Awww! I cried when I had my PICC line placed too! (I don't have EDS, but I needed IV antibiotics) They had trouble getting mine in too. I didn't have my parents with me, but the nurses were great. I had mine for 4 weeks, and the Tegaderm irritated my arm to the point where the Chloroprep burned like fire when the nurse did the dressing change, which happened once a week. I was glad when I got that thing out! I'm so glad you've adjusted to yours.
No idea how old you are but you look young. You're very brave! Not only to go through what you've gone through but to also share it with others! Keep hangin' in there!
Thanks for your video. Am getting my PICC line tomorrow and exciting about it. Your vid tells both Bad and Good side of it. Trust my procedure goes smoothly
Could you do a video on POTS treatments you tried previously? How/when did you know you needed infusions? Did you or your doctor bring it up first? What was the process for starting them?
Really looking forward to if/when you're able to do this. Suspect I have dysautonomia, and some form of OH/POTS wouldn't shock me at all. Interested in what I could go through if I actually ever get into the right kind of Dr to be checked for it.
I had i picc line for TPN for 2 months there was talks about going home with PN but in the end didnt but in the Uk your not allowed to go home with a Picc line you have to get a port put in place
Aaaa i recognice the "not responding to local anaesthetics" thing soooo well. I have had to pull out about 10 teeth and i havnt responded to the anaesthetic ONCE. Oh and they also took a skingraft once and i felt eVERYTHING
I am 52 and have to have a picc line in 2 weeks to get my chemotherapy drugs to the place they need to go, I was thinking about a wrap around waterproof bandage for the line as I am a chef and cannot get it wet
I had a picc line last year around this time myself. I had a serious infection caused by a ruptured colon, I had mine placed in my hospital room, the machine they used was a portable ct-scan named Sherlock, they two women who were installing my line were super friendly and kept me talking and actually related to me on how they both knew people with the basic cronic illness I have now.
I always get put fully to sleep for my picc lines because I’m super nervous about everything! My most recent one they did what they did to you and it did not go well at all! They didn’t use local numbing they used the popcan thing that didn’t work at all! Now I have had around 14 piccs and have no more veins but can’t get a port because I get blood clots and I would need more blood thinner shots with a port vs a picc:(
Allissa Wadsworth i asked to be put to sleep and they refused because I was 15 and classed as an adult and they don’t put adults to sleep for picc lines
I got my first picc line when I was 14 because of a shunt infection. Well, the nice nurses (there were two) kept asking “do you hear anything?” and I’d say yes so they would ask again and after about the 4th time I said “wait, will I not be able to hear anything with this in!?” Turns out they were asking if I heard a specific noise so they would know if it was in the right place. I have a port now but that story got told every time I had a picc put in.
I had a nerve block dinner on my L4 L5 and they did a local anesthetic, when they placed the needle on the nerve my entire back contracted so hard my feet came off the table. So yeah... I'm thinking that the possibility of me having EDS is still pretty high. Going to do the actual genetic testing in October. 🤞I am hypermobile.
Hello. I was diagnosed with POTS a little over a year ago and I just recently got a PICC line. I was curious about what you use as a cover for it. The one I’m using right now was given to me by my infusion nurse and it’s good but the tubes keep getting caught in it and ripping it.
OMG I totally know how you feel about peripheral IVs! My veins are terrible, because I've had something like 50 surgeries (I don't have EDS so it's not due to that)
I do infuse on the go from time to time. Sometimes i'll plan ahead and be running fluids if I'm going to be somewhere outside or with a lot of standing.
Sarah M I prefer to infuse during the day, mainly so I can be awake in case something were to happen. Also my infusion runs over 4 hours so at some point in the night I would have to wake up, disconnect and flush and I don't really want to be doing that while I'm half asleep 😂
Life with Stripes sorry I keep asking you questions. I'm getting a port soon and my school is weary about me infusing during the school day. My infusions are about 8 hours long and 3x a week. I feel like it's better for me to do it during the day and I usually feel great when I'm infusing. It's just frustrating. Have you ever had to deal with school and your picc line or infusing?
