In January 2023 I put a video out on my optic neuritis attack with vision loss. After waiting a year I got an appointment with the opthalmology doctor at my local hospital. This video is an update on my eye health and to find out if there is any long term damage to my retina.
That's so kind thank you, it's been a tough time! Granny's are so special. I'm just about to catch up on your latest video. Very interesting, thank you for sharing. Hope you're keeping well 🧡
Hello Beautiful!!! I'm happy to hear that your peepers are in good shape. I had the same eye test you spoke of when I had optic neuritis a couple of years ago. Besides my left eye feeling like someone was jabbing their finger in my eyeball, the test showed no vision loss, but I did have delayed response for the time it took for my brain to prosses the information that my eyes were sending. After a couple of months, everything went back to normal. I just watched your last video about your back issues. I found that the best thing is, as you know, is a good massage. Unfortunately, I haven't found a technique to give myself a proper back massage.🤨 Nothing compares to a well trained pair of human hands.😊 Anyway, I'm glad you're doing well, and thanks for the update Laura.🙏😘
Hey!!! Thank you, yes touch wood the 'ol peepers are holding up 😊. I think it's just so nice to have eye health checks when there seems to have been a lot of inflammation inflicted on our poor retina's. So it's your left eye too, interesting. I'm glad your eyes have gone back to normal - do you have regular eye checks? RE the back, yes massage is amazing, unfortunately it's the cost that stops me from going regularly. The last time I had a back/shoulder massage, it was way too heavy for my frame and I'm always unsure whether many massage therapists understand neurological conditions and the adaptions that need to be made 🤔. Hope you're doing well and Keeping that MS at bay 🤗
Hi Laura I hope your keeping well, I can’t find you on my instagram so I thought I would drop you a message and let you know we finally moved last Saturday yay! Another great video by the way and again learnt a lot about optic nerve problems. Lisa 😊
Hey Lisa, Thank you and that's fantastic news! I'm so pleased for you and I bet it's helped a lot with your MS and stress levels! Thanks for letting me know, hope doggo is settling in well. Re Instagram, I have just disabled it for a while. Needed to take a step back and just focus on my mental health. Hopefully I'll get back on. I'm so pleased things have worked out, here's to a bit more peace and quiet 😊 x
@@lauraironstalksms Thankyou hun, hope your good and I don’t blame you for taking a break it’s good to take some down time for yourself. So pleased we have finally moved and now just trying to fit a three bed house into a two bed bungalow, should be good for a laugh. Speak soon Lisa 😊
I only suffered from optic neuritis once causing me to lose vision in my right eye, but I did regain 80% and I'm very greatful that it did come back. I cannot imagine it happening repeatedly like in your case, that was a very traumatic experience to live through.
I had the same in my left in 1995- complete vision loss. It wasn’t dark though, it was like swirling greys? I got 100% acuity back after 2.5 weeks, but my optic nerve is 67% now. My left eye vision is a bit darker, less contrast, and red is less visible. But with both eyes open, it’s not really noticeable to me 🙂🙏🏼 It was only 6 months after I was diagnosed and I was terrified. When I was diagnosed and read about the symptoms, I thought “I can handle any of this- but NOT going blind” Then I did. And I handled it My worst fear happened and to be honest I felt mentally invincible after that xx
I'm sorry to hear about your optic neuritis attack, it can be a scary time because you don't really know what's going on with your eyes "behind the scenes" Bilberry is good for the health of your eyes, it was discovered to be beneficial for people with macular degenerative disease.
I'm sorry to hear that. My uncle lost his sight in one eye many years ago, I know he had to adjust to this and it took time. Fortunately he has a very positive outlook on life and still manages to drive and work etc. He goes for regular check ups in his blind eye and his good eye, but no treatment as yet they just monitor him for any change.
We now are 99,9% certain that the Epstein Barr Virus triggers MS in a small number of people who contract it. Everyone with MS tests positive for it and in relapses, we’ve found it in lesions
I thought that despite intense research, the underlying pathomechanisms driving inflammatory demyelination in MS remains incompletely understood? Isn't inflammation thought to be caused by an autoimmune response towards CNS self-antigens in genetically susceptible individuals?
@@lauraironstalksms As a result, two strands of research have resulted. 1. A vaccine for EBV to prevent MS being triggered in ANYONE in the future 🙂 2. New therapies for patients with MS targeting EBV to control/eradicate it to stop relapses dead or stop progression in SPMS & PPMS. If the hypothesis is correct? This is very exciting news indeed xxx
@@lauraironstalksms Much research has, and is taking place demonstrating EBV reactivating and causing MS relapses www.ncbi.nlm.nih.gov/pmc/articles/PMC6334604/#:~:text=After%20the%20MS%20onset%2C%20antibody,with%20exacerbations%20in%20RRMS%20patients. This is a relatively recent discovery and is ongoing, and at pace all over the world due to the exciting potential implications on prevention, and new treatment options for patients 🙂🙏🏼xx
In January 2023 I put a video out on my optic neuritis attack with vision loss.
After waiting a year I got an appointment with the opthalmology doctor at my local hospital. This video is an update on my eye health and to find out if there is any long term damage to my retina.
So glad your eyes are doing well Laura and there is no permanent damage. So sorry you lost your gran. Thinking of you and your family.
