Lupus Patient Success Story - Lupus Affecting the Brain in a Young Patient
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- เผยแพร่เมื่อ 5 ธ.ค. 2020
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Hear the inspiring success story of a young lupus patient, who battled the disease affecting his brain. Learn more about lupus and how it can impact different parts of the body. #lupus #lupusawarenessmonth
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👩🏻⚕️ About Me: Dr. Diana Girnita is a distinguished, double board-certified physician specializing in Rheumatology and Internal Medicine. Holding a Ph.D. in Immunology and having completed rigorous training at Harvard and other top-tier institutions, her expertise in rheumatology is unparalleled. 🎓🏥
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I was diagnosed with Lupus about 2.5-3 years ago. My doctor used a blood test, and my symptoms I listed and he noticed the butterfly rash on my face. Then he tested my blood pressure (which was normal) and temperature (low grade fever) and I was then told I have Systemic Lupus (SLE) and given an anti-malaria drug. I also have seizures (mix of grand mal and petite mal, where I basically lose consciousness for a short time) and every time I have one, a fever starts within the day and I have a flare up of lupus pains. The pain can be a dull pain or like a broken bone everywhere.
Long story shorter, lupus sucks and it makes my medicine cabinet look like an entire pharmacy. I’m only 24 years old (soon 25.)
Best of luck to anyone who deals with this frustrating and horrible disease.
DAMM I'M 60 I'VE HAD WHAT YOU DESCRIBED FOR ALL MOST 20 YEAR'S!!!!!! I'M AFRAID THIS WILL BE THE LAST YEAR IT'S GETTING WORSE!!!
oh, the story is somewhat similar to what I experienced.. It was 10-11 years ago, I had symptoms like stroke, bell's palsy, confusion, sleepy, decreased speech ability, unable to follow lectures properly, there is no strength to write, to the point that I can't understand a passage (even though I know what letter it is) After almost 2 weeks of experiencing symptoms, I finally went to the hospital. The first diagnosis was a stroke, but my blood pressure was normal. After doing an MRI, there was pretty large lesion, indicating inflammation. The doctor diagnosed me with inflammation of the brain. I was in the hospital for 1 month. After discharged from the hospital, I still had a problem with my speech, It got pretty bad when I'm in bad state or feel really tired, or when I was stressed. In 2021 the symptoms started to get worse, so I went to the hospital. Go to a neurologist. did another MRI, and the result was an additional lesion, although not too large. the results of the examination of the cerebrospinal fluid found no signs of bacterial or viral infection, and neither did Multiple Sclerosis. The doctor told me to do the ANA if test, etc. The results showed I had lupus. After 9 years of being misdiagnosed, I was diagnosed with lupus. Right now, I'm still on treatment. My speech ability is getting better (although not as normal as before), and starting to be more stable.
What’s your treatment?
Thank you for sharing. It helps to read severe cases similar to my own.
??? I didn’t know you can have brain lesions that are not MS. That’s interesting and new to me. Thanks. I wish you the very best.
I have lupus SLE and I remember me going into a Kohl’s and feeling very dizzy, loss of balance and not knowing where I was. This has happened to me a few time even just getting my medication I just blanked out at the cash register and the pharmacist said hello are you ok I just snapped out of it. Also I started to forget stuff, appointments, my usual recipes and my everyday activities, spelling words. I decided to see my neurologist and told them everything that’s been happening I ask is this dematia, Alzheimer’s. So she sent me to a specialist that gives you a test thoroughly, they asked me questions I answered it then they gave me a my results witch was I don’t have Alzheimer’s or dementia but, I do have Encephalopathy due to lupus and that was a few years ago. Today I’m still dealing with short term memory loss and not able to spell words. I was so upset with myself I just feel terrible about myself between lupus, migraines, not able to get my words out correctly.
Omg! I lupus also suffer from terrible migraines
@@LinneaSanchez I’m very sorry your going through this, lupus is a very horrible disease to deal with we never know when or where it’s going to hit us.
In retrospect I think I suffered from it beginning in my preteens. There’s no real
relief.
God bless you .. I found that I got it in 2016 that's when I found out I noticed that I'm getting like angry and just upset and a lot of crying and my headaches oh my God thank you for telling me that God bless you I'm nidza
👏👏👏👏👏👏 WOW & thank you !!!! Amazing story .
thank you!
My prayers are with all
Fantastic job!!
Thank you! Cheers!