Sarah M No, I am homeschooled so I don't have any experience with going to school with my PICC. I'm sorry, I hope they allow you to infuse during the school day ❤️
I had to have a midline catheter in my my upper rright arm.They used that as a last resort.They suck me with an iv six times,but < they were causing me pain and it was bad.When i was getting didcharged,I asked the nurse if she coulld take the iv out because it was hurting
i possibly have hEDS but my current diagnosis is jhs and when i have oral stuff i have to have double novicane because it doesn’t work with just one for me
Omg. I relate to every bit of this. The only difference is. They gave me ketamine I think. And when I zoned out they were working on my right arm, and when I came too they were finishing up on my left, and it hurt like hell. So they had to drug me up a second time. I came to again back in my room...
Is this a common thing with POTS patients? I was just diagnosed with POTS. They are wanting to test my adrenals and everything still haven't seen a cardiologist yet but just wondering if that's a normal thing. Almost every TH-camr with POTS I've seen has IV saline. (Also I have horrible veins and getting my blood drawn is not an easy task for the professional vampires)
Surprised the Lidocaine didn’t trigger tachycardia, same deal with Nitric Oxide. Nitric Oxide causes dilation which is again a problem for POTS. They actually believe that some of the syncope in POTS is do to natural Nitric Oxide problems in the body.
getting my picc line taken out was a very unique feeling, had it for 6-7 weeks after getting sepsis for antibiotics. dont remember getting mine put in, i was medded out pretty hard
Layla S a PICC LINE stands for peripherally inserted central catheter. It is a type of central line inserted in the upper arm. It is done typically under just local anesthetic and is always hanging out of your arm. A port or port-a-cath, is surgically placed in the chest underneath the skin. It had tubing that connects it to either the jugular vein ( that's where mine is ) or the subclavien artery. Then it just looks like bump under your skin. When you need to use it they use a needle to poke it into the bump and put a dressing over it and you have instant IV access. But then unlike a PICC line when you are done with you infusion or whatever you were doing you flush and then take the needle out and nothing is hanging out on your skin. Also ports can last for years and years where PICC are relatively temporary. They can last maybe a year and that's a long time for most PICCs. I hope that answered your question, maybe go look up a video on the difference between them so you could see what they both look like and that might help you get an image of what I'm trying to describe 😊 good question though!
Very cool thank you. I get what you mean. My doctors have talked to me about a port ( i have pots and gastroparesis as well) but didn't mention a picc. I see the difference though, Very interesting.
I'm getting a picc line today. I've been in hospital for 3 weeks with my belly issues. I'm a really hard poke that ICU nurses had to come down & try to give me an IV. My heart has been bouncing all over the place & I'm nervous as hell. I'm just worried about my heart issues & when I get meds IV my heart jumps around. Do you feel the picc line cause it's placed close to the ❤️ I know you said you have POTS. I have ST wave issues, QT prolongation, something else with rate. That's makes me nervous. I'm 57 & super nervous & alone 😔 😢
@SnowySpiritRuby They couldn't give me the picc line because they did more tests & my heart's not a good fit. They saw that I have an inverted T wave & my heart beats very irregular bc they discovered I also have a RBBB (Right Bundle Branch Block). The conductivity system is messed up. So they're gonna have to keep poking me & run lines in my feet, neck, or wherever else they can grab one. I feel better. Between ICU poking me & Emerg...I really love Emerg, some seem to hit one & done. I'm always so shocked but really grateful. Thanks for asking 🙂 it really had me freaked 😳
My daughter is 22 with CF. She has a port. It's been moved 3 times over the years. CF is awful. All these illnesses, diseases, conditions, genetic mutations like CF, I am sad for you young people and my daughter
