My son was just diagnosed with SPS. He was lucky enough to live in the Chicago metropolitan area of the US. My husband and I are lucky enough we don’t live too far from them. He started having symptoms in April 2024. He’s been having major issues including affecting his breathing. He is 40 years old. His wife is wonderful. I’ve been trying to find out about the disease and treatments. His doctors are just trying to get the flares calmed down and getting a treatment plan in place. I must say hearing you talk makes me very scared. He works as an architect and project manager I. Downtown Chicago. They’ve made a medical accommodation and allowed him to work from home home for the next year and then reassess to see how it’s going.
Thank you so much. I've been searching for a diagnosis for 6 years. Everything adds up to sps. I've advocated for myself for so long. Hearing how you were gaslighted for so long. I have been referred to psychology by 4 nuerologist. My 5th neurology hears me. And is almost to a diagnosis. The information you spread is helping me and I'm sure many others. Thank you
I currently have a diffental diagnosis of SPS. I have been experiencing health issues since 2021. I have been out of work since November 2023 after having a small stroke. I agree with you about the doctors not listening and implying that psychotherapy is needed.
My son was just diagnosed with SPS. He was lucky enough to live in the Chicago metropolitan area of the US. My husband and I are lucky enough we don’t live too far from them. He started having symptoms in April 2024. He’s been having major issues including affecting his breathing. He is 40 years old. His wife is wonderful. I’ve been trying to find out about the disease and treatments. His doctors are just trying to get the flares calmed down and getting a treatment plan in place. I must say hearing you talk makes me very scared. He works as an architect and project manager I. Downtown Chicago. They’ve made a medical accommodation and allowed him to work from home home for the next year and then reassess to see how it’s going.
This was so well done Lea!
You are a fighter & inspiration to me! So happy to call you my friend! I will share this for sure! Love you!❤
Love you right back 💕😘🤗
Thank you so much. I've been searching for a diagnosis for 6 years. Everything adds up to sps. I've advocated for myself for so long. Hearing how you were gaslighted for so long. I have been referred to psychology by 4 nuerologist. My 5th neurology hears me. And is almost to a diagnosis. The information you spread is helping me and I'm sure many others. Thank you
Thank you for your message, it means a lot.. I hope you are being heard and well taken care of!🥰
I currently have a diffental diagnosis of SPS. I have been experiencing health issues since 2021. I have been out of work since November 2023 after having a small stroke. I agree with you about the doctors not listening and implying that psychotherapy is needed.
Thank you for talking about this
Thank you for this. I really needed some information that is not coming from doctors.
If there anyway I can text you in IG or Fb because my bf have the same disease you have n I want u ask u more questions