That's so kind thank you, it's been a tough time! Granny's are so special. I'm just about to catch up on your latest video. Very interesting, thank you for sharing. Hope you're keeping well 🧡
@@lauraironstalksms doing well thanks! 🥰
Hello Beautiful!!!
I'm happy to hear that your peepers are in good shape. I had the same eye test you spoke of when I had optic neuritis a couple of years ago. Besides my left eye feeling like someone was jabbing their finger in my eyeball, the test showed no vision loss, but I did have delayed response for the time it took for my brain to prosses the information that my eyes were sending. After a couple of months, everything went back to normal.
I just watched your last video about your back issues. I found that the best thing is, as you know, is a good massage. Unfortunately, I haven't found a technique to give myself a proper back massage.🤨
Nothing compares to a well trained pair of human hands.😊
Anyway, I'm glad you're doing well, and thanks for the update Laura.🙏😘
Hey!!! Thank you, yes touch wood the 'ol peepers are holding up 😊. I think it's just so nice to have eye health checks when there seems to have been a lot of inflammation inflicted on our poor retina's.
So it's your left eye too, interesting. I'm glad your eyes have gone back to normal - do you have regular eye checks?
RE the back, yes massage is amazing, unfortunately it's the cost that stops me from going regularly. The last time I had a back/shoulder massage, it was way too heavy for my frame and I'm always unsure whether many massage therapists understand neurological conditions and the adaptions that need to be made 🤔. Hope you're doing well and Keeping that MS at bay 🤗
Hi Laura I hope your keeping well, I can’t find you on my instagram so I thought I would drop you a message and let you know we finally moved last Saturday yay! Another great video by the way and again learnt a lot about optic nerve problems. Lisa 😊
Hey Lisa, Thank you and that's fantastic news! I'm so pleased for you and I bet it's helped a lot with your MS and stress levels! Thanks for letting me know, hope doggo is settling in well. Re Instagram, I have just disabled it for a while. Needed to take a step back and just focus on my mental health. Hopefully I'll get back on. I'm so pleased things have worked out, here's to a bit more peace and quiet 😊 x
@@lauraironstalksms Thankyou hun, hope your good and I don’t blame you for taking a break it’s good to take some down time for yourself. So pleased we have finally moved and now just trying to fit a three bed house into a two bed bungalow, should be good for a laugh. Speak soon Lisa 😊
@lisamartin-flaven7769 That sounds like it could be fun and exhausting all in one 😂. Good luck and let me know how you get on x
I only suffered from optic neuritis once causing me to lose vision in my right eye, but I did regain 80% and I'm very greatful that it did come back. I cannot imagine it happening repeatedly like in your case, that was a very traumatic experience to live through.
I had the same in my left in 1995- complete vision loss. It wasn’t dark though, it was like swirling greys?
I got 100% acuity back after 2.5 weeks, but my optic nerve is 67% now. My left eye vision is a bit darker, less contrast, and red is less visible.
But with both eyes open, it’s not really noticeable to me 🙂🙏🏼
It was only 6 months after I was diagnosed and I was terrified. When I was diagnosed and read about the symptoms, I thought “I can handle any of this- but NOT going blind”
Then I did.
And I handled it
My worst fear happened and to be honest I felt mentally invincible after that xx
I'm sorry to hear about your optic neuritis attack, it can be a scary time because you don't really know what's going on with your eyes "behind the scenes" Bilberry is good for the health of your eyes, it was discovered to be beneficial for people with macular degenerative disease.
@@lauraironstalksms Another fantastic tip thank you Laura xx
I went permanently blind in my left eye after my first relapse... No test was needed for that.
I'm sorry to hear that. My uncle lost his sight in one eye many years ago, I know he had to adjust to this and it took time. Fortunately he has a very positive outlook on life and still manages to drive and work etc. He goes for regular check ups in his blind eye and his good eye, but no treatment as yet they just monitor him for any change.
@@lauraironstalksms I suppose I was unlucky.
I'd suggest 21 day water fast if any ebv lingering it will get rid of it
Inflammation and autoimmune is driven by undiagnosed infection
We now are 99,9% certain that the Epstein Barr Virus triggers MS in a small number of people who contract it. Everyone with MS tests positive for it and in relapses, we’ve found it in lesions
I thought that despite intense research, the underlying pathomechanisms driving inflammatory demyelination in MS remains incompletely understood? Isn't inflammation thought to be caused by an autoimmune response towards CNS self-antigens in genetically susceptible individuals?
@@lauraironstalksms As a result, two strands of research have resulted.
1. A vaccine for EBV to prevent MS being triggered in ANYONE in the future 🙂
2. New therapies for patients with MS targeting EBV to control/eradicate it to stop relapses dead or stop progression in SPMS & PPMS.
If the hypothesis is correct? This is very exciting news indeed xxx
@@lauraironstalksms Hi Laura, it’s a simple test for the EBV specific antibodies in the blood. Xx
@@lauraironstalksms Much research has, and is taking place demonstrating EBV reactivating and causing MS relapses
www.ncbi.nlm.nih.gov/pmc/articles/PMC6334604/#:~:text=After%20the%20MS%20onset%2C%20antibody,with%20exacerbations%20in%20RRMS%20patients.
This is a relatively recent discovery and is ongoing, and at pace all over the world due to the exciting potential implications on prevention, and new treatment options for patients 🙂🙏🏼xx