Hi my name is Scott I am from a small town in British Columbia called Prince Rupert in Canada & I was flown to St. Paul’s hospital in Vancouver BC & when I was admitted they said I’d be getting a IV & they didn’t fully explain anything it wasn’t a regular IV line it was a PICC Line catheter & for someone who can sit hours 4 a tattoo I hate needles so bad & this PICC I didn’t like how they didn’t explain that this line was going right into my heart & when I asked my nurse well a different nurse when a new nurse came for night shift she fully explained what I just went through & told me what the difference between a regular IV line vs PICC line so I wasn’t impressed & I watched a video about PICC line & they didn’t explain what they are supposed to tell us about side affects what might happen if something goes wrong but other then that everything went well but would have been nice to sit down & explain everything they just came in & said we are in to put a line in ur are so I said can u please put in my right hand because I use a cane to walk they looked at me funny said ur kidding right I said no I use a cane & said I was to young to be using a cane I said why I have a hard time walking & I use my cane in my left hand & they said we are not putting it in ur hand it’s ganna be in ur arm then freaked me out when they had all those tools then covered me like how u explained this isn’t the first time they did this to me I had a epidural in my back to me seeing it on tv shows like Chicago med or on discovery channel I thought was a shot but no they did it again didn’t tell me anything & ended up with a spine catheter epidural all this was pain treatment the spine one was to block the nerves to my leg but this was twice they didn’t explain anything to me but ur video was helpful just wish I seen ur video before all this happened
awww I'm so sorry. they are suppose to eplain every little step to you. And they are not suppose to start just putting things into your body until they know you understand what is happening and why, and if you aren't able to understand then your parents would be the ones to choose things. If I were you the next time any nurse or doc came at me with anything that looks like a dam needle or something they can shove into my body I would either A ask what they are doing with that and why, or B just get up and run and RUN fast.... LOL
That's appalling lack of procedures protocol. We're you a minor ATM, or older? Two very invasive procedures that can have complications and neither were made aware to you, let alone explaining what will happen step by step. I would've made a complaint regarding both times they kept you totally uninformed. Also, the PICC Line goes very close to the heart, but not right into it, just so you know. Hope this never happens to you again in the future. Make sure to ask questions. If you're an adult, you should be signing a form agreeing to the procedure and this form usually states the risks and the procedure itself and the Dr and staff performing the procedure. I'm in Australia and do NOT work in any facet of medical careers, but know that you were treated terribly. All the best for the future.
It’s not her fault at all, just pause and go back some seconds and everything is back to normal 😊 she made such a great video and you can only write something like that?
Awww! I cried when I had my PICC line placed too! (I don't have EDS, but I needed IV antibiotics) They had trouble getting mine in too. I didn't have my parents with me, but the nurses were great. I had mine for 4 weeks, and the Tegaderm irritated my arm to the point where the Chloroprep burned like fire when the nurse did the dressing change, which happened once a week. I was glad when I got that thing out! I'm so glad you've adjusted to yours.
No idea how old you are but you look young. You're very brave! Not only to go through what you've gone through but to also share it with others! Keep hangin' in there!
You have some issues with potassium.
Thanks for your video. Am getting my PICC line tomorrow and exciting about it. Your vid tells both Bad and Good side of it. Trust my procedure goes smoothly
My new favorite channel
Could you do a video on POTS treatments you tried previously? How/when did you know you needed infusions? Did you or your doctor bring it up first? What was the process for starting them?
Sure!
Really looking forward to if/when you're able to do this. Suspect I have dysautonomia, and some form of OH/POTS wouldn't shock me at all. Interested in what I could go through if I actually ever get into the right kind of Dr to be checked for it.
I shared this to my EDS Facebook support pages! I love your videos ❤️
Thank you so much!
