is it like to get an ascites drain? I feel like I have done that, and at the same time shown that it is nothing to be scared of.
I'll try and have that long journey that you speak of. I'm on board with the concept. But I only have some of the controls under my command. I'll do my best. I DO want to live.....
Paul.
Have you considered having a drain placed that you can continue to drain yourself? Makes a huge relief in being able to drain when you start to feel the build up. Always praying 🙏 and gentle hugs 🫂
Great video Paul, excellent detail and filming the dissection really interesting. Hopefully they get the 20 gauge in. Hope you get some relief after that drainage
This is the first of Paul's videos I've watched. Your explanation of things is so clear and interesting I presumed you're a doctor probably even an oncologist who's now the patient.
So curiosity made me look at your older videos and instead of interesting stories of working in medicine I discovered videos related to hints with car care and maintenance. You mentioned having a teaching back ground. Perfect choice as a career.
I've subscribed.
Thank you. For the record, my full degree is Bachelor of Business (Information Processing and Technology). I then went on to do a half degree as a Bachelor of Science (Medical Imaging). But I didn't finish that degree, because a friend wanted to open an automotive shop with me, and I said yes.
I've never studied medicine or oncology at a university. But I have friends that did, and we have lively discussions. I am an information sponge, so I pick up all kinds of things just talking over dinner.
Plus my Latin and Greek are pretty good, and most medical terms are one or the other of those.
When I was a teacher, I taught computing, and English as a Second Language.
All the best, Paul.
As a now retired nurse from the UK I found this vlog very interesting, thanks for sharing. I have learned something new today. Namaste. x
Thank you! Please let me know if I got anything wrong. I've studied medical imaging, but never nursing.
Paul.
WOW,so fascinating! Thank you again for sharing and teaching us, you are so amazing Paul! 🇨🇦
You're welcome Connie. I've got a lot more to learn, and I'll share everything I can. I need to make this easier for the people that come after me.
Paul.
Very, very interesting....TY 💪
Thank you, Paul for sharing this. I hear about ascites, but have never seen the radiological images and actual removal. You explain everything so well. I was a science teacher and I still love learning. So, again, thank you! ❤️ from Florida!
Thanks Georgie Girl. Spotting ascites on ultrasound is extremely easy. See all that black region in the imaging around my liver? Yeah, that's all ascites. The colour black on ultrasound is the density of water. So just look for the black stuff.
Little portable ultrasound machines aren't that expensive. My hope is that portable US machines become standard equipment at GPs, and scans for ascites are done as part of a regular check-up. It take maybe two minutes to do an ascites check when the patient is already there. So why not do it?
Catch the ascites early and the prognosis is better.
That's the future I hope for. And if I was a GP I would buy the portable US and offer a scan to any patient with a bit of an odd belly profile.
All the best, Paul.
Hi Paul, "odd belly profile"! Made me laugh. I don't know how it is in Australia but in the United States odd belly profiles are a dime a dozen. Thank you for your videos. I find them to be very educational. I am a long-term survivor of Non-Hodgkins. 40 years ago there was no Google. I bought a large cancer book at a pharmacy and poured over every page, every word and educated myself. Wishing you all the best on your journey.
@@christinahahni6144 Thank you Christina. The blessing of the Internet is that I can journal my cancer journey for those that follow me, knowing that TH-cam will persist even after my passing. It keeps me motivated to keep journaling.
Well done on surviving NHL. Live well for those that cannot.
All the best, Paul.
