Disability Benefits and Headache Disorders

Episode 80: Have you tried to get social security disability benefits for migraine or headache disorders? If so, you know how difficult and frustrating the process is for people living with migraine disease and headache disorders. Don't miss this episode of Heads UP with Dr. Lindsay Burgarello Weitzel and Disability Attorney, Michael Liner. Michael lives with cluster headache and he is committed to helping others get the benefits they are entitled to. Tune in for this informative discussion on how to navigate the process of applying for disability benefits.
#headache #migraine #podcast #wellness #healthcare
Follow the National Headache Foundation's podcast HeadWise, as host Lindsay Weitzel, PhD, has informative discussions with headache experts on the latest treatment, research, lifestyle recommendations, and personal stories about living with migraine disease and headache disorders. HeadWise can be found on Apple Podcasts, Spotify, Stitcher, Overcast, or wherever you get your podcasts.
Subscribe for more episodes just like this: / nationalheadachefounda...
====================================================
Visit our website:
headaches.org/
====================================================
Follow us on social media:
Facebook: / nationalheadachefounda...
Instagram: / nationalheadachefounda...
Twitter: / nhf
====================================================
Download our podcast:
Apple Podcast: podcasts.apple...
Spotify: open.spotify.c...

[@TTheBiehlster]

I wanted to thank you again for this encouraging video. Because of it, I kept going despite feeling so defeated, and when I was rejected for SSI, I filed an appeal. As of October 2021, almost 1 year and 5 months after first applying, I was finally approved for disability benefits for my chronic migraines. I did this without a lawyer, so I cannot attest to how much a lawyer would have helped me, but did find the process for myself rather mentally exhausting and it was difficult to do it all on my own, and with such a small support system. My neurologist even, who knows how bad things get for me, repeatedly told me at every visit that she did not think I would get approved. It was difficult to find the strength to press on. So in case anyone else sees this and is trying to get help, like I did, just please know it is possible.
10:34 The one thing I did different when I appealed my case was send them my very detailed migraine journals. I sent 9 months worth. I have no idea if that was overkill, but it worked is all I know. I believe that is what tipped the scales in my favor, so I highly recommend a detailed migraine journal for anyone trying to get approved.

[@misslesslie2235]

Great video! My question is, how do you get your doctor to actually write these specific details in your record? I just got my unfavorable decision from my hearing. I filed for severe, chronic migraines. None of my doctors were willing to fill out a functional capacity report!

[@katiewilkinson3830]

I have refractory intractable migraines it took me forever to get disability on my own I was denied more than once if it wasn't for the disability lawyer I wouldn't have been approved

[@wickerbuni]

I guarantee if the SSA or the judges etc had migraines they would feel for us. I have occipital neuralgia and that is just the beginning.

[@TTheBiehlster]

This was so encouraging. Thank you for making this video.

[@NationalHeadacheFoundation]

We are so glad you found this helpful!

[@RandyScott-ij4fc]

Thank you

[@Mollyjayn]

I have horrible migraine. The government doesn't want to make it easy for anybody to receive free money. I don't know why, aren't they public servants? It comes down to the ideal culture vs the real culture.

[@sarita5572]

I've had migraines for years but since last year I've started experiencing several vision issues. Sometimes without the headache part of the migrain. There are times I'll lose vision while driving which scares me. I've also been experiencing dizziness. So bad I have to grab onto something so I don't fall. I reached out to my doctor today after my husband told me he was worried. I've had blood clots in my leg in the past and I also have a large birth mark on my head. My daughter has epilepsy as well. I'm hoping to get answers cause it's really affecting my life in a negative way at home and at work. This may have to be an option eventually if I don't get any better. My migraines and vision issues occur on average 3 times a week if not more. At the start of this year I downloaded an app to start tracking and making notes on my daily symptoms. I also reached out to my doctor. Let's see what happens.

[@NationalHeadacheFoundation]

Are you seeing a headache specialist?

[@tinahalle3575]

So if a person has actually been diagnosed with white matter disease , is that different than the white matter disease detected when it comes to those who have migraines ? My mom has just been diagnosed with white matter disease ( moderate ) 😞and I have been suffering from migraines for over twenty five years . I’ve heard there’s mild , moderate and severe types of white matter disease. Is it not serious in migraine conditions because it’s often the mild type ? Most people get the mild type with age . I think the lady in the other video said 100 percent will have some mild amount of it after 65 and that it doesn’t cause symptoms but I could be remembering that wrong . The things she mentioned to help it though such as diet , excercise and blood pressure management sound like great ways to prevent it from progressing before the disease reaches a state where a person starts having severe symptoms. Seems like if a person has shown evidence of this at a young age or any age , that prevention would be most effective when started as soon as possible…. Before it reaches the moderate stage which seems to be the only time the doctors recognize it as problematic.

[@TheGuerillapatriot]

I AM STINGING MYSELF WITH BEES. I DON'T WANT TO LIVE. I'm not saying I will end it. I'm angry, this is long covid.