I had i picc line for TPN for 2 months there was talks about going home with PN but in the end didnt but in the Uk your not allowed to go home with a Picc line you have to get a port put in place
Shania Sweeney i'm home with a picc line?
ellie douglas arent you home?
what? I'm at home with a pic line
I went home with my picc only for a couple of days tho
Aaaa i recognice the "not responding to local anaesthetics" thing soooo well. I have had to pull out about 10 teeth and i havnt responded to the anaesthetic ONCE. Oh and they also took a skingraft once and i felt eVERYTHING
Getting my picc line in the morning! Thanks for this video!!
Thnx.. Its like real motivational experience
Please please make more videos! I loved watching the 4 videos u have. Please make a get to know me video!
You poor thing. I also had a picc line inserted. Thankfully mine went fine, and I'm glad yours went well eventually as well
I don't like to have needles for surgery or anything I was gonna talk to my Dr about getting one but my question to you is can you be sedated for it
I am 52 and have to have a picc line in 2 weeks to get my chemotherapy drugs to the place they need to go, I was thinking about a wrap around waterproof bandage for the line as I am a chef and cannot get it wet
I had a picc line last year around this time myself. I had a serious infection caused by a ruptured colon, I had mine placed in my hospital room, the machine they used was a portable ct-scan named Sherlock, they two women who were installing my line were super friendly and kept me talking and actually related to me on how they both knew people with the basic cronic illness I have now.
I always get put fully to sleep for my picc lines because I’m super nervous about everything! My most recent one they did what they did to you and it did not go well at all! They didn’t use local numbing they used the popcan thing that didn’t work at all! Now I have had around 14 piccs and have no more veins but can’t get a port because I get blood clots and I would need more blood thinner shots with a port vs a picc:(
Allissa Wadsworth i asked to be put to sleep and they refused because I was 15 and classed as an adult and they don’t put adults to sleep for picc lines
I am getting my picc line in the morning and I am so scared i am already having panic attacks over it....
I got my first picc line when I was 14 because of a shunt infection. Well, the nice nurses (there were two) kept asking “do you hear anything?” and I’d say yes so they would ask again and after about the 4th time I said “wait, will I not be able to hear anything with this in!?” Turns out they were asking if I heard a specific noise so they would know if it was in the right place. I have a port now but that story got told every time I had a picc put in.
I had a nerve block dinner on my L4 L5 and they did a local anesthetic, when they placed the needle on the nerve my entire back contracted so hard my feet came off the table. So yeah... I'm thinking that the possibility of me having EDS is still pretty high. Going to do the actual genetic testing in October. 🤞I am hypermobile.
I want a PICC line I need IV 3 times a week. But theres risk of a blood clot.
Hello. I was diagnosed with POTS a little over a year ago and I just recently got a PICC line. I was curious about what you use as a cover for it. The one I’m using right now was given to me by my infusion nurse and it’s good but the tubes keep getting caught in it and ripping it.
my picc line was like your left arm. Glad it worked out in the end!
OMG I totally know how you feel about peripheral IVs! My veins are terrible, because I've had something like 50 surgeries (I don't have EDS so it's not due to that)
Do you ever infuse on the go? Like at school or anything?
I do infuse on the go from time to time. Sometimes i'll plan ahead and be running fluids if I'm going to be somewhere outside or with a lot of standing.
Life with Stripes also, is it better for you to infuse during the night or during the day? And why?
Sarah M I prefer to infuse during the day, mainly so I can be awake in case something were to happen. Also my infusion runs over 4 hours so at some point in the night I would have to wake up, disconnect and flush and I don't really want to be doing that while I'm half asleep 😂
Life with Stripes sorry I keep asking you questions. I'm getting a port soon and my school is weary about me infusing during the school day. My infusions are about 8 hours long and 3x a week. I feel like it's better for me to do it during the day and I usually feel great when I'm infusing. It's just frustrating. Have you ever had to deal with school and your picc line or infusing?
Sarah M No, I am homeschooled so I don't have any experience with going to school with my PICC. I'm sorry, I hope they allow you to infuse during the school day ❤️
Hey where do u get ur cover for your pic line?