@PaulinPerth Addenndum: 40 years ago, NHL was as uncureable as pancreatic cancer today. I had a stem cell transplant that had been added to the cancer arsenal the year before. My liver failed, and my family was told I had 3 days. I was in vrry bad shape and failed to get the 3 day notice, so I kept living. My bilirubin numbers kept climbing, but 17 days later, my doctor stood at the foot of my bed and told me my bilirubin count had dropped by 1 point. Shevwas astonished. 3 weeks later, they wheeled me out of the hospital. 9 years later, I relapsed, but they had just added Retuxan, monoclonal antibody medication to the arsenal. Since then, my cancer has been non-detectable. Still lurking in the shadows, but my immune system recognizes NHL cells now and keeps them at bay. I was in a support group before the transplant. My platoon. Their memory has accompanied me on all my adventures and mundane days since . I found that learning everything I could about my cancer and treatments helped me immensely in controlling my fear. I also became a pro at meditation, which was tremendously helpful. Today, I am practicing tapping. I like the physicality of the tapping. It helps me to stay focused. You have a wonderfully strong spirit and a thirst for knowledge. Your journey is unique to you. You have gathered quite an army of followers. Know that we are all rooting for you and leaning so much along the way. Hope for the best, prepare for the worst, and live each day as if it were your last. Hug!
This was very interesting. I would think it would be very painful. My Son had liver disease and was drained several times and felt relief after being drained. He had. Liver transplant and then he had sepsis and passed away. I am praying for you Paul.🙏🙏🙏🙏
I can listen to you all day. Thank you for this very educational video. You are very good at explaining things. It’s easy to understand what’s going on. I am so, so sorry you have to have your ascites drained so often. Take care Paul. Love, Rita
Thanks Rita. Stick with me on the journey. I have a lot to learn yet, and I will pass it onto you as best I can.
Thanks for writing to me.
Paul.
I am enjoying these more medically/scientific videos. I went looking for Australian cancer vlogs and found yours. I am in Victoria so am appreciating your accent and very clear way of talking :)
Thanks Hillary. I've always liked science and explaining things. The accent is just the one I ended up with, but I am glad you like it.
By the way, my mother was born in Colac and lived in Apollo Bay before meeting my dad. I'm eventually going to be interred at the Apollo Bay Cemetery right next to her and dad.
But hopefully I can make you a heap more videos before I end up in Apollo Bay.
Thanks for watching. There are more to come.
Paul.
I am shocked that process takes literally all day. Did not realize how difficult it is - thanks for showing the process. You are clearly a teacher at heart!
I’m pleased to see you looking so well. Keep taking care of yourself.
Very very interesting. You seem knowledgeable about the medical issues. Didn't know the stomach could hold that much liquid without bursting sorry!! Came across your channel by chance will be following your progress.
Hi Beryl,
ascites isn't held in the stomach. It's held in the abdominal cavity.
You can read about it here: www.hopkinsmedicine.org/health/conditions-and-diseases/ascites
All the best, Paul.
Omg this was fascinating.. my oldest daughters father was an alcoholic and had ascites, he was in the worst pain so my heart goes out to you. This was very interesting to see how this was done, so. Thank you for sharing ❤
It was my pleasure. I studied Medical Imaging for 2.5 years, so I knew that the images I captured were interesting in 1. the clear existence of the ascites. 2. the mucin in the ascites swirling around. 3. watching the tail of the liver swimming.
I was also blessed in that the interventional radiologist let me film it. However, I believe that he too knew how unusual the images were.
Thanks for writing.
Paul.
Interesting, super interesting. Well done Paul. 👍🩵👍
Hi Paul - I am also from Perth. I studied 5 degrees, 4 are scientific and 1 is dentistry. I’m very impressed at how articulate you have been in your videos - every concept is explained so well. I wish you the best in this journey
interesting thanks for sharing you’re looking good and I’ve always wondered what ascites is. The nurses are always so great.
Well, now you know about ascites. It's super easy to see on the ultrasound. That whole black area that my liver is swimming in is the ascites.
Thanks for writing to me.
Paul.
Wow. That was amazing to see. I’ve never seen that kind of imagery. Thank you. Also good to see the protocol. Those guys are looking after you well. Bloody hell, that’s a lot of fluid to be carrying around. I can imagine the relief when it’s gone. Shame that the catheter got blocked but 4.2 litres is still a lot of fluid.