Awesome! While I now realize I have probably had lupus since my 30s but only recently diagnosed in my late 70s, after YEARS of disabling symptoms and misdiagnosing, many doctors want to put you in this narrow spectrum when lupus varies a lot depending upon the person and can differ a lot. Some doctors will choose one or two things and if they are not obvious then you don't have lupus. I have been diagnosed by 2 brilliant doctors but some less experienced still question it when all testing points to it without question and this can be very discouraging and confusing...now on appropriate meds and am doing better than years.
Pregnancy and birth brought on my Lupus. I have intermittent memory issues associated with hormonal changes.
I am sorry to hear that! I hope you feel better now!
Omg see I have been telling everyone after having my child 3 years ago that I haven't felt well and think I have lupus. I really think I do and pregnancy brought it on also. I have a rash that comes and goes, brain fog, dizzy, hair loss, no energy whatsoever for 3 years now. I feel so sick and tired I have no energy to even go to the doctor.
If you don't mind could you tell me what your symptoms are?
It is always changing. I’ve had it since I was 31 years old. I’m 65 now. Some years I caused mental fog and memory problems. Other years it was joint problems, digestion issues, skin and scalp, Etc. I had it go into remission many times and then return with all new symptoms.
@@svnnydayzz I had every symptom that you listed. Right now I am living with low energy, I used to be a force of nature and this is hard to take. I don’t feel like I can keep up with normal life. I’m too tired. The Dr.found that my thyroid lab work came back way off of spec. I’m waiting for the meds to kick in.
Lupus found out too late
I just found out I have lupus.Im always swollen tired. My legs get cramps? Any one had this? God bless
Yes my husband was affected by the same disease for the past seven years. He is also felt swollen tired...
@fenty savage Good evening. So I should not take this your saying or it's good I want God to heal me but I'm so bad And I care 🥺 for my 84 mother thanks
Cramping or muscle spasms have plagued me since my teens shortly after the joint pain began. I don’t mean a single cramp that goes away, but multiple simultaneous spasms in a whole limb or whole body which at times becomes so rigid that limbs twist and tremor or I can’t stand up. Pain… yeah it’s unimaginable. This came in episodes at first and then lasted for 3 years straight until Rutuximab Infusions. Still comes at times. I was tested for stiff man’s disease because I looked like it. Negative.
I wish you the best.
This is my MRI result. What does this mean?
It says this: Scattered T2 hyperintensities in the white matter. This could be related to patient's known lupus. Differential includes multiple sclerosis, vasculitis and prior trauma or infection.
2. A single right temporal microhemorrhage is nonspecific.
unfortunately, I cant give you medical advise on youtube.
@@rheumatologistoncall I understand. What are hyperintensities in the white matter with SLE? That's a generic question. Not medical advice. Thanks for answering me 🙂
lupus pannicultis can be cure?
My younger sister death with lupus attack in center brain. 7 march 2022 age 35
💐 Sorry to hear
Was she not getting treated for it? Or did she find out it was lupus too late?
I don't remember most of the things I was diagnosed with SPL at the age of 17
Thank you for watching!
is lupus that affects the brain a separate diagnosis of autoimmune encephalitis/something else? before it's diagnosed do they need to make sure its not anti-nmdar encephalitis?
Thank you for watching!
Pleeeeeeease tell me I am a lupus patient since 2009. But recently my doctors are found sle in my brain . I have a terrible headache . After the MRI they started to cyclophosphamide iv .don't know what to do. Disappointed .. is this treatment going ok.or everythings going to be end
@fenty savage Stop spamming;!!
Can avoiding the food having high vitamin K content like green veges, pomegranate, plums can reduce its affects somehow?
unfortunately there is no research regarding that!
I want to thanks dr imenHerbal once again,, I'm 35 years old, and I was diagnosed with lupus 11 years ago... It's really hard to live with it bones during the winter season and very very painful extreme tiredness on summer time...but now thanks to dr imenHerbal on TH-cam who cure me from lupus
no much scientific proof for that
I went vegan 3 1/2 years ago thinking it would help my lupus symptoms but it hasn’t. I don’t drink soda no sugar drinks only water.
The most important things Dr.s must do is ask questions!
Thank you for watching!
mam i am suffering from lupus panniculits
mam there is a acute pain in my head from left side
there can be involvement of brain?
Unlikely but check with your physician 👩⚕️
I lost my wife in sle.her age 32 yrs
How did she die ? Kidney failure?
Any videos on drug induced lupus?
yes, I have one in my channel th-cam.com/video/VEVMsgWl3wQ/w-d-xo.html
@@rheumatologistoncall also is there a link to epstein Barr virus and anti-histone mine is 3.6 and also a high estein Barr test