Im getting one in morning im so nervous
I had to have a midline catheter in my my upper rright arm.They used that as a last resort.They suck me with an iv six times,but
< they were causing me pain and it was bad.When i was getting didcharged,I asked the nurse if she coulld take the iv out because it was hurting
I'm getting mine today. I haven't slept at all. I'm heading issues with my veins is why
hi i just go my picc line removed an hour ago
i possibly have hEDS but my current diagnosis is jhs and when i have oral stuff i have to have double novicane because it doesn’t work with just one for me
Omg. I relate to every bit of this. The only difference is. They gave me ketamine I think. And when I zoned out they were working on my right arm, and when I came too they were finishing up on my left, and it hurt like hell. So they had to drug me up a second time. I came to again back in my room...
Is this a common thing with POTS patients? I was just diagnosed with POTS. They are wanting to test my adrenals and everything still haven't seen a cardiologist yet but just wondering if that's a normal thing. Almost every TH-camr with POTS I've seen has IV saline. (Also I have horrible veins and getting my blood drawn is not an easy task for the professional vampires)
Just subscribed!!!!! I really enjoy your videos!!!
I got one and a drain at the same time because I had appendicitis a really really bad case
Why on earth didn't they insert a portacath instead of a PICC line?
Surprised the Lidocaine didn’t trigger tachycardia, same deal with Nitric Oxide. Nitric Oxide causes dilation which is again a problem for POTS. They actually believe that some of the syncope in POTS is do to natural Nitric Oxide problems in the body.
getting my picc line taken out was a very unique feeling, had it for 6-7 weeks after getting sepsis for antibiotics. dont remember getting mine put in, i was medded out pretty hard
Whats the difference between a picc line and a port?
Layla S a PICC LINE stands for peripherally inserted central catheter. It is a type of central line inserted in the upper arm. It is done typically under just local anesthetic and is always hanging out of your arm. A port or port-a-cath, is surgically placed in the chest underneath the skin. It had tubing that connects it to either the jugular vein ( that's where mine is ) or the subclavien artery. Then it just looks like bump under your skin. When you need to use it they use a needle to poke it into the bump and put a dressing over it and you have instant IV access. But then unlike a PICC line when you are done with you infusion or whatever you were doing you flush and then take the needle out and nothing is hanging out on your skin. Also ports can last for years and years where PICC are relatively temporary. They can last maybe a year and that's a long time for most PICCs. I hope that answered your question, maybe go look up a video on the difference between them so you could see what they both look like and that might help you get an image of what I'm trying to describe 😊 good question though!
Very cool thank you. I get what you mean. My doctors have talked to me about a port ( i have pots and gastroparesis as well) but didn't mention a picc. I see the difference though, Very interesting.
I'm getting a picc line today. I've been in hospital for 3 weeks with my belly issues. I'm a really hard poke that ICU nurses had to come down & try to give me an IV. My heart has been bouncing all over the place & I'm nervous as hell. I'm just worried about my heart issues & when I get meds IV my heart jumps around. Do you feel the picc line cause it's placed close to the ❤️ I know you said you have POTS. I have ST wave issues, QT prolongation, something else with rate. That's makes me nervous. I'm 57 & super nervous & alone 😔 😢
How did it go?
@SnowySpiritRuby They couldn't give me the picc line because they did more tests & my heart's not a good fit. They saw that I have an inverted T wave & my heart beats very irregular bc they discovered I also have a RBBB (Right Bundle Branch Block). The conductivity system is messed up. So they're gonna have to keep poking me & run lines in my feet, neck, or wherever else they can grab one. I feel better. Between ICU poking me & Emerg...I really love Emerg, some seem to hit one & done. I'm always so shocked but really grateful. Thanks for asking 🙂 it really had me freaked 😳
I had a picc line. It definitely was not fun! I had it for my intestine issues. I ended up being diagnosed with crones
My mrs has been told she will need a picc to administer her chemotherapy, she ain’t looking forward to it . I’ll tell her to watch this .