Thanks very much.
Take care. Toodles.
Wow the fluid! It's a shame you can't sell it. You would be making some bucks you'd be a walking money maker. Lol. You are the coolest looking man your glasses are cool and your crooked smile is super cool. Even though I hate to see you go through hell I enjoy connecting with you. I love you fellow star.
Thanks May-bee! Yeah, I do love these glasses. I don't think you can buy this style anymore. I'd better take care of this set. I sat on the last set and broke the frame. 😕
Loving you too.
Paul.
Hiya, Paul. I love how you are a scientist through and through. You geek out on science with such passion. As a lover of all the hard sciences I really appreciate all that you are doing to educate on your channel. Did you ever teach?
Sending love and positive vibes from Kansas, USA.
Yes. I taught computing as a Microsoft Certified Trainer, and also English as a Second Language.
Reciprocating love and vibes, Paul.
Wow Paul, you’re incredibly brave. Thank u for taking the time to share your journey with us. I’m not sure what u do for a living, but I hope you’re a teacher or professor. Your teaching/education skills are outstanding!
Paul! I am a retired RN from the US! Do you have a medical background? You are so knowledgeable about all that is going on! Your videos are so interesting and I appreciate u sharing your journey with us! Cancer is horrible and I wish u didn’t have it! 😊
Sir, I couldn't even begin to imagine what you're going through. I'm here in California complaining about the heat, all the while, you're going through this rigorous procedure (s). Your video was recommended and I just so happen to click on and I've been watching you ever since. Ongoing sentiments of peace, love and light hun 💜
Thank you so much Nicole. Yeah, I'm having a tough time. But I'm sure someone else had an even tougher time than me. Life is neither easy nor fair.
All the best, Paul.
All the best Sir.
I can’t begin to thank you for making those educational videos . They’re so very helpful , you look great already, plus it’s so good to see a smile in your face 🥰🥰🙏🏾🙏🏾🙏🏾.
Thank you so much. You will have noticed that I have cried a lot lately, so to have some opportunities to smile has felt great.
I'll try and smile as much as I can and video it for you.
Thanks for writing to me.
Paul.
That was so interesting, Paul. Do you know what they do with the bags of ascites?
Hi Maureen,
I do know as it turns out, because I asked the nurse. They pour it into the toilet, and then press flush.
Paul.
@@PaulinPerth Hehe, thanks Paul 😄
You seem in good spirits, all things considered. What a very informative and educational video. And what an extraordinary amount of fluid. It’s really mind blowing. I was just wondering if you have a P.O Box we can send care packages to? Cheers, from Country Victoria. Sending you so much love, strength and peace. Xx
Hi Joanne, tell me when you are online, and I will quickly put up the URL to my Facebook account. I don't have a PO box. We can discuss other ways to get stuff to me on there. Thank you for caring for me to this level. I do appreciate it. Paul.
Wow! What an incredible video, Paul. I'm so glad it all went well.
I have a warped sense of humour and the contents of that bag reminds me of those pee bags I've had, when I've needed a catheter in hospital on several occasions. 😂
That must feel amazing to get all the fluid out. So much lighter. You should be proud of yourself. You fight and work hard to keep going. I dont have this cancer but i have 3 rare autoimmune diseases that wont ever be better or cured. Its hard to fight and keeo going when in severe pain. Sucks so badly. I wishthey had better help for quality of life. I have diffuse scleroderma neuromyelitis optica and sarcoidosis and other notmal autoimmune diseases like lupus, sjrogrens, small fiber neuropathy raynaud's and more lol. Fricken a lot. Buy i feel like most of my life ive been fighting to live. No one comes out of anything alive. Im 37 and wont make it to 40. I hust wish quality of life was better. Stay strong and know we
I'm so sad to hear your plight Heather. Life is not fair or easy. I hope that you can find a way to have a tolerable quality of life for whatever time you have left. Stay strong with me. Paul.