45 minute picc line??? Omg. Mine was 10 minutes and i was chillin watching tv.
Hey! Random question but what state/country are you from? Curious to know if its the same kind of procedure where I am!
Lauren Torre I do believe it's just about the same everywhere
I just get my Pick line put in last week
Have a very HAPPY VALENTINE'S DAY ON
2/14/2018
Can you eat actual food?
Literally thought you were a young version of alexis g. Zall
Kool story, I know what it's like to have a PICC line or main line or port. I have CF and I'm 29 I have been in the hospital many times in my past.
My daughter is 22 with CF. She has a port. It's been moved 3 times over the years. CF is awful. All these illnesses, diseases, conditions, genetic mutations like CF, I am sad for you young people and my daughter
Hi my name is Scott I am from a small town in British Columbia called Prince Rupert in Canada & I was flown to St. Paul’s hospital in Vancouver BC & when I was admitted they said I’d be getting a IV & they didn’t fully explain anything it wasn’t a regular IV line it was a PICC Line catheter & for someone who can sit hours 4 a tattoo I hate needles so bad & this PICC I didn’t like how they didn’t explain that this line was going right into my heart & when I asked my nurse well a different nurse when a new nurse came for night shift she fully explained what I just went through & told me what the difference between a regular IV line vs PICC line so I wasn’t impressed & I watched a video about PICC line & they didn’t explain what they are supposed to tell us about side affects what might happen if something goes wrong but other then that everything went well but would have been nice to sit down & explain everything they just came in & said we are in to put a line in ur are so I said can u please put in my right hand because I use a cane to walk they looked at me funny said ur kidding right I said no I use a cane & said I was to young to be using a cane I said why I have a hard time walking & I use my cane in my left hand & they said we are not putting it in ur hand it’s ganna be in ur arm then freaked me out when they had all those tools then covered me like how u explained this isn’t the first time they did this to me I had a epidural in my back to me seeing it on tv shows like Chicago med or on discovery channel I thought was a shot but no they did it again didn’t tell me anything & ended up with a spine catheter epidural all this was pain treatment the spine one was to block the nerves to my leg but this was twice they didn’t explain anything to me but ur video was helpful just wish I seen ur video before all this happened
awww I'm so sorry. they are suppose to eplain every little step to you. And they are not suppose to start just putting things into your body until they know you understand what is happening and why, and if you aren't able to understand then your parents would be the ones to choose things. If I were you the next time any nurse or doc came at me with anything that looks like a dam needle or something they can shove into my body I would either A ask what they are doing with that and why, or B just get up and run and RUN fast.... LOL
That's appalling lack of procedures protocol. We're you a minor ATM, or older? Two very invasive procedures that can have complications and neither were made aware to you, let alone explaining what will happen step by step.
I would've made a complaint regarding both times they kept you totally uninformed.
Also, the PICC Line goes very close to the heart, but not right into it, just so you know.
Hope this never happens to you again in the future. Make sure to ask questions. If you're an adult, you should be signing a form agreeing to the procedure and this form usually states the risks and the procedure itself and the Dr and staff performing the procedure.
I'm in Australia and do NOT work in any facet of medical careers, but know that you were treated terribly.
All the best for the future.
Nas gl
Morning night love you talk later yes thanks Happy is your day tomorrow afternoon
just clicked cause she's cute lol lil young but still cute
That’s creepy
Pervert! She is only 16 in this video
No hate I'm sorry but if u watch her face closely you can tell she's lipping it and just did a voice over bc her lips aren't matching the voice over
A&E Fam No hate but you should know TH-cam sometimes plays sound out of sync with the video and if that happens you should just restart the video
Audio and video out of sync is quite common on a lot of platforms, and TH-cam is no exception.
Leave her a lone. Nothining nice to say.
It’s not her fault at all, just pause and go back some seconds and everything is back to normal 😊 she made such a great video and you can only write something like that?
But why you would say that.