Very interesting indeed !
I hope you have felt some relief in your tummy x
PS just checked out your singing - takes me back !
Going to have that song going round in my head all day now :)
Best wishes 🌸
Well, with a name lie Snuffling Hedgehog, I feel like Fleagle, Bingo, Drooper and Snorky might be your friends.
It takes me back too. Childhood songs are great like that.
Thanks for writing to me.
Paul.
Saturday mornings :)
Snorky was my favourite x
Thank you,i have seen this in my own scans,and prior to that with a lot of patients, I'm with you my friend
Interesting video!
Thank you for such a detailed explanation of what an ascites drainage entails. That fluid must get terribly painful in your belly! I hope you’re having as good a weekend as possible, Paul ❤
Very interesting, your videos will be so helpful and informative for others who have or will have your type of cancer.
I know you will feel better for awhile. I so wish you weren't even going through this cancer journey. Prayers for you and thank you for educating us all.
Thank you for explaining everything that’s happening so sleazily. You’re so brave
. Wishing you well .
Your journey is very important not only for yourself but for others who will have to go through the same thing.. keep your head up always and God bless you ❤ and the shirt is something else 😂kind of have to laugh at even the worst of times ❤❤
I had a dear friend experience this process. We'd take her out and about of hospital with her drains to get some sunshine (at Charlie's, Nedlands). I have some hilarious photos of her mucking around with them, bless! Ascites is so weird really. Thanks for the update 🙂
Weird? Its fluid.
Really enjoyed that dissection since we have pigtails at work in theatre and I don't get to play with them! And yes we handle bodily fluids and masses all day, u kind of get used to it but you respect it and the person it originated from x
I absolutely love your t-shirt
You are really GOOD at explaining ! Enjoyed your narrative tremendously. Can't wait for your next update
You inspire us !
When I accepted that my calling was to be a nurse, I had to do what you are doing. Look at everything with a scientific mindset. Here I was, an 18 year old young lady who was, literally, terrified of needles to the point I would hyperventilate every time I walked into a hospital. My mom actually laughed when I told her what my career choice was going to be. It was a very kind and patient corpman who taught me how to separate myself from the procedure I was experiencing and look at things with a scientific mindset. Made all the difference in the world. Keep educating through your experience. Like you said, knowledge is a legacy. Hoping you continue to find reasons to live your best possible life. Your viewers would miss the all of the knowledge you give freely and the wonderful message of love and humanity you demonstrate.❤
Thank you Judy for your kind words, and for your service as a healthcare worker. Paul.
Thank you for that just read it. That's educated me!
Thank you for explaining in great detail everything, I found this very interesting, my daughter is a Registered Nurse, it really amazes me how these medical workers dedicate their lives to this stuff. In regards to the clean up..., I would think you would be carrying the sanitizer on your belt and spraying everything in site!! Thank you again Paul for the awesome video and honestly am looking forward to your next and maybe even hearing you sing the banana spit song.
Firstly, i have to say you are looking well,the tour around the park was lovely. You are so good at explaining things and making it sound interesting,so thank you for that😊
How has everything else been ?
You must feel so much better after the paracentesis Paul. A very educational video. X
May Allah have mercy on you and restore you to complete health my brother in humanity.
Its so interesting how the body can produce so much fluid. I'm glad you were able to get a good bit out and I really hope they can order bigger needles to help you out further. I think I would've been cleaning a lot too although I think you're safe. Hope you can get some sun and relaxation this weekend. 🧡
You must feel so relieved afterwards??
That procedure should have given you some relief, I hope you feel much better now. 👍
Your videos came up in my recommendations, as I watch a couple of other TH-cam channels that are also dealing with cancer (Jenny Apple & Pog Family).
Don't really have much to say, but I hope you are doing well.
That was certainly a fair bit of fluid they managed to get out.
My thoughts are with you from all the way across the country in the great state of Vic 🇦🇺